Guest guest Posted July 13, 2001 Report Share Posted July 13, 2001 , I so here what you are saying! My name is Lorri and I have a daughter that is 11 now. She was sick with ear and sinus infections non stop when she was young. My family used to think I was doing something wrong since she was so sick all the time and even at one time thought I was making everything up! got her first set of PT tube at 14 months old. It took until her fourth year to get any diagnosis from anyone. She is also hypogammglobulinemia. My family still has a hard time understanding what is going on. T:hey think she looks normal and all kids get sick. She have IVIG treatments every three weeks and she does stay well. I do want you to know that her body could not handle the IVIG treatments until she was three. She also was sick but not as sick as most. Hang in there ask lots of questions and ask your doctor to write things down for you so you can understand better.*not to mention you can show your friends and family so they don't think you are out of your mind. I also wanted to say it is hard being a single parent so hang in there. My husband works and fells that is his part and does nothing as far as goes even to the point when people at my church ask about it he doesn't know what is going on so again they think I am crazy at time. Take care and we can talk anytime you want. My home a-mail is llkraft@.... Lorri (* 11 CVID) my introduction > Hello all, and let me introduce myself, and give you my story.... > > I found this group on accident actually. My name is ... my son is named > Dakota. My son is 16 months old, and has been truely sick basically since > birth. We have gone through ear infection after ear infection, to the point > that if he gets one more we are going to the ear doctor for tubes. Cody has > also had infection after infection, ranging all from what would be a normal > few day cold for us,to viral infections and roto viruses. He recently had a > bad flu and ended up being so dehydrated he was hospitalized just to get the > fluids back in him. > After many months of me pulling my hair out since my poor little man is > ALWAYS sick, I finally asked the doctor to run tests on his immune system > just for my sanity. My brother when he was the same age, was diagnosed with > hypogammaglobulinemia, and went through all the same things my son is > experiencing. My brother though, was MUCH sicker when he got anything like my > son. (my sons pediatrician was mine and my brothers) SO I had him test the > IGG and all that. Finally the blood work came back and showed ALL my sons > levels are low, which means most likely it is the Hypogammaglobulinemia like > my brother had many moons ago. My brothers treatment was monthly shots to > boost his system back to normal. I am lucky that my son is not as bad off as > my brother was but it is still showing abnormal. > I have an appointment for Dakota to go see the immunologist, but have no idea > what to expect. I was hoping that finding this group, and meeting other > parents in my situation would help. My mind has finally been eased with the > diagnosis that there is SOMETHING wrong with Cody's immune system and I am > not crazy, but now I am concerned as to what they are going to do, and how we > go about getting him back to " normal " . Anyone who wants to share I truely > invite. I know my son is not as severe as some of the stories on here, but > the support would be nice. Being a single mom with a sick little boy, who is > sick ALL the time is rough. Anyone who cares to talk I welcome with open > arms. Talking to someone who knows what I am going through that isn't my mom > or a doctor would be just awesome. > Thanks for the ears, and eyes....... I watch for responses to come!!! > Bye for now > in Illinois, mother of 16 month old son Dakota > > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2001 Report Share Posted July 13, 2001 , I so here what you are saying! My name is Lorri and I have a daughter that is 11 now. She was sick with ear and sinus infections non stop when she was young. My family used to think I was doing something wrong since she was so sick all the time and even at one time thought I was making everything up! got her first set of PT tube at 14 months old. It took until her fourth year to get any diagnosis from anyone. She is also hypogammglobulinemia. My family still has a hard time understanding what is going on. T:hey think she looks normal and all kids get sick. She have IVIG treatments every three weeks and she does stay well. I do want you to know that her body could not handle the IVIG treatments until she was three. She also was sick but not as sick as most. Hang in there ask lots of questions and ask your doctor to write things down for you so you can understand better.