Guest guest Posted October 6, 2011 Report Share Posted October 6, 2011 I was away from this board for a while. My wife is doing just fine now with normal or lower than expected BP 90s / high 60s. She is still taking 1 drug and will be evaluated. Also blood analyses for 2 weeks were normal. In regards to reishi, it is one of the adaptogens that is most researched and have 100s of published clinical trials (not on human yet though probably due to no $$$). The site http://www.reishiessence.com/clinicalstudies.html has many links to PubMed. I don't think prestigious universities, medical and research centers will waste their time on what you call " snake oil " . Reishi is considered a normalizing substance - a nutritional supplement that can yield medical benefits through its normalization and regulation of the body's organs and functions. Although I do agree that there are numerous herbs that can be classified as snake oil based on dishonest business people, but I believe from personal experience that reishi has medicinal properties. Everyone is entitled to his own opinion and I am basing mine on my own experience and the ones from my entourage that also have excellent results taking this herb for various purposes. Can anyone reading this post claim not to have a cold/flu for the last 10 years? A few that I know can... To health and low BP ! > > > > > > > > > Hi all, > > > > > > > > > > I have been an observer of this group for a little while now > > trying to understand as much as I can about hyperaldosteronism > > because my wife was diagnosed with it. We came a long way, but let > > me sum up our experience so far. > > > > > My wife had hypertension for 13 years and until April this > > year, it was marginally managed by a cocktail of drugs (3 of them). > > Pardon me on my lack of medical vocabulary and terms as you read > > through my post. Just before April, her primary doctor introduced a > > new drug to try to lower her BP even more. A side effect of this new > > drug opened the door to the culpit of her high BP all of these > > years. She experienced anxiety and weak muscle symptoms, in fact her > > legs gave up a couple of time and she ended up falling. Blood test > > and urine test concluded that her potassium level is extremely low > > (2.3). Based on my recollection, she received a call some 5 years > > ago from her backup doctor warning her of low potassium through a > > physical and told her to eat some bananas right away. I now realized > > that no follow up was performed and it was one of those cases where > > the warning fell through the crack. > > > > > Forward to April this year, her primary doctor referred her to > > an endo and a CT scan was performed. A small nodule 2cm was found to > > be the culpit of her hyperaldo case. Excessive aldosterone was being > > produced by the right adrenal gland due to this benign tumor. Her > > endo recommended Mayo clinic and we made the appt 2 weeks ago. > > > > > We were seen by Dr. Young, Dr. s (radiologist for AVS) > > and Dr. Farley (surgeon). Dr. Young recommended an AVS to be > > performed to ensure that the right gland is what is causing the high > > aldo (a reading of 63?). After the successful AVS, it appeared that > > my wife is the second case of more than 500+ at Mayo clinic where > > the reading of the AVS was inconclusive. Right and left adrenals > > reading were very close around 120. However, with the xrays raken > > during the AVS procedure, it was found that she has another large > > veins coming out of the gland and it appeared to go through the > > tumor. The doctors were extremely confident that the excess aldo was > > draining from the tumor through this addition vein into her system. > > Another hypothesis is a tumor in the ovaries, but the odds are very > > low since it appeared that only a handful of such cases exist around > > the world. > > > > > We opted for adrenalectomy and was scheduled the next day. > > Laparoscopic surgery was successful and a blood test was performed > > thereafter showing an undetectable aldosterone reading vs. 63 before > > the surgery. > > > > > It should be noted that we were very impressed with the > > doctors, the facilities (Mayo clinic and St hospital) and the > > entire process from start to end. > > > > > Today, after a little more than a week since the surgery, my > > wife is experiencing numerous unpleasant symptoms as followed: > > > > > 1) Extreme fatigue. She does not have energy for anything, > > almost bedridden most of the time. When she tries to perform some > > basic functions such as making coffee or clean some dishes, they > > don't last long until she feels the need to go rest. > > > > > 2) Feverish symptoms: if she is out and about for a few hours, > > she experiences weaknesses with hot/cold sensations that seem to > > resemble a fever. She also describes them as hot flashes. Needless > > to say, fatigue overwhelms her at that time. > > > > > 3) Loss of appetite. > > > > > 4) Depression > > > > > 5) Slight diarrhea > > > > > > > > > > Are these symptoms common after adrenalectomy? What do you > > recommend that we do to remedy these symptoms as they are > > debilitating her daily life? Have any members of this group > > experienced similar symptoms and what and how did you deal with the > > symptoms? > > > > > > > > > > Thank you for reading my post and we hope to find some answers. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2011 Report Share Posted October 6, 2011 Snake oil. Snake oil. You say no trials in humans? Are you a rat then?