Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 So what do they tell young women that have kids with DS? I know several in my area in 20’s and early 30’s. From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of agirlnamedsuess21 Sent: Thursday, January 28, 2010 10:31 AM To: DownSyndromeInfoExchange Subject: {Disarmed} [DownSyndromeInfoExchange] Re: Does it really matter if your child is T-21 or MDS? Yeah, I was told that as well and aborted a child based on that *wrong* information. My child ended up having MDS,I found out 3 years later, not a result of *old eggs*. Still heartbroken over the fact that I made a decision based on wrong information and diagnosis. I now have 5 kids, but I can never bring back the one that is gone. Another reason that accurate diagnosis is vitally important. > > > > > > > > > > I would hate if all the high functioning kids were mds. Takes away all the hope > > > > > > > > > > > > > > > [DownSyndromeInfoExchange] Does it really matter if your child is T-21 or MDS? > > > > > > > > > > > > > > > > > > > > After reading the discussion about being properly diagnosed with T-21 or MDS I have to ask...Does it really matter? > > > > > > > > > > I have not seen Nate's Karotype so I don't know how many cells were tested. I just trusted that he has T-21 or Down syndrome. Now after reading for the first time...I don't recall reading in any of the articles I have read on Childhood Apraxia of Speech that this was common for children with MDS. It makes me question wether Nate is really " straight up T-21 " (as his ENT had asked me years ago). Nate also has some delayed eating and extreme oral defensiveness also with CAS (not officially diagnosed because his current SLP is not specialized in this area so she cannot diagnose it herself). Nate had a right parietal CVA perinatally so we do not know if this affected him in any way. He otherwise has met all his other milestones in a very timely manner. > > > > > > > > > > However, if I was to have Nate retested with the 500 cells as standard and it showed MDS vs T-21 what real difference would this make for Nate? Maybe I need to read up on MDS.... but wether or not he has T-21 or MDS... he would still have Down sydnrome. Am I correct? > > > > > > > > > > Right now I do not think having an official diagnosis of apraxia is needed as we are treating him as if he does have it. However, if I needed to get him more SLP that I feel would be needed I would seek it out. Right now I am comfortable with the amount of speech he is getting and I am his " communication partner " . > > > > > > > > > > Maybe my views are this because Nate is still in preschool....in time maybe it will be important?????? > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 Not sure but it's a good question. I never thought that my daughter would have DS. I figured if anything, she would have Trisomy 10q / 5p- syndrome because of my other daughter and my sister and also that I have the balanced translocation. So when the doctor called and told me over the phone she was DS I wasn't expecting it as I was expecting the other diagnosis. But then I just said "oh ok cool" and thanked the doctor for calling and hung up and went and told my husband the news. [DownSyndromeInfoExchange] Does it really matter if your child is T-21 or MDS?> > > > > > > > > > > > > > > > > > > > After reading the discussion about being properly diagnosed with T-21 or MDS I have to ask...Does it really matter? > > > > > > > > > > I have not seen Nate's Karotype so I don't know how many cells were tested. I just trusted that he has T-21 or Down syndrome. Now after reading for the first time...I don't recall reading in any of the articles I have read on Childhood Apraxia of Speech that this was common for children with MDS. It makes me question wether Nate is really "straight up T-21" (as his ENT had asked me years ago). Nate also has some delayed eating and extreme oral defensiveness also with CAS (not officially diagnosed because his current SLP is not specialized in this area so she cannot diagnose it herself). Nate had a right parietal CVA perinatally so we do not know if this affected him in any way. He otherwise has met all his other milestones in a very timely manner.> > > > > > > > > > However, if I was to have Nate retested with the 500 cells as standard and it showed MDS vs T-21 what real difference would this make for Nate? Maybe I need to read up on MDS.... but wether or not he has T-21 or MDS... he would still have Down sydnrome. Am I correct?> > > > > > > > > > Right now I do not think having an official diagnosis of apraxia is needed as we are treating him as if he does have it. However, if I needed to get him more SLP that I feel would be needed I would seek it out. Right now I am comfortable with the amount of speech he is getting and I am his "communication partner". > > > > > > > > > > Maybe my views are this because Nate is still in preschool....in time maybe it will be important??????> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 Who knows. DFCS got involved & tried to say that I was on drugs and *that* was the reason I had a child with DS. ABSURD! Maybe that is what they tell them. > > > > > > > > > > > > I would hate if all the high functioning kids were mds. Takes away > all the hope > > > > > > > > > > > > > > > > > > [DownSyndromeInfoExchange] Does it really matter if your > child is T-21 or MDS? > > > > > > > > > > > > > > > > > > > > > > > > After reading the discussion about being properly diagnosed with > T-21 or MDS I have to ask...Does it really matter? > > > > > > > > > > > > I have not seen Nate's Karotype so I don't know how many cells > were tested. I just trusted that he has T-21 or Down syndrome. Now after > reading for the first time...I don't recall reading in any of the articles I > have read on Childhood Apraxia of Speech that this was common for children > with MDS. It makes me question wether Nate is really " straight up T-21 " (as > his ENT had asked me years ago). Nate also has some delayed eating and > extreme oral defensiveness also with CAS (not officially diagnosed because > his current SLP is not specialized in this area so she cannot diagnose it > herself). Nate had a right parietal CVA perinatally so we do not know if > this affected him in any way. He otherwise has met all his other milestones > in a very timely manner. > > > > > > > > > > > > However, if I was to have Nate retested with the 500 cells as > standard and it showed MDS vs T-21 what real difference would this make for > Nate? Maybe I need to read up on MDS.... but wether or not he has T-21 or > MDS... he would still have Down sydnrome. Am I correct? > > > > > > > > > > > > Right now I do not think having an official diagnosis of apraxia > is needed as we are treating him as if he does have it. However, if I needed > to get him more SLP that I feel would be needed I would seek it out. Right > now I am comfortable with the amount of speech he is getting and I am his > " communication partner " . > > > > > > > > > > > > Maybe my views are this because Nate is still in preschool....in > time maybe it will be important?????? > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 there was a study done a few years ago that showed that the young women who had a mutation in their MTHFR gene were more likely to have a baby w/Ds than those who don't have the