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Hi Nanci...Welcome to the group. I had 4 lower back surgeries such as 2

laminectomies, root decompression, and fusion and believe it or not I'm

still walking. Since then I've had several cortisone injections, Caudal

Epidurals and Spinal Endoscopy and I'm still in pain. I'm not on any pain

meds and rather not to be. I have a new problem with my back is that the

L4-5 and L5-S1 discs are thinning very quickly and scar tissue on the left

nerve on my left side. I only see a pain doctor at the pain center here. The

doctors that did the surgeries on my back are now retired but I'm planning

on seeing a orthopedic doctor very soon to see what can be done to stabelize

my lower back. I've been through several MRI's and Physical therapy and

don't need anymore of that stuff. I just want to have a healthy back and

able to do the things I used to do. I hope you find some relief soon so you

can get off the pain meds. Good luck

Tammy

New to group

> Hello,

>

> I am Nanci, and just joined your group.

>

> I injured my back in March 1996 when I bent over to pick something up at

> work. I worked with the pain until Novemeber 1999, and also had

> chiropractic treatment and a couple of MRI's, therapy, consults.

> Everyone told me I had a torn disc that was leaking and irritating the

> nerve. Then had to go off work due to pain. After that, I had a

> discogram which showed tears at L4-5 and L5-S1. In March, I had a two

> level IDET. That procedure got me off most of the pain meds, or at

> least reduced them, but then I had a flare up (no reason behind it that

> we can see) and have had much increased pain.

>

> Right now, I am taking Norco, Soma, Vioxx and Methadone for pain. The

> methadone is interesting. I have not had the side effects as I had with

> OxyContin. I take the Methadone only at bedtime, and the idea is to

> have decreased pain upon arising so that I am more motivated to get up

> and move around! I also started a medically supervised weight loss

> program a week ago, and lost 9 lbs the first week! I believe that my

> increase in pain is due to my weight--I am about 60 lbs overweight.

> Most of it is in my stomach. I can't do strengthening PT because it

> hurts too much. It's like a weird catch-22. So my goal is to get the

> weight off and then get busy with some weight training or something to

> build up my abdominal muscles. I also sing, and that was becoming more

> and more difficult--again because I could not hold those ab muscles in

> place.

>

> Next, I will be having a facet block to see if that is part of this

> continuing problem, and also a quick steroid injection to settle things

> down a bit. As you can probably tell, my goal is to get off the meds.

> I hate them with a passion, but can't have a life without them. I know

> that the odds are a little against me in this.

>

> I have a family--husband and 3 kids. I go to school right now--music

> major. In my previous life, I was a claims manager for a large work

> comp carrier in California. So generally I'd be happy to answer

> questions for people, if you have any about claims and stuff.

>

> Nanci

>

>

>

> Know someone who could profit from our list? Send our direct sign-up URL:

/subscribe.cgi/chronic_pain or write us at:

chronic_pain-listowneregroups

> Manage your subscription with several special email addresses:

> chronic_pain-owneregroups - Sends email to the list owners

> chronic_pain-subscribeegroups - Subscribe to the list through email

> chronic_pain-unsubscribeegroups - Unsubscribe from the list

> chronic_pain-normalegroups - Switch your subscription to normal

> chronic_pain-digestegroups - Switch your subscription to digest

>

>

>

>

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Hello Nanci,

I too have lower pain.

I had an anterior and posterior fusion, my doc used bone from the bone bank to

replace L4/5 L5/S1 disks.

I am having a lot of pain from that surgery in 1995. Then in 1998 I had all of

the hardware (2 rods, 6 screws ) removed. I got to a point where I could not

walk before the hardware

was removed, now I can walk but still have all of the pain.

I was told by my doc October 23, 2000 that nothing could be done for me so I

told him I was going to call The Mayo clinic in MN, he then ordered another MRI

done 11-1-00 and I have

not heard from him yet!!

I will call him this week and find out if he is out to lunch or what !!!

Anyway I hope you are feeling better.

I tried Vioxx but it only lasted 2 hours for me and I was told I could only take

2 tablets a day, so I did not have much luck with it.

Now I take Zanaflex at night and Darvacet during the day.

I wish I could find something that would really work for me.

Well like I said, I hope you are feeling better.

Welcome to the group

Maureen

Nanci Harper wrote:

> Hello,

>

> I am Nanci, and just joined your group.

>

> I injured my back in March 1996 when I bent over to pick something up at

> work. I worked with the pain until Novemeber 1999, and also had

> chiropractic treatment and a couple of MRI's, therapy, consults.

> Everyone told me I had a torn disc that was leaking and irritating the

> nerve. Then had to go off work due to pain. After that, I had a

> discogram which showed tears at L4-5 and L5-S1. In March, I had a two

> level IDET. That procedure got me off most of the pain meds, or at

> least reduced them, but then I had a flare up (no reason behind it that

> we can see) and have had much increased pain.

>

> Right now, I am taking Norco, Soma, Vioxx and Methadone for pain. The

> methadone is interesting. I have not had the side effects as I had with

> OxyContin. I take the Methadone only at bedtime, and the idea is to

> have decreased pain upon arising so that I am more motivated to get up

> and move around! I also started a medically supervised weight loss

> program a week ago, and lost 9 lbs the first week! I believe that my

> increase in pain is due to my weight--I am about 60 lbs overweight.

> Most of it is in my stomach. I can't do strengthening PT because it

> hurts too much. It's like a weird catch-22. So my goal is to get the

> weight off and then get busy with some weight training or something to

> build up my abdominal muscles. I also sing, and that was becoming more

> and more difficult--again because I could not hold those ab muscles in

> place.

>

> Next, I will be having a facet block to see if that is part of this

> continuing problem, and also a quick steroid injection to settle things

> down a bit. As you can probably tell, my goal is to get off the meds.

> I hate them with a passion, but can't have a life without them. I know

> that the odds are a little against me in this.

>

> I have a family--husband and 3 kids. I go to school right now--music

> major. In my previous life, I was a claims manager for a large work

> comp carrier in California. So generally I'd be happy to answer

> questions for people, if you have any about claims and stuff.

>

> Nanci

>

>

> Know someone who could profit from our list? Send our direct sign-up URL:

/subscribe.cgi/chronic_pain or write us at:

chronic_pain-listowneregroups

> Manage your subscription with several special email addresses:

> chronic_pain-owneregroups - Sends email to the list owners

> chronic_pain-subscribeegroups - Subscribe to the list through email

> chronic_pain-unsubscribeegroups - Unsubscribe from the list

> chronic_pain-normalegroups - Switch your subscription to normal

> chronic_pain-digestegroups - Switch your subscription to digest

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Hi ,

Welcome . Your story sounds so similar to mine. I too was hurt at work

and continued working when I shouldnt have and in turn, did more harm . I

can't work now. I am seeing an excellent pain dr who is treating me

pro-bono. I am soooo grateful to have found him. It was thru a member of

this group , that I recieved his name and he agreed to see me.

