Re: Do flares = no chance of remission?

[Guest guest]

Hi Steve,

I haven't had any alcohol in a few years now. I flare all of the time it seems.

I think it is different for everyone. There is a saying something like " Live

healthy, die anyways " . Not sure if I got it correctly, but you get the meaning.

---------------------------------

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[Guest guest]

You get chemotherapy because of Still's disease?

> I must admit I began to be positive but now I am being realistic

when I say

> I will never achieve remission again.

>

> I just keep flaring, and it's driving me to the point of suicide -

> seriously!

>

> My Rheumy says its nothing I have done wrong to make me flare but

surely

> some people on here know whether that is true or not? You see my

chemo was

> every 2 weeks .. then they took it to 4 weeks and I flared after 2

weeks and

> 2 days. They took it back to 2 weeks until things were down again,

and then

> tried for 3 and a half weeks - to which I managed. Then they took

it to 4

> weeks again, and 2 weeks 2 days after last chemo - bang, flared

again!

>

> I must admit when I feel good I go out drinking, and often stay

drinking

> until 1 in the morning, typing to friends on the internet. This is

what I

> was doing prior to coming out of remission. Even the average Joe

would say

> surely alcohol has something to do with flaring - what do you all

think. Has

> this ever happened to you?

>

> Now my next treatment isnt for another week .. I just can't see

any light at

> the end of the tunnel. The 2 week chemo seems to be needed just to

keep

> things in control - I dont want chemo every 2 weeks as i dont have

a life ..

> I get about 6 days of feeling ok and then its back for more chemo.

>

> Steve

[Guest guest]

yes

Re: Do flares = no chance of remission?

You get chemotherapy because of Still's disease?

> I must admit I began to be positive but now I am being realistic

when I say

> I will never achieve remission again.

>

> I just keep flaring, and it's driving me to the point of suicide -

> seriously!

>

> My Rheumy says its nothing I have done wrong to make me flare but

surely

> some people on here know whether that is true or not? You see my

chemo was

> every 2 weeks .. then they took it to 4 weeks and I flared after 2

weeks and

> 2 days. They took it back to 2 weeks until things were down again,

and then

> tried for 3 and a half weeks - to which I managed. Then they took

it to 4

> weeks again, and 2 weeks 2 days after last chemo - bang, flared

again!

>

> I must admit when I feel good I go out drinking, and often stay

drinking

> until 1 in the morning, typing to friends on the internet. This is

what I

> was doing prior to coming out of remission. Even the average Joe

would say

> surely alcohol has something to do with flaring - what do you all

think. Has

> this ever happened to you?

>

> Now my next treatment isnt for another week .. I just can't see

any light at

> the end of the tunnel. The 2 week chemo seems to be needed just to

keep

> things in control - I dont want chemo every 2 weeks as i dont have

a life ..

> I get about 6 days of feeling ok and then its back for more chemo.

>

> Steve

Visit the Still's Disease Message Board

http://disc.server.com/Indices/148599.html

The materials and information contained in this message are not intended

to replace the services of a trained health professional or to be a

substitute for medical advice of physicians and/or other health care

professionals. The International Still's Disease Foundation is not engaged

in rendering medical or professional medical services. You should consult

your physician on specific medical questions, particularly in matters

requiring diagnosis or medical attention. The International Still's Disease

Foundation makes no representations or warranties with respect to any

treatment, action, application, medication or preparation by any person

following the information offered or provided within this support form.

ion by any person following the information offered or provided within

this support form.

[Guest guest]

I'm sure other people have chemo as well ... my Doc tells me not to call it

chemo but its the same thing really ... just aiming to suppress my immune

system.

Still .. it was every week .. now its every 4 weeks. Eventually I will be

off it and move to tablet form of MTX

Steve

Re: Do flares = no chance of remission?

You get chemotherapy because of Still's disease?

> I must admit I began to be positive but now I am being realistic

when I say

> I will never achieve remission again.

>

> I just keep flaring, and it's driving me to the point of suicide -

> seriously!

>

> My Rheumy says its nothing I have done wrong to make me flare but

surely

> some people on here know whether that is true or not? You see my

chemo was

> every 2 weeks .. then they took it to 4 weeks and I flared after 2

weeks and

> 2 days. They took it back to 2 weeks until things were down again,

and then

> tried for 3 and a half weeks - to which I managed. Then they took

it to 4

> weeks again, and 2 weeks 2 days after last chemo - bang, flared

again!

>

> I must admit when I feel good I go out drinking, and often stay

drinking

> until 1 in the morning, typing to friends on the internet. This is

what I

> was doing prior to coming out of remission. Even the average Joe

would say

> surely alcohol has something to do with flaring - what do you all

think. Has

> this ever happened to you?

>

> Now my next treatment isnt for another week .. I just can't see

any light at

> the end of the tunnel. The 2 week chemo seems to be needed just to

keep

> things in control - I dont want chemo every 2 weeks as i dont have

a life ..

