Re: Cheryl

[Guest guest]

Thank you Cheryl. This helps so much! How is he?

From: LewyLady@...

Reply-To: LBDcaregivers

Date: Thu, 12 Sep 2002 22:10:01 EDT

To: LBDcaregivers

Subject: Re: LBD/atypical Parkinsins/broken arm

Welcome, , and I, too, am glad you found us!! I am so sorry for

your

dad's condition and the broken arm - - - I believe I would manage it as you

are. I look forward to hearing more from you.

Cheryl, caring for 73 yo husband

[Guest guest]

In a message dated 9/13/02 11:41:02 PM Central Daylight Time,

gjandcjandmj@... writes:

> Thank you Cheryl. This helps so much! How is he?

Hi, . I hesitate to say how well, because he is doing so much better

than anyone ever envisioned or than anyone else here. It is 4.5 yrs since

diagnosis and he is still remarkably well, except for those " Lewy " phases.

The research interviewer at Hopkins said he " is beating the statistical odds

for decline " by a wide margin. We are very, very blessed. Cheryl

[Guest guest]

Cheryl

" Beating the statistical odds for decline " by a wide margin...this is

WONDERFUL to say the least. I truly love to read these positive posts

so please share your story anytime. Thank you!

Sandie

Des Moines, IA

[Guest guest]

> The research interviewer at Hopkins said he " is beating the

statistical odds

> for decline " by a wide margin. We are very, very blessed. Cheryl

>

Cheryl

it is great that he is beating the statistical odds. in a time when

there is not alot of good things to talk about it is nice to have

something positive that we can all cheer about. smiling heals the

heart..laughters mends the soul...keep sending good news regardless

of how everyone else is doing...we love to hear it.

[Guest guest]

Hi Cheryl,

I'm so happy to hear this. May this continue to be the case. Hang on to

hope! Enjoy every day. This is what we have done. You know, it's what we

should do anyway, whether our loved ones are ill or well.

Love,

From: LewyLady@...

Reply-To: LBDcaregivers

Date: Sat, 14 Sep 2002 23:40:29 EDT

To: LBDcaregivers

Subject: Re: Cheryl

In a message dated 9/13/02 11:41:02 PM Central Daylight Time,

gjandcjandmj@... writes:

> Thank you Cheryl. This helps so much! How is he?

Hi, . I hesitate to say how well, because he is doing so much

better

than anyone ever envisioned or than anyone else here. It is 4.5 yrs since

diagnosis and he is still remarkably well, except for those " Lewy " phases.

The research interviewer at Hopkins said he " is beating the statistical odds

for decline " by a wide margin. We are very, very blessed. Cheryl

[Guest guest]

Hi Cheryl,

I'm so happy to hear this. May this continue to be the case. Hang on to

hope! Enjoy every day. This is what we have done. You know, it's what we

should do anyway, whether our loved ones are ill or well.

Love,

From: LewyLady@...

Reply-To: LBDcaregivers

Date: Sat, 14 Sep 2002 23:40:29 EDT

To: LBDcaregivers

Subject: Re: Cheryl

In a message dated 9/13/02 11:41:02 PM Central Daylight Time,

gjandcjandmj@... writes:

> Thank you Cheryl. This helps so much! How is he?

Hi, . I hesitate to say how well, because he is doing so much

better

than anyone ever envisioned or than anyone else here. It is 4.5 yrs since

diagnosis and he is still remarkably well, except for those " Lewy " phases.

