catching up

[Guest guest]

,

I hope that Autumn feels better soon. My kids always get sick over holiday

weekends as well.

GO TO BED!!! Having done two high risk pregnancies and 31 weeks of strict

bedrest with Grace and having Caelan born at 34 wks 6 days with problems I

can tell you that you want to take it easy! If you can make it to 37 weeks

you should be ok. Prior to that the baby will be fine eventually but may

have trouble and be in the NICU. It took Caelan 7 weeks to become ok.

(((HUGS)))

Grace Caroline 8/14/97

Caelan 8/26/99

[Guest guest]

Ray,

With everything else that is going on, the last thing you need to be dealing

with is TPL. I hope you are able to get that extra rest that everyone is

recommending. I know it must be hard to find the time to stop, but it will

only be for a few more weeks now. Those extra weeks will make all the

difference to baby Duncan, as you know! Did you need the steriod

injections for his lungs?? (sorry! cant for the life of me remember the

name of the med). Heres hoping things settle down now until closer to the

17th of May!!!!!!

Take care,

, and s mum

Catching Up

> I've been reading the posts of the last few days & just wanted to add a

few comments.

>

> Autumn got her first sinus infection when she was 18 months old. The

reason we were told she couldn't get a sinus infection was because the

sinuses are so undeveloped in infants. In fact, there are some sinuses that

don't develop at all until around age 3-5 and others that develop at the

ages of 7-10. Having small sinuses didn't stop them from becoming infected,

in our case. We've battled sinus infections ever since--now they just term

it sinus disease and tell us that we'll always have to worry about it.

>

> --sorry to hear about 's latest results. I know surgery

isn't what you wanted to hear. I'm praying for you to get some relief soon.

You must be incredibly weary.

>

> Autumn sounds terrible this morning--not surprising since we had one

terrible mud storm on Tuesday night. Yes, it actually rains mud in West

Texas. Too much dust in the air combined with too little rain when it

falls. The winds blew upwards of 60 mph for about 3 hours bringing in lots

of nasty stuff. Wednesday was fine, but now it's settling in. So, it's

back to 6 hour treatments for us.

>

> I landed myself in L & D on Tuesday night for pre-term labor contractions.

I am taking some medication, trying to hold off labor for another 3-4 weeks

until we're into the " safe " zone. If I don't post much in the next few

days, that's why. I'm going no mail shortly so I will be trying to read on

the web when possible. I probably need to spend more time in bed than I do

in front of the computer!

>

> Happy Easter to all & hopefully all the pumpkins will get through the

holidays on a good note! Whoever asked why sickness always crops up on a

holiday--I hear you. We see this as a continual pattern with us--always we

get sick when there's little chance of getting the dr. Our dr is Jewish and

will be out of town for the holidays. So, we'll weather anything until

Monday morning since our ped doesn't like anyone to see Autumn except him.

Of course, there's always the ER. . ..

>

> Ray, mother to Tabitha (age 5), Autumn, age 3 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan Avery due 5/17/01

>

>

>

[Guest guest]

Ray,

With everything else that is going on, the last thing you need to be dealing

with is TPL. I hope you are able to get that extra rest that everyone is

recommending. I know it must be hard to find the time to stop, but it will

only be for a few more weeks now. Those extra weeks will make all the

difference to baby Duncan, as you know! Did you need the steriod

injections for his lungs?? (sorry! cant for the life of me remember the

name of the med). Heres hoping things settle down now until closer to the

17th of May!!!!!!

Take care,

, and s mum

Catching Up

> I've been reading the posts of the last few days & just wanted to add a

few comments.

>

> Autumn got her first sinus infection when she was 18 months old. The

reason we were told she couldn't get a sinus infection was because the

sinuses are so undeveloped in infants. In fact, there are some sinuses that

don't develop at all until around age 3-5 and others that develop at the

ages of 7-10. Having small sinuses didn't stop them from becoming infected,

in our case. We've battled sinus infections ever since--now they just term

it sinus disease and tell us that we'll always have to worry about it.

>

> --sorry to hear about 's latest results. I know surgery

isn't what you wanted to hear. I'm praying for you to get some relief soon.

You must be incredibly weary.

