diagnosis

[Guest guest]

Well, *there's* good news! What dr. diagnosed him?

Annie, who loves ya annie@...

--

" Don't worry about the world coming to an end today. It's already

tomorrow in Australia. " Schultz

[Guest guest]

Sometimes just having a "label" makes us all feel better. A couple years ago I had continual diahrrea -- no cause, just IBS said the doctor. Eventually I found out I had Celiac Disease - acute allergy to gluten (found in wheat, barley, rye, oats, etc.). Despite the restrictive diet, I felt better because I knew what was wrong. Now that A.J. has a diagnosis, AS, we can fight to get him to be the best A.J. he can be. Without knowing we can't fight -- it's like tilting with windmills.

Frances

-----Original Message-----From: Dana Sent: Tuesday, August 26, 2003 5:05 PMTo: autism-aspergers Subject: DiagnosisFinally I have gotten a MD (child Psych) to give me concrete diagnosis. We have MRI'd, EEG'd, tested , filled out questionares to death. has ADHD, Aspergers, and sensory intergration problems. Why has it taken 6 years 3 million docs ,tests, forms etc for someone to finally diagnose him? I feel like this is such a release as it makes sense. In the past we have had bi-polar, ODD, BD and Tourettes as diagnosises. Finally we found someone who listened! Tourettes I always felt was wrong (can we say self stimming) and all the other ones I questioned. I still don't totally agree with the ADHD as I think his constant movement is another way of self stimming, but I am not willing to medicate with stimulants any more for this so its a moot point anyway. I can't beleive I'm happy to say my son has a diagnosis of AS, but gosh it makes more sense than the others. is even happy because there is a concrete reason as to why he feels and acts the way he does and it finally makes sense to him. Dana ('s Mom, 10 yo in NM)

[Guest guest]

Hi Sherry,

My name is Steve also from England. Although and I do not have

any children as of yet. I am sure if we do in the future that one

will have some form of Autism.

I myself have Aspergers Syndrome (DXd at 29). That was 29 years too

late for my Mother who always was convinced I had Autism and tried

her best. However in the 1970s you were either Normal or Abnormal,

there was no grey area. The so called professionals wrote me off as

just being retarded. They said I would not be able to read or write

and would be dependant on my parents for the rest of my born days.

As you can see they were wrong. Not only can I read and write. But

I also have made my own web sites. Programmed and gotten

Distinctions at College.

I was one of the lucky ones as I got out of Special School at 11 and

actually made it back into mainstream. Of course there was no

support in those days and I got bullied and not just off the pupils.

As you can see I have progressed quite well that is despite having no

help off the so called Professionals. It was an absolute fluke that

I got my DX at 29. The Psychiatrist is no longer working for the

benefit of decent citizens. He has been assigned to Prisons to help

them. So again it appears in Society that the more you do the wrong

the better help you get.

Mom suspected Autism due to my lack of eye contact and motor skills

as soon as she could look it up. However she was called neurotic and

her books were ripped up infront of her face. Mom never had groups

like this to turn to. She had to go it alone. The fight was not

just with the professionals, but also my family who were convinced

that a dam good hiding would soon knock me back into shape.

Anyway enough of that I was a Prem Baby. I still have a weak left

eye and I think I got over most of my co-ordinational problems. But

it took quite a few years.

I admire you for striving to get the best help for your Son. You

know AS and Autism were known to the Medical Establishment well

before the 70s. Yet nobody bothered to research until the early 80s.

This country has a lot to answer for. Most of the people in Prison

are probably ADD or AS who just went off the rails cause they were

abandoned by Society and left on the scrap heap.

Take care,

Steve

My Aspergers Groups

http://www.geocities.com/chemerelite

http://clix.to/chemer

[Guest guest]

Hi Steve, Thanks for your reply, you have really hit home just how

life can feel for me sometimes. My Husband and most of my family

also thought I was wrong and he is still finding it hard to come to

terms with. Although he was diagnosed with cerebal palsy himself and

also like you written off! Did you have problems as a child with

being close to family members? Toby is fairly obsessed with me but

he could take or leave his Dad, infact sometimes he can be very nasty

to him! I hope that this is something he will grow out of! I'm sure

that even if your partner do have children with Autism, they will

already have a head start, you will probably make a wonderful life

coach for them as you have inside info. Although Toby has his

ploblems he is a very happy and content little fellow and I would not

want him any other way!

