RE: Re: natural thyroid remedies?; got TSH number!

[Guest guest]

Yes, there are T3, T4 and TSH...

I know frommy own experience.. don't mess w/u thyroid meds!!! My jumped to 78, and my kidneys started shutting down. s jumped from 2 to 200 in 9mos time!!!! Scared me!!!!

She started having puberty issues,, etc....... She is ok now that she is on meds.,

Deb

[DownSyndromeInfoExchange] natural thyroid remedies?> > > > > > Took (almost 4) for routine bloodwork, CBC and thyroid, last Thurs.> It was traumatic for me and him (stick needle in, fish and fish for vein,> finally withdraw needle; try other arm, fish and fish again, finally find> vein)... I hate putting him through that!> > > > So, today my husband took a call from a nurse at 's ped saying that> his numbers were a little higher than last time and the ped wants him on> hormone replacement and then have him re-tested before his scheduled check> up in Sept. WAIT A MINUTE!!! Last Feb./Mar. his numbers were "boderline",> now they are a "little higher"... they didn't even tell us what his numbers> were!! We're going to call and find out. But while had trouble> gaining weight his first few months of life and gained ever so slowly his> 1st year and even his 2nd year, he has picked up beautifully in the past 1> 1/2 years! He's 37 in. tall and 32 lbs., which puts him at about 80% for> height and 50% for weight on the DS chart. (He used to be at about 50% for> height and about 7-10% for weight.) And that is in spite of his uncorrected> CHD! His doctors have raved about how well he is doing. He is active and> making progress in all areas of development. Apparently, "slightly high"> numbers are not adversly affecting him in any way! > > > > And if he does have a sluggish thyroid, I would try natural remedies, not> hormone replacement! I remember that Qadoshyah's little brother had> significant thyroid trouble as an infant, and that they have used natural> remedies, and his numbers came within the normal range and have remained> there. What I don't remember is what they used. What supplement(s) can I> give to help his thyroid do its job better?> > > > BTW, has a strange rash all over his legs, but I don't know that it> is related to thyroid in any way. There's eczema in our family, but this> doesn't look like eczema or hives. His legs are peppered with tiny light> red, raised speckles. They don't have heads like pimples. I assume they itch> some, as he scratches them some and then there will be some scratch lines> and a few drops of blood. If I put long pants on him, he doesn't scratch.> I'm thinking it's an allergic reaction either to something he's eating or an> herbal supplement because he has an ouline of raised bumps around his anal> opening and some rash on his diaper area. > > > > Thanks for all input!> > > > Blessings!> > > >> > > > No virus found in this incoming message.> Checked by AVG - www.avg.com> Version: 8.5.392 / Virus Database: 270.13.44/2283 - Release Date: 08/05/09> 05:57:00>

[Guest guest]

Low thyroid can have very serious and permanent consequences, esp to brain function, so it's not really something you want to mess around  with. Thyroid meds are simply replacing and supplementing what he is not producing himself.

I WANTED on the thyroid meds when hers was low. It was pretty funny cause when we went to the endo, she was worried I wouldn't want it, and I was worried she wouldn't give it yet. ;-) 's dose was halved after about a year on the SCD, and we do use coconut oil too. So the body levels out it seems. Even though she has grown a ton, and gained a lot of weight, her dose has not increased. So something is working for her.

Hypothroidism is VERY common in DS. Oddly enough, many of the symptoms for it are the same as common issues in DS.Here is a great site with lots of info :  http://thyroid.about.com/  Shomon wrote a great book which I would highly recommend !

Carol in ILMom to , 8 DSMy problem is not how I look. It's how you see me.Join our Down Syndrome information group - http://health. groups.yahoo. com/group/ DownSyndromeInfo Exchange/

http://downsyndromeinfoexchange.blogspot.com/Listen to oldest dd's music http://www.myspace.com/vennamusic

On Wed, Aug 5, 2009 at 3:17 PM, ninepreciousgiftsfromgod wrote:

 

Okay, we got the TSH number for : 5.72

The nurse said the acceptable scale is 02.7-4.20

But aren't there supposed to be other numbers? Besides the TSH? Aren't there supposed to be 3 different numbers? And looking at all of them in connection with each other means something?

I used to give 30 mg. of zinc daily, but in the last month or so, I got lax with that. I gave it to him last night, though, and you can bet I will give it faithfully! I'm thinking it would be difficult to persuade the ped to get 's zinc level tested. He is the type who is always right and doesn't yield.

How much coconut oil should I give him? And how do I give it to him?

I mix a tsp. in with cooked rice or put some on a baked potato from time to time, but it is probably not enough or often enough to make a difference.

Now, we have an appointment with the ped on the 13th to " discuss " 's " hypothryoidism. " According to the nurse, the doctor said that untreated hypothyroidism can have serious consequences. Yet, has NONE of the symptoms of hypothyroidism! And when you give the body synthetic thyroid hormone, doesn't it cause the thyroid to become dependent on the synthetic hormone and produce even less on its own?

How am I going to discuss this with a doctor who has already made up his mind and isn't going to budge from his opinion which was formed back in med school?! And I am just a mom!

Help!

> >

> > Just from what you describe the rash sounds like Keratosis pilaris.

> > http://www.mayoclinic.com/health/keratosis-pilaris/DS00769

> >

> > I have it and My has it. I have found " relief " from it with

> regular exfoliation and then a nice food grade oil. Olive, Peanut, grape

> seed. Usually they don't recommend this exfoliation.. But I have had it ALL

> my life.. and it works for me. Esp on the backs of my upper arms. It helps

> keep those unblocked.. which is why dry air makes it worse. I did not like

> the acid products. Did not work well for me.

> >

> > I don't itch. But some can. I have had them itch.. but it was more of a

> dry skin thing for me. Its not like " poison ivy " itching. So.. your little

> guy is likely not bothered by it at all. Again moisturize.

> >

> > Sam has it on the backs of her arms like me and on her calves. I don't

> scrub her much cause I can't tell how much is too much.. cause I am not the

> one feeling it. But I do use a wash rag on those areas.. and then

> moisturized.

> >

> >

> > The thyroid.. well I would hear what the doc has to say.. but I never

> heard of Hormone replacement per say. Thyroid Hormone may have to be given..

