Re: Back from Rochester- Noelle's in a brace!

[Guest guest]

SO, SO, SO happy for your family!!!!!I know you are thrilled!! How is she doing with it?Keep us posted. Big HUG to you TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.htmlFrom: Kauffunger To: infantile_scoliosis Sent: Sun, October 11, 2009 4:57:20 PMSubject: Back from Rochester- Noelle's in a brace!

Hi All!

At long last, Noelle is in her first brace! I can hardly believe it! Her supine x-ray went from 10 degrees to 15. but her standing one went from 15 down to 10! Our doc, my husband and I all think the supine x-ray wasn't accurate because Noelle was laying on a pillow and her head was to the side. But she was standing nice and straight in her x-ray and for the first time EVER in her life I can no longer see a visible curve with my naked eye.... How's that for a birthday gift! I am beside myself with joy!!!!! - Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

[Guest guest]

What wonderful news for you!!!! How is she doing with the brace?? Joanmom to Hayden 2 1/233 degrees1st cast down from 62 degrees Treated at ish Rite Hospital Dallas, TX

To: infantile_scoliosis Sent: Sunday, October 11, 2009 4:57:20 PMSubject: Back from Rochester- Noelle's in a brace!

Hi All!

At long last, Noelle is in her first brace! I can hardly believe it! Her supine x-ray went from 10 degrees to 15. but her standing one went from 15 down to 10! Our doc, my husband and I all think the supine x-ray wasn't accurate because Noelle was laying on a pillow and her head was to the side. But she was standing nice and straight in her x-ray and for the first time EVER in her life I can no longer see a visible curve with my naked eye.... How's that for a birthday gift! I am beside myself with joy!!!!! - Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

[Guest guest]

I am so happy for you!! Yeah Noelle!

Barb

Mom to Evan

>

> Hi All!

> At long last, Noelle is in her first brace!  I can hardly believe it!  Her

supine x-ray went from 10 degrees to 15. but her standing one went from 15 down

to 10!  Our doc, my husband and I all think the supine x-ray wasn't accurate

because Noelle was laying on a pillow and her head was to the side.  But she was

standing nice and straight in her x-ray and for the first time EVER in her life

I can no longer see a visible curve with my naked eye....  How's that for a

birthday gift!  I am beside myself with joy!!!!!      

>

> - Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY,

reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity,

suspected Ehler's Danlos III

>

[Guest guest]

It was great to meet you too. We are so happy that Noelle is out of her cast!

>

> Hi All!

> At long last, Noelle is in her first brace!  I can hardly believe it!  Her

supine x-ray went from 10 degrees to 15. but her standing one went from 15 down

to 10!  Our doc, my husband and I all think the supine x-ray wasn't accurate

because Noelle was laying on a pillow and her head was to the side.  But she was

standing nice and straight in her x-ray and for the first time EVER in her life

I can no longer see a visible curve with my naked eye....  How's that for a

birthday gift!  I am beside myself with joy!!!!!      

>

> - Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY,

reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity,

suspected Ehler's Danlos III

>

[Guest guest]

Yay for Noelle!!!!! What kind of pattern did she pick out for it?

Noelle (12-2-01)

Ian (8-15-04)

To: infantile_scoliosis Sent: Sun, October 11, 2009 5:57:20 PMSubject: Back from Rochester- Noelle's in a brace!

Hi All!

At long last, Noelle is in her first brace! I can hardly believe it! Her supine x-ray went from 10 degrees to 15. but her standing one went from 15 down to 10! Our doc, my husband and I all think the supine x-ray wasn't accurate because Noelle was laying on a pillow and her head was to the side. But she was standing nice and straight in her x-ray and for the first time EVER in her life I can no longer see a visible curve with my naked eye.... How's that for a birthday gift! I am beside myself with joy!!!!! - Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

[Guest guest]

I know we spoke earlier, but just wanted to say one more time... YIPPEEEEEE

Subject: Back from Rochester- Noelle's in a brace!To: infantile_scoliosis Date: Sunday, October 11, 2009, 5:57 PM

Hi All!

