Guest guest Posted March 21, 2003 Report Share Posted March 21, 2003 also think there are two (or more) "types" of autism out there. It seems there are autistic kids who are simply, autistic and then there are children who have had some kind of horrible reaction to something foreign. For example, there are many kids who become ill after vaccines it seems and have ear infections, sickness, gut problems, etc. And perhaps there is where the confusion lies for many people. Perhaps a reaction to vaccine is not truly autistic but autistic-like. My son with Aspergers fits the mold perfectly. But my son with autism seems to have autism, period. He is very healthy. Has never had an ear infection, never had any reactions to anything; he has no gut or digestive problems and all his tests have always come back clean. So perhaps we should be treating each individual based on what "triggered" their autism. Were they born that way, or are they reacting to some kind of event. I whole heartedly beleive your correct. It does seen many are born this way and trying to "fix" it is like trying to rain teh stares. It's a ice dream but perhaps a bit unrealistic. Yets thos like your As son and my As son who where "triggered" into autosm, they may be able to overcome alot of the "autism like" qualities. I agree, we need to just except them and love them for whp they are and just focus on improveing htere quality of life, not "foxing" them. But for those who were "tiggered" into autsm I do think they cna soemtimes be "fixed" if the root of the problem (ie: allerins.toxin ext) can be removed for the system and there neurologicla system can be repared and retaught. This is a very complex issue and I just don;t think there are any simple answers. my ebay auction http://cgi.ebay.com/ws/eBayISAPI.dll?ViewItem & item=2312749979 Angie~attachment parenting,BFing and co-sleeping w/child lead weaning, baby wearing, gentle disaplining, non circing/vaxxing, homebirthing, homschooling, natural healthcare using, CDing, organiceatting, SAH mommy to: Corbin 12.29.99 and DA 4.17.02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2003 Report Share Posted March 21, 2003 will say this... of all things I defniately don't want to be 'fixed', just that word makes me shiver. Heh. If there was some miracle cure that would turn me into a 'normal' person(I'd like to meet this 'normal' person, by the way, I have lots of questions :-) ), I wouldn't take it. I like who I am, the only thing troubling is social interactions. But personally, I like my ability to be very interested in very small things more than I dislike my ability to act socially. ;-) Aspergers, at least, has plenty of positives for me. I think you have good confidence and that is wonderful. I hope my son will grow up to appreciate himself as much. I too love the qualities of As he has, focus, determination, patience. These triats will make him a wonderful person. My only goal for him is to learn to talk and use langauge to communicate. I think he will grow into whomever he is ment to be and that person will be amazing. Thanks for sharing your POV, it's nice to hear from someone who actually knows what it's like form the inside. Angie~attachment parenting,BFing and co-sleeping w/child lead weaning, baby wearing, gentle disaplining, non circing/vaxxing, homebirthing, homschooling, natural healthcare using, CDing, organiceatting, SAH mommy to: Corbin 12.29.99 and DA 4.17.02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2003 Report Share Posted March 21, 2003 I seeked an evaluation to find out exactly what we were dealing with and making sure he is not frustrated in and school and he gets what he needs in school to prevent melt downs upsets and or depression I will never use that label as anything but to educate my self and others to better relate with him in his world... I certainly would not try and fix him he is who he is and i accepted it many years ago but with this label he will have services and doors opened for him that will certainly not harm him....My son teaches me ALOT and its an honor to be a mother of an autistic child he is a blessing no matter what... take care kim > I think parents focus too much on " fixing " things that don't fit in, rather > than change their perspective and " join " their child in his world and try to > help him be happy and healthy from his perspective and ability. My son > " blossoms " so much when he is treated with dignity, kindness, acceptance and > joy. > > I also think there are two (or more) " types " of autism out there. It seems > there are autistic kids who are simply, autistic and then there are children > who have had some kind of horrible reaction to something foreign. For > example, there are many kids who become ill after vaccines it seems and have > ear infections, sickness, gut problems, etc. And perhaps there is where the > confusion lies for many people. Perhaps a reaction to vaccine is not truly > autistic but autistic-like. > > My son with Aspergers fits the mold perfectly. But my son with autism seems > to have autism, period. He