Guest guest Posted November 4, 2011 Report Share Posted November 4, 2011 Congrats! You won this one. How sweet it would be to be able to say that myself...but no tumor, so prob no cure. ============================================================================45-Male-Caucasian, 5'9"- 242lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.Meds: 50mg Inspra, 40meq Potassium, 2400mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg OmeprazoleSide effects: Gynecomastia, stomach inflammation (from potassium citrate)Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank PainDASH: Started "sort of" DASHing 5/3/2011Status: Last Urine K/Na ratio was 1.1. But total of Na high alsoInitial Presenting Symptom: Muscle twitching all over body with low normal K, Mg, Ca, Low Ionized Ca, High PTH, low Vitamin DFrom: msmith_1928 To: hyperaldosteronism Sent: Friday, November 4, 2011 2:49 PMSubject: path report and post-op aldo and renin Just back from the endo surgeon visit, where my BP was 128/81. I hadn't realized it but she already tested post-op aldo and renin: Aldo 1.3 (reference range <31) Renin 1.1 (reference range 0.2-1.6) Here's what I thought was relevant from the path report: FINAL DIAGNOSIS: Adrenal gland with a cortical tumor, 0.7cm A microscopic exam has been performed. The specimen... consists of a 10-gram, 7.0 x 4.5 x 0.5cm adrenal gland with attached adipose tissue. The adrenal gland is 5 grams, 4.0 x 2.0 x 0.5cm. On cut surface, there is a 0.7 x 0.7 x 0.7cm well-circumscribed, golden-yellow nodule, which grossly appears to come from the cortex of the specimen. No areas of hemorrhage or necrosis are identified within the nodule. The remainder of the gland has a golden-yellow and dark red cut surface. My endo surgeon dismissed me as "cured." Third doctor in a week to fire me -msmith1928 Nulliparous female, 46, 5'3", 115 lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2011 Report Share Posted November 4, 2011 You make me more and more and more envious :-) I wish I would be 20 years younger :-) You taught me a lot.I really admire you. I read all your postings and cold see the whole progress during such a short time, and how you have it done despite all other opinions. You definitely cured yourself! Good luck. I am sure that with this attitude you will live a long, healthy, and productive life! Natalia From: msmith_1928 To: hyperaldosteronism Sent: Friday, November 4, 2011 2:49 PMSubject: path report and post-op aldo and renin Just back from the endo surgeon visit, where my BP was 128/81. I hadn't realized it but she already tested post-op aldo and renin: Aldo 1.3 (reference range <31) Renin 1.1 (reference range 0.2-1.6) Here's what I thought was relevant from the path report: FINAL DIAGNOSIS: Adrenal gland with a cortical tumor, 0.7cm A microscopic exam has been performed. The specimen... consists of a 10-gram, 7.0 x 4.5 x 0.5cm adrenal gland with attached adipose tissue. The adrenal gland is 5 grams, 4.0 x 2.0 x 0.5cm. On cut surface, there is a 0.7 x 0.7 x 0.7cm well-circumscribed, golden-yellow nodule, which grossly appears to come from the cortex of the specimen. No areas of hemorrhage or necrosis are identified within the nodule. The remainder of the gland has a golden-yellow and dark red cut surface. My endo surgeon dismissed me as "cured." Third doctor in a week to fire me -msmith1928 Nulliparous female, 46, 5'3", 115 lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2011 Report Share Posted November 4, 2011 Thank you, I think I will always worry a bit that HTN will show up again at some point, due to the duration that I had untreated PA (10 years of HTN but PA probably started at least three years earlier when insulin resistance first showed up). The surgeon believes that this is my biggest risk factor, something I really have no control over - that part doesn't sit so well with me, but what can one do. I really hope that as more doctors include screening for PA in their HTN workups, as my PCP has vowed to do, the demand for better, less invasive, and more accessible tests will grow. Then maybe you folks without visible tumors will have an option other than AVS that will tell you clearly what's going on and provide more options for treatment. > > Congrats! You won this one. How sweet it would be to be able to say that myself...but no tumor, so prob no cure. > > ============================================================================ > 45-Male-Caucasian, 5'9 " - 242lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS. > Meds: 50mg Inspra, 40meq Potassium, 2400mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg Omeprazole > Side effects: Gynecomastia, stomach inflammation (from potassium citrate) > Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank PainDASH: Started " sort of " DASHing 5/3/2011 > Status: Last Urine K/Na ratio was 1.1. But total of Na high also > Initial Presenting Symptom: Muscle twitching all over body with low normal K, Mg, Ca, Low Ionized Ca, High PTH, low Vitamin D > > > >________________________________ > > > >To: hyperaldosteronism > >Sent: Friday, November 4, 2011 2:49 PM > >Subject: path report and post-op aldo and renin > > > > > > > > > > > >Just back from the endo surgeon visit, where my BP was 128/81. I hadn't realized it but she already tested post-op aldo and renin: > > > >Aldo 1.3 (reference range <31) > >Renin 1.1 (reference range 0.2-1.6) > > > >Here's what I thought was relevant from the path report: > > > >FINAL DIAGNOSIS: > >Adrenal gland with a cortical tumor, 0.7cm > > > >A microscopic exam has been performed. The specimen... consists of a 10-gram, 7.0 x 4.5 x 0.5cm adrenal gland with attached adipose tissue. The adrenal gland is 5 grams, 4.0 x 2.0 x 0.5cm. On cut surface, there is a 0.7 x 0.7 x 0.7cm well-circumscribed, golden-yellow nodule, which grossly appears to come from the cortex of the specimen. No areas of hemorrhage or necrosis are identified within the nodule. The remainder of the gland has a golden-yellow and dark red cut surface. > > > >My endo surgeon dismissed me as " cured. " Third doctor in a week to fire me > > > >-msmith1928 > >Nulliparous female, 46, 5'3 " , 115 lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac). > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2011 Report Share Posted November 4, 2011 Thank you, Natalia I really hope that people can learn from my experience and that my story can help others decide what is right for them. > > You make me more and more and more envious :-) I wish I would be 20 years younger :-) You taught me a lot. > > I really admire you. I read all your postings and cold see the whole progress during such a short time, and how you have it done despite all other opinions. You definitely cured yourself! Good luck. > > > I am sure that with this attitude you will live a long, healthy, and productive life! > > Â > Natalia > > > ________________________________ > > To: hyperaldosteronism > Sent: Friday, November 4, 2011 2:49 PM > Subject: path report and post-op aldo and renin > > > Â > Just back from the endo surgeon visit, where my BP was 128/81. I hadn't realized it but she already tested post-op aldo and renin: > > Aldo 1.3 (reference range <31) > Renin 1.1 (reference range 0.2-1.6) > > Here's what I thought was relevant from the path report: > > FINAL DIAGNOSIS: > Adrenal gland with a cortical tumor, 0.7cm > > A microscopic exam has been performed. The specimen... consists of a 10-gram, 7.0 x 4.5 x 0.5cm adrenal gland with attached adipose tissue. The adrenal gland is 5 grams, 4.0 x 2.0 x 0.5cm. On cut surface, there is a 0.7 x 0.7 x 0.7cm well-circumscribed, golden-yellow nodule, which grossly appears to come from the cortex of the specimen. No areas of hemorrhage or necrosis are identified within the nodule. The remainder of the gland has a golden-yellow and dark red cut surface. > > My endo surgeon dismissed me as " cured. " Third doctor in a week to fire me > > -msmith1928 > Nulliparous female, 46, 5'3 " , 115 lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac). > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2011 Report Share Posted November 5, 2011 Let's worry when we get there. Enjoy the new freedom and work on living healthy no matter what so maybe the combination of healthy living, the surgery, and luck will stave off the HTN even in old age. We're a little bit jealous - I am - but nothing but happy for you too! Think positive. Maybe it's conquered! Subject: Re: path report and post-op aldo and reninTo: hyperaldosteronism Date: Friday, November 4, 2011, 7:29 PM Thank you, I think I will always worry a bit that HTN will show up again at some point, due to the duration that I had untreated PA (10 years of HTN but PA probably started at least three years earlier when insulin resistance first showed up). The surgeon believes that this is my biggest risk factor, something I really have no control over - that part doesn't sit so well with me, but what can one do.I really hope that as more doctors include screening for PA in their HTN workups, as my PCP has vowed to do, the demand for better, less invasive, and more accessible tests will grow. Then maybe you folks without visible tumors will have an option other than AVS that will tell you clearly what's going on and provide more options for treatment.