Guest guest Posted October 1, 1999 Report Share Posted October 1, 1999 At 04:19 PM 10/1/99 -0400, Fern Lehmann wisely said: >In my case the Vioxx increased my pain, made me >terribly depressed, and it caused my appetite to completely disappear. I am >telling you all this because I want everyone to be aware that as with any >drug, it works for some and not for others Thanks for the info & sorry about your experience with Vioxx, Fern, but glad you posted this. It really seems like many drugs are a virtual " witches' brew " , and before I was given the Celebrex, I had pretty much concluded that I just had to commit to doing what I could regardless of drugs. In fact, I had cut out almost everything, and was doing better than when I was taking the full list. Ken Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 1999 Report Share Posted October 1, 1999 Ken, I am so glad to hear that you have found something that is working for you. Celebrex and Vioxx are the two new II inhibitors. I tried Vioxx and could not tolerate it. In my case the Vioxx increased my pain, made me terribly depressed, and it caused my appetite to completely disappear. I am telling you all this because I want everyone to be aware that as with any drug, it works for some and not for others. You just have to keep trying until you find what works for you. Gentle hugs, Fern Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2005 Report Share Posted July 21, 2005 What meds do your children with autism take and why? My dd is 4 and not presently taking any medications but I'm wondering if this is what our future holds as more symptoms may come up. Thanks Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2005 Report Share Posted July 21, 2005 Kaylea was on clonidine for behavior, mean to other children biting, hair pulling scratching, but now she is off meds, and no bad behavior Sagginario wrote: What meds do your children with autism take and why? My dd is 4 and not presently taking any medications but I'm wondering if this is what our future holds as more symptoms may come up. Thanks Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2005 Report Share Posted July 21, 2005 What are some meds that children go on for complusive issues? and when (age) did you decide it was time... thanks Jen Re: meds Kaylea was on clonidine for behavior, mean to other children biting, hair pulling scratching, but now she is off meds, and no bad behavior Sagginario wrote: What meds do your children with autism take and why? My dd is 4 and not presently taking any medications but I'm wondering if this is what our future holds as more symptoms may come up. Thanks Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2005 Report Share Posted July 21, 2005 We decided to try paxil for severe OCD/anxiety type issues. But I do want to say that we did this after we tried the diet for 9 mos, after various supps, and after 14 mos of speech/OT/ABA. It worked wonders for her, she had just turned 3 when we began, 2.5mg/daily. I got some flack from some people who are, as a rule, anti-meds for kids. My feeling is that, generally speaking, meds should be a last resort and everything natural should be tried first, but meds do seem to have a place, too. I was anti-med until I read Temple Grandin's book, Thinking in Pictures. She talked about how anxiety was ruining her life and was making her unable to function. It made me think about how everything in Allie's life seemed to cause her to be unable to function. Within 2 days of being on paxil she was able to do things that would have brought 20min+ tantrums, such as walking past the car and not getting in the car, cause in her mind if we walked past it she HAD to get in it and go somewhere. It was one thing after another like this with her every day, and got worse over a 6 mo period, so it wasn't a temporary fixation, it was rendering her unable to function at anything. Also, she made huge gains the following 2 years in her program after she began the med. I think it made her be able to learn cause it was calming all the " stuff " going on inside her. HTH, Debi > What meds do your children with autism take and why? My dd is 4 and not presently taking any medications but I'm wondering if this is what our future holds as more symptoms may come up. Thanks > Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2005 Report Share Posted July 21, 2005 We decided to try paxil for severe OCD/anxiety type issues. But I do want to say that we did this after we tried the diet for 9 mos, after various supps, and after 14 mos of speech/OT/ABA. It worked wonders for her, she had just turned 3 when we began, 2.5mg/daily. I got some flack from some people who are, as a rule, anti-meds for kids. My feeling is that, generally speaking, meds should be a last resort and everything natural should be tried first, but meds do seem to have a place, too. I was anti-med until I read Temple Grandin's book, Thinking in Pictures. She talked about how anxiety was ruining her life and was making her unable to function. It made me think about how everything in Allie's life seemed to cause her to be unable to function. Within 2 days of being on paxil she was able to do things that would have brought 20min+ tantrums, such as walking past the car and not getting in the car, cause in her mind if we walked past it she HAD to get in it and go somewhere. It was one thing after another like this with her every day, and got worse over a 6 mo period, so it wasn't