> but not Hormone Replacement as we tend to think of it - like at Menopause.

> >

> > Anyhow.. depending on what the issue is you could look into getting him

> some natural iodine in the form of Kelp. But I would look to see what the

> dosage is for a youngin. I take kelp for my thyroid. I have thyroid

> antibodies. Autoimmune. Eventually I will end up on Synthroid or something

> like it. Both my Granny's had Thyroid issues - One hyper the other Hypo. My

> father has it and is on synthroid. Ah.. yeah.. two cousins too. Really runs

> in my family. My mom has a cyst on hers as well.

> >

> > Natural iodine like from Kelp ( think seaweed) helps support the Thyroid.

> Which is why I take it. But again. look around and talk to a Herbal

> Pharmacist and maybe they can help. Might be worth the long distance call

> > Herbs & More

> > 266 Main Street,

> > Florence, KY 41042

> >

> > Sorry if I sound really weird.. its late and I am Sleepy.

> >

> > Steph

> >

> >

> >

> >

> >

> > [DownSyndromeInfoExchange] natural thyroid remedies?

> >

> >

> > Took (almost 4) for routine bloodwork, CBC and thyroid, last Thurs.

> It was traumatic for me and him (stick needle in, fish and fish for vein,

> finally withdraw needle; try other arm, fish and fish again, finally find

> vein)... I hate putting him through that!

> >

> > So, today my husband took a call from a nurse at 's ped saying that

> his numbers were a little higher than last time and the ped wants him on

> hormone replacement and then have him re-tested before his scheduled check

> up in Sept. WAIT A MINUTE!!! Last Feb./Mar. his numbers were " boderline " ,

> now they are a " little higher " ... they didn't even tell us what his numbers

> were!! We're going to call and find out. But while had trouble

> gaining weight his first few months of life and gained ever so slowly his

> 1st year and even his 2nd year, he has picked up beautifully in the past 1

> 1/2 years! He's 37 in. tall and 32 lbs., which puts him at about 80% for

> height and 50% for weight on the DS chart. (He used to be at about 50% for

> height and about 7-10% for weight.) And that is in spite of his uncorrected

> CHD! His doctors have raved about how well he is doing. He is active and

> making progress in all areas of development. Apparently, " slightly high "

> numbers are not adversly affecting him in any way!

> >

> > And if he does have a sluggish thyroid, I would try natural remedies, not

> hormone replacement! I remember that Qadoshyah's little brother had

> significant thyroid trouble as an infant, and that they have used natural

> remedies, and his numbers came within the normal range and have remained

> there. What I don't remember is what they used. What supplement(s) can I

> give to help his thyroid do its job better?

> >

> > BTW, has a strange rash all over his legs, but I don't know that it

> is related to thyroid in any way. There's eczema in our family, but this

> doesn't look like eczema or hives. His legs are peppered with tiny light

> red, raised speckles. They don't have heads like pimples. I assume they itch

> some, as he scratches them some and then there will be some scratch lines

> and a few drops of blood. If I put long pants on him, he doesn't scratch.

> I'm thinking it's an allergic reaction either to something he's eating or an

> herbal supplement because he has an ouline of raised bumps around his anal

> opening and some rash on his diaper area.

> >

> > Thanks for all input!

> >

> > Blessings!

> >

> >

>

>

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 8.5.392 / Virus Database: 270.13.44/2283 - Release Date: 08/05/09

> 05:57:00

>

[Guest guest]

How do you all give the coconut oil. Do you just use it for cooking of melt it and give as a supplement? How much do you give say a under 35lber?

Thanks.

Okay, we got the TSH number for : 5.72The nurse said the acceptable scale is 02.7-4.20But aren't there supposed to be other numbers? Besides the TSH? Aren't there supposed to be 3 different numbers? And looking at all of them in connection with each other means something?I used to give 30 mg. of zinc daily, but in the last month or so, I got lax with that. I gave it to him last night, though, and you can bet I will give it faithfully! I'm thinking it would be difficult to persuade the ped to get 's zinc level tested. He is the type who is always right and doesn't yield.How much coconut oil should I give him? And how do I give it to him?I mix a tsp. in with cooked rice or put some on a baked potato from time to time, but it is probably not enough or often enough to make a difference.Now, we have an appointment with the ped on the 13th to "discuss" 's "hypothryoidism." According to

the nurse, the doctor said that untreated hypothyroidism can have serious consequences. Yet, has NONE of the symptoms of hypothyroidism! And when you give the body synthetic thyroid hormone, doesn't it cause the thyroid to become dependent on the synthetic hormone and produce even less on its own?How am I going to discuss this with a doctor who has already made up his mind and isn't going to budge from his opinion which was formed back in med school?! And I am just a mom!Help!> >> > Just from what you describe the rash sounds like Keratosis pilaris.> > http://www.mayoclin ic.com/health/ keratosis- pilaris/DS00769> > > > I have it and My has it. I have found "relief" from it with> regular exfoliation and then a nice food grade oil. Olive, Peanut, grape> seed. Usually they don't recommend this exfoliation. . But I have had it ALL> my life.. and it works for me. Esp on the backs of my upper arms. It helps> keep those unblocked.. which is why dry air makes it worse. I did not like> the acid products. Did not work well for me.> >

> > I don't itch. But some can. I have had them itch.. but it was more of a> dry skin thing for me. Its not like " poison ivy " itching. So.. your little> guy is likely not bothered by it at all. Again moisturize.> > > > Sam has it on the backs of her arms like me and on her calves. I don't> scrub her much cause I can't tell how much is too much.. cause I am not the> one feeling it. But I do use a wash rag on those areas.. and then> moisturized.> > > > > > The thyroid.. well I would hear what the doc has to say.. but I never> heard of Hormone replacement per say. Thyroid Hormone may have to be given..> but not Hormone Replacement as we tend to think of it - like at Menopause.> > > > Anyhow.. depending on what the issue is you could look into getting him> some natural iodine in the form of Kelp. But I would look to see

what the> dosage is for a youngin. I take kelp for my thyroid. I have thyroid> antibodies. Autoimmune. Eventually I will end up on Synthroid or something> like it. Both my Granny's had Thyroid issues - One hyper the other Hypo. My> father has it and is on synthroid. Ah.. yeah.. two cousins too. Really runs> in my family. My mom has a cyst on hers as well. > > > > Natural iodine like from Kelp ( think seaweed) helps support the Thyroid.> Which is why I take it. But again. look around and talk to a Herbal> Pharmacist and maybe they can help. Might be worth the long distance call > > Herbs & More> > 266 Main Street,> > Florence, KY 41042 > > > > Sorry if I sound really weird.. its late and I am Sleepy. > > > > Steph> > > > > > > > > > > >

