Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 Jax!!! What's that you said??? "we are a good support group!! " Ha! You are far too modest! This is a GREAT support group. I'm very thankful to have found this group. ((((((hugs))))) Jackie on wrote: Hi , Yes, unfortunately the fatigue is part of this disease.. BUT,,, it can be helped with certain meds,, I take "Provigil" for my fatigue as do a lot of us with this disease.. so that is something you might want to talk about with his doc.. The main thing I would suggest is that you find a doc who has treated Hep c for a long time and really knows what he is doing.. there are many docs out there that are treating hep c but really do not know HOW to treat each person as an individual, they just follow the treatment protocol and most of us know that what works for one might not work for all.. If he is really newly infected,, there are many "pro's " to treating early,, less side effects, less viral load to kill,, and usually a better outcome with tx.. BUT there are also the side effects of tx that can be really debilitating.. its best to gather ALL the info, have ALL the tests and know exactly where he is with this illness,, what stage of damage he has, what grade of inflammtion he has,, what genotype he has,, etc, then make a decision about tx... HE MUST have a LIVER BIOPSY!!! Most of us dread that cuz we have heard the horror stories,, but he should have a doc who is very adept at doing the biopsy and he should DEMAND conscious sedation for the procedure.. its a piece of cake that way.. he wont remember it at all,, but is awake enough to hold still when needed... Try not to worry, this disease moves in DECADES, not months,, or years, but decades,, take it one day at a time,, and just gather all the info BEFORE making a decision! Let us know if there is anything else we can do to help you and please hang around,, we are a good support group!! hugs jaxnicole stevens wrote: Thank you so much Jackie. That really helped. He hasnt started any kind of treatment yet because we dont even know what stage or how far it is yet. My two other children are both small so we havent even told them. They wouldnt understand at all. Here's a question for you. He is tired all the time. He works ALOT, so Im sure some of it is due to that, but in the last few months all it seems he wants to do is SLEEP! Is this part of it?Jackie on wrote: Hi hon NO, it does not affect your ability to have children,, YOU just DONT want to get pregnant if he is on treatment while he is on tx,, or for 6 months afterwards.. The Riba is very much associated with birth defects,, thats all you need to worry about,, so as long as you either get pregnant before tx or wait until 6 months after he has finished, you are fine.. As far as your other children, they need to know that they should NOT use his toothbrush, razor, nail clippers or IF he should cut himself, they should not touch his blood unless they have gloves on.. Bleach solution can and will kill this virus so just clean things up with bleach. They do not need to worry about eating off his fork or taking a drink from his cup etc,, unless he has blood in his mouth and they have an open wound,, there is nothing to worry about. This disease is spread by blood to blood contact, thats why we say dont share razors, nail clippers etc,, they could have miniscule drops of blood that you cant see and if you cut yourself ,, you could technically infect yourself.. Please ask all the questions you have, thats what we are here for!! jaxans412 wrote: Hey ya'll,Im really new to this so Im not sure where to start. We just found out that my fiance has hep. C and I am trying to learn all I can about this. Im hoping some of ya'll might be able to answer some of my questions. Ive searched the sites but they all just jump around my questions. How does this affect us having children? I have two other children from a previous marriage, how do i protect them without being too worried all the time? Im so confused about this. Hope ya'll can help.Jackie Thanks, What are the most popular cars? Find out at Yahoo! Autos Jackie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 Jax!!! What's that you said??? "we are a good support group!! " Ha! You are far too modest! This is a GREAT support group. I'm very thankful to have found this group. ((((((hugs))))) Jackie on wrote: Hi , Yes, unfortunately the fatigue is part of this disease.. BUT,,, it can be helped with certain meds,, I take "Provigil" for my fatigue as do a lot of us with this disease.. so that is something you might want to talk about with his doc.. The main thing I would suggest is that you find a doc who has treated Hep c for a long time and really knows what he is doing.. there are many docs out there that are treating hep c but really do not know HOW to treat each person as an