mutation.http://www.healthline.com/blogs/pregnancy_childbirth/2007/05/down-syndrome-and-folate-metabolism.html http://www.healthline.com/blogs/pregnancy_childbirth/2007/06/down-syndrome-and-folate-metabolism-2.html Who knows. DFCS got involved & tried to say that I was on drugs and *that* was the reason I had a child with DS. ABSURD! Maybe that is what they tell them. > > > > > > > > > > > > I would hate if all the high functioning kids were mds. Takes away > all the hope > > > > > > > > > > > > > > > > > > [DownSyndromeInfoExchange] Does it really matter if your > child is T-21 or MDS? > > > > > > > > > > > > > > > > > > > > > > > > After reading the discussion about being properly diagnosed with > T-21 or MDS I have to ask...Does it really matter? > > > > > > > > > > > > I have not seen Nate's Karotype so I don't know how many cells > were tested. I just trusted that he has T-21 or Down syndrome. Now after > reading for the first time...I don't recall reading in any of the articles I > have read on Childhood Apraxia of Speech that this was common for children > with MDS. It makes me question wether Nate is really " straight up T-21 " (as > his ENT had asked me years ago). Nate also has some delayed eating and > extreme oral defensiveness also with CAS (not officially diagnosed because > his current SLP is not specialized in this area so she cannot diagnose it > herself). Nate had a right parietal CVA perinatally so we do not know if > this affected him in any way. He otherwise has met all his other milestones > in a very timely manner. > > > > > > > > > > > > However, if I was to have Nate retested with the 500 cells as > standard and it showed MDS vs T-21 what real difference would this make for > Nate? Maybe I need to read up on MDS.... but wether or not he has T-21 or > MDS... he would still have Down sydnrome. Am I correct? > > > > > > > > > > > > Right now I do not think having an official diagnosis of apraxia > is needed as we are treating him as if he does have it. However, if I needed > to get him more SLP that I feel would be needed I would seek it out. Right > now I am comfortable with the amount of speech he is getting and I am his > " communication partner " . > > > > > > > > > > > > Maybe my views are this because Nate is still in preschool....in > time maybe it will be important?????? > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 I was 31 when Sophia was born. No one ever said anything to me about my eggs. We have lot's in my area who are young moms as well. I think it's horrible how society blames moms for most things with their children. If my boys misbehave - it must be that i don't discipline them appropriately. Whatever! RubySo what do they tell young women that have kids with DS? I know several in my area in 20’s and early 30’s. From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of agirlnamedsuess21Sent: Thursday, January 28, 2010 10:31 AMTo: DownSyndromeInfoExchange Subject: {Disarmed} [DownSyndromeInfoExchange] Re: Does it really matter if your child is T-21 or MDS? Yeah, I was told that as well and aborted a child based on that *wrong* information. My child ended up having MDS,I found out 3 years later, not a result of *old eggs*. Still heartbroken over the fact that I made a decision based on wrong information and diagnosis.I now have 5 kids, but I can never bring back the one that is gone.Another reason that accurate diagnosis is vitally important.> > > > >> > > > > I would hate if all the high functioning kids were mds. Takes away all the hope > > > > > > > > > > > > > > > [DownSyndromeInfoExchange] Does it really matter if your child is T-21 or MDS?> > > > > > > > > > > > > > > > > > > > After reading the discussion about being properly diagnosed with T-21 or MDS I have to ask...Does it really matter? > > > > > > > > > > I have not seen Nate's Karotype so I don't know how many cells were tested. I just trusted that he has T-21 or Down syndrome. Now after reading for the first time...I don't recall reading in any of the articles I have read on Childhood Apraxia of Speech that this was common for children with MDS. It makes me question wether Nate is really "straight up T-21" (as his ENT had asked me years ago). Nate also has some delayed eating and extreme oral defensiveness also with CAS (not officially diagnosed because his current SLP is not specialized in this area so she cannot diagnose it herself). Nate had a right parietal CVA perinatally so we do not know if this affected him in any way. He otherwise has met all his other milestones in a very timely manner.> > > > > > > > > > However, if I was to have Nate retested with the 500 cells as standard and it showed MDS vs T-21 what real difference would this make for Nate? Maybe I need to read up on MDS.... but wether or not he has T-21 or MDS... he would still have Down sydnrome. Am I correct?> > > > > > > > > > Right now I do not think having an official diagnosis of apraxia is needed as we are treating him as if he does have it. However, if I needed to get him more SLP that I feel would be needed I would seek it out. Right now I am comfortable with the amount of speech he is getting and I am his "communication partner". > > > > > > > > > > Maybe my views are this because Nate is still in preschool....in time maybe it will be important??????> > > > >> > > >> > >> >>= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 Our birth mother was told that her drug use was the reason for having DS. She got to a point in therapy where she was suppose to own up to all the damage she had done/caused to others. And she wanted to apologize to us for causing the DS. I told her that while I do believe she should take responsibility for what she did, and yes the premature birth from the drugs was her fault, as were some other issues, the DS was not. Not only did I have to explain to her about how DS occurs, but her therapist called me as well for the same information. Crazy. I have had medical professionals tell me that her drug use caused the DS. I have to educated them. Amazing Romero Who Dat! Superbowl Bound Baby. From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of agirlnamedsuess21 Sent: Thursday, January 28, 2010 11:11 AM To: DownSyndromeInfoExchange Subject: [DownSyndromeInfoExchange] Re: Old eggs Who knows. DFCS got involved & tried to say that I was on drugs and *that* was the reason I had a child with DS. ABSURD! Maybe that is what they tell them. > > > > > > > > > > > > I would hate if all the high functioning kids were mds. Takes away > all the hope > > > > > > > > > > > > > > > > > > [DownSyndromeInfoExchange] Does it really matter if your > child is T-21 or MDS? > > > > > > > > > > > > > > > > > > > > > > > > After reading the discussion about being properly diagnosed with > T-21 or MDS I have to ask...Does it really matter? > > > > > > > > > > > > I have not seen Nate's Karotype so I don't know how many cells > were tested. I just trusted that he has T-21 or Down syndrome. Now after > reading for the first time...I don't recall reading in any of the articles I > have read on Childhood Apraxia of Speech that this was common for children > with MDS. It makes me question wether Nate is really " straight up T-21 " (as > his ENT had asked me years ago). Nate also has some delayed eating and > extreme oral defensiveness also with CAS (not officially diagnosed because > his current SLP is not specialized in this area so she cannot diagnose it > herself). Nate