[DownSyndromeInfoEx change] natural thyroid remedies?> > > > > > Took (almost 4) for routine bloodwork, CBC and thyroid, last Thurs.> It was traumatic for me and him (stick needle in, fish and fish for vein,> finally withdraw needle; try other arm, fish

and fish again, finally find> vein)... I hate putting him through that!> > > > So, today my husband took a call from a nurse at 's ped saying that> his numbers were a little higher than last time and the ped wants him on> hormone replacement and then have him re-tested before his scheduled check> up in Sept. WAIT A MINUTE!!! Last Feb./Mar. his numbers were "boderline",> now they are a "little higher"... they didn't even tell us what his numbers> were!! We're going to call and find out. But while had trouble> gaining weight his first few months of life and gained ever so slowly his> 1st year and even his 2nd year, he has picked up beautifully in the past 1> 1/2 years! He's 37 in. tall and 32 lbs., which puts him at about 80% for> height and 50% for weight on the DS chart. (He used to be at about 50% for> height and about 7-10% for weight.) And

that is in spite of his uncorrected> CHD! His doctors have raved about how well he is doing. He is active and> making progress in all areas of development. Apparently, "slightly high"> numbers are not adversly affecting him in any way! > > > > And if he does have a sluggish thyroid, I would try natural remedies, not> hormone replacement! I remember that Qadoshyah's little brother had> significant thyroid trouble as an infant, and that they have used natural> remedies, and his numbers came within the normal range and have remained> there. What I don't remember is what they used. What supplement(s) can I> give to help his thyroid do its job better?> > > > BTW, has a strange rash all over his legs, but I don't know that it> is related to thyroid in any way. There's eczema in our family, but this> doesn't look like eczema or hives. His

legs are peppered with tiny light> red, raised speckles. They don't have heads like pimples. I assume they itch> some, as he scratches them some and then there will be some scratch lines> and a few drops of blood. If I put long pants on him, he doesn't scratch.> I'm thinking it's an allergic reaction either to something he's eating or an> herbal supplement because he has an ouline of raised bumps around his anal> opening and some rash on his diaper area. > > > > Thanks for all input!> > > > Blessings!> > > >> > > > No virus found in this incoming message.> Checked by AVG - www.avg.com> Version: 8.5.392 / Virus Database: 270.13.44/2283 - Release Date: 08/05/09> 05:57:00>

[Guest guest]

I don't bother to measure it at all. I use it like butter and put it on her food. tastes great on squash, with honey,  and pumpkin pie spices, same with warmed up applesauce. :-) She also likes it on peas.

She really doesn't eat much cooked, but i would use it for that with her if she did. Don't use any that doesn't taste GOOD. It should taste like yummy coconut. I really hated Spectrum's brand! Tasted horrible.

Carol in ILMom to , 8 DSMy problem is not how I look. It's how you see me.Join our Down Syndrome information group - http://health. groups.yahoo. com/group/ DownSyndromeInfo Exchange/

http://downsyndromeinfoexchange.blogspot.com/Listen to oldest dd's music http://www.myspace.com/vennamusic

 

How do you all give the coconut oil.  Do you just use it for cooking of melt it and give as a supplement?  How much do you give say a under 35lber?

 

Thanks.

 

Okay, we got the TSH number for : 5.72The nurse said the acceptable scale is 02.7-4.20But aren't there supposed to be other numbers? Besides the TSH? Aren't there supposed to be 3 different numbers? And looking at all of them in connection with each other means something?

I used to give 30 mg. of zinc daily, but in the last month or so, I got lax with that. I gave it to him last night, though, and you can bet I will give it faithfully! I'm thinking it would be difficult to persuade the ped to get 's zinc level tested. He is the type who is always right and doesn't yield.

How much coconut oil should I give him? And how do I give it to him?I mix a tsp. in with cooked rice or put some on a baked potato from time to time, but it is probably not enough or often enough to make a difference.

Now, we have an appointment with the ped on the 13th to " discuss " 's " hypothryoidism. " According to

the nurse, the doctor said that untreated hypothyroidism can have serious consequences. Yet, has NONE of the symptoms of hypothyroidism! And when you give the body synthetic thyroid hormone, doesn't it cause the thyroid to become dependent on the synthetic hormone and produce even less on its own?

How am I going to discuss this with a doctor who has already made up his mind and isn't going to budge from his opinion which was formed back in med school?! And I am just a mom!Help!

> >> > Just from what you describe the rash sounds like Keratosis pilaris.> > http://www.mayoclin ic.com/health/ keratosis- pilaris/DS00769

> > > > I have it and My has it. I have found " relief " from it with> regular exfoliation and then a nice food grade oil. Olive, Peanut, grape> seed. Usually they don't recommend this exfoliation. . But I have had it ALL

> my life.. and it works for me. Esp on the backs of my upper arms. It helps> keep those unblocked.. which is why dry air makes it worse. I did not like> the acid products. Did not work well for me.> >

> > I don't itch. But some can. I have had them itch.. but it was more of a> dry skin thing for me. Its not like " poison ivy " itching. So.. your little> guy is likely not bothered by it at all. Again moisturize.

> > > > Sam has it on the backs of her arms like me and on her calves. I don't> scrub her much cause I can't tell how much is too much.. cause I am not the> one feeling it. But I do use a wash rag on those areas.. and then

> moisturized.> > > > > > The thyroid.. well I would hear what the doc has to say.. but I never> heard of Hormone replacement per say. Thyroid Hormone may have to be given..> but not Hormone Replacement as we tend to think of it - like at Menopause.