>

> Autumn sounds terrible this morning--not surprising since we had one

terrible mud storm on Tuesday night. Yes, it actually rains mud in West

Texas. Too much dust in the air combined with too little rain when it

falls. The winds blew upwards of 60 mph for about 3 hours bringing in lots

of nasty stuff. Wednesday was fine, but now it's settling in. So, it's

back to 6 hour treatments for us.

>

> I landed myself in L & D on Tuesday night for pre-term labor contractions.

I am taking some medication, trying to hold off labor for another 3-4 weeks

until we're into the " safe " zone. If I don't post much in the next few

days, that's why. I'm going no mail shortly so I will be trying to read on

the web when possible. I probably need to spend more time in bed than I do

in front of the computer!

>

> Happy Easter to all & hopefully all the pumpkins will get through the

holidays on a good note! Whoever asked why sickness always crops up on a

holiday--I hear you. We see this as a continual pattern with us--always we

get sick when there's little chance of getting the dr. Our dr is Jewish and

will be out of town for the holidays. So, we'll weather anything until

Monday morning since our ped doesn't like anyone to see Autumn except him.

Of course, there's always the ER. . ..

>

> Ray, mother to Tabitha (age 5), Autumn, age 3 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan Avery due 5/17/01

>

>

>

[Guest guest]

,

I've been on no-mail for some time & haven't caught up with anything yet.

Thanks for your notes. My dr isn't that worried since I'm at 35 1/2 weeks

right now. Also, I'm not starting to dilate, so he feels like this is not

" true " pre-term labor. So, I'm taking the brethine, resting lots, and

keeping hydrated. Thanks for your concern.

Ray, mother to Tabitha (age 5), Autumn, age 3 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan Avery due 5/17/01

Re: Catching Up

> ,

>

> I hope that Autumn feels better soon. My kids always get sick over

holiday

> weekends as well.

>

> GO TO BED!!! Having done two high risk pregnancies and 31 weeks of strict

> bedrest with Grace and having Caelan born at 34 wks 6 days with problems I

> can tell you that you want to take it easy! If you can make it to 37

weeks

> you should be ok. Prior to that the baby will be fine eventually but may

> have trouble and be in the NICU. It took Caelan 7 weeks to become ok.

> (((HUGS)))

>

>

> Grace Caroline 8/14/97

> Caelan 8/26/99

>

>

>

> This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

>

>

[Guest guest]

,

I've been on no-mail for some time & haven't caught up with anything yet.

Thanks for your notes. My dr isn't that worried since I'm at 35 1/2 weeks

right now. Also, I'm not starting to dilate, so he feels like this is not

" true " pre-term labor. So, I'm taking the brethine, resting lots, and

keeping hydrated. Thanks for your concern.

Ray, mother to Tabitha (age 5), Autumn, age 3 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan Avery due 5/17/01

Re: Catching Up

> ,

>

> I hope that Autumn feels better soon. My kids always get sick over

holiday

> weekends as well.

>

> GO TO BED!!! Having done two high risk pregnancies and 31 weeks of strict

> bedrest with Grace and having Caelan born at 34 wks 6 days with problems I

> can tell you that you want to take it easy! If you can make it to 37

weeks

> you should be ok. Prior to that the baby will be fine eventually but may

> have trouble and be in the NICU. It took Caelan 7 weeks to become ok.

> (((HUGS)))

>

>

> Grace Caroline 8/14/97

> Caelan 8/26/99

>

>

>

> This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

>

>

[Guest guest]

,

Is the brethine making you shake like crazy? It was great for me b/c it not

only helped contractions, but helped my asthma since it is actually an

asthma drug!! I was dilated 2cm and 100% effaced at a zero station at 28

weeks with my daughter so in a little worse situation. With my son I was

50% effaced and zero station w/ one cm dilation at 32 weeks. He was born

just before 35 weeks w/ underdeveloped lungs.

Take it easy and I'm sure everything will be fine!

[Guest guest]

,

Is the brethine making you shake like crazy? It was great for me b/c it not

only helped contractions, but helped my asthma since it is actually an

asthma drug!! I was dilated 2cm and 100% effaced at a zero station at 28

weeks with my daughter so in a little worse situation. With my son I was

50% effaced and zero station w/ one cm dilation at 32 weeks. He was born

just before 35 weeks w/ underdeveloped lungs.

