Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 Hi All, I haven't heard from Patty since the 29th, that is very odd as she is so active here in posting and helping. Did she have her chat today? I didn't see a post and she hasn't been well lately. Please let me know if anyone has spoken to her personally, I am very worried about her. Take Care Sheri djjd@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 I sent her a personal email asking her if she was okay and no reply either. Caroline Matheson wrote: Hi All, I haven't heard from Patty since the 29th, that is very odd as she is so active here in posting and helping. Did she have her chat today? I didn't see a post and she hasn't been well lately. Please let me know if anyone has spoken to her personally, I am very worried about her. Take Care Sheri djjd@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 I sent her a personal email asking her if she was okay and no reply either. Caroline Matheson wrote: Hi All, I haven't heard from Patty since the 29th, that is very odd as she is so active here in posting and helping. Did she have her chat today? I didn't see a post and she hasn't been well lately. Please let me know if anyone has spoken to her personally, I am very worried about her. Take Care Sheri djjd@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2002 Report Share Posted January 13, 2002 Nicely said Patty, your attitude is an inspiration for me and I always know that you have a smile and something always kind to say. Love, sue #2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2002 Report Share Posted January 22, 2002 Thanks Patty, I really appreciate that. I just figured that I would get caught up on mail first. I always want to know that everyone is alright, I guess it's peace of mind. Hugs, Love, sue #2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2002 Report Share Posted January 22, 2002 Thanks Patty, I really appreciate that. I just figured that I would get caught up on mail first. I always want to know that everyone is alright, I guess it's peace of mind. Hugs, Love, sue #2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2002 Report Share Posted January 22, 2002 Thanks Patty, I really appreciate that. I just figured that I would get caught up on mail first. I always want to know that everyone is alright, I guess it's peace of mind. Hugs, Love, sue #2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2002 Report Share Posted January 25, 2002 Dear Patty, I am glad you will be reunited with your Doc. who originally diagnosed you. I think it would be interesting to unite with my original Doc's. I hope your feeling well. Have a wonderful day. Love, jatw@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2002 Report Share Posted January 25, 2002 Dear Patty, I am glad you will be reunited with your Doc. who originally diagnosed you. I think it would be interesting to unite with my original Doc's. I hope your feeling well. Have a wonderful day. Love, jatw@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2002 Report Share Posted January 25, 2002 Dear Patty, I am glad you will be reunited with your Doc. who originally diagnosed you. I think it would be interesting to unite with my original Doc's. I hope your feeling well. Have a wonderful day. Love, jatw@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2009 Report Share Posted July 16, 2009 Krista,I think I am going for it because she just will not go in the crib and I was so used to her being my good sleeper! She has been a little cranky at times the last few days during the day and it looks like she is trying to get the cast off and I feel so bad! Patty, mom of Isabella, 22 months old, in 1st cast (Rochester)To: infantile_scoliosis Sent: Wednesday, July 15, 2009 8:57:54 PMSubject: Patty Patty, Yes, Jack's room now has a vintage sports vibe!! Last night I caught him staring at the antique sports shadow box that I hung right before bed time and he looked a little freaked out! Yes, I have found that the bed is much more comfortable for Jack than the crib. Cast 3 proved to be horrible for Jack's sleeping issues. He literally was up every 3 hrs of 3 months!!!! I would pull him into the spare bed with me...but it really did not help much, but I truly felt that he was more comfortable in the bed than the crib...so I would go for it!! Hope all is well.