Re: Went to the Oncologist today about my blood.

[Guest guest]

Ginger I am hoping you get better and that the iron level goes up..what suggestions did the doc give you to help this ?? Hugs Liz NJ

[Guest guest]

What I remember about iron is to eat red meat..calves liver(if u can ) and take vitamin C it helps the iron to be absorbed....Hugs Liz

[Guest guest]

Well he wanted to do an intervenious of Iron which I didn't even know they could do. LOL So he just said to keep taking the folic acid and in a month if it's not up then he will do the intervenous of Iron. Does anyone know about this? Is there anyway to look this up? I am real bad at looking up things. I should go take a course at how to look up things on the Internet. LOL

He's worried that since I don't have any Iron cells I am not getting enough oxygen to the brain. This may be the problem with looking things up!!!

Hugs; Gingerlizdaly101@... wrote:

Ginger I am hoping you get better and that the iron level goes up..what suggestions did the doc give you to help this ?? Hugs Liz NJ Visit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person

following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form.

[Guest guest]

Ginger, one time at my onset my iron levels were that low that when I was in the hospital they infused iron through an IV. It had to be monitored so I don't know if your doctor can do in the office or not. Often times low levels of iron are a side effect of Stills. Hope this helps, Melt

----- Original Message -----

From: Ginger Sunshine

Well he wanted to do an intervenious of Iron which I didn't even know they could do. . Does anyone know about this?

[Guest guest]

> Ginger I am hoping you get better and that the iron level goes

up..what suggestions did the doc give you to help this ?? Hugs Liz

NJ

> Hi Ginger i found a fairly good link,its very long and little

outdated.Take care.

http://www.vh.org/adult/provider/pharmacyservices/PTNews/2001/0910PTN

ews.html

> Visit the Still's Disease Message Board

> http://disc.server.com/Indices/148599.html

>

> The materials and information contained in this message are not

intended to replace the services of a trained health professional or

to be a substitute for medical advice of physicians and/or other

health care professionals. The International Still's Disease

Foundation is not engaged in rendering medical or professional

medical services. You should consult your physician on specific

medical questions, particularly in matters requiring diagnosis or

medical attention. The International Still's Disease Foundation

makes no representations or warranties with respect to any

treatment, action, application, medication or preparation by any

person following the information offered or provided within this

support form.

>

> ion by any person following the information offered or provided

within this support form.

>

>

>

>

>

[Guest guest]

Ginger, one of the more common side effects to IVIG Iron is severe joint pain and stomach problems. Read up on this as much as you can as it can be hard on your organs. do they know what is causing the low iron count, did they tell you your hemoglobin levels?

[Guest guest]

Yes they did and I don't want this. This doctor told me that it also makes people sick but because I have medicare and medical that's the only one they will pay for. I dont' want it and I dont' feel I even need it. I am fine!

Oh how and where do I go to look it up? sorry I am so bad at this.

Hugs; Ginger Jay wrote:

Ginger, one of the more common side effects to IVIG Iron is severe joint pain and stomach problems. Read up on this as much as you can as it can be hard on your organs. do they know what is causing the low iron count, did they tell you your hemoglobin levels?

Visit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the

information offered or provided within this support form.

[Guest guest]

Thank you Liz. I hate liver!!!YUCK!! But I am eating other things with iron. Do you know does floic acid help the iron?

Hugs; Gingerlizdaly101@... wrote:

What I remember about iron is to eat red meat..calves liver(if u can ) and take vitamin C it helps the iron to be absorbed....Hugs Liz Visit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person

following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form.

[Guest guest]

Thank you. I guess I don't mind the reading too much. LOL

Hugs and many thanks; ginger

Docken wrote:

> Ginger I am hoping you get better and that the iron level goes up..what suggestions did the doc give you to help this ?? Hugs

Liz NJ > Hi Ginger i found a fairly good link,its very long and little outdated.Take care. http://www.vh.org/adult/provider/pharmacyservices/PTNews/2001/0910PTNews.html> Visit the Still's Disease Message Board> http://disc.server.com/Indices/148599.html> > The materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease

Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. > > ion by any person following the information offered or provided within this support form. > > > > >

[Guest guest]

Thank you Melt. Yes I knew this as I have had this since age 2, but I don't think the doctors do. LOL

Hugs and many thanks. GingerMelt wrote:

Ginger, one time at my onset my iron levels were that low that when I was in the hospital they infused iron through an IV. It had to be monitored so I don't know if your doctor can do in the office or not. Often times low levels of iron are a side effect of Stills. Hope this helps, Melt

----- Original Message -----

From: Ginger Sunshine

Well he wanted to do an intervenious of Iron which I didn't even know they could do. . Does anyone know about this? Visit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the

information offered or provided within this support form. ion by any person following the information offered or provided within this support form.