Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 Brandee, I saw wonderful results with the GFCF diet; eye contact returned, toe walking stopped and he became sociable again. He no longer wanted to be in his room 24/7. But thinking back, he has been on a restricted GFCF diet because the soy starch and soy protein are too difficult for him to digest. I thought it was (and may very well be) because of what a nutritionist told me, " Most soy beans in the U.S. are genetically engineered and are not what other countries use " . After being on the diet for almost 4 years, the decision to switch is difficult. However, I do think that I have only been treating the symptoms and not treating the problem, healing the stomach. Whether my son will eat the goat yoghurt which has a lot of beneficial bacteria, I don't know. Here is some info on a doctor that also works on healing the gut and that I plan on seeing next year. Pfeiffer Treatment Center <A HREF= " http://www.hriptc.org/ " >http://www.hriptc.org/</A>Presented by Walsh, Ph.D. and Anjum Usman, M.D. at the American Psychiatric Association Annual Meeting, May 10, 2001 in New Orleans.<A HREF= " http://www.hriptc.org/MetalMetabolism_and_Autism.htm " > http://www.hriptc.org/MetalMetabolism_and_Autism.htm</A>The Pfeiffer Treatment Center (PTC) has discovered that defective functioning of metallothionein protein (MT) is a distinctive feature of autism. This abnormality (believed to be genetic) results in impaired brain development and extreme sensitivity to toxic metals and other environmental substances. This disorder is often unnoticed in infancy and early childhood until aggravated by a serious environmental insult.In a study of 503 autism-spectrum patients, PTC found abnormal levels of copper and zinc in blood (p<0.0001) indicating defective functioning of metallothionein (MT) proteins. In humans, MT proteins regulate blood levels of these metals, detoxify mercury and other heavy metals, and assist in neuronal development. The expected consequences of defective MT during gestation or early infancy are consistent with several classic symptoms of autism. It appears that defective functioning of MT proteins may represent a primary cause of autism.MT is directly involved in neuronal development and maturation of the brain and G.I. tract, and the timing of environmental insults is critically important. By age three, these systems may have sufficiently matured so that environmental toxins can no longer provoke autism. In a message dated 8/14/03 9:15:44 AM Eastern Daylight Time, simmang@... writes: > Hi Hope, > > Thank you so much for your response. It opened my eyes to the SCDiet which > I had never heard of before. Has the GFCF diet been helpful to you? Are > you switching because of the " addiction " to starches?? Like I said, I am new > to this arena and I have seen improvements in the 1sy three weeks of this > diet, but I just don't want to leave anything out. > > Your input has been extremely helpful and very much appreciated! > > Sincerely, > Brandee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 Brandee, I saw wonderful results with the GFCF diet; eye contact returned, toe walking stopped and he became sociable again. He no longer wanted to be in his room 24/7. But thinking back, he has been on a restricted GFCF diet because the soy starch and soy protein are too difficult for him to digest. I thought it was (and may very well be) because of what a nutritionist told me, " Most soy beans in the U.S. are genetically engineered and are not what other countries use " . After being on the diet for almost 4 years, the decision to switch is difficult. However, I do think that I have only been treating the symptoms and not treating the problem, healing the stomach. Whether my son will eat the goat yoghurt which has a lot of beneficial bacteria, I don't know. Here is some info on a doctor that also works on healing the gut and that I plan on seeing next year. Pfeiffer Treatment Center <A HREF= " http://www.hriptc.org/ " >http://www.hriptc.org/</A>Presented by Walsh, Ph.D. and Anjum Usman, M.D. at the American Psychiatric Association Annual Meeting, May 10, 2001 in New Orleans.<A HREF= " http://www.hriptc.org/MetalMetabolism_and_Autism.htm " > http://www.hriptc.org/MetalMetabolism_and_Autism.htm</A>The Pfeiffer Treatment Center (PTC) has discovered that defective functioning of metallothionein protein (MT) is a distinctive feature of autism. This abnormality (believed to be genetic) results in impaired brain development and extreme sensitivity to toxic metals and other environmental substances. This disorder is often unnoticed in infancy and early childhood until aggravated by a serious environmental insult.In a study of 503 autism-spectrum patients, PTC found abnormal levels of copper and zinc in blood (p<0.0001) indicating defective functioning of metallothionein (MT) proteins. In humans, MT proteins regulate blood levels of these metals, detoxify mercury and other heavy metals, and assist in neuronal development. The expected consequences of defective MT during gestation or early infancy are consistent with several classic symptoms of autism. It appears that defective functioning of MT proteins may represent a primary cause of autism.MT is directly involved in neuronal development and maturation of the brain and G.I. tract, and the timing of environmental insults is critically important. By age three, these systems may have sufficiently matured so that environmental toxins can no longer provoke autism. In a message dated 8/14/03 9:15:44 AM Eastern Daylight Time, simmang@... writes: > Hi Hope, > > Thank you so much for your response. It opened my eyes to the SCDiet which > I had never heard of before. Has the GFCF diet been helpful to you? Are > you switching because of the " addiction " to starches?? Like I said, I am new > to this arena and I have seen improvements in the 1sy three weeks of this > diet, but I just don't want to leave anything out. > > Your input has been extremely helpful and very much appreciated! > > Sincerely, > Brandee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 Brandee, I saw wonderful results with the GFCF diet; eye contact returned, toe walking stopped and he became sociable again. He