is very healthy. Has never had an ear > infection, never had any reactions to anything; he has no gut or digestive > problems and all his tests have always come back clean. > > So perhaps we should be treating each individual based on what " triggered " > their autism. Were they born that way, or are they reacting to some kind of > event. > > I'm rambling, but I guess my point is that I love my son the way he is (it > hurts sometimes, but that's leftover mourning) and I am simply interested in > him being happy and healthy and what that means to him. I know > communicating is very important to him and is the source of much of his > frustrations and fears and so that is my goal with him. > > Aside: My son with Aspergers speaks just beautifully and seems to me to > just need support, security and love and acceptance. > > Just my thoughts, > Manon > Proud Mom of Two Autistic Boys! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2003 Report Share Posted March 21, 2003 I will say this... of all things I defniately don't want to be 'fixed', just that word makes me shiver. Heh. If there was some miracle cure that would turn me into a 'normal' person(I'd like to meet this 'normal' person, by the way, I have lots of questions :-) ), I wouldn't take it. I like who I am, the only thing troubling is social interactions. But personally, I like my ability to be very interested in very small things more than I dislike my ability to act socially. ;-) Aspergers, at least, has plenty of positives for me. > I think parents focus too much on " fixing " things that don't fit in, rather > than change their perspective and " join " their child in his world and try to > help him be happy and healthy from his perspective and ability. My son > " blossoms " so much when he is treated with dignity, kindness, acceptance and > joy. > > I also think there are two (or more) " types " of autism out there. It seems > there are autistic kids who are simply, autistic and then there are children > who have had some kind of horrible reaction to something foreign. For > example, there are many kids who become ill after vaccines it seems and have > ear infections, sickness, gut problems, etc. And perhaps there is where the > confusion lies for many people. Perhaps a reaction to vaccine is not truly > autistic but autistic-like. > > My son with Aspergers fits the mold perfectly. But my son with autism seems > to have autism, period. He is very healthy. Has never had an ear > infection, never had any reactions to anything; he has no gut or digestive > problems and all his tests have always come back clean. > > So perhaps we should be treating each individual based on what " triggered " > their autism. Were they born that way, or are they reacting to some kind of > event. > > I'm rambling, but I guess my point is that I love my son the way he is (it > hurts sometimes, but that's leftover mourning) and I am simply interested in > him being happy and healthy and what that means to him. I know > communicating is very important to him and is the source of much of his > frustrations and fears and so that is my goal with him. > > Aside: My son with Aspergers speaks just beautifully and seems to me to > just need support, security and love and acceptance. > > Just my thoughts, > Manon > Proud Mom of Two Autistic Boys! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2003 Report Share Posted March 22, 2003 >> I will say this... of all things I defniately don't want to be 'fixed', just that word makes me shiver.<< *laughs* My husband, who also has Aspergers, says the same thing. He also credits Aspergers for his success as a glass blower - he says it takes a special kind of thought process to be able to treat an object as both a solid and a liquid at the same time, and if that makes him a 'freak' so be it. *grins* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2003 Report Share Posted March 22, 2003 I agree completely, our children are different, not wrong! And I am proud of my sons' "labels" and thankful for them so that they can be understood and accepted and be placed in an environment that is understanding and educational according to how they think and believe. Thanks! Manon Proud Mom! Re: focus I seeked an evaluation to find out exactly what we were dealing with and making sure he is not frustrated in and school and he gets what he needs in school to prevent melt downs upsets and or depression I will never use that label as anything but to educate my self and others to better relate with him in his world...I certainly would not try and fix him he is who he is and i accepted it many years ago but with this label he will have services and doors opened for him that will certainly not harm him....My son teaches me ALOT and its an honor to be a mother of an autistic child he is a blessing no matter what... take care kim> I think parents focus too much on "fixing" things that don't fit in, rather> than change their perspective and "join" their child in his world and try to> help him be happy and healthy from his perspective and ability. My son> "blossoms" so much when he is treated with dignity, kindness, acceptance and> joy.