a temporary fixation, it was rendering her unable to function at anything. Also, she made huge gains the following 2 years in her program after she began the med. I think it made her be able to learn cause it was calming all the " stuff " going on inside her. HTH, Debi > What meds do your children with autism take and why? My dd is 4 and not presently taking any medications but I'm wondering if this is what our future holds as more symptoms may come up. Thanks > Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2005 Report Share Posted July 22, 2005 Thanks that's what I was wondering... nna's complusions aren't for the day to day daily living skills yet still interfere with her routine... She's getting better with having to pick all food off of the ground before moving on to the next piece, but she still can't handle seeing any type of " stick " item and not having it, such as flag, lollipop, umbrella, etc. She had a fit the other day in the store for something else too.. gloves! She loves to put socks and gloves on her hands! I don't know if this is typical child dress up thing or a sensory thing. Anyway, my point is that when she wants something she can't get passed it. In preschool they work through it but thats for 2 and 1/2 hours. I'm worried about kindergarten next year (Sept 06) being a full day. How will she handle the flag in the classroom or will she get passed it? I don't want the kid next to her to have a " flower pencil " and her flip out and not be able to move on. Another thing is when she's engaged in something she loves, like swimming... today we are going to my g/f's to swim. I know that we have to eat lunch first b/c once she's in that pool it will be torture to get her out. I'll have to bribe her and then just demand it and make her cry. What do you think?? sound familiar to anyone?? thanks Jen From: Debi To: Autism_in_Girls Sent: Friday, July 22, 2005 1:34 AM Subject: Re: meds We decided to try paxil for severe OCD/anxiety type issues. But I do want to say that we did this after we tried the diet for 9 mos, after various supps, and after 14 mos of speech/OT/ABA. It worked wonders for her, she had just turned 3 when we began, 2.5mg/daily. I got some flack from some people who are, as a rule, anti-meds for kids. My feeling is that, generally speaking, meds should be a last resort and everything natural should be tried first, but meds do seem to have a place, too. I was anti-med until I read Temple Grandin's book, Thinking in Pictures. She talked about how anxiety was ruining her life and was making her unable to function. It made me think about how everything in Allie's life seemed to cause her to be unable to function. Within 2 days of being on paxil she was able to do things that would have brought 20min+ tantrums, such as walking past the car and not getting in the car, cause in her mind if we walked past it she HAD to get in it and go somewhere. It was one thing after another like this with her every day, and got worse over a 6 mo period, so it wasn't a temporary fixation, it was rendering her unable to function at anything. Also, she made huge gains the following 2 years in her program after she began the med. I think it made her be able to learn cause it was calming all the " stuff " going on inside her. HTH, Debi > What meds do your children with autism take and why? My dd is 4 and not presently taking any medications but I'm wondering if this is what our future holds as more symptoms may come up. Thanks > Jen Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2005 Report Share Posted July 22, 2005 Thanks that's what I was wondering... nna's complusions aren't for the day to day daily living skills yet still interfere with her routine... She's getting better with having to pick all food off of the ground before moving on to the next piece, but she still can't handle seeing any type of " stick " item and not having it, such as flag, lollipop, umbrella, etc. She had a fit the other day in the store for something else too.. gloves! She loves to put socks and gloves on her hands! I don't know if this is typical child dress up thing or a sensory thing. Anyway, my point is that when she wants something she can't get passed it. In preschool they work through it but thats for 2 and 1/2 hours. I'm worried about kindergarten next year (Sept 06) being a full day. How will she handle the flag in the classroom or will she get passed it? I don't want the kid next to her to have a " flower pencil " and her flip out and not be able to move on. Another thing is when she's engaged in something she loves, like swimming... today we are going to my g/f's to swim. I know that we have to eat lunch first b/c once she's in that pool it will be torture to get her out. I'll have to bribe her and then just demand it and make her cry. What do you think?? sound familiar to anyone?? thanks Jen From: Debi To: Autism_in_Girls Sent: Friday, July 22, 2005 1:34 AM Subject: Re: meds We decided to try paxil for severe OCD/anxiety type issues. But I do want to say that we did this after we tried the diet for 9 mos, after various supps, and after 14 mos of speech/OT/ABA. It worked wonders for her, she had just turned 3 when we began, 2.5mg/daily. I got some flack from some people who are, as a rule, anti-meds for kids. My feeling is that, generally speaking, meds should be a last resort and everything natural should be tried first, but meds do seem to have a place, too. I was anti-med until I read Temple