Guest guest Posted November 20, 2002 Report Share Posted November 20, 2002 I have noticed this in my father too, If you stop to wait for him, he stops too! My Mother's answer is: she doesn't stop! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2002 Report Share Posted November 20, 2002 Peg, My mom also has some parkinson like symptoms. She has a shuffling gait at times, and her hand shakes but not all the time.We will find out more next dr.'s visit as she will also see the physiotherapist who will observe her walk. It is funny how sometimes she walks quite fast even without her walker (last time it was when she was in hallucination mode), but when she seemed more mentally stable she is slower than a turtle even with her walker. The worst part is, as I slow down so she can catch up to me, it seems to signal her to slow down as well, sometimes she has actually stopped and I have had to ask her what are you doing? I find that if I guide her a bit with the walker, she does a bit better and I don't feel like I am leading her in some cruel race to the finish line. Kath Welcome Kathy > > > > Hi Kathy, > > Was just reading your post in LBDcaregivers and saw that you are from Ontario as well. I live in Stoney Creek, just outside Hamilton. My mother was diagnosed with LBD about 3 years ago though symptoms date further back than that. She too was moved to a retirement home since she was still able to care for herself and was mobile. She spent a short time in the hospital and we moved here from there to the retirement home. From day one, she was resistent to moving there and wanted to be in her own home insisting that she could take care of herself. We knew this would not be possible for her own safety. We always told her that she had to be there for her own safety and that nurses were always available when she needed them. > > We brought things from her home to make her room more habitable but she always told us that we shouldn't bring things there because she wasn't staying, so we just gradually brought things in for her. With her home, we began to clean out things she had hoarded for so long and got rid of things slowly, hoping that one day she would be able to " visit " her home and most everything would appear the same to her. > > I hope that you can keep your mother close to you because I know that frequent visits make quite a bit of difference to them. Fortunately, the only thing that mom found good in this home were the meals........Being an excellent cook herself, she congratulated them on their meals and claimed the chef was excellent. At least we knew she enjoyed the food even though her appetite had greatly diminished. I understand what you are saying about the Taj Mahal, but be assured that she is at least getting her meds when needed. I know that was a problem when mom lived alone. Routine, at least kept the hallucinations down with consistent dosages by the nurses. > > My mom too had limited vision which prevented her from doing so much. She would only attend craft sessions if we took her and that was not always possible. The volunteer that ran the program always found things that she could do with her limited eyesite. It really helped when a nurse of someone else would come to get her as she tended to isolate herself in her room. The dining room was mainly where her socialization came though she had been quite social before this. She always said.......all those old people do is talk about each other.........lol..........and here she was at 85 (or course, not one of those old people). > > Kathy, I am so sorry to hear about the operation and resultant fall with your mother. I know what you are going through.......have been there!! Hopefully, time will help with that. > > Just be there for your mother, knowing that the home will keep her safe. Don't feel guilty, as I did, because her condition requires someone there constantly for her. My mom was in the retirement home for 6 months, and never adapted to being there. She passed away on Oct. 28th from a bowel obstruction and complications from that. Just be there, love her, and keep on top of all medications they give her. People in this group know so much about medications, and what works for one, doesn't for another. During the last 2 days in the hospital, my mom told us all the she was in her own house and I am sure that was a good thought for her........... > > > > > > > > --------------------------------- > Post your free ad now! Yahoo! Canada Personals > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2009 Report Share Posted January 14, 2009 ************************ I am also looking into having her tested regarding her test-taking ability; it's abysmal! She'd be a straight A student if not for her test grades. ************************ Debbie, are her tests timed? Just curious. Josh used to have a meltdown if he was timed. Yet, if he wasn't, he would do fine, and most often would literally do it in half the time allowed. Just the idea of being timed would send him into a tailspin. BJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2009 Report Share Posted January 14, 2009 No, she doesn't have a 504 plan. I talked to the psych about it today and we will go further with it when we are in the therapists office next week. It is interesting what you said about having the assignments done, but not wanting to walk past the contamination. Also, what you said about her wanting to handle it on her own. I think Joei may have some contamination issues and other things starting up. The problem is, she is not communicating well with me. Nor is she communicating with the doctors. Everytime the psych would ask her questions today she would say things were fine or good. GRRRRRRRRRRRR So I have to chime in with my observations. It would be nice if the darn kid would back me up though! We have had some good successes lately, but I also have that " gut " feeling that we are in for a real doozy here soon. Somethings brewing, I just can't put my finger on it yet. I'm going to get some time alone with the therapist next week to see if I can't get some help from her in learning to get Joei to communicate better. Joei is a stubborn girl and very closeminded as well. lol It does not make advocating for her very easy. ________________________________ To: Sent: Wednesday, January 14, 2009 6:22:25 AM Subject: Kathy Sorry you had such a bad night with Joie; aren't kids hard enough without having to deal with OCD, for goodness sake?! I sympathize with you on the missed assignment scenario; last semester, missed so many assignments and here's the kicker; she had them done, but wouldn't turn them in! Why, you might ask? Because she couldn't bring herself to walk past all the other students (and their contaminated shoes) to put her work in the turn-in basket on the teacher's desk. Of course, the teachers did not tell me of the missed assignments, I only found out because we have online access to our school, so I can look up the kids grades and homework anytime. So I constantly found myself backtracking and basically trying to save her butt by asking the teachers to let her turn in her homework late to get at least some credit! We did finally get all the teachers on board letting her turn in stuff before or after class or even moving her desk close to the turn-in basket! She has a 504 plan, but it took some prodding to get all the teachers to actively put it into play. Part of the problem is , at 14 and a half, wants to be independent and handle this " on her own " ; sometimes she resists the accommodations and doesn't want to admit she needs them. I am also looking into having her tested regarding her test-taking ability; it's abysmal! She'd be a straight A student if not for her test grades. I forget, does Joie have a 504 plan? If not, I would highly recommend it. And if she does, perhaps another meeting with all her teachers with your concerns outlined might help. Thinking of you! Debbie http://twochinadoll s.blogspot. com ____________ _________ _________ _________ _________ _________ _ Lower rates for Veterans. Click for VA loan information. http://thirdpartyof fers.netzero. net/TGL2241/ fc/PnY6rx9LkMha5 OJBmIwAqZyMtCfEo CNaVHogq3gKKuYSY rQUW5bEN/ Quote Link to comment Share on other sites More sharing options...
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