diagnosis

[Guest guest]

Beth wrote:

> I had a strange experience wanting a diagnosis, I went to a Dr

> Ruttenberg in PA. He translated Hans Aspergers work in the 60's to

> english and is considered an expert on aspergers. He told me I

> couldn't be aspergers because I kept eye contact with him, I told

> him I didn't keep eye contact, he just thought I did, I was looking

> at his eyebrows and his nose not his eyes. I play NT very well, over

> the years I've learned to fake it. He found this very hard to accept

> and deal with, he normally works with children not adults, that have

> learned to deal in the real world.

This is a problem for many adult Aspies seeking a dx; that many doctors

don't understand the concept of compensation since they are used to

diagnosing children. We really do need experts that are specialised in adult

AS - preferrably some that are Aspies themselves.

Ken:

> Yeah, the compensation thing is interesting. Through many hard

lessons, I've learned to emulate NTs to a pretty good degree. Does

that me a trained monkey, or am I Aspie that's partially converted to NT?

Very good question!

Beth:

> He told me I couldn't be aspergers, but then called my therapist

> and told her I was, but not to tell me, becuase I fake NT really well

> and he didn't want me to stop compensating, with a true diagnoses.

:-O How insulting! Is it even legal to withold information from an adult?

Beth:

> Anyway to make a long story short she told me the truth so I do

> know that I have Aspergers.

Great! :-)

Beth:

> Another thing that I do is I get feelings and emotions from people in

> color and smell form, especially if I am emotionally close to them ie

> friends and family, I don't sence their emotions in the normal way,

> my body compensates for its deficites.

That is either synesthesia, clairvoyance or both. It seems to be more common

among neuro-atypical and other sensitive people.

http://www.creative-minds.info/Lorelei/Synesthesia.htm

Beth:

> I believe that most of us

> have a very well tuned sixth sence, and we can feel things that other

> people can't in ways that they can't which leads to super sensitivity

> in other issues.

Precisely!

Beth:

> I also can see and talk to " ghosts " , people that

> have passed on, my son did this also when he was 2 he used to lock

> himself in his room and talk with and play with my grandfather, who

> died, a month before Jerry was born.

Cool! That is a form of astral clarvoyance.

Beth:

> I also read tarot cards and

> palms, I am told I'm very accurate with both. I believe that I have

> fine tuned my sixth sence to make up for areas that I am not good at,

> like reading people by looking at them, or telling whether they are

> lying to me or not or manimpulating me.

Me too. I'm a bit clairsentient. I don't see things but I feel the vibes

from everything and everyone. My extranseory perceptions work best the more

relaxed I am. I even want to speculate that some of us are born to operate

more on an intuitive level than on the (lower-frequency)

social/emotional/verbal level, and that if we are too stressed out to be

able to pick up these subtler impressions (or if we are discouraged from

trusting them) we are both robbed of our own language, as well as lacking

the language of NTs and thus effectively blind, deaf and mute in social

situations. :-(

Ken:

I remember that great Sellers movie, Being There, where he plays

what might be an Aspie, who is very pure and innocent, and people keep

interpreting his simple statements as great wisdom because of how they

view him. He kept saying, " I like to watch, " as in TV, which is where

he learned to how to behave, by watching actors do it.

I suspect that Sellers may have been an Aspie IRL too. Just as I

suspect Hoffman. I don't think it's a coincidence which roles actors

find themselves attracted to.

Inger

[Guest guest]

I have been able to learn only the bare minimum of " NTisms, " never

enough so I could outright mimic. But a problem I have had with

doctors and therapists is with my physical apearance. I have been

told (I quote) that I am too 'cute' and 'hip-looking' to be

sick. ??!! As if everyone who has a mental disorder neglects

themselves physically. And this despite the fact that I stare down at

my lap when meeting with them because I can't make eye contact and

explain all my other symptoms very clearly. They have a hard time

getting past the outer facade, and these are doctors! I was finally

able to get diagnosed with social phobia and anxiety so I could at

least get the disability payments I so desperately needed. Sounds

like getting an AS diagnosis (if I can even find a doctor) is going

to be a tough battle.

Kitty

> > > > >I have a small book written that I will share with any one

> > that

> > > cares

> > > > to know.

> > > > >Get the facts togehter, bring data to provide, and pray

> > > >

> > > > Please tell me more.......