>> Congrats! You won this one. How sweet it would be to be able to say that myself...but no tumor, so prob no cure.> > ============================================================================> 45-Male-Caucasian, 5'9"- 242lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.> Meds: 50mg Inspra, 40meq Potassium, 2400mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg Omeprazole> Side effects: Gynecomastia, stomach inflammation (from potassium citrate)> Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank PainDASH: Started "sort of" DASHing 5/3/2011> Status: Last Urine K/Na ratio was 1.1. But total of Na high also> Initial Presenting Symptom: Muscle twitching all over body with low normal K, Mg, Ca, Low Ionized Ca, High PTH, low Vitamin D> > > >________________________________> >> >To: hyperaldosteronism > >Sent: Friday, November 4, 2011 2:49 PM> >Subject: path report and post-op aldo and renin> >> >> > > > > > > >Just back from the endo surgeon visit, where my BP was 128/81. I hadn't realized it but she already tested post-op aldo and renin:> >> >Aldo 1.3 (reference range <31)> >Renin 1.1 (reference range 0.2-1.6)> >> >Here's what I thought was relevant from the path report:> >> >FINAL DIAGNOSIS:> >Adrenal gland with a cortical tumor, 0.7cm> >> >A microscopic exam has been performed. The specimen... consists of a 10-gram, 7.0 x 4.5 x 0.5cm adrenal gland with attached adipose tissue. The adrenal gland is 5 grams, 4.0 x 2.0 x 0.5cm. On cut surface, there is a 0.7 x 0.7 x 0.7cm well-circumscribed, golden-yellow nodule, which grossly appears to come from the cortex of the specimen. No areas of hemorrhage or necrosis are identified within the nodule. The remainder of the gland has a golden-yellow and dark red cut surface. > >> >My endo surgeon dismissed me as "cured." Third doctor in a week to fire me > >> >-msmith1928> >Nulliparous female, 46, 5'3", 115 lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac).> >> > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2011 Report Share Posted November 5, 2011 Great time will tell. Keep us posted. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension Congrats! You won this one. How sweet it would be to be able to say that myself...but no tumor, so prob no cure. ============================================================================45-Male-Caucasian, 5'9"- 242lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.Meds: 50mg Inspra, 40meq Potassium, 2400mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg OmeprazoleSide effects: Gynecomastia, stomach inflammation (from potassium citrate)Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank PainDASH: Started "sort of" DASHing 5/3/2011Status: Last Urine K/Na ratio was 1.1. But total of Na high alsoInitial Presenting Symptom: Muscle twitching all over body with low normal K, Mg, Ca, Low Ionized Ca, High PTH, low Vitamin DFrom: msmith_1928 To: hyperaldosteronism Sent: Friday, November 4, 2011 2:49 PMSubject: path report and post-op aldo and renin Just back from the endo surgeon visit, where my BP was 128/81. I hadn't realized it but she already tested post-op aldo and renin: Aldo 1.3 (reference range <31) Renin 1.1 (reference range 0.2-1.6) Here's what I thought was relevant from the path report: FINAL DIAGNOSIS: Adrenal gland with a cortical tumor, 0.7cm A microscopic exam has been performed. The specimen... consists of a 10-gram, 7.0 x 4.5 x 0.5cm adrenal gland with attached adipose tissue. The adrenal gland is 5 grams, 4.0 x 2.0 x 0.5cm. On cut surface, there is a 0.7 x 0.7 x 0.7cm well-circumscribed, golden-yellow nodule, which grossly appears to come from the cortex of the specimen. No areas of hemorrhage or necrosis are identified within the nodule. The remainder of the gland has a golden-yellow and dark red cut surface. My endo surgeon dismissed me as "cured." Third doctor in a week to fire me -msmith1928 Nulliparous female, 46, 5'3", 115 lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2011 Report Share Posted November 5, 2011 Insulin resistance has likely gone with K correction. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension Thank you, I think I will always worry a bit that HTN will show up again at some point, due to the duration that I had untreated PA (10 years of HTN but PA probably started at least three years earlier when insulin resistance first showed up). The surgeon believes that this is my biggest risk factor, something I really have no control over - that part doesn't sit so well with me, but what can one do. I really hope that as more doctors include screening for PA in their HTN workups, as my PCP has vowed to do, the demand for better, less invasive, and more accessible tests will grow. Then maybe you folks without visible tumors will have an option other than AVS that will tell you clearly what's going on and provide more options for treatment. > > Congrats! You won this one. How sweet it would be to be able to say that myself...but no tumor, so prob no cure. > > ============================================================================ > 45-Male-Caucasian, 5'9"- 242lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS. > Meds: 50mg Inspra, 40meq Potassium, 2400mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg Omeprazole > Side effects: Gynecomastia, stomach inflammation (from potassium citrate) > Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank PainDASH: Started "sort of" DASHing 5/3/2011 > Status: Last Urine K/Na ratio was 1.1. But total of Na high also > Initial Presenting Symptom: Muscle twitching all over body with low normal K, Mg, Ca, Low Ionized Ca, High PTH, low Vitamin D > > > >________________________________ > > > >To: hyperaldosteronism > >Sent: Friday, November 4, 2011 2:49 PM > >Subject: path report and post-op aldo and renin > > > > > > > > > > > >Just back from the endo surgeon visit, where my BP was 128/81. I hadn't realized it but she already tested post-op aldo and renin: > > > >Aldo 1.3 (reference range <31) > >Renin 1.1 (reference range 0.2-1.6) > > > >Here's what I thought was relevant from the path report: > > > >FINAL DIAGNOSIS: > >Adrenal gland with a cortical tumor, 0.7cm > > > >A microscopic exam has been performed. The specimen... consists of a 10-gram, 7.0 x 4.5 x 0.5cm adrenal gland with attached adipose tissue. The adrenal gland is 5 grams, 4.0 x 2.0 x 0.5cm. On cut surface, there is a 0.7 x 0.7 x 0.7cm well-circumscribed, golden-yellow nodule, which grossly appears to come from the cortex of the specimen. No areas of hemorrhage or necrosis are identified within the nodule. The remainder of the gland has a golden-yellow and dark red cut surface. > > > >My endo surgeon dismissed me as "cured." Third doctor in a week to fire me > > > >-msmith1928 > >Nulliparous female, 46, 5'3", 115 lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac). > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2011 Report Share Posted November 5, 2011 I would get a complete path report if u did not. I always like to look at the path slides myself as many are not trained to look at rest of gland carefully. You might ask if they would send me pictures if they have any. Some will even send slides and I will return. You can refer them to the articles in my CV with the name Longo D. He is now a coeditor for the NEJM and was director of the Nat Instit of Aging score that. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension Thank you, I think I will always worry a bit that HTN will show up again at some point, due to the duration that I had untreated PA (10 years of HTN but PA probably started at least three years earlier when insulin resistance first showed up). The surgeon believes that this is my biggest risk factor, something I really have no control over - that part doesn't sit so well with me, but what can one do. I really hope that as more doctors include screening for PA in their HTN workups, as my PCP has vowed to do, the demand for better, less invasive, and more accessible tests will grow. Then maybe you folks without visible tumors will have an option other than AVS that will tell you clearly what's going on and provide more options for treatment. > > Congrats! You won this one. How sweet it would be to be able to say that myself...but no tumor, so prob no cure. > > ============================================================================ > 45-Male-Caucasian, 5'9"- 242lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS. > Meds: 50mg Inspra, 40meq Potassium, 2400mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg Omeprazole > Side effects: Gynecomastia, stomach inflammation (from potassium citrate) > Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank PainDASH: Started "sort of" DASHing 5/3/2011 > Status: Last Urine K/Na ratio was 1.1. But total of Na high also > Initial Presenting Symptom: Muscle twitching all over body with low normal K, Mg, Ca, Low Ionized Ca, High PTH, low Vitamin D > > > >________________________________ > > > >To: hyperaldosteronism > >Sent: Friday, November 4, 2011 2:49 PM > >Subject: path report and post-op aldo and renin > > > > > > > > > > > >Just back from the endo surgeon visit, where my BP was 128/81. I hadn't realized it but she already tested post-op aldo and renin: > > > >Aldo 1.3 (reference range <31) > >Renin 1.1 (reference range 0.2-1.6) > > > >Here's what I thought was relevant from the path report: > > > >FINAL DIAGNOSIS: > >Adrenal gland with a cortical tumor, 0.7cm > > > >A microscopic exam has been performed. The specimen... consists of a 10-gram, 7.0 x 4.5 x 0.5cm adrenal gland with attached adipose tissue. The adrenal gland is 5 grams, 4.0 x 2.0 x 0.5cm. On cut surface, there is a 0.7 x 0.7 x 0.7cm well-circumscribed, golden-yellow nodule, which grossly appears to come from the cortex of the specimen. No areas of hemorrhage or necrosis are identified within the nodule. The remainder of the gland has a golden-yellow and dark red cut surface. > > > >My endo surgeon dismissed me as "cured." Third doctor in a week to fire me > > > >-msmith1928 > >Nulliparous female, 46, 5'3", 115 lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac). > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2011 Report Share Posted November 5, 2011 Yeah! I've been watching your progress reports and it's great to see a thumbs up each time! H > > Just back from the endo surgeon visit, where my BP was 128/81. I hadn't realized it but she already tested post-op aldo and renin: > > Aldo 1.3 (reference range <31) > Renin 1.1 (reference range 0.2-1.6) > > Here's what I thought was relevant from the path report: > > FINAL DIAGNOSIS: > Adrenal gland with a cortical tumor, 0.7cm > > A microscopic exam has been performed. The specimen... consists of a 10-gram, 7.0 x 4.5 x 0.5cm adrenal gland with attached adipose tissue. The adrenal gland is 5 grams, 4.0 x 2.0 x 0.5cm. On cut surface, there is a 0.7 x 0.7 x 0.7cm well-circumscribed, golden-yellow nodule, which grossly appears to come from the cortex of the specimen. No areas of hemorrhage or necrosis are identified within the nodule. The remainder of the gland has a golden-yellow and dark red cut surface. > > My endo surgeon dismissed me as " cured. " Third doctor in a week to fire me > > -msmith1928 > Nulliparous female, 46, 5'3 " , 115 lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac). > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2011 Report Share Posted November 5, 2011 The low also is very reassuring. Bet u are home free!May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension Yeah! I've been watching your progress reports and it's great to see a thumbs up each time! H > > Just back from the endo surgeon visit, where my BP was 128/81. I hadn't realized it but she already tested post-op aldo and renin: > > Aldo 1.3 (reference range <31) > Renin 1.1 (reference range 0.2-1.6) > > Here's what I thought was relevant from the path report: > > FINAL DIAGNOSIS: > Adrenal gland with a cortical tumor, 0.7cm > > A microscopic exam has been performed. The specimen... consists of a 10-gram, 7.0 x 4.5 x 0.5cm adrenal gland with attached adipose tissue. The adrenal gland is 5 grams, 4.0 x 2.0 x 0.5cm. On cut surface, there is a 0.7 x 0.7 x 0.7cm well-circumscribed, golden-yellow nodule, which grossly appears to come from the cortex of the specimen. No areas of hemorrhage or necrosis are identified within the nodule. The remainder of the gland has a golden-yellow and dark red cut surface. > > My endo surgeon dismissed me as "cured." Third doctor in a week to fire me > > -msmith1928 > Nulliparous female, 46, 5'3", 115 lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac). > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2011 Report Share Posted November 5, 2011 Thanks Dr. G! Quite a difference from 42.5, which IIRC was my first aldo results when I had only been off of CCBs/ARBs for a couple of weeks. > > > > > > Just back from the endo surgeon visit, where my BP was 128/81. I hadn't realized it but she already tested post-op aldo and renin: > > > > > > Aldo 1.3 (reference range <31) > > > Renin 1.1 (reference range 0.2-1.6) > > > > > > Here's what I thought was relevant from the path report: > > > > > > FINAL DIAGNOSIS: > > > Adrenal gland with a cortical tumor, 0.7cm > > > > > > A microscopic exam has been performed. The specimen... consists of a 10-gram, 7.0 x 4.5 x 0.5cm adrenal gland with attached adipose tissue. The adrenal gland is 5 grams, 4.0 x 2.0 x 0.5cm. On cut surface, there is a 0.7 x 0.7 x 0.7cm well-circumscribed, golden-yellow nodule, which grossly appears to come from the cortex of the specimen. No areas of hemorrhage or necrosis are identified within the nodule. The remainder of the gland has a golden-yellow and dark red cut surface. > > > > > > My endo surgeon dismissed me as " cured. " Third doctor in a week to fire me > > > > > > -msmith1928 > > > Nulliparous female, 46, 5'3 " , 115 lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac). > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2011 Report Share Posted November 5, 2011 Thanks for the thumbs-up, Hester And, wow - your incisions sound tiny in comparison - the one that gave me the most trouble is 1.5 inches (and the only one that still hurts a bit). Still I'm amazed at how quickly (and neatly) mine have healed. > > > > Just back from the endo surgeon visit, where my BP was 128/81. I hadn't realized it but she already tested post-op aldo and renin: > > > > Aldo 1.3 (reference range <31) > > Renin 1.1 (reference range 0.2-1.6) > > > > Here's what I thought was relevant from the path report: > > > > FINAL DIAGNOSIS: > > Adrenal gland with a cortical tumor, 0.7cm > > > > A microscopic exam has been performed. The specimen... consists of a 10-gram, 7.0 x 4.5 x 0.5cm adrenal gland with attached adipose tissue. The adrenal gland is 5 grams, 4.0 x 2.0 x 0.5cm. On cut surface, there is a 0.7 x 0.7 x 0.7cm well-circumscribed, golden-yellow nodule, which grossly appears to come from the cortex of the specimen. No areas of hemorrhage or necrosis are identified within the nodule. The remainder of the gland has a golden-yellow and dark red cut surface. > > > > My endo surgeon dismissed me as " cured. " Third