Re: Re: Question to the group..........

[Guest guest]

Debbie, you are lucky like several others we know here who have been able to continue to work. I worked until week 12 when my labs dropped too much. But I had a very physical job being a 911 paramedic and I felt like I was possibly putting my patients health and safety on the line because I could not run up and down a hill getting stuff on a car wreck and I started to second guess myself on medical calls which never happened before.. I quit before I hurt someone and quit while I was still on top of my game.. No one else knew that I was second guessing myself but I KNEW... My partner even offered to take every patient and let me just drive the ambulance but even that was becoming difficult at 3 in the morning after no sleep.. so I had to stop working and ended up never being able to go back.. I really miss it but I know that even now I could not work

anymore... JackieSubject: Re: Question to the group..........To: Hepatitis_C_Central Date: Thursday, July 10, 2008, 7:33 AM

Hi-

I am still working full time and even trying to get in some overtime

when I can. I am not treating and they say I have ESLD. I think it

all depends on each indivdual. There are times when I find myself

wondering "was I asleep". I do work at a computer in my own little

space so not out there for all to see and the work is not strenuous. I

need to start looking at disability options for the future in case

needed and be prepared as all should. The insurance is the biggest

plus to working.

Good Luck

Debbie

>

> I was wondering if someone can maintain a job while living with

> Hepatitis C. And would the fatigue from the virus prevent someone

> from working part-time or full-time... ..

>

> Thank you

>

[Guest guest]

I thought the question was about working

and living with hep………not working during tx. Perhaps I

misunderstood.

From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie on

Sent: Thursday, July 10, 2008 4:16

PM

To: Hepatitis_C_Central

Subject: Re:

Re: Question to the group..........

Debbie, you are lucky like several others we know

here who have been able to continue to work. I worked until week 12

when my labs dropped too much. But I had a very physical job being a

911 paramedic and I felt like I was possibly putting my patients health and

safety on the line because I could not run up and down a hill getting stuff

on a car wreck and I started to second guess myself on medical calls which

never happened before.. I quit before I hurt someone and quit while I was

still on top of my game.. No one else knew that I was second guessing myself

but I KNEW... My partner even offered to take every patient and let me just

drive the ambulance but even that was becoming difficult at 3 in the morning

after no sleep.. so I had to stop working and ended up never being able to go

back.. I really miss it but I know that even now I could not work anymore...

Jackie

From: Debbie

<debbielverizonmail>

Subject: Re: Question to the group..........

To: Hepatitis_C_Central

Date: Thursday, July 10, 2008, 7:33 AM

Hi-

I am still working full time and even trying to get in some overtime

when I can. I am not treating and they say I have ESLD. I think it

all depends on each indivdual. There are times when I find myself

wondering " was I asleep " . I do work at a computer in my own little

space so not out there for all to see and the work is not strenuous. I

need to start looking at disability options for the future in case

needed and be prepared as all should. The insurance is the biggest

plus to working.

Good Luck

Debbie

>

> I was wondering if someone can maintain a job while living with

> Hepatitis C. And would the fatigue from the virus prevent someone

> from working part-time or full-time... ..

>

> Thank you

>

[Guest guest]

This is what I was answering Dorothy because most ppl do treat this virus...I was wondering if someone can maintain a job while living with

> Hepatitis C. And would the fatigue from the virus prevent someone

> from working part-time or full-time... ..Jackie From: Debbie

<debbiel@verizonmail .com>

Subject: [Hepatitis_C_ Central] Re: Question to the group....... ...

To: Hepatitis_C_ Central@yahoogro ups.com

Date: Thursday, July 10, 2008, 7:33 AM

Hi-

I am still working full time and even trying to get in some overtime

when I can. I am not treating and they say I have ESLD. I think it

all depends on each indivdual. There are times when I find myself

wondering "was I asleep". I do work at a computer in my own little

space so not out there for all to see and the work is not strenuous. I

need to start looking at disability options for the future in case

needed and be prepared as all should. The insurance is the biggest

plus to working.

Good Luck

Debbie

>

> I was wondering if someone can maintain a job while living with

> Hepatitis C. And would the fatigue from the virus prevent someone

> from working part-time or full-time... ..

>

> Thank you

>

[Guest guest]

I guess I’m reading it differently. I

believe she’s asking if she can “maintain a job while living with Hepatitis C”

and no mention of treating it.

Different perspective I guess.

From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie on

Sent: Thursday, July 10, 2008 4:49

PM

To: Hepatitis_C_Central

Subject: RE:

Re: Question to the group..........