I am learning to deal with the pain, and make life the best I can no

matter.

Please feel free to write me if you want to just chat ? My best wishes

for you...diane:)

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  • 8 months later...
Guest guest

If you are going to do BFL, I'd cut back on the long runs. I am not

sure how long you are talking. I used to be in the mindset that long

runs were good for you, but they are not. Ask yourself what they are

doing for you? Whenever, I would finish a 6 mile run, I didn't feel

winded at all and my heart rate never go very high, and I usually

didn't even sweat. Took my about 50 minutes to run 6 miles. With

the 20 minute cardio, I feel like I have had a REAL workout. My

resting heart rate is now lower than it ever was before so I know

that it is doing me more good than the long runs. I've also lost 18

lbs of fat and am getting very lean. The abs are beginning to show.

I'd just do the 20 minute cardio running and then either take a nice

long walk or bike ride to replace the long distance running that you

do.

Adequate protein helps keep you from losing muscle.

What sort of goals do you hope to accomplish with running? If you

could let us know that, then maybe we can be of more help.

Andyman

>

>

> Hi all,

>

> I have been running for about three years now.. Recently, I

> integrated weight training into my workouts, three days per week..

My

> problem is that now my long runs are suffering to the point where I

> am cutting back on mileage.. I don't want to give up either

one..Does

> anyone know how to keep the two in balance? Also, is there any

truth

> to taking protein to help build muscle? If so, will this help in

> running? As you can see I have many questions...

>

> ~Kathy

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Guest guest

~Andy

> If you are going to do BFL, I'd cut back on the long runs.

What exactly is Body For Life? Should I take it for its literal

meaning or is it a specific program?

> I'd just do the 20 minute cardio running and then either take a

> long walk or bike ride to replace the long distance running that

> you do.

How many days per week should I do 20min cardio? How many days per

week should I do strength training?

> What sort of goals do you hope to accomplish with running? If you

> could let us know that, then maybe we can be of more help.

Running is a physical outlet for any stress that may befall me..

Running keeps me fit and thin..

My goals are to get my bodyfat% from 35%(now) to 23%.. I also want to

get my weight down from 168lbs to 145lbs (I am 5'9'').. I think that

running can help me accomplish these goals.. However, I now

understand the importance of strength training.. Mainly, I need to

find a perfect balance between the two..

Thank you for responding and helping me with all of these questions..

~Kathy

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Guest guest

>

>

> Hi all,

>

> I have been running for about three years now.. Recently, I

> integrated weight training into my workouts, three days per week..

My

> problem is that now my long runs are suffering to the point where I

> am cutting back on mileage.. I don't want to give up either

one..Does

> anyone know how to keep the two in balance? Also, is there any

truth

> to taking protein to help build muscle? If so, will this help in

> running? As you can see I have many questions...

Kathy,

You cannot build muscle without adequate protein. Typically you will

want to eat 1g of protein per 1 lb. of bodyweight per day. As for

running, if you are into endurance running that will work against

muscle-building. Your body adapts to the stress of endurance

exercise by shedding as much weight as possible - including muscle

weight. That's why endurance runners tend to be skinny, while

sprinters tend to be muscular.

Regards,

Andy

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Guest guest

You really need to read the book and everything will fall into

place. Or if you can't wait go check out http://www.bodyforlife.com.

Andyman

>

>

>

> ~Andy

>

>

> > If you are going to do BFL, I'd cut back on the long runs.

>

>

> What exactly is Body For Life? Should I take it for its literal

> meaning or is it a specific program?

>

>

> > I'd just do the 20 minute cardio running and then either take a

> > long walk or bike ride to replace the long distance running that

> > you do.

>

>

> How many days per week should I do 20min cardio? How many days per

> week should I do strength training?

>

>

> > What sort of goals do you hope to accomplish with running? If

you

> > could let us know that, then maybe we can be of more help.

>

> Running is a physical outlet for any stress that may befall me..

> Running keeps me fit and thin..

>

> My goals are to get my bodyfat% from 35%(now) to 23%.. I also want

to

> get my weight down from 168lbs to 145lbs (I am 5'9'').. I think

that

> running can help me accomplish these goals.. However, I now

> understand the importance of strength training.. Mainly, I need to

> find a perfect balance between the two..

>

> Thank you for responding and helping me with all of these

questions..

>

> ~Kathy

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Guest guest

You really need to read the book and everything will fall into

place. Or if you can't wait go check out http://www.bodyforlife.com.

Andyman

>

>

>

> ~Andy

>

>

> > If you are going to do BFL, I'd cut back on the long runs.

>

>

> What exactly is Body For Life? Should I take it for its literal

> meaning or is it a specific program?

>

>

> > I'd just do the 20 minute cardio running and then either take a

> > long walk or bike ride to replace the long distance running that

> > you do.

>

>

> How many days per week should I do 20min cardio? How many days per

> week should I do strength training?

>

>

> > What sort of goals do you hope to accomplish with running? If

you

> > could let us know that, then maybe we can be of more help.

>

> Running is a physical outlet for any stress that may befall me..

> Running keeps me fit and thin..

>

> My goals are to get my bodyfat% from 35%(now) to 23%.. I also want

to

> get my weight down from 168lbs to 145lbs (I am 5'9'').. I think

that

> running can help me accomplish these goals.. However, I now

> understand the importance of strength training.. Mainly, I need to

> find a perfect balance between the two..

>

> Thank you for responding and helping me with all of these

questions..

>

> ~Kathy

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Guest guest

Definitely read the book. just an fyi on buying - they have it on

half.com (its an ebay run site that sells gently used (read it one

time then sell it) books and such..)

Here's the link. you may have to copy and paste it..

Amy

http://www.half.com/cat/buy/prod_detail_by_cond.cgi?cpid=1033141 & domai

n_id=1856 & condition=667 & offset=0 & count= & sort=47087 & meta_id=1

>

>

>

> ~Andy

>

>

> > If you are going to do BFL, I'd cut back on the long runs.

>

>

> What exactly is Body For Life? Should I take it for its literal

> meaning or is it a specific program?

>

>

> > I'd just do the 20 minute cardio running and then either take a

> > long walk or bike ride to replace the long distance running that

> > you do.

>

>

> How many days per week should I do 20min cardio? How many days per

> week should I do strength training?

>

>

> > What sort of goals do you hope to accomplish with running? If

you

> > could let us know that, then maybe we can be of more help.

>

> Running is a physical outlet for any stress that may befall me..

> Running keeps me fit and thin..