At long last, Noelle is in her first brace! I can hardly believe it! Her supine x-ray went from 10 degrees to 15. but her standing one went from 15 down to 10! Our doc, my husband and I all think the supine x-ray wasn't accurate because Noelle was laying on a pillow and her head was to the side. But she was standing nice and straight in her x-ray and for the first time EVER in her life I can no longer see a visible curve with my naked eye.... How's that for a birthday gift! I am beside myself with joy!!!!! - Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

[Guest guest]

YAY NOELLE!! SOOOO HAPPY FOR YOU!!

Dianna (mommy to Marcela, 16 mos, in 2nd cast)

>

>

>

> Subject: Back from Rochester- Noelle's in a brace!

> To: infantile_scoliosis

> Date: Sunday, October 11, 2009, 5:57 PM

>

>

>  

>

>

>

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>

>

>

>

> Hi All!

> At long last, Noelle is in her first brace!  I can hardly believe it!  Her

supine x-ray went from 10 degrees to 15. but her standing one went from 15 down

to 10!  Our doc, my husband and I all think the supine x-ray wasn't accurate

because Noelle was laying on a pillow and her head was to the side.  But she was

standing nice and straight in her x-ray and for the first time EVER in her life

I can no longer see a visible curve with my naked eye....  How's that for a

birthday gift!  I am beside myself with joy!!!!!      

>

> - Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY,

reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity,

suspected Ehler's Danlos III

>

[Guest guest]

Steph,I am so happy for all of you! I was dying to know what happened all week. You were in my prayers and I just knew she was going to come home in a brace. Congratulations!!!!!! Patty, mom of Isabella, 2 years old, in 2nd cast (Rochester) & mom to & EvanTo:

infantile_scoliosis Sent: Sun, October 11, 2009 5:57:20 PMSubject: Back from Rochester- Noelle's in a brace!

Hi All!

At long last, Noelle is in her first brace! I can hardly believe it! Her supine x-ray went from 10 degrees to 15. but her standing one went from 15 down to 10! Our doc, my husband and I all think the supine x-ray wasn't accurate because Noelle was laying on a pillow and her head was to the side. But she was standing nice and straight in her x-ray and for the first time EVER in her life I can no longer see a visible curve with my naked eye.... How's that for a birthday gift! I am beside myself with joy!!!!! - Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

[Guest guest]

Well congrats, thats great news. Very happy for you all!!!

Melinda

Mommy of Marlycia 9 mnths, Natalya 22 mnths

Scranton, PA

Back from Rochester- Noelle's in a brace!

Hi All!

At long last, Noelle is in her first brace! I can hardly believe it! Her supine x-ray went from 10 degrees to 15. but her standing one went from 15 down to 10! Our doc, my husband and I all think the supine x-ray wasn't accurate because Noelle was laying on a pillow and her head was to the side. But she was standing nice and straight in her x-ray and for the first time EVER in her life I can no longer see a visible curve with my naked eye.... How's that for a birthday gift! I am beside myself with joy!!!!! - Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

[Guest guest]

Oh that is soooooo GREAT!! I am so happy for you!!! How is she adjusting to the brace?

Lynn

Subject: Back from Rochester- Noelle's in a brace!To: infantile_scoliosis Received: Sunday, October 11, 2009, 2:57 PM

Hi All!

At long last, Noelle is in her first brace! I can hardly believe it! Her supine x-ray went from 10 degrees to 15. but her standing one went from 15 down to 10! Our doc, my husband and I all think the supine x-ray wasn't accurate because Noelle was laying on a pillow and her head was to the side. But she was standing nice and straight in her x-ray and for the first time EVER in her life I can no longer see a visible curve with my naked eye.... How's that for a birthday gift! I am beside myself with joy!!!!! - Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

Ask a question on any topic and get answers from real people. Go to Yahoo! Answers.