Thanks again for writing and good luck with every thing you do. I

will look up you sites!

Bye, Sherry.

> Hi Sherry,

>

> My name is Steve also from England. Although and I do not

have

> any children as of yet. I am sure if we do in the future that one

> will have some form of Autism.

>

> I myself have Aspergers Syndrome (DXd at 29). That was 29 years

too

> late for my Mother who always was convinced I had Autism and tried

> her best. However in the 1970s you were either Normal or Abnormal,

> there was no grey area. The so called professionals wrote me off

as

> just being retarded. They said I would not be able to read or

write

> and would be dependant on my parents for the rest of my born days.

>

> As you can see they were wrong. Not only can I read and write.

But

> I also have made my own web sites. Programmed and gotten

> Distinctions at College.

>

> I was one of the lucky ones as I got out of Special School at 11

and

> actually made it back into mainstream. Of course there was no

> support in those days and I got bullied and not just off the pupils.

>

> As you can see I have progressed quite well that is despite having

no

> help off the so called Professionals. It was an absolute fluke

that

> I got my DX at 29. The Psychiatrist is no longer working for the

> benefit of decent citizens. He has been assigned to Prisons to

help

> them. So again it appears in Society that the more you do the

wrong

> the better help you get.

>

> Mom suspected Autism due to my lack of eye contact and motor skills

> as soon as she could look it up. However she was called neurotic

and

> her books were ripped up infront of her face. Mom never had groups

> like this to turn to. She had to go it alone. The fight was not

> just with the professionals, but also my family who were convinced

> that a dam good hiding would soon knock me back into shape.

>

> Anyway enough of that I was a Prem Baby. I still have a weak left

> eye and I think I got over most of my co-ordinational problems.

But

> it took quite a few years.

>

> I admire you for striving to get the best help for your Son. You

> know AS and Autism were known to the Medical Establishment well

> before the 70s. Yet nobody bothered to research until the early

80s.

> This country has a lot to answer for. Most of the people in

Prison

> are probably ADD or AS who just went off the rails cause they were

> abandoned by Society and left on the scrap heap.

>

> Take care,

>

> Steve

>

>

>

> My Aspergers Groups

>

> http://www.geocities.com/chemerelite

> http://clix.to/chemer

[Guest guest]

aaaaaah finally? I know that feeling. We've been at it for my

middle son for over 7 years. I suppose because of the overlapping

symptoms and behaviors of alot of these things its difficult

to 'pinpoint' which it is. I often wonder as well with my son's Dx

of Tourette's but have had another child with TS and it is pretty

clear that some of his tics are tourettes and some are self stim.

things. Take a Neuro to give a clear cut on that one.

But...I think the thing I remember when researching ways to help my

son, alot of the comorbid conditions have some very affective

approaches to behavior, school problems etc. Using ALL the

techniques from these can be benificial.

don't have the exactly link.. but the site entitled Tourettes

Syndrome Plus... has excellent info on all those dx's and great

suggestions for dealing with them. Will find the link when I can

*using my son's computer...my line is down in my office*

DES

[Guest guest]

Steve,

Thank you for your email. It is nice to see that there is some hope for our

children. You're story brought tears to my eyes, as a mother you have so

many dreams for your child that when something like Aspergers is handed to

you all those dreams seem to change.

But with your story I know realize that those dreams just need to be

slightly altered. I'm glad that you were able to become a successful adult.

We need people like you in order to know that there is a life for our

children, that can be as normal as possible.

I secretly think that my husband has Aspergers also, I would love for him to

get tested to see. I see a lot of my son in my husband and they have the

same little quirks and mannerisms. From what his family tells me of my

husbands childhood it sounds like they are describing my son.

Sorry my name is by the way and I'm from Canada. My son Logan is 5

years old and was dx'd in Feb 2003 with PDD-NOS and High Functioning

Aspergers. Which has helped us to piece together why my son is the way he

is.