>

> My goals are to get my bodyfat% from 35%(now) to 23%.. I also want

to

> get my weight down from 168lbs to 145lbs (I am 5'9'').. I think

that

> running can help me accomplish these goals.. However, I now

> understand the importance of strength training.. Mainly, I need to

> find a perfect balance between the two..

>

> Thank you for responding and helping me with all of these

questions..

>

> ~Kathy

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  • 5 months later...

Hi Hope, and welcome to ModOasis. Your story sounds very

familiar -- you are in good company here! I've been here for a

little over a year, and am in such a better place now. Of

course, I still have progress I want to make, but I am much

happier and more confident in who *I* am these days. I haven't

divorced my nada (yet), but our relationship can be trying.

Thankfully, the holidays have gone fairly smoothly for me (aside

from the usual pain of simply being around her -- always a less

than pleasant experience). We had a recent blow-up, and she is

on her best behavior right now in an attempt to hoover me (suck

me back into status quo behavior -- i.e., where she has control

over me), I'm sure.

I am close in age to you (just turned 30), and am thankful that

I found out about all this so early in life. I don't have kids

yet, but plan on it -- soon, hopefully. Why do you say it's not

likely you'll have kids? I'm not asking this in a judgemental

fashion -- there are several people on this list who have made

it clear they don't want to have kids for fear of repeating

their nada/fada's mistakes. Only you can make that decision...

I'm just curious :) If you would like to have kids, but are

fearful you'll be a " bad parent " (due to your upbringing), I

would like to say that I believe there is hope! As a matter of

fact, it's possible that your upbringing means you'll be an even

better parent -- we are particularly sensitive to what NOT to

do. Humans have an incredible capacity to change and adapt. It

might seem impossible, but give yourself some time and you'll be

amazed at how much you can change. Realize, too, that it has

taken you 28 years to get to this point, so you're not going to

change yourSelf overnight. Also, some things will never change

-- they are a part of who we are. I am trying to accept that,

and still love myself for who I am. I am learning to live with

and adapt to the parts of me that won't change... to perhaps

find a healthier way to cope with them. And some of the stuff

us KOs (kids of BPs) do is really quite special -- a gift, in a

way. We tend to be very empathetic, which can hurt us if we're

not careful, but it can also be a blessing. I think we're also

courageous and resiliant -- we lived through years of hell, and

we're not only here to tell the tale, but we're fighting back

and working to make ourSelves happier. As a rule, we're a

pretty good bunch of people!

Well, we're glad to have you here... post as much as you want,

and don't worry too much about length (well, maybe I can't speak

for the group, but it doesn't bother me!).

Warm wishes on this chilly Michigan evening,

Anon

P.S. Also, there are lots of good books out there. Let us know

what you've read so far, and then we might make some

recommendations based on what we've found helpful :)

--- Hope wrote:

> Hello, I am new here. I feel so relieved, so much CLEANER, to

> find

> out there are more people who have had similar experiences as

> I have.

> I'm 28 and have been trying to 'break free' from my mom since

> I was

> about 14 - that's half my life! Up till right now it's been a

> long,

> lonely struggle. There have been times when I've doubted

> myself, but

> basically I always tried to be true to my inner light. That

> has been

> very hard, since it was like no one else could possibly

> understand

> what I've gone through, so I had to keep it a secret. WOW to

> have

> found a place where I can say it all!!

>

<snip>

>

> Peace to all

>

> Hope

__________________________________________________

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Hi Hope, and welcome to ModOasis. Your story sounds very

familiar -- you are in good company here! I've been here for a

little over a year, and am in such a better place now. Of

course, I still have progress I want to make, but I am much

happier and more confident in who *I* am these days. I haven't

divorced my nada (yet), but our relationship can be trying.

Thankfully, the holidays have gone fairly smoothly for me (aside

from the usual pain of simply being around her -- always a less

than pleasant experience). We had a recent blow-up, and she is

on her best behavior right now in an attempt to hoover me (suck

me back into status quo behavior -- i.e., where she has control

over me), I'm sure.

I am close in age to you (just turned 30), and am thankful that

I found out about all this so early in life. I don't have kids

yet, but plan on it -- soon, hopefully. Why do you say it's not

likely you'll have kids? I'm not asking this in a judgemental

fashion -- there are several people on this list who have made

it clear they don't want to have kids for fear of repeating

their nada/fada's mistakes. Only you can make that decision...

I'm just curious :) If you would like to have kids, but are

fearful you'll be a " bad parent " (due to your upbringing), I

would like to say that I believe there is hope! As a matter of

fact, it's possible that your upbringing means you'll be an even

better parent -- we are particularly sensitive to what NOT to

do. Humans have an incredible capacity to change and adapt. It

might seem impossible, but give yourself some time and you'll be

amazed at how much you can change. Realize, too, that it has

taken you 28 years to get to this point, so you're not going to

change yourSelf overnight. Also, some things will never change

-- they are a part of who we are. I am trying to accept that,

and still love myself for who I am. I am learning to live with

and adapt to the parts of me that won't change... to perhaps

find a healthier way to cope with them. And some of the stuff

us KOs (kids of BPs) do is really quite special -- a gift, in a

way. We tend to be very empathetic, which can hurt us if we're

not careful, but it can also be a blessing. I think we're also

courageous and resiliant -- we lived through years of hell, and

we're not only here to tell the tale, but we're fighting back

and working to make ourSelves happier. As a rule, we're a

pretty good bunch of people!

Well, we're glad to have you here... post as much as you want,

and don't worry too much about length (well, maybe I can't speak

for the group, but it doesn't bother me!).

Warm wishes on this chilly Michigan evening,

Anon

P.S. Also, there are lots of good books out there. Let us know

what you've read so far, and then we might make some

recommendations based on what we've found helpful :)

--- Hope wrote:

> Hello, I am new here. I feel so relieved, so much CLEANER, to

> find

> out there are more people who have had similar experiences as

> I have.

> I'm 28 and have been trying to 'break free' from my mom since

> I was

> about 14 - that's half my life! Up till right now it's been a

> long,

> lonely struggle. There have been times when I've doubted

> myself, but

> basically I always tried to be true to my inner light. That

> has been

> very hard, since it was like no one else could possibly

> understand

> what I've gone through, so I had to keep it a secret. WOW to

> have

> found a place where I can say it all!!

>

<snip>

>

> Peace to all

>

> Hope

__________________________________________________

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Hi Hope, and welcome to ModOasis. Your story sounds very

familiar -- you are in good company here! I've been here for a

little over a year, and am in such a better place now. Of

course, I still have progress I want to make, but I am much

happier and more confident in who *I* am these days. I haven't

divorced my nada (yet), but our relationship can be trying.

