Re: tried but I couldn't lower the prednisone

[Guest guest]

Its so hard to cut that dang pred isnt it,sounds like your on fairly low dose though even so like you i want to get off of it also.Here in Canada there is also lot more low paying jobs also sure umemployment rate is low,but that doesnt mean a darn thing Eh!! 1 mgs every 2 days at the stage your at yes thats too fast,glad it has seemed level out though,take care. d.Canada

tried but I couldn't lower the prednisone

Hi Stilligans,

As much as I was really trying hard not to whine for a while, it seems to be backing up on me and creating horrible headaches (and I rarely get headaches - thank G-d). So much for positive thinking and the like!

My rheumy told me to lower my pred by 1 mg every few days. Well, from past experience, I knew that wasn't a good idea - way too fast. So I decided to lower by 1 mg per week or two. The pred lowering schedule seems too much work for me right now.

Going from 10 to 9 to 8 to 7 went pretty well. But this week I went to 6 mg and I started getting those earaches, swollen glands and weird sore throat that goes with Stills. I've gone back to 7mgs a couple of days ago and I seem to be doing better. The symptoms aren't gone but they're better.

But in the meantime, I'm crying like Niagara Falls. At work last week, I had to leave the office on several occassions and go to a place in the building no one seems to know about and I looked at the sky and cried. I had to ask the boss for another advance so I could pay the rent. My sales are down - hard to sell when you feel like crap and want to cry all the time. Plus, my throat seems to tighten up and I have to consciously think about talking - boy I never had a problem talking before!

The worse part is that everything is annoying me. I want to just take a few pills, not a lot, just a few. And sleep for a week or so. I work full time plus come home and do eBay for just about another full time job. You know, I don't think I have ever worked so hard for so little money! I go to the neurologist this week and I'm trying to figure out how to pay my co-pay. He's really nice and gives me lots of samples so it's worth my while to go.

I don't ask for prayers too often, but if any of you are the praying types, I could sure use some. I don't know that I've ever felt this low in my whole life, and I've had quite the roller coaster lifetime. I don't want to get into politics but as I listened to the debates the other night, I got so mad when Bush kept saying that as American's have lost jobs and health insurance, it's important to retrain and get educated. Damn! I have a college degree plus a tad extra. I've done tons of training outside of school. Where has it gotten me! Just look at me - my health insurance and costs have more than tripled in the past 4 years and my income has been cut by about 75%.

OK, now my whining has even bored me now! Thanks again for listening to the ever present trials and tribulations of Carole. Thanks for being there.

Love Carole

Be painfree fellow Stilligans

Visit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form.

[Guest guest]

I am the praying type - it's helped me out many times, and I'll be keeping you in my thoughts and prayers.

Peggy

tried but I couldn't lower the prednisone

Hi Stilligans,

As much as I was really trying hard not to whine for a while, it seems to be backing up on me and creating horrible headaches (and I rarely get headaches - thank G-d). So much for positive thinking and the like!

My rheumy told me to lower my pred by 1 mg every few days. Well, from past experience, I knew that wasn't a good idea - way too fast. So I decided to lower by 1 mg per week or two. The pred lowering schedule seems too much work for me right now.

Going from 10 to 9 to 8 to 7 went pretty well. But this week I went to 6 mg and I started getting those earaches, swollen glands and weird sore throat that goes with Stills. I've gone back to 7mgs a couple of days ago and I seem to be doing better. The symptoms aren't gone but they're better.

But in the meantime, I'm crying like Niagara Falls. At work last week, I had to leave the office on several occassions and go to a place in the building no one seems to know about and I looked at the sky and cried. I had to ask the boss for another advance so I could pay the rent. My sales are down - hard to sell when you feel like crap and want to cry all the time. Plus, my throat seems to tighten up and I have to consciously think about talking - boy I never had a problem talking before!

The worse part is that everything is annoying me. I want to just take a few pills, not a lot, just a few. And sleep for a week or so. I work full time plus come home and do eBay for just about another full time job. You know, I don't think I have ever worked so hard for so little money! I go to the neurologist this week and I'm trying to figure out how to pay my co-pay. He's really nice and gives me lots of samples so it's worth my while to go.

I don't ask for prayers too often, but if any of you are the praying types, I could sure use some. I don't know that I've ever felt this low in my whole life, and I've had quite the roller coaster lifetime. I don't want to get into politics but as I listened to the debates the other night, I got so mad when Bush kept saying that as American's have lost jobs and health insurance, it's important to retrain and get educated. Damn! I have a college degree plus a tad extra. I've done tons of training outside of school. Where has it gotten me! Just look at me - my health insurance and costs have more than tripled in the past 4 years and my income has been cut by about 75%.

OK, now my whining has even bored me now! Thanks again for listening to the ever present trials and tribulations of Carole. Thanks for being there.

Love Carole

Be painfree fellow Stilligans

Visit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form.

[Guest guest]

Hi Carole. I have been trying to get from 20mg/day to 15, and forcing myself to stay down for the 10 days I did it, even though I could feel a difference, is causing me all kinds of problems right now. I have been back to 20mg/day for 3 days and still feel like hell. I know my PCP is going to jack it up tomorrow. I keep feeling cold, have a slight fever, slight chills and headaches. It sucks!