Thanks again for sharing your story you are an inspiration for me at least.

May all your future endeavors be as successful.

LOL

in Ajax

>

>Reply-To: autism-aspergers

>To: <autism-aspergers >

>Subject: Re: diagnosis

>Date: Wed, 27 Aug 2003 09:37:23 +0100

>

>Hi Sherry,

>

>My name is Steve also from England. Although and I do not have

>any children as of yet. I am sure if we do in the future that one

>will have some form of Autism.

>

>I myself have Aspergers Syndrome (DXd at 29). That was 29 years too

>late for my Mother who always was convinced I had Autism and tried

>her best. However in the 1970s you were either Normal or Abnormal,

>there was no grey area. The so called professionals wrote me off as

>just being retarded. They said I would not be able to read or write

>and would be dependant on my parents for the rest of my born days.

>

>As you can see they were wrong. Not only can I read and write. But

>I also have made my own web sites. Programmed and gotten

>Distinctions at College.

>

>I was one of the lucky ones as I got out of Special School at 11 and

>actually made it back into mainstream. Of course there was no

>support in those days and I got bullied and not just off the pupils.

>

>As you can see I have progressed quite well that is despite having no

>help off the so called Professionals. It was an absolute fluke that

>I got my DX at 29. The Psychiatrist is no longer working for the

>benefit of decent citizens. He has been assigned to Prisons to help

>them. So again it appears in Society that the more you do the wrong

>the better help you get.

>

>Mom suspected Autism due to my lack of eye contact and motor skills

>as soon as she could look it up. However she was called neurotic and

>her books were ripped up infront of her face. Mom never had groups

>like this to turn to. She had to go it alone. The fight was not

>just with the professionals, but also my family who were convinced

>that a dam good hiding would soon knock me back into shape.

>

>Anyway enough of that I was a Prem Baby. I still have a weak left

>eye and I think I got over most of my co-ordinational problems. But

>it took quite a few years.

>

>I admire you for striving to get the best help for your Son. You

>know AS and Autism were known to the Medical Establishment well

>before the 70s. Yet nobody bothered to research until the early 80s.

> This country has a lot to answer for. Most of the people in Prison

>are probably ADD or AS who just went off the rails cause they were

>abandoned by Society and left on the scrap heap.

>

>Take care,

>

>Steve

>

>

>

>My Aspergers Groups

>

>http://www.geocities.com/chemerelite

>http://clix.to/chemer

>

>

_________________________________________________________________

STOP MORE SPAM with the new MSN 8 and get 2 months FREE*

http://join.msn.com/?page=features/junkmail

[Guest guest]

I know how ya feel. Some diagnoses feel like a slap in the face.

Among those in my opinion are global developmental delay and

communication disorder. Both of which have been given to dx my boys.

Currently both kids are pdd-nos. I'm still not completely thrilled.

My oldest also has dxes of OCD and ADHD-ADD. Yet the dr put in his

report that his dx was Pdd-nos or HFA. Wheras my youngest is simply

Pdd-nos. I guess he's too young and behind for the HFA. However the

dr says not to use the word autism when describing him! um...ok. In

my own opinion my oldest is most like a person w/ AS. And my youngest

shows alot of classic signs of autism. Anyways I'm glad you got a dx

you were happy with.

a

[Guest guest]

Hi,

I don't know about what its like over there, but I feel that these so

called professionals don't want to diagnose the A word. Is it because

they might have to admit there is something wrong? There are so many

kids with autism now. Why? It would cost a huge amount of money to

research this so perhaps it would be better just not to diagnose!

With that thought I will say goodnight! Sherry.

> I know how ya feel. Some diagnoses feel like a slap in the face.

> Among those in my opinion are global developmental delay and

> communication disorder. Both of which have been given to dx my

boys.

> Currently both kids are pdd-nos. I'm still not completely thrilled.

