3 weeks post-adrenalectomy

[Guest guest]

Hi all, just wanted to give you an update on my post-adrenalectomy progress -

today marks three weeks since the surgery. It took over two weeks to fully

recover and be able to drive and go back to work, but the pain is finally gone

for the most part and things are getting back to normal.

Had my follow-up with my PCP/acupuncturist yesterday. BP in the office was

128/83; my home average as of yesterday is 123/84. (And I've seen as low as

111/78 on several occasions!) K remains steady at 4.5. Muscle spasms and

headaches are entirely gone. He echoed my nephrologist's opinion that I am

considered " cured. "

I asked my PCP to promise me that going forward, when he encounters a patient

who doesn't fit the typical profile of someone with HTN, he will at minimum test

their ARR. His response was that he now believes it should be a part of the HTN

workup in any patient with drug-resistant HTN.

-msmith1928

Nulliparous female, 46, 5'3 " , 115 lbs, CT showed 1cm left adrenal nodule, AVS

determined disease is unilateral, had left laparoscopic adrenalectomy on

10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose

intolerance, lactose intolerance, gluten intolerance (probable celiac).

[Guest guest]

Yeah and Yeah!!!!!!

Subject: 3 weeks post-adrenalectomyTo: hyperaldosteronism Date: Thursday, November 3, 2011, 2:33 PM

Hi all, just wanted to give you an update on my post-adrenalectomy progress - today marks three weeks since the surgery. It took over two weeks to fully recover and be able to drive and go back to work, but the pain is finally gone for the most part and things are getting back to normal.Had my follow-up with my PCP/acupuncturist yesterday. BP in the office was 128/83; my home average as of yesterday is 123/84. (And I've seen as low as 111/78 on several occasions!) K remains steady at 4.5. Muscle spasms and headaches are entirely gone. He echoed my nephrologist's opinion that I am considered "cured."I asked my PCP to promise me that going forward, when he encounters a patient who doesn't fit the typical profile of someone with HTN, he will at minimum test their ARR. His response was that he now believes it should be a part of the HTN workup in any patient with drug-resistant HTN.-msmith1928Nulliparous female, 46, 5'3", 115

lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac).

[Guest guest]

Sounds like you converted one more PCP - way to go! One question, Any Regrets?

LOL!

- 65 yo super ob. male - 12mm X 13mm rt. a.adnoma with previous rt. flank

pain. Treating with Meds. And DASH. . Current BP(last week ave): 131/76 HR 60

Other Issues/Opportunities: OSA w Bi-Pap settings 13/19, DM2, and PTSD.

Meds: Duloxetine hcl 80 MG, Metoprolol Tartrate 200 MG, 81mg asprin, Metformin

2000MG and Spironolactone 50 MG.

>

> Hi all, just wanted to give you an update on my post-adrenalectomy progress -

today marks three weeks since the surgery. It took over two weeks to fully

recover and be able to drive and go back to work, but the pain is finally gone

for the most part and things are getting back to normal.

>

> Had my follow-up with my PCP/acupuncturist yesterday. BP in the office was

128/83; my home average as of yesterday is 123/84. (And I've seen as low as

111/78 on several occasions!) K remains steady at 4.5. Muscle spasms and

headaches are entirely gone. He echoed my nephrologist's opinion that I am

considered " cured. "

>

> I asked my PCP to promise me that going forward, when he encounters a patient

who doesn't fit the typical profile of someone with HTN, he will at minimum test

their ARR. His response was that he now believes it should be a part of the HTN

workup in any patient with drug-resistant HTN.

>

> -msmith1928

> Nulliparous female, 46, 5'3 " , 115 lbs, CT showed 1cm left adrenal nodule, AVS

determined disease is unilateral, had left laparoscopic adrenalectomy on

10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose

intolerance, lactose intolerance, gluten intolerance (probable celiac).

>

[Guest guest]

None yet! Ask me again in five years

> >

> > Hi all, just wanted to give you an update on my post-adrenalectomy progress

- today marks three weeks since the surgery. It took over two weeks to fully

recover and be able to drive and go back to work, but the pain is finally gone

for the most part and things are getting back to normal.

