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My son Caelan was severely anemic. He had really bad reflux and would cry

and scream. We finally added Propulsid to his zantac and he was better for

about a month. Then around six months he just started in again w/ the

constant crying and fussing and stopped progressing developmentally. He was

not scooting , rolling or anything. I would ask the ped and take him in for

his constant fussiness and they would say, oh it's his reflux....we can't do

anything else. Since he was growing well they didn't see it as a problem.

Well finally by nine months of age he was sooooo pale that at his checkup

our reg. ped was very alarmed w/ his color. His hemaglobin was 6.9. Very

low. He was sick constantly and very cranky and lethargic. We started him

on iron and within two weeks he started talking!! Went from nothing to 10

words! Then gradually over the months his muscles got some strength back.

He finally crawled at 11months and then didn't walk until 16 months. He was

very low on the percentiles by this point (20% for weight). Well now that

he is no longer anemic and was weaned from the breast (he has bad food

allergies) he gained 5 lbs since December and has grown over 3 inches!!! He

is a little chunky monkey now, but of course it's hard to get anyone to

listen b/c of that!!

Grace Caroline 8/14/97

Caelan 8/26/99

Re: Digest Number 884

> ,

> My understanding of anemia is that it is really has a significant bearing

on

> healing in the overall picture. It also effects the transfer of oxygen,

> fatigue etc. I would suggest you atleast try the shakes with some

> experiments. you can use soy milk or rice milk or whatever and fruit does

> taste different when it is frozen and blended . I find that frozen

bananas

> have very little taste when it is in a milkshake. We just kept working

with

> Lucas to find one that he will drink because there is so much that you can

> hide in the shake when needed including powdered vitamins. BARBIE

>

>

>

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Guest guest

My son Caelan was severely anemic. He had really bad reflux and would cry

and scream. We finally added Propulsid to his zantac and he was better for

about a month. Then around six months he just started in again w/ the

constant crying and fussing and stopped progressing developmentally. He was

not scooting , rolling or anything. I would ask the ped and take him in for

his constant fussiness and they would say, oh it's his reflux....we can't do

anything else. Since he was growing well they didn't see it as a problem.

Well finally by nine months of age he was sooooo pale that at his checkup

our reg. ped was very alarmed w/ his color. His hemaglobin was 6.9. Very

low. He was sick constantly and very cranky and lethargic. We started him

on iron and within two weeks he started talking!! Went from nothing to 10

words! Then gradually over the months his muscles got some strength back.

He finally crawled at 11months and then didn't walk until 16 months. He was

very low on the percentiles by this point (20% for weight). Well now that

he is no longer anemic and was weaned from the breast (he has bad food

allergies) he gained 5 lbs since December and has grown over 3 inches!!! He

is a little chunky monkey now, but of course it's hard to get anyone to

listen b/c of that!!

Grace Caroline 8/14/97

Caelan 8/26/99

Re: Digest Number 884

> ,

> My understanding of anemia is that it is really has a significant bearing

on

> healing in the overall picture. It also effects the transfer of oxygen,

> fatigue etc. I would suggest you atleast try the shakes with some

> experiments. you can use soy milk or rice milk or whatever and fruit does

> taste different when it is frozen and blended . I find that frozen

bananas

> have very little taste when it is in a milkshake. We just kept working

with

> Lucas to find one that he will drink because there is so much that you can

> hide in the shake when needed including powdered vitamins. BARBIE

>

>

>

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Guest guest

My son Caelan was severely anemic. He had really bad reflux and would cry

and scream. We finally added Propulsid to his zantac and he was better for

about a month. Then around six months he just started in again w/ the

constant crying and fussing and stopped progressing developmentally. He was

not scooting , rolling or anything. I would ask the ped and take him in for

his constant fussiness and they would say, oh it's his reflux....we can't do

anything else. Since he was growing well they didn't see it as a problem.

Well finally by nine months of age he was sooooo pale that at his checkup

our reg. ped was very alarmed w/ his color. His hemaglobin was 6.9. Very

low. He was sick constantly and very cranky and lethargic. We started him

on iron and within two weeks he started talking!! Went from nothing to 10

words! Then gradually over the months his muscles got some strength back.

He finally crawled at 11months and then didn't walk until 16 months. He was

very low on the percentiles by this point (20% for weight). Well now that

he is no longer anemic and was weaned from the breast (he has bad food

allergies) he gained 5 lbs since December and has grown over 3 inches!!! He

is a little chunky monkey now, but of course it's hard to get anyone to

listen b/c of that!!

Grace Caroline 8/14/97

Caelan 8/26/99

Re: Digest Number 884

> ,

> My understanding of anemia is that it is really has a significant bearing

on

> healing in the overall picture. It also effects the transfer of oxygen,

> fatigue etc. I would suggest you atleast try the shakes with some

> experiments. you can use soy milk or rice milk or whatever and fruit does

> taste different when it is frozen and blended . I find that frozen

bananas

> have very little taste when it is in a milkshake. We just kept working

with

> Lucas to find one that he will drink because there is so much that you can

> hide in the shake when needed including powdered vitamins. BARBIE

>

>

>

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  • 3 years later...
Guest guest

At 09:03 AM 6/19/2004 -0400, you wrote:

>I think this is retrospective and not prospective.

You may be correct. This line made me think that, after a retrospective

evaluation, a subset of severely anemic patients was prospectively followed:

" In total, 216 severely anemic HIV-infected individuals (mean Hb level, 8.1

g/dL) followed for a median of 13 months had a 37-percent mortality rate. "

I am cc'ing the author for her input! I'm only sorry I do not have access

to the complete paper at this time.

>You would have to assume that patients who got erythropoeitin were

>sicker than those who did not, so there may be an element of selection

>for patients who were already more delicate. The same would hold for

>transfusion, as it is kind of a last resort.

Ah--I don't think this is an accurate assumption. All had CD4 counts less

than 100 and all were " severely anemic. " I reiterate a portion of the

abstract below. It may have as much to do with the aggressivity of the

physician if this was retrospective or part of the trial design if

prospective (in which case one might presume randomization and an otherwise

generally " homogenous " population).

I hope Dr. Buskin can help clarify these points! (Thanks in advance.)

M.

**

" Of these, 22 percent were untreated (13% mortality rate), 42 percent

received transfusion alone (52% mortality), 12 percent received epoetin

alfa alone (19% mortality), and 24 percent received both (47% mortality).

Transfusion was associated with a threefold excess mortality risk, but

epoetin alfa prescription was not associated with mortality. CONCLUSION:

The prevalence of anemia decreased in the HAART era, and transfusion was

positively associated with risk of death, suggesting limiting use of

transfusions in nonemergency situations. "

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  • 7 years later...

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