Guest guest Posted July 16, 2000 Report Share Posted July 16, 2000 : Hi and welcome to the group! I just wanted to assure you that will be just as happy in the band as he is now. Check out the files section to see many many pictures of happy helmet heads!! My daughter has been in her band for 2 1/2 months. It didn't even phase her when she got it. She has slept, played, eaten, etc. the same since day one! After you have had a while to think about all of this, you will know that you are doing the right thing. It's a lot to soak up all at once! Well again, welcome to the group! Kendra SCRUNCH22@... wrote: Hi everyone my name is and I have a 3 year old daughter named and a 7 month old son named . was diagnosed by his ped as having moderate plagio. We have a 2nd opinion visit with a neurologist on August 2nd. My husband doesn't think his head looks bad at all but I think it's pretty messed up-but only if you look from the back or side.His face appears normal to me. SO We are relying on what the neuro says to decide if treatment is necessary. If we go ahead with the band we will be going to the cllnic in Phoenix since we live in Las Vegas. It's a five hour drive but I do have a sister there so at least we can stay overnite. Does anyone on the list have experience with the Phoenix clinic? I'm also wondering how you guys have made the decision to go ahead with treatment. It's so hard to figure out what's right to do. He's such a happy kid-I would feel bad making him wear something on his head for so long. Oh well I guess we'l see. I look forward to meeting everyone on the list!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2000 Report Share Posted July 16, 2000 : Hi, welcome! I too was in your position 2 months ago. I dreaded the idea of my daughter Casey having to wear a helmet in the hot summer months (we're in So Cal). I thought, there goes swimming lessons, what is everyone going to think, etc. etc. I cried and really debated. At any rate, Casey has now been in the helmet for 1 month. We've seen 30% correction in 2 weeks. Casey fussed the weekend she got the helmet (we got it on a Friday), but she got use to it quickly. It's true what everyone says, they look strange without them. Also she kind of looks for it when I take it off (I take it off for bathing). They do get use to it and you will see improvement. It's a big committment in re: to time, money, and " social " adjustments however, I think of it as what's 4 months of wearing a helmet versus being ridiculed later on in life? Positioning has worked for some babies and some babies will correct on their own. In my own experience Casey wasn't correcting on her own. We kind of got use to the flatness and bulging out on the left so we went through the stage of " oh it's not so bad, it'll work itself out, hair will cover it " ....then people started making comments in public about her flatness, so I started to look at her objectively and am now thankful the treatment was available. I feel good with my choice as do many other parents in this group. I know it's a big decision, but we're all here to listen and help. Good luck. in Fountain Valley, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2000 Report Share Posted July 16, 2000 Hi ... I'm Dominika and my daughter Aimee is being referred to a cranialfacial specialist. We went ahead and decided that if she needs to wear a helmet/band then she will. I have the same concerns as you and not sure about how I feel about her wearing something on her head for so long but it is the right thing to do for her so she will. Take care and glad you found the group cause I know I am thrilled that I found it! Domi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2000 Report Share Posted July 16, 2000 and Domi: Just want to say when I was told my daughter would have to wear her helmet for 4 months, it sounded like FOREVER! It's been 1 month so far and I'm already thinking " I hope 4 months is enough " . I mean we've seen improvement (we saw 30% correction in 2 weeks). But I just want you to know, it goes by FAST. Just like people always say kids grow so fast, helmet therapy will be over before you know it. It sounds like a long time, but trust me they get use to it. I never believed it but it does. Take care, in Fountain Valley, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2000 Report Share Posted July 16, 2000 In a message dated 7/15/00 8:52:02 PM Pacific Daylight Time, SCRUNCH22@... writes: << He's such a happy kid-I would feel bad making him wear something on his head for so long. >> , Welcome to the group!!! If you decide to go