> >

> > Had my follow-up with my PCP/acupuncturist yesterday. BP in the office was

128/83; my home average as of yesterday is 123/84. (And I've seen as low as

111/78 on several occasions!) K remains steady at 4.5. Muscle spasms and

headaches are entirely gone. He echoed my nephrologist's opinion that I am

considered " cured. "

> >

> > I asked my PCP to promise me that going forward, when he encounters a

patient who doesn't fit the typical profile of someone with HTN, he will at

minimum test their ARR. His response was that he now believes it should be a

part of the HTN workup in any patient with drug-resistant HTN.

> >

> > -msmith1928

> > Nulliparous female, 46, 5'3 " , 115 lbs, CT showed 1cm left adrenal nodule,

AVS determined disease is unilateral, had left laparoscopic adrenalectomy on

10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose

intolerance, lactose intolerance, gluten intolerance (probable celiac).

> >

>

[Guest guest]

We all hope that everything will be fine in 5 years. It makes us envious, but still we wish you our best and want you to be back in 5 years and to be completely honest with us Natalia To: hyperaldosteronism Sent: Thursday, November 3, 2011 6:12 PMSubject: Re: 3 weeks post-adrenalectomy

None yet! Ask me again in five years

> >

> > Hi all, just wanted to give you an update on my post-adrenalectomy progress - today marks three weeks since the surgery. It took over two weeks to fully recover and be able to drive and go back to work, but the pain is finally gone for the most part and things are getting back to normal.

> >

> > Had my follow-up with my PCP/acupuncturist yesterday. BP in the office was 128/83; my home average as of yesterday is 123/84. (And I've seen as low as 111/78 on several occasions!) K remains steady at 4.5. Muscle spasms and headaches are entirely gone. He echoed my nephrologist's opinion that I am considered "cured."

> >

> > I asked my PCP to promise me that going forward, when he encounters a patient who doesn't fit the typical profile of someone with HTN, he will at minimum test their ARR. His response was that he now believes it should be a part of the HTN workup in any patient with drug-resistant HTN.

> >

> > -msmith1928

> > Nulliparous female, 46, 5'3", 115 lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac).

> >

>

[Guest guest]

Thank you for the kind words, Natalia

> > >

> > > Hi all, just wanted to give you an update on my post-adrenalectomy

progress - today marks three weeks since the surgery. It took over two weeks to

fully recover and be able to drive and go back to work, but the pain is finally

gone for the most part and things are getting back to normal.

> > >

> > > Had my follow-up with my PCP/acupuncturist yesterday. BP in the office was

128/83; my home average as of yesterday is 123/84. (And I've seen as low as

111/78 on several occasions!) K remains steady at 4.5. Muscle spasms and

headaches are entirely gone. He echoed my nephrologist's opinion that I am

considered " cured. "

> > >

> > > I asked my PCP to promise me that going forward, when he encounters a

patient who doesn't fit the typical profile of someone with HTN, he will at

minimum test their ARR. His response was that he now believes it should be a

part of the HTN workup in any patient with drug-resistant HTN.

> > >

> > > -msmith1928

> > > Nulliparous female, 46, 5'3 " , 115 lbs, CT showed 1cm left adrenal nodule,

AVS determined disease is unilateral, had left laparoscopic adrenalectomy on

10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose

intolerance, lactose intolerance, gluten intolerance (probable celiac).

> > >

> >

>

[Guest guest]

That's awesome! Thanks for the update. I know everyone is different, but from

your post it seems as though scheduling three weeks off work would be prudent if

one can afford it and has the time to take.

Question, how soon after your surgery do you think you would have been able to

fly on a commercial flight in coach? I am thinking of having my surgery out of

town and trying to plan/calculate costs.

>

> Hi all, just wanted to give you an update on my post-adrenalectomy progress -

today marks three weeks since the surgery. It took over two weeks to fully

recover and be able to drive and go back to work, but the pain is finally gone

for the most part and things are getting back to normal.

>

> Had my follow-up with my PCP/acupuncturist yesterday. BP in the office was

128/83; my home average as of yesterday is 123/84. (And I've seen as low as

111/78 on several occasions!) K remains steady at 4.5. Muscle spasms and

headaches are entirely gone. He echoed my nephrologist's opinion that I am

considered " cured. "

>

> I asked my PCP to promise me that going forward, when he encounters a patient

who doesn't fit the typical profile of someone with HTN, he will at minimum test

their ARR. His response was that he now believes it should be a part of the HTN

workup in any patient with drug-resistant HTN.