> > I also think there are two (or more) "types" of autism out there. It seems> there are autistic kids who are simply, autistic and then there are children> who have had some kind of horrible reaction to something foreign. For> example, there are many kids who become ill after vaccines it seems and have> ear infections, sickness, gut problems, etc. And perhaps there is where the> confusion lies for many people. Perhaps a reaction to vaccine is not truly> autistic but autistic-like.> > My son with Aspergers fits the mold perfectly. But my son with autism seems> to have autism, period. He is very healthy. Has never had an ear> infection, never had any reactions to anything; he has no gut or digestive> problems and all his tests have always come back clean.> > So perhaps we should be treating each individual based on what "triggered"> their autism. Were they born that way, or are they reacting to some kind of> event.> > I'm rambling, but I guess my point is that I love my son the way he is (it> hurts sometimes, but that's leftover mourning) and I am simply interested in> him being happy and healthy and what that means to him. I know> communicating is very important to him and is the source of much of his> frustrations and fears and so that is my goal with him.> > Aside: My son with Aspergers speaks just beautifully and seems to me to> just need support, security and love and acceptance.> > Just my thoughts,> Manon> Proud Mom of Two Autistic Boys! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2003 Report Share Posted March 22, 2003 Good for you Mike. And I agree. As a "normal" person, I don't understand myself or others that well either. I mean, if we're normal, well…we have a lot of growing to do, I'll tell you that much at least! hahaha By the way, I have one son with severe autism and one with Aspergers. My son with Aspergers is quite bright, of course, and very sensitive, of course. I worry about him socially more than anything and about alleviating fears. Anything you can say in the way of advice would be helpful, (he's 5 in April). Right now he's behind me as I type this licking my arm and laughing, he loves it when I tell him that's gross!! hahaha Gotta go tickle him! Bye!! Manon Proud Mom! Re: focus I will say this... of all things I defniately don't want to be'fixed', just that word makes me shiver. Heh. If there was somemiracle cure that would turn me into a 'normal' person(I'd like tomeet this 'normal' person, by the way, I have lots of questions :-) ),I wouldn't take it. I like who I am, the only thing troubling issocial interactions. But personally, I like my ability to be veryinterested in very small things more than I dislike my ability to actsocially. ;-) Aspergers, at least, has plenty of positives for me.> I think parents focus too much on "fixing" things that don't fit in,rather> than change their perspective and "join" their child in his worldand try to> help him be happy and healthy from his perspective and ability. My son> "blossoms" so much when he is treated with dignity, kindness,acceptance and> joy.> > I also think there are two (or more) "types" of autism out there. It seems> there are autistic kids who are simply, autistic and then there arechildren> who have had some kind of horrible reaction to something foreign. For> example, there are many kids who become ill after vaccines it seemsand have> ear infections, sickness, gut problems, etc. And perhaps there iswhere the> confusion lies for many people. Perhaps a reaction to vaccine isnot truly> autistic but autistic-like.> > My son with Aspergers fits the mold perfectly. But my son withautism seems> to have autism, period. He is very healthy. Has never had an ear> infection, never had any reactions to anything; he has no gut ordigestive> problems and all his tests have always come back clean.> > So perhaps we should be treating each individual based on what"triggered"> their autism. Were they born that way, or are they reacting to somekind of> event.> > I'm rambling, but I guess my point is that I love my son the way heis (it> hurts sometimes, but that's leftover mourning) and I am simplyinterested in> him being happy and healthy and what that means to him. I know> communicating is very important to him and is the source of much of his> frustrations and fears and so that is my goal with him.> > Aside: My son with Aspergers speaks just beautifully and seems to me to> just need support, security and love and acceptance.> > Just my thoughts,> Manon> Proud Mom of Two Autistic Boys! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2003 Report Share Posted March 23, 2003 Socially.. well, not too sure what advice I could give. My social life currently is a mess. One thing I do wish, is that my parents would've tried harder to talk to me about what was going on at school and in my life in general. I had a lot of problems in public school, but don't remember ever talking to my parents about the problems until I'd had enough in 8th grade and asked to be homeschooled. Since I hadn't talked to them before about it, it almost completely took them by suprise(well, ok, I think just by the way I acted after I got home from school every day, they had the general idea I didn't like it... but they didn't know just how bad it was for me). So, I dunno, try to seem to your son like somebody he can talk to. I don't feel I can talk about serious stuff to my parents.. or anybody, for that matter. It causes some problems. I sometimes really wish I had somebody I was comfortable talking to, would make things easier. > Good for you Mike. And I agree. As a " normal " person, I don't understand myself or others that well either. I mean, if we're normal, well.we have a lot of growing to do, I'll tell you that much at least! hahaha > > By the way, I have one son with severe autism and one with Aspergers. My son with Aspergers is quite bright, of course, and very sensitive, of course. I worry about him socially more than anything and about alleviating fears. Anything you can say in the way of advice would be helpful, (he's 5 in April). > > Right now he's behind me as I type this licking my arm and laughing, he loves it when I tell him that's gross!! hahaha Gotta go tickle him! Bye!! > > Manon > Proud Mom! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2003 Report Share Posted March 24, 2003 Thanks, Mike…that's very good advice about being a confidante to my son. And good timing, since he just started school this year. Of course, he's a little guy still, and in a program with kids just like him, so he's currently having a good time, but I will definitely keep in mind what you have said. And it's really true for everyone and every parent to remember. And if it makes you feel any better, and I'm afraid it probably won't, many of us wish we had someone to talk to that would really listen and really care. I'm sorry your parents aren't that for you. Mine aren't either. But I'll try hard to be that for my kids…thanks! Take care! Manon Re: focus Socially.. well, not too sure what advice I could give. My sociallife currently is a mess. One thing I do wish, is that my parentswould've tried harder to talk to me about what was going on at schooland in my life in general. I had a lot of problems in public school,but don't remember ever talking to my parents about the problems untilI'd had enough in 8th grade and asked to be homeschooled. Since Ihadn't talked to them before about it, it almost completely took themby suprise(well, ok, I think just by the way I acted after I got homefrom school every day, they had the general idea I didn't like it...but they didn't know just how bad it was for me). So, I dunno, try toseem to your son like somebody he can talk to. I don't feel I cantalk about serious stuff to my parents.. or anybody, for that matter.It causes some problems. I sometimes really wish I had somebody Iwas comfortable talking to, would make things easier.> Good for you Mike. And I agree. As a "normal" person, I don'tunderstand myself or others that well either. I mean, if we'renormal, well.we have a lot of growing to do, I'll tell you that muchat least! hahaha> > By the way, I have one son with severe autism and one withAspergers. My son with Aspergers is quite bright, of course, and verysensitive, of course. I worry about him socially more than anythingand about alleviating fears. Anything you can say in the way ofadvice would be helpful, (he's 5 in April).> > Right now he's behind me as I type this licking my arm and laughing,he loves it when I tell him that's gross!! hahaha Gotta go ticklehim! Bye!!> > Manon> Proud Mom! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2004 Report Share Posted June 4, 2004 In general, I agree, and think this discussion is a good idea. This group was created specifically to address lipodystrophy issues, as much of the original membership came from a group more generally focused on " lipid problems, " but some felt a specific lipodystrophy list was required, and the list formed with this intention. Personally, I always felt a list entirely focused on lipoatrophy/lipodystrophy was a bit narrow, so maybe we should open things up.......a bit. Diet, excercise, sugar, whatever, can relate to living with HIV .........and sometimes, it's a good place to come with general concerns. I do think some posts about totally unrelated conditions should not be posted here, even if the delete key remains an option. When things begin to get too far afield, the list loses any focus at all, and can become less useful for information about HIV. The balance is difficult, and I think the list manager does a good job. Every list, be it about sex or old cars, confronts the same issues. JB On Jun 4, 2004, at 6:26 AM, lipodystrophy wrote: > Personally, I'm real glad that this group exists and I hope that > members will recognise that when a member has a legitimate concern > relating to HIV infection he or she should feel comfortable sharing > it with the group. Where else would we get such great support? > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.