~KristaJack's Mom, Jack is 23 months old, in his 1st brace from Shriners Hospital in Salt Lake City, Utah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2009 Report Share Posted September 1, 2009 Glad my post didnt persuade you to give up on CAST! Thanks Patty. HRH > > > > > > > > > From: Darrell McMow <dmcmowshaw (DOT) ca> > > > Subject: Re: [infantile_scoliosi s] Re: t-shirt removal > > > To: infantile_scoliosis @yahoogroups. com > > > Date: Friday, August 21, 2009, 10:14 PM > > > > > > > > > > > > Sherry > > > > > > We also remove my son's T-shirt once a week and put a clean one back on him. > > > The thing with it is its so easy to do. It takes me less then 10 minutes to take it off and put a clean one back on. I have discussed this with my son's Dr. in SLC and he was all for it and told me that the french Dr.s do this all the time. The last cast change they even gave me an extra T shirt so I have been doing this for 8 months never had a problem. Our Dr. did not discourage me from doing this at all but encouraged me to continue doing it. When his cast comes off now we have NO dry skin NO skin irritations and its like he's absolutely clean. I cant say that for any cast we have had before that. We always had some problems before so yes I will continue to remove and replace the tshirt. The thing with it is when his cast is removed now he does'nt even sratch himself. So is it so wrong to continue to do something that works so well. > > > > > > If I went by what everyone thinks should be the rules of cast care we still would be at square one. After 12 casts I think I know whats right or wrong in my son's care. I would rather think outside of the box rather than being stuck inside of it. > > > > > > I trim problem spots myself. > > > I use neoprene to petal my sons cast this allows us to be more liberal with water and water play. Because the outside of his cast is water resistant. I actually wash the outside of the cast with soap and water. > > > I remove the t-shirt and put a clean one back on never had a problem doing this. > > > We go to the park and yes he plays in the sand. > > > He takes a shower with me twice a week with his shower vest. > > > I take him swimming to the pool 2 times a week with his drysuit. We actually do PT in the pool. > > > > > > I also have a few more things that I will be doing at the end of this cast and onto the next cast. But I know for us cast life is just getting easier with each one. > > > For us this is just normal cast life. Always thinking outside the BOX. > > > > > > And yes my son has an over the shoulder cast! > > > My son's DR has never said anything to me that the things I do are wrong ever. > > > > > > So these are just my experiences with cast life and the things I do for my son. > > > I do the things that I think are right for us. If you dont want to try new things dont. If you are unsure then dont do it. But also know that there are other options you can try! > > > > > > Darrell > > > > > > > > > > > > > > > > > > > > > > > > [infantile_scoliosi s] Re: t-shirt removal > > > > > > > > > > > > Krista, > > > Of course is an expert in cast care and I respect all that she has done (I wouldn't come here if I didn't). However, I am an expert in my child and what my abilities are (under the guidance and approval of our Dr. who ultimately has the final say). I have read here several times about " skin breakdown " and to tell you the honest truth I don't even know what that means?!!? Logan has never had that problem or any problem with his skin. Maybe it's because he's five years old, I don't know, but his skin looks fresh and clean between casts and I truely believe it's because I change his shirt. I know the idea of it seems overwhelming to some people but for me, it's very simple to get on and off and he LOVES when I do it. When we done there are absolutely no bumps in the shirt anywhere. It's possible that it's easier for us since he has an underarm cast but again, I am sharing the experience with our child. The first time I actually tried it we we > > Sherry > > > Mom to Logan, Age 5 > > > Currently in 3rd cast from Erie Shriners > > > > > > > Sherry, > > > > I have to share that as the Moderator/Head of this website and CAST group...she () really does have the most experience is what the recommendations are for cast care. I now that from time to time this issue with the t-shirt gets brought up and there are parents that chime in suggesting exactly what you have shared....BUT I have to share that my son had a MAJOR GI bug...with vomiting, diarrhea the whole works....sooo bad that he was hospitalized. The vomit was everywhere the shirt reeked of it...but I never even thought about taking it off.. The idea that this could even possibly cause a skin break- down was enough for me to live with the smell. I think that parents should know that this is a real possibility. I would rather have a lil " Pig Pen " child then deal with any skin break down or sores. Just not worth it! > > > > > > > > ~Krista > > > > Jack's Mom, Jack is 25 months old, in his 1st brace > > > > Jack started casting at 41 degrees and is now measuring 0 in his brace!!! > > > > Receiving care from Shriners Hospital in Salt Lake City, Utah > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.