> > > > Anyhow.. depending on what the issue is you could look into getting him> some natural iodine in the form of Kelp. But I would look to see

what the> dosage is for a youngin. I take kelp for my thyroid. I have thyroid> antibodies. Autoimmune. Eventually I will end up on Synthroid or something> like it. Both my Granny's had Thyroid issues - One hyper the other Hypo. My

> father has it and is on synthroid. Ah.. yeah.. two cousins too. Really runs> in my family. My mom has a cyst on hers as well. > > > > Natural iodine like from Kelp ( think seaweed) helps support the Thyroid.

> Which is why I take it. But again. look around and talk to a Herbal> Pharmacist and maybe they can help. Might be worth the long distance call > > Herbs & More> > 266 Main Street,> > Florence, KY 41042

> > > > Sorry if I sound really weird.. its late and I am Sleepy. > > > > Steph> > > > > > > > > > > >

[DownSyndromeInfoEx change] natural thyroid remedies?> > > > > > Took (almost 4) for routine bloodwork, CBC and thyroid, last Thurs.

> It was traumatic for me and him (stick needle in, fish and fish for vein,> finally withdraw needle; try other arm, fish

and fish again, finally find> vein)... I hate putting him through that!> > > > So, today my husband took a call from a nurse at 's ped saying that> his numbers were a little higher than last time and the ped wants him on

> hormone replacement and then have him re-tested before his scheduled check> up in Sept. WAIT A MINUTE!!! Last Feb./Mar. his numbers were " boderline " ,> now they are a " little higher " ... they didn't even tell us what his numbers

> were!! We're going to call and find out. But while had trouble> gaining weight his first few months of life and gained ever so slowly his> 1st year and even his 2nd year, he has picked up beautifully in the past 1

> 1/2 years! He's 37 in. tall and 32 lbs., which puts him at about 80% for> height and 50% for weight on the DS chart. (He used to be at about 50% for> height and about 7-10% for weight.) And

that is in spite of his uncorrected> CHD! His doctors have raved about how well he is doing. He is active and> making progress in all areas of development. Apparently, " slightly high " > numbers are not adversly affecting him in any way!

> > > > And if he does have a sluggish thyroid, I would try natural remedies, not> hormone replacement! I remember that Qadoshyah's little brother had> significant thyroid trouble as an infant, and that they have used natural

> remedies, and his numbers came within the normal range and have remained> there. What I don't remember is what they used. What supplement(s) can I> give to help his thyroid do its job better?

> > > > BTW, has a strange rash all over his legs, but I don't know that it> is related to thyroid in any way. There's eczema in our family, but this> doesn't look like eczema or hives. His

legs are peppered with tiny light> red, raised speckles. They don't have heads like pimples. I assume they itch> some, as he scratches them some and then there will be some scratch lines> and a few drops of blood. If I put long pants on him, he doesn't scratch.

> I'm thinking it's an allergic reaction either to something he's eating or an> herbal supplement because he has an ouline of raised bumps around his anal> opening and some rash on his diaper area.

> > > > Thanks for all input!> > > > Blessings!> > > >> > > > No virus found in this incoming message.> Checked by AVG - www.avg.com

> Version: 8.5.392 / Virus Database: 270.13.44/2283 - Release Date: 08/05/09> 05:57:00>

[Guest guest]

Spectrum is the only one i've tried - my nutrionist recommended it for me and yuck! it was like flavorless candle wax.

Okay, we got the TSH number for : 5.72The nurse said the acceptable scale is 02.7-4.20But aren't there supposed to be other numbers? Besides the TSH? Aren't there supposed to be 3 different numbers? And looking at all of them in connection with each other means something?I used to give 30 mg. of zinc daily, but in the last month or so, I got lax with that. I gave it to him last night, though, and you can bet I will give it faithfully! I'm thinking it would be difficult to persuade the ped to get 's zinc level tested. He is the type who is always right and doesn't yield.How much coconut oil should I give him? And how do I give it to him?I mix a tsp. in with cooked rice or put some on a baked potato from time to time, but it is probably not enough or often enough to make a difference.Now, we have an appointment with the ped on the 13th to "discuss" 's "hypothryoidism."

According to the nurse, the doctor said that untreated hypothyroidism can have serious consequences. Yet, has NONE of the symptoms of hypothyroidism! And when you give the body synthetic thyroid hormone, doesn't it cause the thyroid to become dependent on the synthetic hormone and produce even less on its own?How am I going to discuss this with a doctor who has already made up his mind and isn't going to budge from his opinion which was formed back in med school?! And I am just a mom!Help!

> >> > Just from what you describe the rash sounds like Keratosis pilaris.> > http://www.mayoclin ic.com/health/ keratosis- pilaris/DS00769

> > > > I have it and My has it. I have found "relief" from it with> regular exfoliation and then a nice food grade oil. Olive, Peanut, grape> seed. Usually they don't recommend this exfoliation. . But I have had it ALL> my life.. and it works for me. Esp on the backs of my upper arms. It helps> keep those unblocked.. which is why dry air makes it worse. I did not like> the acid products. Did not work well for me.> > > > I don't itch. But some can. I have had them itch.. but it was more of a> dry skin thing for me. Its not like " poison ivy " itching. So.. your little> guy is likely not bothered by it at all. Again moisturize.> > > > Sam has it on the backs of her arms like me and on her calves. I don't> scrub her much cause I can't tell how much is too much.. cause I am not the> one feeling it. But I do use a

wash rag on those areas.. and then> moisturized.> > > > > > The thyroid.. well I would hear what the doc has to say.. but I never> heard of Hormone replacement per say. Thyroid Hormone may have to be given..> but not Hormone Replacement as we tend to think of it - like at Menopause.> > > > Anyhow.. depending on what the issue is you could look into getting him> some natural iodine in the form of Kelp. But I would look to see what the> dosage is for a youngin. I take kelp for my thyroid. I have thyroid> antibodies. Autoimmune. Eventually I will end up on Synthroid or something> like it. Both my Granny's had Thyroid issues - One hyper the other Hypo. My> father has it and is on synthroid. Ah.. yeah.. two cousins too. Really runs> in my family. My mom has a cyst on hers as well. > > > > Natural iodine like from Kelp ( think

