Guest guest Posted June 6, 2000 Report Share Posted June 6, 2000 In a message dated 6/7/00 1:45:46 AM Eastern Daylight Time, skowalsk@... writes: << Hi, my name is and I am in my early 20s. I have been diagnosed with Fibromyalgia now for 2 years but have had increasingly worsening symptoms for the past 7 years, since early in high school. >> Welcome to a special group, . Although I'm sorry for the reason you needed to seek us out, I hope you will find everyone as caring, supportive, and informative as I have. BTW, a great introduction. {{{And Pain-Free Wishes}}} Carol ICQ#61162277 " In the little decisions of life, use your mind; in the big decisions, use your heart. " [author unknown] ------------------------------------------------------------------------------ ------------------------------- STRETCH your cash. Trade what you have for what you want. PLUS, earn referral fees on transactions. http://www.traderewards.com/i.asp?ID=100031 ------------------------------------------------------------------------------ --------- THE CHRONIC PAIN LIFE LINE Medical Website <A HREF= " http://www.intractablepain.com/ " >Click here or</A> go to http://www.intractablepain.com For tons of chronic pain and illness, the mental and emotional distress caused by living with limitations, information and personalized assistance for anyone and everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2000 Report Share Posted June 7, 2000 , Glad to have you join our list. I got the growing pains trip too. then when I was 21, a doc decided my severe back problems were because one leg was slightly longer than the other (everybody is slightly asymmetrical). Then in my 30's a Dx came. I wasn't too happy with it. Still don't like it. Ken At 01:45 AM 6/7/00 -0400, SARAH KOWALSKI wisely said: >Hi, my name is and I am in my early 20s. I have been diagnosed with >Fibromyalgia now for 2 years but have had increasingly worsening symptoms >for the past 7 years, since early in high school. Growing up as a child I >also had mysterious knee pains, usually at night that would wake me up and >often incapacitate me. Drs. Said it was " growing pains " but they never >stopped when I stopped growing. From talking to others on various email >lists, it seems that these pains are common among people with FM when they >were children. To this day, those nocturnal knee pains are probably the >worst pain I have ever experienced, and I have been through many sprains, >strains, battles with tendonitis, etc. > >Like many other people with FM, I went from specialist to specialist and >hospital to hospital or 4 years trying to figure out what my daily >headaches were from, then what my carpal-tunnel pain and symptoms in my >hands and wrists were, then what my extreme calf pain was, why my ribs, of >all things, hurt a lot, why my digestive system was causing me pain and >irritation, etc. There weren't ever answers, only mysteries and >frustration until one doctor finally looked at the whole picture and said > " Go see a rheumatologist, I think you have fibromyalgia. " And sure enough*. > >Having a name put to everything gave me a great relief; I no longer had to >worry about each separate problem. I could do research and work on >healing. But healing hasn't come, and my greatest struggle now, besides >trying to cope everyday with often crippling pain, is to accept that this >is a part of me, that I am now " a person living with fibromyalgia " and >that this has brought many new challenges into my life and has stolen many >of the abilities and pleasures that I took for granted. I am struggling >to stop trying to do everything " the old me " could and trying to learn >what my practical limitations are now, and how to best live within them so >that I don't push too hard and end up in bed for days. I want, and need, >to come to accept my new self and stop trying to live as if I am healthy, >because that only ends up making things worse, emotionally and >physically. I want to accept that I have this syndrome and the suffering >that comes with it, even as I push to become as healthy as I can. > >This is why I have come to seek information and support and inspiration >from email lists. > >Gentle hugs, > > > >Post your resume online free & get matched with jobs/internships in your >fields of interest! Click http://www.jobdirect.com/?source=smith2 & ENTER >Rep Code: smith2 > >*** It is no measure of health to be adjusted to a profoundly sick >society-Krishnamurti > > >------------------------------------------------------------------------ >Everyday Is Kid's Day >Dad Only Has One >Click Here To Make It Special >http://click./1/5038/1/_/82384/_/960356722/ >------------------------------------------------------------------------ > >Know someone who could profit from our list? Send our direct sign-up >URL: http://www.onelist.com/subscribe.cgi/chronic_pain or write us at: >chronic_pain-listowneronelist >Manage your subscription with several special email addresses: >chronic_pain-owneronelist - Sends email to the list owners >chronic_pain-subscribeonelist - Subscribe to the list through email >chronic_pain-unsubscribeonelist - Unsubscribe from the list >chronic_pain-normalonelist - Switch your subscription to normal >chronic_pain-digestonelist - Switch your subscription to digest > > | Turbin | mailto:kturbin@... | * Page me online through ICQ: http://www.mirabilis.com/17198172 Tel. (702) 312- 6888 | Fax | GetICQ http://www.icq.