Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 So so great! Lot's of prayers coming your way! Connie Liv Update My girl is so strong! She attended school for a couple hrs on Mon/Tues and is motoring all around the hospital with the adapted halo gravity traction walker (a must for ambulatory halo patients). She is up to 13 lbs and will go 2 lbs per day until we get to a third of her weight (54 lbs). We got bandages off, showered, etc....and she is really starting to look/act like herself, again. Ill post photos as soon as I can. Please contine to pray that we can acheive great correction with this 3rd halo, prior to round 2 of surgeries. Sorry, I cant get to all the posts. Please call me if you want, and Ill respond because my girl is on the mend. Love, HRH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 That is great news . So glad she is getting stronger by the day. We will keep praying. Thanks for the update.. Joanmom to Hayden 2 1/233 degrees1st cast down from 62 degrees Treated at ish Rite Hospital Dallas, TX To: infantile_scoliosis Sent: Thu, October 8, 2009 10:07:02 AMSubject: Liv Update My girl is so strong! She attended school for a couple hrs on Mon/Tues and is motoring all around the hospital with the adapted halo gravity traction walker (a must for ambulatory halo patients). She is up to 13 lbs and will go 2 lbs per day until we get to a third of her weight (54 lbs). We got bandages off, showered, etc....and she is really starting to look/act like herself, again. Ill post photos as soon as I can.Please contine to pray that we can acheive great correction with this 3rd halo, prior to round 2 of surgeries.Sorry, I cant get to all the posts. Please call me if you want, and Ill respond because my girl is on the mend. Love,HRH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 Prayers coming Liv's way, and I am SO happy to hear she's doing so well!!! GO OLIVIA!!! There is a cartoon Bex likes called Olivia, and the theme song is always in my head, "O-liv-ia! O-liv-ia!" ; ) It's very upbeat and happy and I smile, thinking about her.Heidi, Bexon's Mama, (2 years old, in 4th cast from Salt Lake City Shriners, currently down from 61 degrees to 21) Subject: Liv UpdateTo: infantile_scoliosis Date: Thursday, October 8, 2009, 8:07 AM My girl is so strong! She attended school for a couple hrs on Mon/Tues and is motoring all around the hospital with the adapted halo gravity traction walker (a must for ambulatory halo patients). She is up to 13 lbs and will go 2 lbs per day until we get to a third of her weight (54 lbs). We got bandages off, showered, etc....and she is really starting to look/act like herself, again. Ill post photos as soon as I can.Please contine to pray that we can acheive great correction with this 3rd halo, prior to round 2 of surgeries.Sorry, I cant get to all the posts. Please call me if you want, and Ill respond because my girl is on the mend. Love,HRH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 Go Olivia!!!! I will continue to keep her in my prayers.She is truly amazing!!!!! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.htmlFrom: "heather@..." To: infantile_scoliosis Sent: Thu, October 8, 2009 10:07:02 AMSubject: Liv Update My girl is so strong! She attended school for a couple hrs on Mon/Tues and is motoring all around the hospital with the adapted halo gravity traction walker (a must for ambulatory halo patients). She is up to 13 lbs and will go 2 lbs per day until we get to a third of her weight (54 lbs). We got bandages off, showered, etc....and she is really starting to look/act like herself, again. Ill post photos as soon as I can. Please contine to pray that we can acheive great correction with this 3rd halo, prior to round 2 of surgeries. Sorry, I cant get to all the posts. Please call me if you want, and Ill respond because my girl is on the mend. Love, HRH __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 Hayden LOVES that show too. Very sweet show.. Joanmom to Hayden 2 1/233 degrees1st cast down from 62 degrees Treated at ish Rite Hospital Dallas, TX To: infantile_scoliosis Sent: Thu, October 8, 2009 10:33:09 AMSubject: Re: Liv Update Prayers coming Liv's way, and I am SO happy to hear she's doing so well!!! GO OLIVIA!!! There is a cartoon Bex likes called Olivia, and the theme song is always in my head, "O-liv-ia! O-liv-ia!" ; ) It's very upbeat and happy and I smile, thinking about her.Heidi, Bexon's Mama, (2 years old, in 4th cast from Salt Lake City Shriners, currently down from 61 degrees to 21) From: heather@infantilesc oliosis.org <heather@infantilesc oliosis.org>Subject: [infantile_scoliosi s] Liv UpdateTo: infantile_scoliosis @yahoogroups. comDate: Thursday, October 