*not to mention you can show your friends and family so they don't think you are out of your mind. I also wanted to say it is hard being a single parent so hang in there. My husband works and fells that is his part and does nothing as far as goes even to the point when people at my church ask about it he doesn't know what is going on so again they think I am crazy at time. Take care and we can talk anytime you want. My home a-mail is llkraft@.... Lorri (* 11 CVID) my introduction > Hello all, and let me introduce myself, and give you my story.... > > I found this group on accident actually. My name is ... my son is named > Dakota. My son is 16 months old, and has been truely sick basically since > birth. We have gone through ear infection after ear infection, to the point > that if he gets one more we are going to the ear doctor for tubes. Cody has > also had infection after infection, ranging all from what would be a normal > few day cold for us,to viral infections and roto viruses. He recently had a > bad flu and ended up being so dehydrated he was hospitalized just to get the > fluids back in him. > After many months of me pulling my hair out since my poor little man is > ALWAYS sick, I finally asked the doctor to run tests on his immune system > just for my sanity. My brother when he was the same age, was diagnosed with > hypogammaglobulinemia, and went through all the same things my son is > experiencing. My brother though, was MUCH sicker when he got anything like my > son. (my sons pediatrician was mine and my brothers) SO I had him test the > IGG and all that. Finally the blood work came back and showed ALL my sons > levels are low, which means most likely it is the Hypogammaglobulinemia like > my brother had many moons ago. My brothers treatment was monthly shots to > boost his system back to normal. I am lucky that my son is not as bad off as > my brother was but it is still showing abnormal. > I have an appointment for Dakota to go see the immunologist, but have no idea > what to expect. I was hoping that finding this group, and meeting other > parents in my situation would help. My mind has finally been eased with the > diagnosis that there is SOMETHING wrong with Cody's immune system and I am > not crazy, but now I am concerned as to what they are going to do, and how we > go about getting him back to " normal " . Anyone who wants to share I truely > invite. I know my son is not as severe as some of the stories on here, but > the support would be nice. Being a single mom with a sick little boy, who is > sick ALL the time is rough. Anyone who cares to talk I welcome with open > arms. Talking to someone who knows what I am going through that isn't my mom > or a doctor would be just awesome. > Thanks for the ears, and eyes....... I watch for responses to come!!! > Bye for now > in Illinois, mother of 16 month old son Dakota > > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2001 Report Share Posted July 13, 2001 , I so here what you are saying! My name is Lorri and I have a daughter that is 11 now. She was sick with ear and sinus infections non stop when she was young. My family used to think I was doing something wrong since she was so sick all the time and even at one time thought I was making everything up! got her first set of PT tube at 14 months old. It took until her fourth year to get any diagnosis from anyone. She is also hypogammglobulinemia. My family still has a hard time understanding what is going on. T:hey think she looks normal and all kids get sick. She have IVIG treatments every three weeks and she does stay well. I do want you to know that her body could not handle the IVIG treatments until she was three. She also was sick but not as sick as most. Hang in there ask lots of questions and ask your doctor to write things down for you so you can understand better.*not to mention you can show your friends and family so they don't think you are out of your mind. I also wanted to say it is hard being a single parent so hang in there. My husband works and fells that is his part and does nothing as far as goes even to the point when people at my church ask about it he doesn't know what is going on so again they think I am crazy at time. Take care and we can talk anytime you want. My home a-mail is llkraft@.... Lorri (* 11 CVID) my introduction > Hello all, and let me introduce myself, and give you my story.... > > I found this group on accident actually. My name is ... my son is named > Dakota. My son is 16 months old, and has been truely sick basically since > birth. We have gone through ear infection after ear infection, to the point > that if he gets one more we are going to the ear doctor for tubes. Cody has > also had infection after infection, ranging all from what would be a normal > few day cold for us,to viral infections and roto viruses. He recently had a > bad flu and ended up being so dehydrated he was hospitalized just to get the > fluids back in him. > After many months of me pulling my hair out since my poor little man is > ALWAYS sick, I finally asked the doctor to run tests on his immune system > just for my sanity. My brother when he was the same age, was diagnosed with > hypogammaglobulinemia, and went through all the same things my son is > experiencing. My brother though, was MUCH sicker when he got anything like my > son. (my sons pediatrician was mine and my brothers) SO I had him test the > IGG and all that. Finally the blood work came back and showed ALL my sons > levels are low, which means most likely it is the Hypogammaglobulinemia like > my brother had many moons ago. My brothers treatment was monthly shots to > boost his system