> > > > Rainbow

[Guest guest]

I have been able to learn only the bare minimum of " NTisms, " never

enough so I could outright mimic. But a problem I have had with

doctors and therapists is with my physical apearance. I have been

told (I quote) that I am too 'cute' and 'hip-looking' to be

sick. ??!! As if everyone who has a mental disorder neglects

themselves physically. And this despite the fact that I stare down at

my lap when meeting with them because I can't make eye contact and

explain all my other symptoms very clearly. They have a hard time

getting past the outer facade, and these are doctors! I was finally

able to get diagnosed with social phobia and anxiety so I could at

least get the disability payments I so desperately needed. Sounds

like getting an AS diagnosis (if I can even find a doctor) is going

to be a tough battle.

Kitty

> > > > >I have a small book written that I will share with any one

> > that

> > > cares

> > > > to know.

> > > > >Get the facts togehter, bring data to provide, and pray

> > > >

> > > > Please tell me more.......

> > > > Rainbow

[Guest guest]

I have been able to learn only the bare minimum of " NTisms, " never

enough so I could outright mimic. But a problem I have had with

doctors and therapists is with my physical apearance. I have been

told (I quote) that I am too 'cute' and 'hip-looking' to be

sick. ??!! As if everyone who has a mental disorder neglects

themselves physically. And this despite the fact that I stare down at

my lap when meeting with them because I can't make eye contact and

explain all my other symptoms very clearly. They have a hard time

getting past the outer facade, and these are doctors! I was finally

able to get diagnosed with social phobia and anxiety so I could at

least get the disability payments I so desperately needed. Sounds

like getting an AS diagnosis (if I can even find a doctor) is going

to be a tough battle.

Kitty

> > > > >I have a small book written that I will share with any one

> > that

> > > cares

> > > > to know.

> > > > >Get the facts togehter, bring data to provide, and pray

> > > >

> > > > Please tell me more.......

> > > > Rainbow

[Guest guest]

Hi Barbara

If you go to your Consultant Community Paediatrician and someone from

their Psychology Service armed with an independent diagnosis (ADI ®

and ADOS) and ask them to write a letter to the Education Authority I

believe they would have to reconfirm in writing he has that diagnosis.

If they fail to do so, they could be guilty of professional misconduct.

Dr Fiona of the Autism Research Centre (ARC) in Cambridge is a

child consultant psychologist and specialist in Autism, who works with

Simon Baron Cohen. The assessments she carries out are The ADOS and

the ADI ® and are recognized by the World Health Organization

under the DSM IV. If this diagnostic tool is used, it is irrefutable

as it is the 'gold standard' for autism diagnosis. Fiona 's

diagnosis was sufficient for our PCT (Cambridgeshire) She will travel

to carry out the diagnosis. Perhaps there is someone more local who

can do this same test?

Carol Stott who has worked with the Thoughtful House team and also

used to work at ARC also undertakes this diagnosis.

- anyone have contact details?

Hth

Rhona

> Dear Parents,again I need your advice.My son who is 3 years old has

> been given a diagnosis(Autism)in Italy but here in Portsmouth they

> still refuse to diagnose him saying that they have to wait until hes

> 4.They ignored the diagnosis saying also that my son lives in the UK

> and not in Italy so they are the one that have to give a diagnosis.Are

> they right?Unfortunately I dont know the sistem and very often have the

> feeling that they take advantage of this.Thanks again for your replies

> that are very helpful.God bless.

>

[Guest guest]

Hello all! My son wolfgang is a 3 yo boy who has issues with speaking and social

skills. I have been trying to get him diagnosed for autism to his fathers

dismay. I have been going through a custody battle, so the lawyers suggested I

have his approval. His father ran away with him at 14 months for the next 8

months. When I finally found him he only growled to communicate. At this time he

was nearly 3. Now he is nearly 4 and with alot of time and supervision, he can

communicate with words somewhat. If he is upset about something though, he

either hits his head on something or bites himself. He now can recognize and

write all his abc's, tell time, write, wolf, mom, dad, and count to 20. Yet if a

stranger appoaches him he will hide and scream. If his baby brother cries, he

jumps in my lap covering his ears screaming. If the phone rings, he does the

same. Am I just being paranoid, or do I truly have reason to worry. I have

another son that has adhd that used to hurt himself, but not like wolfgang. I am

just looking for a bit of input from other mothers that have diagnosed children.

Can you help me??