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension I was away from this board for a while. My wife is doing just fine now with normal or lower than expected BP 90s / high 60s. She is still taking 1 drug and will be evaluated. Also blood analyses for 2 weeks were normal. In regards to reishi, it is one of the adaptogens that is most researched and have 100s of published clinical trials (not on human yet though probably due to no $$$). The site http://www.reishiessence.com/clinicalstudies.html has many links to PubMed. I don't think prestigious universities, medical and research centers will waste their time on what you call "snake oil". Reishi is considered a normalizing substance - a nutritional supplement that can yield medical benefits through its normalization and regulation of the body's organs and functions. Although I do agree that there are numerous herbs that can be classified as snake oil based on dishonest business people, but I believe from personal experience that reishi has medicinal properties. Everyone is entitled to his own opinion and I am basing mine on my own experience and the ones from my entourage that also have excellent results taking this herb for various purposes. Can anyone reading this post claim not to have a cold/flu for the last 10 years? A few that I know can... To health and low BP ! > > > > > > > > > Hi all, > > > > > > > > > > I have been an observer of this group for a little while now > > trying to understand as much as I can about hyperaldosteronism > > because my wife was diagnosed with it. We came a long way, but let > > me sum up our experience so far. > > > > > My wife had hypertension for 13 years and until April this > > year, it was marginally managed by a cocktail of drugs (3 of them). > > Pardon me on my lack of medical vocabulary and terms as you read > > through my post. Just before April, her primary doctor introduced a > > new drug to try to lower her BP even more. A side effect of this new > > drug opened the door to the culpit of her high BP all of these > > years. She experienced anxiety and weak muscle symptoms, in fact her > > legs gave up a couple of time and she ended up falling. Blood test > > and urine test concluded that her potassium level is extremely low > > (2.3). Based on my recollection, she received a call some 5 years > > ago from her backup doctor warning her of low potassium through a > > physical and told her to eat some bananas right away. I now realized > > that no follow up was performed and it was one of those cases where > > the warning fell through the crack. > > > > > Forward to April this year, her primary doctor referred her to > > an endo and a CT scan was performed. A small nodule 2cm was found to > > be the culpit of her hyperaldo case. Excessive aldosterone was being > > produced by the right adrenal gland due to this benign tumor. Her > > endo recommended Mayo clinic and we made the appt 2 weeks ago. > > > > > We were seen by Dr. Young, Dr. s (radiologist for AVS) > > and Dr. Farley (surgeon). Dr. Young recommended an AVS to be > > performed to ensure that the right gland is what is causing the high > > aldo (a reading of 63?). After the successful AVS, it appeared that > > my wife is the second case of more than 500+ at Mayo clinic where > > the reading of the AVS was inconclusive. Right and left adrenals > > reading were very close around 120. However, with the xrays raken > > during the AVS procedure, it was found that she has another large > > veins coming out of the gland and it appeared to go through the > > tumor. The doctors were extremely confident that the excess aldo was > > draining from the tumor through this addition vein into her system. > > Another hypothesis is a tumor in the ovaries, but the odds are very > > low since it appeared that only a handful of such cases exist around > > the world. > > > > > We opted for adrenalectomy and was scheduled the next day. > > Laparoscopic surgery was successful and a blood test was performed > > thereafter showing an undetectable aldosterone reading vs. 63 before > > the surgery. > > > > > It should be noted that we were very impressed with the > > doctors, the facilities (Mayo clinic and St hospital) and the > > entire process from start to end. > > > > > Today, after a little more than a week since the surgery, my > > wife is experiencing numerous unpleasant symptoms as followed: > > > > > 1) Extreme fatigue. She does not have energy for anything, > > almost bedridden most of the time. When she tries to perform some > > basic functions such as making coffee or clean some dishes, they > > don't last long until she feels the need to go rest. > > > > > 2) Feverish symptoms: if she is out and about for a few hours, > > she experiences weaknesses with hot/cold sensations that seem to > > resemble a fever. She also describes them as hot flashes. Needless > > to say, fatigue overwhelms her at that time. > > > > > 3) Loss of appetite. > > > > > 4) Depression > > > > > 5) Slight diarrhea > > > > > > > > > > Are these symptoms common after adrenalectomy? What do you > > recommend that we do to remedy these symptoms as they are > > debilitating her daily life? Have any members of this group > > experienced similar symptoms and what and how did you deal with the > > symptoms? > > > > > > > > > > Thank you for reading my post and we hope to find some answers. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2011 Report Share Posted October 6, 2011 As we used to say-at ease disease there's a fungus among us! Few here have cancer which is where most of the Petri dish research seems tone targeting Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension I was away from this board for a while. My wife is doing just fine now with normal or lower than expected BP 90s / high 60s. She is still taking 1 drug and will be evaluated. Also blood analyses for 2 weeks were normal. In regards to reishi, it is one of the adaptogens that is most researched and have 100s of published clinical trials (not on human yet though probably due to no $$$). The site http://www.reishiessence.com/clinicalstudies.html has many links to PubMed. I don't think prestigious universities, medical and research centers will waste their time on what you call "snake oil". Reishi is considered a normalizing substance - a nutritional supplement that can yield medical benefits through its normalization and regulation of the body's organs and functions. Although I do agree that there are numerous herbs that can be classified as snake oil based on dishonest business people, but I believe from personal experience that reishi has medicinal properties. Everyone is entitled to his own opinion and I am basing mine on my own experience and the ones from my entourage that also have excellent results taking this herb for various purposes. Can anyone reading this post claim not to have a cold/flu for the last 10 years? A few that I know can... To health and low BP ! > > > > > > > > > Hi all, > > > > > > > > > > I have been an observer of this group for a little while now > > trying to understand as much as I can about hyperaldosteronism > > because my wife was diagnosed with it. We came a long way, but let > > me sum up our experience so far. > > > > > My wife had hypertension for 13 years and until April this > > year, it was marginally managed by a cocktail of drugs (3 of them). > > Pardon me on my lack of medical vocabulary and terms as you read > > through my post. Just before April, her primary doctor introduced a > > new drug to try to lower her BP even more. A side effect of this new > > drug opened the door to the culpit of her high BP all of these > > years. She experienced anxiety and weak muscle symptoms, in fact her > > legs gave up a couple of time and she ended up falling. Blood test > > and urine test concluded that her potassium level is extremely low > > (2.3). Based on my recollection, she received a call some 5 years > > ago from her backup doctor warning her of low potassium through a > > physical and told her to eat some bananas right away. I now realized > > that no follow up was performed and it was one of those cases where > > the warning fell through the crack. > > > > > Forward to April this year, her primary doctor referred her to > > an endo and a CT scan was performed. A small nodule 2cm was found to > > be the culpit of her hyperaldo case. Excessive aldosterone was being > > produced by the right adrenal gland due to this benign tumor. Her > > endo recommended Mayo clinic and we made the appt 2 weeks ago. > > > > > We were seen by Dr. Young, Dr. s (radiologist for AVS) > > and Dr. Farley (surgeon). Dr. Young recommended an AVS to be > > performed to ensure that the right gland is what is causing the high > > aldo (a reading of 63?). After the successful AVS, it appeared that > > my wife is the second case of more than 500+ at Mayo clinic where > > the reading of the AVS was inconclusive. Right and left adrenals > > reading were very close around 120. However, with the xrays raken > > during the AVS procedure, it was found that she has another large > > veins coming out of the gland and it appeared to go through the > > tumor. The doctors were extremely confident that the excess aldo was > > draining from the tumor through this addition vein into her system. > > Another hypothesis is a tumor in the ovaries, but the odds are very > > low since it appeared that only a handful of such cases exist around > > the world. > > > > > We opted for adrenalectomy and was scheduled the next day. > > Laparoscopic surgery was successful and a blood test was performed > > thereafter showing an undetectable aldosterone reading vs. 63 before > > the surgery. > > > > > It should be noted that we were very impressed with the > > doctors, the facilities (Mayo clinic and St hospital) and the > > entire process from start to end. > > > > > Today, after a little more than a week since the surgery, my > > wife is experiencing numerous unpleasant symptoms as followed: > > > > > 1) Extreme fatigue. She does not have energy for anything, > > almost bedridden most of the time. When she tries to perform some > > basic functions such as making coffee or clean some dishes, they > > don't last long until she feels the need to go rest. > > > > > 2) Feverish symptoms: if she is out and about for a few hours, > > she experiences weaknesses with hot/cold sensations that seem to > > resemble a fever. She also describes them as hot flashes. Needless > > to say, fatigue overwhelms her at that time. > > > > > 3) Loss of appetite. > > > > > 4) Depression > > > > > 5) Slight diarrhea > > > > > > > > > > Are these symptoms common after adrenalectomy? What do you > > recommend that we do to remedy these symptoms as they are > > debilitating her daily life? Have any members of this group > > experienced similar symptoms and what and how did you deal with the > > symptoms? > > > > > > > > > > Thank you for reading my post and we hope to find some answers. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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