back to normal. I am lucky that my son is not as bad off as > my brother was but it is still showing abnormal. > I have an appointment for Dakota to go see the immunologist, but have no idea > what to expect. I was hoping that finding this group, and meeting other > parents in my situation would help. My mind has finally been eased with the > diagnosis that there is SOMETHING wrong with Cody's immune system and I am > not crazy, but now I am concerned as to what they are going to do, and how we > go about getting him back to " normal " . Anyone who wants to share I truely > invite. I know my son is not as severe as some of the stories on here, but > the support would be nice. Being a single mom with a sick little boy, who is > sick ALL the time is rough. Anyone who cares to talk I welcome with open > arms. Talking to someone who knows what I am going through that isn't my mom > or a doctor would be just awesome. > Thanks for the ears, and eyes....... I watch for responses to come!!! > Bye for now > in Illinois, mother of 16 month old son Dakota > > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2009 Report Share Posted March 11, 2009 My heart goes out to you. I felt a familiar lump in my throat when I read your post. If, as a last resort, you have to place your son, I am here to tell you that it isn't the end of the world. Four years ago, I had to place my son at Brenham State School (here in Texas) because he was so combative and dangerous that I was " at risk " of losing my other children to CPS because of me endangering them by having in the house. It was basically, he or my other children --- bare, hard facts! It was during his last hospitalization, for a major meltdown, that his doctor told me that I needed to make major changes or I would lose everything for . Those words still sting when I think about it. I went ahead and let him go. He was in God's hands because I could do no more. He was there for two years, and my other children were finally able to have a " normal " life without living around 's behaviors. Brenham State School was the environment that needed. It is highly structured and set up for kids like him. I was really impressed by it and the staff were great I would drop in unannounced to see what was going on, and I never saw any abuse. It wasn't this " black hole " that I invisioned state schools to be. The only thing that I didn't like is that on Sunday afternoons, they would let talk to me on the telephone, he would always cry and ask to come home, and kept saying " I be good " . Home was all he knew and he wanted it back. When I felt comfortable about him returning home, I did. Also, for a year, I was allowed the option of returning him if he became combative and aggressive again. He hasn't been. He still has outbursts, but not like before. I hear him tell himself that if he doesn't " get in control " that he will have to bo back to Brenham. He's been home now for almost two years. Also, my family knows if something ever happens to me and no one else can care for him, that they have my blessing in returning him back to Brenham to live.......now, with me thinking about this, I want to tear up. I'm sure that the mothers of younger autistic children, as they read this, have the hairs on the back of their neck standing up. No one likes to talk about placement -- but, it should be talked about. That is where us " old fogies " who have more living experience can help because we have been out there longer fighting for our kids. ***Moral to this story*** I was not an evil parent in removing . I had tried all available options out there for him. I did not fail as a parent when I did have him placed. I had to consider my other two children, they were victims of autism too. I had to consider myself too because I was turning into a zombie and becoming useless for any of my children. has now calmed down a lot. He is now 23 years old and considered low-functioning. He understands that his bad behavior is what gets him into trouble and now, if he is having a hard time, I can hear him trying to calm himself down. He's a great boy.....excuse me, young man. > > , my name is Pat K. I am the grandmother of a 16 year old autistic grandson. I have a Ph.D. and diagnosed my grandson when he was a little over two years old. In the beginning he was high functioning. When he was three I began an intensive ABA program with him. He made great progress until he started to school, but between the school system, ignorant parents, and an ignorant pediatric psychiatrist who wrongfully medicated him; he is now low functioning. Fortunately,he did learn compliance from his ABA program; so when he has meltdowns like you describe that your son has, he has learned what to do to control himself. He will tell himself to relax; he will tell himself to breathe in and breathe out; he will walk it off, ask for music or a shower.  