Grandin's book, Thinking in Pictures. She talked about how anxiety was ruining her life and was making her unable to function. It made me think about how everything in Allie's life seemed to cause her to be unable to function. Within 2 days of being on paxil she was able to do things that would have brought 20min+ tantrums, such as walking past the car and not getting in the car, cause in her mind if we walked past it she HAD to get in it and go somewhere. It was one thing after another like this with her every day, and got worse over a 6 mo period, so it wasn't a temporary fixation, it was rendering her unable to function at anything. Also, she made huge gains the following 2 years in her program after she began the med. I think it made her be able to learn cause it was calming all the " stuff " going on inside her. HTH, Debi > What meds do your children with autism take and why? My dd is 4 and not presently taking any medications but I'm wondering if this is what our future holds as more symptoms may come up. Thanks > Jen Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2005 Report Share Posted July 22, 2005 Thanks that's what I was wondering... nna's complusions aren't for the day to day daily living skills yet still interfere with her routine... She's getting better with having to pick all food off of the ground before moving on to the next piece, but she still can't handle seeing any type of " stick " item and not having it, such as flag, lollipop, umbrella, etc. She had a fit the other day in the store for something else too.. gloves! She loves to put socks and gloves on her hands! I don't know if this is typical child dress up thing or a sensory thing. Anyway, my point is that when she wants something she can't get passed it. In preschool they work through it but thats for 2 and 1/2 hours. I'm worried about kindergarten next year (Sept 06) being a full day. How will she handle the flag in the classroom or will she get passed it? I don't want the kid next to her to have a " flower pencil " and her flip out and not be able to move on. Another thing is when she's engaged in something she loves, like swimming... today we are going to my g/f's to swim. I know that we have to eat lunch first b/c once she's in that pool it will be torture to get her out. I'll have to bribe her and then just demand it and make her cry. What do you think?? sound familiar to anyone?? thanks Jen From: Debi To: Autism_in_Girls Sent: Friday, July 22, 2005 1:34 AM Subject: Re: meds We decided to try paxil for severe OCD/anxiety type issues. But I do want to say that we did this after we tried the diet for 9 mos, after various supps, and after 14 mos of speech/OT/ABA. It worked wonders for her, she had just turned 3 when we began, 2.5mg/daily. I got some flack from some people who are, as a rule, anti-meds for kids. My feeling is that, generally speaking, meds should be a last resort and everything natural should be tried first, but meds do seem to have a place, too. I was anti-med until I read Temple Grandin's book, Thinking in Pictures. She talked about how anxiety was ruining her life and was making her unable to function. It made me think about how everything in Allie's life seemed to cause her to be unable to function. Within 2 days of being on paxil she was able to do things that would have brought 20min+ tantrums, such as walking past the car and not getting in the car, cause in her mind if we walked past it she HAD to get in it and go somewhere. It was one thing after another like this with her every day, and got worse over a 6 mo period, so it wasn't a temporary fixation, it was rendering her unable to function at anything. Also, she made huge gains the following 2 years in her program after she began the med. I think it made her be able to learn cause it was calming all the " stuff " going on inside her. HTH, Debi > What meds do your children with autism take and why? My dd is 4 and not presently taking any medications but I'm wondering if this is what our future holds as more symptoms may come up. Thanks > Jen Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2005 Report Share Posted July 22, 2005 Debi I to agree to you words below and happy that you are one who only meidcated the most pronounced symptom that was interfering and it was right step functionally for her. You only medciated one core issues and it helped to support other areas sucha s her attention and focus to learn because her anxiety is under control and during this time she is learning the correct skills that she could not learn without the medications because the anxiety was interfering . Sondra In Autism_in_Girls , " Debi " <fightingautism@y...