individual, they just follow the treatment protocol and most of us know that what works for one might not work for all.. If he is really newly infected,, there are many "pro's " to treating early,, less side effects, less viral load to kill,, and usually a better outcome with tx.. BUT there are also the side effects of tx that can be really debilitating.. its best to gather ALL the info, have ALL the tests and know exactly where he is with this illness,, what stage of damage he has, what grade of inflammtion he has,, what genotype he has,, etc, then make a decision about tx... HE MUST have a LIVER BIOPSY!!! Most of us dread that cuz we have heard the horror stories,, but he should have a doc who is very adept at doing the biopsy and he should DEMAND conscious sedation for the procedure.. its a piece of cake that way.. he wont remember it at all,, but is awake enough to hold still when needed... Try not to worry, this disease moves in DECADES, not months,, or years, but decades,, take it one day at a time,, and just gather all the info BEFORE making a decision! Let us know if there is anything else we can do to help you and please hang around,, we are a good support group!! hugs jaxnicole stevens wrote: Thank you so much Jackie. That really helped. He hasnt started any kind of treatment yet because we dont even know what stage or how far it is yet. My two other children are both small so we havent even told them. They wouldnt understand at all. Here's a question for you. He is tired all the time. He works ALOT, so Im sure some of it is due to that, but in the last few months all it seems he wants to do is SLEEP! Is this part of it?Jackie on wrote: Hi hon NO, it does not affect your ability to have children,, YOU just DONT want to get pregnant if he is on treatment while he is on tx,, or for 6 months afterwards.. The Riba is very much associated with birth defects,, thats all you need to worry about,, so as long as you either get pregnant before tx or wait until 6 months after he has finished, you are fine.. As far as your other children, they need to know that they should NOT use his toothbrush, razor, nail clippers or IF he should cut himself, they should not touch his blood unless they have gloves on.. Bleach solution can and will kill this virus so just clean things up with bleach. They do not need to worry about eating off his fork or taking a drink from his cup etc,, unless he has blood in his mouth and they have an open wound,, there is nothing to worry about. This disease is spread by blood to blood contact, thats why we say dont share razors, nail clippers etc,, they could have miniscule drops of blood that you cant see and if you cut yourself ,, you could technically infect yourself.. Please ask all the questions you have, thats what we are here for!! jaxans412 wrote: Hey ya'll,Im really new to this so Im not sure where to start. We just found out that my fiance has hep. C and I am trying to learn all I can about this. Im hoping some of ya'll might be able to answer some of my questions. Ive searched the sites but they all just jump around my questions. How does this affect us having children? I have two other children from a previous marriage, how do i protect them without being too worried all the time? Im so confused about this. Hope ya'll can help.Jackie Thanks, What are the most popular cars? Find out at Yahoo! Autos Jackie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 Well thank you Chris!!! You have been a GREAT addition to our forum!!! thanks for all you do to help us too! hugs jaxHunter wrote: Jax!!! What's that you said??? "we are a good support group!! " Ha! You are far too modest! This is a GREAT support group. I'm very thankful to have found this group. ((((((hugs))))) Jackie on wrote: Hi , Yes, unfortunately the fatigue is part of this disease.. BUT,,, it can be helped with certain meds,, I take "Provigil" for my fatigue as do a lot of us with this disease.. so that is something you might want to talk about with his doc.. The main thing I would suggest is that you find a doc who has treated Hep c for a long time and really knows what he is doing.. there are many docs out there that are treating hep c but really do not know HOW to treat each person as an individual, they just follow the treatment protocol and most of us know that what works for one might not work for all.. If he is really newly infected,, there are many "pro's " to treating early,, less side effects, less viral load to kill,, and usually a better outcome with tx.. BUT there are also the side effects of tx that can be really debilitating.. its best to gather ALL the info, have ALL the tests and know exactly where he is with this illness,, what stage of damage he has, what grade of inflammtion he has,, what genotype he has,, etc, then make a decision about tx... HE MUST have a LIVER