He is calm within a matter of five to fifteen minutes. I do not talk to him during this time, and I keep my distance or I would be bitten or slapped. > > I don't know if this is of any interest or help to you. I have noticed that Karac's meltdowns are getting less frequent, and I have been told that by the age of 18 he should be adjusted to puberty and have a calmer disposition. > > > There are a lot of smart ladies in this group; they are good about listening and sharing information. blessings, Pat K > > > My Introduction > > > > > > > I hav > e been lurking out here for awhile and think it is past time I introduced myself. It is a measure of how traumatized I have become that I do not jump in with both feet anymore. My name is . I live in Washington State with my husband, Jim, our son, Wes, who is 15, and our daughter, Ariane, who is 12. I work for a small non-profit as a Parent Educator/Case Manager†" I work with women who are grappling with addiction and recovery and are also pregnant or parenting children through the age of three. My husband works for the evil empire (that's Microsoft, lol). This is a huge bonus for us because Microsoft has an Autism Benefit, which means they pay for stuff that no one else pays for. > > My son was diagnosed with PDD-NOS last August. We had hospitalized him at a psychiatric hospital in March because he came down the stairs and told us he wanted to kill himself. We felt like his timing was suspicious, since he had just been grounded for the weekend and this was completely out of the blue/new behavior. However, he had a plan and the means, so I took him to the ER and the hospital social worker decided to err on the side of caution†" and of course, we totally agreed because no one wants to be wrong about such a terrible thing. My son now admits that he wasn't going to kill himself but he wanted to get everyone's attention. > > For us, it was like the end of the world. We have spent his entire life trying to prevent hospitalization. My undergraduate education is early > childhood development/early childhood education, and from birth I have tried to advocate for him and find out what was wrong. In 1999, he attacked me while I was driving because I would not take him to Mcs. I decided I was done hearing that he was " all boy " and " imaginative " and " challenging " . I quit my job to advocate for him full-time. Thus was the beginning of our " alphabet soup boy " . ADHD, ODD, OCD, TS (Tourette's), GAD (Generalized Anxiety Disorder), etc…if it could be boiled down into letters, it was probably a diagnosis given to my son at some point. > > In 2000, when we thought " all " we were dealing with was severe ADHD, we adopted our daughter from China. She was almost 4 at the time. > > By 2004, he had been given a diagnosis of Psychosis, probably schizophrenia.. We had him evaluated just prior to this diagnosis by a woman recommended to us by the autism program at our son's elementary school. She did not find that he was autistic. The people at the school were blown away by this because, except for the fact that Wes is very verbal, he seemed to fit the description to them. > Somewhere in all this I went back to school and got my MS so that I could go back to work. Wes was very unhappy and actively and openly worked to sabotage the process, so that I would continue to be a SAHM (yes, he actually told us that). > > Last spring we switched psychiatrists after Wes's March hospitalization. Obviously the doctor we had been seeing was not helping but we really liked20the doctor he saw in the hospital. This doctor said that he didn't think Wes was psychotic†" he diagnosed him with PDD-NOS. In January, Wes was again hospitalized. This time it was because he attacked all of us in the car when we decided not to go out to dinner (ah yes…the more things change, the more they remain the same) because he was ramping up and none of us could face that in a public restaurant. The clinical psychiatrist on staff was a different doctor and he concurred with ours. We spent the 2 weeks feeling battered and relieved. > > We are now in the process of getting some help with organizations that deal with combative youth with autism†" Families for Early Autism Treatment (FEAT) and Blueprints, where we will have someone work intensively with our family using Applied Behavioral Analysis. This is the second time someone has worked intensively with our family. The last organization exited us (by letter, with no closure) because our family was " too high functioning " . > > At this point, we have invested a tremendous amount of time, money, and energy. We have a packet that is well over 100 pages of all the evaluations, IEP's, letters, etc from all the people who have worked with Wes over the years. Shane, the guy from Blueprints says he work with families like ours all the time (families he says have been mistreated by the system because of repeated misdiagnoses and mishandling) and that there is hope. We don't feel very hopeful and frankly, we are looking for out-of-home=2 > 0placement for our son. I can count on one hand the number of times I have seen my baby inside of (whatever words one might use to describe) the boy we live with now. Everyone in the family has seen or is seeing a therapist. We don't go camping anymore. We don't see movies or go to the park. We don't have fun. We have locks with alarms on the front and back doors, we have locks on every room in the house. Even the pantry and the `fridge has locks because Wes ruins the food. He steals from us. We cannot allow Wes to be home alone