> wrote: > We decided to try paxil for severe OCD/anxiety type issues. But I do > want to say that we did this after we tried the diet for 9 mos, after > various supps, and after 14 mos of speech/OT/ABA. It worked wonders > for her, she had just turned 3 when we began, 2.5mg/daily. I got some > flack from some people who are, as a rule, anti-meds for kids. My > feeling is that, generally speaking, meds should be a last resort and > everything natural should be tried first, but meds do seem to have a > place, too. > > I was anti-med until I read Temple Grandin's book, Thinking in > Pictures. She talked about how anxiety was ruining her life and was > making her unable to function. It made me think about how everything > in Allie's life seemed to cause her to be unable to function. Within 2 > days of being on paxil she was able to do things that would have > brought 20min+ tantrums, such as walking past the car and not getting > in the car, cause in her mind if we walked past it she HAD to get in > it and go somewhere. It was one thing after another like this with her > every day, and got worse over a 6 mo period, so it wasn't a temporary > fixation, it was rendering her unable to function at anything. Also, > she made huge gains the following 2 years in her program after she > began the med. I think it made her be able to learn cause it was > calming all the " stuff " going on inside her. > > HTH, > Debi > > > > What meds do your children with autism take and why? My dd is 4 and > not presently taking any medications but I'm wondering if this is what > our future holds as more symptoms may come up. Thanks > > Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2005 Report Share Posted July 22, 2005 Debi I to agree to you words below and happy that you are one who only meidcated the most pronounced symptom that was interfering and it was right step functionally for her. You only medciated one core issues and it helped to support other areas sucha s her attention and focus to learn because her anxiety is under control and during this time she is learning the correct skills that she could not learn without the medications because the anxiety was interfering . Sondra In Autism_in_Girls , " Debi " <fightingautism@y...> wrote: > We decided to try paxil for severe OCD/anxiety type issues. But I do > want to say that we did this after we tried the diet for 9 mos, after > various supps, and after 14 mos of speech/OT/ABA. It worked wonders > for her, she had just turned 3 when we began, 2.5mg/daily. I got some > flack from some people who are, as a rule, anti-meds for kids. My > feeling is that, generally speaking, meds should be a last resort and > everything natural should be tried first, but meds do seem to have a > place, too. > > I was anti-med until I read Temple Grandin's book, Thinking in > Pictures. She talked about how anxiety was ruining her life and was > making her unable to function. It made me think about how everything > in Allie's life seemed to cause her to be unable to function. Within 2 > days of being on paxil she was able to do things that would have > brought 20min+ tantrums, such as walking past the car and not getting > in the car, cause in her mind if we walked past it she HAD to get in > it and go somewhere. It was one thing after another like this with her > every day, and got worse over a 6 mo period, so it wasn't a temporary > fixation, it was rendering her unable to function at anything. Also, > she made huge gains the following 2 years in her program after she > began the med. I think it made her be able to learn cause it was > calming all the " stuff " going on inside her. > > HTH, > Debi > > > > What meds do your children with autism take and why? My dd is 4 and > not presently taking any medications but I'm wondering if this is what > our future holds as more symptoms may come up. Thanks > > Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2005 Report Share Posted July 22, 2005 Debi I to agree to you words below and happy that you are one who only meidcated the most pronounced symptom that was interfering and it was right step functionally for her. You only medciated one core issues and it helped to support other areas sucha s her attention and focus to learn because her anxiety is under control and during this time she is learning the correct skills that she could not learn without the medications because the anxiety was interfering . Sondra In Autism_in_Girls , " Debi " <fightingautism@y...> wrote: > We decided to try paxil for severe OCD/anxiety type issues. But I do > want to say that we did this after we tried the diet for 9 mos, after > various supps, and after 14 mos of speech/OT/ABA. It worked wonders > for her, she had just turned 3 when we began, 2.5mg/daily. I got some > flack from some people who are, as a rule, anti-meds for kids. My > feeling is that, generally speaking, meds should be a last resort and > everything natural should be tried first, but meds do seem to have a > place, too. > > I was anti-med until I read Temple Grandin's book, Thinking in > Pictures. She talked about how anxiety was ruining her life and was > making her unable to function. It made me think about how everything > in Allie's life seemed to cause her to be unable to function. Within 2 > days of being on paxil she was able to do things that would have > brought 20min+ tantrums, such as walking past the car and not getting > in the car, cause in her mind if we walked past it she HAD to get in > it and go somewhere. It was one thing after another like this with her > every day, and got worse over a 6 mo period, so it wasn't a temporary > fixation, it was rendering her unable to function at anything. Also, > she made huge gains the following 2 years in her program after she > began the med. I think it made her be able to learn cause it was > calming all the " stuff " going on inside her. > > HTH, > Debi > > > > What meds do your children with autism take and why? My dd is 4 and > not presently taking any medications but I'm wondering if this is what > our future holds as more symptoms may come up. Thanks > > Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2005 Report Share Posted July 22, 2005 --- Debi wrote: > We decided to try paxil for severe OCD/anxiety