Guest guest Posted December 26, 2004 Report Share Posted December 26, 2004 Have you treated her for yeast? > > My daughter ( who is 8) was given risperdal and trileptal. I have > not given it to her as of yet. Im real leery on giving medication > and these seem like such stong ones. has been on clonidine > for abot 2 yrs now and we went years with sleepless nights and her > doing bad bad things while she was awake at 3 am. I need to do > something for her aggresion, she is a good, mild mannered kid for > the most part but when the switch flips watch out! > I have noticed that if she does get a full nights sleep her behavior > is awesome. If she was more verbal (She repeats and thats about it) > alot of her aggression would go away. I dont know what to do. she > is such a good girl. Medicate or not? Such a huge decision~!!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2004 Report Share Posted December 26, 2004 Have you treated her for yeast? > > My daughter ( who is 8) was given risperdal and trileptal. I have > not given it to her as of yet. Im real leery on giving medication > and these seem like such stong ones. has been on clonidine > for abot 2 yrs now and we went years with sleepless nights and her > doing bad bad things while she was awake at 3 am. I need to do > something for her aggresion, she is a good, mild mannered kid for > the most part but when the switch flips watch out! > I have noticed that if she does get a full nights sleep her behavior > is awesome. If she was more verbal (She repeats and thats about it) > alot of her aggression would go away. I dont know what to do. she > is such a good girl. Medicate or not? Such a huge decision~!!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2004 Report Share Posted December 26, 2004 Have you treated her for yeast? > > My daughter ( who is 8) was given risperdal and trileptal. I have > not given it to her as of yet. Im real leery on giving medication > and these seem like such stong ones. has been on clonidine > for abot 2 yrs now and we went years with sleepless nights and her > doing bad bad things while she was awake at 3 am. I need to do > something for her aggresion, she is a good, mild mannered kid for > the most part but when the switch flips watch out! > I have noticed that if she does get a full nights sleep her behavior > is awesome. If she was more verbal (She repeats and thats about it) > alot of her aggression would go away. I dont know what to do. she > is such a good girl. Medicate or not? Such a huge decision~!!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 Kassi you are just a walking pharmacy Pennie Abby's Mom Who regularly consults Kassi when I have a medication question, she knows more then the pharmacists Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 Kassi you are just a walking pharmacy Pennie Abby's Mom Who regularly consults Kassi when I have a medication question, she knows more then the pharmacists Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 Kassi you are just a walking pharmacy Pennie Abby's Mom Who regularly consults Kassi when I have a medication question, she knows more then the pharmacists Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 My daughter was on risperdol and it did help with the aggression ,but she gained alot of weight . We took her off. We then put her on abilify. It did not help. My suggestion is to research the meds and see if you think they will help your daughter. If you do decide to use the meds watch for any changes and side effects . Deb ocallaghan212 wrote: My daughter ( who is 8) was given risperdal and trileptal. I have not given it to her as of yet. Im real leery on giving medication and these seem like such stong ones. has been on clonidine for abot 2 yrs now and we went years with sleepless nights and her doing bad bad things while she was awake at 3 am. I need to do something for her aggresion, she is a good, mild mannered kid for the most part but when the switch flips watch out! I have noticed that if she does get a full nights sleep her behavior is awesome. If she was more verbal (She repeats and thats about it) alot of her aggression would go away. I dont know what to do. she is such a good girl. Medicate or not? Such a huge decision~!!! Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 My daughter was on risperdol and it did help with the aggression ,but she gained alot of weight . We took her off. We then put her on abilify. It did not help. My suggestion is to research the meds and see if you think they will help your daughter. If you do decide to use the meds watch for any changes and side effects . Deb ocallaghan212 wrote: My daughter ( who is 8) was given risperdal and trileptal. I have not given it to her as of yet. Im real leery on giving medication and these seem like such stong ones. has been on clonidine for abot 2 yrs now and we went years with sleepless nights and her doing bad bad things while she was awake at 3 am. I need to do something for her aggresion, she is a good, mild mannered kid for the most part but when the switch flips watch out! I have noticed that if she does get a full nights sleep her behavior is awesome. If she was more verbal (She repeats and thats about it) alot of her aggression would go away. I dont know what to do. she is such a good girl. Medicate or not? Such a huge decision~!!! Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 Oh Abilify is AWFUL. It's really activating...when I was on it I think I slept maybe 2-3 hours a night for 2 weeks. Risperdal is the only med in that category (atypical antipsychotics) I could tolerate. Ive taken all of them except Zyprexa (my doc doesnt wanna go there, between weight and the way I reacted to the rest of them). I've also taken one standard (aka old skool scary) antipsychotic, Navane, which feels just like Risperdal except no increase in appetite AT ALL...but its messed with some movement stuff so Im going to have to quit it. Im an anticonvulsant girl I think =/ Kassiane whos taken way too many meds. > My daughter was on risperdol and it did help with > the aggression ,but she gained alot of weight . We > took her off. We then put her on abilify. It did not > help. My suggestion is to research the meds and see > if you think they will help your daughter. If you do > decide to use the meds watch for any changes and > side effects . > Deb __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 Oh Abilify is AWFUL. It's really activating...when I was on it I think I slept maybe 2-3 hours a night for 2 weeks. Risperdal is the only med in that category (atypical antipsychotics) I could tolerate. Ive taken all of them except Zyprexa (my doc doesnt wanna go there, between weight and the way I reacted to the rest of them). I've also taken one standard (aka old skool scary) antipsychotic, Navane, which feels just like Risperdal except no increase in appetite AT ALL...but its messed with some movement stuff so Im going to have to quit it. Im an anticonvulsant girl I think =/ Kassiane whos taken way too many meds. > My daughter was on risperdol and it did help with > the aggression ,but she gained alot of weight . We > took her off. We then put her on abilify. It did not > help. My suggestion is to research the meds and see > if you think they will help your daughter. If you do > decide to use the meds watch for any changes and > side effects . > Deb __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 --- Ploveabby@... wrote: > Kassi you are just a walking pharmacy > > Pennie > Abby's Mom > Who regularly consults Kassi when I have a > medication question, she knows > more then the pharmacists What's really bad is a PHARMACIST told me I knew more than he did. My doc has been known to say I know *as much* as he does about select compounds too (namely Topamax, my anticonvulsant of choice). kassiane the walking pharmacy __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 Kassi you are right about abilify. We had on it and the doctor believe it may have help bring on diabetes type one in her. She is not on any meds now and is able to manage her behavior quite well. Except for insilin she been off behavior drugs since april. debbie Kassi wrote: Oh Abilify is AWFUL. It's really activating...when I was on it I think I slept maybe 2-3 hours a night for 2 weeks. Risperdal is the only med in that category (atypical antipsychotics) I could tolerate. Ive taken all of them except Zyprexa (my doc doesnt wanna go there, between weight and the way I reacted to the rest of them). I've also taken one standard (aka old skool scary) antipsychotic, Navane, which feels just like Risperdal except no increase in appetite AT ALL...but its messed with some movement stuff so Im going to have to quit it. Im an anticonvulsant girl I think =/ Kassiane whos taken way too many meds. > My daughter was on risperdol and it did help with > the aggression ,but she gained alot of weight . We > took her off. We then put her on abilify. It did not > help. My suggestion is to research the meds and see > if you think they will help your daughter. If you do > decide to use the meds watch for any changes and > side effects . > Deb __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2004 Report Share Posted December 28, 2004 Where have I heard that before? > Kassi you are just a walking pharmacy > > Pennie > Abby's Mom > Who regularly consults Kassi when I have a medication question, she knows > more then the pharmacists > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2004 Report Share Posted December 28, 2004 Where have I heard that before? > Kassi you are just a walking pharmacy > > Pennie > Abby's Mom > Who regularly consults Kassi when I have a medication question, she knows > more then the pharmacists > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2004 Report Share Posted December 28, 2004 My daughter Lara now 12.5 has been on risperdal for years at both high and low doses. It was first given to her for the constant nervousness and hyper activity and it made a big difference. I know exactly what you mean about that switch. Lara is fairly verbal but still has trouble to really express what her fears are and why. Her agressive outbursts (dangerous)have held her back in schooling and is now in a residential school. The most improvement was seen at low dosage with her (between 1 and 2 ml/day) At high dosages and long period of use, you have to watch for adverse medical reactions. Weight gain is common - it turned Lara from a very picky eater into one that tried all kinds of new foods and liked them ! It only helped aggressiveness to a point and we have struggled with it ever since. Each child is different and there are a few avenues of treatment besides medication. Personally, I haven't tried some of the other treatments because I wasn't convinced they were the right way to go or whether or not I could do them fully and correctly - afraid of