> My oldest also has dxes of OCD and ADHD-ADD. Yet the dr put in his

> report that his dx was Pdd-nos or HFA. Wheras my youngest is simply

> Pdd-nos. I guess he's too young and behind for the HFA. However the

> dr says not to use the word autism when describing him! um...ok. In

> my own opinion my oldest is most like a person w/ AS. And my

youngest

> shows alot of classic signs of autism. Anyways I'm glad you got a

dx

> you were happy with.

>

> a

[Guest guest]

Kitty:

> I just got back from my monthly group meeting, and I am feeling

disappointed that I'm the only one in the group who doesn't have an

official diagnosis of AS yet. The problem is that no one seems to take

Medicaid. Has anyone else experienced a similar problem in getting a

diagnosis? Any advice?

I know many Aspies have had a problem getting a dx (especially in the UK)

but I'm afraid I don't know how to help.

Inger

[Guest guest]

Kitty:

> I just got back from my monthly group meeting, and I am feeling

disappointed that I'm the only one in the group who doesn't have an

official diagnosis of AS yet. The problem is that no one seems to take

Medicaid. Has anyone else experienced a similar problem in getting a

diagnosis? Any advice?

I know many Aspies have had a problem getting a dx (especially in the UK)

but I'm afraid I don't know how to help.

Inger

[Guest guest]

Kitty:

> I just got back from my monthly group meeting, and I am feeling

disappointed that I'm the only one in the group who doesn't have an

official diagnosis of AS yet. The problem is that no one seems to take

Medicaid. Has anyone else experienced a similar problem in getting a

diagnosis? Any advice?

I know many Aspies have had a problem getting a dx (especially in the UK)

but I'm afraid I don't know how to help.

Inger

[Guest guest]

The NAS site has a wonderful bit about why adults need the diagnosis and ways to approach your doctor.

http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=255 & a=3341 & view=print

I have been very sadly disappointed in the way the American medical community seems to still think of this as a psychiatric and mind only disorder. I am disappointed in how much mental illness is still in the dark ages but even more with Autism. I think it is improtant that we stand up speak up but we do need a professional on our side for no other reason than official validation. I am amzaed at how different it is slowly changing for my son's now that they are officially diagnosed and it is on their school records. For me I struggled with having an official diagnosis too. I was blessed that a doctor told me and had good factual data to prove it to me but he was not a doctor in the US so it was not taken seriously by the doctors here. I am now in the process of trying to get the diagnosis confirmed here and a part of me does not want to. I do not want to fight again or defend all the data I researched and prove all the facts I proved. I have a small book written that I will

share with any one that cares to know. But I already know the organization that is doing my testing (because it is a clinic that works with medicaid) and they were rude and angrily denied my son was autistic though I already knew he was but was waiting for further exams done by the neurologist to get the confirmed diagnosis in writing. If they are too blind to see it in my child I doubt if they will see it in me becuase I do not "look autistic". The counselor that comes to the house to see us is begining to see things that point out in her opinion that I am. She has been working with autism and children for several years, she is going with me to the appointment.

Unfortunatly the only thing I can think of is that one has to sometimes become very honest and humble and willing to admit things that are wrong even if they really do not seem wrong. It is a very degrading process to allow people to come in my house knowing that if they do not understand autism every visit is going to be like a trial to prove I am not crazy but instead really do have a physical and medical condition.

Get the facts togehter, bring data to provide, and pray you find the right person see if there are people trained in autism. Ask the other group memebers who gave them their diagnosis and then go to their specialist.

Good luck.

RuthKitty wrote:

I just got back from my monthly group meeting, and I am feeling disappointed that I'm the only one in the group who doesn't have an official diagnosis of AS yet. The problem is that no one seems to take Medicaid. Has anyone else experienced a similar problem in getting a diagnosis? Any advice?Thanks,KittyFAM Secret Society is a community based on respect, friendship, support and acceptance. Everyone is valued. Don't forget, there are links to other FAM sites on the Links page in the folder marked "Other FAM Sites." __________________________________________________

[Guest guest]

The NAS site has a wonderful bit about why adults need the diagnosis and ways to approach your doctor.

http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=255 & a=3341 & view=print