The research interviewer at Hopkins said he " is beating the statistical odds

for decline " by a wide margin. We are very, very blessed. Cheryl

[Guest guest]

Hi Cheryl

Ditto to what Maree said in response to your post - we want details

please - you can't just say you are regularly seeing a nice man and

leave it at that - enquiring minds in Sydney want to know what's

happening!!! You sound bright and bubbly and so nice to see you are

doing well. Bandit life here has been very social lately and always

fun. Don't be a stranger - keeps us updated on your life in Akld

Hugs

Cherie

>

> OMG why wouldn't you be smiling you gorgeous thing. Such a social

> calendar. Shame about cold, frosty on but sunny Fiji sounds

> wonderful. I will let you know for sure next trip we are doing. I

am

> having a port replacement this Friday and some investigation. I

have

> actually given authority for band replacemnt or hernia or anything

> else while I'm 'under' to fix up my reflux problem. I don't mind,

it's

> all good, I just want to get fixed and start loosing some more. I

have

> plateaued for the past 4 months ...Not happy Jan!! Whatever, I'm at

a

> better place than this time last year and a different girl

altogether

> than the year before that. Glad to hear from you and would

appreciate

> more info on this nice man? Have you told me about him before? Is

it

> the 'holiday' one?? I have a prospect too, but, at the wrong time

with

> this surgery about to happen. Oh well, I'm not going anywherre!!

Glad

> your dancing, I know you love that and table for 6, tell me about

it

> as I have often thought about that myself. It's a bit expensive and

a

> lot of their functions are week nights over here which is no good

for

> me with my God awful early starts. Best wishes,

> Maree_____________________________________________________________

> > Read the latest Hollywood gossip @

> http://xtramsn.co.nz/entertainment

> >

>

[Guest guest]

Hi Cheryl, congratulations on becoming normal. Soooo, how does it

feel?

Could you give us a brief bandography? This would be great

encouragement for the newbies and helpful for some of us stuck in a

rut.

Cheers, Rosie.

>

>

> Dear Cheryl

>

> Its is so beautiful to hear from you again. What a wonderful

thing to

> have hit `normal' life sounds like it is fantastic ride for you

> at the moment. Hang on with both hands! Keep on enjoying them.

I hope

> our friends that have taken some time out will come back again

soon to

> us, like you I miss them so much.

>

>

>

> Nx

>

[Guest guest]

Cheryl

That is lovely; I have tears of joy in my eyes. That is so supremely wonderful and thoroughly deserved my sweet! You sound like you had a fantastic night, thankyou so much for sharing.

Nx

[Guest guest]

Cheryl,

What fantastic news. I think this one's a keeper. Thanks for your lovely news of the divine evening, I can just see you now, you must feel like the cat that got the cream. Ain't love grand!

Now keep purring!

(A)

[Guest guest]

Hi Cheryl,

If it is beleived to be deemed medically necessary and scarce in NZ, is there not some type of reciprocal scheme between Aus Medicare and you NZ equivalent? Could be something to look into.

Hugs

(A)

[Guest guest]

Thanks

I have medical insurance but it does not cover anything that is deemed

cosmetic. It would be impossible to get anything done in the public system

here so I just have to pay for it myself and go privately. They would not

think my sagging tum or boobs was life threatening, which it isn't of

course, just makes you feel miserable. But saying that, it is a very small

price to pay having sagging bits when you consider the difference weight

loss has made to my life.

I would like to have everything done at once to save on the cost of surgery,

but the specialist will not do that he said, one at a time. As the first lot

of surgery I want to have is 8.5 hours in theatre, and they will not go on

to do the tummy tuck after that.

Cheryl

Have a great Day!!

>

>Reply-To: SydBand

>To: <SydBand >

>Subject: Re: Cheryl

>Date: Fri, 22 Sep 2006 12:57:01 +1000

>

>Hi Cheryl,

>

>If it is beleived to be deemed medically necessary and scarce in NZ, is

>there not some type of reciprocal scheme between Aus Medicare and you NZ

>equivalent? Could be something to look into.

>

>Hugs

>

> (A)

_________________________________________________________________

Need more speed? Get Xtra Broadband @

http://jetstream.xtra.co.nz/chm/0,,202853-1000,00.html

[Guest guest]

Hey there again - Cheryl this surgery is called reconstructive here,

not cosmetic and because of the problems caused by excess skin is

deemed medically necessary. We aren't covered for cosmetic here

either, nor will the tax dept give their 20% rebate for cosmetic, but

no probs for us after wls to prove that it isn't being done for

cosmetic reasons. The surgeon I saw will also do both ops at the

same time and it does save on cost - might be worth a phone call to

Mazz's doc to get some questions answered and costings. Cosmetic

surgery has been taken out of public hospitals here but I was on a

wait list for mine in the public system as my insurance won't cover

the private hosp cost for reconstructive surgery and an available

date came up within about 2 mths. I canned it as I am not at a low

enough weight yet to do this.