type > issues. But I do > want to say that we did this after we tried the diet > for 9 mos, after > various supps, and after 14 mos of speech/OT/ABA. It > worked wonders > for her, she had just turned 3 when we began, > 2.5mg/daily. I got some > flack from some people who are, as a rule, anti-meds > for kids. My > feeling is that, generally speaking, meds should be > a last resort and > everything natural should be tried first, but meds > do seem to have a > place, too. > > I was anti-med until I read Temple Grandin's book, > Thinking in > Pictures. She talked about how anxiety was ruining > her life and was > making her unable to function. It made me think > about how everything > in Allie's life seemed to cause her to be unable to > function. Within 2 > days of being on paxil she was able to do things > that would have > brought 20min+ tantrums, such as walking past the > car and not getting > in the car, cause in her mind if we walked past it > she HAD to get in > it and go somewhere. It was one thing after another > like this with her > every day, and got worse over a 6 mo period, so it > wasn't a temporary > fixation, it was rendering her unable to function at > anything. Also, > she made huge gains the following 2 years in her > program after she > began the med. I think it made her be able to learn > cause it was > calming all the " stuff " going on inside her. > > HTH, > Debi > > > > What meds do your children with autism take and > why? My dd is 4 and > not presently taking any medications but I'm > wondering if this is what > our future holds as more symptoms may come up. > Thanks > > Jen > > Deae Debi, Our feelings exactly with ! We viewed " meds " as a last resort, but when she was approaching 10 yrs, I was told they would help her focus, and deal with all the anxieties. Still reluctant, I was praying so hard, and happened to pick up Temple's book again, that I'd read long before. The part about her describing how meds helped her deal with the overwhelming anxieties jumped out at me! did well for a long while on Risperdal. Now, though, we've had her out of school for four months, due to extreme 'sound sensitivities'. It's been horrendous. We've had blood checked for Diabetes, as Risperdal can cause type 2 onset, also yeast overgrowth and hidden food allergies, in case she might be suffering from headaches, as a cause. This 'sound sentivity' seems to come on each Winter after antibiotics due to Sinus allergies. Haven't gotten all the test results back yet. Sorry to carry on...I wondered if you thought it might just be that it's the meds that need tweaking again-causing the anxieties that make her so much more sensitive to sound? Has Allie had any changes in her meds? Any thoughts would be greatly appreciated! Thanks ahead of time. Warm wishes, Joan-'s mom > > > ____________________________________________________ Start your day with Yahoo! - make it your home page http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2005 Report Share Posted July 22, 2005 --- Debi wrote: > We decided to try paxil for severe OCD/anxiety type > issues. But I do > want to say that we did this after we tried the diet > for 9 mos, after > various supps, and after 14 mos of speech/OT/ABA. It > worked wonders > for her, she had just turned 3 when we began, > 2.5mg/daily. I got some > flack from some people who are, as a rule, anti-meds > for kids. My > feeling is that, generally speaking, meds should be > a last resort and > everything natural should be tried first, but meds > do seem to have a > place, too. > > I was anti-med until I read Temple Grandin's book, > Thinking in > Pictures. She talked about how anxiety was ruining > her life and was > making her unable to function. It made me think > about how everything > in Allie's life seemed to cause her to be unable to > function. Within 2 > days of being on paxil she was able to do things > that would have > brought 20min+ tantrums, such as walking past the > car and not getting > in the car, cause in her mind if we walked past it > she HAD to get in > it and go somewhere. It was one thing after another > like this with her > every day, and got worse over a 6 mo period, so it > wasn't a temporary > fixation, it was rendering her unable to function at > anything. Also, > she made huge gains the following 2 years in her > program after she > began the med. I think it made her be able to learn > cause it was > calming all the " stuff " going on inside her. > > HTH, > Debi > > > > What meds do your children with autism take and > why? My dd is 4 and > not presently taking any medications but I'm > wondering if this is what > our future holds as more symptoms may come up. > Thanks > > Jen > > Deae Debi, Our feelings exactly with ! We viewed " meds " as a last resort, but when she was approaching 10 yrs, I was told they would help her focus, and deal with all the anxieties. Still reluctant, I was praying so hard, and happened to pick up Temple's book again, that I'd read long before. The part about her describing how meds helped her deal with the overwhelming anxieties jumped out at me! did well for a long while on Risperdal. Now, though, we've had her out of school for four months, due to extreme 'sound sensitivities'. It's been horrendous. We've had blood checked for Diabetes, as Risperdal can cause type 2 onset, also yeast overgrowth and hidden food allergies, in case she might be suffering from headaches, as a cause. This 'sound sentivity' seems to come