>

> -msmith1928

> Nulliparous female, 46, 5'3 " , 115 lbs, CT showed 1cm left adrenal nodule, AVS

determined disease is unilateral, had left laparoscopic adrenalectomy on

10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose

intolerance, lactose intolerance, gluten intolerance (probable celiac).

>

[Guest guest]

Hmmmm, that's a good question. Even riding in a car with a seatbelt on was

pretty excruciating the first five or six days - every little bump was torture,

and I'm talking about ten or fifteen minute drives. I'd say maybe a week after

the surgery I could probably have flown, but it would have been pretty

uncomfortable.

I should clarify this by explaining that I do have one incision that is larger

than typical laparoscopic incisions. My adrenal was unexpectedly found to be

surrounded by a large mass of fatty deposits, and the surgeon had to make the

hole larger to accommodate its removal (which has to be done in one piece). She

said this is really common in overweight patients but I was the first

non-overweight patient she's encountered who had this. Anyway, she explained

that my pain would be worse than anticipated because of the larger incision.

Hope that helps! And yes, if you have the freedom to take extra time off work

you may want to do so depending on how you make your living. With a desk job, I

didn't think it would be any big deal but when you've got four holes in your

side, sitting gets a little uncomfortable after about 6 hours

> >

> > Hi all, just wanted to give you an update on my post-adrenalectomy progress

- today marks three weeks since the surgery. It took over two weeks to fully

recover and be able to drive and go back to work, but the pain is finally gone

for the most part and things are getting back to normal.

> >

> > Had my follow-up with my PCP/acupuncturist yesterday. BP in the office was

128/83; my home average as of yesterday is 123/84. (And I've seen as low as

111/78 on several occasions!) K remains steady at 4.5. Muscle spasms and

headaches are entirely gone. He echoed my nephrologist's opinion that I am

considered " cured. "

> >

> > I asked my PCP to promise me that going forward, when he encounters a

patient who doesn't fit the typical profile of someone with HTN, he will at

minimum test their ARR. His response was that he now believes it should be a

part of the HTN workup in any patient with drug-resistant HTN.

> >

> > -msmith1928

> > Nulliparous female, 46, 5'3 " , 115 lbs, CT showed 1cm left adrenal nodule,

AVS determined disease is unilateral, had left laparoscopic adrenalectomy on

10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose

intolerance, lactose intolerance, gluten intolerance (probable celiac).

> >

>

[Guest guest]

Give him our big golden star. And if he has no yet read the Evolution of PA article perhaps he will now. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension

Yeah and Yeah!!!!!!

Subject: 3 weeks post-adrenalectomyTo: hyperaldosteronism Date: Thursday, November 3, 2011, 2:33 PM

Hi all, just wanted to give you an update on my post-adrenalectomy progress - today marks three weeks since the surgery. It took over two weeks to fully recover and be able to drive and go back to work, but the pain is finally gone for the most part and things are getting back to normal.Had my follow-up with my PCP/acupuncturist yesterday. BP in the office was 128/83; my home average as of yesterday is 123/84. (And I've seen as low as 111/78 on several occasions!) K remains steady at 4.5. Muscle spasms and headaches are entirely gone. He echoed my nephrologist's opinion that I am considered "cured."I asked my PCP to promise me that going forward, when he encounters a patient who doesn't fit the typical profile of someone with HTN, he will at minimum test their ARR. His response was that he now believes it should be a part of the HTN workup in any patient with drug-resistant HTN.-msmith1928Nulliparous female, 46, 5'3", 115

lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac).

[Guest guest]

We want u back before 5 years. You can now carry the surgery banner along with the other 4 or so who have had surgery here in last several years. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension

We all hope that everything will be fine in 5 years. It makes us envious, but still we wish you our best and want you to be back in 5 years and to be completely honest with us Natalia To: hyperaldosteronism Sent: Thursday, November 3, 2011 6:12 PMSubject: Re: 3 weeks post-adrenalectomy

None yet! Ask me again in five years

> >

> > Hi all, just wanted to give you an update on my post-adrenalectomy progress - today marks three weeks since the surgery. It took over two weeks to fully recover and be able to drive and go back to work, but the pain is finally gone for the most part and things are getting back to normal.