[Guest guest]

HI ,

My name is Tema, I'm relitively new here but don't really post much. It is great news to hear that your daughter is in a brace. I noticed your daughter has Hypotonia and Ligament laxity. My son also has that as well as suspected Ehlers Danlos IV (whaterver roman numeral that is) My son is casted. My question to you is, with your daughter's Hypotonia and Ligament laxity, how did she do in a cast. (She obviously done great) The reason I ask is because my son is in his first cast and is due soon for a cast change. I have this fear that when they remove his cast that with the hypotonia and ligament laxity the curve will go back up. (He was at 90 degrees! I'm just afraid that he won't have the muscle tone and maybe be too flexible to keep his spine straight. Any feedback would be great. I'm kind of nervous. Congratulations again on the wonderful news!!

From: Kauffunger <slguerra710@ yahoo.com>Subject: [infantile_scoliosi s] Back from Rochester- Noelle's in a brace!To: infantile_scoliosis @yahoogroups. comReceived: Sunday, October 11, 2009, 2:57 PM

Hi All!

At long last, Noelle is in her first brace! I can hardly believe it! Her supine x-ray went from 10 degrees to 15. but her standing one went from 15 down to 10! Our doc, my husband and I all think the supine x-ray wasn't accurate because Noelle was laying on a pillow and her head was to the side. But she was standing nice and straight in her x-ray and for the first time EVER in her life I can no longer see a visible curve with my naked eye.... How's that for a birthday gift! I am beside myself with joy!!!!! - Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

Ask a question on any topic and get answers from real people. Go to Yahoo! Answers.

[Guest guest]

Steph, I teared up upon reading this post. SO HAPPY FOR YOU AND NOELLE!!!Heidi, Bexon's Mama, (2 years old, in 4th cast from Salt Lake City Shriners, currently down from 61 degrees to 21)

Subject: Re: Back from Rochester- Noelle's in a brace!To: infantile_scoliosis Date: Sunday, October 11, 2009, 8:48 PM

YAY NOELLE!! SOOOO HAPPY FOR YOU!!Dianna (mommy to Marcela, 16 mos, in 2nd cast)> > > From: Kauffunger <slguerra710@ ...>> Subject: [infantile_scoliosi s] Back from Rochester- Noelle's in a brace!> To: infantile_scoliosis @yahoogroups. com> Date:

Sunday, October 11, 2009, 5:57 PM> > > > > > > > > > > > Hi All!> At long last, Noelle is in her first brace! I can hardly believe it! Her supine x-ray went from 10 degrees to 15. but her standing one went from 15 down to 10! Our doc, my husband and I all think the supine x-ray wasn't accurate because Noelle was laying on a pillow and her head was to the side. But she was standing nice and straight in her x-ray and for the first time EVER in her life I can no longer see a visible curve with my naked eye.... How's that for a birthday gift! I am beside myself with joy!!!!! > > - Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos

III>

[Guest guest]

Thanks Tasha! She is doing great! No adjustment period at all.... She's taken to brace life like a fish to water!- Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

Subject: Re: Back from Rochester- Noelle's in a brace!To: infantile_scoliosis Date: Sunday, October 11, 2009, 10:18 PM

SO, SO, SO happy for your family!!!!!I know you are thrilled!! How is she doing with it?Keep us posted. Big HUG to you

TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html

From: Kauffunger <slguerra710@ yahoo.com>To: infantile_scoliosis @yahoogroups. comSent: Sun, October 11, 2009 4:57:20 PMSubject: [infantile_scoliosi s] Back from Rochester- Noelle's in a brace!

Hi All!

At long last, Noelle is in her first brace! I can hardly believe it! Her supine x-ray went from 10 degrees to 15. but her standing one went from 15 down to 10! Our doc, my husband and I all think the supine x-ray wasn't accurate because Noelle was laying on a pillow and her head was to the side. But she was standing nice and straight in her x-ray and for the first time EVER in her life I can no longer see a visible curve with my naked eye.... How's that for a birthday gift! I am beside myself with joy!!!!! - Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

[Guest guest]

Thank you! She's doing great and very proud to show off her new "cast"..... She won't let me call it a brace! lol She loves it because she picked out the design!- Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

Subject: Re: Back from Rochester- Noelle's in a brace!To: infantile_scoliosis Date: Sunday, October 11, 2009, 10:24 PM

What wonderful news for you!!!! How is she doing with the brace?? Joanmom to Hayden 2 1/233 degrees1st cast down from 62 degrees Treated at ish Rite Hospital Dallas, TX

From: Kauffunger <slguerra710@ yahoo.com>To: infantile_scoliosis @yahoogroups. comSent: Sunday, October 11, 2009 4:57:20 PMSubject: [infantile_scoliosi s] Back from Rochester- Noelle's in a brace!