on each Winter after antibiotics due to Sinus allergies. Haven't gotten all the test results back yet. Sorry to carry on...I wondered if you thought it might just be that it's the meds that need tweaking again-causing the anxieties that make her so much more sensitive to sound? Has Allie had any changes in her meds? Any thoughts would be greatly appreciated! Thanks ahead of time. Warm wishes, Joan-'s mom > > > ____________________________________________________ Start your day with Yahoo! - make it your home page http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2005 Report Share Posted July 22, 2005 --- Debi wrote: > We decided to try paxil for severe OCD/anxiety type > issues. But I do > want to say that we did this after we tried the diet > for 9 mos, after > various supps, and after 14 mos of speech/OT/ABA. It > worked wonders > for her, she had just turned 3 when we began, > 2.5mg/daily. I got some > flack from some people who are, as a rule, anti-meds > for kids. My > feeling is that, generally speaking, meds should be > a last resort and > everything natural should be tried first, but meds > do seem to have a > place, too. > > I was anti-med until I read Temple Grandin's book, > Thinking in > Pictures. She talked about how anxiety was ruining > her life and was > making her unable to function. It made me think > about how everything > in Allie's life seemed to cause her to be unable to > function. Within 2 > days of being on paxil she was able to do things > that would have > brought 20min+ tantrums, such as walking past the > car and not getting > in the car, cause in her mind if we walked past it > she HAD to get in > it and go somewhere. It was one thing after another > like this with her > every day, and got worse over a 6 mo period, so it > wasn't a temporary > fixation, it was rendering her unable to function at > anything. Also, > she made huge gains the following 2 years in her > program after she > began the med. I think it made her be able to learn > cause it was > calming all the " stuff " going on inside her. > > HTH, > Debi > > > > What meds do your children with autism take and > why? My dd is 4 and > not presently taking any medications but I'm > wondering if this is what > our future holds as more symptoms may come up. > Thanks > > Jen > > Deae Debi, Our feelings exactly with ! We viewed " meds " as a last resort, but when she was approaching 10 yrs, I was told they would help her focus, and deal with all the anxieties. Still reluctant, I was praying so hard, and happened to pick up Temple's book again, that I'd read long before. The part about her describing how meds helped her deal with the overwhelming anxieties jumped out at me! did well for a long while on Risperdal. Now, though, we've had her out of school for four months, due to extreme 'sound sensitivities'. It's been horrendous. We've had blood checked for Diabetes, as Risperdal can cause type 2 onset, also yeast overgrowth and hidden food allergies, in case she might be suffering from headaches, as a cause. This 'sound sentivity' seems to come on each Winter after antibiotics due to Sinus allergies. Haven't gotten all the test results back yet. Sorry to carry on...I wondered if you thought it might just be that it's the meds that need tweaking again-causing the anxieties that make her so much more sensitive to sound? Has Allie had any changes in her meds? Any thoughts would be greatly appreciated! Thanks ahead of time. Warm wishes, Joan-'s mom > > > ____________________________________________________ Start your day with Yahoo! - make it your home page http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2005 Report Share Posted July 22, 2005 Oh yeah, very familiar. Let me tell you something I've learned about Allie. I try to *never* give in when she's tantruming about something, such as wanting me to buy something for her. The reason is for Allie, she learns so fast that tantruming will get her way. It's so hard with our kids because oftentimes tantruming is the way to show their needs because they don't know how to communicate it. one thing Allie's 3 yr old teacher had great success with are token systems. One boy she told me about felt every time the teacher called on him that he *had* to give the answer, stating he knew she would never, ever call on him if he didn't always answer. They make a token system with 3 tokens that said, " I " " can " " wait " . Every time the teacher called on someone else she would give him a token in order. After he had all 3 he knew the next question would be his. Within 2 weeks he had said, " I don't need that anymore, I can wait. " Perhaps a similar system of some kind could help? I'm also wondering if she's wanting sticks and gloves and socks if the OT needs to be targeting tactile hand stuff for her? I can relate to that, I'm VERY sensitive with my hands, lol. How does she do with playdoh? Ever do any brushing on her hands or compressions with her hands between yours and firmly pushing? HTH, Debi > Thanks that's what I was wondering... nna's complusions aren't for the day to day daily living skills yet still interfere with her routine... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2005 Report Share Posted July 22, 2005 Oh yeah, very familiar. Let me tell you something I've learned about Allie. I try to *never* give in when she's tantruming about something, such as wanting me to buy something for her. The reason is for Allie, she learns so fast that tantruming will get her way. It's so hard with our kids because oftentimes tantruming is the way to show their needs because they don't know how to communicate it. one thing Allie's 3 yr old teacher had great success with are token systems. One boy she told me about felt every time the teacher called on him that he *had* to give the answer, stating he knew she would never, ever call on him if he didn't always answer. They make a token system with 3 tokens that said, " I " " can " " wait " . Every time the teacher called on someone else she would give him a token in order. After he had all 3 he knew the next question would be his. Within 2 weeks he had said, " I don't need that anymore, I can wait. " Perhaps a similar system of some kind could help? I'm also wondering if she's wanting sticks and gloves and socks if the OT needs to be targeting tactile hand stuff for her? I can relate to that, I'm VERY sensitive with my hands, lol. How does she do with playdoh? Ever do any brushing on her hands or compressions with her hands between yours and firmly pushing? HTH, Debi > Thanks that's what I was wondering... nna's complusions aren't for the day to day daily living skills yet still interfere with her routine... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2005 Report Share Posted July 22, 2005 Oh yeah, very familiar. Let me tell you something I've learned about Allie. I try to *never* give in when she's tantruming about something, such as wanting me to buy something for her. The reason is for Allie, she learns so fast that tantruming will get her way. It's so hard with our kids because oftentimes tantruming is the way to show their needs because they don't know how to communicate it. one thing Allie's 3 yr old teacher had great success with are token systems. One boy she told me about felt every time the teacher called on him that he *had* to give the answer, stating he knew she would never, ever call on him if he didn't always answer. They make a token system with 3 tokens that said, " I " " can " " wait " . Every time the teacher called on someone else she would give him a token in order. After he had all 3 he knew the next question would be his. Within 2 weeks he had said, " I don't need that anymore, I can wait. " Perhaps a similar system of some kind could help? I'm also wondering if she's wanting sticks and gloves and socks if the OT needs to be targeting tactile hand stuff for her? I can relate to that, I'm VERY sensitive with my hands, lol. How does she do with playdoh? Ever do any brushing on her hands or compressions with her hands between yours and firmly pushing? HTH, Debi > Thanks that's what I was wondering... nna's complusions aren't for the day to day daily living skills yet still interfere with her routine... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2005 Report Share Posted July 22, 2005 , LOL...my daughter Ella likes to hold straws and now lately cold bottles, like Aquafina or soda. When we go to visit Daddy at starbucks, where he works, I have to watch ella or she will walk right up to someones cup and take their straw out and run! She is known for her straw obsession! She cant pass by one with out noticing...Ive had to learn to drink without one!!! Aimee Sagginario wrote: Thanks that's what I was wondering... nna's complusions aren't for the day to day daily living skills yet still interfere with her routine... She's getting better with having to pick all food off of the ground before moving on to the next piece, but she still can't handle seeing any type of " stick " item and not having it, such as flag, lollipop, umbrella, etc. She had a fit the other day in the store for something else too.. gloves! She loves to put socks and gloves on her hands! I don't know if this is typical child dress up thing or a sensory thing. Anyway, my point is that when she wants something she can't get passed it. In preschool they work through it but thats for 2 and 1/2 hours. I'm worried about kindergarten next year (Sept 06) being a full day. How will she handle the flag in the classroom or will she get passed it? I don't want the kid next to her to have a " flower pencil " and her flip out and not be able to move on. Another thing is when she's engaged in something she loves, like swimming... today we are going to my g/f's to swim. I know that we have to eat lunch first b/c once she's in that pool it will be torture to get her out. I'll have to bribe her and then just demand it and make her cry. What do you think?? sound familiar to anyone?? thanks Jen From: Debi To: Autism_in_Girls Sent: Friday, July 22, 2005 1:34 AM Subject: Re: meds We decided to try paxil for severe OCD/anxiety type issues. But I do want to say that we did this after we tried the diet for 9 mos, after various supps, and after 14 mos of speech/OT/ABA. It worked wonders for her, she had just turned 3 when we began, 2.5mg/daily. I got some flack from some people who are, as a rule, anti-meds for kids. My feeling is that, generally speaking, meds should be a last resort and everything natural should be tried first, but meds do seem to have a place, too. I was anti-med until I read Temple Grandin's book, Thinking in Pictures. She talked about how anxiety was ruining her life and was making her unable to function. It made me think about how everything in Allie's life seemed to cause her to be unable to function. Within 2 days of being on paxil she was able to do things that would have brought 20min+ tantrums, such