had a right parietal CVA perinatally so we do not know if > this affected him in any way. He otherwise has met all his other milestones > in a very timely manner. > > > > > > > > > > > > However, if I was to have Nate retested with the 500 cells as > standard and it showed MDS vs T-21 what real difference would this make for > Nate? Maybe I need to read up on MDS.... but wether or not he has T-21 or > MDS... he would still have Down sydnrome. Am I correct? > > > > > > > > > > > > Right now I do not think having an official diagnosis of apraxia > is needed as we are treating him as if he does have it. However, if I needed > to get him more SLP that I feel would be needed I would seek it out. Right > now I am comfortable with the amount of speech he is getting and I am his > " communication partner " . > > > > > > > > > > > > Maybe my views are this because Nate is still in preschool....in > time maybe it will be important?????? > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 You know… I myself just cant grasp the whole DS is more common in older woman blah blah blah thing. I was 27 when we conceived and had Ethan. And there are many much younger mothers than myself. AND I was SO surprised to see all the much younger moms at our local DS associating. If I have an egg with an extra chromosome… chances are it will either be now or later (unless I go through a ovulation cycle where it is not fertilized) that THAT egg will be fertilized. What if we ALL have eggs with an extra chromosome. They just don’t ever get to be fertilized… what if age really isnt the factor. But what do I know.. I just don’t belive the whole age thing To: DownSyndromeInfoExchange Sent: Thu, January 28, 2010 11:32:19 AMSubject: RE: [DownSyndromeInfoExchange] Re: Old eggs Our birth mother was told that her drug use was the reason for having DS. She got to a point in therapy where she was suppose to own up to all the damage she had done/caused to others. And she wanted to apologize to us for causing the DS. I told her that while I do believe she should take responsibility for what she did, and yes the premature birth from the drugs was her fault, as were some other issues, the DS was not. Not only did I have to explain to her about how DS occurs, but her therapist called me as well for the same information. Crazy. I have had medical professionals tell me that her drug use caused the DS. I have to educated them. Amazing Romero Who Dat! Superbowl Bound Baby. From: DownSyndromeInfoExc hange@yahoogroup s.com [mailto:DownSyndrom eInfoExchange@ yahoogroups. com] On Behalf Of agirlnamedsuess21 Sent: Thursday, January 28, 2010 11:11 AM To: DownSyndromeInfoExc hange@yahoogroup s.com Subject: [DownSyndromeInfoEx change] Re: Old eggs Who knows. DFCS got involved & tried to say that I was on drugs and *that* was the reason I had a child with DS. ABSURD! Maybe that is what they tell them. > > > > > > > > > > > > I would hate if all the high functioning kids were mds. Takes away > all the hope > > > > > > > > > > > > > > > > > > [DownSyndromeInfoEx change] Does it really matter if your > child is T-21 or MDS? > > > > > > > > > > > > > > > > > > > > > > > > After reading the discussion about being properly diagnosed with > T-21 or MDS I have to ask...Does it really matter? > > > > > > > > > > > > I have not seen Nate's Karotype so I don't know how many cells > were tested. I just trusted that he has T-21 or Down syndrome. Now after > reading for the first time...I don't recall reading in any of the articles I > have read on Childhood Apraxia of Speech that this was common for children > with MDS. It makes me question wether Nate is really "straight up T-21" (as > his ENT had asked me years ago). Nate also has some delayed eating and > extreme oral defensiveness also with CAS (not officially diagnosed because > his current SLP is not specialized in this area so she cannot diagnose it > herself). Nate had a right parietal CVA perinatally so we do not know if > this affected him in any way. He otherwise has met all his other milestones > in a very timely manner. > > > > > > > > > > > > However, if I was to have Nate retested with the 500 cells as > standard and it showed MDS vs T-21 what real difference would this make for > Nate? Maybe I need to read up on MDS.... but wether or not he has T-21 or > MDS... he would still have Down sydnrome. Am I correct? > > > > > > > > > > > > Right now I do not think having an official diagnosis of apraxia > is needed as we are treating him as if he does have it.. However, if I needed > to get him more SLP that I feel would be needed I would seek it out. Right > now I am comfortable with the amount of speech he is getting and I am his > "communication partner". > > > > > > > > > > > > Maybe my views are this because Nate is still in preschool... .in > time maybe it will be important??? ??? > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 , I actually *know* why they told her (the birh mother of your child)this. You will be stunned! But DFCS gets $8,000 from the federal gov't for adopting out a child with special needs and a monthly stipend thereafter. The hospital actally put drugs into my son and then drug tested him. They had given him some medications that he had an allergic reaction to (anaphylaxis) and them deemed it *seizure-like activity* and gave him phenobarbital. The 11 CT Scans they did on him revealed no abnormality or seizures. Clearly, DFCS was trying to get their stipend and steal my son in the interim. > > > > > > > > > > > > > > I would hate if all the high functioning kids were mds. Takes > away > > all the hope > > > > > > > > > > > > > > > > > > > > > [DownSyndromeInfoExchange] Does it really matter if > your > > child is T-21 or MDS? > > > > > > > > > > > > > > > > > > > > > > > > > > > > After reading the discussion about being properly diagnosed with > > T-21 or MDS I have to ask...Does it really matter? > > > > > > > > > > > > > > I have not seen Nate's Karotype so I don't know how many cells > > were tested. I just trusted that he has T-21 or Down syndrome. Now after > > reading for the first time...I don't recall reading in any of the articles > I > > have read on Childhood Apraxia of Speech that this was common for children > > with MDS. It makes me question wether Nate is really " straight up T-21 " > (as > > his ENT had asked me years ago). Nate also has some delayed eating and > > extreme oral defensiveness also with CAS (not officially diagnosed because > > his current SLP is not specialized in this area so she cannot diagnose it > > herself). Nate had a right parietal CVA perinatally so we do not know if > > this affected him in any way. He otherwise has met all his other > milestones > > in a very timely manner. > > > > > > > > > > > > > > However, if I was to have Nate retested with the 500 cells as > > standard and it showed MDS vs T-21 what real difference would this make > for > > Nate? Maybe I need to read up on MDS.... but wether or not he has T-21 or > > MDS... he would still have Down sydnrome. Am I correct? > > > > > > > > > > > > > > Right now I do not think having an official diagnosis of apraxia > > is needed as we are treating him as if he does have it. However, if I > needed > > to get him more SLP that I feel would be needed I would seek it out. Right > > now I am comfortable with the amount of speech he is getting and I am his > > " communication partner " . > > > > > > > > > > > > > > Maybe