This is what I was answering Dorothy because most

ppl do treat this virus...

I was wondering if someone can maintain a job while living with

> Hepatitis C. And would the fatigue from the virus prevent someone

> from working part-time or full-time... ..

Jackie

From:

Debbie <debbiel@verizonmail .com>

Subject: [Hepatitis_C_ Central] Re: Question to the group....... ...

To: Hepatitis_C_ Central@yahoogro ups.com

Date: Thursday, July 10, 2008, 7:33 AM

Hi-

I am still working full time and even trying to get in some overtime

when I can. I am not treating and they say I have ESLD. I think it

all depends on each indivdual. There are times when I find myself

wondering " was I asleep " . I do work at a computer in my own

little

space so not out there for all to see and the work is not strenuous. I

need to start looking at disability options for the future in case

needed and be prepared as all should. The insurance is the biggest

plus to working.

Good Luck

Debbie

>

> I was wondering if someone can maintain a job while living with

> Hepatitis C. And would the fatigue from the virus prevent someone

> from working part-time or full-time... ..

>

> Thank you

>

[Guest guest]

, I totally relate to what you are saying.. I stopped when I began to question my decisions on the ambulance... its scary when things happen like that..you did the right thing..JackieSubject: Re: Question to the group..........To: Hepatitis_C_Central Date: Friday, July 11, 2008, 5:35 PM

I quit so I wouldn't kill someone:) I was a Pharmacy Tech that was

trusted and well respected by all the Pharmacists I worked for. It

seemed to happen so slowly the fatigue then the mistakes.... BIG

mistakes that I never would have made in the past. I chalked it up to

old age (I'm 54). Then one day after literally crawling home from

work my legs so bloated I thought they would explode, I asked for a

leave of absence. I knew it was serious but never thought it could be

HepC. I applied for SSDI that day and 3 months later I got it because

I am ESLD. I guess it depends on what type of job you have and if you

have very bad encephalophy (brain fog) I think I was able to go so

long because there is not a thing wrong with me except HepC and the

usual side effects from it. I have also always ate well and did not

drink or do drugs of any kind. I say do it if you can as long as you

can take care of yourself properly. Its very difficult to eat right

and work. Most of my days are spent cooking and preparing meals. I

have to eat every 2 hours so its quite a project and I cannot eat any

processed foods so Everything must be made from scratch.

>

> I was wondering if someone can maintain a job while living with

> Hepatitis C. And would the fatigue from the virus prevent someone

> from working part-time or full-time... ..

>

> Thank you

>

[Guest guest]

You are a tough cookie, I sure admire you, ..

Hugs,

Sheena

I quit so I wouldn't kill someone:) I was a Pharmacy Tech that was trusted and well respected by all the Pharmacists I worked for. It seemed to happen so slowly the fatigue then the mistakes.... BIG mistakes that I never would have made in the past. I chalked it up to old age (I'm 54). Then one day after literally crawling home from work my legs so bloated I thought they would explode, I asked for a leave of absence. I knew it was serious but never thought it could be HepC. I applied for SSDI that day and 3 months later I got it because I am ESLD. I guess it depends on what type of job you have and if you have very bad encephalophy (brain fog) I think I was able to go so long because there is not a thing wrong with me except HepC and the usual side effects from it. I have also always ate well and did not drink or do drugs of any kind. I say do it if you can as long as you can take care of yourself

properly. Its very difficult to eat right and work. Most of my days are spent cooking and preparing meals. I have to eat every 2 hours so its quite a project and I cannot eat any processed foods so Everything must be made from scratch.>> I was wondering if someone can maintain a job while living with> Hepatitis C. And would the fatigue from the virus prevent someone> from working part-time or full-time... ..> > Thank you>

[Guest guest]

Thanks for the answers....it's not me that has it, its my wife who tested positive while in treatment for something else. We were just trying figure out where to set our expectations........she is 28, She has a set of twins who are 7 years old

and one of them tested positive (the other twin is getting checked again, and both the 10 and 13 year old tested negative) also but they are doing more work on her to see if she is positive or just has been exposed.I believe this is how they explained it.......Tiff has not been able to work since finding out she was positive,

............I was just wondering what to expect.....thanks again,Modie

I think the answer to that depends on the individual. The people that I knew that had Hep C from the early 60's worked to retirement. I worked off and on to age 65. I was never a great employee---so I really can't use myself as an example. Still, I have always managed to support myself. I took care of my mom, who had dementia, cared for my grandson every summer for 7 yrs after my son was killed, and still buy and sell property. I have really slowed down this past year or so, but I will be 74 next month. I live alone, drive everywhere, pay bills on time and hate housework---just as I did when I was young.

