Hi I'm new am I in the right place?

[Guest guest]

Hi my name is Sue I am 45 and I have just had my diagnosis two days

ago yet I suspect I have had this disease without knowing for 15-20

years! I am in shock although I knew I wasn't well I wasn't

expecting this. I thought I was just exhausted through stress, an

insomniac who was working too hard and trying to run a house and keep

three teenagers in check.

I have read so much over the past two days so I know what to expect

but it all seems so scary. The one thing that petrifies me is the

liver biopsy although I haven't had my ultrasound scan yet, is there

any chance I won't need one.....I doubt it! If I had known years

before I would have taken more care of myself by not drinking but hey

I suppose we all feel like that do we?

I am sure you have all been through this part and I am hoping for

some words of hope......I am in pieces emotionally and one of my

worst fears is that I have given it to my son (I had a blood

transfusion after his birth before they started screening for C)

Help

Sue

[Guest guest]

Howdy Sue!

Sorry about your diagnosis, but welcome to the group.

I've known about my HCV since 1988. I haven't had an ultrasound. I've had no

reason to have one. It's my opinion every hepper needs at least one biopsy. My

biopsy was a piece of cake. No pain, in and out really quick and quite

uneventful really. Take a good book to read, it's pretty boring.

Alley

Grand Prairie, Tx

[Guest guest]

Hi sue

My name is Jackie and I too got hep from a blood

transfusion when I had my first child 26 years ago. I

found out about it 3 years ago. I was quite advanced

at stage 3-4 with early cirrhosis and geno 1a/ I

treated, cleared and remain clear 18 months post tx.

The end of Feb will be my 2 year mark.

The biopsy sounds scarier than it is.. I had conscious

sedation and I dont remember a thing. piece of cake..

I would ask your doc to give you this kind of

sedation, there is no reason to not have it. Its

really a piece of cake ...

Remember, most of us will die with the disease , not

from it, there is a lot of new meds on the horizon.

But you wont know IF you need to treat until you have

that biospy. I know there is a blood test called

fibrosure that is pretty accurate in diagnosising

fibrosis/cirrhoisis but the biopsy is still the gold

standard..

Try to not stress it too much, I know its not easy.

The diagnosis is such a shock but you will get used to

it.

BTW, I had another child 5 years after I got the

tainted blood and she is negative. Transmission from

mother to child is fairly rare, less than 5% but it is

something you should check out!

God Bless

jax

--- susiedizzy wrote:

>

> Hi my name is Sue I am 45 and I have just had my

> diagnosis two days

> ago yet I suspect I have had this disease without

> knowing for 15-20

> years! I am in shock although I knew I wasn't well

> I wasn't

> expecting this. I thought I was just exhausted

> through stress, an

> insomniac who was working too hard and trying to run

> a house and keep

> three teenagers in check.

>

> I have read so much over the past two days so I know

> what to expect

> but it all seems so scary. The one thing that

> petrifies me is the

> liver biopsy although I haven't had my ultrasound

> scan yet, is there

> any chance I won't need one.....I doubt it! If I

> had known years

> before I would have taken more care of myself by not

> drinking but hey

> I suppose we all feel like that do we?

>

> I am sure you have all been through this part and I

> am hoping for

> some words of hope......I am in pieces emotionally

> and one of my

> worst fears is that I have given it to my son (I had

> a blood

> transfusion after his birth before they started

> screening for C)

>

> Help

> Sue

>

>

>

>

=====

Jackie

[Guest guest]

Hi Jackie

Thank you so much for your words of hope jax and much respect to you

for going through what you must have been through to get where you

are I am so happy for you....just wiping the tears away...can't seem

to stop crying at the moment...sorry

By tx do you mean treatment? What treatment did you have? Were you

able to go to work while taking it? Sounds like you are keeping on

top of it now that's great :-))

I guess it takes time to take it all in and accept it...half of me

wants to deny that it's happening and just carry on regardless....

but I'm getting there....I've even resigned myself to the biopsy now

and no worries will make sure they give me whatever drugs I can

have...otherwise I will be out of the door in a blind panic! I'm such

a baby!

I am awaiting the results of my second blood test which is the one

which is more specialised....can they tell you what type etc...will

that give me a better idea of what stage I am at?

I will ask my doctor about fibrosure test altho if you are in America

then probably here in England they will never have heard of it....we

are always behind LOL. Will get my boy tested asap and my

partner...our wedding is planned for July....I'm gonna try and focus

on that if I can for now.

Many thanks for your support

Sue

xxxxxx

>

> >

> > Hi my name is Sue I am 45 and I have just had my

> > diagnosis two days

> > ago yet I suspect I have had this disease without

> > knowing for 15-20

> > years! I am in shock although I knew I wasn't well

> > I wasn't

> > expecting this. I thought I was just exhausted

> > through stress, an

> > insomniac who was working too hard and trying to run

> > a house and keep

> > three teenagers in check.

> >

> > I have read so much over the past two days so I know

> > what to expect

> > but it all seems so scary. The one thing that

> > petrifies me is the

> > liver biopsy although I haven't had my ultrasound

> > scan yet, is there

> > any chance I won't need one.....I doubt it! If I

> > had known years

> > before I would have taken more care of myself by not

> > drinking but hey

> > I suppose we all feel like that do we?

> >

> > I am sure you have all been through this part and I

> > am hoping for

> > some words of hope......I am in pieces emotionally

> > and one of my

> > worst fears is that I have given it to my son (I had

> > a blood

> > transfusion after his birth before they started

> > screening for C)

> >

> > Help

> > Sue

> >

> >

> >

> >

>

>

> =====

> Jackie

[Guest guest]

Hi Alley

Thank you for your positive words.....I feel a bit calmer now..I

think I got mine in 1988 wish I'd known....finding it hard to be

positive just yet but I think I've resigned myself to having the

biopsy.....aggghhhhh it might be a month from now tho but will let

you know how I get on....I promise I will try and be brave ;-)

Cheers Alley (is that Texas?)

Sue

xxxx

> Howdy Sue!

>

> Sorry about your diagnosis, but welcome to the group.

>

> I've known about my HCV since 1988. I haven't had an ultrasound.

I've had no reason to have one. It's my opinion every hepper needs

at least one biopsy. My biopsy was a piece of cake. No pain, in and

out really quick and quite uneventful really. Take a good book to

read, it's pretty boring.

>

> Alley

> Grand Prairie, Tx

>

>

>