my views are this because Nate is still in preschool....in > > time maybe it will be important?????? > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 Ruby...That s so true. And I am ashamed to admit I used to be one of those who thought that way when I saw an aberrant child in public. > > > > > > > > > > > > > > I would hate if all the high functioning kids were mds. > > Takes away all the hope > > > > > > > > > > > > > > > > > > > > > [DownSyndromeInfoExchange] Does it really matter > > if your child is T-21 or MDS? > > > > > > > > > > > > > > > > > > > > > > > > > > > > After reading the discussion about being properly > > diagnosed with T-21 or MDS I have to ask...Does it really matter? > > > > > > > > > > > > > > I have not seen Nate's Karotype so I don't know how many > > cells were tested. I just trusted that he has T-21 or Down syndrome. > > Now after reading for the first time...I don't recall reading in any > > of the articles I have read on Childhood Apraxia of Speech that this > > was common for children with MDS. It makes me question wether Nate > > is really " straight up T-21 " (as his ENT had asked me years ago). > > Nate also has some delayed eating and extreme oral defensiveness > > also with CAS (not officially diagnosed because his current SLP is > > not specialized in this area so she cannot diagnose it herself). > > Nate had a right parietal CVA perinatally so we do not know if this > > affected him in any way. He otherwise has met all his other > > milestones in a very timely manner. > > > > > > > > > > > > > > However, if I was to have Nate retested with the 500 cells > > as standard and it showed MDS vs T-21 what real difference would > > this make for Nate? Maybe I need to read up on MDS.... but wether or > > not he has T-21 or MDS... he would still have Down sydnrome. Am I > > correct? > > > > > > > > > > > > > > Right now I do not think having an official diagnosis of > > apraxia is needed as we are treating him as if he does have it. > > However, if I needed to get him more SLP that I feel would be needed > > I would seek it out. Right now I am comfortable with the amount of > > speech he is getting and I am his " communication partner " . > > > > > > > > > > > > > > Maybe my views are this because Nate is still in > > preschool....in time maybe it will be important?????? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 It was not DCFS (DCFS was never involved in our case, he was surrendered at birth), it was her therapist, it was a year AFTER the adoption was done. So your theory is moot. Romero Who Dat! Superbowl Bound Baby. From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of agirlnamedsuess21 Sent: Thursday, January 28, 2010 12:16 PM To: DownSyndromeInfoExchange Subject: [DownSyndromeInfoExchange] Re: Old eggs , I actually *know* why they told her (the birh mother of your child)this. You will be stunned! But DFCS gets $8,000 from the federal gov't for adopting out a child with special needs and a monthly stipend thereafter. The hospital actally put drugs into my son and then drug tested him. They had given him some medications that he had an allergic reaction to (anaphylaxis) and them deemed it *seizure-like activity* and gave him phenobarbital. The 11 CT Scans they did on him revealed no abnormality or seizures. Clearly, DFCS was trying to get their stipend and steal my son in the interim. > > > > > > > > > > > > > > I would hate if all the high functioning kids were mds. Takes > away > > all the hope > > > > > > > > > > > > > > > > > > > > > [DownSyndromeInfoExchange] Does it really matter if > your > > child is T-21 or MDS? > > > > > > > > > > > > > > > > > > > > > > > > > > > > After reading the discussion about being properly diagnosed with > > T-21 or MDS I have to ask...Does it really matter? > > > > > > > > > > > > > > I have not seen Nate's Karotype so I don't know how many cells > > were tested. I just trusted that he has T-21 or Down syndrome. Now after > > reading for the first time...I don't recall reading in any of the articles > I > > have read on Childhood Apraxia of Speech that this was common for children > > with MDS. It makes me question wether Nate is really " straight up T-21 " > (as > > his ENT had asked me years ago). Nate also has some delayed eating and > > extreme oral defensiveness also with CAS (not officially diagnosed because > > his current SLP is not specialized in this area so she cannot diagnose it > > herself). Nate had a right parietal CVA perinatally so we do not know if > > this affected him in any way. He otherwise has met all his other > milestones > > in a very timely manner. > > > > > > > > > > > > > > However, if I was to have Nate retested with the 500 cells as > > standard and it showed MDS vs T-21 what real difference would this make > for > > Nate? Maybe I need to read up on MDS.... but wether or not he has T-21 or > > MDS... he would still have Down sydnrome. Am I correct? > > > > > > > > > > > > > > Right now I do not think having an official diagnosis of apraxia > > is needed as we are treating him as if he does have it. However, if I > needed > > to get him more SLP that I feel would be needed I would seek it out. Right > > now I am comfortable with the amount of speech he is getting and I am his > > " communication partner " . > > > > > > > > > > > > > > Maybe my views are this because Nate is still in preschool....in > > time maybe it will be important?????? > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 Thanks for posting that. That is the kind of genetic research I am interested in (a 6 year hobby of mine) Very interesting stuff. > > > > > > > > > > > > > > > > I would hate if all the high functioning kids were mds. Takes > > away > > > all the hope > > > > > > > > > > > > > > > > > > > > > > > > [DownSyndromeInfoExchange] Does it really matter if > > your > > > child is T-21 or MDS? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > After reading the discussion about being properly diagnosed > > with > > > T-21 or MDS I have to ask...Does it really matter? > > > > > > > > > > > > > > > > I have not seen Nate's Karotype so I don't know how many cells > > > were tested. I just trusted that he has T-21 or Down syndrome. Now after > > > reading for the first time...I don't recall reading in any of the > > articles I > > > have read on Childhood Apraxia of Speech that this was common for > > children > > > with MDS. It makes me question wether Nate is really " straight up T-21 " > > (as > > > his ENT had asked me years ago). Nate also has some delayed eating and > > > extreme oral defensiveness also with CAS (not officially diagnosed > > because > > > his current SLP is not specialized in this area so she cannot diagnose it > > > herself). Nate had a right parietal CVA perinatally so we do not know if > > > this affected him in any way. He otherwise has met all his other > > milestones > > > in a very timely manner. > > > > > > > > > > > > > > > > However, if I was to have Nate retested with the 500 cells as > > > standard and it showed MDS vs T-21 what real difference would this make > > for > > > Nate? Maybe I need to read up on MDS.... but wether or not he has T-21 or > > > MDS... he would still have Down sydnrome. Am I correct? > > > > > > > > > > > > > > > > Right now I do not think having an official diagnosis of > > apraxia > > > is needed as we are treating him as if he does have it. However, if I > > needed > > > to get him more SLP that I feel would be needed I would seek it out. > > Right > > > now I am comfortable with the amount of speech he is getting and I am his > > > " communication partner " . > > > > > > > > > > > > > > > > Maybe my views are this because Nate is still in > > preschool....in > > > time maybe it will be important?????? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 Maybe it was not the case in your situation, but in addition to this happening to me, I hae discovered through Senator Schaefer that this is a regular habit of DFCS. Under the adoption act, though, unless a private adoption with no involvement from a state agency, then they get a stipend for you adopting that child. If she was seeing a therapist, I find it difficult to believe that DFCS was never involved because they have an obligation to report such things as aternal drug use. Either way, it does currently happen, all the time, and it is sad. I am glad your child now has a good home. > > > > > > > > > > > > > > > > I would hate if all the high functioning kids were mds. Takes > > away > > > all the hope > > > > > > > > > > > > > > > > > > > > > > > > [DownSyndromeInfoExchange] Does it really matter if > > your > > > child is T-21 or MDS? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > After reading the discussion about being properly diagnosed > with > > > T-21 or MDS I have to ask...Does it really matter? > > > > > > > > > > > > > > > > I have not seen Nate's Karotype so I don't know how many cells > > > were tested. I just trusted that he has T-21 or Down syndrome. Now after > > > reading for the first time...I don't recall reading in any of the > articles > > I > > > have read on Childhood Apraxia of Speech that this was common for > children > > > with MDS. It makes me question wether Nate is really " straight up T-21 " > > (as > > > his ENT had asked me years ago). Nate also has some delayed eating and > > > extreme oral defensiveness also with CAS (not officially diagnosed > because > > > his current SLP is not specialized in this area so she cannot diagnose > it > > > herself). Nate had a right parietal CVA perinatally so we do not know if > > > this affected him in any way. He otherwise has met all his other > > milestones > > > in a very timely manner. > > > > > > > > > > > > > > > > However, if I was to have Nate retested with the 500 cells as > > > standard and it showed MDS vs T-21 what real difference would this make > > for > > > Nate? Maybe I need to read up on MDS.... but wether or not he has T-21 > or > > > MDS... he would still have Down sydnrome. Am I correct? > > > > > > > > > > > > > > > > Right now I do not think having an official diagnosis of > apraxia > > > is needed as we are treating him as if he does have it. However, if I > > needed > > > to get him more SLP that I feel would be needed I would seek it out. > Right > > > now I am comfortable with the amount of speech he is getting and I am > his > > > " communication partner " . > > > > > > > > > > > > > > > > Maybe my views are this because Nate is still in > preschool....in > > > time maybe it will be important?????? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 What state are you in? I have worked in my state, as a CASA, and am aware that there is a financial benefit for them to put a child into care, and to keep them there. Most adopted children, especially special needs from the state, get a stipend. But most do not get near what the state receives from the feds for that child. You are correct, it is sad. Romero Who Dat! Superbowl Bound Baby. From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of agirlnamedsuess21 Sent: Thursday, January 28, 2010 12:33 PM To: DownSyndromeInfoExchange Subject: [DownSyndromeInfoExchange] Re: Old eggs Maybe it was not the case in your situation, but in addition to this happening to me, I hae discovered through Senator Schaefer that this is a regular habit of DFCS. Under the adoption act, though, unless a private adoption with no involvement from a state agency, then they get a stipend for you adopting that child. If she was seeing a therapist, I find it difficult to believe that DFCS was never involved because they have an obligation to report such things as aternal drug use. Either way, it does currently happen, all the time, and it is sad. I am glad your child now has a good home. > > > > > > > > > > > > > > > > I would hate if all the high functioning kids were mds. Takes > > away > > > all the hope > > > > > > > > > > > > > > > > > > > > > > > > [DownSyndromeInfoExchange] Does it really matter if > > your > > > child is T-21 or MDS? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > After reading the discussion about being properly diagnosed > with > > > T-21 or MDS I have to ask...Does it really matter? > > > > > > > > > > > > > > > > I have not seen Nate's Karotype so I don't know how many cells > > > were tested. I just trusted that he has T-21 or Down syndrome. Now after > > > reading for the first time...I don't recall reading in any of the > articles > > I > > > have read on Childhood Apraxia of Speech that this was common for > children > > > with MDS. It makes me question wether Nate is really " straight up T-21 " > > (as > > > his ENT had asked me years ago). Nate also has some delayed eating and > > > extreme oral defensiveness also with CAS (not officially diagnosed > because > > > his current SLP is not specialized in this area so she cannot diagnose > it > > > herself). Nate had a right parietal CVA perinatally so we do not know if > > > this affected him in any way. He otherwise has met all his other > > milestones > > > in a very timely manner. > > > > > > > > > > > > > > > > However, if I was to have Nate retested with the 500 cells as > > > standard and it showed MDS vs T-21 what real difference would this make > > for > > > Nate? Maybe I need to read up on MDS.... but wether or not he has T-21 > or > > > MDS... he would still have Down sydnrome. Am I correct? > > > > > > > > > > > > > > > > Right now I do not think having an official diagnosis of > apraxia > > > is needed as we are treating him as if he does have it. However, if I > > needed > > > to get him more SLP that I feel would be needed I would seek it out. > Right > > > now I am comfortable with the amount of speech he is getting and I am > his > > > " communication partner " . > > > > > > > > > > > > > > > > Maybe my views are this because Nate is still in > preschool....in > > > time maybe it will be important?????? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 With our DS group, 70% or so the moms were 30 or under at the birth of their child with DS.  BUT…  per birth older moms are more likely just from the stats.   Romero Who Dat!  