seaweed) helps support the Thyroid.> Which is why I take it. But again. look around and talk to a Herbal> Pharmacist and maybe they can help. Might be worth the long distance call > > Herbs & More> > 266 Main Street,> > Florence, KY 41042 > > > > Sorry if I sound really weird.. its late and I am Sleepy. > > > > Steph> > > > > > > > > > > > [DownSyndromeInfoEx change] natural thyroid remedies?> > > > > > Took (almost 4) for routine bloodwork, CBC and thyroid, last Thurs.> It was traumatic for me and him (stick needle in, fish and fish for vein,> finally withdraw needle; try other arm, fish and fish again, finally find> vein)... I hate putting him through that!> > > > So, today my husband took a call from a nurse at 's ped saying that> his numbers were a little higher than last time and the ped wants him on> hormone replacement and then have him re-tested before his scheduled check> up in Sept. WAIT A MINUTE!!! Last Feb./Mar. his numbers were "boderline",> now they are a "little higher"... they didn't even tell us what his numbers> were!! We're going to call and find out. But while had trouble> gaining weight his first few

months of life and gained ever so slowly his> 1st year and even his 2nd year, he has picked up beautifully in the past 1> 1/2 years! He's 37 in. tall and 32 lbs., which puts him at about 80% for> height and 50% for weight on the DS chart. (He used to be at about 50% for> height and about 7-10% for weight.) And that is in spite of his uncorrected> CHD! His doctors have raved about how well he is doing. He is active and> making progress in all areas of development. Apparently, "slightly high"> numbers are not adversly affecting him in any way! > > > > And if he does have a sluggish thyroid, I would try natural remedies, not> hormone replacement! I remember that Qadoshyah's little brother had> significant thyroid trouble as an infant, and that they have used natural> remedies, and his numbers came within the normal range and have remained> there. What I don't

remember is what they used. What supplement(s) can I> give to help his thyroid do its job better?> > > > BTW, has a strange rash all over his legs, but I don't know that it> is related to thyroid in any way. There's eczema in our family, but this> doesn't look like eczema or hives. His legs are peppered with tiny light> red, raised speckles. They don't have heads like pimples. I assume they itch> some, as he scratches them some and then there will be some scratch lines> and a few drops of blood. If I put long pants on him, he doesn't scratch.> I'm thinking it's an allergic reaction either to something he's eating or an> herbal supplement because he has an ouline of raised bumps around his anal> opening and some rash on his diaper area. > > > > Thanks for all input!> > > > Blessings!> > >

>> > > > No virus found in this incoming message.> Checked by AVG - www.avg.com> Version: 8.5.392 / Virus Database: 270.13.44/2283 - Release Date: 08/05/09> 05:57:00>

[Guest guest]

I totally agree!!! I thought it tasted like it was very, very old. I use Tropical Traditon and it's just down right yummy. Tastes great on warm  veggies or fruit. Some people like it in smoothies as it gets the same texture as a chocolate chip when it's cold!

Carol in ILMom to , 8 DSMy problem is not how I look. It's how you see me.Join our Down Syndrome information group - http://health. groups.yahoo. com/group/ DownSyndromeInfo Exchange/

http://downsyndromeinfoexchange.blogspot.com/Listen to oldest dd's music http://www.myspace.com/vennamusic

 

Spectrum is the only one i've tried - my nutrionist recommended it for me and yuck!  it was like flavorless candle wax.

 

Okay, we got the TSH number for : 5.72The nurse said the acceptable scale is 02.7-4.20But aren't there supposed to be other numbers? Besides the TSH? Aren't there supposed to be 3 different numbers? And looking at all of them in connection with each other means something?

I used to give 30 mg. of zinc daily, but in the last month or so, I got lax with that. I gave it to him last night, though, and you can bet I will give it faithfully! I'm thinking it would be difficult to persuade the ped to get 's zinc level tested. He is the type who is always right and doesn't yield.

How much coconut oil should I give him? And how do I give it to him?I mix a tsp. in with cooked rice or put some on a baked potato from time to time, but it is probably not enough or often enough to make a difference.

Now, we have an appointment with the ped on the 13th to " discuss " 's " hypothryoidism. "

According to the nurse, the doctor said that untreated hypothyroidism can have serious consequences. Yet, has NONE of the symptoms of hypothyroidism! And when you give the body synthetic thyroid hormone, doesn't it cause the thyroid to become dependent on the synthetic hormone and produce even less on its own?

How am I going to discuss this with a doctor who has already made up his mind and isn't going to budge from his opinion which was formed back in med school?! And I am just a mom!Help!

> >> > Just from what you describe the rash sounds like Keratosis pilaris.> > http://www.mayoclin ic.com/health/ keratosis- pilaris/DS00769

> > > > I have it and My has it. I have found " relief " from it with> regular exfoliation and then a nice food grade oil. Olive, Peanut, grape> seed. Usually they don't recommend this exfoliation. . But I have had it ALL

> my life.. and it works for me. Esp on the backs of my upper arms. It helps> keep those unblocked.. which is why dry air makes it worse. I did not like> the acid products. Did not work well for me.> >

> > I don't itch. But some can. I have had them itch.. but it was more of a> dry skin thing for me. Its not like " poison ivy " itching. So.. your little> guy is likely not bothered by it at all. Again moisturize.

> > > > Sam has it on the backs of her arms like me and on her calves. I don't> scrub her much cause I can't tell how much is too much.. cause I am not the> one feeling it. But I do use a

wash rag on those areas.. and then> moisturized.> > > > > > The thyroid.. well I would hear what the doc has to say.. but I never> heard of Hormone replacement per say. Thyroid Hormone may have to be given..