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2000 Report Share Posted June 7, 2000 Sorry I'm so late replying, been trying to get my head on straight! Welcome to the group. > Hi, my name is and I am in my early 20s. I have been diagnosed with Fibromyalgia now for 2 years but have had increasingly worsening symptoms for the past 7 years, since early in high school. Growing up as a child I also had mysterious knee pains, usually at night that would wake me up and often incapacitate me. Drs. Said it was " growing pains " but they never stopped when I stopped growing. From talking to others on various email lists, it seems that these pains are common among people with FM when they were children. To this day, those nocturnal knee pains are probably the worst pain I have ever experienced, and I have been through many sprains, strains, battles with tendonitis, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2000 Report Share Posted June 7, 2000 , Welcome to the group. I really am sorry that fibro has hit you so hard at such a young age. I have always had a low immune system and I have had problems with stamina, but the pain didn't start until I was 28 and had an injury to bring it on. Isn't it funny how a little word that explains all our symptoms can make us feel so much better emotionally. Just to know that we are not crazy or hypochondriacs is such a relief. When you first start having problems you believe that it isn't in your head, but then when doctor after doctor tells you there is nothing wrong you start to doubt yourself and wonder if it really is in your head. You said that fibro has stolen many of your abilities and pleasures. I like to think of it in a different way than that. If it weren't for my illness there are many things I would not have learned, friends I would not have made, and emotional growth that would have not come or at least taken a long time to develop. I have found that I can do most things as long as I pace myself and plan for the pain. I took my kids to a theme park a few weeks ago. The way I managed was to rest the two days before the trip, drank lots of water, rested and sat down a lot. Then after the trip I planned several days of doing nothing but taking care of the necessities to give my body a chance to recover. Of course there are things that I cannot do, but most of them don' t really matter when I step back and look at what is really important. , you might enjoy my webpage at http://home.att.net/~fernhlehmann/fernhlehmann.html Gentle hugs, Fern Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2000 Report Share Posted June 7, 2000 , Welcome to the group. I really am sorry that fibro has hit you so hard at such a young age. I have always had a low immune system and I have had problems with stamina, but the pain didn't start until I was 28 and had an injury to bring it on. Isn't it funny how a little word that explains all our symptoms can make us feel so much better emotionally. Just to know that we are not crazy or hypochondriacs is such a relief. When you first start having problems you believe that it isn't in your head, but then when doctor after doctor tells you there is nothing wrong you start to doubt yourself and wonder if it really is in your head. You said that fibro has stolen many of your abilities and pleasures. I like to think of it in a different way than that. If it weren't for my illness there are many things I would not have learned, friends I would not have made, and emotional growth that would have not come or at least taken a long time to develop. I have found that I can do most things as long as I pace myself and plan for the pain. I took my kids to a theme park a few weeks ago. The way I managed was to rest the two days before the trip, drank lots of water, rested and sat down a lot. Then after the trip I planned several days of doing nothing but taking care of the necessities to give my body a chance to recover. Of course there are things that I cannot do, but most of them don' t really matter when I step back and look at what is really important. , you might enjoy my webpage at http://home.att.net/~fernhlehmann/fernhlehmann.html Gentle hugs, Fern Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 Hi , Welcome to the group. I can completely relate to the old clothes thing- I'm wearing things I haven't worn in. ages, and it's great. Where abouts are you? How has your banding been so far? Cheers, (A) Quote Link to comment Share on other sites More sharing options...
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