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Hi and welcome to the group!

I just wanted to assure you that will be just as happy in the band

as he is now. Check out the files section to see many many pictures

of happy helmet heads!!

My daughter has been in her band for 2 1/2 months. It didn't even

phase her when she got it. She has slept, played, eaten, etc. the

same since day one!

After you have had a while to think about all of this, you will know

that you are doing the right thing. It's a lot to soak up all at

once!

Well again, welcome to the group!

Kendra

SCRUNCH22@... wrote:

Hi everyone my name is and I have

a 3 year old daughter named

and a 7 month old son named . was diagnosed by

his ped

as having moderate plagio. We have a 2nd opinion visit with

a

neurologist on August 2nd. My husband doesn't think his head looks

bad

at all but I think it's pretty messed up-but only if you look from

the

back or side.His face appears normal to me. SO We are relying on

what

the neuro says to decide if treatment is necessary. If we go ahead

with

the band we will be going to the cllnic in Phoenix since we live

in Las

Vegas. It's a five hour drive but I do have a sister there so at

least

we can stay overnite. Does anyone on the list have experience with

the

Phoenix clinic?

I'm also wondering how you guys have made the

decision to go ahead

with treatment. It's so hard to figure out what's right to do.

He's such

a happy kid-I would feel bad making him wear something on his head

for

so long. Oh well I guess we'l see. I look forward to meeting everyone

on

the list!!!

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Hi, welcome! I too was in your position 2 months ago. I dreaded the idea of

my daughter Casey having to wear a helmet in the hot summer months (we're in

So Cal). I thought, there goes swimming lessons, what is everyone going to

think, etc. etc. I cried and really debated.

At any rate, Casey has now been in the helmet for 1 month. We've seen 30%

correction in 2 weeks. Casey fussed the weekend she got the helmet (we got it

on a Friday), but she got use to it quickly.

It's true what everyone says, they look strange without them. Also she kind

of looks for it when I take it off (I take it off for bathing).

They do get use to it and you will see improvement. It's a big committment

in re: to time, money, and " social " adjustments however, I think of it as

what's 4 months of wearing a helmet versus being ridiculed later on in life?

Positioning has worked for some babies and some babies will correct on their

own. In my own experience Casey wasn't correcting on her own. We kind of

got use to the flatness and bulging out on the left so we went through the

stage of " oh it's not so bad, it'll work itself out, hair will cover

it " ....then people started making comments in public about her flatness, so I

started to look at her objectively and am now thankful the treatment was

available.

I feel good with my choice as do many other parents in this group. I know

it's a big decision, but we're all here to listen and help. Good luck.

in Fountain Valley, CA

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Hi ...

I'm Dominika and my daughter Aimee is being referred to a cranialfacial specialist. We went ahead and decided that if she needs to wear a helmet/band then she will. I have the same concerns as you and not sure about how I feel about her wearing something on her head for so long but it is the right thing to do for her so she will. Take care and glad you found the group cause I know I am thrilled that I found it!

Domi

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and Domi:

Just want to say when I was told my daughter would have to wear her helmet

for 4 months, it sounded like FOREVER! It's been 1 month so far and I'm

already thinking " I hope 4 months is enough " . I mean we've seen improvement

(we saw 30% correction in 2 weeks). But I just want you to know, it goes by

FAST. Just like people always say kids grow so fast, helmet therapy will be

over before you know it. It sounds like a long time, but trust me they get

use to it. I never believed it but it does.

Take care,

in Fountain Valley, CA

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In a message dated 7/15/00 8:52:02 PM Pacific Daylight Time,

SCRUNCH22@... writes:

<< He's such

a happy kid-I would feel bad making him wear something on his head for

so long. >>

, Welcome to the group!!! If you decide to go with it, it won't

affect his personality. Besides, it seems as though band kids do not have to

be in treatment for so long. It would be worth it. My 10mos old son

has been in helmet/PT since Jan. He has worn it 24/7 since the day we got it.

It has served a dual purpose now that he is standing. He has been saved many

times by that helmet when he has spills. When he was DX we didn't think twice

and got the ball rolling right away. I wouldn't wait. You are loosing

valuable time. Belinda (Indiana)

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Hi !

I'm glad that you found the list... I don't have experience with the Phoenix

clinic but go to the Chicago one (and I live in Cincinnati, so I have quite

a drive, too) -- but I do know that all of the bands, if you happen to go

with the DOC band, are made in Phoenix. The casts are made in your clinic

and flown to Phoenix where the band is then made and flown back.

As for disposition changing, or being afraid that your happy baby will not

be as happy -- all I can say is that from early on so many people have told

me what a happy, smiley baby Quinn is (and he really is -- while he has his

share of fussing and such, the majority of the time he is quite content) --

he's been in the DOC band a little over a month -- and I would have to say

that NOTHING has changed in his disposition -- still happy, smiley Quinn!

I know the decision can be a difficult one -- good luck with everything.

H.

(a.k.a. " Kali)

-----Original Message-----

From: SCRUNCH22@... [mailto:SCRUNCH22@...]

Sent: Saturday, July 15, 2000 11:51 PM

Plagiocephalyegroups

Subject: Hi!! I'm new

Hi everyone my name is and I have a 3 year old daughter named

and a 7 month old son named . was diagnosed by his ped

as having moderate plagio. We have a 2nd opinion visit with a

neurologist on August 2nd. My husband doesn't think his head looks bad

at all but I think it's pretty messed up-but only if you look from the

back or side.His face appears normal to me. SO We are relying on what

the neuro says to decide if treatment is necessary. If we go ahead with

the band we will be going to the cllnic in Phoenix since we live in Las

Vegas. It's a five hour drive but I do have a sister there so at least

we can stay overnite. Does anyone on the list have experience with the

Phoenix clinic?

I'm also wondering how you guys have made the decision to go ahead

with treatment. It's so hard to figure out what's right to do. He's such

a happy kid-I would feel bad making him wear something on his head for

so long. Oh well I guess we'l see. I look forward to meeting everyone on

the list!!!

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:

Welcome! My son, Skylar, is 5 months old with moderate to severe Plagio

we've been in our band for 2 1/2 weeks. I decided to go ahead with

treatment because my Pedi and Neuro were so 100% sure on his Plagio and

Tort. It was an easy decision for me, because I wanted to help him as

soon as possible. I had some guilt and ill feelings about the band to

get over, but those have all subsided some. I don't know if you know

this but CT comes to Burbank (Los Angeles, CA area) and San Diego, are

those any closer of a drive for you? I thought LA might be. Keep us

posted and Good Luck.

Sherri

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Dear & Domi,

I'm , Spencer's Mom. Spencer just got his band this past Thursday, July 13, and he has been adjusting wonderfully to it. We haven't had any problems so far, and really Spencer doesn't think anything of it. It was funny too the day he got it, because as we were leaving Cranial Tech., my daughter, Mallory asked where hers was...haha!! Anyway, I wanted to assure you both that I have seen first hand that the band doesn't bother these little tykes whatsoever. Best of luck to you both!

:-)

-----Original Message-----From: Dominika White [mailto:dominika@...]Sent: Sunday, July 16, 2000 11:02 AMPlagiocephalyegroupsSubject: Re: Hi!! I'm new

Hi ...

I'm Dominika and my daughter Aimee is being referred to a cranialfacial specialist. We went ahead and decided that if she needs to wear a helmet/band then she will. I have the same concerns as you and not sure about how I feel about her wearing something on her head for so long but it is the right thing to do for her so she will. Take care and glad you found the group cause I know I am thrilled that I found it!

Domi

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