Ciao

Cherie

>

> Thanks

>

> I have medical insurance but it does not cover anything that is

deemed

> cosmetic. It would be impossible to get anything done in the public

system

> here so I just have to pay for it myself and go privately. They

would not

> think my sagging tum or boobs was life threatening, which it isn't

of

> course, just makes you feel miserable. But saying that, it is a

very small

> price to pay having sagging bits when you consider the difference

weight

> loss has made to my life.

>

> I would like to have everything done at once to save on the cost of

surgery,

> but the specialist will not do that he said, one at a time. As the

first lot

> of surgery I want to have is 8.5 hours in theatre, and they will

not go on

> to do the tummy tuck after that.

>

> Cheryl

>

>

> Have a great Day!!

>

>

> >

> >Reply-To: SydBand

> >To: <SydBand >

> >Subject: Re: Cheryl

> >Date: Fri, 22 Sep 2006 12:57:01 +1000

> >

> >Hi Cheryl,

> >

> >If it is beleived to be deemed medically necessary and scarce in

NZ, is

> >there not some type of reciprocal scheme between Aus Medicare and

you NZ

> >equivalent? Could be something to look into.

> >

> >Hugs

> >

> > (A)

>

> _________________________________________________________________

> Need more speed? Get Xtra Broadband @

> http://jetstream.xtra.co.nz/chm/0,,202853-1000,00.html

>

[Guest guest]

Cheryl need ure advice again and will continue to do so in future.

What do u feel about Spect scan and iron supplements. My son is about the same age as ure son and we have just started Valtrex now full doze with Diflucan on board. thks and rgds Kavita

Re: new here

No, you can give with the rest of your supps. Liquid is easier on taste buds, for sure! We saw hyperactivity for about 2 weeks but big language and cognitive gains. Yeasty behavior after about 3 weeks and we started Nizoral after 4 weeks. Definitely have a good antifungal on board! We saw *amazing* gains after adding the anti-fungal. Valtrex alone was nice but once we had both we saw real "wows".

Cheryl

Hi,

we are just starting valtrex. I had it compounded in a liquid suspension so I'm hoping the taste won't be as bitter as I've heard the pills are.

Should it be given away from supplements? If so, how long?

I would also like to know how soon you have seen changes either good or bad after starting the valtrex.

Thank you.

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[Guest guest]

should not give probiotics at same time as valtrex.kavita mallik wrote: Cheryl need ure advice again and will continue to do so in future. What do u feel about Spect scan and iron supplements. My son is about the same age as ure son and we have

just started Valtrex now full doze with Diflucan on board. thks and rgds Kavita Re: new here No, you can give with the rest of your supps. Liquid is easier on taste buds, for sure! We saw hyperactivity for about 2 weeks but big language and cognitive gains. Yeasty behavior after about 3 weeks and we started Nizoral after 4 weeks. Definitely have a good antifungal on board! We saw *amazing* gains after adding the anti-fungal. Valtrex alone was nice but once we had both we saw real "wows". Cheryl On

May 2, 2007, at 7:15 PM, Donnanj04 wrote: Hi, we are just starting valtrex. I had it compounded in a liquid suspension so I'm hoping the taste won't be as bitter as I've heard the pills are. Should it be given away from supplements? If so, how long? I would also like to know how soon you have seen changes either good or bad after starting the valtrex. Thank you.