BIOPSY!!! Most of us dread that cuz we have heard the horror stories,, but he should have a doc who is very adept at doing the biopsy and he should DEMAND conscious sedation for the procedure.. its a piece of cake that way.. he wont remember it at all,, but is awake enough to hold still when needed... Try not to worry, this disease moves in DECADES, not months,, or years, but decades,, take it one day at a time,, and just gather all the info BEFORE making a decision! Let us know if there is anything else we can do to help you and please hang around,, we are a good support group!! hugs jaxnicole stevens wrote: Thank you so much Jackie. That really helped. He hasnt started any kind of treatment yet because we dont even know what stage or how far it is yet. My two other children are both small so we havent even told them. They wouldnt understand at all. Here's a question for you. He is tired all the time. He works ALOT, so Im sure some of it is due to that, but in the last few months all it seems he wants to do is SLEEP! Is this part of it?Jackie on wrote: Hi hon NO, it does not affect your ability to have children,, YOU just DONT want to get pregnant if he is on treatment while he is on tx,, or for 6 months afterwards.. The Riba is very much associated with birth defects,, thats all you need to worry about,, so as long as you either get pregnant before tx or wait until 6 months after he has finished, you are fine.. As far as your other children, they need to know that they should NOT use his toothbrush, razor, nail clippers or IF he should cut himself, they should not touch his blood unless they have gloves on.. Bleach solution can and will kill this virus so just clean things up with bleach. They do not need to worry about eating off his fork or taking a drink from his cup etc,, unless he has blood in his mouth and they have an open wound,, there is nothing to worry about. This disease is spread by blood to blood contact, thats why we say dont share razors, nail clippers etc,, they could have miniscule drops of blood that you cant see and if you cut yourself ,, you could technically infect yourself.. Please ask all the questions you have, thats what we are here for!! jaxans412 wrote: Hey ya'll,Im really new to this so Im not sure where to start. We just found out that my fiance has hep. C and I am trying to learn all I can about this. Im hoping some of ya'll might be able to answer some of my questions. Ive searched the sites but they all just jump around my questions. How does this affect us having children? I have two other children from a previous marriage, how do i protect them without being too worried all the time? Im so confused about this. Hope ya'll can help.Jackie Thanks, What are the most popular cars? Find out at Yahoo! Autos Jackie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 Well thank you Chris!!! You have been a GREAT addition to our forum!!! thanks for all you do to help us too! hugs jaxHunter wrote: Jax!!! What's that you said??? "we are a good support group!! " Ha! You are far too modest! This is a GREAT support group. I'm very thankful to have found this group. ((((((hugs))))) Jackie on wrote: Hi , Yes, unfortunately the fatigue is part of this disease.. BUT,,, it can be helped with certain meds,, I take "Provigil" for my fatigue as do a lot of us with this disease.. so that is something you might want to talk about with his doc.. The main thing I would suggest is that you find a doc who has treated Hep c for a long time and really knows what he is doing.. there are many docs out there that are treating hep c but really do not know HOW to treat each person as an individual, they just follow the treatment protocol and most of us know that what works for one might not work for all.. If he is really newly infected,, there are many "pro's " to treating early,, less side effects, less viral load to kill,, and usually a better outcome with tx.. BUT there are also the side effects of tx that can be really debilitating.. its best to gather ALL the info, have ALL the tests and know exactly where he is with this illness,, what stage of damage he has, what grade of inflammtion he has,, what genotype he has,, etc, then make a decision about tx... HE MUST have a LIVER BIOPSY!!! Most of us dread that cuz we have heard the horror stories,, but he should have a doc who is very adept at doing the biopsy and he should DEMAND conscious sedation for the procedure.. its a piece of cake that way.. he wont remember it at all,, but is awake enough to hold still when needed... Try not to worry, this disease moves in DECADES, not months,, or years, but decades,, take it one day at a time,, and just gather all the info BEFORE making a decision! Let us know if there is anything else we can do to help you and please hang around,, we are a good support group!! hugs jaxnicole