> but not Hormone Replacement as we tend to think of it - like at Menopause.> > > > Anyhow.. depending on what the issue is you could look into getting him> some natural iodine in the form of Kelp. But I would look to see what the

> dosage is for a youngin. I take kelp for my thyroid. I have thyroid> antibodies. Autoimmune. Eventually I will end up on Synthroid or something> like it. Both my Granny's had Thyroid issues - One hyper the other Hypo. My

> father has it and is on synthroid. Ah.. yeah.. two cousins too. Really runs> in my family. My mom has a cyst on hers as well. > > > > Natural iodine like from Kelp ( think

seaweed) helps support the Thyroid.> Which is why I take it. But again. look around and talk to a Herbal> Pharmacist and maybe they can help. Might be worth the long distance call > > Herbs & More

> > 266 Main Street,> > Florence, KY 41042 > > > > Sorry if I sound really weird.. its late and I am Sleepy. > > > > Steph> > > >

> > > > > > > > [DownSyndromeInfoEx change] natural thyroid remedies?> > > > > > Took (almost 4) for routine bloodwork, CBC and thyroid, last Thurs.> It was traumatic for me and him (stick needle in, fish and fish for vein,

> finally withdraw needle; try other arm, fish and fish again, finally find> vein)... I hate putting him through that!> > > > So, today my husband took a call from a nurse at 's ped saying that

> his numbers were a little higher than last time and the ped wants him on> hormone replacement and then have him re-tested before his scheduled check> up in Sept. WAIT A MINUTE!!! Last Feb./Mar. his numbers were " boderline " ,

> now they are a " little higher " ... they didn't even tell us what his numbers> were!! We're going to call and find out. But while had trouble> gaining weight his first few

months of life and gained ever so slowly his> 1st year and even his 2nd year, he has picked up beautifully in the past 1> 1/2 years! He's 37 in. tall and 32 lbs., which puts him at about 80% for> height and 50% for weight on the DS chart. (He used to be at about 50% for

> height and about 7-10% for weight.) And that is in spite of his uncorrected> CHD! His doctors have raved about how well he is doing. He is active and> making progress in all areas of development. Apparently, " slightly high "

> numbers are not adversly affecting him in any way! > > > > And if he does have a sluggish thyroid, I would try natural remedies, not> hormone replacement! I remember that Qadoshyah's little brother had

> significant thyroid trouble as an infant, and that they have used natural> remedies, and his numbers came within the normal range and have remained> there. What I don't

remember is what they used. What supplement(s) can I> give to help his thyroid do its job better?> > > > BTW, has a strange rash all over his legs, but I don't know that it

> is related to thyroid in any way. There's eczema in our family, but this> doesn't look like eczema or hives. His legs are peppered with tiny light> red, raised speckles. They don't have heads like pimples. I assume they itch

> some, as he scratches them some and then there will be some scratch lines> and a few drops of blood. If I put long pants on him, he doesn't scratch.> I'm thinking it's an allergic reaction either to something he's eating or an

> herbal supplement because he has an ouline of raised bumps around his anal> opening and some rash on his diaper area. > > > > Thanks for all input!> > > > Blessings!

> > >

>> > > > No virus found in this incoming message.> Checked by AVG - www.avg.com> Version: 8.5.392 / Virus Database: 270.13.44/2283 - Release Date: 08/05/09

> 05:57:00>

[Guest guest]

We

just mix a teaspoon into Osiyyah’s vitamins.

Qadoshyah

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From:

DownSyndromeInfoExchange

[mailto:DownSyndromeInfoExchange ] On Behalf Of ELIZABETH

BROWN

Sent: Thursday, August 06, 2009 9:04 AM

To: DownSyndromeInfoExchange

Subject: Re: [DownSyndromeInfoExchange] Re: natural thyroid remedies?;

got TSH number!

How do you all give the coconut oil. Do you just use

it for cooking of melt it and give as a supplement? How much do you

give say a under 35lber?

Thanks.

Okay, we got

the TSH number for : 5.72

The nurse said the acceptable scale is 02.7-4.20

But aren't there supposed to be other numbers? Besides the TSH? Aren't there

supposed to be 3 different numbers? And looking at all of them in connection

with each other means something?

I used to give 30 mg. of zinc daily, but in the last month or so, I

got lax with that. I gave it to him last night, though, and you can bet I

will give it faithfully! I'm thinking it would be difficult to persuade the

ped to get 's zinc level tested. He is the type who is always right and

doesn't yield.

How much coconut oil should I give him? And how do I give it to him?

I mix a tsp. in with cooked rice or put some on a baked potato from time to

time, but it is probably not enough or often enough to make a difference.

Now, we have an appointment with the ped on the 13th to " discuss "

's " hypothryoidism. " According to the nurse, the doctor said that

untreated hypothyroidism can have serious consequences. Yet, has NONE

of the symptoms of hypothyroidism! And when you give the body synthetic

thyroid hormone, doesn't it cause the thyroid to become dependent on the

synthetic hormone and produce even less on its own?

How am I going to discuss this with a doctor who has already made up his mind

and isn't going to budge from his opinion which was formed back in med

school?! And I am just a mom!

Help!

> >

> > Just from what you describe the rash sounds like Keratosis pilaris.

> > http://www.mayoclin ic.com/health/ keratosis- pilaris/DS00769

> >

> > I have it and My has it. I have found " relief "

from it with

> regular exfoliation and then a nice food grade oil. Olive, Peanut, grape

> seed. Usually they don't recommend this exfoliation. . But I have had it

ALL

> my life.. and it works for me. Esp on the backs of my upper arms. It

helps

> keep those unblocked.. which is why dry air makes it worse. I did not

like

> the acid products. Did not work well for me.

> >

> > I don't itch. But some can. I have had them itch.. but it was more

of a

> dry skin thing for me. Its not like " poison ivy " itching.

So.. your little

> guy is likely not bothered by it at all. Again moisturize.

> >

> > Sam has it on the backs of her arms like me and on her calves. I

don't

> scrub her much cause I can't tell how much is too much.. cause I am not

the

> one feeling it. But I do use a wash rag on those areas.. and then

> moisturized.

> >

> >

> > The thyroid.. well I would hear what the doc has to say.. but I

never

> heard of Hormone replacement per say. Thyroid Hormone may have to be

given..

> but not Hormone Replacement as we tend to think of it - like at

Menopause.

> >

> > Anyhow.. depending on what the issue is you could look into getting

him

> some natural iodine in the form of Kelp. But I would look to see what

the

> dosage is for a youngin. I take kelp for my thyroid. I have thyroid

> antibodies. Autoimmune. Eventually I will end up on Synthroid or

something

> like it. Both my Granny's had Thyroid issues - One hyper the other Hypo.

My

> father has it and is on synthroid. Ah.. yeah.. two cousins too. Really

runs

> in my family. My mom has a cyst on hers as well.

> >

> > Natural iodine like from Kelp ( think seaweed) helps support the

Thyroid.

> Which is why I take it. But again. look around and talk to a Herbal

> Pharmacist and maybe they can help. Might be worth the long distance

call

> > Herbs & More

> > 266 Main Street,

> > Florence, KY 41042

> >

> > Sorry if I sound really weird.. its late and I am Sleepy.