> >

> > Had my follow-up with my PCP/acupuncturist yesterday. BP in the office was 128/83; my home average as of yesterday is 123/84. (And I've seen as low as 111/78 on several occasions!) K remains steady at 4.5. Muscle spasms and headaches are entirely gone. He echoed my nephrologist's opinion that I am considered "cured."

> >

> > I asked my PCP to promise me that going forward, when he encounters a patient who doesn't fit the typical profile of someone with HTN, he will at minimum test their ARR. His response was that he now believes it should be a part of the HTN workup in any patient with drug-resistant HTN.

> >

> > -msmith1928

> > Nulliparous female, 46, 5'3", 115 lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac).

> >

>

[Guest guest]

We need a post op stories file to gather this sort of Information. Again a good reason we need a database. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension

Thank you for the kind words, Natalia

> > >

> > > Hi all, just wanted to give you an update on my post-adrenalectomy progress - today marks three weeks since the surgery. It took over two weeks to fully recover and be able to drive and go back to work, but the pain is finally gone for the most part and things are getting back to normal.

> > >

> > > Had my follow-up with my PCP/acupuncturist yesterday. BP in the office was 128/83; my home average as of yesterday is 123/84. (And I've seen as low as 111/78 on several occasions!) K remains steady at 4.5. Muscle spasms and headaches are entirely gone. He echoed my nephrologist's opinion that I am considered "cured."

> > >

> > > I asked my PCP to promise me that going forward, when he encounters a patient who doesn't fit the typical profile of someone with HTN, he will at minimum test their ARR. His response was that he now believes it should be a part of the HTN workup in any patient with drug-resistant HTN.

> > >

> > > -msmith1928

> > > Nulliparous female, 46, 5'3", 115 lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac).

> > >

> >

>

[Guest guest]

msmith,

That is great news. I am very happy for you.

My progress has been a little slower, but I am almost 13 years older than you &

I have family history of HTN. I am wondering if I have underlying HTN. It has

been 6 1/2 weeks since my adrenalectomy. I stopped taking all BP meds 2 1/2

weeks ago & my BP is still fluctuating between 125/71 two days ago and 156/76

five days ago.

I had a 2 to 3 week period where I had 4 or 5 migraines, almost constant

headaches & fatigue. During this time, my husband was out of town, maybe I was

doing too much & I wonder if my cardio-vascular & endochrine systems were still

adjusting to one adrenal gland.

You may recall I also had other symptoms of low K (mostly tingling & brain fog)

but when I was tested my K was 4.4. I have been off K supplements since I left

the hospital.

The last week or so has been good. I been functioning quite well with 9 hours

sleep, when I needed 10 hours pre-surgery. And I have been headache free.

My endo has released me & I have an appt. on Dec. 7 with my neophrologist. She

gave me scripts to get a CBP, aldo, renin & cortisol checked a few weeks before

the appt. I will also have a 24 hour urine test for Na, K & creatine. My guess

is that the nephro will put me on a BP med then if my BP is still fluctuating.

Overall, I am definitely feeling much better than before the surgery. I wake up

more refreshed. And, my husband comes home tomorrow aftee being gone for almost

3 weeks!

~Lucy

Sent from my Verizon Wireless Phone

msmith_1928 wrote:

>Hi all, just wanted to give you an update on my post-adrenalectomy progress -

today marks three weeks since the surgery. It took over two weeks to fully

recover and be able to drive and go back to work, but the pain is finally gone

for the most part and things are getting back to normal.

>

>Had my follow-up with my PCP/acupuncturist yesterday. BP in the office was

128/83; my home average as of yesterday is 123/84. (And I've seen as low as

111/78 on several occasions!) K remains steady at 4.5. Muscle spasms and

headaches are entirely gone. He echoed my nephrologist's opinion that I am

considered " cured. "

>

>I asked my PCP to promise me that going forward, when he encounters a patient

who doesn't fit the typical profile of someone with HTN, he will at minimum test

their ARR. His response was that he now believes it should be a part of the HTN

workup in any patient with drug-resistant HTN.

>

>-msmith1928

>Nulliparous female, 46, 5'3 " , 115 lbs, CT showed 1cm left adrenal nodule, AVS

determined disease is unilateral, had left laparoscopic adrenalectomy on

10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose

intolerance, lactose intolerance, gluten intolerance (probable celiac).

