Re: Sherry

[Guest guest]

Sherry,

You're not intruding. No worries.

Well, let me make a small correction in regards to that post. Most older

children who had been diagnosed with PIS (in infancy) that actually find someone

to cast them are far more severe than 60 degrees and are using casting as a way

to buy time or maintain. Again, EDF casting has always been used to maintain or

provide correction for juveniles, adolescents, adults....The pioneer of ET was

the 1st doc to ever use EDF to completely RESOLVE permanently, the rapidly

progressing curves in infants/sm children.

Progressive docs that understand the necessity of buying invaluable growth time

for infants/small children actually do EDF casting as a way to maintain body

shape. Its not a waste of their time, or the patients.

Yes, I was told directly by one of the docs in Erie that they apply under arm

jackets in all cases. Thats the big difference.

Sincerely,

HRH

> > > >

> > > >

> > > > From: Darrell McMow <dmcmowshaw (DOT) ca>

> > > > Subject: Re: [infantile_scoliosi s] Re: t-shirt removal

> > > > To: infantile_scoliosis @yahoogroups. com

> > > > Date: Friday, August 21, 2009, 10:14 PM

> > > >

> > > >

> > > >

> > > > Sherry

> > > >

> > > > We also remove my son's T-shirt once a week and put a clean one back

on him.

> > > > The thing with it is its so easy to do. It takes me less then 10

minutes to take it off and put a clean one back on. I have discussed this with

my son's Dr. in SLC and he was all for it and told me that the french Dr.s do

this all the time. The last cast change they even gave me an extra T shirt so I

have been doing this for 8 months never had a problem. Our Dr. did not

discourage me from doing this at all but encouraged me to continue doing it.

When his cast comes off now we have NO dry skin NO skin irritations and its like

he's absolutely clean. I cant say that for any cast we have had before that. We

always had some problems before so yes I will continue to remove and replace the

tshirt. The thing with it is when his cast is removed now he does'nt even sratch

himself. So is it so wrong to continue to do something that works so well.

> > > >

> > > > If I went by what everyone thinks should be the rules of cast care we

still would be at square one. After 12 casts I think I know whats right or wrong

in my son's care. I would rather think outside of the box rather than being

stuck inside of it.

> > > >

> > > > I trim problem spots myself.

> > > > I use neoprene to petal my sons cast this allows us to be more liberal

with water and water play. Because the outside of his cast is water resistant. I

actually wash the outside of the cast with soap and water.

> > > > I remove the t-shirt and put a clean one back on never had a problem

doing this.

> > > > We go to the park and yes he plays in the sand.

> > > > He takes a shower with me twice a week with his shower vest.

> > > > I take him swimming to the pool 2 times a week with his drysuit. We

actually do PT in the pool.

> > > >

> > > > I also have a few more things that I will be doing at the end of this

cast and onto the next cast. But I know for us cast life is just getting easier

with each one.

> > > > For us this is just normal cast life. Always thinking outside the BOX.

> > > >

> > > > And yes my son has an over the shoulder cast!

> > > > My son's DR has never said anything to me that the things I do are

wrong ever.

> > > >

> > > > So these are just my experiences with cast life and the things I do

for my son.

> > > > I do the things that I think are right for us. If you dont want to try

new things dont. If you are unsure then dont do it. But also know that there are

other options you can try!

> > > >

> > > > Darrell

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > [infantile_scoliosi s] Re: t-shirt removal

> > > >

> > > >

> > > >

> > > > Krista,

> > > > Of course is an expert in cast care and I respect all that she

has done (I wouldn't come here if I didn't). However, I am an expert in my child

and what my abilities are (under the guidance and approval of our Dr. who

ultimately has the final say). I have read here several times about " skin

breakdown " and to tell you the honest truth I don't even know what that

means?!!? Logan has never had that problem or any problem with his skin. Maybe

it's because he's five years old, I don't know, but his skin looks fresh and

clean between casts and I truely believe it's because I change his shirt. I know

the idea of it seems overwhelming to some people but for me, it's very simple to

get on and off and he LOVES when I do it. When we done there are absolutely no

bumps in the shirt anywhere. It's possible that it's easier for us since he has

an underarm cast but again, I am sharing the experience with our child. The

first time I actually tried it we we > Sherry

> > > > Mom to Logan, Age 5

> > > > Currently in 3rd cast from Erie Shriners

> > > >

> > > > > Sherry,

> > > > > I have to share that as the Moderator/Head of this website and CAST

group...she () really does have the most experience is what the

recommendations are for cast care. I now that from time to time this issue with

the t-shirt gets brought up and there are parents that chime in suggesting

exactly what you have shared....BUT I have to share that my son had a MAJOR GI

bug...with vomiting, diarrhea the whole works....sooo bad that he was

hospitalized. The vomit was everywhere the shirt reeked of it...but I never even

thought about taking it off. The idea that this could even possibly cause a skin

break- down was enough for me to live with the smell. I think that parents

should know that this is a real possibility. I would rather have a lil " Pig Pen "

child then deal with any skin break down or sores. Just not worth it!

> > > > >

> > > > > ~Krista

> > > > > Jack's Mom, Jack is 25 months old, in his 1st brace

> > > > > Jack started casting at 41 degrees and is now measuring 0 in his

brace!!!

> > > > > Receiving care from Shriners Hospital in Salt Lake City, Utah

> > > >

> > >

> >

>