doctor in a week to fire me > > > > -msmith1928 > > Nulliparous female, 46, 5'3 " , 115 lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac). > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2011 Report Share Posted November 5, 2011 I sure hope so, although I'm not sure how best to find out. C-peptide test? Or should I even bother? Before my IR diagnosis starchy foods would make me so hypoglycemic that I passed out at work after lunch on numerous occasions - so theoretically a beans-and-rice lunch would be one way to test, but I'm not sure I want to go there > > > > > > Congrats! You won this one. How sweet it would be to be able to say that myself...but no tumor, so prob no cure. > > > > > > ============================================================================ > > > 45-Male-Caucasian, 5'9 " - 242lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS. > > > Meds: 50mg Inspra, 40meq Potassium, 2400mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg Omeprazole > > > Side effects: Gynecomastia, stomach inflammation (from potassium citrate) > > > Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank PainDASH: Started " sort of " DASHing 5/3/2011 > > > Status: Last Urine K/Na ratio was 1.1. But total of Na high also > > > Initial Presenting Symptom: Muscle twitching all over body with low normal K, Mg, Ca, Low Ionized Ca, High PTH, low Vitamin D > > > > > > > > > >________________________________ > > > >From: msmith_1928 <janeray1940@> > > > >To: hyperaldosteronism > > > >Sent: Friday, November 4, 2011 2:49 PM > > > >Subject: path report and post-op aldo and renin > > > > > > > > > > > > > > > > > > > > > > > >Just back from the endo surgeon visit, where my BP was 128/81. I hadn't realized it but she already tested post-op aldo and renin: > > > > > > > >Aldo 1.3 (reference range <31) > > > >Renin 1.1 (reference range 0.2-1.6) > > > > > > > >Here's what I thought was relevant from the path report: > > > > > > > >FINAL DIAGNOSIS: > > > >Adrenal gland with a cortical tumor, 0.7cm > > > > > > > >A microscopic exam has been performed. The specimen... consists of a 10-gram, 7.0 x 4.5 x 0.5cm adrenal gland with attached adipose tissue. The adrenal gland is 5 grams, 4.0 x 2.0 x 0.5cm. On cut surface, there is a 0.7 x 0.7 x 0.7cm well-circumscribed, golden-yellow nodule, which grossly appears to come from the cortex of the specimen. No areas of hemorrhage or necrosis are identified within the nodule. The remainder of the gland has a golden-yellow and dark red cut surface. > > > > > > > >My endo surgeon dismissed me as " cured. " Third doctor in a week to fire me > > > > > > > >-msmith1928 > > > >Nulliparous female, 46, 5'3 " , 115 lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac). > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2011 Report Share Posted November 5, 2011 The body is amazing. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension Thanks for the thumbs-up, Hester And, wow - your incisions sound tiny in comparison - the one that gave me the most trouble is 1.5 inches (and the only one that still hurts a bit). Still I'm amazed at how quickly (and neatly) mine have healed. > > > > Just back from the endo surgeon visit, where my BP was 128/81. I hadn't realized it but she already tested post-op aldo and renin: > > > > Aldo 1.3 (reference range <31) > > Renin 1.1 (reference range 0.2-1.6) > > > > Here's what I thought was relevant from the path report: > > > > FINAL DIAGNOSIS: > > Adrenal gland with a cortical tumor, 0.7cm > > > > A microscopic exam has been performed. The specimen... consists of a 10-gram, 7.0 x 4.5 x 0.5cm adrenal gland with attached adipose tissue. The adrenal gland is 5 grams, 4.0 x 2.0 x 0.5cm. On cut surface, there is a 0.7 x 0.7 x 0.7cm well-circumscribed, golden-yellow nodule, which grossly appears to come from the cortex of the specimen. No areas of hemorrhage or necrosis are identified within the nodule. The remainder of the gland has a golden-yellow and dark red cut surface. > > > > My endo surgeon dismissed me as "cured." Third doctor in a week to fire me > > > > -msmith1928 > > Nulliparous female, 46, 5'3", 115 lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac). > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2011 Report Share Posted November 5, 2011 IR should not cause hypoglycemia but hyper glycemia. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension I sure hope so, although I'm not sure how best to find out. C-peptide test? Or should I even bother? Before my IR diagnosis starchy foods would make me so hypoglycemic that I passed out at work after lunch on numerous occasions - so theoretically a beans-and-rice lunch would be one way to test, but I'm not sure I want to go there > > > > > > Congrats! You won this one. How sweet it would be to be able to say that myself...but no tumor, so prob no cure. > > > > > > ============================================================================ > > > 45-Male-Caucasian, 5'9"- 242lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS. > > > Meds: 50mg Inspra, 40meq Potassium, 2400mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg Omeprazole > > > Side effects: Gynecomastia, stomach inflammation (from potassium citrate) > > > Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank PainDASH: Started "sort of" DASHing 5/3/2011 > > > Status: Last Urine K/Na ratio was 1.1. But total of Na high also > > > Initial Presenting Symptom: Muscle twitching all over body with low normal K, Mg, Ca, Low Ionized Ca, High PTH, low Vitamin D > > > > > > > > > >________________________________ > > > >From: msmith_1928 <janeray1940@> > > > >To: hyperaldosteronism > > > >Sent: Friday, November 4, 2011 2:49 PM > > > >Subject: path report and post-op aldo and renin > > > > > > > > > > > > > > > > > > > > > > > >Just back from the endo surgeon visit, where my BP was 128/81. I hadn't realized it but she already tested post-op aldo and renin: > > > > > > > >Aldo 1.3 (reference range <31) > > > >Renin 1.1 (reference range 0.2-1.6) > > > > > > > >Here's what I thought was relevant from the path report: > > > > > > > >FINAL DIAGNOSIS: > > > >Adrenal gland with a cortical tumor, 0.7cm > > > > > > > >A microscopic exam has been performed. The specimen... consists of a 10-gram, 7.0 x 4.5 x 0.5cm adrenal gland with attached adipose tissue. The adrenal gland is 5 grams, 4.0 x 2.0 x 0.5cm. On cut surface, there is a 0.7 x 0.7 x 0.7cm well-circumscribed, golden-yellow nodule, which grossly appears to come from the cortex of the specimen. No areas of hemorrhage or necrosis are identified within the nodule. The remainder of the gland has a golden-yellow and dark red cut surface. > > > > > > > >My endo surgeon dismissed me as "cured." Third doctor in a week to fire me > > > > > > > >-msmith1928 > > > >Nulliparous female, 46, 5'3", 115 lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac). > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2011 Report Share Posted November 5, 2011 You released too much insulin likely. The only way we can get hypoglycemic, basically anyway, is too much insulin or not enough carbs/glucose. I had this issue years ago when I had changed my diet (sort of, as I started taking vitamins after listening to a doc on a tak show taling about cravings for things vitamin fortified, but high carbs and fat, like cereal, andafter the vitamins noticed my cravings for sweets especially changed, not that my diet was super healthy though). It took my body a while to adjust. would hit 60 easy, 1/2 hour after eating, but then I had a healthy something right after eating and eventually my body must have adjusted as it doesn't happen now. But some do overproduce insulin. Still one of my favorites are people who say "If I don't eat I get hypoglycemic" as they put the back of their hand on their forehead for effect. I always tell them back, having some fun of course, "EVERYONE gets hypoglycemic if they don't eat; that's why we eat!" Subject: Re: path report and post-op aldo and reninTo: hyperaldosteronism Date: Saturday, November 5, 2011, 3:14 PM I sure hope so, although I'm not sure how best to find out. C-peptide test? Or should I even bother?Before my IR diagnosis starchy foods would make me so hypoglycemic that I passed out at work after lunch on numerous occasions - so theoretically a beans-and-rice lunch would be one way to test, but I'm not sure I want to go there > > >> > > Congrats! You won this one. How sweet it would be to be able to say that myself...but no tumor, so prob no cure.