as walking past the car and not getting in the car, cause in her mind if we walked past it she HAD to get in it and go somewhere. It was one thing after another like this with her every day, and got worse over a 6 mo period, so it wasn't a temporary fixation, it was rendering her unable to function at anything. Also, she made huge gains the following 2 years in her program after she began the med. I think it made her be able to learn cause it was calming all the " stuff " going on inside her. HTH, Debi > What meds do your children with autism take and why? My dd is 4 and not presently taking any medications but I'm wondering if this is what our future holds as more symptoms may come up. Thanks > Jen Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2005 Report Share Posted July 22, 2005 , LOL...my daughter Ella likes to hold straws and now lately cold bottles, like Aquafina or soda. When we go to visit Daddy at starbucks, where he works, I have to watch ella or she will walk right up to someones cup and take their straw out and run! She is known for her straw obsession! She cant pass by one with out noticing...Ive had to learn to drink without one!!! Aimee Sagginario wrote: Thanks that's what I was wondering... nna's complusions aren't for the day to day daily living skills yet still interfere with her routine... She's getting better with having to pick all food off of the ground before moving on to the next piece, but she still can't handle seeing any type of " stick " item and not having it, such as flag, lollipop, umbrella, etc. She had a fit the other day in the store for something else too.. gloves! She loves to put socks and gloves on her hands! I don't know if this is typical child dress up thing or a sensory thing. Anyway, my point is that when she wants something she can't get passed it. In preschool they work through it but thats for 2 and 1/2 hours. I'm worried about kindergarten next year (Sept 06) being a full day. How will she handle the flag in the classroom or will she get passed it? I don't want the kid next to her to have a " flower pencil " and her flip out and not be able to move on. Another thing is when she's engaged in something she loves, like swimming... today we are going to my g/f's to swim. I know that we have to eat lunch first b/c once she's in that pool it will be torture to get her out. I'll have to bribe her and then just demand it and make her cry. What do you think?? sound familiar to anyone?? thanks Jen From: Debi To: Autism_in_Girls Sent: Friday, July 22, 2005 1:34 AM Subject: Re: meds We decided to try paxil for severe OCD/anxiety type issues. But I do want to say that we did this after we tried the diet for 9 mos, after various supps, and after 14 mos of speech/OT/ABA. It worked wonders for her, she had just turned 3 when we began, 2.5mg/daily. I got some flack from some people who are, as a rule, anti-meds for kids. My feeling is that, generally speaking, meds should be a last resort and everything natural should be tried first, but meds do seem to have a place, too. I was anti-med until I read Temple Grandin's book, Thinking in Pictures. She talked about how anxiety was ruining her life and was making her unable to function. It made me think about how everything in Allie's life seemed to cause her to be unable to function. Within 2 days of being on paxil she was able to do things that would have brought 20min+ tantrums, such as walking past the car and not getting in the car, cause in her mind if we walked past it she HAD to get in it and go somewhere. It was one thing after another like this with her every day, and got worse over a 6 mo period, so it wasn't a temporary fixation, it was rendering her unable to function at anything. Also, she made huge gains the following 2 years in her program after she began the med. I think it made her be able to learn cause it was calming all the " stuff " going on inside her. HTH, Debi > What meds do your children with autism take and why? My dd is 4 and not presently taking any medications but I'm wondering if this is what our future holds as more symptoms may come up. Thanks > Jen Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2005 Report Share Posted July 22, 2005 If it's as hot where you live as it is here, I don't blame her a bit for wanting something cold to hold!! debi > , > > LOL...my daughter Ella likes to hold straws and now lately cold bottles, like Aquafina or soda. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2005 Report Share Posted July 22, 2005 If it's as hot where you live as it is here, I don't blame her a bit for wanting something cold to hold!! debi > , > > LOL...my daughter Ella likes to hold straws and now lately cold bottles, like Aquafina or soda. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2005 Report Share Posted July 22, 2005 If it's as hot where you live as it is here, I don't blame her a bit for wanting something cold to hold!! debi > , > > LOL...my daughter Ella likes to hold straws and now lately cold bottles, like Aquafina or soda. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2005 Report Share Posted July 22, 2005 California, yep, it's hot, and I'm sure worse for Aimee in So Cal than for me in the north! It's 97 today Amnesty > > , > > > > LOL...my daughter Ella likes to hold straws and now lately cold > bottles, like Aquafina or soda. Quote Link to comment Share on other sites More sharing options...
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