Take it easy and I'm sure everything will be fine!

[Guest guest]

,

Is the brethine making you shake like crazy? It was great for me b/c it not

only helped contractions, but helped my asthma since it is actually an

asthma drug!! I was dilated 2cm and 100% effaced at a zero station at 28

weeks with my daughter so in a little worse situation. With my son I was

50% effaced and zero station w/ one cm dilation at 32 weeks. He was born

just before 35 weeks w/ underdeveloped lungs.

Take it easy and I'm sure everything will be fine!

[Guest guest]

-

I hated the breathine. It made me shake like crazy. And since I don't usually

have much caffine, it made me throw up too. I started on it at 24 weeks with

Abby. She thankfully she lasted till 31 1/2 weeks.

Wishing you the best of luck

, Mom to:

Evan 7, 5 (Shwachman Syndrome, CVID, Chronic Sinusitis, severe neutropenia,

leukopenia, and kidney reflux) and Abby Rose 3 (Shwachman Syndrome)

---------------------------------

[Guest guest]

-

I hated the breathine. It made me shake like crazy. And since I don't usually

have much caffine, it made me throw up too. I started on it at 24 weeks with

Abby. She thankfully she lasted till 31 1/2 weeks.

Wishing you the best of luck

, Mom to:

Evan 7, 5 (Shwachman Syndrome, CVID, Chronic Sinusitis, severe neutropenia,

leukopenia, and kidney reflux) and Abby Rose 3 (Shwachman Syndrome)

---------------------------------

[Guest guest]

-

I hated the breathine. It made me shake like crazy. And since I don't usually

have much caffine, it made me throw up too. I started on it at 24 weeks with

Abby. She thankfully she lasted till 31 1/2 weeks.

Wishing you the best of luck

, Mom to:

Evan 7, 5 (Shwachman Syndrome, CVID, Chronic Sinusitis, severe neutropenia,

leukopenia, and kidney reflux) and Abby Rose 3 (Shwachman Syndrome)

---------------------------------

[Guest guest]

,

I'm just getting around to reading (skimming) through the archives.

No, we did not need the steroid shot for his lungs. I saw the dr on

Monday & he isn't terribly concerned that this is actually pre-term

labor. He thinks it's more like something he can't find irritating

the uterus ever so often. I'm not dilated or anything that he can

see. So, I'll take the brethine until next week and then hope for

the best. So far, I'm hanging in there.

Autumn still sounds a little yucky, but no infection yet. So, we're

hoping this is just spring time in West Texas asthma & giving her

treatments. She hasn't gotten worse, so at least that's a good sign.

Ray, mother to Tabitha (age 5), Autumn, age 3 (IgG def.,

asthma, chronic sinusitis, and allergies), and Duncan Avery due

5/17/01

[Guest guest]

When I first started the brethine, I did shake quite a bit. Now I

just have terminal insomnia. It lasts about 8-10 hours in my system

& I'm supposed to take it every 6. So, I get about 4 hours of sleep

every night & that's it. I'm so looking forward to next week when I

can stop it.

Ray

[Guest guest]

When I first started the brethine, I did shake quite a bit. Now I

just have terminal insomnia. It lasts about 8-10 hours in my system

& I'm supposed to take it every 6. So, I get about 4 hours of sleep

every night & that's it. I'm so looking forward to next week when I

can stop it.

Ray

[Guest guest]

When I first started the brethine, I did shake quite a bit. Now I

just have terminal insomnia. It lasts about 8-10 hours in my system

& I'm supposed to take it every 6. So, I get about 4 hours of sleep

every night & that's it. I'm so looking forward to next week when I

can stop it.