Superbowl Bound Baby. From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of Saldana Sent: Thursday, January 28, 2010 11:51 AM To: DownSyndromeInfoExchange Subject: Re: [DownSyndromeInfoExchange] Re: Old eggs You know… I myself just cant grasp the whole DS is more common in older woman blah blah blah thing. I was 27 when we conceived and had Ethan. And there are many much younger mothers than myself. AND I was SO surprised to see all the much younger moms at our local DS associating. If I have an egg with an extra chromosome… chances are it will either be now or later (unless I go through a ovulation cycle where it is not fertilized) that THAT egg will be fertilized. What if we ALL have eggs with an extra chromosome. They just don’t ever get to be fertilized… what if age really isnt the factor. But what do I know.. I just don’t belive the whole age thing From: Romero To: DownSyndromeInfoExchange Sent: Thu, January 28, 2010 11:32:19 AM Subject: RE: [DownSyndromeInfoExchange] Re: Old eggs Our birth mother was told that her drug use was the reason for having DS. She got to a point in therapy where she was suppose to own up to all the damage she had done/caused to others. And she wanted to apologize to us for causing the DS. I told her that while I do believe she should take responsibility for what she did, and yes the premature birth from the drugs was her fault, as were some other issues, the DS was not. Not only did I have to explain to her about how DS occurs, but her therapist called me as well for the same information. Crazy. I have had medical professionals tell me that her drug use caused the DS. I have to educated them. Amazing Romero Who Dat! Superbowl Bound Baby. From: DownSyndromeInfoExc hange@yahoogroup s.com [mailto:DownSyndrom eInfoExchange@ yahoogroups. com] On Behalf Of agirlnamedsuess21 Sent: Thursday, January 28, 2010 11:11 AM To: DownSyndromeInfoExc hange@yahoogroup s.com Subject: [DownSyndromeInfoEx change] Re: Old eggs Who knows. DFCS got involved & tried to say that I was on drugs and *that* was the reason I had a child with DS. ABSURD! Maybe that is what they tell them. > > > > > > > > > > > > I would hate if all the high functioning kids were mds. Takes away > all the hope > > > > > > > > > > > > > > > > > > [DownSyndromeInfoEx change] Does it really matter if your > child is T-21 or MDS? > > > > > > > > > > > > > > > > > > > > > > > > After reading the discussion about being properly diagnosed with > T-21 or MDS I have to ask...Does it really matter? > > > > > > > > > > > > I have not seen Nate's Karotype so I don't know how many cells > were tested. I just trusted that he has T-21 or Down syndrome. Now after > reading for the first time...I don't recall reading in any of the articles I > have read on Childhood Apraxia of Speech that this was common for children > with MDS. It makes me question wether Nate is really " straight up T-21 " (as > his ENT had asked me years ago). Nate also has some delayed eating and > extreme oral defensiveness also with CAS (not officially diagnosed because > his current SLP is not specialized in this area so she cannot diagnose it > herself). Nate had a right parietal CVA perinatally so we do not know if > this affected him in any way. He otherwise has met all his other milestones > in a very timely manner. > > > > > > > > > > > > However, if I was to have Nate retested with the 500 cells as > standard and it showed MDS vs T-21 what real difference would this make for > Nate? Maybe I need to read up on MDS.... but wether or not he has T-21 or > MDS... he would still have Down sydnrome. Am I correct? > > > > > > > > > > > > Right now I do not think having an official diagnosis of apraxia > is needed as we are treating him as if he does have it.. However, if I needed > to get him more SLP that I feel would be needed I would seek it out. Right > now I am comfortable with the amount of speech he is getting and I am his > " communication partner " . > > > > > > > > > > > > Maybe my views are this because Nate is still in preschool... .in > time maybe it will be important??? ??? > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 it would be interesting to see what research they had to back that one up. I haven't heard that one before. My MIL had a child w/Ds when she was in her 30's...her husband's family told her that it was her 'fault' because she had a vein stripping(for varicose veins) under general anesthesia in the early weeks of her pregnancy (she didn't know she was pg at the time of the surgery) She believed that for 25 yrs...when I first met her, one of the first things she asked me was if it was her 'fault'...what a horrible thing to have to live for so many years. I used to feel guilty that Danny has Ds, because I *was* old when he was born (44) but after I had time to think about it, I realized that no matter why it happened, I am just glad to have him in my life...and he is certainly a happy kid...his biggest cause for concern at the present time is whether he should play Beatles Rock Band as or ...(and he has to dress up in a suit before he plays it so he will be even more realistic) So,,,bottom line....even though I had old eggs, i still got a pretty awesome kid out of them.... KathyR Who knows. DFCS got involved & tried to say that I was on drugs and *that* was the reason I had a child with DS. ABSURD! Maybe that is what they tell them. > > > > > > > > > > > > I would hate if all the high functioning kids were mds. Takes away > all the hope > > > > > > > > > > > > > > > > > > [DownSyndromeInfoExchange] Does it really matter if your > child is T-21 or MDS? > > > > > > > > > > > > > > > > > > > > > > > > After reading the discussion about being properly diagnosed with > T-21 or MDS I have to ask...Does it really matter? > > > > > > > > > > > > I have not seen Nate's Karotype so I don't know how many cells > were tested. I just trusted that he has T-21 or Down syndrome. Now after > reading for the first time...I don't recall reading in any of the articles I > have read on Childhood Apraxia of Speech that this was common for children > with MDS. It makes me question wether Nate is really " straight up T-21 " (as > his ENT had asked me years ago). Nate also has some delayed eating and > extreme oral defensiveness also with CAS (not officially diagnosed because > his current SLP is not specialized in this area so she cannot diagnose it > herself). Nate had a right parietal CVA perinatally so we do not know if > this affected him in any way. He otherwise has met all his other milestones > in a very timely manner. > > > > > > > > > > > > However, if I was to have Nate retested with the 500 cells as > standard and it showed MDS vs T-21 what real difference would this make for > Nate? Maybe I need to read up on MDS.... but wether or not he has T-21 or > MDS... he would still have Down sydnrome. Am I correct? > > > > > > > > > > > > Right now I do not think having an official diagnosis of apraxia > is needed as we are treating him as if he does have it. However, if I needed > to get him more SLP that I feel would be needed I would seek it out. Right > now I am comfortable with the amount of speech he is getting and I am his > " communication partner " . > > > > > > > > > > > > Maybe my views are this because Nate is still in preschool....in > time maybe it will be important?????? > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 I had my son when I was 25 and he is 28 now. Back then one theory was that it could be caused by old eggs. LOL If my eggs were old at 25, then why was my second son who was born 4 years later OK? Shirley Who knows. DFCS got involved & tried to say that I was on drugs and *that* was the reason I had a child with DS.ABSURD!Maybe that is what they tell them. > > > > > >> > > > > > I would hate if all the high functioning kids were mds. Takes away> all the hope > > > > > > > > > > > > > > > > > > [DownSyndromeInfoEx change] Does it really matter if your> child is T-21 or MDS?