Guest guest Posted December 17, 2007 Report Share Posted December 17, 2007 >> I wasn't allowed anything to help me through treatment because it was a> trial,so I had to try to survive the 52wks.> Gail Oh, that's rough. My red & white blood cells have kept dropping. Doc says he'd have to to cut back on treatment if I didn't respond to neupogen and procrit. Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2007 Report Share Posted December 17, 2007 I wasn't allowed anything to help me through treatment because it was a trial,so I had to try to survive the 52wks. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of darkchestnuteyesSent: December 17, 2007 8:16 AMTo: HepatitisCSupportGroupForDummies Subject: I Hate Neupogen Shots I took one of my twice a week neupogen shots last night. I woke up nauseous and I ache all over, that's one reason why the treatment doesn't necessarily get better. Anyone else dread that shot? Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2007 Report Share Posted December 17, 2007 my husband is taking ribavirin 1200mg a day and once a week a shot pgegasys so far he just feels like he has the flu then in the afternoon just tired. i know this is going to be tough but what other choice do we have thanks for the replygail wrote: I wasn't allowed anything to help me through treatment because it was a trial,so I had to try to survive the 52wks. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of darkchestnuteyesSent: December 17, 2007 8:16 AMTo: HepatitisCSupportGroupForDummies Subject: I Hate Neupogen Shots I took one of my twice a week neupogen shots last night. I woke up nauseous and I ache all over, that's one reason why the treatment doesn't necessarily get better. Anyone else dread that shot? Kim Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2007 Report Share Posted December 18, 2007 I hate Procrit with a passion and now they upped it to twice a week arrgh!!! They haven't put me on neupogen since I have a hard time with the procrit. pat/wwgail wrote: I wasn't allowed anything to help me through treatment because it was a trial,so I had to try to survive the 52wks. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of darkchestnuteyesSent: December 17, 2007 8:16 AMTo: HepatitisCSupportGroupForDummies Subject: I Hate Neupogen Shots I took one of my twice a week neupogen shots last night. I woke up nauseous and I ache all over, that's one reason why the treatment doesn't necessarily get better. Anyone else dread that shot? Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2007 Report Share Posted December 18, 2007 Within three months of treatment I was sick all the time and tired.I was on the old treatment of interferon at three shots a wk.Try to go to the drugstore and ask the drugest to give you 1000mg of Vitamin B12 With folic acid.Each morning put 2pills==2000mg under your tongue and let it disolve.It helps to increase energy and get some Ensure or Boost to help with food intake.He has to drink a gallon of water a day whether it be juice,water,weak decaf tea,stuff like that.Tell him to rest when he needs to and keep praying. It is worth it if it means you clear the virus.I am genotype 1 and I cleared after 52wks. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of holly LamoreauxSent: December 17, 2007 6:00 PMTo: HepatitisCSupportGroupForDummies Subject: RE: I Hate Neupogen Shotsmy husband is taking ribavirin 1200mg a day and once a week a shot pgegasys so far he just feels like he has the flu then in the afternoon just tired. i know this is going to be tough but what other choice do we have thanks for the replygail wrote: I wasn't allowed anything to help me through treatment because it was a trial,so I had to try to survive the 52wks. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of darkchestnuteyesSent: December 17, 2007 8:16 AMTo: HepatitisCSupportGroupForDummies Subject: I Hate Neupogen Shots I took one of my twice a week neupogen shots last night. I woke up nauseous and I ache all over, that's one reason why the treatment doesn't necessarily get better. Anyone else dread that shot? Kim Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2007 Report Share Posted December 18, 2007 You will respong to the extra shots you are getting and you will win this war.Make sure you get some Ensure or Boost to help suppliment you diet in case you aren't eating enough and it does help settle your stomach down. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of darkchestnuteyesSent: December 17, 2007 1:46 PMTo: HepatitisCSupportGroupForDummies Subject: Re: I Hate Neupogen Shots >> I wasn't allowed anything to help me through treatment because it was a> trial,so I had to try to survive the 52wks.> Gail Oh, that's rough. My red & white blood cells have kept dropping. Doc says he'd have to to cut back on treatment if I didn't respond to neupogen and procrit. Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2007 Report Share Posted December 18, 2007 Pat this extra shots is what is keeping you on treatment.Without them you would have to stop treatment and do it again later on again and probably have to take the extra drugs to help you through it.Your in my prayers hon,but I can also see that your doctor really wants you to complete treatment successfully and these extra meds are helping you to fight and beat this dragon. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of patriciaSent: December 18, 2007 12:01 PMTo: HepatitisCSupportGroupForDummies Subject: RE: I Hate Neupogen ShotsI hate Procrit with a passion and now they upped it to twice a week arrgh!!! They haven't put me on neupogen since I have a hard time with the procrit. pat/wwgail wrote: I wasn't allowed anything to help me through treatment because it was a trial,so I had to try to survive the 52wks. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of darkchestnuteyesSent: December 17, 2007 8:16 AMTo: HepatitisCSupportGroupForDummies Subject: I Hate Neupogen Shots I took one of my twice a week neupogen shots last night. I woke up nauseous and I ache all over, that's one reason why the treatment doesn't necessarily get better. Anyone else dread that shot? Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2007 Report Share Posted December 19, 2007 Congrats, Gail, you are the first case of genotype 1 that I’ve heard of that cleared. Tell me more about your case. Also for B-12, Dibencozide with Folic Acid is readily available in the form the body uses. If a person takes cyanocobalamin, the body (liver) has to convert it. Iherb carries the good forms. Http://iherb.com http://www.iherb.com/ProductDetails.aspx?c=1 & pid=1637 & at=0 Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2007 Report Share Posted December 20, 2007 Several on this site have cleared as far as no viral load goes.I will always test positive for hep c but negative for viral load.I was treated in 1998-99 for 52wks of interferon at three shots a wk and 5 riboveron tablets a day that within three wks they had to cut the pills down to 3 a day.It was hell.I lost 40 pounds and after 10 months of treatment I was down to 70 pounds and still had two more months of treatment to go.MY family doctor thought it was going to kill me,but like I said only the good die young,I will last forever. There are about 10-15 on this site that have cleared ,so keep plugging away.Take care and have faith. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of Kathy WengerSent: December 19, 2007 2:04 PMTo: HepatitisCSupportGroupForDummies Subject: RE: I Hate Neupogen Shots Congrats, Gail, you are the first case of genotype 1 that I’ve heard of that cleared. Tell me more about your case. Also for B-12, Dibencozide with Folic Acid is readily available in the form the body uses. If a person takes cyanocobalamin, the body (liver) has to convert it. Iherb carries the good forms. Http://iherb.com http://www.iherb.com/ProductDetails.aspx?c=1 & pid=1637 & at=0 Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2007 Report Share Posted December 20, 2007 You say of the hundreds of members that this list has on 10 – 15 have cleared the virus?. I’m not well this morning and trying to comprehend. Once you clear the virus you still test pos for hep c cause you have antibodies. But when they test load it’s neg if you’ve cleared via treatment. I’m genotype 1, just passed at my 4 month viral count. And… my challenge now is to keep the dragon don for another 28 weeks. How often do people lose the battle after ( if the can continue treatment) after this point? Kim From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ] On Behalf Of gail Sent: Thursday, December 20, 2007 10:57 AM To: HepatitisCSupportGroupForDummies Subject: RE: I Hate Neupogen Shots Several on this site have cleared as far as no viral load goes.I will always test positive for hep c but negative for viral load.I was treated in 1998-99 for 52wks of interferon at three shots a wk and 5 riboveron tablets a day that within three wks they had to cut the pills down to 3 a day.It was hell.I lost 40 pounds and after 10 months of treatment I was down to 70 pounds and still had two more months of treatment to go.MY family doctor thought it was going to kill me,but like I said only the good die young,I will last forever. There are about 10-15 on this site that have cleared ,so keep plugging away.Take care and have faith. Gail RE: I Hate Neupogen Shots Congrats, Gail, you are the first case of genotype 1 that I’ve heard of that cleared. Tell me more about your case. Also for B-12, Dibencozide with Folic Acid is readily available in the form the body uses. If a person takes cyanocobalamin, the body (liver) has to convert it. Iherb carries the good forms. Http://iherb.com http://www.iherb.com/ProductDetails.aspx?c=1 & pid=1637 & at=0 Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2007 Report Share Posted December 20, 2007 does this mean undetectable? and has been any change in liver, BIOP after so long? How many geno-type , what is the % of each geno typekim thompson wrote: You say of the hundreds of members that this list has on 10 – 15 have cleared the virus?. I’m not well this morning and trying to comprehend. Once you clear the virus you still test pos for hep c cause you have antibodies. But when they test load it’s neg if you’ve cleared via treatment. I’m genotype 1, just passed at my 4 month viral count. And… my challenge now is to keep the dragon don for another 28 weeks. How often do people lose the battle after ( if the can continue treatment) after this point? Kim From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ] On Behalf Of gailSent: Thursday, December 20, 2007 10:57 AMTo: HepatitisCSupportGroupForDummies Subject: RE: I Hate Neupogen Shots Several on this site have cleared as far as no viral load goes.I will always test positive for hep c but negative for viral load.I was treated in 1998-99 for 52wks of interferon at three shots a wk and 5 riboveron tablets a day that within three wks they had to cut the pills down to 3 a day.It was hell.I lost 40 pounds and after 10 months of treatment I was down to 70 pounds and still had two more months of treatment to go.MY family doctor thought it was going to kill me,but like I said only the good die young,I will last forever. There are about 10-15 on this site that have cleared ,so keep plugging away.Take care and have faith. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of Kathy WengerSent: December 19, 2007 2:04 PMTo: HepatitisCSupportGroupForDummies Subject: RE: I Hate Neupogen Shots Congrats, Gail, you are the first case of genotype 1 that I’ve heard of that cleared. Tell me more about your case. Also for B-12, Dibencozide with Folic Acid is readily available in the form the body uses. If a person takes cyanocobalamin, the body (liver) has to convert it. Iherb carries the good forms. Http://iherb.com http://www.iherb.com/ProductDetails.aspx?c=1 & pid=1637 & at=0 Kathy Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2007 Report Share Posted December 20, 2007 Clear means undetectable. I haven’t had a biopsy since I cleared. RE: I Hate Neupogen Shots does this mean undetectable? and has been any change in liver, BIOP after so long? How many geno-type , what is the % of each geno type Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2007 Report Share Posted December 20, 2007 Being negative for viral load does mean undetectable.Treatment at this time is between 50-70% successful with genotype 1.When I had treatment it was only 40% successful so the treatment is getting a lot better and easier as far as sides go. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of Donna SikesSent: December 20, 2007 9:59 AMTo: HepatitisCSupportGroupForDummies Subject: RE: I Hate Neupogen Shotsdoes this mean undetectable? and has been any change in liver, BIOP after so long? How many geno-type , what is the % of each geno typekim thompson wrote: You say of the hundreds of members that this list has on 10 – 15 have cleared the virus?. I’m not well this morning and trying to comprehend. Once you clear the virus you still test pos for hep c cause you have antibodies. But when they test load it’s neg if you’ve cleared via treatment. I’m genotype 1, just passed at my 4 month viral count. And… my challenge now is to keep the dragon don for another 28 weeks. How often do people lose the battle after ( if the can continue treatment) after this point? Kim From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ] On Behalf Of gailSent: Thursday, December 20, 2007 10:57 AMTo: HepatitisCSupportGroupForDummies Subject: RE: I Hate Neupogen Shots Several on this site have cleared as far as no viral load goes.I will always test positive for hep c but negative for viral load.I was treated in 1998-99 for 52wks of interferon at three shots a wk and 5 riboveron tablets a day that within three wks they had to cut the pills down to 3 a day.It was hell.I lost 40 pounds and after 10 months of treatment I was down to 70 pounds and still had two more months of treatment to go.MY family doctor thought it was going to kill me,but like I said only the good die young,I will last forever. There are about 10-15 on this site that have cleared ,so keep plugging away.Take care and have faith. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of Kathy WengerSent: December 19, 2007 2:04 PMTo: HepatitisCSupportGroupForDummies Subject: RE: I Hate Neupogen Shots Congrats, Gail, you are the first case of genotype 1 that I’ve heard of that cleared. Tell me more about your case. Also for B-12, Dibencozide with Folic Acid is readily available in the form the body uses. If a person takes cyanocobalamin, the body (liver) has to convert it. Iherb carries the good forms. Http://iherb.com http://www.iherb.com/ProductDetails.aspx?c=1 & pid=1637 & at=0 Kathy Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2007 Report Share Posted December 20, 2007 Kim I don't know everyone on the list.When this group was small still there were about 10 or 15 that cleared but that was quite awhile ago.A lot of the ones that clear do not stay for long after they have cleared.About 15 that did clear stayed to help in group.The success rate is 50-70% for genotype 1 depending on how you do during treatment,if they have to cut it short or like some have to do treatment longer then usual.The doctors are starting to realize that they have to go back to longer treatments to have more success stories.They do longer treatments in Europe for a while now.You are on treatment.You have to think possitive and shoot for being a success story. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of kim thompsonSent: December 20, 2007 8:48 AMTo: HepatitisCSupportGroupForDummies Subject: RE: I Hate Neupogen Shots You say of the hundreds of members that this list has on 10 – 15 have cleared the virus?. I’m not well this morning and trying to comprehend. Once you clear the virus you still test pos for hep c cause you have antibodies. But when they test load it’s neg if you’ve cleared via treatment. I’m genotype 1, just passed at my 4 month viral count. And… my challenge now is to keep the dragon don for another 28 weeks. How often do people lose the battle after ( if the can continue treatment) after this point? Kim From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ] On Behalf Of gailSent: Thursday, December 20, 2007 10:57 AMTo: HepatitisCSupportGroupForDummies Subject: RE: I Hate Neupogen Shots Several on this site have cleared as far as no viral load goes.I will always test positive for hep c but negative for viral load.I was treated in 1998-99 for 52wks of interferon at three shots a wk and 5 riboveron tablets a day that within three wks they had to cut the pills down to 3 a day.It was hell.I lost 40 pounds and after 10 months of treatment I was down to 70 pounds and still had two more months of treatment to go.MY family doctor thought it was going to kill me,but like I said only the good die young,I will last forever. There are about 10-15 on this site that have cleared ,so keep plugging away.Take care and have faith. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of Kathy WengerSent: December 19, 2007 2:04 PMTo: HepatitisCSupportGroupForDummies Subject: RE: I Hate Neupogen Shots Congrats, Gail, you are the first case of genotype 1 that I’ve heard of that cleared. Tell me more about your case. Also for B-12, Dibencozide with Folic Acid is readily available in the form the body uses. If a person takes cyanocobalamin, the body (liver) has to convert it. Iherb carries the good forms. Http://iherb.com http://www.iherb.com/ProductDetails.aspx?c=1 & pid=1637 & at=0 Kathy Quote Link to comment Share on other sites More sharing options...
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