no longer wanted to be in his room 24/7. But thinking back, he has been on a restricted GFCF diet because the soy starch and soy protein are too difficult for him to digest. I thought it was (and may very well be) because of what a nutritionist told me, " Most soy beans in the U.S. are genetically engineered and are not what other countries use " . After being on the diet for almost 4 years, the decision to switch is difficult. However, I do think that I have only been treating the symptoms and not treating the problem, healing the stomach. Whether my son will eat the goat yoghurt which has a lot of beneficial bacteria, I don't know. Here is some info on a doctor that also works on healing the gut and that I plan on seeing next year. Pfeiffer Treatment Center <A HREF= " http://www.hriptc.org/ " >http://www.hriptc.org/</A>Presented by Walsh, Ph.D. and Anjum Usman, M.D. at the American Psychiatric Association Annual Meeting, May 10, 2001 in New Orleans.<A HREF= " http://www.hriptc.org/MetalMetabolism_and_Autism.htm " > http://www.hriptc.org/MetalMetabolism_and_Autism.htm</A>The Pfeiffer Treatment Center (PTC) has discovered that defective functioning of metallothionein protein (MT) is a distinctive feature of autism. This abnormality (believed to be genetic) results in impaired brain development and extreme sensitivity to toxic metals and other environmental substances. This disorder is often unnoticed in infancy and early childhood until aggravated by a serious environmental insult.In a study of 503 autism-spectrum patients, PTC found abnormal levels of copper and zinc in blood (p<0.0001) indicating defective functioning of metallothionein (MT) proteins. In humans, MT proteins regulate blood levels of these metals, detoxify mercury and other heavy metals, and assist in neuronal development. The expected consequences of defective MT during gestation or early infancy are consistent with several classic symptoms of autism. It appears that defective functioning of MT proteins may represent a primary cause of autism.MT is directly involved in neuronal development and maturation of the brain and G.I. tract, and the timing of environmental insults is critically important. By age three, these systems may have sufficiently matured so that environmental toxins can no longer provoke autism. In a message dated 8/14/03 9:15:44 AM Eastern Daylight Time, simmang@... writes: > Hi Hope, > > Thank you so much for your response. It opened my eyes to the SCDiet which > I had never heard of before. Has the GFCF diet been helpful to you? Are > you switching because of the " addiction " to starches?? Like I said, I am new > to this arena and I have seen improvements in the 1sy three weeks of this > diet, but I just don't want to leave anything out. > > Your input has been extremely helpful and very much appreciated! > > Sincerely, > Brandee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2005 Report Share Posted October 4, 2005 Hi Stan, Incredibly some folks get through tx with NO side effects. Some of us wish we were dead, the sides are so bad. Most are somewhere in between. Be sure to drink LOTS of water. I drink nearly a gallon of water a day. It helps the most with the ongoing sides. For me the " shot " sides were not horribly bad. What was bad was the depression, the neuropathy, the apathy, the exhaustion, the nearly constant migraines, the mouth sores, and the fact that everything except sugar tasted just plain nasty. My sides were pretty bad. Sally New to this Hi guys and gals, Just started treatment 3 wks ago (HVC, Stage 2, Geno type 3a, viral load 1,500,000) Rx PEG redipen/REB. Have dghtr who went tru Wilms Tumor (Kidney cancer)@ 3yrs of age (thank God, she's now 20 & doing great!!!) - I say that to say this, her " side effects " manifested about 1 mnth from first admin of chemo, so I thought mine would also - WRONG! 8 hrs later 104.7 spikes, 10 min later 96.5 degree chills. Went on for 8 hrs or so. Male menipause to the max! ;-( 2nd inj I pretreated w/tylonmal & benedryl - ahh... next to NO side effects. 3rd inj, sheet! Damn near like the 1st...Does this junk stabilize? Stan It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/ Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2005 Report Share Posted October 4, 2005 Hi Stan, Incredibly some folks get through tx with NO side effects. Some of us wish we were dead, the sides are so bad. Most are somewhere in between. Be sure to drink LOTS of water. I drink nearly a gallon of water a day. It helps the most with the ongoing sides. For me the " shot " sides were not horribly bad. What was bad was the depression, the neuropathy, the apathy, the exhaustion, the nearly constant migraines, the mouth sores, and the fact that everything except sugar tasted just plain nasty. My sides were pretty bad. Sally New to this Hi guys and gals, Just started treatment 3 wks ago (HVC, Stage 2, Geno type 3a, viral load 1,500,000) Rx PEG redipen/REB. Have dghtr who went tru Wilms Tumor (Kidney cancer)@ 3yrs of age (thank God, she's now 20 & doing great!!!) - I say that to say this, her " side effects " manifested about 1 mnth from first admin of chemo, so I thought mine would also - WRONG! 8 hrs later 104.7 spikes, 10 min later 96.5 degree chills. Went on for 8 hrs or so. Male menipause to the max! ;-( 2nd inj I pretreated w/tylonmal & benedryl - ahh... next to NO side effects. 3rd inj, sheet! Damn near like the 1st...Does this junk stabilize? Stan It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/ Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2005 Report Share Posted October 4, 2005 Hi Stan, Incredibly some folks get through tx with NO side effects. Some of us wish we were dead, the sides are so bad. Most are somewhere in between. Be sure to drink LOTS of water. I drink nearly a gallon of water a day. It helps the most with the ongoing sides. For me the " shot " sides were not horribly bad. What was bad was the depression, the neuropathy, the apathy, the exhaustion, the nearly constant migraines, the mouth sores, and the fact that everything except sugar tasted just plain nasty. My sides were pretty bad. Sally New to this Hi guys and gals, Just started treatment 3 wks ago (HVC, Stage 2, Geno type 3a, viral load 1,500,000) Rx PEG redipen/REB. Have dghtr who went tru Wilms Tumor (Kidney cancer)@ 3yrs of age (thank God, she's now 20 & doing great!!!) - I say that to say this, her " side effects " manifested about 1 mnth from first admin of chemo, so I thought mine would also - WRONG! 