and comments

[Guest guest]

Hey all -

Going home tomorrow or Saturday and will catch up this weekend. YIPPEE! BTW it

was nice to meet you folks in Chicago.

Thanks everyone for answering about tort and plagio sides. I am now convinced

that everyone is different. Lillian's head is flat on right back but it seems

that her neck is tight on the left side. I've been told by peds right tightness,

right weakness, etc. but not left tightness which is my suspicion and I was just

trying to sort it out, again!

- I have found so many opinions from professionals and we are tx the plagio

but have come to realize that the tort is the more important issue and needs to

be watched(Lori would probably agree). I have been stretching Lillian's neck

(with no pt or other professional advice or direction) since she was 3 mos old -

1 year now and there is still a bit of tilt(thank God I did start the excercises

even without peds assistance). And something we talked about a few months ago on

this site is that these babes with tort problems tend to ignore the side of the

body and hand that they look away from - anyone want to chime in here feel free.

BTW, Occipital Plagiocephaly(OP) is generally the same term as pp. The occipital

lobe of the brain is the back area(corresponding with the occipital area on

head) then there is the temporal and parietal and frontal.

Alright, jus one more comment and we're off to Pa!

We went for our daily walk and met a mother and her 2 yr old boy. Immediately we

got into this conversation about our kids because she said her boy was small and

was having some gross motor delays. I immediately noticed that he tilted his

head (his head looked fine) - face to his right and later in the conversation

mentioned it. (I didn't want to be rude and blurt it out until we got to

talking). I mentioned she may want to have him checked for tort becasue he is

having similar gross motor delays as some kids here and her peds and neuros were

telling her that he doesn't have cp or md but that his brain is simply working

in a fasion like a dumb jock football player, powerful but not too bright like a

dr with brain but no common sense. He's got a short stalky body yet is not

coordinated. Shoot, now I can't remember what exactly she said it was dx

as(Something like dystonia or aproxia) but I wondered if anyone had ever heard

of it. He apparently has some mild muscle tone problems but only in some areas -

guess what the peds said? - As he gets more active he'll start using the muscles

more and they'll tone up(common remark from peds these days I guess!) She also

swore that it was from sleeping on his back(ironic isn't it) she said because

she felt he did nothing while on his back unlike on the stomach he would have

excercised.

Later

Liz and Lilly