[Guest guest]

Sounds like you have a reson to worry.Even though it sounds like what your ex did was traumatic that is not "normal" behavior.I would go to a neurologist if I were you to get a diagnosis.Actually, the fact that he screams when strangers come near, as strange as it sounds, is a good thing.My son despises children but he would get in a car with the cable guy!!!Jen

-- diagnosis

Hello all! My son wolfgang is a 3 yo boy who has issues with speaking and social skills. I have been trying to get him diagnosed for autism to his fathers dismay. I have been going through a custody battle, so the lawyers suggested I have his approval. His father ran away with him at 14 months for the next 8 months. When I finally found him he only growled to communicate. At this time he was nearly 3. Now he is nearly 4 and with alot of time and supervision, he can communicate with words somewhat. If he is upset about something though, he either hits his head on something or bites himself. He now can recognize and write all his abc's, tell time, write, wolf, mom, dad, and count to 20. Yet if a stranger appoaches him he will hide and scream. If his baby brother cries, he jumps in my lap covering his ears screaming. If the phone rings, he does the same. Am I just being paranoid, or do I truly have reason to worry. I have another son that has adhd that used to hurt himself, but not like wolfgang. I am just looking for a bit of input from other mothers that have diagnosed children. Can you help me??

------------------------------------

[Guest guest]

At 3 years old my son did the same things I myself did not want to believe anything was wrong I said he was just behind and developed differantly then others.His dad and I then took him to a local play group where I opened my eyes and realized he is not like other children.The others would play together pretend play with mommy and daddy and my lil guy would just set there doing the same puzzle over and over in a corner or lining up legos with dad.Never spoke to any of the children even had mom or dad set with him when he ate snack and did crafts.The director suggested a parent home program.When he was evaluated for this they had asked for speach therapy through united cerebral palsey.Even after speach therapy he was still behind.Still no imagination and still no play.After going from dr to dr allof them said the same thing PDD-NOS (undiagnosed autism) due to

the fact he was to young to take some sort of psychological test.He is now 6 and with the help of wrap around services he communicates very well now and is able to play.he still jumps at loud noises and rocks terribly places everything in his mouth but he is what society views as"normal".I think its a bunch of bull someone is telling you to get parental permission it is not a custody issue its a health issue and if he was dibetic and needed insulin you wouldnt have to get dads permission to take him to the er if he fell and broke his leg you wouldnt need permission to get it casted.A medical decision is just that medical and ide take him anyway if I were you the longer you wait the worse it could get.Ask your pediatrician to refer you to a neurologist if the courts say anything bad then they obviously dont see your a caring mother who is seeking help.

Subject: Re: diagnosisTo: AutismBehaviorProblems Date: Friday, March 13, 2009, 8:23 PM

A pediatric neurologist, or a developmental pediatrician is the way to go to get the diagnosis. Yes, I would be concerned as well. That is not NT 4 yr old behavior...is he getting any intervention now??? OT, anything? He obviously has issues with self injury, which is usually an Autism trait...especially when it starts at a very young age (I consider 3-4 still very young)...He needs some therapy, and I know you know this....I would be happy to give you some suggestions offline... ljdjd1234yahoo (DOT) com

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From: janisrealm <janisrealmyahoo (DOT) com>To: AutismBehaviorProbl emsyahoogroups (DOT) comSent: Friday, March 13, 2009 4:32:11 PMSubject: diagnosis

Hello all! My son wolfgang is a 3 yo boy who has issues with speaking and social skills. I have been trying to get him diagnosed for autism to his fathers dismay. I have been going through a custody battle, so the lawyers suggested I have his approval. His father ran away with him at 14 months for the next 8 months. When I finally found him he only growled to communicate. At this time he was nearly 3. Now he is nearly 4 and with alot of time and supervision, he can communicate with words somewhat. If he is upset about something though, he either hits his head on something or bites himself. He now can recognize and write all his abc's, tell time, write, wolf, mom, dad, and count to 20. Yet if a stranger appoaches him he will hide and scream. If his baby brother cries, he jumps in my lap covering his ears screaming. If the phone rings, he does the same. Am I just being paranoid, or do I truly have reason to worry. I have another son that has adhd that

used to hurt himself, but not like wolfgang. I am just looking for a bit of input from other mothers that have diagnosed children. Can you help me??

[Guest guest]

It sounds like he has been tramatized. Do you know what had happened with him when he was with his father? That might have a lot to do with it. Lois (:

diagnosis