Thankfully, the holidays have gone fairly smoothly for me (aside

from the usual pain of simply being around her -- always a less

than pleasant experience). We had a recent blow-up, and she is

on her best behavior right now in an attempt to hoover me (suck

me back into status quo behavior -- i.e., where she has control

over me), I'm sure.

I am close in age to you (just turned 30), and am thankful that

I found out about all this so early in life. I don't have kids

yet, but plan on it -- soon, hopefully. Why do you say it's not

likely you'll have kids? I'm not asking this in a judgemental

fashion -- there are several people on this list who have made

it clear they don't want to have kids for fear of repeating

their nada/fada's mistakes. Only you can make that decision...

I'm just curious :) If you would like to have kids, but are

fearful you'll be a " bad parent " (due to your upbringing), I

would like to say that I believe there is hope! As a matter of

fact, it's possible that your upbringing means you'll be an even

better parent -- we are particularly sensitive to what NOT to

do. Humans have an incredible capacity to change and adapt. It

might seem impossible, but give yourself some time and you'll be

amazed at how much you can change. Realize, too, that it has

taken you 28 years to get to this point, so you're not going to

change yourSelf overnight. Also, some things will never change

-- they are a part of who we are. I am trying to accept that,

and still love myself for who I am. I am learning to live with

and adapt to the parts of me that won't change... to perhaps

find a healthier way to cope with them. And some of the stuff

us KOs (kids of BPs) do is really quite special -- a gift, in a

way. We tend to be very empathetic, which can hurt us if we're

not careful, but it can also be a blessing. I think we're also

courageous and resiliant -- we lived through years of hell, and

we're not only here to tell the tale, but we're fighting back

and working to make ourSelves happier. As a rule, we're a

pretty good bunch of people!

Well, we're glad to have you here... post as much as you want,

and don't worry too much about length (well, maybe I can't speak

for the group, but it doesn't bother me!).

Warm wishes on this chilly Michigan evening,

Anon

P.S. Also, there are lots of good books out there. Let us know

what you've read so far, and then we might make some

recommendations based on what we've found helpful :)

--- Hope wrote:

> Hello, I am new here. I feel so relieved, so much CLEANER, to

> find

> out there are more people who have had similar experiences as

> I have.

> I'm 28 and have been trying to 'break free' from my mom since

> I was

> about 14 - that's half my life! Up till right now it's been a

> long,

> lonely struggle. There have been times when I've doubted

> myself, but

> basically I always tried to be true to my inner light. That

> has been

> very hard, since it was like no one else could possibly

> understand

> what I've gone through, so I had to keep it a secret. WOW to

> have

> found a place where I can say it all!!

>

<snip>

>

> Peace to all

>

> Hope

__________________________________________________

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Share on other sites

Hi Hope!

I also want to welcome you to the group. Like Anon I have found validation

and support with this group and it has been the one positive point in

helping me cope with the ins and outs of BPD. You are amoung friends! And I

agree with Anon, no posts are too long, LOL. Warm thoughts,

-- Re: New to Group

Hi Hope, and welcome to ModOasis. Your story sounds very

familiar -- you are in good company here! I've been here for a

little over a year, and am in such a better place now. Of

course, I still have progress I want to make, but I am much

happier and more confident in who *I* am these days. I haven't

divorced my nada (yet), but our relationship can be trying.

Thankfully, the holidays have gone fairly smoothly for me (aside

from the usual pain of simply being around her -- always a less

than pleasant experience). We had a recent blow-up, and she is

on her best behavior right now in an attempt to hoover me (suck

me back into status quo behavior -- i.e., where she has control

over me), I'm sure.

I am close in age to you (just turned 30), and am thankful that

I found out about all this so early in life. I don't have kids

yet, but plan on it -- soon, hopefully. Why do you say it's not

likely you'll have kids? I'm not asking this in a judgemental

fashion -- there are several people on this list who have made

it clear they don't want to have kids for fear of repeating

their nada/fada's mistakes. Only you can make that decision...

I'm just curious :) If you would like to have kids, but are

fearful you'll be a " bad parent " (due to your upbringing), I

would like to say that I believe there is hope! As a matter of

fact, it's possible that your upbringing means you'll be an even

better parent -- we are particularly sensitive to what NOT to

do. Humans have an incredible capacity to change and adapt. It

might seem impossible, but give yourself some time and you'll be

amazed at how much you can change. Realize, too, that it has

taken you 28 years to get to this point, so you're not going to

change yourSelf overnight. Also, some things will never change

-- they are a part of who we are. I am trying to accept that,

and still love myself for who I am. I am learning to live with

and adapt to the parts of me that won't change... to perhaps

find a healthier way to cope with them. And some of the stuff

us KOs (kids of BPs) do is really quite special -- a gift, in a

way. We tend to be very empathetic, which can hurt us if we're

not careful, but it can also be a blessing. I think we're also

courageous and resiliant -- we lived through years of hell, and

we're not only here to tell the tale, but we're fighting back

and working to make ourSelves happier. As a rule, we're a

pretty good bunch of people!

Well, we're glad to have you here... post as much as you want,

and don't worry too much about length (well, maybe I can't speak

for the group, but it doesn't bother me!).

Warm wishes on this chilly Michigan evening,

Anon

P.S. Also, there are lots of good books out there. Let us know

what you've read so far, and then we might make some

recommendations based on what we've found helpful :)

--- Hope wrote:

> Hello, I am new here. I feel so relieved, so much CLEANER, to

> find

> out there are more people who have had similar experiences as

> I have.

> I'm 28 and have been trying to 'break free' from my mom since

> I was

> about 14 - that's half my life! Up till right now it's been a

> long,

> lonely struggle. There have been times when I've doubted

> myself, but

> basically I always tried to be true to my inner light. That

> has been

> very hard, since it was like no one else could possibly

> understand

> what I've gone through, so I had to keep it a secret. WOW to

> have

> found a place where I can say it all!!

>

<snip>

>

> Peace to all

>

> Hope

__________________________________________________

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  • 1 year later...