>

[Guest guest]

Most define cure as normal BP (no BP MEDS) and K and renin and also also normal. Did you get path report yet I don't recall maybe a note in thumbnail such as Surg path = single adenoma. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension

Hi all, just wanted to give you an update on my post-adrenalectomy progress - today marks three weeks since the surgery. It took over two weeks to fully recover and be able to drive and go back to work, but the pain is finally gone for the most part and things are getting back to normal.

Had my follow-up with my PCP/acupuncturist yesterday. BP in the office was 128/83; my home average as of yesterday is 123/84. (And I've seen as low as 111/78 on several occasions!) K remains steady at 4.5. Muscle spasms and headaches are entirely gone. He echoed my nephrologist's opinion that I am considered "cured."

I asked my PCP to promise me that going forward, when he encounters a patient who doesn't fit the typical profile of someone with HTN, he will at minimum test their ARR. His response was that he now believes it should be a part of the HTN workup in any patient with drug-resistant HTN.

-msmith1928

Nulliparous female, 46, 5'3", 115 lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac).

[Guest guest]

I'll have the path report tomorrow morning after I have my follow-up with the

surgeon, and will post then.

The nephrologist wants to wait three months and then will test aldo and renin

again so I won't know that for a while.

>

> > Hi all, just wanted to give you an update on my post-adrenalectomy progress

- today marks three weeks since the surgery. It took over two weeks to fully

recover and be able to drive and go back to work, but the pain is finally gone

for the most part and things are getting back to normal.

> >

> > Had my follow-up with my PCP/acupuncturist yesterday. BP in the office was

128/83; my home average as of yesterday is 123/84. (And I've seen as low as

111/78 on several occasions!) K remains steady at 4.5. Muscle spasms and

headaches are entirely gone. He echoed my nephrologist's opinion that I am

considered " cured. "

> >

> > I asked my PCP to promise me that going forward, when he encounters a

patient who doesn't fit the typical profile of someone with HTN, he will at

minimum test their ARR. His response was that he now believes it should be a

part of the HTN workup in any patient with drug-resistant HTN.

> >

> > -msmith1928

> > Nulliparous female, 46, 5'3 " , 115 lbs, CT showed 1cm left adrenal nodule,

AVS determined disease is unilateral, had left laparoscopic adrenalectomy on

10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose

intolerance, lactose intolerance, gluten intolerance (probable celiac).

> >

> >

>

[Guest guest]

Bp always fluctuates so what you want to take to Neph is graph of AM BP AT LEAST. I Would not add meds if this is less than 135/85 running average at home. As I have mentioned some will be SS till blood vessel heart and kidney fibrosis due to excess ALDO/SALT damage has regressed. This may take some time but we have not done proper studies to document this. This would be done by serial gluteal muscle BX. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension

msmith,

That is great news. I am very happy for you.

My progress has been a little slower, but I am almost 13 years older than you & I have family history of HTN. I am wondering if I have underlying HTN. It has been 6 1/2 weeks since my adrenalectomy. I stopped taking all BP meds 2 1/2 weeks ago & my BP is still fluctuating between 125/71 two days ago and 156/76 five days ago.

I had a 2 to 3 week period where I had 4 or 5 migraines, almost constant headaches & fatigue. During this time, my husband was out of town, maybe I was doing too much & I wonder if my cardio-vascular & endochrine systems were still adjusting to one adrenal gland.

You may recall I also had other symptoms of low K (mostly tingling & brain fog) but when I was tested my K was 4.4. I have been off K supplements since I left the hospital.

The last week or so has been good. I been functioning quite well with 9 hours sleep, when I needed 10 hours pre-surgery. And I have been headache free.

My endo has released me & I have an appt. on Dec. 7 with my neophrologist. She gave me scripts to get a CBP, aldo, renin & cortisol checked a few weeks before the appt. I will also have a 24 hour urine test for Na, K & creatine. My guess is that the nephro will put me on a BP med then if my BP is still fluctuating.

Overall, I am definitely feeling much better than before the surgery. I wake up more refreshed. And, my husband comes home tomorrow aftee being gone for almost 3 weeks!