I have been very sadly disappointed in the way the American medical community seems to still think of this as a psychiatric and mind only disorder. I am disappointed in how much mental illness is still in the dark ages but even more with Autism. I think it is improtant that we stand up speak up but we do need a professional on our side for no other reason than official validation. I am amzaed at how different it is slowly changing for my son's now that they are officially diagnosed and it is on their school records. For me I struggled with having an official diagnosis too. I was blessed that a doctor told me and had good factual data to prove it to me but he was not a doctor in the US so it was not taken seriously by the doctors here. I am now in the process of trying to get the diagnosis confirmed here and a part of me does not want to. I do not want to fight again or defend all the data I researched and prove all the facts I proved. I have a small book written that I will

share with any one that cares to know. But I already know the organization that is doing my testing (because it is a clinic that works with medicaid) and they were rude and angrily denied my son was autistic though I already knew he was but was waiting for further exams done by the neurologist to get the confirmed diagnosis in writing. If they are too blind to see it in my child I doubt if they will see it in me becuase I do not "look autistic". The counselor that comes to the house to see us is begining to see things that point out in her opinion that I am. She has been working with autism and children for several years, she is going with me to the appointment.

Unfortunatly the only thing I can think of is that one has to sometimes become very honest and humble and willing to admit things that are wrong even if they really do not seem wrong. It is a very degrading process to allow people to come in my house knowing that if they do not understand autism every visit is going to be like a trial to prove I am not crazy but instead really do have a physical and medical condition.

Get the facts togehter, bring data to provide, and pray you find the right person see if there are people trained in autism. Ask the other group memebers who gave them their diagnosis and then go to their specialist.

Good luck.

RuthKitty wrote:

I just got back from my monthly group meeting, and I am feeling disappointed that I'm the only one in the group who doesn't have an official diagnosis of AS yet. The problem is that no one seems to take Medicaid. Has anyone else experienced a similar problem in getting a diagnosis? Any advice?Thanks,KittyFAM Secret Society is a community based on respect, friendship, support and acceptance. Everyone is valued. Don't forget, there are links to other FAM sites on the Links page in the folder marked "Other FAM Sites." __________________________________________________

[Guest guest]

>Ruth wrote:

>I am now in the process of trying to get the diagnosis confirmed here

Ruth, would you please be so kind as to let me know how this works out

for you. I also would like to get a diagnosis, if for no other reason

than to be part of a group that needs to be recognized and be made

aware of by our entire community, not so much that I need help, or that

anything could help me but that 'we' need to be made more aware of by

everyone. I live in the United States of America and am on Medicare so

I know that the process will be arduous, tedious, and time consuming. I

can think of nothing better to do to help 'us' all.

>Ruth wrote:

>I have a small book written that I will share with any one that cares

to know.

>Get the facts togehter, bring data to provide, and pray

Please tell me more.......

Rainbow

[Guest guest]

>Ruth wrote:

>I am now in the process of trying to get the diagnosis confirmed here

Ruth, would you please be so kind as to let me know how this works out

for you. I also would like to get a diagnosis, if for no other reason

than to be part of a group that needs to be recognized and be made

aware of by our entire community, not so much that I need help, or that

anything could help me but that 'we' need to be made more aware of by

everyone. I live in the United States of America and am on Medicare so

I know that the process will be arduous, tedious, and time consuming. I

can think of nothing better to do to help 'us' all.

>Ruth wrote:

>I have a small book written that I will share with any one that cares

to know.

>Get the facts togehter, bring data to provide, and pray

Please tell me more.......

Rainbow

[Guest guest]

I think we are in a similar situation, I live in the US and am on

Medicaid. So far I haven't found anything, but I'll let you know if I

find out anything that might help.

Kitty

> >I have a small book written that I will share with any one that

cares

> to know.

> >Get the facts togehter, bring data to provide, and pray

>

> Please tell me more.......

> Rainbow

[Guest guest]

I think we are in a similar situation, I live in the US and am on

Medicaid. So far I haven't found anything, but I'll let you know if I

find out anything that might help.

Kitty

> >I have a small book written that I will share with any one that

cares

> to know.

> >Get the facts togehter, bring data to provide, and pray

>

> Please tell me more.......