doing more harm than good. You could always try the medication and see what happens and discontinue for minimal or bad results. Could buy you some time to investigate some of the other treatments out there. Good Luck Loren Long Island single Dad to Lara 12.5 (m-hfa) Josh 14 (NT) risperdal Date: Sun, 26 Dec 2004 14:07:33 -0000 > > > > My daughter ( who is 8) was given risperdal and trileptal. I have > not given it to her as of yet. Im real leery on giving medication > and these seem like such stong ones. has been on clonidine > for abot 2 yrs now and we went years with sleepless nights and her > doing bad bad things while she was awake at 3 am. I need to do > something for her aggresion, she is a good, mild mannered kid for > the most part but when the switch flips watch out! > I have noticed that if she does get a full nights sleep her behavior > is awesome. If she was more verbal (She repeats and thats about it) > alot of her aggression would go away. I dont know what to do. she > is such a good girl. Medicate or not? Such a huge decision~!!! > > > > > > > > Autism_in_Girls-subscribe > ------------------------ > Autism_in_Girls-unsubscribe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2004 Report Share Posted December 28, 2004 Doesn't surprise me a bit. We have to become the physicians and pharmasicts so our kids (and selves) can survive. Too bad we can't take the state boards and get licensed. Dei > > > What's really bad is a PHARMACIST told me I knew more > than he did. > > My doc has been known to say I know *as much* as he > does about select compounds too (namely Topamax, my > anticonvulsant of choice). > > kassiane the walking pharmacy > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2004 Report Share Posted December 28, 2004 Debbie, does she have an insulin pump? I ask only because I have type 2 and my moods are so MUCH worse since I've developed it because of sugar flucuations. I've found when I'm on a very specific, regular eating plan I'm way more even keel, but it's difficult to do with three little ones. I would think a type 1 would experience this even more. HTH, Debi > Kassi > you are right about abilify. We had on it and the doctor believe it may have help bring on diabetes type one in her. She is not on any meds now and is able to manage her behavior quite well. Except for insilin she been off behavior drugs since april. > debbie > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 In a message dated 12/29/2004 11:08:14 AM Central Standard Time, rjmckiernan@... writes: Weight gain is common - it turned Lara > from a very picky eater into one that tried all > kinds of new foods and liked them ! It only helped > aggressiveness to a point and we have struggled with > it ever since. What Loren wrote about Lara is the same thing with my granddaughter Kayla, who will be 12 in February. It was a struggle to get Kayla to eat anything until she started Risperdal a few years ago. Now she will eat everything and begs to eat all the time. And it is a battle because she has physical handicaps and the orthopedic doctors has warned us not to let her get too much weight on her joints. But it did help the aggression and that is worth it. She was a head banger. Those were awful days and the Risperdal has taken care of that. Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 In a message dated 12/29/2004 11:08:14 AM Central Standard Time, rjmckiernan@... writes: Weight gain is common - it turned Lara > from a very picky eater into one that tried all > kinds of new foods and liked them ! It only helped > aggressiveness to a point and we have struggled with > it ever since. What Loren wrote about Lara is the same thing with my granddaughter Kayla, who will be 12 in February. It was a struggle to get Kayla to eat anything until she started Risperdal a few years ago. Now she will eat everything and begs to eat all the time. And it is a battle because she has physical handicaps and the orthopedic doctors has warned us not to let her get too much weight on her joints. But it did help the aggression and that is worth it. She was a head banger. Those were awful days and the Risperdal has taken care of that. Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 You guys are teasing me! My Allie is so small and eats about 6 things. She's also been banging her head, lately. But I think the head-banging is more from being in a less-restrictive environment, putting great pressures on my little one. Debi > What Loren wrote about Lara is the same thing with my granddaughter Kayla, > who will be 12 in February. It was a struggle to get Kayla to eat anything > until she started Risperdal a few years ago. Now she will eat everything and begs > to eat all the time. And it is a battle because she has physical handicaps > and the orthopedic doctors has warned us not to let her get too much weight on > her joints. > > But it did help the aggression and that is worth it. She was a head banger. > Those were awful days and the Risperdal has taken care of that. > > Beth > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 You guys are teasing me! My Allie is so small and eats about 6 things. She's also been banging her head, lately. But I think the head-banging is more from being in a less-restrictive environment, putting great pressures on my little one. Debi > What Loren wrote about Lara is the same thing with my granddaughter Kayla, > who will be 12 in February. It was a struggle to get Kayla