> >

> > Steph

> >

> >

> >

> >

> >

> > [DownSyndromeInfoEx change] natural thyroid remedies?

> >

> >

> > Took (almost 4) for routine bloodwork, CBC and thyroid, last

Thurs.

> It was traumatic for me and him (stick needle in, fish and fish for

vein,

> finally withdraw needle; try other arm, fish and fish again, finally

find

> vein)... I hate putting him through that!

> >

> > So, today my husband took a call from a nurse at 's ped

saying that

> his numbers were a little higher than last time and the ped wants him on

> hormone replacement and then have him re-tested before his scheduled

check

> up in Sept. WAIT A MINUTE!!! Last Feb./Mar. his numbers were

" boderline " ,

> now they are a " little higher " ... they didn't even tell us

what his numbers

> were!! We're going to call and find out. But while had trouble

> gaining weight his first few months of life and gained ever so slowly

his

> 1st year and even his 2nd year, he has picked up beautifully in the past

1

> 1/2 years! He's 37 in. tall and 32 lbs., which puts him at about 80% for

> height and 50% for weight on the DS chart. (He used to be at about 50%

for

> height and about 7-10% for weight.) And that is in spite of his

uncorrected

> CHD! His doctors have raved about how well he is doing. He is active and

> making progress in all areas of development. Apparently, " slightly

high "

> numbers are not adversly affecting him in any way!

> >

> > And if he does have a sluggish thyroid, I would try natural

remedies, not

> hormone replacement! I remember that Qadoshyah's little brother had

> significant thyroid trouble as an infant, and that they have used

natural

> remedies, and his numbers came within the normal range and have remained

> there. What I don't remember is what they used. What supplement(s) can I

> give to help his thyroid do its job better?

> >

> > BTW, has a strange rash all over his legs, but I don't know

that it

> is related to thyroid in any way. There's eczema in our family, but this

> doesn't look like eczema or hives. His legs are peppered with tiny light

> red, raised speckles. They don't have heads like pimples. I assume they

itch

> some, as he scratches them some and then there will be some scratch

lines

> and a few drops of blood. If I put long pants on him, he doesn't

scratch.

> I'm thinking it's an allergic reaction either to something he's eating

or an

> herbal supplement because he has an ouline of raised bumps around his

anal

> opening and some rash on his diaper area.

> >

> > Thanks for all input!

> >

> > Blessings!

> >

> >

>

>

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 8.5.392 / Virus Database: 270.13.44/2283 - Release Date:

08/05/09

> 05:57:00

>

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.392 / Virus Database: 270.13.45/2285 - Release Date: 08/06/09

05:57:00

[Guest guest]

Yes,

you also want his FreeT3, FreeT4 and thyroid antibodies tested.

He

is not truly hypothyroid unless his T4 levels are off. An elevated TSH is just

that, it is not true hypothyroidism.

You

want to be careful treating just the TSH, when the child is truly not

hypothyroid. This is why we have worked hard to get Osiyyah’s TSH to a

good number, because he has never truly been hypothyroid. His doctor didn’t

want to put him on thyroid meds anyways, so we had nothing to lose to try to get

his TSH down. And it has worked.

By

just treating the TSH, you could throw the child into hyperthyroidism which is much

harder to deal with than hypothyroidism.

I

would INSIST that you get ’s zinc levels tested. If my brother had

a doctor that was very set in his ways and wasn’t willing to work with us,

well he’d get quite an earful from us! And then we’d find another

doctor. But, I can understand if that is not easy to do. So, I would just be

very nice but insistent and pointed on what you want and don’t want.

Qadoshyah

Book

- Down Syndrome: What You CAN Do

www.gotdownsyndrome.net/Book/whatyoucandobook.html

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Leave

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From: DownSyndromeInfoExchange

[mailto:DownSyndromeInfoExchange ] On Behalf Of ninepreciousgiftsfromgod

Sent: Wednesday, August 05, 2009 3:17 PM

To: DownSyndromeInfoExchange

Subject: [DownSyndromeInfoExchange] Re: natural thyroid remedies?; got

TSH number!

Okay, we got the TSH number for : 5.72

The nurse said the acceptable scale is 02.7-4.20

But aren't there supposed to be other numbers? Besides the TSH? Aren't there

supposed to be 3 different numbers? And looking at all of them in connection

with each other means something?

I used to give 30 mg. of zinc daily, but in the last month or so, I got

lax with that. I gave it to him last night, though, and you can bet I will give

it faithfully! I'm thinking it would be difficult to persuade the ped to get

's zinc level tested. He is the type who is always right and doesn't

yield.

How much coconut oil should I give him? And how do I give it to him?

I mix a tsp. in with cooked rice or put some on a baked potato from time to

time, but it is probably not enough or often enough to make a difference.

Now, we have an appointment with the ped on the 13th to " discuss "

's " hypothryoidism. " According to the nurse, the doctor said

that untreated hypothyroidism can have serious consequences. Yet, has

NONE of the symptoms of hypothyroidism! And when you give the body synthetic

thyroid hormone, doesn't it cause the thyroid to become dependent on the synthetic

hormone and produce even less on its own?

How am I going to discuss this with a doctor who has already made up his mind

and isn't going to budge from his opinion which was formed back in med school?!

And I am just a mom!

Help!

> >

> > Just from what you describe the rash sounds like Keratosis pilaris.

> > http://www.mayoclinic.com/health/keratosis-pilaris/DS00769

> >

> > I have it and My has it. I have found " relief "

from it with

> regular exfoliation and then a nice food grade oil. Olive, Peanut, grape

> seed. Usually they don't recommend this exfoliation.. But I have had it

ALL

> my life.. and it works for me. Esp on the backs of my upper arms. It helps

> keep those unblocked.. which is why dry air makes it worse. I did not like

> the acid products. Did not work well for me.

> >

> > I don't itch. But some can. I have had them itch.. but it was more of

a

> dry skin thing for me. Its not like " poison ivy " itching. So..

your little

> guy is likely not bothered by it at all. Again moisturize.

> >

> > Sam has it on the backs of her arms like me and on her calves. I

don't

> scrub her much cause I can't tell how much is too much.. cause I am not

the

> one feeling it. But I do use a wash rag on those areas.. and then

> moisturized.