> > > > > > ============================================================================> > > 45-Male-Caucasian, 5'9"- 242lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.> > > Meds: 50mg Inspra, 40meq Potassium, 2400mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg Omeprazole> > > Side effects: Gynecomastia, stomach inflammation (from potassium citrate)> > > Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank PainDASH: Started "sort of" DASHing 5/3/2011> > > Status: Last Urine K/Na ratio was 1.1. But total of Na high also> > > Initial Presenting Symptom: Muscle twitching all over body with low normal K, Mg, Ca, Low Ionized Ca, High PTH, low Vitamin D> > > > > > > > > >________________________________> > > >From: msmith_1928 <janeray1940@>> > > >To: hyperaldosteronism > > > >Sent: Friday, November 4, 2011 2:49 PM> > > >Subject: path report and post-op aldo and renin> > > >> > > >> > > > > > > > > > > > > > > >Just back from the endo surgeon visit, where my BP was 128/81. I hadn't realized it but she already tested post-op aldo and renin:> > > >> > > >Aldo 1.3 (reference range <31)> > > >Renin 1.1 (reference range 0.2-1.6)> > > >> > > >Here's what I thought was relevant from the path report:> > > >> > > >FINAL DIAGNOSIS:> > > >Adrenal gland with a cortical tumor, 0.7cm> > > >> > > >A microscopic exam has been performed. The specimen... consists of a 10-gram, 7.0 x 4.5 x 0.5cm adrenal gland with attached adipose tissue. The adrenal gland is 5 grams, 4.0 x 2.0 x 0.5cm. On cut surface, there is a 0.7 x 0.7 x 0.7cm well-circumscribed, golden-yellow nodule, which grossly appears to come from the cortex of the specimen. No areas of hemorrhage or necrosis are identified within the nodule. The remainder of the gland has a golden-yellow and dark red cut surface. > > > >> > > >My endo surgeon dismissed me as "cured." Third doctor in a week to fire me > > > >> > > >-msmith1928> > > >Nulliparous female, 46, 5'3", 115 lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac).> > > >> > > > > > > > > > > >> > > >> > >> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2011 Report Share Posted November 5, 2011 That's exactly it - I produce too much insulin and my blood sugar would drop down to around 50, maybe lower when I passed out, before I started limiting carbs. I never had any trouble with HYPERglycemia, always HYPO. > > > > > > > > Congrats! You won this one. How sweet it would be to be able to say that myself...but no tumor, so prob no cure. > > > > > > > > ============================================================================ > > > > 45-Male-Caucasian, 5'9 " - 242lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS. > > > > Meds: 50mg Inspra, 40meq Potassium, 2400mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg Omeprazole > > > > Side effects: Gynecomastia, stomach inflammation (from potassium citrate) > > > > Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank PainDASH: Started " sort of " DASHing 5/3/2011 > > > > Status: Last Urine K/Na ratio was 1.1. But total of Na high also > > > > Initial Presenting Symptom: Muscle twitching all over body with low normal K, Mg, Ca, Low Ionized Ca, High PTH, low Vitamin D > > > > > > > > > > > > >________________________________ > > > > >From: msmith_1928 <janeray1940@> > > > > >To: hyperaldosteronism > > > > >Sent: Friday, November 4, 2011 2:49 PM > > > > >Subject: path report and post-op aldo and renin > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >Just back from the endo surgeon visit, where my BP was 128/81. I hadn't realized it but she already tested post-op aldo and renin: > > > > > > > > > >Aldo 1.3 (reference range <31) > > > > >Renin 1.1 (reference range 0.2-1.6) > > > > > > > > > >Here's what I thought was relevant from the path report: > > > > > > > > > >FINAL DIAGNOSIS: > > > > >Adrenal gland with a cortical tumor, 0.7cm > > > > > > > > > >A microscopic exam has been performed. The specimen... consists of a 10-gram, 7.0 x 4.5 x 0.5cm adrenal gland with attached adipose tissue. The adrenal gland is 5 grams, 4.0 x 2.0 x 0.5cm. On cut surface, there is a 0.7 x 0.7 x 0.7cm well-circumscribed, golden-yellow nodule, which grossly appears to come from the cortex of the specimen. No areas of hemorrhage or necrosis are identified within the nodule. The remainder of the gland has a golden-yellow and dark red cut surface. > > > > > > > > > >My endo surgeon dismissed me as " cured. " Third doctor in a week to fire me > > > > > > > > > >-msmith1928 > > > > >Nulliparous female, 46, 5'3 " , 115 lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac). > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2011 Report Share Posted November 5, 2011 There are tests to document true hypoglycemia but they are rarely done. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension You released too much insulin likely. The only way we can get hypoglycemic, basically anyway, is too much insulin or not enough carbs/glucose. I had this issue years ago when I had changed my diet (sort of, as I started taking vitamins after listening to a doc on a tak show taling about cravings for things vitamin fortified, but high carbs and fat, like cereal, andafter the vitamins noticed my cravings for sweets especially changed, not that my diet was super healthy though). It took my body a while to adjust. would hit 60 easy, 1/2 hour after eating, but then I had a healthy something right after eating and eventually my body must have adjusted as it doesn't happen now. But some do overproduce insulin. Still one of my favorites are people who say "If I don't eat I get hypoglycemic" as they put the back of their hand on their forehead for effect. I always tell them back, having some fun of course, "EVERYONE gets hypoglycemic if they don't eat; that's why we eat!" Subject: Re: path report and post-op aldo and reninTo: hyperaldosteronism Date: Saturday, November 5, 2011, 3:14 PM I sure hope so, although I'm not sure how best to find out. C-peptide test? Or should I even bother?Before my IR diagnosis starchy foods would make me so hypoglycemic that I passed out at work after lunch on numerous occasions - so theoretically a beans-and-rice lunch would be one way to test, but I'm not sure I want to go there > > >> > > Congrats! You won this one. How sweet it would be to be able to say that myself...but no tumor, so prob no cure.> > > > > > ============================================================================> > > 45-Male-Caucasian, 5'9"- 242lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.> > > Meds: 50mg Inspra, 40meq Potassium, 2400mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg Omeprazole> > > Side effects: Gynecomastia, stomach inflammation (from potassium citrate)> > > Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank PainDASH: Started "sort of" DASHing 5/3/2011> > > Status: Last Urine K/Na ratio was 1.1. But total of Na high also> > > Initial Presenting Symptom: Muscle twitching all over body with low normal K, Mg, Ca, Low Ionized Ca, High PTH, low Vitamin D> > > > > > > > > >________________________________> > > >From: msmith_1928 <janeray1940@>> > > >To: hyperaldosteronism > > > >Sent: Friday, November 4, 2011 2:49 PM> > > >Subject: path report and post-op aldo and renin> > > >> > > >> > > > > > > > > > > > > > > >Just back from the endo surgeon visit, where my BP was 128/81. I hadn't realized it but she already tested post-op aldo and renin:> > > >> > > >Aldo 1.3 (reference range <31)> > > >Renin 1.1 (reference range 0.2-1.6)> > > >> > > >Here's what I thought was relevant from the path report:> > > >> > > >FINAL DIAGNOSIS:> > > >Adrenal gland with a cortical tumor, 0.7cm> > > >> > > >A microscopic exam has been performed. The specimen... consists of a 10-gram, 7.0 x 4.5 x 0.5cm adrenal gland with attached adipose tissue. The adrenal gland is 5 grams, 4.0 x 2.0 x 0.5cm. On cut surface, there is a 0.7 x 0.7 x 0.7cm well-circumscribed, golden-yellow nodule, which grossly appears to come from the cortex of the specimen. No areas of hemorrhage or necrosis are identified within the nodule. The remainder of the gland has a golden-yellow and dark red cut surface. > > > >> > > >My endo surgeon dismissed me as "cured." Third doctor in a week to fire me > > > >> > > >-msmith1928> > > >Nulliparous female, 46, 5'3", 115 lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac).> > > >> > > > > > > > > > > >> > > >> > >> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2011 Report Share Posted November 5, 2011 At some point I had C-peptide and insulin checked that confirmed the IR diagnosis. But the better test was this: when all of this was first happening my doc had me track postprandial blood sugar, I think at 40 minutes and again at 2 hours after eating. 40 minutes was always a huge drop to somewhere around 50. 2 hours was never over 100. This pattern stayed consistent until I changed my diet (I was vegetarian at the time; when I added animal protein and dropped all the rice and beans the problem resolved.) > > > > > > > > > > Congrats! You won this one. How sweet it would be to be able to say that myself...but no tumor, so prob no cure. > > > > > > > > > > ============================================================================ > > > > > 45-Male-Caucasian, 5'9 " - 242lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS. > > > > > Meds: 50mg Inspra, 40meq Potassium, 2400mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg Omeprazole > > > > > Side effects: Gynecomastia, stomach inflammation (from potassium citrate) > > > > > Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank PainDASH: Started " sort of " DASHing 5/3/2011 > > > > > Status: Last Urine K/Na ratio was 1.1. But total of Na high also > > > > > Initial Presenting Symptom: Muscle twitching all over body with low normal K, Mg, Ca, Low Ionized Ca, High PTH, low Vitamin D > > > > > > > > > > > > > > > >________________________________ > > > > > >From: msmith_1928 <janeray1940@> > > > > > >To: hyperaldosteronism > > > > > >Sent: Friday, November 4, 2011 2:49 PM > > > > > >Subject: path report and post-op aldo and renin > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >Just back from the endo surgeon visit, where my BP was 128/81. I hadn't realized it but she already tested post-op aldo and renin: > > > > > > > > > > > >Aldo 1.3 (reference range <31) > > > > > >Renin 1.1 (reference range 0.2-1.6) > > > > > > > > > > > >Here's what I thought was relevant from the path report: > > > > > > > > > > > >FINAL DIAGNOSIS: > > > > > >Adrenal gland with a cortical tumor, 0.7cm > > > > > > > > > > > >A microscopic exam has been performed. The specimen... consists of a 10-gram, 7.0 x 4.5 x 0.5cm adrenal gland with attached adipose tissue. The adrenal gland is 5 grams, 4.0 x 2.0 x 0.5cm. On cut surface, there is a 0.7 x 0.7 x 0.7cm well-circumscribed, golden-yellow nodule, which grossly appears to come from the cortex of the specimen. No areas of hemorrhage or necrosis are identified within the nodule. The remainder of the gland has a golden-yellow and dark red cut surface. > > > > > > > > > > > >My endo surgeon dismissed me as " cured. " Third doctor in a week to fire me > > > > > > > > > > > >-msmith1928 > > > > > >Nulliparous female, 46, 5'3 " , 115 lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac). > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2011 Report Share Posted November 5, 2011 Ah but you are not the usual person with hypogly as I recall. HFI?True hypoglycemia (<50 and symptoms) is rare unless taking insulin or diabetes meds. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension That's exactly it - I produce too much insulin and my blood sugar would drop down to around 50, maybe lower when I passed out, before I started limiting carbs. I never had any trouble with HYPERglycemia, always HYPO. > > > > > > > > Congrats! You won this one. How sweet it would be to be able to say that myself...but no tumor, so prob no cure. > > > > > > > > ============================================================================ > > > > 45-Male-Caucasian, 5'9"- 242lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS. > > > > Meds: 50mg Inspra, 40meq Potassium, 2400mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg Omeprazole > > > > Side effects: Gynecomastia, stomach inflammation (from potassium citrate) > > > > Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank PainDASH: Started "sort of" DASHing 5/3/2011 > > > > Status: Last Urine K/Na ratio was 1.1. But total of Na high also > > > > Initial Presenting Symptom: Muscle twitching all over body with low normal K, Mg, Ca, Low Ionized Ca, High PTH, low Vitamin D > > > > > > > > > > > > >________________________________ > > > > >From: msmith_1928 <janeray1940@> > > > > >To: hyperaldosteronism > > > > >Sent: Friday, November 4, 2011 2:49 PM > > > > >Subject: path report and post-op aldo and renin > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >Just back from the endo surgeon visit, where my BP was 128/81. I hadn't realized it but she already tested post-op aldo and renin: > > > > > > > > > >Aldo 1.3 (reference range <31) > > > > >Renin 1.1 (reference range 0.2-1.6) > > > > > > > > > >Here's what I thought was relevant from the path report: > > > > > > > > > >FINAL DIAGNOSIS: > > > > >Adrenal gland with a cortical tumor, 0.7cm > > > > > > > > > >A microscopic exam has been performed. The specimen... consists of a 10-gram, 7.0 x 4.5 x 0.5cm adrenal gland with attached adipose tissue. The adrenal gland is 5 grams, 4.0 x 2.0 x 0.5cm. On cut surface, there is a 0.7 x 0.7 x 0.7cm well-circumscribed, golden-yellow nodule, which grossly appears to come from the cortex of the specimen. No areas of hemorrhage or necrosis are identified within the nodule. The remainder of the gland has a golden-yellow and dark red cut surface. > > > > > > > > > >My endo surgeon dismissed me as "cured." Third doctor in a week to fire me > > > > > > > > > >-msmith1928 > > > > >Nulliparous female, 46, 5'3", 115 lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac). > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2011 Report Share Posted November 5, 2011 Bingo! Definitely HFI related - the passing out stopped with the fructose elimination. But hypoglycemic symptoms would happen even after I cut the fructose out, after eating rice, potatoes, legumes which to the best of my knowledge are all fructose-free but still really starchy/carby. > > > > > > > > > > > > Congrats! You won this one. How sweet it would be to be able to say that myself...but no tumor, so prob no cure. > > > > > > > > > > > > ============================================================================ > > > > > > 45-Male-Caucasian, 5'9 " - 242lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS. > > > > > > Meds: 50mg Inspra, 40meq Potassium, 2400mg Calcium,ÃÆ'‚ 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg Omeprazole > > > > > > Side effects: Gynecomastia, stomach inflammation (from potassium citrate) > > > > > > Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank PainDASH: Started " sort of " DASHing 5/3/2011 > > > > > > Status: Last Urine K/Na ratio was 1.1. But total of Na high also > > > > > > Initial Presenting Symptom: Muscle twitching all over body with low normal K, Mg, Ca, Low Ionized Ca, High PTH, low Vitamin D > > > > > > > > > > > > > > > > > > >________________________________ > > > > > > >From: msmith_1928 <janeray1940@> > > > > > > >To: hyperaldosteronism > > > > > > >Sent: Friday, November 4, 2011 2:49 PM > > > > > > >Subject: path report and post-op aldo and renin > > > > > > > > > > > > > > > > > > > > > > > > > > > >ÃÆ'‚ > > > > > > > > > > > > > >Just back from the endo surgeon visit, where my BP was 128/81. I hadn't realized it but she already tested post-op aldo and renin: > > > > > > > > > > > > > >Aldo 1.3 (reference range <31) > > > > > > >Renin 1.1 (reference range 0.2-1.6) > > > > > > > > > > > > > >Here's what I thought was