Hi All!

At long last, Noelle is in her first brace! I can hardly believe it! Her supine x-ray went from 10 degrees to 15. but her standing one went from 15 down to 10! Our doc, my husband and I all think the supine x-ray wasn't accurate because Noelle was laying on a pillow and her head was to the side. But she was standing nice and straight in her x-ray and for the first time EVER in her life I can no longer see a visible curve with my naked eye.... How's that for a birthday gift! I am beside myself with joy!!!!! - Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

[Guest guest]

Thanks Barbara!- Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

Subject: Re: Back from Rochester- Noelle's in a brace!To: infantile_scoliosis Date: Monday, October 12, 2009, 1:03 AM

I am so happy for you!! Yeah Noelle! BarbMom to Evan >> Hi All!> At long last, Noelle is in her first brace! I can hardly believe it! Her supine x-ray went from 10 degrees to 15. but her standing one went from 15 down to 10! Our doc, my husband and I all think the supine x-ray wasn't accurate because Noelle was laying on a pillow and her head was to the side. But she was standing nice and straight in her x-ray and for the first time EVER in her life I can no longer see a visible curve with my naked eye.... How's that for a birthday gift! I am beside myself with joy!!!!!

> > - Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III>

[Guest guest]

Thank you!- Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

From: Barbara <barbb1010hotmail (DOT) com>Subject: [infantile_scoliosi s] Re: Back from Rochester- Noelle's in a brace!To: infantile_scoliosis @yahoogroups. comDate: Sunday, October 11, 2009, 8:03 PM

I am so happy for you!! Yeah Noelle! BarbMom to Evan >> Hi All!> At long last, Noelle is in her first brace! I can hardly believe it! Her supine x-ray went from 10 degrees to 15. but her standing one went from 15 down to 10! Our doc, my husband and I all think the supine x-ray wasn't accurate because Noelle was laying on a pillow and her head was to the side. But she was standing nice and straight in her x-ray and for the first time EVER in her life I can no longer see a visible curve with my naked eye.... How's that for a birthday gift! I am beside myself with joy!!!!! > > - Noelle's mommy, 2

1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III>

[Guest guest]

Thanks!- Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

Subject: Re: Back from Rochester- Noelle's in a brace!To: infantile_scoliosis Date: Monday, October 12, 2009, 1:04 AM

It was great to meet you too. We are so happy that Noelle is out of her cast!>> Hi All!> At long last, Noelle is in her first brace! I can hardly believe it! Her supine x-ray went from 10 degrees to 15. but her standing one went from 15 down to 10! Our doc, my husband and I all think the supine x-ray wasn't accurate because Noelle was laying on a pillow and her head was to the side. But she was standing nice and straight in her x-ray and for the first time EVER in her life I can no longer see a visible curve with my naked eye.... How's that for a birthday gift! I am beside myself with

joy!!!!! > > - Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III>

[Guest guest]

Hi Jen,

She picked butterflies on a lavender background..... Very soothing! LOL I was sure she would pick the most off the wall pattern so I pre-screened the options a bit! Did Ian see the same doc at Erie?- Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

Subject: Re: Back from Rochester- Noelle's in a brace!To: infantile_scoliosis Date: Monday, October 12, 2009, 2:00 AM

Yay for Noelle!!!!! What kind of pattern did she pick out for it?

Noelle (12-2-01)

Ian (8-15-04)

From: Kauffunger <slguerra710@ yahoo.com>To: infantile_scoliosis @yahoogroups. comSent: Sun, October 11, 2009 5:57:20 PMSubject: [infantile_scoliosi s] Back from Rochester- Noelle's in a brace!