I know what you mean with all of the lousy jobs politician types seem to be proud of.....just think...all of the stockholders are making a killing without ever working up a sweat or getting stressed out! These SOB's that run this country (both parties) have us right where they want us. I keep hearing one side bash the other on taxes......either way we lose! The people with money want one thing and one thing only....MORE!

One can also listen to these leaches called "Financial Advisors".......let's say Jim has $10,000.00.....figure an 8% rate of return....so Jim made $800.00....but wait, the leach needs his share as does the gov't........now Jim has $550.00. On the other hand, Brad has $2,000,000.....same 8% return.......he grosses $160,000.00....figure he keeps $100,000........Hell, I think 98% of the country can live very well on that.......! Granted, this is oversimplified, but this is what fries me......rich get richer, the rest of us kill ourselves treading water! Factor in that our lovely gov't is giving tax breaks to people on dividends...and the picture gets even worse.

I am not against investing, but without spare income to invest I am going to gain nothing from it. I also want to make clear I am not attacking people with money, I just wish the damn gov't would make it easier for those of us that don't to get some. I see no problem in taxing the wealthy hard as they will still be able to buy and sell the average American anyway. Greed is an ugly thing.

The health care dilemma in this country is a damn shame. We can give out billions in aid to foreign countries, yet we can't take care of our own. I don't personally give a **** about what is happening in some remote part of the world, it is not my problem. I also don't care about rebuilding places such as Iraq, I am more of the thinking that they can pay for it themselves. I don't care what becomes of those type of places, regardless of how cruel it may sound. You also have to look at items such as this.....the health care company I have my plan through (Blue Cross of NE Pa) just gave there CEO a huge bonus for saving them a few million.....he did it by eliminating an HMO program for the elderly! They also have over a $40,000,000.00 cash reserve, and we have a rate increase on the way. At least we have a few politicians trying to block it, but I can reassure you that once the elections are over, it will pass! I wonder how much they are giving to the campaigns?

When I got married in 1996 my health care cost around $450.00/month, my homeowners taxes were $1192.00 per year. Now my health care plan is $32.00 shy of $1,000.00 and my taxes are around $3,400.00 per year! Hell, I wish I was a relative of a politician so that I could get one of these jobs their relatives have, which in time would allow me to get my kids and relatives in!!!!

I am sorry for the rant, but I am with you 100% Carole! I totally understand your feelings. I will also say a few prayers for you. I have prayed more in the last year than I ever have in my life. I do have faith, but it is hard sometimes.

Kirk

tried but I couldn't lower the prednisone

Hi Stilligans,

As much as I was really trying hard not to whine for a while, it seems to be backing up on me and creating horrible headaches (and I rarely get headaches - thank G-d). So much for positive thinking and the like!

My rheumy told me to lower my pred by 1 mg every few days. Well, from past experience, I knew that wasn't a good idea - way too fast. So I decided to lower by 1 mg per week or two. The pred lowering schedule seems too much work for me right now.

Going from 10 to 9 to 8 to 7 went pretty well. But this week I went to 6 mg and I started getting those earaches, swollen glands and weird sore throat that goes with Stills. I've gone back to 7mgs a couple of days ago and I seem to be doing better. The symptoms aren't gone but they're better.

But in the meantime, I'm crying like Niagara Falls. At work last week, I had to leave the office on several occassions and go to a place in the building no one seems to know about and I looked at the sky and cried. I had to ask the boss for another advance so I could pay the rent. My sales are down - hard to sell when you feel like crap and want to cry all the time. Plus, my throat seems to tighten up and I have to consciously think about talking - boy I never had a problem talking before!

The worse part is that everything is annoying me. I want to just take a few pills, not a lot, just a few. And sleep for a week or so. I work full time plus come home and do eBay for just about another full time job. You know, I don't think I have ever worked so hard for so little money! I go to the neurologist this week and I'm trying to figure out how to pay my co-pay. He's really nice and gives me lots of samples so it's worth my while to go.

I don't ask for prayers too often, but if any of you are the praying types, I could sure use some. I don't know that I've ever felt this low in my whole life, and I've had quite the roller coaster lifetime. I don't want to get into politics but as I listened to the debates the other night, I got so mad when Bush kept saying that as American's have lost jobs and health insurance, it's important to retrain and get educated. Damn! I have a college degree plus a tad extra. I've done tons of training outside of school. Where has it gotten me! Just look at me - my health insurance and costs have more than tripled in the past 4 years and my income has been cut by about 75%.

OK, now my whining has even bored me now! Thanks again for listening to the ever present trials and tribulations of Carole. Thanks for being there.

Love Carole

Be painfree fellow Stilligans

Visit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form.

[Guest guest]

Hey Carole,

How is it goin hun? Just want you to know I am thinking of you and

wishing there was a way to help. KNow you have my prayers!

Love

[Guest guest]

Thanks a ton, have really missed you!!

-- Re: tried but I couldn't lower the prednisone

Hey Carole,

How is it goin hun? Just want you to know I am thinking of you and

wishing there was a way to help. KNow you have my prayers!

Love