8 hrs later 104.7 spikes, 10 min later 96.5 degree chills. Went on for 8 hrs or so. Male menipause to the max! ;-( 2nd inj I pretreated w/tylonmal & benedryl - ahh... next to NO side effects. 3rd inj, sheet! Damn near like the 1st...Does this junk stabilize? Stan It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/ Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 Stan I had times like that too,, I know others did as well and we used to wonder if the drugs were really the same batch to batch,, becasue some times it was like nothing and the next time it was like being in hell,, lol,, but when you reach SVR and its all over, it will be worth it, hugs jax --- Stanley Nacht wrote: > Hi guys and gals, > Just started treatment 3 wks ago (HVC, Stage 2, Geno > type 3a, viral > load 1,500,000) Rx PEG redipen/REB. > Have dghtr who went tru Wilms Tumor (Kidney cancer)@ > 3yrs of age > (thank God, she's now 20 & doing great!!!) - I say > that to say this, > her " side effects " manifested about 1 mnth from > first admin of chemo, > so I thought mine would also - WRONG! 8 hrs later > 104.7 spikes, 10 > min later 96.5 degree chills. Went on for 8 hrs or > so. Male menipause > to the max! ;-( > 2nd inj I pretreated w/tylonmal & benedryl - ahh... > next to NO side > effects. > 3rd inj, sheet! Damn near like the 1st...Does this > junk stabilize? > Stan > > > Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 Stan I had times like that too,, I know others did as well and we used to wonder if the drugs were really the same batch to batch,, becasue some times it was like nothing and the next time it was like being in hell,, lol,, but when you reach SVR and its all over, it will be worth it, hugs jax --- Stanley Nacht wrote: > Hi guys and gals, > Just started treatment 3 wks ago (HVC, Stage 2, Geno > type 3a, viral > load 1,500,000) Rx PEG redipen/REB. > Have dghtr who went tru Wilms Tumor (Kidney cancer)@ > 3yrs of age > (thank God, she's now 20 & doing great!!!) - I say > that to say this, > her " side effects " manifested about 1 mnth from > first admin of chemo, > so I thought mine would also - WRONG! 8 hrs later > 104.7 spikes, 10 > min later 96.5 degree chills. Went on for 8 hrs or > so. Male menipause > to the max! ;-( > 2nd inj I pretreated w/tylonmal & benedryl - ahh... > next to NO side > effects. > 3rd inj, sheet! Damn near like the 1st...Does this > junk stabilize? > Stan > > > Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 Stan I had times like that too,, I know others did as well and we used to wonder if the drugs were really the same batch to batch,, becasue some times it was like nothing and the next time it was like being in hell,, lol,, but when you reach SVR and its all over, it will be worth it, hugs jax --- Stanley Nacht wrote: > Hi guys and gals, > Just started treatment 3 wks ago (HVC, Stage 2, Geno > type 3a, viral > load 1,500,000) Rx PEG redipen/REB. > Have dghtr who went tru Wilms Tumor (Kidney cancer)@ > 3yrs of age > (thank God, she's now 20 & doing great!!!) - I say > that to say this, > her " side effects " manifested about 1 mnth from > first admin of chemo, > so I thought mine would also - WRONG! 8 hrs later > 104.7 spikes, 10 > min later 96.5 degree chills. Went on for 8 hrs or > so. Male menipause > to the max! ;-( > 2nd inj I pretreated w/tylonmal & benedryl - ahh... > next to NO side > effects. > 3rd inj, sheet! Damn near like the 1st...Does this > junk stabilize? > Stan > > > Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2005 Report Share Posted October 9, 2005 Side effects hit you when the drug PEAKS Jackie.....so it depends which PRODUCT you're using. Silvia > > > Hi guys and gals, > > Just started treatment 3 wks ago (HVC, Stage 2, Geno > > type 3a, viral > > load 1,500,000) Rx PEG redipen/REB. > > Have dghtr who went tru Wilms Tumor (Kidney cancer)@ > > 3yrs of age > > (thank God, she's now 20 & doing great!!!) - I say > > that to say this, > > her " side effects " manifested about 1 mnth from > > first admin of chemo, > > so I thought mine would also - WRONG! 8 hrs later > > 104.7 spikes, 10 > > min later 96.5 degree chills. Went on for 8 hrs or > > so. Male menipause > > to the max! ;-( > > 2nd inj I pretreated w/tylonmal & benedryl - ahh... > > next to NO side > > effects. > > 3rd inj, sheet! Damn near like the 1st...Does this > > junk stabilize? > > Stan > > > > > > > > > Jackie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2005 Report Share Posted October 9, 2005 Side effects hit you when the drug PEAKS Jackie.....so it depends which PRODUCT you're using. Silvia > > > Hi guys and gals, > > Just started treatment 3 wks ago (HVC, Stage 2, Geno > > type 3a, viral > > load 1,500,000) Rx PEG redipen/REB. > > Have dghtr who went tru Wilms Tumor (Kidney cancer)@ > > 3yrs of age > > (thank God, she's now 20 & doing great!!!) - I say > > that to say this, > > her " side effects " manifested about 1 mnth from > > first admin of chemo, > > so I thought mine would also - WRONG! 8 hrs later > > 104.7 spikes, 10 > > min later 96.5 degree chills. Went on for 8 hrs or > > so. Male menipause > > to the max! ;-( > > 2nd inj I pretreated w/tylonmal & benedryl - ahh... > > next to NO side > > effects. > > 3rd inj, sheet! Damn near like the 1st...Does this > > junk stabilize? > > Stan > > > > > > > > > Jackie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2005 Report Share Posted October 9, 2005 well it was weird silvia,, some weeks it kicked my butt and other weeks it was like nothing,, but there was NO rhyme or reason as to when it was awful and when it was ok,, I know Marrcuss said the same thing as did others,, we all wondered if the drugs were consistant in concentration... --- silvianursey wrote: > > Side effects hit you when the drug PEAKS > Jackie.....so it depends > which PRODUCT you're using. > Silvia > > > > > > > Hi guys and gals, > > > Just started treatment 3 wks ago (HVC, Stage 2, > Geno > > > type 3a, viral > > > load 1,500,000) Rx PEG redipen/REB. > > > Have dghtr who went tru Wilms Tumor (Kidney > cancer)@ > > > 3yrs of age > > > (thank God, she's now 20 & doing great!!!) - I > say > > > that to say this, > > > her " side effects " manifested about 1 mnth from > > > first admin of chemo, > > > so I thought mine would also - WRONG! 