relevant from the path report: > > > > > > > > > > > > > >FINAL DIAGNOSIS: > > > > > > >Adrenal gland with a cortical tumor, 0.7cm > > > > > > > > > > > > > >A microscopic exam has been performed. The specimen... consists of a 10-gram, 7.0 x 4.5 x 0.5cm adrenal gland with attached adipose tissue. The adrenal gland is 5 grams, 4.0 x 2.0 x 0.5cm. On cut surface, there is a 0.7 x 0.7 x 0.7cm well-circumscribed, golden-yellow nodule, which grossly appears to come from the cortex of the specimen. No areas of hemorrhage or necrosis are identified within the nodule. The remainder of the gland has a golden-yellow and dark red cut surface. > > > > > > > > > > > > > >My endo surgeon dismissed me as " cured. " Third doctor in a week to fire me > > > > > > > > > > > > > >-msmith1928 > > > > > > >Nulliparous female, 46, 5'3 " , 115 lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac). > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2011 Report Share Posted November 5, 2011 Was hypoglycemia documented after stopping fructose. Did is sneak back in sometimes?CE Grim MD Bingo! Definitely HFI related - the passing out stopped with the fructose elimination. But hypoglycemic symptoms would happen even after I cut the fructose out, after eating rice, potatoes, legumes which to the best of my knowledge are all fructose-free but still really starchy/carby. > > > > > > > > > > > > Congrats! You won this one. How sweet it would be to be able to say that myself...but no tumor, so prob no cure. > > > > > > > > > > > > ============================================================================ > > > > > > 45-Male-Caucasian, 5'9"- 242lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS. > > > > > > Meds: 50mg Inspra, 40meq Potassium, 2400mg Calcium,ÃÆ'‚ 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg Omeprazole > > > > > > Side effects: Gynecomastia, stomach inflammation (from potassium citrate) > > > > > > Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank PainDASH: Started "sort of" DASHing 5/3/2011 > > > > > > Status: Last Urine K/Na ratio was 1.1. But total of Na high also > > > > > > Initial Presenting Symptom: Muscle twitching all over body with low normal K, Mg, Ca, Low Ionized Ca, High PTH, low Vitamin D > > > > > > > > > > > > > > > > > > >________________________________ > > > > > > >From: msmith_1928 <janeray1940@> > > > > > > >To: hyperaldosteronism > > > > > > >Sent: Friday, November 4, 2011 2:49 PM > > > > > > >Subject: path report and post-op aldo and renin > > > > > > > > > > > > > > > > > > > > > > > > > > > >ÃÆ'‚ > > > > > > > > > > > > > >Just back from the endo surgeon visit, where my BP was 128/81. I hadn't realized it but she already tested post-op aldo and renin: > > > > > > > > > > > > > >Aldo 1.3 (reference range <31) > > > > > > >Renin 1.1 (reference range 0.2-1.6) > > > > > > > > > > > > > >Here's what I thought was relevant from the path report: > > > > > > > > > > > > > >FINAL DIAGNOSIS: > > > > > > >Adrenal gland with a cortical tumor, 0.7cm > > > > > > > > > > > > > >A microscopic exam has been performed. The specimen... consists of a 10-gram, 7.0 x 4.5 x 0.5cm adrenal gland with attached adipose tissue. The adrenal gland is 5 grams, 4.0 x 2.0 x 0.5cm. On cut surface, there is a 0.7 x 0.7 x 0.7cm well-circumscribed, golden-yellow nodule, which grossly appears to come from the cortex of the specimen. No areas of hemorrhage or necrosis are identified within the nodule. The remainder of the gland has a golden-yellow and dark red cut surface. > > > > > > > > > > > > > >My endo surgeon dismissed me as "cured." Third doctor in a week to fire me > > > > > > > > > > > > > >-msmith1928 > > > > > > >Nulliparous female, 46, 5'3", 115 lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac). > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2011 Report Share Posted November 5, 2011 It never sneaks back in now if I can help it, but in the past it might have more often because I wasn't aware of things like restaurants adding sugar to, say, a chicken breast to preserve it. I stopped tracking my blood sugar years ago when I cut back on the carbs, so no, can't say that hypoglycemia has been documented. But I have had symptoms (mainly feeling really close to passing out) pretty much every time I've eaten a low-protein, high-carb meal even if it was fructose free - so, I've just avoided eating that way whenever possible all these years. > > > > > > > > > > > > > > > > Congrats! You won this one. How sweet it would be to be > > able to say that myself...but no tumor, so prob no cure. > > > > > > > > > > > > > > > > > > = > > = > > = > > = > > = > > = > > ====================================================================== > > > > > > > > 45-Male-Caucasian, 5'9 " - 242lbs, PA Diagnosed 2007 > > Suspected Hyperplasia-No tumors on CT - No AVS. > > > > > > > > Meds: 50mg Inspra, 40meq Potassium, 2400mg Calcium,ÃÆ'à > > ¢â‚¬Å¡ 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg Omeprazole > > > > > > > > Side effects: Gynecomastia, stomach inflammation (from > > potassium citrate) > > > > > > > > Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - > > PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium > > leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung > > Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right > > Flank PainDASH: Started " sort of " DASHing 5/3/2011 > > > > > > > > Status: Last Urine K/Na ratio was 1.1. But total of Na > > high also > > > > > > > > Initial Presenting Symptom: Muscle twitching all over > > body with low normal K, Mg, Ca, Low Ionized Ca, High PTH, low > > Vitamin D > > > > > > > > > > > > > > > > > > > > > > > > >________________________________ > > > > > > > > >From: msmith_1928 <janeray1940@> > > > > > > > > >To: hyperaldosteronism > > > > > > > > >Sent: Friday, November 4, 2011 2:49 PM > > > > > > > > >Subject: path report and post-op > > aldo and renin > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >ÃÆ'‚ > > > > > > > > > > > > > > > > > >Just back from the endo surgeon visit, where my BP was > > 128/81. I hadn't realized it but she already tested post-op aldo and > > renin: > > > > > > > > > > > > > > > > > >Aldo 1.3 (reference range <31) > > > > > > > > >Renin 1.1 (reference range 0.2-1.6) > > > > > > > > > > > > > > > > > >Here's what I thought was relevant from the path report: > > > > > > > > > > > > > > > > > >FINAL DIAGNOSIS: > > > > > > > > >Adrenal gland with a cortical tumor, 0.7cm > > > > > > > > > > > > > > > > > >A microscopic exam has been performed. The specimen... > > consists of a 10-gram, 7.0 x 4.5 x 0.5cm adrenal gland with attached > > adipose tissue. The adrenal gland is 5 grams, 4.0 x 2.0 x 0.5cm. On > > cut surface, there is a 0.7 x 0.7 x 0.7cm well-circumscribed, golden- > > yellow nodule, which grossly appears to come from the cortex of the > > specimen. No areas of hemorrhage or necrosis are identified within > > the nodule. The remainder of the gland has a golden-yellow and dark > > red cut surface. > > > > > > > > > > > > > > > > > >My endo surgeon dismissed me as " cured. " Third doctor > > in a week to fire me > > > > > > > > > > > > > > > > > >-msmith1928 > > > > > > > > >Nulliparous female, 46, 5'3 " , 115 lbs, CT showed 1cm > > left adrenal nodule, AVS determined disease is unilateral, had left > > laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and > > grain-free diet due to hereditary fructose intolerance, lactose > > intolerance, gluten intolerance (probable celiac). > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2011 Report Share Posted November 5, 2011 Sounds like good judgment to me May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension It never sneaks back in now if I can help it, but in the past it might have more often because I wasn't aware of things like restaurants adding sugar to, say, a chicken breast to preserve it. I stopped tracking my blood sugar years ago when I cut back on the carbs, so no, can't say that hypoglycemia has been documented. But I have had symptoms (mainly feeling really close to passing out) pretty much every time I've eaten a low-protein, high-carb meal even if it was fructose