Guest guest Posted May 8, 2005 Report Share Posted May 8, 2005 Hi everybody, this is my first post on this site. I am a type 1a ,contracted it about 27 years ago and diagnosed 2 1/2 years ago and failed in my first 6 month attempt with Peg and rebitron or whatever those pills were. My liver stage was 2 at the time of my diagnosis but now I am starting to feel this disease. I am seeing a doc from stanford at the end of this month and am going to try a different approach with the treatment that is not FDA approved yet but I guess its a study group. I need to do somthing as my viral count is 12.5 million and my AST is 89 and my ALT is 145. The treatment is pretty much the same as before with interferon and the Rebitron pills but instead of the time release its a shot every night.Of course the dose is smaller but yes its a little scary as I went through this once and its no cake walk. I will keep you all posted on the procedure and experience as I find out. Peace to all, .................... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2005 Report Share Posted May 8, 2005 Well chefboy, I hope this time it works,, and yes, keep us posted,, and WELCOME to our little family,, --- chefboy2160 wrote: > Hi everybody, this is my first post on this site. I > am a type > 1a ,contracted it about 27 years ago and diagnosed 2 > 1/2 years ago > and failed in my first 6 month attempt with Peg and > rebitron or > whatever those pills were. My liver stage was 2 at > the time of my > diagnosis but now I am starting to feel this > disease. I am seeing a > doc from stanford at the end of this month and am > going to try a > different approach with the treatment that is not > FDA approved yet but > I guess its a study group. > I need to do somthing as my viral count is 12.5 > million and my > AST is 89 and my ALT is 145. The treatment is pretty > much the same as > before with interferon and the Rebitron pills but > instead of the time > release its a shot every night.Of course the dose is > smaller but yes > its a little scary as I went through this once and > its no cake walk. > I will keep you all posted on the procedure and > experience as I find > out. > Peace to all, .................... > > > > Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2005 Report Share Posted May 9, 2005 Good luck, Doug! Let us know... > Well chefboy, I hope this time it works,, and yes, > keep us posted,, and WELCOME to our little family,, > > --- chefboy2160 wrote: > > Hi everybody, this is my first post on this site. I > > am a type > > 1a ,contracted it about 27 years ago and diagnosed 2 > > 1/2 years ago > > and failed in my first 6 month attempt with Peg and > > rebitron or > > whatever those pills were. My liver stage was 2 at > > the time of my > > diagnosis but now I am starting to feel this > > disease. I am seeing a > > doc from stanford at the end of this month and am > > going to try a > > different approach with the treatment that is not > > FDA approved yet but > > I guess its a study group. > > I need to do somthing as my viral count is 12.5 > > million and my > > AST is 89 and my ALT is 145. The treatment is pretty > > much the same as > > before with interferon and the Rebitron pills but > > instead of the time > > release its a shot every night.Of course the dose is > > smaller but yes > > its a little scary as I went through this once and > > its no cake walk. > > I will keep you all posted on the procedure and > > experience as I find > > out. > > Peace to all, .................... > > > > > > > > > > Jackie > > > > It's a pleasure having you join in our conversations. We hope you have > found the support you need with us. > > If you are using email for your posts, for easy access to our group, just > click the link-- > http://groups.yahoo.com/group/Hepatitis_C_Central/ > > Happy Posting > > > ________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2005 Report Share Posted May 9, 2005 Thanks all,and will keep you posted. ........... --- s wrote: > Good luck, Doug! Let us know... > > > > On 5/8/05, Jackie on > wrote: > > Well chefboy, I hope this time it works,, and > yes, > > keep us posted,, and WELCOME to our little > family,, > > > > --- chefboy2160 wrote: > > > Hi everybody, this is my first post on this > site. I > > > am a type > > > 1a ,contracted it about 27 years ago and > diagnosed 2 > > > 1/2 years ago > > > and failed in my first 6 month attempt with Peg > and > > > rebitron or > > > whatever those pills were. My liver stage was 2 > at > > > the time of my > > > diagnosis but now I am starting to feel this > > > disease. I am seeing a > > > doc from stanford at the end of this month and > am > > > going to try a > > > different approach with the treatment that is > not > > > FDA approved yet but > > > I guess its a study group. > > > I need to do somthing as my viral count is 12.5 > > > million and my > > > AST is 89 and my ALT is 145. The treatment is > pretty > > > much the same as > > > before with interferon and the Rebitron pills > but > > > instead of the time > > > release its a shot every night.Of course the > dose is > > > smaller but yes > > > its a little scary as I went through this once > and > > > its no cake walk. > > > I will keep you all posted on the procedure and > > > experience as I find > > > out. > > > Peace to all, .................... > > > > > > > > > > > > > > > > Jackie > > > > > > > > It's a pleasure having you join in our > conversations. We hope you have > > found the support you need with us. > > > > If you are using email for your posts, for easy > access to our group, just > > click the link-- > > http://groups.yahoo.com/group/Hepatitis_C_Central/ > > > > Happy Posting > > > > > > ________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2005 Report Share Posted May 9, 2005 , Who's your doc? I started to go out to Stanford last year but decided to go with a local Dr in San , as the bureaucracy at Stanford was driving me crazy (gettng approvals, making appts, etc.). But, Stanford is very good, and I know that they do a lot of studies out there. There are two nurses from Stanford who run a HCV support group that meets in Redwood City. You might want to check it out, they meet on the 3rd Thursday of each month, at 7pm. http://www.hepatitis-central.com/hcv/support/ca/redwoodcity.html I've never done a trial so don't know much about them, but here is an article you might want to read: http://www.hcvadvocate.org/community/community_pdf/Clinical_Trials.pdf That is written by Emmet B. Keeffe, MD who is the Chief of Hepatology at Stanford, and Lucinda Porter, who is one of the nurses who runs the support group I mentioned above. You probably already know all this stuff, but if not check it out! Good luck, Ray --- chefboy2160 wrote: --------------------------------- Hi everybody, this is my first post on this site. I am a type 1a ,contracted it about 27 years ago and diagnosed 2 1/2 years ago and failed in my first 6 month attempt with Peg and rebitron or whatever those pills were. My liver stage was 2 at the time of my diagnosis but now I am starting to feel this disease. I am seeing a doc from stanford at the end of this month and am going to try a different approach with the treatment that is not FDA approved yet but I guess its a study group. I need to do somthing as my viral count is 12.5 million and my AST is 89 and my ALT is 145. The treatment is pretty much the same as before with interferon and the Rebitron pills but instead of the time release its a shot every night.Of course the dose is smaller but yes its a little scary as I went through this once and its no cake walk. I will keep you all posted on the procedure and experience as I find out. Peace to all, .................... It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/ Happy Posting --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 I wish you all the luck , and I hope this works for you . I know they have some great doc's at Stanford , there are also some real good ones in San Fransisco . Who is treating you ? Hi from a newbie Hi everybody, this is my first post on this site. I am a type 1a ,contracted it about 27 years ago and diagnosed 2 1/2 years ago and failed in my first 6 month attempt with Peg and rebitron or whatever those pills were. My liver stage was 2 at the time of my diagnosis but now I am starting to feel this disease. I am seeing a doc from stanford at the end of this month and am going to try a different approach with the treatment that is not FDA approved yet but I guess its a study group. I need to do somthing as my viral count is 12.5 million and my AST is 89 and my ALT is 145. The treatment is pretty much the same as before with interferon and the Rebitron pills but instead of the time release its a shot every night.Of course the dose is smaller but yes its a little scary as I went through this once and its no cake walk. I will keep you all posted on the procedure and experience as I find out. Peace to all, .................... It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/ Happy Posting ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 Hi,I did not get the name of the Doc but I know its a girl and my appointment is for June 16. I will post about my appointment and the treatment which should start shortly after and let you all know whats up with this different way.Right now I am trying to get in peak shape for this fight.More later,Doug....................... --- elizabethnv1 wrote: > I wish you all the luck , and I hope this works for > you . I know they have some great doc's at Stanford > , there are also some real good ones in San > Fransisco . Who is treating you ? > Hi from a newbie > > > Hi everybody, this is my first post on this site. > I am a type > 1a ,contracted it about 27 years ago and diagnosed > 2 1/2 years ago > and failed in my first 6 month attempt with Peg > and rebitron or > whatever those pills were. My liver stage was 2 at > the time of my > diagnosis but now I am starting to feel this > disease. I am seeing a > doc from stanford at the end of this month and am > going to try a > different approach with the treatment that is not > FDA approved yet but > I guess its a study group. > I need to do somthing as my viral count is 12.5 > million and my > AST is 89 and my ALT is 145. The treatment is > pretty much the same as > before with interferon and the Rebitron pills but > instead of the time > release its a shot every night.Of course the dose > is smaller but yes > its a little scary as I went through this once and > its no cake walk. > I will keep you all posted on the procedure and > experience as I find > out. > Peace to all, .................... > > > > > > It's a pleasure having you join in our > conversations. We hope you have found the support > you need with us. > > If you are using email for your posts, for easy > access to our group, just click the link-- > http://groups.yahoo.com/group/Hepatitis_C_Central/ > > Happy Posting > > > > ------------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 I'd think twice before going to someone that young!! Good luck, Josh In a message dated 5/14/2005 5:15:37 PM Central Standard Time, chefboy2160@... writes: Hi,I did not get the name of the Doc but I know its a girl and my appointment is for June 16 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 Are you going to be doing the dailey shots of gamma interferon ? or some other daily Hi from a newbie > > > Hi everybody, this is my first post on this site. > I am a type > 1a ,contracted it about 27 years ago and diagnosed > 2 1/2 years ago > and failed in my first 6 month attempt with Peg > and rebitron or > whatever those pills were. My liver stage was 2 at > the time of my > diagnosis but now I am starting to feel this > disease. I am seeing a > doc from stanford at the end of this month and am > going to try a > different approach with the treatment that is not > FDA approved yet but > I guess its a study group. > I need to do somthing as my viral count is 12.5 > million and my > AST is 89 and my ALT is 145. The treatment is > pretty much the same as > before with interferon and the Rebitron pills but > instead of the time > release its a shot every night.Of course the dose > is smaller but yes > its a little scary as I went through this once and > its no cake walk. > I will keep you all posted on the procedure and > experience as I find > out. > Peace to all, .................... > > > > > > It's a pleasure having you join in our > conversations. We hope you have found the support > you need with us. > > If you are using email for your posts, for easy > access to our group, just click the link-- > http://groups.yahoo.com/group/Hepatitis_C_Central/ > > Happy Posting > > > > ------------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
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