8 hrs > later > > > 104.7 spikes, 10 > > > min later 96.5 degree chills. Went on for 8 hrs > or > > > so. Male menipause > > > to the max! ;-( > > > 2nd inj I pretreated w/tylonmal & benedryl - > ahh... > > > next to NO side > > > effects. > > > 3rd inj, sheet! Damn near like the 1st...Does > this > > > junk stabilize? > > > Stan > > > > > > > > > > > > > > > Jackie > > > > > > > Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2005 Report Share Posted October 9, 2005 well it was weird silvia,, some weeks it kicked my butt and other weeks it was like nothing,, but there was NO rhyme or reason as to when it was awful and when it was ok,, I know Marrcuss said the same thing as did others,, we all wondered if the drugs were consistant in concentration... --- silvianursey wrote: > > Side effects hit you when the drug PEAKS > Jackie.....so it depends > which PRODUCT you're using. > Silvia > > > > > > > Hi guys and gals, > > > Just started treatment 3 wks ago (HVC, Stage 2, > Geno > > > type 3a, viral > > > load 1,500,000) Rx PEG redipen/REB. > > > Have dghtr who went tru Wilms Tumor (Kidney > cancer)@ > > > 3yrs of age > > > (thank God, she's now 20 & doing great!!!) - I > say > > > that to say this, > > > her " side effects " manifested about 1 mnth from > > > first admin of chemo, > > > so I thought mine would also - WRONG! 8 hrs > later > > > 104.7 spikes, 10 > > > min later 96.5 degree chills. Went on for 8 hrs > or > > > so. Male menipause > > > to the max! ;-( > > > 2nd inj I pretreated w/tylonmal & benedryl - > ahh... > > > next to NO side > > > effects. > > > 3rd inj, sheet! Damn near like the 1st...Does > this > > > junk stabilize? > > > Stan > > > > > > > > > > > > > > > Jackie > > > > > > > Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2005 Report Share Posted October 9, 2005 well it was weird silvia,, some weeks it kicked my butt and other weeks it was like nothing,, but there was NO rhyme or reason as to when it was awful and when it was ok,, I know Marrcuss said the same thing as did others,, we all wondered if the drugs were consistant in concentration... --- silvianursey wrote: > > Side effects hit you when the drug PEAKS > Jackie.....so it depends > which PRODUCT you're using. > Silvia > > > > > > > Hi guys and gals, > > > Just started treatment 3 wks ago (HVC, Stage 2, > Geno > > > type 3a, viral > > > load 1,500,000) Rx PEG redipen/REB. > > > Have dghtr who went tru Wilms Tumor (Kidney > cancer)@ > > > 3yrs of age > > > (thank God, she's now 20 & doing great!!!) - I > say > > > that to say this, > > > her " side effects " manifested about 1 mnth from > > > first admin of chemo, > > > so I thought mine would also - WRONG! 8 hrs > later > > > 104.7 spikes, 10 > > > min later 96.5 degree chills. Went on for 8 hrs > or > > > so. Male menipause > > > to the max! ;-( > > > 2nd inj I pretreated w/tylonmal & benedryl - > ahh... > > > next to NO side > > > effects. > > > 3rd inj, sheet! Damn near like the 1st...Does > this > > > junk stabilize? > > > Stan > > > > > > > > > > > > > > > Jackie > > > > > > > Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2005 Report Share Posted October 9, 2005 Me too. Re: Re: New to this well it was weird silvia,, some weeks it kicked my butt and other weeks it was like nothing,, but there was NO rhyme or reason as to when it was awful and when it was ok,, I know Marrcuss said the same thing as did others,, we all wondered if the drugs were consistant in concentration... --- silvianursey wrote: > > Side effects hit you when the drug PEAKS > Jackie.....so it depends > which PRODUCT you're using. > Silvia > > > > > > > Hi guys and gals, > > > Just started treatment 3 wks ago (HVC, Stage 2, > Geno > > > type 3a, viral > > > load 1,500,000) Rx PEG redipen/REB. > > > Have dghtr who went tru Wilms Tumor (Kidney > cancer)@ > > > 3yrs of age > > > (thank God, she's now 20 & doing great!!!) - I > say > > > that to say this, > > > her " side effects " manifested about 1 mnth from > > > first admin of chemo, > > > so I thought mine would also - WRONG! 8 hrs > later > > > 104.7 spikes, 10 > > > min later 96.5 degree chills. Went on for 8 hrs > or > > > so. Male menipause > > > to the max! ;-( > > > 2nd inj I pretreated w/tylonmal & benedryl - > ahh... > > > next to NO side > > > effects. > > > 3rd inj, sheet! Damn near like the 1st...Does > this > > > junk stabilize? > > > Stan > > > > > > > > > > > > > > > Jackie > > > > > > > Jackie It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/ Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 Hi hon NO, it does not affect your ability to have children,, YOU just DONT want to get pregnant if he is on treatment while he is on tx,, or for 6 months afterwards.. The Riba is very much associated with birth defects,, thats all you need to worry about,, so as long as you either get pregnant before tx or wait until 6 months after he has finished, you are fine.. As far as your other children, they need to know that they should NOT use his toothbrush, razor, nail clippers or IF he should cut himself, they should not touch his blood unless they have gloves on.. Bleach solution can and will kill this virus so just clean things up with bleach. They do not need to worry about eating off his fork or taking a drink from his cup etc,, unless he has blood in his mouth and they have an open wound,, there is nothing to worry about. This disease is spread by blood to blood contact, thats why we say dont share razors, nail clippers etc,, they could have miniscule drops of blood that you cant see and if you cut yourself ,, you could technically infect yourself.. Please ask all the questions you have, thats what we are here for!! jaxans412 wrote: Hey ya'll,Im really new to this so Im not sure where to start. We just found out that my fiance has hep. C and I am trying to learn all I can about this. Im hoping some of ya'll might be able to answer some of my questions. Ive searched the sites but they all just jump around my questions. How does this affect us having children? I have two other children from a previous marriage, how do i protect them without being too worried all the time? Im so confused about this. Hope ya'll can help.Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 Hi hon NO, it does not affect your ability to have children,, YOU just DONT want to get pregnant if he is on treatment while he is on tx,, or for 6 months afterwards.. The Riba is very much associated with birth defects,, thats all you need to worry about,, so as long as you either get pregnant before tx or wait until 6 months after he has finished, you are fine.. As far as your other children, they need to know that they should NOT use his toothbrush, razor, nail clippers or IF he should cut himself, they should not touch his blood unless they have gloves on.. Bleach solution can and will kill this virus so just clean things up with bleach. They do not need to worry about eating off his fork or taking a drink from his cup etc,, unless he has blood in his mouth and they have an open wound,, there is nothing to worry about. This disease is spread by blood to blood contact, thats why we say dont share razors, nail clippers etc,, they could have miniscule drops of blood that you cant see and if you cut yourself ,, you could technically infect yourself.. Please ask all the questions you have, thats what we are here for!! jaxans412 wrote: Hey ya'll,Im really new to this so Im not sure where to start. We just found out that my fiance has hep. C and I am trying to learn all I can about this. Im hoping some of ya'll might be able to answer some of my questions. Ive searched the sites but they all just jump around my questions. How does this affect us having children? I have two other children from a previous marriage, how do i protect them without being too worried all the time? Im so confused about this. Hope ya'll can help.Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 Hi hon NO, it does not affect your ability to have children,, YOU just DONT want to get pregnant if he is on treatment while he is on tx,, or for 6 months afterwards.. The Riba is very much associated with birth defects,, thats all you need to worry about,, so as long as you either get pregnant before tx or wait until 6 months after he has finished, you are fine.. As far as your other children, they need to know that they should NOT use his toothbrush, razor, nail clippers or IF he should cut himself, they should not touch his blood unless they have gloves on.. Bleach solution can and will kill this virus so just clean things up with bleach. They do not need to worry about eating off his fork or taking a drink from his cup etc,, unless he has blood in his mouth and they have an open wound,, there is nothing to worry about. This disease is spread by blood to blood contact, thats why we say dont share razors, nail clippers etc,, they could have miniscule drops of blood that you cant see and if you cut yourself ,, you could technically infect yourself.. Please ask all the questions you have, thats what we are here for!! jaxans412 wrote: Hey ya'll,Im really new to this so Im not sure where to start. We just found out that my fiance has hep. C and I am trying to learn all I can about this. Im hoping some of ya'll might be able to answer some of my questions. Ive searched the sites but they all just jump around my questions. How does this affect us having children? I have two other children from a previous marriage, how do i protect them without being too worried all the time? Im so confused about this. Hope ya'll can help.Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 Welcome! I hope you can find the answers to ease your concern. I'm and I'm pretty new here too, but I've known I have HCV for about 9 years now. There are many people here that can answer specific questions for you very very well. I can only offer my opinions, as I am not an expert. From personal experience I can tell you that I had HCV when I married, and after twenty years of marriage and not even knowing I had a problem, my ex-wife and my daughter tested negative for even the antibody. This means that they not only did not have HCV, but had never been exposed to it. Without getting too graphic, I'll just say that my wife and I had an active sex life. I was very close to my daughter as well. Just don't cut yourself with something he has just cut himself with. Don't share his razor. For information overload, check the internet. HA HA HA! But seriously, if you don't even know what questions you should be asking, try this website. http://janis7hepc.com/ I like it because it is well organized, and I'm not. Again, welcome here, Eat well, sleep well, be well!ans412 wrote: Hey ya'll,Im really new to this so Im not sure where to start. We just found out that my fiance has hep. C and I am trying to learn all I can about this. Im hoping some of ya'll might be able to answer some of my questions. Ive searched the sites but they all just jump around my questions. How does this affect us having children? I have two other children from a previous marriage, how do i protect them without being too worried all the time? Im so confused about this. Hope ya'll can help.It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 Welcome! I hope you can find the answers to ease your concern. I'm and I'm pretty new here too, but I've known I have HCV for about 9 years now. There are many people here that can answer specific questions for you very very well. I can only offer my opinions, as I am not an expert. From personal experience I can tell you that I had HCV when I married, and after twenty years of marriage and not even knowing I had a problem, my ex-wife and my daughter tested negative for even the antibody. This means that they not only did not have HCV, but had never been exposed to it. Without getting too graphic, I'll just say that my wife and I had an active sex life. I was very close to my daughter as well. Just don't cut yourself with something he has just cut himself with. Don't share his razor. For information overload, check the internet. HA HA HA! But seriously, if you don't even know what questions you should be asking, try this website. http://janis7hepc.com/ I like