free - so, I've just avoided eating that way whenever possible all these years. > > > > > > > > > > > > > > > > Congrats! You won this one. How sweet it would be to be > > able to say that myself...but no tumor, so prob no cure. > > > > > > > > > > > > > > > > > > = > > = > > = > > = > > = > > = > > ====================================================================== > > > > > > > > 45-Male-Caucasian, 5'9"- 242lbs, PA Diagnosed 2007 > > Suspected Hyperplasia-No tumors on CT - No AVS. > > > > > > > > Meds: 50mg Inspra, 40meq Potassium, 2400mg Calcium,ÃÆ'à > > ¢â‚¬Å¡ 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg Omeprazole > > > > > > > > Side effects: Gynecomastia, stomach inflammation (from > > potassium citrate) > > > > > > > > Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - > > PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium > > leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung > > Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right > > Flank PainDASH: Started "sort of" DASHing 5/3/2011 > > > > > > > > Status: Last Urine K/Na ratio was 1.1. But total of Na > > high also > > > > > > > > Initial Presenting Symptom: Muscle twitching all over > > body with low normal K, Mg, Ca, Low Ionized Ca, High PTH, low > > Vitamin D > > > > > > > > > > > > > > > > > > > > > > > > >________________________________ > > > > > > > > >From: msmith_1928 <janeray1940@> > > > > > > > > >To: hyperaldosteronism > > > > > > > > >Sent: Friday, November 4, 2011 2:49 PM > > > > > > > > >Subject: path report and post-op > > aldo and renin > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >ÃÆ'‚ > > > > > > > > > > > > > > > > > >Just back from the endo surgeon visit, where my BP was > > 128/81. I hadn't realized it but she already tested post-op aldo and > > renin: > > > > > > > > > > > > > > > > > >Aldo 1.3 (reference range <31) > > > > > > > > >Renin 1.1 (reference range 0.2-1.6) > > > > > > > > > > > > > > > > > >Here's what I thought was relevant from the path report: > > > > > > > > > > > > > > > > > >FINAL DIAGNOSIS: > > > > > > > > >Adrenal gland with a cortical tumor, 0.7cm > > > > > > > > > > > > > > > > > >A microscopic exam has been performed. The specimen... > > consists of a 10-gram, 7.0 x 4.5 x 0.5cm adrenal gland with attached > > adipose tissue. The adrenal gland is 5 grams, 4.0 x 2.0 x 0.5cm. On > > cut surface, there is a 0.7 x 0.7 x 0.7cm well-circumscribed, golden- > > yellow nodule, which grossly appears to come from the cortex of the > > specimen. No areas of hemorrhage or necrosis are identified within > > the nodule. The remainder of the gland has a golden-yellow and dark > > red cut surface. > > > > > > > > > > > > > > > > > >My endo surgeon dismissed me as "cured." Third doctor > > in a week to fire me > > > > > > > > > > > > > > > > > >-msmith1928 > > > > > > > > >Nulliparous female, 46, 5'3", 115 lbs, CT showed 1cm > > left adrenal nodule, AVS determined disease is unilateral, had left > > laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and > > grain-free diet due to hereditary fructose intolerance, lactose > > intolerance, gluten intolerance (probable celiac). > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2011 Report Share Posted November 6, 2011 So, if not Hypoglycemia...what is it when you get really feeling shakey if not having eaten for a while? I get this on occasion and have tested my glucose. It is usally at the lower end of normal, yet I get this shakey jittery feeling that goes away if i eat. I am also usually ravonous at the time as well. ============================================================================45-Male-Caucasian, 5'9"- 242lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.Meds: 50mg Inspra, 40meq Potassium, 2400mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg OmeprazoleSide effects: Gynecomastia, stomach inflammation (from potassium citrate)Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank PainDASH: Started "sort of" DASHing 5/3/2011Status: Last Urine K/Na ratio was 1.1. But total of Na high alsoInitial Presenting Symptom: Muscle twitching all over body with low normal K, Mg, Ca, Low Ionized Ca, High PTH, low Vitamin DTo: "hyperaldosteronism " <hyperaldosteronism >Sent: Saturday, November 5, 2011 10:21 PMSubject: Re: Re: path report and post-op aldo and renin Sounds like good judgment to me May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension It never sneaks back in now if I can help it, but in the past it might have more often because I wasn't aware of things like restaurants adding sugar to, say, a chicken breast to preserve it. I stopped tracking my blood sugar years ago when I cut back on the carbs, so no, can't say that hypoglycemia has been documented. But I have had symptoms (mainly feeling really close to passing out) pretty much every time I've eaten a low-protein, high-carb meal even if it was fructose free - so, I've just avoided eating that way whenever possible all these years. > > > > > > > > > > > > > > > > Congrats! You won this one. How sweet it would be to be > > able to say that myself...but no tumor, so prob no cure. > > > > > > > > > > > > > > > > > > = > > = > > = > > = > > = > > = > > ====================================================================== > > > > > > > > 45-Male-Caucasian, 5'9"- 242lbs, PA Diagnosed 2007 > > Suspected Hyperplasia-No tumors on CT - No AVS. > > > > > > > > Meds: 50mg Inspra, 40meq Potassium, 2400mg Calcium,ÃÆ'à > > ¢â‚¬Å¡ 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg Omeprazole > > > > > > > > Side effects: Gynecomastia, stomach inflammation (from > > potassium citrate) > > > > > > > > Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - > > PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium > > leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung > > Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right > > Flank PainDASH: Started "sort of" DASHing 5/3/2011 > > > > > > > > Status: Last Urine K/Na ratio was 1.1. But total of Na > > high also > > > > > > > > Initial Presenting Symptom: Muscle twitching all over > > body with low normal K, Mg, Ca, Low Ionized Ca, High PTH, low > > Vitamin D > > > > > > > > > > > > > > > > > > > > > > > > >________________________________ > > > > > > > > >From: msmith_1928 <janeray1940@> > > > > > > > > >To: hyperaldosteronism > > > > > > > > >Sent: Friday, November 4, 2011 2:49 PM > > > > > > > > >Subject: path report and post-op > > aldo and renin > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >ÃÆ'‚ > > > > > > > > > > > > > > > > > >Just back from the endo surgeon visit, where my BP was > > 128/81. I hadn't realized it but she already tested post-op aldo and > > renin: > > > > > > > > > > > > > > > > > >Aldo 1.3 (reference range <31) > > > > > > > > >Renin 1.1 (reference range 0.2-1.6) > > > > > > > > > > > > > > > > > >Here's what I thought was relevant from the path report: > > > > > > > > > > > > > > > > > >FINAL DIAGNOSIS: > > > > > > > > >Adrenal gland with a cortical tumor, 0.7cm > > > > > > > > > > > > > > > > > >A microscopic exam has been performed. The specimen... > > consists of a 10-gram, 7.0 x 4.5 x 0.5cm adrenal gland with attached > > adipose tissue. The adrenal gland is 5 grams, 4.0 x 2.0 x 0.5cm. On > > cut surface, there is a 0.7 x 0.7 x 0.7cm well-circumscribed, golden- > > yellow nodule, which grossly appears to come from the cortex of the > > specimen. No areas of hemorrhage or necrosis are identified within > > the nodule. The remainder of the gland has a golden-yellow and dark > > red cut surface. > > > > > > > > > > > > > > > > > >My endo surgeon dismissed me as "cured." Third doctor > > in a week to fire me > > > > > > > > > > > > > > > > > >-msmith1928 > > > > > > > > >Nulliparous female, 46, 5'3", 115 lbs, CT showed 1cm > > left adrenal nodule, AVS determined disease is unilateral, had left > > laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and > > grain-free diet due to hereditary fructose intolerance, lactose > > intolerance, gluten intolerance (probable celiac). > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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