> >

> >

> > The thyroid.. well I would hear what the doc has to say.. but I never

> heard of Hormone replacement per say. Thyroid Hormone may have to be

given..

> but not Hormone Replacement as we tend to think of it - like at Menopause.

> >

> > Anyhow.. depending on what the issue is you could look into getting

him

> some natural iodine in the form of Kelp. But I would look to see what the

> dosage is for a youngin. I take kelp for my thyroid. I have thyroid

> antibodies. Autoimmune. Eventually I will end up on Synthroid or something

> like it. Both my Granny's had Thyroid issues - One hyper the other Hypo.

My

> father has it and is on synthroid. Ah.. yeah.. two cousins too. Really

runs

> in my family. My mom has a cyst on hers as well.

> >

> > Natural iodine like from Kelp ( think seaweed) helps support the

Thyroid.

> Which is why I take it. But again. look around and talk to a Herbal

> Pharmacist and maybe they can help. Might be worth the long distance call

> > Herbs & More

> > 266 Main Street,

> > Florence, KY 41042

> >

> > Sorry if I sound really weird.. its late and I am Sleepy.

> >

> > Steph

> >

> >

> >

> >

> >

> > [DownSyndromeInfoExchange] natural thyroid remedies?

> >

> >

> > Took (almost 4) for routine bloodwork, CBC and thyroid, last

Thurs.

> It was traumatic for me and him (stick needle in, fish and fish for vein,

> finally withdraw needle; try other arm, fish and fish again, finally find

> vein)... I hate putting him through that!

> >

> > So, today my husband took a call from a nurse at 's ped saying

that

> his numbers were a little higher than last time and the ped wants him on

> hormone replacement and then have him re-tested before his scheduled check

> up in Sept. WAIT A MINUTE!!! Last Feb./Mar. his numbers were

" boderline " ,

> now they are a " little higher " ... they didn't even tell us what

his numbers

> were!! We're going to call and find out. But while had trouble

> gaining weight his first few months of life and gained ever so slowly his

> 1st year and even his 2nd year, he has picked up beautifully in the past 1

> 1/2 years! He's 37 in. tall and 32 lbs., which puts him at about 80% for

> height and 50% for weight on the DS chart. (He used to be at about 50% for

> height and about 7-10% for weight.) And that is in spite of his

uncorrected

> CHD! His doctors have raved about how well he is doing. He is active and

> making progress in all areas of development. Apparently, " slightly

high "

> numbers are not adversly affecting him in any way!

> >

> > And if he does have a sluggish thyroid, I would try natural remedies,

not

> hormone replacement! I remember that Qadoshyah's little brother had

> significant thyroid trouble as an infant, and that they have used natural

> remedies, and his numbers came within the normal range and have remained

> there. What I don't remember is what they used. What supplement(s) can I

> give to help his thyroid do its job better?

> >

> > BTW, has a strange rash all over his legs, but I don't know

that it

> is related to thyroid in any way. There's eczema in our family, but this

> doesn't look like eczema or hives. His legs are peppered with tiny light

> red, raised speckles. They don't have heads like pimples. I assume they

itch

> some, as he scratches them some and then there will be some scratch lines

> and a few drops of blood. If I put long pants on him, he doesn't scratch.

> I'm thinking it's an allergic reaction either to something he's eating or

an

> herbal supplement because he has an ouline of raised bumps around his anal

> opening and some rash on his diaper area.

> >

> > Thanks for all input!

> >

> > Blessings!

> >

> >

>

>

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 8.5.392 / Virus Database: 270.13.44/2283 - Release Date: 08/05/09

> 05:57:00

>

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.392 / Virus Database: 270.13.44/2283 - Release Date: 08/05/09

05:57:00

[Guest guest]

I did cook w/ it. I did french fries, and fried squash. It was really light It's just so expensive for something like that. Never thought of using it as butter.. I'll have to try that.

deb

[DownSyndromeInfoEx change] natural thyroid remedies?> > > > > > Took (almost 4) for routine bloodwork, CBC and thyroid, last Thurs.> It was traumatic for me and him (stick needle in, fish and fish for vein,> finally withdraw needle; try other arm, fish and fish again, finally find> vein)... I hate putting him through that!> > > > So, today my husband took a call from a nurse at 's ped saying that> his numbers were a little higher than last time and the ped wants him on> hormone replacement and then have him re-tested before his scheduled check> up in Sept. WAIT A MINUTE!!! Last Feb./Mar. his numbers were "boderline",> now they are a "little higher"... they didn't even tell us what his numbers> were!! We're going to call and find out. But while had trouble> gaining weight his first few months of life and gained ever so slowly his> 1st year and even his 2nd year, he has picked up beautifully in the past 1> 1/2 years! He's 37 in. tall and 32 lbs., which puts him at about 80% for> height and 50% for weight on the DS chart. (He used to be at about 50% for> height and about 7-10% for weight.) And that is in spite of his uncorrected> CHD! His doctors have raved about how well he is doing. He is active and> making progress in all areas of development. Apparently, "slightly high"> numbers are not adversly affecting him in any way! > > > > And if he does have a sluggish thyroid, I would try natural remedies, not> hormone replacement! I remember that Qadoshyah's little brother had> significant thyroid trouble as an infant, and that they have used natural> remedies, and his numbers came within the normal range and have remained> there. What I don't remember is what they used. What supplement(s) can I> give to help his thyroid do its job better?> > > > BTW, has a strange rash all over his legs, but I don't know that it> is related to thyroid in any way. There's eczema in our family, but this> doesn't look like eczema or hives. His legs are peppered with tiny light> red, raised speckles. They don't have heads like pimples. I assume they itch> some, as he scratches them some and then there will be some scratch lines> and a few drops of blood. If I put long pants on him, he doesn't scratch.> I'm thinking it's an allergic reaction either to something he's eating or an> herbal supplement because he has an ouline of raised bumps around his anal> opening and some rash on his diaper area. > > > > Thanks for all input!> > > > Blessings!> > > >> > > > No virus found in this incoming message.> Checked by AVG - www.avg.com> Version: 8.5.392 / Virus Database: 270.13.44/2283 - Release Date: 08/05/09> 05:57:00>