Hi All!

At long last, Noelle is in her first brace! I can hardly believe it! Her supine x-ray went from 10 degrees to 15. but her standing one went from 15 down to 10! Our doc, my husband and I all think the supine x-ray wasn't accurate because Noelle was laying on a pillow and her head was to the side. But she was standing nice and straight in her x-ray and for the first time EVER in her life I can no longer see a visible curve with my naked eye.... How's that for a birthday gift! I am beside myself with joy!!!!! - Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

[Guest guest]

You are too funny! And YIPPEEEE back at ya!!! LOL- Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

From: Kauffunger <slguerra710@ yahoo.com>Subject: [infantile_scoliosi s] Back from Rochester- Noelle's in a brace!To: infantile_scoliosis @yahoogroups. comDate: Sunday, October 11, 2009, 5:57 PM

Hi All!

At long last, Noelle is in her first brace! I can hardly believe it! Her supine x-ray went from 10 degrees to 15. but her standing one went from 15 down to 10! Our doc, my husband and I all think the supine x-ray wasn't accurate because Noelle was laying on a pillow and her head was to the side. But she was standing nice and straight in her x-ray and for the first time EVER in her life I can no longer see a visible curve with my naked eye.... How's that for a birthday gift! I am beside myself with joy!!!!! - Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

[Guest guest]

Thank you!- Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

Subject: Re: Back from Rochester- Noelle's in a brace!To: infantile_scoliosis Date: Monday, October 12, 2009, 3:48 AM

YAY NOELLE!! SOOOO HAPPY FOR YOU!!Dianna (mommy to Marcela, 16 mos, in 2nd cast)> > > From: Kauffunger <slguerra710@ ...>> Subject: [infantile_scoliosi s] Back from Rochester- Noelle's in a brace!> To: infantile_scoliosis @yahoogroups. com> Date:

Sunday, October 11, 2009, 5:57 PM> > > > > > > > > > > > Hi All!> At long last, Noelle is in her first brace! I can hardly believe it! Her supine x-ray went from 10 degrees to 15. but her standing one went from 15 down to 10! Our doc, my husband and I all think the supine x-ray wasn't accurate because Noelle was laying on a pillow and her head was to the side. But she was standing nice and straight in her x-ray and for the first time EVER in her life I can no longer see a visible curve with my naked eye.... How's that for a birthday gift! I am beside myself with joy!!!!! > > - Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos

III>

[Guest guest]

Thanks Patty! How is Isabella doing? When do you go back?- Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

Subject: Re: Back from Rochester- Noelle's in a brace!To: infantile_scoliosis Date: Monday, October 12, 2009, 5:38 AM

Steph,

I am so happy for all of you! I was dying to know what happened all week. You were in my prayers and I just knew she was going to come home in a brace. Congratulations! !!!!! Patty, mom of Isabella, 2 years old, in 2nd cast (Rochester) & mom to & Evan

From: Kauffunger <slguerra710@ yahoo.com>To: infantile_scoliosis @yahoogroups. comSent: Sun, October 11, 2009 5:57:20 PMSubject: [infantile_scoliosi s] Back from Rochester- Noelle's in a brace!

Hi All!

At long last, Noelle is in her first brace! I can hardly believe it! Her supine x-ray went from 10 degrees to 15. but her standing one went from 15 down to 10! Our doc, my husband and I all think the supine x-ray wasn't accurate because Noelle was laying on a pillow and her head was to the side. But she was standing nice and straight in her x-ray and for the first time EVER in her life I can no longer see a visible curve with my naked eye.... How's that for a birthday gift! I am beside myself with joy!!!!! - Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

[Guest guest]

Thank you so much!!!- Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

Subject: Re: Back from Rochester- Noelle's in a brace!To: infantile_scoliosis Date: Monday, October 12, 2009, 1:15 PM

Well congrats, thats great news. Very happy for you all!!!

Melinda

Mommy of Marlycia 9 mnths, Natalya 22 mnths

Scranton, PA

[infantile_scoliosi s] Back from Rochester- Noelle's in a brace!