> > > > > > > > > > > > > > > > > > > > > > > > After reading the discussion about being properly diagnosed with> T-21 or MDS I have to ask...Does it really matter? > > > > > > > > > > > > I have not seen Nate's Karotype so I don't know how many cells> were tested. I just trusted that he has T-21 or Down syndrome. Now after> reading for the first time...I don't recall reading in any of the articles I> have read on Childhood Apraxia of Speech that this was common for children> with MDS. It makes me question wether Nate is really "straight up T-21" (as> his ENT had asked me years ago). Nate also has some delayed eating and> extreme oral defensiveness also with CAS (not officially diagnosed because> his current SLP is not specialized in this area so she cannot diagnose it> herself). Nate had a right parietal CVA perinatally so we do not know if> this affected him in any way. He otherwise has met all his other milestones> in a very timely manner.> > > > > > > > > > > > However, if I was to have Nate retested with the 500 cells as> standard and it showed MDS vs T-21 what real difference would this make for> Nate? Maybe I need to read up on MDS.... but wether or not he has T-21 or> MDS... he would still have Down sydnrome. Am I correct?> > > > > > > > > > > > Right now I do not think having an official diagnosis of apraxia> is needed as we are treating him as if he does have it. However, if I needed> to get him more SLP that I feel would be needed I would seek it out. Right> now I am comfortable with the amount of speech he is getting and I am his> "communication partner". > > > > > > > > > > > > Maybe my views are this because Nate is still in preschool... .in> time maybe it will be important??? ???> > > > > >> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 You know .. all these stats point to BIRTHS. I wonder what the rate is per conception?? Older women are more likely to refuse an abortion in a prenatal diagnosis. And based on age conceive less often in general. While younger women have more " on demand abortions " and most have no trouble conceiving . Wonder if those social situations skew the data any? Wonder if the old and young egg theory is just BOLOGNA and is just something that gets blamed on us " old women " . I was 34 when samantha was concived. I had a miscarriage at age 16 and at age 28 and a 6 living children. Never had trouble conceiving at all. I did blame my Thyroid for the miscarriages cause I have had a thyroid disorder since age 6-7. Steph Romero wrote: > > > With our DS group, 70% or so the moms were 30 or under at the birth of > their child with DS. > > > > BUT… per birth older moms are more likely just from the stats. > > > > * Romero* > > Saints2small > > *Who Dat! Superbowl Bound Baby.* > > > > *From:* DownSyndromeInfoExchange > [mailto:DownSyndromeInfoExchange ] *On Behalf Of * > Saldana > *Sent:* Thursday, January 28, 2010 11:51 AM > *To:* DownSyndromeInfoExchange > *Subject:* Re: [DownSyndromeInfoExchange] Re: Old eggs > > > > You know… I myself just cant grasp the whole DS is more common in > older woman blah blah blah thing. > > I was 27 when we conceived and had Ethan. And there are many much > younger mothers than myself. AND I was SO surprised to see all the > much younger moms at our local DS associating. > > If I have an egg with an extra chromosome… chances are it will either > be now or later (unless I go through a ovulation cycle where it is not > fertilized) that THAT egg will be fertilized. > > > > What if we ALL have eggs with an extra chromosome. They just don’t > ever get to be fertilized… what if age really isnt the factor. But > what do I know.. I just don’t belive the whole age thing > > > > > > > > ------------------------------------------------------------------------ > > *From:* Romero > *To:* DownSyndromeInfoExchange > *Sent:* Thu, January 28, 2010 11:32:19 AM > *Subject:* RE: [DownSyndromeInfoExchange] Re: Old eggs > > > > Our birth mother was told that her drug use was the reason for > having DS. She got to a point in therapy where she was suppose to > own up to all the damage she had done/caused to others. And she > wanted to apologize to us for causing the DS. I told her that while > I do believe she should take responsibility for what she did, and yes > the premature birth from the drugs was her fault, as were some other > issues, the DS was not. Not only did I have to explain to her about > how DS occurs, but her therapist called me as well for the same > information. Crazy. I have had medical professionals tell me that > her drug use caused the DS. I have to educated them. Amazing > > > > * Romero* > > Saints2small > > *Who Dat! Superbowl Bound Baby.* > > > > *From:* DownSyndromeInfoExc hange@yahoogroup s.com [mailto:DownSyndrom > eInfoExchange@ yahoogroups. com] *On Behalf Of *agirlnamedsuess21 > *Sent:* Thursday, January 28, 2010 11:11 AM > *To:* DownSyndromeInfoExc hange@yahoogroup s.com > *Subject:* [DownSyndromeInfoEx change] Re: Old eggs > > > > > > Who knows. DFCS got involved & tried to say that I was on drugs and > *that* was the reason I had a child with DS. > ABSURD! > Maybe that is what they tell them. > > > > > > > > > > > > > > > > > I would hate if all the high functioning kids were mds. > Takes away > > all the hope > > > > > > > > > > > > > > > > > > > > > [DownSyndromeInfoEx change] Does it really matter > if your > > child is T-21 or MDS? > > > > > > > > > > > > > > > > > > > > > > > > > > > > After reading the discussion about being properly > diagnosed with > > T-21 or MDS I have to ask...Does it really matter? > > > > > > > > > > > > > > I have not seen Nate's Karotype so I don't know how many cells > > were tested. I just trusted that he has T-21 or Down syndrome. Now after > > reading for the first time...I don't recall reading in any of the > articles I > > have read on Childhood Apraxia of Speech that this was common for > children > > with MDS. It makes me question wether Nate is really " straight up > T-21 " (as > > his ENT had asked me years ago). Nate also has some delayed eating and > > extreme oral defensiveness also with CAS (not officially diagnosed > because > > his current SLP is not specialized in this area so she cannot > diagnose it > > herself). Nate had a right parietal CVA perinatally so we do not know if > > this affected him in any way. He otherwise has met all his other > milestones > > in a very timely manner. > > > > > > > > > > > > > > However, if I was to have Nate retested with the 500 cells as > > standard and it showed MDS vs T-21 what real difference would this > make for > > Nate? Maybe I need to read up on MDS.... but wether or not he has > T-21 or > > MDS... he would still have Down sydnrome. Am I correct? > > > > > > > > > > > > > > Right now I do not think having an official diagnosis of > apraxia > > is needed as we are treating him as if he does have it.. However, if > I needed > > to get him more SLP that I feel would be needed I would seek it out. > Right > > now I am comfortable with the amount of speech he is getting and I > am his > > " communication partner " . > > > > > > > > > > > > > > Maybe my views are this because Nate is still in > preschool... .in > > time maybe it will be important??? ??? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 KathyR wrote: > > bottom line....even though I had old eggs, i still got a pretty > awesome kid out of them.... > LOL.. seriously I think its an age discrimination/slandering. General Society can have bad views of the old and the " disabled " so why not lump them altogether. I would love to meet your son.. he sounds like a RIOT > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 what? You mean you did not float them in water first to see if they were past the date : p My friend in our DSA had her first at about 25 and had DS.. her son born 2 yrs later is " normal " . A lady at my church had her oldest and her youngest both with DS and 4 " normals " in between. And another family at church has a typical, one with ds, and another typical in that order.. all under 30 yrs. We actually have a large DS population at our chruch..5 or 6 people there with DS alone.. small country church . Maybe its in our water ; p. ( kidding) Steph Shirley Linden wrote: > > > I had my son when I was 25 and he is 28 now. Back then one > theory was that it could be caused by old eggs. LOL If my eggs were > old at 25, then why was my second son who was born 4 years later OK? > Shirley > --- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 yeah, I felt pretty guilty for awhile...like I should have known better than to get pregnant at my age...but I have gotten over that.and he is;-) he is totally in love with the Beatles now...his favorite things to wear right now are a white shirt, black tie,and a suit coat, because he is convinced it makes him look like the Beatles.,,except he is giving me MAJOR grief about the fact that his suit coat has 3 buttons,and " the Beatles have 4 buttons, Mom! " this is wayyyyyyyyyyy better than his 3 Stooges stage...he admired Moe, and I made the mistake of telling him not to comb his hair a certain way because it made him look like Moe...he just lit up.. " But I LIKE Moe! " oh, great.KathyR KathyR wrote: > > bottom line....even though I had old eggs, i still got a pretty > awesome kid out of them.... > LOL.. seriously I think its an age discrimination/slandering. General Society can have bad views of the old and the " disabled " so why not lump them altogether. I would love to meet your son.. he sounds like a RIOT > > ------------------------------------ 1. Anything suggested on this site or opinions offered are not intended to be medical or pharmaceutical advice or otherwise take the place of your physicians orders, nor to diagnose or treat your specific health problems. Please discuss all methods of treatment with your practitioner. 2 *****WARNING: Flames and inappropriate treatment of other members on this list will NOT be tolerated. 3. Our HOME page is http://groups.yahoo.com/group/DownSyndromeInfoExchange where all archived posts as well as photos,links, files, articles etc. are found. You " MUST " have a Yahoo ID and pass word to enter it. To contact Kathy, owner & moderator kathy_r@... To contact , owner & moderator noliptoday@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 Roflol.  Okay that made me spit koolaid all over the screen. Romero Who Dat!  Superbowl Bound Baby. From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of Carlson Sent: Thursday, January 28, 2010 2:48 PM To: DownSyndromeInfoExchange Subject: Re: [DownSyndromeInfoExchange] Re: Old eggs what? You mean you did not float them in water first to see if they were past the date : p My friend in our DSA had her first at about 25 and had DS.. her son born 2 yrs later is " normal " . A lady at my church had her oldest and her youngest both with DS and 4 " normals " in between. And another family at church has a typical, one with ds, and another typical in that order.. all under 30 yrs. We actually have a large DS population at our chruch..5 or 6 people there with DS alone.. small country church . Maybe its in our water ; p. ( kidding) Steph Shirley Linden wrote: > > > I had my son when I was 25 and he is 28 now. Back then one > theory was that it could be caused by old eggs. LOL If my eggs were > old at 25, then why was my second son who was born 4 years later OK? > Shirley > --- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 I read somewhere years ago some theories about the genes being "sticky" and that is why #21 did not divide correctly. Not sure how true it is, but if that is the case, there could be several causes of Ds. They theorized that if the blood sugar levels are too high it could cause the genes to stick or not divide fully, or even dehydration within the cell. Maybe older eggs are not as well hydrated, and maybe drug use causes cells to have sticky genes. I had gestational diabetes, but I was under the impression that did not show up until later in pregnancy. I guess I could have had it earlier in pregnancy because they do not test for it until a certain week. At any rate it happens very early in conception when the cells have made only a few divisions, so it is not like there is something you did while you knew you were fixing to have a baby, like smoking or drinking. It certainly would explain why there is not one hard and fast rule of what causes Ds. ~~~~~~ If we are to go forward, we must go back and rediscover those precious values - that all reality hinges on moral foundations and that all reality has spiritual control. ~~~~ Luther King, Jr.  I had my son when I was 25 and he is 28 now. Back then one theory was that it could be caused by old eggs. LOL If my eggs were old at 25, then why was my second son who was born 4 years later OK? Shirley  Who knows. DFCS got involved & tried to say that I was on drugs and *that* was the reason I had a child with DS. ABSURD! Maybe that is what they tell them. > > So what do they tell young women that have kids with DS? I know several in > my area in 20's and early 30's. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 I can tell you that I had never done any drugs, I was not on any medication. and I was not a big drinker either. I guess they don't know what causes it and they just keep guessing. Shirley Who knows. DFCS got involved & tried to say that I was on drugs and *that* was the reason I had a child with DS.ABSURD!Maybe that is what they tell them. >> So what do they tell young women that have kids with DS? I know several in> my area in 20's and early 30's.> > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 Nah...they were just making excuses to get me to admit to something that I never did (they had high hopes, I guess.).Someone obviously wanted to adopt a child with DS. They had people coming to visit my son when I would go home to take a shower or eat. Cobb DFCS is crooked. We had to fight to get my son discharged and I had to go thru hell to prove my worth as a parent. I am assuming also that the MD's had bad, dinosaur info regarding DS. The drug thing was a DFCS thing because he was born at home and they thought I might be hiding something. (He was my 3rd homebirth after a c-section. I was hiding alright...hiding from them doping me up and cutting me open....they did not know I had two other homebirths because we did not need to call 911 on the other ones. He was not breahing right at birth and so we called 911 to save our first *prized* boy-1st born son out of 5 previous girls.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 Sticky genes...interesting! you have a link on that? I would like to read that. You know people with asthma have dehydrated cells. MDS occurs differently than T21, though. I guess that is what the research doctors are trying to figure out. Quote Link to comment Share on other sites More sharing options...
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