Hearing BS from other people

[Guest guest]

Dawn,

I read your post and it brought me back to a conversation I had

this weekend with a friend of mine. I was commenting on the fact I

believe my 9 yr old daughter may have CMT as well and he said " Oh, I

hope not " , and the reason that followed was he said, " I know this

teenager that was just diagnosed with diabetes and she'll never get

married or have somebody love her because she can't have kids'. I

then looked at my beautiful daughter and felt even more guilty than I

have since I was diagnosed a month ago. I can't help but to have them

words haunt me. What if he is right? I hope not.

[Guest guest]

Leely, don't have your whole name but, I agree with something one of our other

members said, " Everyone has something. " Diabetes, etc., so, the quality of a

person's life has to be up to them.

I have a wonderful son and the time I spend with him not just teaching him

things for school but with the projects we do, etc., I have to say I have a

little genius and who knows what he'll be someday.

BTW, I'm the one diagnosed with CMT, but like one of our other members said, I

wouldn't give him up for anything! (and I did know my diagnosis.) CMT is not

brought on by anything we did. It is hereditary.

My son doesn't show any signs of it and I will not have another child but I have

a very special child now who cheers everyone wherever he goes. It's either live

or die. What should we do sit around and be sponges?

I exercise every day and do not let myself get down. At least Im not sitting at

home in front of the tube drinking or smoking. I don't waste much of anything.

In fact, we don't even have cable tv. I have an antennae and 4 sometimes 5

stations.

I know I've brought things to others, previous relationships, that they couldn't

get anywhere else. It may not be for a while again. It has to be the right

person. At least I'm not giving it away and living a useless life like you see

so much of with people who have nothing better to do. I'm getting off topic.

But, you and your children have a lot to offer.

Dawn

[Guest guest]

Leely, Also, my son, Josh, pretty much does have Celiac disease he got from his

fathers side. It affects the gut. My ex's mom didn't tell us she had it until

after we had my son. But guess what, we deal well with it. And my son is a

bright, caring child. He runs over to kids who fall on the playground and talks

to kids who are sitting by themselves. I've never seen anyone not cheer up when

he's around.

Take care,

Dawn