~Lucy

Sent from my Verizon Wireless Phone

msmith_1928 wrote:

>Hi all, just wanted to give you an update on my post-adrenalectomy progress - today marks three weeks since the surgery. It took over two weeks to fully recover and be able to drive and go back to work, but the pain is finally gone for the most part and things are getting back to normal.

>

>Had my follow-up with my PCP/acupuncturist yesterday. BP in the office was 128/83; my home average as of yesterday is 123/84. (And I've seen as low as 111/78 on several occasions!) K remains steady at 4.5. Muscle spasms and headaches are entirely gone. He echoed my nephrologist's opinion that I am considered "cured."

>

>I asked my PCP to promise me that going forward, when he encounters a patient who doesn't fit the typical profile of someone with HTN, he will at minimum test their ARR. His response was that he now believes it should be a part of the HTN workup in any patient with drug-resistant HTN.

>

>-msmith1928

>Nulliparous female, 46, 5'3", 115 lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac).

>

[Guest guest]

Dr. Grim,

Per your suggestion after my surgery, I just take three AM readings & average

the last two. I always make & take BP charts & graphs to my dr. appts. I like

to see how it is trending.

What is SS & serial gluteal muscle BX?

Thank you for the feedback.

Lucy Sage

Sent from my Verizon Wireless Phone

Clarence Grim wrote:

>Bp always fluctuates so what you want to take to Neph is graph of AM BP AT

LEAST. I Would not add meds if this is less than 135/85 running average at home.

As I have mentioned some will be SS till blood vessel heart and kidney fibrosis

due to excess

>ALDO/SALT damage has regressed. This may take some time but we have not done

proper studies to document this. This would be done by serial gluteal muscle BX.

>

>

>

>

>May your pressure be low!

>

>CE Grim MS, MD

>Specializing in Difficult

>Hypertension

>

>

>

>> msmith,

>>

>> That is great news. I am very happy for you.

>>

>> My progress has been a little slower, but I am almost 13 years older than you

& I have family history of HTN. I am wondering if I have underlying HTN. It has

been 6 1/2 weeks since my adrenalectomy. I stopped taking all BP meds 2 1/2

weeks ago & my BP is still fluctuating between 125/71 two days ago and 156/76

five days ago.

>>

>> I had a 2 to 3 week period where I had 4 or 5 migraines, almost constant

headaches & fatigue. During this time, my husband was out of town, maybe I was

doing too much & I wonder if my cardio-vascular & endochrine systems were still

adjusting to one adrenal gland.

>>

>> You may recall I also had other symptoms of low K (mostly tingling & brain

fog) but when I was tested my K was 4.4. I have been off K supplements since I

left the hospital.

>>

>> The last week or so has been good. I been functioning quite well with 9 hours

sleep, when I needed 10 hours pre-surgery. And I have been headache free.

>>

>> My endo has released me & I have an appt. on Dec. 7 with my neophrologist.

She gave me scripts to get a CBP, aldo, renin & cortisol checked a few weeks

before the appt. I will also have a 24 hour urine test for Na, K & creatine. My

guess is that the nephro will put me on a BP med then if my BP is still

fluctuating.

>>

>> Overall, I am definitely feeling much better than before the surgery. I wake

up more refreshed. And, my husband comes home tomorrow aftee being gone for

almost 3 weeks!

>>

>> ~Lucy

>>

>> Sent from my Verizon Wireless Phone

>>

>> msmith_1928 wrote:

>>

>> >Hi all, just wanted to give you an update on my post-adrenalectomy progress

- today marks three weeks since the surgery. It took over two weeks to fully

recover and be able to drive and go back to work, but the pain is finally gone

for the most part and things are getting back to normal.

>> >

>> >Had my follow-up with my PCP/acupuncturist yesterday. BP in the office was

128/83; my home average as of yesterday is 123/84. (And I've seen as low as

111/78 on several occasions!) K remains steady at 4.5. Muscle spasms and

headaches are entirely gone. He echoed my nephrologist's opinion that I am

considered " cured. "

>> >

>> >I asked my PCP to promise me that going forward, when he encounters a

patient who doesn't fit the typical profile of someone with HTN, he will at

minimum test their ARR. His response was that he now believes it should be a

part of the HTN workup in any patient with drug-resistant HTN.