> I get about 6 days of feeling ok and then its back for more chemo.

>

> Steve

Visit the Still's Disease Message Board

http://disc.server.com/Indices/148599.html

The materials and information contained in this message are not intended

to replace the services of a trained health professional or to be a

substitute for medical advice of physicians and/or other health care

professionals. The International Still's Disease Foundation is not engaged

in rendering medical or professional medical services. You should consult

your physician on specific medical questions, particularly in matters

requiring diagnosis or medical attention. The International Still's

Disease

Foundation makes no representations or warranties with respect to any

treatment, action, application, medication or preparation by any person

following the information offered or provided within this support form.

ion by any person following the information offered or provided within

this support form.

[Guest guest]

FYI: Methotrexate is a chemo drug, they just use it in lower doses for

Rheumatoid illnesses.

Lynn

-- Re: Do flares = no chance of remission?

You get chemotherapy because of Still's disease?

> I must admit I began to be positive but now I am being realistic

when I say

> I will never achieve remission again.

>

> I just keep flaring, and it's driving me to the point of suicide -

> seriously!

>

> My Rheumy says its nothing I have done wrong to make me flare but

surely

> some people on here know whether that is true or not? You see my

chemo was

> every 2 weeks .. then they took it to 4 weeks and I flared after 2

weeks and

> 2 days. They took it back to 2 weeks until things were down again,

and then

> tried for 3 and a half weeks - to which I managed. Then they took

it to 4

> weeks again, and 2 weeks 2 days after last chemo - bang, flared

again!

>

> I must admit when I feel good I go out drinking, and often stay

drinking

> until 1 in the morning, typing to friends on the internet. This is

what I

> was doing prior to coming out of remission. Even the average Joe

would say

> surely alcohol has something to do with flaring - what do you all

think. Has

> this ever happened to you?

>

> Now my next treatment isnt for another week .. I just can't see

any light at

> the end of the tunnel. The 2 week chemo seems to be needed just to

keep

> things in control - I dont want chemo every 2 weeks as i dont have

a life ..

> I get about 6 days of feeling ok and then its back for more chemo.

>

> Steve

Visit the Still's Disease Message Board

http://disc.server.com/Indices/148599.html

The materials and information contained in this message are not intended

to replace the services of a trained health professional or to be a

substitute for medical advice of physicians and/or other health care

professionals. The International Still's Disease Foundation is not engaged

in rendering medical or professional medical services. You should consult

your physician on specific medical questions, particularly in matters

requiring diagnosis or medical attention. The International Still's

Disease

Foundation makes no representations or warranties with respect to any

treatment, action, application, medication or preparation by any person

following the information offered or provided within this support form.

ion by any person following the information offered or provided within

this support form.

[Guest guest]

Oh okay so you take methotrexate by infusion or IV? Is there a

reason that you don't do injections? I knew Mtx is a cancer medicine

but I didn't know anyone called it chemo. That's what threw me

off.

> > I must admit I began to be positive but now I am being

realistic

> when I say

> > I will never achieve remission again.

> >

> > I just keep flaring, and it's driving me to the point of

suicide -

> > seriously!

> >

> > My Rheumy says its nothing I have done wrong to make me

flare but

> surely

> > some people on here know whether that is true or not? You

see my

> chemo was

> > every 2 weeks .. then they took it to 4 weeks and I flared

after 2

> weeks and

> > 2 days. They took it back to 2 weeks until things were down

again,

> and then

> > tried for 3 and a half weeks - to which I managed. Then they

took

> it to 4

> > weeks again, and 2 weeks 2 days after last chemo - bang,

flared

> again!

> >

> > I must admit when I feel good I go out drinking, and often

stay

> drinking

> > until 1 in the morning, typing to friends on the internet.

This is

> what I

> > was doing prior to coming out of remission. Even the average

Joe

> would say

> > surely alcohol has something to do with flaring - what do

you all

> think. Has

> > this ever happened to you?

> >

> > Now my next treatment isnt for another week .. I just can't

see

> any light at

> > the end of the tunnel. The 2 week chemo seems to be needed

just to

> keep

> > things in control - I dont want chemo every 2 weeks as i

dont have

> a life ..

> > I get about 6 days of feeling ok and then its back for more

chemo.

> >

> > Steve

>

>

>

>

>

>

>

>

> Visit the Still's Disease Message Board

> http://disc.server.com/Indices/148599.html

>

> The materials and information contained in this message are

not intended

> to replace the services of a trained health professional or to

be a

> substitute for medical advice of physicians and/or other health

care

> professionals. The International Still's Disease Foundation is

not engaged

> in rendering medical or professional medical services. You

should consult

> your physician on specific medical questions, particularly in

matters

> requiring diagnosis or medical attention. The International

Still's

> Disease

> Foundation makes no representations or warranties with respect

to any

> treatment, action, application, medication or preparation by any

person

> following the information offered or provided within this

support form.

>

> ion by any person following the information offered or

provided within

> this support form.

>

>

>

>

>