Ray

[Guest guest]

-- I had to take that stuff w/ my first pregnancy-- EEEK I hope

you are able to get some rest SOON

--

~Pattie~

" a person's a person, no matter how small " ~~ Dr. Seuss

[Guest guest]

My docs have been adamant about no group daycare. There rules have been to

attempt Lucas exposure to 2-3 kids at the most. It is very difficult to do

and Lucas could not go to preschool this year because he could not find a

small enough class. The problem with little ones less than 4 is that they

slobber all over toys and each other and therefore pass more germs to each

other. Not to mention that they spend most of their time on the floor. Some

exposure to germs is essential the problem with our kids is that theycan only

handle so much at a time and it becomes overwhelming for there bodies to

protect themselves. Maybe you could look for a home daycare situation if

that is not what you have. We had to do that with Lucas and it did make a

major difference . What kind of work do you do? Are you a teacher? BARBIE

[Guest guest]

Traci: We quit a daycare center when got bacterial meningitis after

only five times (once a week) there. Then she went to Grandma's three days a

week, where her 2 yr old cousin was, as well. She still got sick, sick, sick

and it wasn't until I quit my job completely and stayed home with her that

she improved. I'm not saying you have to do that, it's a huge decision and a

completely personal one. I'm just saying how it happened for us.

still gets sick about 2/3 of the times she sees the cousin (just at holidays

or rare play dates).

(mom to , age 2, antibody def, IgA def, partial T-cell def (CD3 &

CD19) - not on IGIV yet)

[Guest guest]

Traci: We quit a daycare center when got bacterial meningitis after

only five times (once a week) there. Then she went to Grandma's three days a

week, where her 2 yr old cousin was, as well. She still got sick, sick, sick

and it wasn't until I quit my job completely and stayed home with her that

she improved. I'm not saying you have to do that, it's a huge decision and a

completely personal one. I'm just saying how it happened for us.

still gets sick about 2/3 of the times she sees the cousin (just at holidays

or rare play dates).

(mom to , age 2, antibody def, IgA def, partial T-cell def (CD3 &

CD19) - not on IGIV yet)

[Guest guest]

Traci: We quit a daycare center when got bacterial meningitis after

only five times (once a week) there. Then she went to Grandma's three days a

week, where her 2 yr old cousin was, as well. She still got sick, sick, sick

and it wasn't until I quit my job completely and stayed home with her that

she improved. I'm not saying you have to do that, it's a huge decision and a

completely personal one. I'm just saying how it happened for us.

still gets sick about 2/3 of the times she sees the cousin (just at holidays

or rare play dates).

(mom to , age 2, antibody def, IgA def, partial T-cell def (CD3 &

CD19) - not on IGIV yet)

[Guest guest]

I guess I should clarify that Autumn has 10 children in her class,

and even some of them don't come every day. I would say that there

are 7 children who are there on a regular basis. The facility holds

30 children, but probably only about 20-25 are there every day. Her

class is separate and they eat, nap, and play at different times than

the other children.

Ray, mother to Tabitha (age 5), Autumn, age 3 (IgG Def.,

asthma, chronic sinusitis, and allergies), and Duncan Avery due

5/17/01

[Guest guest]

I guess I should clarify that Autumn has 10 children in her class,

and even some of them don't come every day. I would say that there

are 7 children who are there on a regular basis. The facility holds

30 children, but probably only about 20-25 are there every day. Her

class is separate and they eat, nap, and play at different times than

the other children.

Ray, mother to Tabitha (age 5), Autumn, age 3 (IgG Def.,

asthma, chronic sinusitis, and allergies), and Duncan Avery due

5/17/01

[Guest guest]

Tina:

You have your hands more full than I can even imagine, so don't worry about

not being caught up with the group. I'm so sorry about all that you are

enduring right now and pray it will improve.

One thought on depression and sleeping -- maybe you could ask about the drug

Trazadone? It's a mild anti-depressant that knocks you out nicely. I don't

know if it's safe with Zoloft or with children, but they often give it for

night use for people on Prozac if the Prozac wires them too much to sleep. It

works beautifully and is very cheap (four years ago it was something like $4

per month without insurance!).

Hope that's of some help, and hang in there, we're thinking of you.

(mom to , age 2, antibody def, IgA def, partial T-cell def (CD3 &

CD19) - not on IGIV yet)

[Guest guest]

Tina,

I'm sending prayers your way. We are here if you need us. How scary that

Mike dropped the barbell on his chest. I'm glad it wasn't more serious.

Ray, mother to Tabitha (age 5), Autumn, age 3 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan Avery due 5/17/01

[Guest guest]

I think that I have missed replying to some people who replied to some of my

posts.

I am reading most of the emails through this group and wanted to say they are so

very helpful to me, so I'm sorry if someone replied to me and I missed it!

Thanks,

in Cleveland