>> >

>> >-msmith1928

>> >Nulliparous female, 46, 5'3 " , 115 lbs, CT showed 1cm left adrenal nodule,

AVS determined disease is unilateral, had left laparoscopic adrenalectomy on

10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose

intolerance, lactose intolerance, gluten intolerance (probable celiac).

>> >

>>

[Guest guest]

I had 'normal' surgery with three small incisions (the biggest was maybe 3/4

inch) and I think I'd have been fine to fly after a week as long as I had

somebody else with me to carry bags. Two weeks after surgery I travelled 8 hours

by train on my own - including three changes one of which was an hour to cross

Paris (France) which involves lots of trawling through stations and hopping on

and off the Metro - so more energetic than your usual flight.

H

> > >

> > > Hi all, just wanted to give you an update on my post-adrenalectomy

progress - today marks three weeks since the surgery. It took over two weeks to

fully recover and be able to drive and go back to work, but the pain is finally

gone for the most part and things are getting back to normal.

> > >

> > > Had my follow-up with my PCP/acupuncturist yesterday. BP in the office was

128/83; my home average as of yesterday is 123/84. (And I've seen as low as

111/78 on several occasions!) K remains steady at 4.5. Muscle spasms and

headaches are entirely gone. He echoed my nephrologist's opinion that I am

considered " cured. "

> > >

> > > I asked my PCP to promise me that going forward, when he encounters a

patient who doesn't fit the typical profile of someone with HTN, he will at

minimum test their ARR. His response was that he now believes it should be a

part of the HTN workup in any patient with drug-resistant HTN.

> > >

> > > -msmith1928

> > > Nulliparous female, 46, 5'3 " , 115 lbs, CT showed 1cm left adrenal nodule,

AVS determined disease is unilateral, had left laparoscopic adrenalectomy on

10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose

intolerance, lactose intolerance, gluten intolerance (probable celiac).

> > >

> >

>

[Guest guest]

Thanks for the info! This is very helpful in planning my trip this April. I

have other medical conditions that I see neurology for. Right now my schedule

is to have the AVS Monday and then carry out the rest of my appointments Tuesday

through Friday. I would then have surgery the following Monday.

My other question involved the days following AVS. Is it realistic for me to be

walking all over the Mayo campus the day after AVS? I have a tilt table and MRI

test scheduled for that Tuesday and will need to walk over 2 miles if you

include all of my appointments and walking from my favorite hotel to the clinic.

Is this possible after the AVS? How many days will I be down for the count

after AVS? The plan is to be monitored Monday and then released sometime Monday

night.

> > > >

> > > > Hi all, just wanted to give you an update on my post-adrenalectomy

progress - today marks three weeks since the surgery. It took over two weeks to

fully recover and be able to drive and go back to work, but the pain is finally

gone for the most part and things are getting back to normal.

> > > >

> > > > Had my follow-up with my PCP/acupuncturist yesterday. BP in the office

was 128/83; my home average as of yesterday is 123/84. (And I've seen as low as

111/78 on several occasions!) K remains steady at 4.5. Muscle spasms and

headaches are entirely gone. He echoed my nephrologist's opinion that I am

considered " cured. "

> > > >

> > > > I asked my PCP to promise me that going forward, when he encounters a

patient who doesn't fit the typical profile of someone with HTN, he will at

minimum test their ARR. His response was that he now believes it should be a

part of the HTN workup in any patient with drug-resistant HTN.

> > > >

> > > > -msmith1928

> > > > Nulliparous female, 46, 5'3 " , 115 lbs, CT showed 1cm left adrenal

nodule, AVS determined disease is unilateral, had left laparoscopic

adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to

hereditary fructose intolerance, lactose intolerance, gluten intolerance

(probable celiac).

> > > >

> > >

> >

>

[Guest guest]

Hi , I've had AVS twice and I didn't have much trouble walking the next day

either time. I had to walk slower than usual - normally I'm a really fast walker

but the incision sites kind of hurt if I moved too quickly or took too large of

a step, so you just kind of have to be aware of that. And maybe take a taxi from

the hotel just to make it easier on yourself.

Both times I was driving, back to work, and back to life as usual on the third

day after the AVS.

That would be so great if it turns out that you're a candidate for surgery. I'll

be thinking good thoughts for you.

> > > > >

> > > > > Hi all, just wanted to give you an update on my post-adrenalectomy

progress - today marks three weeks since the surgery. It took over two weeks to

fully recover and be able to drive and go back to work, but the pain is finally

gone for the most part and things are getting back to normal.