it because it is well organized, and I'm not. Again, welcome here, Eat well, sleep well, be well!ans412 wrote: Hey ya'll,Im really new to this so Im not sure where to start. We just found out that my fiance has hep. C and I am trying to learn all I can about this. Im hoping some of ya'll might be able to answer some of my questions. Ive searched the sites but they all just jump around my questions. How does this affect us having children? I have two other children from a previous marriage, how do i protect them without being too worried all the time? Im so confused about this. Hope ya'll can help.It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 Thank you so much Jackie. That really helped. He hasnt started any kind of treatment yet because we dont even know what stage or how far it is yet. My two other children are both small so we havent even told them. They wouldnt understand at all. Here's a question for you. He is tired all the time. He works ALOT, so Im sure some of it is due to that, but in the last few months all it seems he wants to do is SLEEP! Is this part of it?Jackie on wrote: Hi hon NO, it does not affect your ability to have children,, YOU just DONT want to get pregnant if he is on treatment while he is on tx,, or for 6 months afterwards.. The Riba is very much associated with birth defects,, thats all you need to worry about,, so as long as you either get pregnant before tx or wait until 6 months after he has finished, you are fine.. As far as your other children, they need to know that they should NOT use his toothbrush, razor, nail clippers or IF he should cut himself, they should not touch his blood unless they have gloves on.. Bleach solution can and will kill this virus so just clean things up with bleach. They do not need to worry about eating off his fork or taking a drink from his cup etc,, unless he has blood in his mouth and they have an open wound,, there is nothing to worry about. This disease is spread by blood to blood contact, thats why we say dont share razors, nail clippers etc,, they could have miniscule drops of blood that you cant see and if you cut yourself ,, you could technically infect yourself.. Please ask all the questions you have, thats what we are here for!! jaxans412 wrote: Hey ya'll,Im really new to this so Im not sure where to start. We just found out that my fiance has hep. C and I am trying to learn all I can about this. Im hoping some of ya'll might be able to answer some of my questions. Ive searched the sites but they all just jump around my questions. How does this affect us having children? I have two other children from a previous marriage, how do i protect them without being too worried all the time? Im so confused about this. Hope ya'll can help.Jackie Thanks, What are the most popular cars? Find out at Yahoo! Autos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 Hi , Yes, unfortunately the fatigue is part of this disease.. BUT,,, it can be helped with certain meds,, I take "Provigil" for my fatigue as do a lot of us with this disease.. so that is something you might want to talk about with his doc.. The main thing I would suggest is that you find a doc who has treated Hep c for a long time and really knows what he is doing.. there are many docs out there that are treating hep c but really do not know HOW to treat each person as an individual, they just follow the treatment protocol and most of us know that what works for one might not work for all.. If he is really newly infected,, there are many "pro's " to treating early,, less side effects, less viral load to kill,, and usually a better outcome with tx.. BUT there are also the side effects of tx that can be really debilitating.. its best to gather ALL the info, have ALL the tests and know exactly where he is with this illness,, what stage of damage he has, what grade of inflammtion he has,, what genotype he has,, etc, then make a decision about tx... HE MUST have a LIVER BIOPSY!!! Most of us dread that cuz we have heard the horror stories,, but he should have a doc who is very adept at doing the biopsy and he should DEMAND conscious sedation for the procedure.. its a piece of cake that way.. he wont remember it at all,, but is awake enough to hold still when needed... Try not to worry, this disease moves in DECADES, not months,, or years, but decades,, take it one day at a time,, and just gather all the info BEFORE making a decision! Let us know if there is anything else we can do to help you and please hang around,, we are a good support group!! hugs jaxnicole stevens wrote: Thank you so much Jackie. That really helped. He hasnt started any kind of treatment yet because we dont even know what stage or how far it is yet. My two other children are both small so we havent even told them. They wouldnt understand at all. Here's a question for you. He is tired all the time. He works ALOT, so Im sure some of it is due to that, but in the last few months all it seems he wants to do is SLEEP! Is this part of it?Jackie on wrote: Hi hon NO, it does not affect your ability to have children,, YOU just DONT want to get pregnant if he is on treatment while he is on tx,, or for 6 months afterwards.. The Riba is very much associated with birth defects,, thats all you need to worry about,, so as long as you either get pregnant before tx or wait until 6 months after he has finished, you are fine.. As far as your other children, they need to know that they should NOT use his toothbrush, razor, nail clippers or IF he should cut himself, they should not touch his blood unless they have gloves on.. Bleach solution can and will kill this virus so just clean things up with bleach. They do not need to worry about eating off his fork or taking a drink from his cup etc,, unless he has blood in his mouth and they have an open wound,, there is nothing to worry about. This disease is spread by blood to blood contact, thats why we say dont share razors, nail clippers etc,, they could have miniscule drops of blood that you cant see and if you cut yourself ,, you could technically infect yourself.. Please ask all the questions you have, thats what we are here for!! jaxans412 wrote: Hey ya'll,Im really new to this so Im not sure where to start. We just found out that my