Re: visit to CMT clinic

[Guest guest]

Just a test email .....regards,

[Guest guest]

Leena,

You can visit this webpage for information about the CMT Clinic at

Wayne State:

http://www.med.wayne.edu/neurology/clin_programs/Labs/CMT/index.htm

Rowe (313) 577-1689, lrowe@..., is the person to

contact to make an appointment. She will answer all your questions,

set up an appointment, and send you a packet of material with

directions and forms to fill out before your visit.

I went to the WSU clinic in February. I was examined by Mike Shy, the head of

the Clinic and the Chairman of our Medical Advisory Board. Overall, I can say

that the trip was worthwhile.

I knew a lot about my CMT before going to the clinic, but I always

have questions and Mike and the rest of the staff were ready, willing and able

to answer them in terms that I could understand. I wrote about my trip in the

March-April and September-October issues of our newsletter, The CMTA Report, and

one of the things I most appreciated was not having to explain CMT to the

doctors treating me. I knew they knew their stuff and I was able to trust them

completely.

We also got the Wayne State docs to answer questions, and we've

printed their responses in other issues of The CMTA Report this year.

If you have additional questions, my email is above.

Sincerely,

Dana R. Schwertfeger

[Guest guest]

Leena,

After all I sent you today, I forgot this one. It seems to me that

going to Austrailia for you would be closer to India and would be more

advantageous for your son, especially with the new trial. Here's the

link, contact email/info is there too. This is an exciting trial

because it is strictly focusing on very young children and early teens, and is

much shorter than the adult trials.

http://www.ebility.com/cmtaa/vitc.php

Oh, and I did email you about your question. Because your father, you

and your son all have CMT, that means it is inherited in an autosomal

dominant pattern.

Gretchen