In a message dated 10/29/2003 6:53:01 PM Eastern Standard Time,

mollyann365@... writes:

Okay, we need to come up with some more positive messages to help

you each day! Guess I better go do some researching!! Very glad to have you

here! Hugs, PJ

LOL! Thanks, PJ! Most of the time I'm pretty positive, just some days are

harder than others as I'm sure you can all relate to! My fibromyalgia goes in

flares, I always ache that goes without saying, but sometimes it's worse than

other times. I find that usually the worst pain and discomfort and fatigue comes

right after I've gotten my son through a crisis. I know, stress = flare up,

which is another reason why I joined this group! :o) I do think that in general

I am handling things okay, at least I'm not certifiably insane yet so that's

always a plus! Mostly I pray every day that the Lord not only gives me His

strength but also His joy and His peace. By the way, there is no way I can

handle

all of this, so I finally figured out that God only gives me what HE can

handle. I guess I've learned that there comes a time when you have to just turn

everything over to Him and let it go. Kody's had the asthma attacks like your

son. It is horrifyingly scary. I am so happy to hear that your son is doing so

well now. That really is awesome! Kody's main troubles are his immune

deficiencies, he isn't able to fight bacterial infections. He's had more

infections than

I can count, including I think about 8 bouts of pneumonia, osteomylitis, and

sepsis. His ear, sinus, and eye infections are never ending ( and I mean that

very literally). He does get IV gammaglobulin (basically donated antibodies in

lay terms) every 3 weeks, it's a huge benefit for him as it's cut down on the

life threatening infections greatly. But since we spend the entire day at the

hospital those days it is stressful (fibro wise it's really hard for me to

sit there that long!). I think once you have a child with serious stuff happen

it really focuses your priorities. I think that is what keeps me grounded, I

know what is important in life!!! Thanks for the welcome!!!

Diane, Mom to Kody, age 7, precious and precocious who has Di Syndrome,

Hypogammaglobulinemia, epilepsy, asthma, chronic encopresis, and severe

cognitive regression. Also Mom to Arika age 16, Kaila, age 12, and Sami age 9

(she

happens to also be Dyslexic), and wife/soulmate to for 10 years.

check out my website: www.geocities.com/schmidtzoo/SNAK

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In a message dated 10/29/2003 6:53:01 PM Eastern Standard Time,

mollyann365@... writes:

Okay, we need to come up with some more positive messages to help

you each day! Guess I better go do some researching!! Very glad to have you

here! Hugs, PJ

LOL! Thanks, PJ! Most of the time I'm pretty positive, just some days are

harder than others as I'm sure you can all relate to! My fibromyalgia goes in

flares, I always ache that goes without saying, but sometimes it's worse than

other times. I find that usually the worst pain and discomfort and fatigue comes

right after I've gotten my son through a crisis. I know, stress = flare up,

which is another reason why I joined this group! :o) I do think that in general

I am handling things okay, at least I'm not certifiably insane yet so that's

always a plus! Mostly I pray every day that the Lord not only gives me His

strength but also His joy and His peace. By the way, there is no way I can

handle

all of this, so I finally figured out that God only gives me what HE can

handle. I guess I've learned that there comes a time when you have to just turn

everything over to Him and let it go. Kody's had the asthma attacks like your

son. It is horrifyingly scary. I am so happy to hear that your son is doing so

well now. That really is awesome! Kody's main troubles are his immune

deficiencies, he isn't able to fight bacterial infections. He's had more

infections than

I can count, including I think about 8 bouts of pneumonia, osteomylitis, and

sepsis. His ear, sinus, and eye infections are never ending ( and I mean that

very literally). He does get IV gammaglobulin (basically donated antibodies in

lay terms) every 3 weeks, it's a huge benefit for him as it's cut down on the

life threatening infections greatly. But since we spend the entire day at the

hospital those days it is stressful (fibro wise it's really hard for me to

sit there that long!). I think once you have a child with serious stuff happen

it really focuses your priorities. I think that is what keeps me grounded, I

know what is important in life!!! Thanks for the welcome!!!

Diane, Mom to Kody, age 7, precious and precocious who has Di Syndrome,

Hypogammaglobulinemia, epilepsy, asthma, chronic encopresis, and severe

cognitive regression. Also Mom to Arika age 16, Kaila, age 12, and Sami age 9

(she

happens to also be Dyslexic), and wife/soulmate to for 10 years.

check out my website: www.geocities.com/schmidtzoo/SNAK

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Diane,

You are truly a remarkable mother!! I can't even begin to imagine everything

you must be dealing with. I know how precious our children are to us and

when something's wrong, we mothers will move heaven and earth for them.

I have a sister in law that has Fibro, so I know a little of what you suffer

with. She seems to have a very severe case and is in constant pain. She

can't even sleep lying in her bed - she sleeps in a recliner part of the night

and

paces the floor the rest of the night and is just miserable. She's on a lot

of pain medication and most of the time that doesn't even work. My prayers are

with you girl!

Hugs,

In a message dated 10/29/03 8:52:04 PM Central Standard Time,

SNAKpackmomma@... writes:

> LOL! Thanks, PJ! Most of the time I'm pretty positive, just some days are

> harder than others as I'm sure you can all relate to! My fibromyalgia goes

> in

> flares, I always ache that goes without saying, but sometimes it's worse

> than

> other times. I find that usually the worst pain and discomfort and fatigue

> comes

> right after I've gotten my son through a crisis. I know, stress = flare up,

> which is another reason why I joined this group! :o) I do think that in

> general

> I am handling things okay, at least I'm not certifiably insane yet so that's

>

> always a plus! Mostly I pray every day that the Lord not only gives me His

> strength but also His joy and His peace. By the way, there is no way I can

> handle

> all of this, so I finally figured out that God only gives me what HE can

> handle. I guess I've learned that there comes a time when you have to just

> turn

> everything over to Him and let it go. Kody's had the asthma attacks like

> your

> son. It is horrifyingly scary. I am so happy to hear that your son is doing

> so

> well now. That really is awesome! Kody's main troubles are his immune

> deficiencies, he isn't able to fight bacterial infections. He's had more

> infections than

> I can count, including I think about 8 bouts of pneumonia, osteomylitis, and

>

> sepsis. His ear, sinus, and eye infections are never ending ( and I mean

> that

> very literally). He does get IV gammaglobulin (basically donated antibodies

> in

> lay terms) every 3 weeks, it's a huge benefit for him as it's cut down on

> the

> life threatening infections greatly. But since we spend the entire day at

> the

> hospital those days it is stressful (fibro wise it's really hard for me to

> sit there that long!). I think once you have a child with serious stuff

> happen

> it really focuses your priorities. I think that is what keeps me grounded, I

>

> know what is important in life!!! Thanks for the welcome!!!

>

>

> Diane, Mom to Kody, age 7, precious and precocious who has Di

> Syndrome,

> Hypogammaglobulinemia, epilepsy, asthma, chronic encopresis, and severe

> cognitive regression. Also Mom to Arika age 16, Kaila, age 12, and Sami age

> 9 (she

> happens to also be Dyslexic), and wife/soulmate to for 10 years.

> check out my website: www.geocities.com/schmidtzoo/SNAK

>

>

>

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Diane,

You are truly a remarkable mother!! I can't even begin to imagine everything

you must be dealing with. I know how precious our children are to us and

when something's wrong, we mothers will move heaven and earth for them.

I have a sister in law that has Fibro, so I know a little of what you suffer

with. She seems to have a very severe case and is in constant pain. She

can't even sleep lying in her bed - she sleeps in a recliner part of the night

and

paces the floor the rest of the night and is just miserable. She's on a lot

of pain medication and most of the time that doesn't even work. My prayers are

with you girl!

