Re: use of one liners and moderating of site

[Guest guest]

I must have missed the original message but I agree 150% with !! This is a support group and frankly not many doctors have time to read our posts, so I don't think we should have to worry about what they think.

Lynn

-- use of one liners and moderating of site

Hello All,

I would personally be very sad to see the one liners and personal

messages leave from this site. It is fine to suggest doctors come

and see how much researc hand knowledge we have but any doctor worth

his salt is going to understand the need for support and

understanding. We joke here of things that have meaning to us.

Perhaps we should use the o.t. more and consistently but I don't

want this to become a sterile place.

Jen just got a new pup. Thats important. It is important ot Jen

and important to her health. Marcel is coming home soon. We need

to know these things. { sorry Jen don't mean to single you out

therre!!!}

I just know that were we to become a serious site witrh medical info

only...I wouldn't be around very often. I need the commaraderie and

spelling lessons that I can only get here.

nuff said.

G.otF.M.

[Guest guest]

My message was a response to a message Cat had sent through Melt.

Sorry for any confusion.

>

Hello All,

>

> I would personally be very sad to see the one liners and personal

> messages leave from this site. It is fine to suggest doctors come

> and see how much researc hand knowledge we have but any doctor

worth

> his salt is going to understand the need for support and

> understanding. We joke here of things that have meaning to us.

> Perhaps we should use the o.t. more and consistently but I don't

> want this to become a sterile place.

>

> Jen just got a new pup. Thats important. It is important ot Jen

> and important to her health. Marcel is coming home soon. We need

> to know these things. { sorry Jen don't mean to single you out

> therre!!!}

>

> I just know that were we to become a serious site witrh medical

info

> only...I wouldn't be around very often. I need the commaraderie

and

> spelling lessons that I can only get here.

>

>

> nuff said.

>

> G.otF.M.

[Guest guest]

Hi,

I have to agree with . I may not always respond to all the posts, but it is my choice to have the mail delivery set on "individual" e-mails. I think if the one-liners are removed then moral for the group will go down. I like to see ALL the responses, not just huge paragraphs. As for doctors; seriously, I don't mean to be cynical, but they aren't going to join our group.

K.

Hello All,I would personally be very sad to see the one liners and personal messages leave from this site. It is fine to suggest doctors come and see how much researc hand knowledge we have but any doctor worth his salt is going to understand the need for support and understanding. We joke here of things that have meaning to us. Perhaps we should use the o.t. more and consistently but I don't want this to become a sterile place.Jen just got a new pup. Thats important. It is important ot Jen and important to her health. Marcel is coming home soon. We need to know these things. { sorry Jen don't mean to single you out therre!!!} I just know that were we to become a serious site witrh medical info only...I wouldn't be around very often. I need the commaraderie and

spelling lessons that I can only get here.nuff said. G.otF.M.Visit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support

form. ion by any person following the information offered or provided within this support form. Post your free ad now! Yahoo! Canada Personals

[Guest guest]

I think everyone missed the most important part of the message.

Please put OT in the subject line if off topic.

Please cut and trim the original message in the reply. Email me privately mellymelt@... if you don't know how and I will help you in any way I can.

Please sign your email.

Please reply off group for some mails.

Please do not use offensive language.

Yes, we need to support each other, and no one is trying to change that. Yes, we need jokes as well as seriousness, it just helps those that are interested only in Stills, or too sick to read all messages that we put off topic. And although this group is for us we do need the help of doctors and could use their input. And last but not least, the board members of this foundation is what keeps it running and my message to you is don't shoot the messengers.

My humble opinions only, Melt

[Guest guest]

I totally agree with you ..Hugs and Jigs Liz NJ