> Rainbow

[Guest guest]

I think we are in a similar situation, I live in the US and am on

Medicaid. So far I haven't found anything, but I'll let you know if I

find out anything that might help.

Kitty

> >I have a small book written that I will share with any one that

cares

> to know.

> >Get the facts togehter, bring data to provide, and pray

>

> Please tell me more.......

> Rainbow

[Guest guest]

Hi all,

I had a strange experience wanting a diagnosis, I went to a Dr

Ruttenberg in PA. He translated Hans Aspergers work in the 60's to

english and is considered an expert on aspergers. He told me I

couldn't be aspergers because I kept eye contact with him, I told

him I didn't keep eye contact, he just thought I did, I was looking

at his eyebrows and his nose not his eyes. I play NT very well, over

the years I've learned to fake it. He found this very hard to accept

and deal with, he normally works with children not adults, that have

learned to deal in the real world. He told me I couldn't be

aspergers, but then called my therapist and told her I was, but not

to tell me, becuase I fake NT really well and he didn't want me to

stop compensating, with a true diagnoses. Anyway to make a long

story short she told me the truth so I do know that I have Aspergers.

Another thing that I do is I get feelings and emotions from people in

color and smell form, especially if I am emotionally close to them ie

friends and family, I don't sence their emotions in the normal way,

my body compensates, for its deficites. I believe that most of us

have a very well tuned sixth sence, and we can feel things that other

people can't in ways that they can't which leads to super sensitivity

in other issues. I also can see and talk to " ghosts " , people that

have passed on, my son did this also when he was 2 he used to lock

himself in his room and talk with and play with my grandfather, who

died, a month before Jerry was born. I also read tarot cards and

palms, I am told Im very accurate with both. I believe that I have

fine tuned my sixth sence to make up for areas that I am not good at,

like reading people by looking at them, or telling whether they are

lying to me or not or manimpulating me.

I wanted to let you guys know that even the experts might not be able

to diagnose you correctly, especially if your older and have learned

to compensate. My childs behavioral pediatrican said to me on our

last visit, that if he didn't know our background he would have no

Idea that Jerry and I both had aspergers, that he is a suprizingly

well adjusted child and that I am doing a really good job helping him

adjust, and learn how to act more NT (which Im not sure is such a

good thing, but atleast he might not be taken advantage of)

Beth

> > >I have a small book written that I will share with any one

that

> cares

> > to know.

> > >Get the facts togehter, bring data to provide, and pray

> >

> > Please tell me more.......

> > Rainbow

[Guest guest]

Hi all,

I had a strange experience wanting a diagnosis, I went to a Dr

Ruttenberg in PA. He translated Hans Aspergers work in the 60's to

english and is considered an expert on aspergers. He told me I

couldn't be aspergers because I kept eye contact with him, I told

him I didn't keep eye contact, he just thought I did, I was looking

at his eyebrows and his nose not his eyes. I play NT very well, over

the years I've learned to fake it. He found this very hard to accept

and deal with, he normally works with children not adults, that have

learned to deal in the real world. He told me I couldn't be

aspergers, but then called my therapist and told her I was, but not

to tell me, becuase I fake NT really well and he didn't want me to

stop compensating, with a true diagnoses. Anyway to make a long

story short she told me the truth so I do know that I have Aspergers.

Another thing that I do is I get feelings and emotions from people in

color and smell form, especially if I am emotionally close to them ie

friends and family, I don't sence their emotions in the normal way,

my body compensates, for its deficites. I believe that most of us

have a very well tuned sixth sence, and we can feel things that other

people can't in ways that they can't which leads to super sensitivity

in other issues. I also can see and talk to " ghosts " , people that

have passed on, my son did this also when he was 2 he used to lock

himself in his room and talk with and play with my grandfather, who

died, a month before Jerry was born. I also read tarot cards and

palms, I am told Im very accurate with both. I believe that I have

fine tuned my sixth sence to make up for areas that I am not good at,

like reading people by looking at them, or telling whether they are

lying to me or not or manimpulating me.