or in a room alone with his sister or our dogs. Forget finding a sitter so that we can go out. And we have no family for 2000 miles†" and even if we did, they are ill-equipped to deal with Wes or don't " get it " . Last summer, he called Child Protective Services on us†" we were fortunate that the responding police officer took the time to talk to us and read the business cards of the providers we threw at him. A CPS referral, even a false one, is the end of my career, and removal of our adopted daughter, even if we get her back quickly, would destroy her. > > Every interaction Wes has with us is him pushing his agenda and when his goals are blocked, he rages. If he gets what he wants, he moves on to the next thing he wants until sooner or later, he wants what he cannot have. Our family is disintegrating. We are angry, exhausted, and heartsick. We have no hope and can just muster cautious optimism for what this latest diag > nosis might mean for us. > > So that's my story. I appreciate you sticking with my long-winded introduction. I hope I can be a good participating member of this group. I have lots to learn about autism but I hope I can offer all of you something, and goodness knows I need support. > > Thanks, > O. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2009 Report Share Posted March 11, 2009 , welcome to this wonderful group. I do not have any sage advice for you. My oldest, who is now 16, was diagnosed ADHD as a child. I know that he is somewhere high on the spectrum as well, but he has never been diagnosed. His behavior issues began at birth (which no one of course validated) and climaxed at puberty- age 12. I would say he has steadily improved, behaviorally, since that time. But there are times still... My heart goes out to you and your family. The toll it takes is tremendous. My youngest, who is 5, has autism, developmental delay, and metabolic dysfunction. I have two other typical kiddos and one foster teen. I hope your family finds peace in the future. Deanna > > I have been lurking out here for awhile and think it is past time I introduced myself. It is a measure of how traumatized I have become that I do not jump in with both feet anymore. My name is . I live in Washington State with my husband, Jim, our son, Wes, who is 15, and our daughter, Ariane, who is 12. I work for a small non-profit as a Parent Educator/Case Manager—I work with women who are grappling with addiction and recovery and are also pregnant or parenting children through the age of three. My husband works for the evil empire (that's Microsoft, lol). This is a huge bonus for us because Microsoft has an Autism Benefit, which means they pay for stuff that no one else pays for. > > My son was diagnosed with PDD-NOS last August. We had hospitalized him at a psychiatric hospital in March because he came down the stairs and told us he wanted to kill himself. We felt like his timing was suspicious, since he had just been grounded for the weekend and this was completely out of the blue/new behavior. However, he had a plan and the means, so I took him to the ER and the hospital social worker decided to err on the side of caution—and of course, we totally agreed because no one wants to be wrong about such a terrible thing. My son now admits that he wasn't going to kill himself but he wanted to get everyone's attention. > > For us, it was like the end of the world. We have spent his entire life trying to prevent hospitalization. My undergraduate education is early childhood development/early childhood education, and from birth I have tried to advocate for him and find out what was wrong. In 1999, he attacked me while I was driving because I would not take him to Mcs. I decided I was done hearing that he was " all boy " and " imaginative " and " challenging " . I quit my job to advocate for him full-time. Thus was the beginning of our " alphabet soup boy " . ADHD, ODD, OCD, TS (Tourette's), GAD (Generalized Anxiety Disorder), etc…if it could be boiled down into letters, it was probably a diagnosis given to my son at some point. > > In 2000, when we thought " all " we were dealing with was severe ADHD, we adopted our daughter from China. She was almost 4 at the time. > > By 2004, he had been given a diagnosis of Psychosis, probably schizophrenia. We had him evaluated just prior to this diagnosis by a woman recommended to us by the autism program at our son's elementary school. She did not find that he was autistic. The people at the school were blown away by this because, except for the fact that Wes is very verbal, he seemed to fit the description to them. > Somewhere in all this I went back to school and got my MS so that I could go back to work. Wes was very unhappy and actively and openly worked to sabotage the process, so that I would continue to be a SAHM (yes, he actually told us that). > > Last spring we switched psychiatrists after Wes's March hospitalization. Obviously the doctor we had been seeing was not helping but we really liked the doctor he saw in the hospital. This doctor said that he didn't think Wes was psychotic—he diagnosed him with PDD-NOS. In January, Wes was again hospitalized. This time it was because he attacked all of us in the car when we decided