stevens wrote: Thank you so much Jackie. That really helped. He hasnt started any kind of treatment yet because we dont even know what stage or how far it is yet. My two other children are both small so we havent even told them. They wouldnt understand at all. Here's a question for you. He is tired all the time. He works ALOT, so Im sure some of it is due to that, but in the last few months all it seems he wants to do is SLEEP! Is this part of it?Jackie on wrote: Hi hon NO, it does not affect your ability to have children,, YOU just DONT want to get pregnant if he is on treatment while he is on tx,, or for 6 months afterwards.. The Riba is very much associated with birth defects,, thats all you need to worry about,, so as long as you either get pregnant before tx or wait until 6 months after he has finished, you are fine.. As far as your other children, they need to know that they should NOT use his toothbrush, razor, nail clippers or IF he should cut himself, they should not touch his blood unless they have gloves on.. Bleach solution can and will kill this virus so just clean things up with bleach. They do not need to worry about eating off his fork or taking a drink from his cup etc,, unless he has blood in his mouth and they have an open wound,, there is nothing to worry about. This disease is spread by blood to blood contact, thats why we say dont share razors, nail clippers etc,, they could have miniscule drops of blood that you cant see and if you cut yourself ,, you could technically infect yourself.. Please ask all the questions you have, thats what we are here for!! jaxans412 wrote: Hey ya'll,Im really new to this so Im not sure where to start. We just found out that my fiance has hep. C and I am trying to learn all I can about this. Im hoping some of ya'll might be able to answer some of my questions. Ive searched the sites but they all just jump around my questions. How does this affect us having children? I have two other children from a previous marriage, how do i protect them without being too worried all the time? Im so confused about this. Hope ya'll can help.Jackie Thanks, What are the most popular cars? Find out at Yahoo! Autos Jackie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2009 Report Share Posted March 25, 2009 Hi Nadia, We need you here! We all feel the same way. Welcome and enjoy the journey with us. Peace, Jenn > > Hi, I just now started listening to the podcasts and for a while I didn't understand why I felt so alone and never wanted to do anything or ever go shopping or just go out with my friends...and after listening to the podcast its like someone actually understands how I feel. Im just looking for support, I haven't started anything yet but I am looking for people to talk to who feel or have felt the same way. Im ready to change my life. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2009 Report Share Posted March 25, 2009 Hi Nadia, We're fairly new also. We began listening to the pod casts about 3 months ago and have enjoyed them thoroughly with each pod cast giving me new ideas or enhancing old ones. My husband listens to them with me and supports me on this journey even though he doesn't need to lose weight. Please stay in touch with this yahoo group. There is always someone to talk to. And we're just and email away. Best of luck, Peggy and Jon from Folly Beach. Sent from my Verizon Wireless BlackBerry New to This Hi, I just now started listening to the podcasts and for a while I didn't understand why I felt so alone and never wanted to do anything or ever go shopping or just go out with my friends...and after listening to the podcast its like someone actually understands how I feel. Im just looking for support, I haven't started anything yet but I am looking for people to talk to who feel or have felt the same way. Im ready to change my life. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2009 Report Share Posted March 25, 2009 Hey Nadia, I felt the same way when I found the podcasts and the group. So far, it's been a great experience and very transformative. We're so glad you're here and don't forget we're always here for you cheering you on! --Marie ________________________________ To: insideoutweightloss Sent: Wednesday, March 25, 2009 2:53:37 PM Subject: New to This Hi, I just now started listening to the podcasts and for a while I didn't understand why I felt so alone and never wanted to do anything or ever go shopping or just go out with my friends...and after listening to the podcast its like someone actually understands how I feel. Im just looking for support, I haven't started anything yet but I am looking for people to talk to who feel or have felt the same way. Im ready to change my life. Quote Link to comment Share on other sites More sharing options...
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