Re: Tourette's

January 27, 2005

Thanks Jeanne. 2 more questions if you don't mind. How is your son's ocd

atypical? And how would I know if dd has ts? She went for an assessment with

psychologist who said she had ocd. TS not mentioned. But perhaps if I had

specifically asked her to be tested for TS??? How does it usually work?

Does anyone else have an ocd child who doesn't have TS, yet makes little noises

as part of the ocd?

Mo

January 27, 2005

Thanks Jeanne. 2 more questions if you don't mind. How is your son's ocd

atypical? And how would I know if dd has ts? She went for an assessment with

psychologist who said she had ocd. TS not mentioned. But perhaps if I had

specifically asked her to be tested for TS??? How does it usually work?

Does anyone else have an ocd child who doesn't have TS, yet makes little noises

as part of the ocd?

Mo

January 27, 2005

Mo,

My daughters TS got worse gradually but we still thought it was just

some type of allergy thing. She also CONSTANTLY sniffs, but she was/is

stuffed up alot so we thought it was kind of a habit she got into. Her eye

blinking has gone from blinking alot to HARD blinking were she blinks and

her eyes stay closed a few seconds. Her diagnosis of TS was during the

summer when THANK GOD we had enough sence to secretly videotape her

behavior. We were watching TV and for over an hour she was doing facial

contortions (grimacing as we now call it), her face, neck, arms and hands

would tense up HORRIBLY. To make a long story short we ended up at a

neurologist, he saw the tape and immediately said it's TS. At this point

she's not on meds for the TS, but is for the OCD which she was diagnosed for

after theTS, as we've been warned the side effects of TS meds can be bad.

Her TICS have calmed down while at school to the sniffing & blinking, at

home she says they are the worst when she's doing homework. She doesn't

make her throat noise anymore, at least for now! Her TS has come in second

to her OCD symptoms but I'm hoping they are not getting worse again.

Sandi

Re: Re: Tourette's

>

> At first, it was a tiny whine in her throat. Hard to describe, but if you

> close your mouth and try to yip, that's the sound she'd make. It wasn't

> loud. But I thought she did it a lot and that it was just some weird

> habit. I wanted her to stop so that she wouldn't get teased about it.

> When I first mentioned it to her, she said she didn't know what I was

> talking about. So I told her I was going to do it every time I heard her

> do it. At first that turned into a game: she'd do it, I'd do it, she'd

> do it again, etc. But at least I knew that she was aware of doing it.

> After a few weeks, she just stopped doing it. That was about a year ago.

> Now that we know she has ocd, she has told me that it was ocd that made

> her do the sound. Recently, she had a few weeks of ocd telling her to

> stretch her arms. I never even noticed that one -- so really didn't last

> long. Now ocd is making her sniff, she says.

>

> How did your dd's ts get worse? How do you treat it?

>

> Mo

>

> --- Original Message -----

> From: Dyksterhouse

>

> Mo,

> What kinds of little noises are you talking about? Six years ago before

> my

> daughter was diagnosed with OCD or TS (she was just diag. Aug. 2004) she

> was

> making these little noises in her throat. They weren't loud but drove us

> crazy because being her family we heard it all the time. We thought the

> noises along with her constant eye blinking were due to allergies. Come

> to

> find out when the TS got WORSE those were her first TICS.

> Sandi

>

January 28, 2005

.... So if the little voice of OCD is telling your daughter, " If you

don't breathe loudly, you might stop breathing and you'll die, so

you'd better huff, " then she could use the CBT techniques to boss

back the OCD and refuse to huff. It would be hard, but she could be

successful. After an initial build up of anxiety, the longer she

refrained from huffing the easier it would be. It it's a tic, she

can also refuse to huff, but it would get progressively harder until

she couldn't hold off anymore. (The amount of time this would work

varies greatly from one individual to another).

> Jeanne

--------

Dear Jeanne,

Suppose you can't boss back an underlying anxiety? instead of an

action. If I suggest that my son tell himself (or 'boss back') the

tic it doesn't make sense to him. He would have to boss back the

thought, the anxiety. He says he can't. So it stands to reason that

one would want to alleviate the anxiety. With supplements. No?

Talking with him does not seem to help. What do you think?

Janice

January 28, 2005