not to go out to dinner (ah yes…the more things change, the more they remain the same) because he was ramping up and none of us could face that in a public restaurant. The clinical psychiatrist on staff was a different doctor and he concurred with ours. We spent the 2 weeks feeling battered and relieved. > > We are now in the process of getting some help with organizations that deal with combative youth with autism—Families for Early Autism Treatment (FEAT) and Blueprints, where we will have someone work intensively with our family using Applied Behavioral Analysis. This is the second time someone has worked intensively with our family. The last organization exited us (by letter, with no closure) because our family was " too high functioning " . > > At this point, we have invested a tremendous amount of time, money, and energy. We have a packet that is well over 100 pages of all the evaluations, IEP's, letters, etc from all the people who have worked with Wes over the years. Shane, the guy from Blueprints says he work with families like ours all the time (families he says have been mistreated by the system because of repeated misdiagnoses and mishandling) and that there is hope. We don't feel very hopeful and frankly, we are looking for out-of-home placement for our son. I can count on one hand the number of times I have seen my baby inside of (whatever words one might use to describe) the boy we live with now. Everyone in the family has seen or is seeing a therapist. We don't go camping anymore. We don't see movies or go to the park. We don't have fun. We have locks with alarms on the front and back doors, we have locks on every room in the house. Even the pantry and the `fridge has locks because Wes ruins the food. He steals from us. We cannot allow Wes to be home alone or in a room alone with his sister or our dogs. Forget finding a sitter so that we can go out. And we have no family for 2000 miles—and even if we did, they are ill-equipped to deal with Wes or don't " get it " . Last summer, he called Child Protective Services on us—we were fortunate that the responding police officer took the time to talk to us and read the business cards of the providers we threw at him. A CPS referral, even a false one, is the end of my career, and removal of our adopted daughter, even if we get her back quickly, would destroy her. > > Every interaction Wes has with us is him pushing his agenda and when his goals are blocked, he rages. If he gets what he wants, he moves on to the next thing he wants until sooner or later, he wants what he cannot have. Our family is disintegrating. We are angry, exhausted, and heartsick. We have no hope and can just muster cautious optimism for what this latest diagnosis might mean for us. > > So that's my story. I appreciate you sticking with my long-winded introduction. I hope I can be a good participating member of this group. I have lots to learn about autism but I hope I can offer all of you something, and goodness knows I need support. > > Thanks, > O. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2009 Report Share Posted March 12, 2009 Hi, I hope you don't mind me chiming in. I remember when started his first year of school. He only went half days but it was such an adjustment for both of us. I was so used to being involved in all aspects of his therapy and sharing his whole day. I really felt like I had no control anymore. I think it was harder because he couldn't tell me anything about what he did and each day I would get a card that said either good day, great day or we'll try harder tomorrow. The next year I insisted on a home communication journal and I made sure they wrote in it every day. I was a pain but if they didn't write in it I would call them LOL. It is better now and I have great communication with his school. Today his aide called me and let talk to me because he asked for me. He is 8 and still such a sweet Mama's boy. I hope things go well in school for both your boys, Kellie To: AutismBehaviorProblems Sent: Wednesday, March 11, 2009 8:48:54 PMSubject: Re: my introduction Yeah he does attend a special needs preschool. He started in November so its only been 4months but he stills has a long way to go. He has a difficult time with transition and sharing. When those two things take place he has major tanturms. They have gotten better for the most part, lasting now about 5 minutes but before it was awful. I am still a little shaky about taking him out in public because I don't know what to expect at times. The days are random, some good and some bad I just pray each and every day. He is my only child so that makes things harder on me at times but I wouldn't trade him for the world. :-) > > From: wmc3mlw <wmc3mlwyahoo (DOT) com>> Subject: my introduction> To: AutismBehaviorProbl emsyahoogroups (DOT) com> Date: Wednesday, March 11, 2009, 6:09 PM> > > > > Hi. I have been sittimg on the sidelines for a bit just> reading. I am a single mom of 5 children ages 13 yrs to 1 yr> old. I have 2 boys with AdHD and absewbt seizures, a daghter> with mood disorder, and a preschooler with autism. It is> opften a challenge every day. I have asked for help with a> behavior speecialist as the autistic son hits and throws> tempers wher he head bangs and has just started with a high> pitchh squeel. He is a little verbal with no expressive> language. I am having the 2 adhd boys in for a telepsych on> Fri. and hopefully get an accurate diagnosis so the picture> is more clearer and some ideas to help. I joined the group> looking for answers and a little understanding of what I am> going through since no one seems to know of any support> groups available in our area. I did find a support group> about 45 mins. away and it starts Tues. But this group has> alot of caring and very supportive peoplen it. I am glad I> have joined this group.