Hugs,

In a message dated 10/29/03 8:52:04 PM Central Standard Time,

SNAKpackmomma@... writes:

> LOL! Thanks, PJ! Most of the time I'm pretty positive, just some days are

> harder than others as I'm sure you can all relate to! My fibromyalgia goes

> in

> flares, I always ache that goes without saying, but sometimes it's worse

> than

> other times. I find that usually the worst pain and discomfort and fatigue

> comes

> right after I've gotten my son through a crisis. I know, stress = flare up,

> which is another reason why I joined this group! :o) I do think that in

> general

> I am handling things okay, at least I'm not certifiably insane yet so that's

>

> always a plus! Mostly I pray every day that the Lord not only gives me His

> strength but also His joy and His peace. By the way, there is no way I can

> handle

> all of this, so I finally figured out that God only gives me what HE can

> handle. I guess I've learned that there comes a time when you have to just

> turn

> everything over to Him and let it go. Kody's had the asthma attacks like

> your

> son. It is horrifyingly scary. I am so happy to hear that your son is doing

> so

> well now. That really is awesome! Kody's main troubles are his immune

> deficiencies, he isn't able to fight bacterial infections. He's had more

> infections than

> I can count, including I think about 8 bouts of pneumonia, osteomylitis, and

>

> sepsis. His ear, sinus, and eye infections are never ending ( and I mean

> that

> very literally). He does get IV gammaglobulin (basically donated antibodies

> in

> lay terms) every 3 weeks, it's a huge benefit for him as it's cut down on

> the

> life threatening infections greatly. But since we spend the entire day at

> the

> hospital those days it is stressful (fibro wise it's really hard for me to

> sit there that long!). I think once you have a child with serious stuff

> happen

> it really focuses your priorities. I think that is what keeps me grounded, I

>

> know what is important in life!!! Thanks for the welcome!!!

>

>

> Diane, Mom to Kody, age 7, precious and precocious who has Di

> Syndrome,

> Hypogammaglobulinemia, epilepsy, asthma, chronic encopresis, and severe

> cognitive regression. Also Mom to Arika age 16, Kaila, age 12, and Sami age

> 9 (she

> happens to also be Dyslexic), and wife/soulmate to for 10 years.

> check out my website: www.geocities.com/schmidtzoo/SNAK

>

>

>

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In a message dated 10/29/2003 10:02:57 PM Eastern Standard Time,

RareBreeeze@... writes:

I have a sister in law that has Fibro, so I know a little of what you suffer

with. She seems to have a very severe case and is in constant pain. She

can't even sleep lying in her bed - she sleeps in a recliner part of the

night and

paces the floor the rest of the night and is just miserable. She's on a lot

of pain medication and most of the time that doesn't even work. My prayers

are

with you girl!

Thanks . I am like your sister in law alot. I bought a featherbed and

that helps a whole lot. Another friend of mine with fibro says that a sheepskin

rug on the bed helps too. Personally I couldn't afford a sheepskin so I

bought the featherbed, the biggest thickest one I could find! And it really does

help. I also have restless leg syndrome (I think that is part of fibro) and when

it is really bad, I'll take flexeral for it but I hate taking it because it

makes me feel so drugged and I'm scared that I won't wake up or be thinking

clearly if my son needs me. And I don't think I'm an amazing mom, I just do what

I have to, it's my kids that are amazing! All of them are funny kids with

great senses of humor, even Kody who has a tendency to say the darndest things

when you least expect it! They keep me laughing!

Diane, Mom to Kody, age 7, precious and precocious who has Di Syndrome,

Hypogammaglobulinemia, epilepsy, asthma, chronic encopresis, and severe

cognitive regression. Also Mom to Arika age 16, Kaila, age 12, and Sami age 9

(she

happens to also be Dyslexic), and wife/soulmate to for 10 years.

check out my website: www.geocities.com/schmidtzoo/SNAK

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Share on other sites

In a message dated 10/29/2003 10:02:57 PM Eastern Standard Time,

RareBreeeze@... writes:

I have a sister in law that has Fibro, so I know a little of what you suffer

with. She seems to have a very severe case and is in constant pain. She

can't even sleep lying in her bed - she sleeps in a recliner part of the

night and

paces the floor the rest of the night and is just miserable. She's on a lot

of pain medication and most of the time that doesn't even work. My prayers

are

with you girl!

Thanks . I am like your sister in law alot. I bought a featherbed and

that helps a whole lot. Another friend of mine with fibro says that a sheepskin

rug on the bed helps too. Personally I couldn't afford a sheepskin so I

bought the featherbed, the biggest thickest one I could find! And it really does

help. I also have restless leg syndrome (I think that is part of fibro) and when

it is really bad, I'll take flexeral for it but I hate taking it because it

makes me feel so drugged and I'm scared that I won't wake up or be thinking

clearly if my son needs me. And I don't think I'm an amazing mom, I just do what

I have to, it's my kids that are amazing! All of them are funny kids with

great senses of humor, even Kody who has a tendency to say the darndest things

when you least expect it! They keep me laughing!

Diane, Mom to Kody, age 7, precious and precocious who has Di Syndrome,

Hypogammaglobulinemia, epilepsy, asthma, chronic encopresis, and severe

cognitive regression. Also Mom to Arika age 16, Kaila, age 12, and Sami age 9

(she

happens to also be Dyslexic), and wife/soulmate to for 10 years.

check out my website: www.geocities.com/schmidtzoo/SNAK

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Share on other sites

Welcome Diane!

My goodness, you do have your hands full! I admire you for being

able to deal with all of that, and to be able to talk about it in a positive

way. Many of the members in affirmations have difficulties of all different

kinds. I'm sure you could probably find someone with almost all of what you are

talking about, but certainly not in the same person!! I'm trying to compliment

you here -- new people don't always know how to take me at first! I do believe

that God gives us what we are able to handle; and in your case, God must have an

incredible amount of respect and faith in you!

I guess the main thing I have in common with you is that I have

fibromyalgia, and chronic myofascial pain of one leg (including the foot, knee,

hip and muscles between). I've only been diagnosed for about 2-3 years now, and

guess that I deal with it pretty good for the most part. I do limp a lot with

my right leg, and there are times when I am in awful pain, and of course, being

very fatigued -- but it could be worse. And, I'm grateful for what I have.

You certainly have my prayers and sympathy for all that you are

dealing with. I hurt so much for the children with health problems, but I also

hurt for their mothers and fathers. When my son was 13 months old, he got

asthma so bad that he had to be life-flighted by helicopter from one Houston

hospital to another. Shortly after arriving there, he suffered a respiratory

arrest, and not too long after that we were told that he wouldn't live and were

prepared for the worst by the doctors. It was extremely traumatic, and we spent

many nights up with him sick all night (before and after this hospital stay).