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[Guest guest]

Why not?? I've never heard that. I ask because we are currently giving them.Maurine Meleck wrote: should not give probiotics at same time as valtrex.kavita mallik <kavita_d_mallik> wrote: Cheryl need ure advice again and will continue to do so in future. What do u feel about Spect scan and iron supplements. My son is about the same age as ure son and we have just started Valtrex now full doze with Diflucan on board. thks and rgds Kavita Re: new here No, you can give with the rest of your supps. Liquid is easier on taste buds, for sure! We saw hyperactivity for about 2 weeks but big language and cognitive gains. Yeasty behavior after about 3 weeks and we started Nizoral after 4

weeks. Definitely have a good antifungal on board! We saw *amazing* gains after adding the anti-fungal. Valtrex alone was nice but once we had both we saw real "wows". Cheryl Hi, we are just starting valtrex. I had it compounded in a liquid suspension so I'm hoping the taste won't be as bitter as I've heard the pills are. Should it be given away from supplements? If so, how long? I would also like to know how soon you have seen changes either good or bad after starting the valtrex. Thank you. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos.

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[Guest guest]

As far I know, probiotics only need to be separated from an anti-biotic as the two cancel each other.  A probiotic and an anti-viral do not effect one another.  If you have some evidence of this, I'd love to see it as it is new news to me.  I'm always happy to learn something new!  :)Cherylshould not give probiotics at same time as valtrex.kavita mallik <kavita_d_mallik> wrote:Cheryl need ure advice again and will continue to do so in future.What do u feel about Spect scan and iron supplements. My son is about the same age as ure son and we have just started Valtrex now full doze with Diflucan on board. thks and rgds Kavita Re: new hereNo, you can give with the rest of your supps.  Liquid is easier on taste buds, for sure!  We saw hyperactivity for about 2 weeks but big language and cognitive gains.  Yeasty behavior after about 3 weeks and we started Nizoral after 4 weeks.  Definitely have a good antifungal on board!  We saw *amazing* gains after adding the anti-fungal.  Valtrex alone was nice but once we had both we saw real "wows".CherylHi,we are just starting valtrex. I had it compounded in a liquid suspension so I'm hoping the taste won't be as bitter as I've heard the pills are. Should it be given away from supplements? If so, how long?I would also like to know how soon you have seen changes either good or bad after starting the valtrex. Thank you.Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos.Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos.Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos.

[Guest guest]

We use Dr. Goldberg so you are talking to someone that sees a person well out of the DAN! circle.  So with that in mind, I will tell you what *he* thinks.  Iron need only be supplemented if there is a deficiency.  He does prescribe 44 mg liquid iron when a child doesn't eat much though, as the higher doses of iron stimulate hunger.  In this dosage, you see more hunger and less constipation as opposed to a regular iron supplement which is anywhere from 10 - 20 mg I think and can cause loss of appetite and constipation.  Once you get into the higher dosages - like Feosol, which comes in 64 and 44 mg it works in the opposite direction.  So low iron and low appetite are the only reasons he uses it.Spect scans are very useful but we haven't had one yet.  Dr. G doesn't do the right off the bat anymore.  He waits until he feels he is missing something or when he feels he is doing really good and wants to check out the results.Always happy to answer questions!  I probably wasn't much help on these ones, though!  :)cheryl  Cheryl need ure advice again and will continue to do so in future.What do u feel about Spect scan and iron supplements. My son is about the same age as ure son and we have just started Valtrex now full doze with Diflucan on board. thks and rgds Kavita Re: new hereNo, you can give with the rest of your supps.  Liquid is easier on taste buds, for sure!  We saw hyperactivity for about 2 weeks but big language and cognitive gains.  Yeasty behavior after about 3 weeks and we started Nizoral after 4 weeks.  Definitely have a good antifungal on board!  We saw *amazing* gains after adding the anti-fungal.  Valtrex alone was nice but once we had both we saw real "wows".CherylHi,we are just starting valtrex. I had it compounded in a liquid suspension so I'm hoping the taste won't be as bitter as I've heard the pills are. Should it be given away from supplements? If so, how long?I would also like to know how soon you have seen changes either good or bad after starting the valtrex. Thank you.Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos.Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos.

