Guest guest Posted November 6, 2011 Report Share Posted November 6, 2011 Hi, New to this group, but glad I found it. It's nice to know that my husband is not the only one that had a long road to diagnosis and treatment. My husband is 42 yo., slightly overweight. Started having severe BP issues about 4 years ago out of the blue after being completely healthy. Also started having anxiety and depression at same time. Diagnosed w/ PA 2 years ago after undergoing testing/labs for PA. Had to take 120meq of K per day x 6 mo when first dx d/t levels around 2.2. Thankfully His K has been pretty stable recently on 20 meq twice daily. He is currently managed by nephrologist. They did a CT scan 1.5 years ago and did not see any tumors. Managed w/meds OK (with frequent adjustments) until about 6 months ago when nothing he takes seems to work at all except prn clonidine which we recently found out causes rebound hypertension. A " good " BP for him lately has been anything below 160/100. Spikes often as high as 190 for systolic and 156 for diastolic. Crazy. He can barely make it through the work week, is exhausted and just drained all the time. His nephrologist order the AVS in Sept. AVS showed the left adrenal producing way excessive amounts of aldosterone. He was referred to surgeon and set for adrenaletcomy in middle of Dec. So, my only goal in life is to ensure he does not have a stroke between down and then. He has been trying to adapt to the dash diet (admittedly he has some work to do on this). He has a huge family hx of strokes and high BP. HIs nephrologist has been responsive to the need for med changes, but difficulty finding a combo that works. Just added the hydralazine last week which has helped quite a bit, but still having really high spikes. He's currently taking the following for BP: inspra 100mg once daily atenolol 100mg once daily lisinopril 20mg once daily imdur 60mg once daily hydralazine 40mg three times daily clonidine 0.1mg (prn for systolic BP over 160) Any other recommendations for managing BP until surgery? We are grateful for the light at the end of the tunnel w/adrenalectomy. I read several of the posts here on adrenalectomy stories which have been very helpful. Thanks! Quote Link to comment Share on other sites More sharing options...
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