But, my son is 21 years old now, extremely healthy, is a fitness trainer, and

" into " healthy stuff. You would never think that was the same individual!!

But, I can say that those years when he was so sick and when we got so little

sleep because of his asthma, were extremely exhausting for us as parents. I'm

not trying to compare my situation to yours as they are

very different, but I did want you to understand that in a way, I've been

there, too, and I do care and understand a little of what you are going through.

Let us know if we can help in any way!

Okay, we need to come up with some more positive messages to help you

each day! Guess I better go do some researching!! Very glad to have you here!

Hugs, PJ

SNAKpackmomma@... wrote:

Hello, I'm Diane, I'm new here and just thought I'd pop in and introduce

myself. Not sure where to start...my husband and I have been married for 10

years

(Nov.7th) and he had two kids from a previous marriage as did I, then we had

two together. My step kids we never see, they live 18 hour drive away from us

and the Mom keeps moving so we can't visit or call them. My ex is a deadbeat

Dad, and his mother is insane and drives me insane (it's a vicious cycle). My

oldest daughter just turned 16 this summer and is a typical teenager other than

she was bitten by a tick and developed Lyme's Disease a week or so ago. My

middle daughter is a gifted student and it's a challenge to keep her challenged,

my youngest daughter is dyslexic, my youngest child, my son, has Di

Syndrome, hypogammaglobulinemia, epilepsy, asthma, GERD, and because he's having

some severe cognitive regression he is being tested for other things now too

so we are in the middle of major testing. In Nov. he will have to have a spinal

tap and a 24 hour sleep study EEG, by then some blood work should be in too.

We have medical bills like you would not believe, then again, maybe you do! My

husband is a recovering alcoholic, it's been a year and a half. And I have

fibromyalgia syndrome. I'm sure I've forgotten some things... but as you can see

Stress is my middle name. I do have a very strong faith in God, and I know

that without that I would be a basket case, but sometimes it is all so very

overwhelming especially in the face of yet another serious diagnosis for my son.

I

think a little inspiration to keep my eyes focused on the positives instead

of drowning in the negatives would be wonderful! I've enjoyed the posts that

have come through so far. Thanks.

Diane, Mom to Kody, age 7, precious and precocious who has Di Syndrome,

Hypogammaglobulinemia, epilepsy, asthma, chronic encopresis, and severe

cognitive regression. Also Mom to Arika age 16, Kaila, age 12, and Sami age 9

(she

happens to also be Dyslexic), and wife/soulmate to for 10 years.

check out my website: www.geocities.com/schmidtzoo/SNAK

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Share on other sites

Welcome Diane!

My goodness, you do have your hands full! I admire you for being

able to deal with all of that, and to be able to talk about it in a positive

way. Many of the members in affirmations have difficulties of all different

kinds. I'm sure you could probably find someone with almost all of what you are

talking about, but certainly not in the same person!! I'm trying to compliment

you here -- new people don't always know how to take me at first! I do believe

that God gives us what we are able to handle; and in your case, God must have an

incredible amount of respect and faith in you!

I guess the main thing I have in common with you is that I have

fibromyalgia, and chronic myofascial pain of one leg (including the foot, knee,

hip and muscles between). I've only been diagnosed for about 2-3 years now, and

guess that I deal with it pretty good for the most part. I do limp a lot with

my right leg, and there are times when I am in awful pain, and of course, being

very fatigued -- but it could be worse. And, I'm grateful for what I have.

You certainly have my prayers and sympathy for all that you are

dealing with. I hurt so much for the children with health problems, but I also

hurt for their mothers and fathers. When my son was 13 months old, he got

asthma so bad that he had to be life-flighted by helicopter from one Houston

hospital to another. Shortly after arriving there, he suffered a respiratory

arrest, and not too long after that we were told that he wouldn't live and were

prepared for the worst by the doctors. It was extremely traumatic, and we spent

many nights up with him sick all night (before and after this hospital stay).

But, my son is 21 years old now, extremely healthy, is a fitness trainer, and

" into " healthy stuff. You would never think that was the same individual!!

But, I can say that those years when he was so sick and when we got so little

sleep because of his asthma, were extremely exhausting for us as parents. I'm

not trying to compare my situation to yours as they are

very different, but I did want you to understand that in a way, I've been

there, too, and I do care and understand a little of what you are going through.

Let us know if we can help in any way!

Okay, we need to come up with some more positive messages to help you

each day! Guess I better go do some researching!! Very glad to have you here!

Hugs, PJ

SNAKpackmomma@... wrote:

Hello, I'm Diane, I'm new here and just thought I'd pop in and introduce

myself. Not sure where to start...my husband and I have been married for 10

years

(Nov.7th) and he had two kids from a previous marriage as did I, then we had

two together. My step kids we never see, they live 18 hour drive away from us

and the Mom keeps moving so we can't visit or call them. My ex is a deadbeat

Dad, and his mother is insane and drives me insane (it's a vicious cycle). My

oldest daughter just turned 16 this summer and is a typical teenager other than

she was bitten by a tick and developed Lyme's Disease a week or so ago. My

middle daughter is a gifted student and it's a challenge to keep her challenged,

my youngest daughter is dyslexic, my youngest child, my son, has Di

Syndrome, hypogammaglobulinemia, epilepsy, asthma, GERD, and because he's having

some severe cognitive regression he is being tested for other things now too

so we are in the middle of major testing. In Nov. he will have to have a spinal

tap and a 24 hour sleep study EEG, by then some blood work should be in too.

We have medical bills like you would not believe, then again, maybe you do! My

husband is a recovering alcoholic, it's been a year and a half. And I have

fibromyalgia syndrome. I'm sure I've forgotten some things... but as you can see

Stress is my middle name. I do have a very strong faith in God, and I know

that without that I would be a basket case, but sometimes it is all so very

overwhelming especially in the face of yet another serious diagnosis for my son.

I

think a little inspiration to keep my eyes focused on the positives instead

of drowning in the negatives would be wonderful! I've enjoyed the posts that

have come through so far. Thanks.

Diane, Mom to Kody, age 7, precious and precocious who has Di Syndrome,

Hypogammaglobulinemia, epilepsy, asthma, chronic encopresis, and severe

cognitive regression. Also Mom to Arika age 16, Kaila, age 12, and Sami age 9

(she

happens to also be Dyslexic), and wife/soulmate to for 10 years.

check out my website: www.geocities.com/schmidtzoo/SNAK

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In a message dated 10/30/2003 11:37:51 AM Eastern Standard Time,

mollyann365@... writes:

Don't you find that when children have some handicaps of any kind -- illness

or whatever -- that sometimes they are the sweetest, most wonderful, precious

kids and have a great sense of humor?! I think that God must have done that

for the parents, as well as the kids! PJ

YOu know what, that is really true. Obviously I've met lots of parents and

kids iwth special needs and the majority of them are so funny and a delight to

be around. I'm sure it is God's way of helping you cope!