fiance has hep. C and I am trying to learn all I can about this. Im hoping some of ya'll might be able to answer some of my questions. Ive searched the sites but they all just jump around my questions. How does this affect us having children? I have two other children from a previous marriage, how do i protect them without being too worried all the time? Im so confused about this. Hope ya'll can help.Jackie Thanks, What are the most popular cars? Find out at Yahoo! Autos Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 Hi , Yes, unfortunately the fatigue is part of this disease.. BUT,,, it can be helped with certain meds,, I take "Provigil" for my fatigue as do a lot of us with this disease.. so that is something you might want to talk about with his doc.. The main thing I would suggest is that you find a doc who has treated Hep c for a long time and really knows what he is doing.. there are many docs out there that are treating hep c but really do not know HOW to treat each person as an individual, they just follow the treatment protocol and most of us know that what works for one might not work for all.. If he is really newly infected,, there are many "pro's " to treating early,, less side effects, less viral load to kill,, and usually a better outcome with tx.. BUT there are also the side effects of tx that can be really debilitating.. its best to gather ALL the info, have ALL the tests and know exactly where he is with this illness,, what stage of damage he has, what grade of inflammtion he has,, what genotype he has,, etc, then make a decision about tx... HE MUST have a LIVER BIOPSY!!! Most of us dread that cuz we have heard the horror stories,, but he should have a doc who is very adept at doing the biopsy and he should DEMAND conscious sedation for the procedure.. its a piece of cake that way.. he wont remember it at all,, but is awake enough to hold still when needed... Try not to worry, this disease moves in DECADES, not months,, or years, but decades,, take it one day at a time,, and just gather all the info BEFORE making a decision! Let us know if there is anything else we can do to help you and please hang around,, we are a good support group!! hugs jaxnicole stevens wrote: Thank you so much Jackie. That really helped. He hasnt started any kind of treatment yet because we dont even know what stage or how far it is yet. My two other children are both small so we havent even told them. They wouldnt understand at all. Here's a question for you. He is tired all the time. He works ALOT, so Im sure some of it is due to that, but in the last few months all it seems he wants to do is SLEEP! Is this part of it?Jackie on wrote: Hi hon NO, it does not affect your ability to have children,, YOU just DONT want to get pregnant if he is on treatment while he is on tx,, or for 6 months afterwards.. The Riba is very much associated with birth defects,, thats all you need to worry about,, so as long as you either get pregnant before tx or wait until 6 months after he has finished, you are fine.. As far as your other children, they need to know that they should NOT use his toothbrush, razor, nail clippers or IF he should cut himself, they should not touch his blood unless they have gloves on.. Bleach solution can and will kill this virus so just clean things up with bleach. They do not need to worry about eating off his fork or taking a drink from his cup etc,, unless he has blood in his mouth and they have an open wound,, there is nothing to worry about. This disease is spread by blood to blood contact, thats why we say dont share razors, nail clippers etc,, they could have miniscule drops of blood that you cant see and if you cut yourself ,, you could technically infect yourself.. Please ask all the questions you have, thats what we are here for!! jaxans412 wrote: Hey ya'll,Im really new to this so Im not sure where to start. We just found out that my fiance has hep. C and I am trying to learn all I can about this. Im hoping some of ya'll might be able to answer some of my questions. Ive searched the sites but they all just jump around my questions. How does this affect us having children? I have two other children from a previous marriage, how do i protect them without being too worried all the time? Im so confused about this. Hope ya'll can help.Jackie Thanks, What are the most popular cars? Find out at Yahoo! Autos Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 Hi , Yes, unfortunately the fatigue is part of this disease.. BUT,,, it can be helped with certain meds,, I take "Provigil" for my fatigue as do a lot of us with this disease.. so that is something you might want to talk about with his doc.. The main thing I would suggest is that you find a doc who has treated Hep c for a long time and really knows what he is doing.. there are many docs out there that are treating hep c but really do not know HOW to treat each person as an individual, they just follow the treatment protocol and most of us know that what works for one might not work for all.. If he is really newly infected,, there are many "pro's " to treating early,, less side effects, less viral load to kill,, and usually a better outcome with tx.. BUT there are also the side effects of tx that can be really debilitating.. its best to gather ALL the info, have ALL the tests and know exactly where he is with this illness,, what stage of damage he has, what grade of inflammtion he has,, what genotype he has,, etc, then make a decision about tx... HE MUST have a LIVER BIOPSY!!! Most of us dread that cuz we have heard the horror stories,, but he should have a doc who is very adept at doing the biopsy and he should DEMAND conscious sedation for the procedure.. its a piece of cake that way.. he wont remember it at all,, but is awake enough to hold still when needed... Try not to worry, this disease moves in DECADES, not months,, or years, but decades,, take it one day at a time,, and just gather all the info BEFORE making a decision! Let us know if there is anything else we can do to help you and please hang around,, we are a good support group!! hugs jaxnicole stevens wrote: Thank you so much Jackie. That really helped. He hasnt started any kind of treatment yet because we dont even know what stage