Hi All!

At long last, Noelle is in her first brace! I can hardly believe it! Her supine x-ray went from 10 degrees to 15. but her standing one went from 15 down to 10! Our doc, my husband and I all think the supine x-ray wasn't accurate because Noelle was laying on a pillow and her head was to the side. But she was standing nice and straight in her x-ray and for the first time EVER in her life I can no longer see a visible curve with my naked eye.... How's that for a birthday gift! I am beside myself with joy!!!!! - Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

[Guest guest]

Thank you! She's doing great! She's adjusted fine! No issues at all! - Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

From: Kauffunger <slguerra710@ yahoo.com>Subject: [infantile_scoliosi s] Back from Rochester- Noelle's in a brace!To: infantile_scoliosis @yahoogroups. comReceived: Sunday, October 11, 2009, 2:57 PM

Hi All!

At long last, Noelle is in her first brace! I can hardly believe it! Her supine x-ray went from 10 degrees to 15. but her standing one went from 15 down to 10! Our doc, my husband and I all think the supine x-ray wasn't accurate because Noelle was laying on a pillow and her head was to the side. But she was standing nice and straight in her x-ray and for the first time EVER in her life I can no longer see a visible curve with my naked eye.... How's that for a birthday gift! I am beside myself with joy!!!!! - Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

Ask a question on any topic and get answers from real people. Go to Yahoo! Answers.

[Guest guest]

Sounds just like ! He never missed a beat. Never questioned and went right on with life!SO happy she is doing well!!!! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.htmlFrom: Kauffunger To: infantile_scoliosis Sent: Mon, October 12, 2009 7:52:02 PMSubject: Re: Back from Rochester- Noelle's in a brace!

Thanks Tasha! She is doing great! No adjustment period at all.... She's taken to brace life like a fish to water!- Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

From: Tasha Fontenot <ryanswalkyahoo (DOT) com>Subject: Re: [infantile_scoliosi s] Back from Rochester- Noelle's in a brace!To: infantile_scoliosis @yahoogroups. comDate: Sunday, October 11, 2009, 10:18 PM

SO, SO, SO happy for your family!!!!!I know you are thrilled!! How is she doing with it?Keep us posted. Big HUG to you

TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html

From: Kauffunger <slguerra710@ yahoo.com>To: infantile_scoliosis @yahoogroups. comSent: Sun, October 11, 2009 4:57:20 PMSubject: [infantile_scoliosi s] Back from Rochester- Noelle's in a brace!

Hi All!

At long last, Noelle is in her first brace! I can hardly believe it! Her supine x-ray went from 10 degrees to 15. but her standing one went from 15 down to 10! Our doc, my husband and I all think the supine x-ray wasn't accurate because Noelle was laying on a pillow and her head was to the side. But she was standing nice and straight in her x-ray and for the first time EVER in her life I can no longer see a visible curve with my naked eye.... How's that for a birthday gift! I am beside myself with joy!!!!! - Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

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[Guest guest]

Hi Tema!

Noelle's curve was quite flexible and she has been able to hold her own quite well! Casting may have taken her a bit longer than the norm, but we've gotten there! Each kid is very different and how your child responds may be different than mine, but I would remain optimistic and cast as long as you can. We had one cast where we lost a few degrees and a couple with no change at all, but we stayed the course! When do you go back for your first cast change?- Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

From: Kauffunger <slguerra710@ yahoo.com>Subject: [infantile_scoliosi s] Back from Rochester- Noelle's in a brace!To: infantile_scoliosis @yahoogroups. comReceived: Sunday, October 11, 2009, 2:57 PM

Hi All!

At long last, Noelle is in her first brace! I can hardly believe it! Her supine x-ray went from 10 degrees to 15. but her standing one went from 15 down to 10! Our doc, my husband and I all think the supine x-ray wasn't accurate because Noelle was laying on a pillow and her head was to the side. But she was standing nice and straight in her x-ray and for the first time EVER in her life I can no longer see a visible curve with my naked eye.... How's that for a birthday gift! I am beside myself with joy!!!!! - Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

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