with it, it won't affect his personality. Besides, it seems as though band kids do not have to be in treatment for so long. It would be worth it. My 10mos old son has been in helmet/PT since Jan. He has worn it 24/7 since the day we got it. It has served a dual purpose now that he is standing. He has been saved many times by that helmet when he has spills. When he was DX we didn't think twice and got the ball rolling right away. I wouldn't wait. You are loosing valuable time. Belinda (Indiana) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2000 Report Share Posted July 17, 2000 Hi ! I'm glad that you found the list... I don't have experience with the Phoenix clinic but go to the Chicago one (and I live in Cincinnati, so I have quite a drive, too) -- but I do know that all of the bands, if you happen to go with the DOC band, are made in Phoenix. The casts are made in your clinic and flown to Phoenix where the band is then made and flown back. As for disposition changing, or being afraid that your happy baby will not be as happy -- all I can say is that from early on so many people have told me what a happy, smiley baby Quinn is (and he really is -- while he has his share of fussing and such, the majority of the time he is quite content) -- he's been in the DOC band a little over a month -- and I would have to say that NOTHING has changed in his disposition -- still happy, smiley Quinn! I know the decision can be a difficult one -- good luck with everything. H. (a.k.a. " Kali) -----Original Message----- From: SCRUNCH22@... [mailto:SCRUNCH22@...] Sent: Saturday, July 15, 2000 11:51 PM Plagiocephalyegroups Subject: Hi!! I'm new Hi everyone my name is and I have a 3 year old daughter named and a 7 month old son named . was diagnosed by his ped as having moderate plagio. We have a 2nd opinion visit with a neurologist on August 2nd. My husband doesn't think his head looks bad at all but I think it's pretty messed up-but only if you look from the back or side.His face appears normal to me. SO We are relying on what the neuro says to decide if treatment is necessary. If we go ahead with the band we will be going to the cllnic in Phoenix since we live in Las Vegas. It's a five hour drive but I do have a sister there so at least we can stay overnite. Does anyone on the list have experience with the Phoenix clinic? I'm also wondering how you guys have made the decision to go ahead with treatment. It's so hard to figure out what's right to do. He's such a happy kid-I would feel bad making him wear something on his head for so long. Oh well I guess we'l see. I look forward to meeting everyone on the list!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2000 Report Share Posted July 17, 2000 : Welcome! My son, Skylar, is 5 months old with moderate to severe Plagio we've been in our band for 2 1/2 weeks. I decided to go ahead with treatment because my Pedi and Neuro were so 100% sure on his Plagio and Tort. It was an easy decision for me, because I wanted to help him as soon as possible. I had some guilt and ill feelings about the band to get over, but those have all subsided some. I don't know if you know this but CT comes to Burbank (Los Angeles, CA area) and San Diego, are those any closer of a drive for you? I thought LA might be. Keep us posted and Good Luck. Sherri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2000 Report Share Posted July 18, 2000 Dear & Domi, I'm , Spencer's Mom. Spencer just got his band this past Thursday, July 13, and he has been adjusting wonderfully to it. We haven't had any problems so far, and really Spencer doesn't think anything of it. It was funny too the day he got it, because as we were leaving Cranial Tech., my daughter, Mallory asked where hers was...haha!! Anyway, I wanted to assure you both that I have seen first hand that the band doesn't bother these little tykes whatsoever. Best of luck to you both! :-) -----Original Message-----From: Dominika White [mailto:dominika@...]Sent: Sunday, July 16, 2000 11:02 AMPlagiocephalyegroupsSubject: Re: Hi!! I'm new Hi ... I'm Dominika and my daughter Aimee is being referred to a cranialfacial specialist. We went ahead and decided that if she needs to wear a helmet/band then she will. I have the same concerns as you and not sure about how I feel about her wearing something on her head for so long but it is the right thing to do for her so she will. Take care and glad you found the group cause I know I am thrilled that I found it! Domi Quote Link to comment Share on other sites More sharing options...
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