I wanted to let you guys know that even the experts might not be able

to diagnose you correctly, especially if your older and have learned

to compensate. My childs behavioral pediatrican said to me on our

last visit, that if he didn't know our background he would have no

Idea that Jerry and I both had aspergers, that he is a suprizingly

well adjusted child and that I am doing a really good job helping him

adjust, and learn how to act more NT (which Im not sure is such a

good thing, but atleast he might not be taken advantage of)

Beth

> > >I have a small book written that I will share with any one

that

> cares

> > to know.

> > >Get the facts togehter, bring data to provide, and pray

> >

> > Please tell me more.......

> > Rainbow

[Guest guest]

Hi all,

I had a strange experience wanting a diagnosis, I went to a Dr

Ruttenberg in PA. He translated Hans Aspergers work in the 60's to

english and is considered an expert on aspergers. He told me I

couldn't be aspergers because I kept eye contact with him, I told

him I didn't keep eye contact, he just thought I did, I was looking

at his eyebrows and his nose not his eyes. I play NT very well, over

the years I've learned to fake it. He found this very hard to accept

and deal with, he normally works with children not adults, that have

learned to deal in the real world. He told me I couldn't be

aspergers, but then called my therapist and told her I was, but not

to tell me, becuase I fake NT really well and he didn't want me to

stop compensating, with a true diagnoses. Anyway to make a long

story short she told me the truth so I do know that I have Aspergers.

Another thing that I do is I get feelings and emotions from people in

color and smell form, especially if I am emotionally close to them ie

friends and family, I don't sence their emotions in the normal way,

my body compensates, for its deficites. I believe that most of us

have a very well tuned sixth sence, and we can feel things that other

people can't in ways that they can't which leads to super sensitivity

in other issues. I also can see and talk to " ghosts " , people that

have passed on, my son did this also when he was 2 he used to lock

himself in his room and talk with and play with my grandfather, who

died, a month before Jerry was born. I also read tarot cards and

palms, I am told Im very accurate with both. I believe that I have

fine tuned my sixth sence to make up for areas that I am not good at,

like reading people by looking at them, or telling whether they are

lying to me or not or manimpulating me.

I wanted to let you guys know that even the experts might not be able

to diagnose you correctly, especially if your older and have learned

to compensate. My childs behavioral pediatrican said to me on our

last visit, that if he didn't know our background he would have no

Idea that Jerry and I both had aspergers, that he is a suprizingly

well adjusted child and that I am doing a really good job helping him

adjust, and learn how to act more NT (which Im not sure is such a

good thing, but atleast he might not be taken advantage of)

Beth

> > >I have a small book written that I will share with any one

that

> cares

> > to know.

> > >Get the facts togehter, bring data to provide, and pray

> >

> > Please tell me more.......

> > Rainbow

[Guest guest]

Yeah, the compensation thing is interesting. Through many hard

lessons, I've learned to emulate NTs to a pretty good degree. Does

that me a trained monkey, or am I Aspie that's partially converted to NT?

I remember that great Sellers movie, Being There, where he plays

what might be an Aspie, who is very pure and innocent, and people keep

interpreting his simple statements as great wisdom because of how they

view him. He kept saying, " I like to watch, " as in TV, which is where

he learned to how to behave, by watching actors do it.

Ken

> > > >I have a small book written that I will share with any one

> that

> > cares

> > > to know.

> > > >Get the facts togehter, bring data to provide, and pray

> > >

> > > Please tell me more.......

> > > Rainbow

[Guest guest]

Yeah, the compensation thing is interesting. Through many hard

lessons, I've learned to emulate NTs to a pretty good degree. Does

that me a trained monkey, or am I Aspie that's partially converted to NT?

I remember that great Sellers movie, Being There, where he plays

what might be an Aspie, who is very pure and innocent, and people keep

interpreting his simple statements as great wisdom because of how they

view him. He kept saying, " I like to watch, " as in TV, which is where

he learned to how to behave, by watching actors do it.

Ken

> > > >I have a small book written that I will share with any one

> that

> > cares

> > > to know.

> > > >Get the facts togehter, bring data to provide, and pray

> > >

> > > Please tell me more.......