to eat anything > until she started Risperdal a few years ago. Now she will eat everything and begs > to eat all the time. And it is a battle because she has physical handicaps > and the orthopedic doctors has warned us not to let her get too much weight on > her joints. > > But it did help the aggression and that is worth it. She was a head banger. > Those were awful days and the Risperdal has taken care of that. > > Beth > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 4 mgs? holy CRAP thats alot. Highest I went was .75 and then I was seeing and hearing things that werent there...heh. At .5 I was actually...my med box became the most fascinating thing in the world...and the log was a mountain lion... Autistic people tend to be REALLY med sensitive. It has to do with having lazy livers-and we really, as a group, DO have lazy livers. Poor detoxifiers and such. 1 1/2 mgs...wow... Kassiane the 'cheap date' > > > Dear , > My husband and I agonized about putting (10 > yrs.) on meds, but we finally agreed to because the > doctor said her extreme sound sensitivity wasn't > " hearing " but nerves. We were afraid she would be a > zombie.Just the opposite!! She's now able to focus > better, and has improved so very much, both with > behavior and schoolwork. She's currently on 1 1/2 > mgs. > of Risperdal. She's been struggling again lately > with > sounds, but I think her sinuses are dried out due to > our Michigan weather, and she's getting headaches. I > was told children can go up to 4 mgs of Risperdal, > if > needed. Hope this helps! Best Wishes & Prayers, > Joan McKiern __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 4 mgs? holy CRAP thats alot. Highest I went was .75 and then I was seeing and hearing things that werent there...heh. At .5 I was actually...my med box became the most fascinating thing in the world...and the log was a mountain lion... Autistic people tend to be REALLY med sensitive. It has to do with having lazy livers-and we really, as a group, DO have lazy livers. Poor detoxifiers and such. 1 1/2 mgs...wow... Kassiane the 'cheap date' > > > Dear , > My husband and I agonized about putting (10 > yrs.) on meds, but we finally agreed to because the > doctor said her extreme sound sensitivity wasn't > " hearing " but nerves. We were afraid she would be a > zombie.Just the opposite!! She's now able to focus > better, and has improved so very much, both with > behavior and schoolwork. She's currently on 1 1/2 > mgs. > of Risperdal. She's been struggling again lately > with > sounds, but I think her sinuses are dried out due to > our Michigan weather, and she's getting headaches. I > was told children can go up to 4 mgs of Risperdal, > if > needed. Hope this helps! Best Wishes & Prayers, > Joan McKiern __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 4 mgs? holy CRAP thats alot. Highest I went was .75 and then I was seeing and hearing things that werent there...heh. At .5 I was actually...my med box became the most fascinating thing in the world...and the log was a mountain lion... Autistic people tend to be REALLY med sensitive. It has to do with having lazy livers-and we really, as a group, DO have lazy livers. Poor detoxifiers and such. 1 1/2 mgs...wow... Kassiane the 'cheap date' > > > Dear , > My husband and I agonized about putting (10 > yrs.) on meds, but we finally agreed to because the > doctor said her extreme sound sensitivity wasn't > " hearing " but nerves. We were afraid she would be a > zombie.Just the opposite!! She's now able to focus > better, and has improved so very much, both with > behavior and schoolwork. She's currently on 1 1/2 > mgs. > of Risperdal. She's been struggling again lately > with > sounds, but I think her sinuses are dried out due to > our Michigan weather, and she's getting headaches. I > was told children can go up to 4 mgs of Risperdal, > if > needed. Hope this helps! Best Wishes & Prayers, > Joan McKiern __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 It's less restrictive because it's not as structured as her autism classes. She's more stressed because there are more hiccups in the day and more verbal language expectations. I'm torn on what to do for next year, because she thrives and learns so well in an " autism " setting with lots of structure, yet her communicative skills have exploded this year, at least as receptive skills go. She's still not as verbal as everyone said she would become by putting her in a less restrictive setting, but I'm hoping the expressive will come soon. I'm thinking about trying to go back to work in the fall and work as much as I can for the next few yrs, if Allie really gets to hating school I am gonna homeschool her. BTW, I wasn't seriously considering risperdal, just more making a food issue sigh with you all. A friend with epilepsy in high school became extremely thin after he began anti-convulsant meds, also had problems with impotence, as I was told. Debi > How is it less restrictive if it causes so much > stress? (not snotty asking, genuine asking?) > FWIW Risperdal didnt expand my dietary horizons any, > just increased WHAT I ate. Kept me from being the > little twig thang I am now thanks to freaking Topamax > (aka a supermodel anticonvulsant-makes you skinny and > stupid). Didnt headbang but once the whole time I was > on it though... > > Kassiane Quote Link to comment Share on other sites More sharing options...
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