[Guest guest]

I emailed Dr. McCandless....this was her response: All our kids need probiotics all the time and ananti-viral like valtrex is absolutely not acontraindication. If you are taking anti-bacterialsyou do have to keep them two hours away from yourprobiotics or they would kill off your probiotics(good bugs) along with the critters for which you areusing it. Dr. JMCheryl Lowrance wrote: As far I know, probiotics only need to be separated from

an anti-biotic as the two cancel each other. A probiotic and an anti-viral do not effect one another. If you have some evidence of this, I'd love to see it as it is new news to me. I'm always happy to learn something new! Cheryl should not give probiotics at same time as valtrex.kavita mallik <kavita_d_mallik> wrote: Cheryl need ure advice again and will continue to do so in future. What do u feel about Spect scan and iron supplements. My son is about the same age as ure son and we have just started Valtrex now full doze with Diflucan on board. thks and rgds Kavita Re: new here No, you can give with the rest of your supps. Liquid is easier on taste buds, for sure! We saw hyperactivity for about 2 weeks but big language and cognitive gains. Yeasty behavior after about 3 weeks and we started Nizoral after 4 weeks. Definitely have a good antifungal on board! We saw *amazing* gains after adding the anti-fungal. Valtrex alone was nice but once we had both we saw real "wows". Cheryl Hi, we are just starting valtrex. I had it compounded in a liquid suspension so I'm hoping the taste won't be as bitter as I've heard the pills are. Should it be given away from supplements? If so, how long? I would also like to know how soon you have seen changes either good or bad after starting the valtrex. Thank you.

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[Guest guest]

thanks. You cleared that up for me.angie carter wrote: I emailed Dr. McCandless....this was her response: All our kids need probiotics all the time and ananti-viral like valtrex is absolutely not acontraindication. If you are taking anti-bacterialsyou do have to keep them two hours away from yourprobiotics or they would kill off your probiotics(good bugs) along with the critters for which you areusing it. Dr.

JMCheryl Lowrance <c.lowranceca (DOT) rr.com> wrote: As far I know, probiotics only need to be separated from an anti-biotic as the two cancel each other. A probiotic and an anti-viral do not effect one another. If you have some evidence of this, I'd love to see it as it is new news to me. I'm always happy to learn something new! Cheryl should not give probiotics at same time as valtrex.kavita mallik <kavita_d_mallik>

wrote: Cheryl need ure advice again and will continue to do so in future. What do u feel about Spect scan and iron supplements. My son is about the same age as ure son and we have just started Valtrex now full doze with Diflucan on board. thks and rgds Kavita Re: new here No, you can give with the rest of your supps. Liquid is easier on taste buds, for sure! We saw hyperactivity for about 2 weeks but big language and cognitive gains. Yeasty behavior after about 3 weeks and we started Nizoral after 4

weeks. Definitely have a good antifungal on board! We saw *amazing* gains after adding the anti-fungal. Valtrex alone was nice but once we had both we saw real "wows". Cheryl Hi, we are just starting valtrex. I had it compounded in a liquid suspension so I'm hoping the taste won't be as bitter as I've heard the pills are. Should it be given away from supplements? If so, how long? I would also like to know how soon you have seen changes either good or bad after starting the valtrex. Thank you. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos.

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[Guest guest]

thanks cheryl i am also not following DAN but the doc in upstate NY similar protocol to Dr G. I have considered going to Califoria and will if I don't see progress, so far so good. Its the same doc Sheri talks about she is using for . Thanks again and will keep u updated. rgds Kavita

Re: new here

No, you can give with the rest of your supps. Liquid is easier on taste buds, for sure! We saw hyperactivity for about 2 weeks but big language and cognitive gains. Yeasty behavior after about 3 weeks and we started Nizoral after 4 weeks. Definitely have a good antifungal on board! We saw *amazing* gains after adding the anti-fungal. Valtrex alone was nice but once we had both we saw real "wows".

Cheryl

Hi,

we are just starting valtrex. I had it compounded in a liquid suspension so I'm hoping the taste won't be as bitter as I've heard the pills are.

Should it be given away from supplements? If so, how long?

I would also like to know how soon you have seen changes either good or bad after starting the valtrex.

Thank you.

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