> > > > >

> > > > > Had my follow-up with my PCP/acupuncturist yesterday. BP in the office

was 128/83; my home average as of yesterday is 123/84. (And I've seen as low as

111/78 on several occasions!) K remains steady at 4.5. Muscle spasms and

headaches are entirely gone. He echoed my nephrologist's opinion that I am

considered " cured. "

> > > > >

> > > > > I asked my PCP to promise me that going forward, when he encounters a

patient who doesn't fit the typical profile of someone with HTN, he will at

minimum test their ARR. His response was that he now believes it should be a

part of the HTN workup in any patient with drug-resistant HTN.

> > > > >

> > > > > -msmith1928

> > > > > Nulliparous female, 46, 5'3 " , 115 lbs, CT showed 1cm left adrenal

nodule, AVS determined disease is unilateral, had left laparoscopic

adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to

hereditary fructose intolerance, lactose intolerance, gluten intolerance

(probable celiac).

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Most are ready to go same day but I have seen it take several days keep us posted. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension

Thanks for the info! This is very helpful in planning my trip this April. I have other medical conditions that I see neurology for. Right now my schedule is to have the AVS Monday and then carry out the rest of my appointments Tuesday through Friday. I would then have surgery the following Monday.

My other question involved the days following AVS. Is it realistic for me to be walking all over the Mayo campus the day after AVS? I have a tilt table and MRI test scheduled for that Tuesday and will need to walk over 2 miles if you include all of my appointments and walking from my favorite hotel to the clinic. Is this possible after the AVS? How many days will I be down for the count after AVS? The plan is to be monitored Monday and then released sometime Monday night.

> > > >

> > > > Hi all, just wanted to give you an update on my post-adrenalectomy progress - today marks three weeks since the surgery. It took over two weeks to fully recover and be able to drive and go back to work, but the pain is finally gone for the most part and things are getting back to normal.

> > > >

> > > > Had my follow-up with my PCP/acupuncturist yesterday. BP in the office was 128/83; my home average as of yesterday is 123/84. (And I've seen as low as 111/78 on several occasions!) K remains steady at 4.5. Muscle spasms and headaches are entirely gone. He echoed my nephrologist's opinion that I am considered "cured."

> > > >

> > > > I asked my PCP to promise me that going forward, when he encounters a patient who doesn't fit the typical profile of someone with HTN, he will at minimum test their ARR. His response was that he now believes it should be a part of the HTN workup in any patient with drug-resistant HTN.

> > > >

> > > > -msmith1928

> > > > Nulliparous female, 46, 5'3", 115 lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac).

> > > >

> > >

> >

>

[Guest guest]

But one of our folks here almost died on drive home. So too you are staying there. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension

Hi , I've had AVS twice and I didn't have much trouble walking the next day either time. I had to walk slower than usual - normally I'm a really fast walker but the incision sites kind of hurt if I moved too quickly or took too large of a step, so you just kind of have to be aware of that. And maybe take a taxi from the hotel just to make it easier on yourself.

Both times I was driving, back to work, and back to life as usual on the third day after the AVS.

That would be so great if it turns out that you're a candidate for surgery. I'll be thinking good thoughts for you.

> > > > >

> > > > > Hi all, just wanted to give you an update on my post-adrenalectomy progress - today marks three weeks since the surgery. It took over two weeks to fully recover and be able to drive and go back to work, but the pain is finally gone for the most part and things are getting back to normal.

> > > > >

> > > > > Had my follow-up with my PCP/acupuncturist yesterday. BP in the office was 128/83; my home average as of yesterday is 123/84. (And I've seen as low as 111/78 on several occasions!) K remains steady at 4.5. Muscle spasms and headaches are entirely gone. He echoed my nephrologist's opinion that I am considered "cured."

> > > > >

> > > > > I asked my PCP to promise me that going forward, when he encounters a patient who doesn't fit the typical profile of someone with HTN, he will at minimum test their ARR. His response was that he now believes it should be a part of the HTN workup in any patient with drug-resistant HTN.

> > > > >

> > > > > -msmith1928

> > > > > Nulliparous female, 46, 5'3", 115 lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac).

> > > > >

> > > >

> > >

> >

>