Guest guest Posted October 26, 2004 Report Share Posted October 26, 2004 You poor thing. I've had stills about 7 years now and I'm still a big baby whine all the time. Although when I think about it that first year or so were the worse. My biggest problems today are not actually stills, just stills related like being broke and depression from the side effects of meds. I've taken lots of drugs that didn't work in the 7 or so years. Sometimes the insurance companies made me "choose" them sometimes the doctors were "trying" something new. Unfortunately you need to experiment to find the right cocktail. Good luck. How you young people cope is beyond me. I was fortunate to get stills in my 40's and I've not been a shining example of strength in this area. I am always amazed at the young folks here who have such incredible courage - it really is an inspiration. You are in my prayers. Carole in Hollywood FL. Hi how r u all? I hope all of you feel well!xoI am not feeling well. My doctor told me that its possible to be unresponsive to meds. I've been unresponsive to everything i took.The best meds do is keep the swelling down in some areas. But I am always tired or in pain. I hope they come out w/ something very good to help us all. Still's has me acting like my life is over. I am only 31. I was wondering if anyone was unresponsive to the meds they are on. I feel like I am going crazy! I pushed myself so hard when I had just ra, and still's is so different. When I push myself now I have a flare and can't walk. I gained 30 lbs. since I was on prednisone . I am not very happy. I come to this site because it gives me hope to see how positive you all are. I try to be positive too, but I am so angry that I have stills on top of ra!. I was dx a year ago and I still find it hard to accept. Thankyou all for being there! xo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2004 Report Share Posted October 26, 2004 Sharon, I just want you to know that your not alone ever and dealing with depression is one of the hardest factors in my opinion. Please remember we are here for you with love and best wishes, Melt ----- Original Message ----- From: Sharon I feel like I am going crazy! I pushed myself so hard when I had just ra, and still's is so different. When I push myself now I have a flare and can't walk. I gained 30 lbs. since I was on prednisone . I am not very happy. I come to this site because it gives me hope to see how positive you all are. I try to be positive too, but I am so angry that I have stills on top of ra!. I was dx a year ago and I still find it hard to accept. Thankyou all for being there! xoXO Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2004 Report Share Posted October 27, 2004 hiya melt, thanku so much for your kind words. I will write you a longer letter later.have a good ,comfortable nightxxoo > Sharon, I just want you to know that your not alone ever and dealing > with depression is one of the hardest factors in my opinion. Please > remember we are here for you with love and best wishes, Melt > > > > ----- Original Message ----- > From: Sharon > > I feel like I am going crazy! I pushed myself so hard when I had just > ra, and still's is so different. When I push myself now I have a flare > and can't walk. I gained 30 lbs. since I was on prednisone . I am not > very happy. I come to this site because it gives me hope to see how > positive you all are. I try to be positive too, but I am so angry that > I have stills on top of ra!. I was dx a year ago and I still find it > hard to accept. Thankyou all for being there! xo > > > XO Sharon > > > Visit the Still's Disease Message Board > http://disc.server.com/Indices/148599.html > > The materials and information contained in this message are not > intended to replace the services of a trained health professional or > to be a substitute for medical advice of physicians and/or other > health care professionals. The International Still's Disease > Foundation is not engaged in rendering medical or professional medical > services. You should consult your physician on specific medical > questions, particularly in matters requiring diagnosis or medical > attention. The International Still's Disease Foundation makes no > representations or warranties with respect to any treatment, action, > application, medication or preparation by any person following the > information offered or provided within this support form. > > ion by any person following the information offered or provided > within this support form. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2004 Report Share Posted October 27, 2004 Hi Sharon. I can really relate to the majority of your email. I actually am in tons of more pain than when this "seemingly" started, and to the best of my knowledge, the meds are doing little more for me other than keeping me out of the "resort" (hospital). I have had to push myself hard almost every day for the last few months just to get out of bed. I truly believe the only things keeping me working are willpower and a "rock-head" mentality. I know that may be detrimental to my overall health, but I will eat a bullet before I lose everything I have earned to this stage of my life. Seems pretty clear to me. There are days I just simply blow off if I feel too bad, but I can't afford to have too many of those. I also have gained weight, but it has fluctuated up and down all year. Sometimes I have no appetite at all for days, sometimes there isn't enough food in the house. I can really relate to the unhappiness! I know I never, ever had the thoughts and feelings that are with me most of the time these days. I even get to the point where I pray to die when the pain kicks the hell out of me. I have gone from being the "neighborhood comedian" with a blessing of a whole bunch of true friends to someone who doesn't want anyone knocking on his door. I am generally only happy when I am with my family (especially my kids) or on the rare occasion that I feel good. The anger I hold is great, but there is no one to direct it at. That inadvertently causes me to direct it at people who didn't really ask for it at times. I am pretty much unable to accept this at all. Outside of my family & business the only thing I really am looking forward to is the day they get a handle on this or the day I drop dead. I am hoping and praying that they get a handle on it though, as I feel I have a lot of life left to live! I hope this gets better for all of us. Kirk unresponsive to meds Hi how r u all? I hope all of you feel well!xoI am not feeling well. My doctor told me that its possible to be unresponsive to meds. I've been unresponsive to everything i took. The best meds do is keep the swelling down in some areas. But I am always tired or in pain. I hope they come out w/ something very good to help us all. Still's has me acting like my life is over. I am only 31. I was wondering if anyone was unresponsive to the meds they are on. I feel like I am going crazy! I pushed myself so hard when I had just ra, and still's is so different. When I push myself now I have a flare and can't walk. I gained 30 lbs. since I was on prednisone . I am not very happy. I come to this site because it gives me hope to see how positive you all are. I try to be positive too, but I am so angry that I have stills on top of ra!. I was dx a year ago and I still find it hard to accept. Thankyou all for being there! xoXO Sharon Quote Link to comment Share on other sites More sharing options...
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