> > > Rainbow

[Guest guest]

Yeah, the compensation thing is interesting. Through many hard

lessons, I've learned to emulate NTs to a pretty good degree. Does

that me a trained monkey, or am I Aspie that's partially converted to NT?

I remember that great Sellers movie, Being There, where he plays

what might be an Aspie, who is very pure and innocent, and people keep

interpreting his simple statements as great wisdom because of how they

view him. He kept saying, " I like to watch, " as in TV, which is where

he learned to how to behave, by watching actors do it.

Ken

> > > >I have a small book written that I will share with any one

> that

> > cares

> > > to know.

> > > >Get the facts togehter, bring data to provide, and pray

> > >

> > > Please tell me more.......

> > > Rainbow

[Guest guest]

Beth wrote:

> I had a strange experience wanting a diagnosis, I went to a Dr

> Ruttenberg in PA. He translated Hans Aspergers work in the 60's to

> english and is considered an expert on aspergers. He told me I

> couldn't be aspergers because I kept eye contact with him, I told

> him I didn't keep eye contact, he just thought I did, I was looking

> at his eyebrows and his nose not his eyes. I play NT very well, over

> the years I've learned to fake it. He found this very hard to accept

> and deal with, he normally works with children not adults, that have

> learned to deal in the real world.

This is a problem for many adult Aspies seeking a dx; that many doctors

don't understand the concept of compensation since they are used to

diagnosing children. We really do need experts that are specialised in adult

AS - preferrably some that are Aspies themselves.

Ken:

> Yeah, the compensation thing is interesting. Through many hard

lessons, I've learned to emulate NTs to a pretty good degree. Does

that me a trained monkey, or am I Aspie that's partially converted to NT?

Very good question!

Beth:

> He told me I couldn't be aspergers, but then called my therapist

> and told her I was, but not to tell me, becuase I fake NT really well

> and he didn't want me to stop compensating, with a true diagnoses.

:-O How insulting! Is it even legal to withold information from an adult?

Beth:

> Anyway to make a long story short she told me the truth so I do

> know that I have Aspergers.

Great! :-)

Beth:

> Another thing that I do is I get feelings and emotions from people in

> color and smell form, especially if I am emotionally close to them ie

> friends and family, I don't sence their emotions in the normal way,

> my body compensates for its deficites.

That is either synesthesia, clairvoyance or both. It seems to be more common

among neuro-atypical and other sensitive people.

http://www.creative-minds.info/Lorelei/Synesthesia.htm

Beth:

> I believe that most of us

> have a very well tuned sixth sence, and we can feel things that other

> people can't in ways that they can't which leads to super sensitivity

> in other issues.

Precisely!

Beth:

> I also can see and talk to " ghosts " , people that

> have passed on, my son did this also when he was 2 he used to lock

> himself in his room and talk with and play with my grandfather, who

> died, a month before Jerry was born.

Cool! That is a form of astral clarvoyance.

Beth:

> I also read tarot cards and

> palms, I am told I'm very accurate with both. I believe that I have

> fine tuned my sixth sence to make up for areas that I am not good at,

> like reading people by looking at them, or telling whether they are

> lying to me or not or manimpulating me.

Me too. I'm a bit clairsentient. I don't see things but I feel the vibes

from everything and everyone. My extranseory perceptions work best the more

relaxed I am. I even want to speculate that some of us are born to operate

more on an intuitive level than on the (lower-frequency)

social/emotional/verbal level, and that if we are too stressed out to be

able to pick up these subtler impressions (or if we are discouraged from

trusting them) we are both robbed of our own language, as well as lacking

the language of NTs and thus effectively blind, deaf and mute in social

situations. :-(

Ken:

I remember that great Sellers movie, Being There, where he plays

what might be an Aspie, who is very pure and innocent, and people keep

interpreting his simple statements as great wisdom because of how they

view him. He kept saying, " I like to watch, " as in TV, which is where

he learned to how to behave, by watching actors do it.

I suspect that Sellers may have been an Aspie IRL too. Just as I

suspect Hoffman. I don't think it's a coincidence which roles actors

find themselves attracted to.

Inger