Guest guest Posted September 1, 2009 Report Share Posted September 1, 2009 Jeannette, My experience with Dr. and Dr. Khoury is that they didn't like to do fiberglass until the curve was less than 20 degrees. It was explained to me that the plaster held better than the fiberglass, so maybe your doctor is of the same school of though and hoping for better results by going back to plaster??? Noelle (12-2-01) Ian (8-15-04) To: infantile_scoliosis Sent: Tuesday, September 1, 2009 1:45:47 PMSubject: My son Caden I haven't written in a while, but wanted to know if anyone has had a set back like I had "after taking a cast off." My son Caden started out at 54 degrees and after the cast was put on, it was down to 18. We removed the cast, and the curve went back up to 30. The second cast the curve now went from 30 down to 11 or 12 (can't remember which #). After removal of the 2nd cast, the curve went back up to 35. Third cast, (which was synthetic), curve went from 35 down to 10. Cast had to be removed a week early because it got really small. After removing the cast, the rotation of his rib cage looked wonderful. The rib cages looked perfectly aligned. But...the curve went up to 45. Now in the fourth cast which was put on in mid August, the curve went from 45 down to 8!!! This cast however, is the regular plaster cast. Dr. R in Rochester didn't want to put the synthetic back on him. (don't ask me why...I don't really know). Can anyone see my frustration here!! I have great accomplishments with the cast on, but when it comes off, it goes right back like a rubber band. If anyone has a similar problem let me know and what does your Dr. say? Jeannette McNally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2009 Report Share Posted September 1, 2009 I guess they work with Dr. Rubery in Rochester as well. I was thinking that the cast was as efficient. Thank. Jeannette McNally Subject: Re: My son CadenTo: infantile_scoliosis Date: Tuesday, September 1, 2009, 2:38 PM Jeannette, My experience with Dr. and Dr. Khoury is that they didn't like to do fiberglass until the curve was less than 20 degrees. It was explained to me that the plaster held better than the fiberglass, so maybe your doctor is of the same school of though and hoping for better results by going back to plaster??? Noelle (12-2-01) Ian (8-15-04) From: jeannette McNally <jmcnally4171@ yahoo.com>To: infantile_scoliosis @yahoogroups. comSent: Tuesday, September 1, 2009 1:45:47 PMSubject: [infantile_scoliosi s] My son Caden I haven't written in a while, but wanted to know if anyone has had a set back like I had "after taking a cast off." My son Caden started out at 54 degrees and after the cast was put on, it was down to 18. We removed the cast, and the curve went back up to 30. The second cast the curve now went from 30 down to 11 or 12 (can't remember which #). After removal of the 2nd cast, the curve went back up to 35. Third cast, (which was synthetic), curve went from 35 down to 10. Cast had to be removed a week early because it got really small. After removing the cast, the rotation of his rib cage looked wonderful. The rib cages looked perfectly aligned. But...the curve went up to 45. Now in the fourth cast which was put on in mid August, the curve went from 45 down to 8!!! This cast however, is the regular plaster cast. Dr. R in Rochester didn't want to put the synthetic back on him. (don't ask me why...I don't really know). Can anyone see my frustration here!! I have great accomplishments with the cast on, but when it comes off, it goes right back like a rubber band. If anyone has a similar problem let me know and what does your Dr. say? Jeannette McNally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2009 Report Share Posted September 2, 2009 Hi Jeannette, Our son always seems to "bounce back" when the cast is taken off too. He is treated in Rochester by another doctor. is now at 10* supine and 20* standing. We are now trying a brace. His back isn't perfect, but it looks beautiful to the naked eye. Our doc noted "clinically he looks great." The idea of a connective tissue disorder was brought up, but I just don't have it in me to look into that just yet. It is so hard, but many times in IS "slow and steady wins..." as many others have said here in the group. Hang in there. I know your frustration so well. Jill Subject: Re: My son CadenTo: infantile_scoliosis Date: Tuesday, September 1, 2009, 2:38 PM Jeannette, My experience with Dr. and Dr. Khoury is that they didn't like to do fiberglass until the curve was less than 20 degrees. It was explained to me that the plaster held better than the fiberglass, so maybe your doctor is of the same school of though and hoping for better results by going back to plaster??? Noelle (12-2-01) Ian (8-15-04) From: jeannette McNally <jmcnally4171@ yahoo.com>To: infantile_scoliosis @yahoogroups. comSent: Tuesday, September 1, 2009 1:45:47 PMSubject: [infantile_scoliosi s] My son Caden I haven't written in a while, but wanted to know if anyone has had a set back like I had "after taking a cast off." My son Caden started out at 54 degrees and after the cast was put on, it was down to 18. We removed the cast, and the curve went back up to 30. The second cast the curve now went from 30 down to 11 or 12 (can't remember which #). After removal of the 2nd cast, the curve went back up to 35. Third cast, (which was synthetic), curve went from 35 down to 10. Cast had to be removed a week early because it got really small. After removing the cast, the rotation of his rib cage looked wonderful. The rib cages looked perfectly aligned. But...the curve went up to 45. Now in the fourth cast which was put on in mid August, the curve went from 45 down to 8!!! This cast however, is the regular plaster cast. Dr. R in Rochester didn't want to put the synthetic back on him. (don't ask me why...I don't really know). Can anyone see my frustration here!! I have great accomplishments with the cast on, but when it comes off, it goes right back like a rubber band. If anyone has a similar problem let me know and what does your Dr. say? Jeannette McNally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2009 Report Share Posted September 3, 2009 Yes... that happens. The in cast x-ray shows what the child is within the structure of the cast, but when the cast is removed there is rebound. The hope is that they don't rebound all the way back to the original number. Noelle did that too. Casting is meant to be a long and gentle process. It gets frustrating at times and confusing, but you are going in the right direction. Noelle experienced a setback once as well along with 2 casts that had no changes and it sometimes drove me nuts! If you feel at all unsure, give your doc a call and ask all the questions you need until you feel better..... Hugs! - Noelle's mommy, 2 1/2 years old and in 8th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III Subject: My son CadenTo: infantile_scoliosis Date: Tuesday, September 1, 2009, 5:45 PM I haven't written in a while, but wanted to know if anyone has had a set back like I had "after taking a cast off." My son Caden started out at 54 degrees and after the cast was put on, it was down to 18. We removed the cast, and the curve went back up to 30. The second cast the curve now went from 30 down to 11 or 12 (can't remember which #). After removal of the 2nd cast, the curve went back up to 35. Third cast, (which was synthetic), curve went from 35 down to 10. Cast had to be removed a week early because it got really small. After removing the cast, the rotation of his rib cage looked wonderful. The rib cages looked perfectly aligned. But...the curve went up to 45. Now in the fourth cast which was put on in mid August, the curve went from 45 down to 8!!! This cast however, is the regular plaster cast. Dr. R in Rochester didn't want to put the synthetic back on him. (don't ask me why...I don't really know). Can anyone see my frustration here!! I have great accomplishments with the cast on, but when it comes off, it goes right back like a rubber band. If anyone has a similar problem let me know and what does your Dr. say? Jeannette McNally Quote Link to comment Share on other sites More sharing options...
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