The progression of the disease appears to be different in everyone----and I don't know why. Not using alcohol is a big reason some are healthier. Long before Hep C, I had variations in my energy levels, so I just considered it normal--for me.

You need to know the condition of your liver when considering how long you can work. Only a biopsy can give you that infromation. At age 65, after 30+ years of hep c, my liver was only in early stage 2 fibrosis and mild fatty liver. I don't know how it is now. Many, especially in my age group, live, work and die without even knowing they have the disease. I know this doesn't give you an answer, but there is no way to give anyone else the answer. I can just say how it is for me. You will need to know about how hep c has affected your liver and your health.

SuziQ

Quinn

In the swamp in secluded recesses, a shy and hidden bird is warbling a song. Walt Whitman

[Guest guest]

If she's anything like I was, the shock was intense when first diagnosed

and it sure took some time to accept..like almost 2 years..

Just a thought, she may need more time..

What helped me was this Group, as well as doing tons of my own research.

Best to you all,

Sheena

--

Thanks for the answers....it's not me that has it, its my wife who tested positive while in treatment for something else. We were just trying figure out where to set our expectations. .......she is 28, She has a set of twins who are 7 years old and one of them tested positive (the other twin is getting checked again, and both the 10 and 13 year old tested negative) also but they are doing more work on her to see if she is positive or just has been exposed.I believe this is how they explained it.......Tiff has not been able to work since finding out she was positive, ...........I was just wondering what to expect.....thanks again,Modie

On Sat, Jul 12, 2008 at 9:09 AM, Suzi Q <ancientkron@ yahoo.com> wrote:

I think the answer to that depends on the individual. The people that I knew that had Hep C from the early 60's worked to retirement. I worked off and on to age 65. I was never a great employee---so I really can't use myself as an example. Still, I have always managed to support myself. I took care of my mom, who had dementia, cared for my grandson every summer for 7 yrs after my son was killed, and still buy and sell property. I have really slowed down this past year or so, but I will be 74 next month. I live alone, drive everywhere, pay bills on time and hate housework--- just as I did when I was young.

The progression of the disease appears to be different in everyone---- and I don't know why. Not using alcohol is a big reason some are healthier. Long before Hep C, I had variations in my energy levels, so I just considered it normal--for me.

You need to know the condition of your liver when considering how long you can work. Only a biopsy can give you that infromation. At age 65, after 30+ years of hep c, my liver was only in early stage 2 fibrosis and mild fatty liver. I don't know how it is now. Many, especially in my age group, live, work and die without even knowing they have the disease. I know this doesn't give you an answer, but there is no way to give anyone else the answer. I can just say how it is for me. You will need to know about how hep c has affected your liver and your health.

SuziQ

Quinn

In the swamp in secluded recesses, a shy and hidden bird is warbling a song. Walt Whitman

[Guest guest]

Modie,Did your twin who tested pos have a viral load? If she tests pos but has no viral load, then her body put it into remission on its own and she is very lucky.. but she will need to remain healthy by not drinking, not using drugs, eating properly and generally just taking good care of herself.. I think that everyone gave good answers to your questions but keep on asking them if you have more,, thats what we are here for!Jackie

I think the answer to that depends on the individual. The people that I knew that had Hep C from the early 60's worked to retirement. I worked off and on to age 65. I was never a great employee---so I really can't use myself as an example. Still, I have always managed to support myself. I took care of my mom, who had dementia, cared for my grandson every summer for 7 yrs after my son was killed, and still buy and sell property. I have really slowed down this past year or so, but I will be 74 next month. I live alone, drive everywhere, pay bills on time and hate housework--- just as I did when I was young.

The progression of the disease appears to be different in everyone---- and I don't know why. Not using alcohol is a big reason some are healthier. Long before Hep C, I had variations in my energy levels, so I just considered it normal--for me.

You need to know the condition of your liver when considering how long you can work. Only a biopsy can give you that infromation. At age 65, after 30+ years of hep c, my liver was only in early stage 2 fibrosis and mild fatty liver. I don't know how it is now. Many, especially in my age group, live, work and die without even knowing they have the disease. I know this doesn't give you an answer, but there is no way to give anyone else the answer. I can just say how it is for me. You will need to know about how hep c has affected your liver and your health.

SuziQ

Quinn

In the swamp in secluded recesses, a shy and hidden bird is warbling a song. Walt Whitman