> Thqanks> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2009 Report Share Posted March 13, 2009 Hi , I am sort of new too, can relate to your frustrations and concerns with your son with ASD. My grandson will be 13 soon, and he still has the behaviors you described, though he has always been more self abusive than aggressive. It is the high pitch squeal that gets to me more than anything, and I am sure it is indication that something is wrong, but I rarely no what. It is a distressing sound, and also a precursor to a major melt down. C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2009 Report Share Posted March 14, 2009 > > Hi, , I'm so glad you are here. Can you tell me what therapies your ASD child is getting...? ABA, or OT, or sensory anything? I'm hear to answer any specifics you might need as far as therapies and how they have helped my child......you can email me offline as well @ ljdjd1234@...  ---- What is the age of your child...mine is 28 months (and then I have a precious 5 1/2 yr old as well). > > Blessings to you as you find your way... >  > e > > > ________________________________ > > > To: AutismBehaviorProblems > Sent: Wednesday, March 11, 2009 5:09:54 PM > Subject: my introduction > > Hi. I have been sittimg on the sidelines for a bit just reading. I am a single mom of 5 children ages 13 yrs to 1 yr old. I have 2 boys with AdHD and absewbt seizures, a daghter with mood disorder, and a preschooler with autism. It is opften a challenge every day. I have asked for help with a behavior speecialist as the autistic son hits and throws tempers wher he head bangs and has just started with a high pitchh squeel. He is a little verbal with no expressive language. I am having the 2 adhd boys in for a telepsych on Fri. and hopefully get an accurate diagnosis so the picture is more clearer and some ideas to help. I joined the group looking for answers and a little understanding of what I am going through since no one seems to know of any support groups available in our area. I did find a support group about 45 mins. away and it starts Tues. But this group has alot of caring and very supportive peoplen it. I am glad I have joined this group. > Thqanks > >Hi e, In school we are getting speech, ot, and pt. I hace asked for a behavior specialist for three years with no help. He just started school this year but because there are no behaviors at school they can not help at home with a behavior specialist. I do get a parent teacher at home but it is nlot the same. You can tell about the behaviors but if you are not here to see them its hard for them to help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2009 Report Share Posted June 29, 2009 Hi Geoff- Wow, it sounds like your fitness interests are quite varied. The old Firm workouts are definitely winners. Congratulations too on your boxing. Six wins is nothing to sneeze at, that is impressive! Have you done Olijade's workouts? They are some of my favorites for cardio. A Good Credit Score is 700 or Above. See yours in just 2 easy steps! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2009 Report Share Posted June 29, 2009 I have been exercising to exercise videos since 2000. I started doing the Firm Tough Tape 2 in May of 2000. Up in till that point I never lifted a weight before in my life! Since that time I have acquired over 100 exercise videos. Since doing videos I have gained self confidence that led to me taking up boxing from 2005 till 2007 however, my boxing record was not that impressive I had approx 6 wins and 15 loses. I have a wide range of fitness interests that range from Pilates, ballet, boxing, and jazzercise. As for my exercise video collection I'm a huge fan of the " old " Firm workout videos. I'm also a fan of Margaret , Kathy , and some of Jane Fonda's older videos. Anyway, I look forward to posting and meeting everyone! Geoff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2009 Report Share Posted June 30, 2009 Hi ! Thank you so much for the warm welcome! Me in an aerobics class is funny because I have two left feet!! I think that why I love my exercise videos!! I never ever thought I would take up boxing but as I said in a previous post Margaret was my real inspiration because I remember reading about 10 years ago that back in 1991 after she finished doing the knockout workout Margaret actually got in the ring and did an exhibition fight for charity. So what is your favorite Firm classic workout? I did Vol6 yesterday / Monday. Geoff Quote Link to comment Share on other sites More sharing options...
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