Diane

Life may not be the party we hoped for, but while we are here we might as

well dance!

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In a message dated 10/30/2003 11:37:51 AM Eastern Standard Time,

mollyann365@... writes:

Don't you find that when children have some handicaps of any kind -- illness

or whatever -- that sometimes they are the sweetest, most wonderful, precious

kids and have a great sense of humor?! I think that God must have done that

for the parents, as well as the kids! PJ

YOu know what, that is really true. Obviously I've met lots of parents and

kids iwth special needs and the majority of them are so funny and a delight to

be around. I'm sure it is God's way of helping you cope!

Diane

Life may not be the party we hoped for, but while we are here we might as

well dance!

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Diane,

You are too right! Fibromyalgia is definitely made worse by

stress!!! I am achy every day -- that's a given; but on those stressful days or

the day after a stressful day, OUCH! Very painful! That is one of the reasons

I started this group as I needed help in being positive and Not dwelling on all

the stress!

I imagine sitting there all day at the hospital is probably one of the worst

things for your fibromyalgia. I hurt thinking about it. Well, make yourself at

home here. We are very happy to have you here! Have a great day! PJ

SNAKpackmomma@... wrote:

In a message dated 10/29/2003 6:53:01 PM Eastern Standard Time,

mollyann365@... writes:

Okay, we need to come up with some more positive messages to help

you each day! Guess I better go do some researching!! Very glad to have you

here! Hugs, PJ

LOL! Thanks, PJ! Most of the time I'm pretty positive, just some days are

harder than others as I'm sure you can all relate to! My fibromyalgia goes in

flares, I always ache that goes without saying, but sometimes it's worse than

other times. I find that usually the worst pain and discomfort and fatigue comes

right after I've gotten my son through a crisis. I know, stress = flare up,

which is another reason why I joined this group! :o) I do think that in general

I am handling things okay, at least I'm not certifiably insane yet so that's

always a plus! Mostly I pray every day that the Lord not only gives me His

strength but also His joy and His peace. By the way, there is no way I can

handle

all of this, so I finally figured out that God only gives me what HE can

handle. I guess I've learned that there comes a time when you have to just turn

everything over to Him and let it go. Kody's had the asthma attacks like your

son. It is horrifyingly scary. I am so happy to hear that your son is doing so

well now. That really is awesome! Kody's main troubles are his immune

deficiencies, he isn't able to fight bacterial infections. He's had more

infections than

I can count, including I think about 8 bouts of pneumonia, osteomylitis, and

sepsis. His ear, sinus, and eye infections are never ending ( and I mean that

very literally). He does get IV gammaglobulin (basically donated antibodies in

lay terms) every 3 weeks, it's a huge benefit for him as it's cut down on the

life threatening infections greatly. But since we spend the entire day at the

hospital those days it is stressful (fibro wise it's really hard for me to

sit there that long!). I think once you have a child with serious stuff happen

it really focuses your priorities. I think that is what keeps me grounded, I

know what is important in life!!! Thanks for the welcome!!!

Diane, Mom to Kody, age 7, precious and precocious who has Di Syndrome,

Hypogammaglobulinemia, epilepsy, asthma, chronic encopresis, and severe

cognitive regression. Also Mom to Arika age 16, Kaila, age 12, and Sami age 9

(she

happens to also be Dyslexic), and wife/soulmate to for 10 years.

check out my website: www.geocities.com/schmidtzoo/SNAK

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Yeah, getting comfortable enough to sleep at night is awful! Luckily, I'm

not working out in the job rat race right now, and so I go take little Mini-Naps

during the day. I'm not sure why, but for some reason I am able to get more

comfortable during the day and my mini-naps help makeup for the lost sleep at

night! PJ

RareBreeeze@... wrote:Diane,

You are truly a remarkable mother!! I can't even begin to imagine everything

you must be dealing with. I know how precious our children are to us and

when something's wrong, we mothers will move heaven and earth for them.

I have a sister in law that has Fibro, so I know a little of what you suffer

with. She seems to have a very severe case and is in constant pain. She

can't even sleep lying in her bed - she sleeps in a recliner part of the night

and

paces the floor the rest of the night and is just miserable. She's on a lot

of pain medication and most of the time that doesn't even work. My prayers are

with you girl!

Hugs,

In a message dated 10/29/03 8:52:04 PM Central Standard Time,

SNAKpackmomma@... writes:

> LOL! Thanks, PJ! Most of the time I'm pretty positive, just some days are

> harder than others as I'm sure you can all relate to! My fibromyalgia goes

> in

> flares, I always ache that goes without saying, but sometimes it's worse

> than

> other times. I find that usually the worst pain and discomfort and fatigue

> comes

> right after I've gotten my son through a crisis. I know, stress = flare up,

> which is another reason why I joined this group! :o) I do think that in

> general

> I am handling things okay, at least I'm not certifiably insane yet so that's

>

> always a plus! Mostly I pray every day that the Lord not only gives me His

> strength but also His joy and His peace. By the way, there is no way I can

> handle

> all of this, so I finally figured out that God only gives me what HE can

> handle. I guess I've learned that there comes a time when you have to just

> turn

> everything over to Him and let it go. Kody's had the asthma attacks like

> your

> son. It is horrifyingly scary. I am so happy to hear that your son is doing

> so

> well now. That really is awesome! Kody's main troubles are his immune

> deficiencies, he isn't able to fight bacterial infections. He's had more

> infections than

> I can count, including I think about 8 bouts of pneumonia, osteomylitis, and

>

> sepsis. His ear, sinus, and eye infections are never ending ( and I mean

> that

> very literally). He does get IV gammaglobulin (basically donated antibodies

> in

> lay terms) every 3 weeks, it's a huge benefit for him as it's cut down on

> the

> life threatening infections greatly. But since we spend the entire day at

> the

> hospital those days it is stressful (fibro wise it's really hard for me to

> sit there that long!). I think once you have a child with serious stuff

> happen

> it really focuses your priorities. I think that is what keeps me grounded, I

>

> know what is important in life!!! Thanks for the welcome!!!

>

>

> Diane, Mom to Kody, age 7, precious and precocious who has Di

> Syndrome,

> Hypogammaglobulinemia, epilepsy, asthma, chronic encopresis, and severe

> cognitive regression. Also Mom to Arika age 16, Kaila, age 12, and Sami age

> 9 (she

> happens to also be Dyslexic), and wife/soulmate to for 10 years.

> check out my website: www.geocities.com/schmidtzoo/SNAK

>

>

>

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