or how far it is yet. My two other children are both small so we havent even told them. They wouldnt understand at all. Here's a question for you. He is tired all the time. He works ALOT, so Im sure some of it is due to that, but in the last few months all it seems he wants to do is SLEEP! Is this part of it?Jackie on wrote: Hi hon NO, it does not affect your ability to have children,, YOU just DONT want to get pregnant if he is on treatment while he is on tx,, or for 6 months afterwards.. The Riba is very much associated with birth defects,, thats all you need to worry about,, so as long as you either get pregnant before tx or wait until 6 months after he has finished, you are fine.. As far as your other children, they need to know that they should NOT use his toothbrush, razor, nail clippers or IF he should cut himself, they should not touch his blood unless they have gloves on.. Bleach solution can and will kill this virus so just clean things up with bleach. They do not need to worry about eating off his fork or taking a drink from his cup etc,, unless he has blood in his mouth and they have an open wound,, there is nothing to worry about. This disease is spread by blood to blood contact, thats why we say dont share razors, nail clippers etc,, they could have miniscule drops of blood that you cant see and if you cut yourself ,, you could technically infect yourself.. Please ask all the questions you have, thats what we are here for!! jaxans412 wrote: Hey ya'll,Im really new to this so Im not sure where to start. We just found out that my fiance has hep. C and I am trying to learn all I can about this. Im hoping some of ya'll might be able to answer some of my questions. Ive searched the sites but they all just jump around my questions. How does this affect us having children? I have two other children from a previous marriage, how do i protect them without being too worried all the time? Im so confused about this. Hope ya'll can help.Jackie Thanks, What are the most popular cars? Find out at Yahoo! Autos Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 Jax!!! What's that you said??? "we are a good support group!! " Ha! You are far too modest! This is a GREAT support group. I'm very thankful to have found this group. ((((((hugs))))) Jackie on wrote: Hi , Yes, unfortunately the fatigue is part of this disease.. BUT,,, it can be helped with certain meds,, I take "Provigil" for my fatigue as do a lot of us with this disease.. so that is something you might want to talk about with his doc.. The main thing I would suggest is that you find a doc who has treated Hep c for a long time and really knows what he is doing.. there are many docs out there that are treating hep c but really do not know HOW to treat each person as an individual, they just follow the treatment protocol and most of us know that what works for one might not work for all.. If he is really newly infected,, there are many "pro's " to treating early,, less side effects, less viral load to kill,, and usually a better outcome with tx.. BUT there are also the side effects of tx that can be really debilitating.. its best to gather ALL the info, have ALL the tests and know exactly where he is with this illness,, what stage of damage he has, what grade of inflammtion he has,, what genotype he has,, etc, then make a decision about tx... HE MUST have a LIVER BIOPSY!!! Most of us dread that cuz we have heard the horror stories,, but he should have a doc who is very adept at doing the biopsy and he should DEMAND conscious sedation for the procedure.. its a piece of cake that way.. he wont remember it at all,, but is awake enough to hold still when needed... Try not to worry, this disease moves in DECADES, not months,, or years, but decades,, take it one day at a time,, and just gather all the info BEFORE making a decision! Let us know if there is anything else we can do to help you and please hang around,, we are a good support group!! hugs jaxnicole stevens wrote: Thank you so much Jackie. That really helped. He hasnt started any kind of treatment yet because we dont even know what stage or how far it is yet. My two other children are both small so we havent even told them. They wouldnt understand at all. Here's a question for you. He is tired all the time. He works ALOT, so Im sure some of it is due to that, but in the last few months all it seems he wants to do is SLEEP! Is this part of it?Jackie on wrote: Hi hon NO, it does not affect your ability to have children,, YOU just DONT want to get pregnant if he is on treatment while he is on tx,, or for 6 months afterwards.. The Riba is very much associated with birth defects,, thats all you need to worry about,, so as long as you either get pregnant before tx or wait until 6 months after he has finished, you are fine.. As far as your other children, they need to know that they should NOT use his toothbrush, razor, nail clippers or IF he should cut himself, they should not touch his blood unless they have gloves on.. Bleach solution can and will kill this virus so just clean things up with bleach. They do not need to worry about eating off his fork or taking a drink from his cup etc,, unless he has blood in his mouth and they have an open wound,, there is nothing to worry about. This disease is spread by blood to blood contact, thats why we say dont share razors, nail clippers etc,, they could have miniscule drops of blood that you cant see and if you cut yourself ,, you could technically infect yourself.. Please ask all the questions you have, thats what we are here for!! jaxans412 wrote: Hey ya'll,Im really new to this so Im not sure where to start. We just found out that my fiance has hep. C and I am trying to learn all I can about this. Im hoping some of ya'll might be able to answer some of my questions. Ive searched the sites but they all just jump around my questions. How does this affect us having children? I have two other children from a previous marriage, how do i protect them without being too worried all the time? Im so confused about this. Hope ya'll can help.Jackie Thanks, What are the most popular cars? Find out at Yahoo! Autos Jackie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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