8, 2009, 8:07 AM My girl is so strong! She attended school for a couple hrs on Mon/Tues and is motoring all around the hospital with the adapted halo gravity traction walker (a must for ambulatory halo patients). She is up to 13 lbs and will go 2 lbs per day until we get to a third of her weight (54 lbs). We got bandages off, showered, etc....and she is really starting to look/act like herself, again. Ill post photos as soon as I can.Please contine to pray that we can acheive great correction with this 3rd halo, prior to round 2 of surgeries.Sorry, I cant get to all the posts. Please call me if you want, and Ill respond because my girl is on the mend. Love,HRH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 What an inspiration she is. You are both in my prayers daily. I am so glad she is doing so well. Come on great numbers! Barb Mom to Evan > > My girl is so strong! She attended school for a couple hrs on Mon/Tues and is motoring all around the hospital with the adapted halo gravity traction walker (a must for ambulatory halo patients). She is up to 13 lbs and will go 2 lbs per day until we get to a third of her weight (54 lbs). We got bandages off, showered, etc....and she is really starting to look/act like herself, again. Ill post photos as soon as I can. > Please contine to pray that we can acheive great correction with this 3rd halo, prior to round 2 of surgeries. > Sorry, I cant get to all the posts. Please call me if you want, and Ill respond because my girl is on the mend. > Love, > HRH > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 What a strong girl you have. You and Liv are truly an inspiration. We will continue to pray for you both.Many Blessings,Amy J mom to Allie(3) recovering from spinal cord tumor surgerySent from my Verizon Wireless BlackBerryFrom: heather@...Date: Thu, 08 Oct 2009 15:07:02 +0000To: <infantile_scoliosis >Subject: Liv Update My girl is so strong! She attended school for a couple hrs on Mon/Tues and is motoring all around the hospital with the adapted halo gravity traction walker (a must for ambulatory halo patients). She is up to 13 lbs and will go 2 lbs per day until we get to a third of her weight (54 lbs). We got bandages off, showered, etc....and she is really starting to look/act like herself, again. Ill post photos as soon as I can.Please contine to pray that we can acheive great correction with this 3rd halo, prior to round 2 of surgeries.Sorry, I cant get to all the posts. Please call me if you want, and Ill respond because my girl is on the mend. Love,HRH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 Heidi, HAHA!! I think the same thing when i hear that song!!! Our noggin is called nick jr now...is yours too? From: heather@infantilesc oliosis.org <heather@infantilesc oliosis.org>Subject: [infantile_scoliosi s] Liv UpdateTo: infantile_scoliosis @yahoogroups. comDate: Thursday, October 8, 2009, 8:07 AM My girl is so strong! She attended school for a couple hrs on Mon/Tues and is motoring all around the hospital with the adapted halo gravity traction walker (a must for ambulatory halo patients). She is up to 13 lbs and will go 2 lbs per day until we get to a third of her weight (54 lbs). We got bandages off, showered, etc....and she is really starting to look/act like herself, again. Ill post photos as soon as I can.Please contine to pray that we can acheive great correction with this 3rd halo, prior to round 2 of surgeries.Sorry, I cant get to all the posts. Please call me if you want, and Ill respond because my girl is on the mend. Love,HRH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 GREAT show! I love how she calls Ian, her bother.Too cute! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.htmlFrom: NIck Guthe To: infantile_scoliosis Sent: Thu, October 8, 2009 10:33:09 AMSubject: Re: Liv Update Prayers coming Liv's way, and I am SO happy to hear she's doing so well!!! GO OLIVIA!!! There is a cartoon Bex likes called Olivia, and the theme song is always in my head, "O-liv-ia! O-liv-ia!" ; ) It's very upbeat and happy and I smile, thinking about her.Heidi, Bexon's Mama, (2 years old, in 4th cast from Salt Lake City Shriners, currently down from 61 degrees to 21) From: heather@infantilesc oliosis.org <heather@infantilesc oliosis.org>Subject: [infantile_scoliosi s] Liv UpdateTo: infantile_scoliosis @yahoogroups. comDate: Thursday, October 8, 2009, 8:07 AM My girl is so strong! She attended school for a couple hrs on Mon/Tues and is motoring all around the hospital with the adapted halo gravity traction walker (a must for ambulatory halo patients). She is up to 13 lbs and will go 2 lbs per day until we get to a third of her weight (54 lbs). We got bandages off, showered, etc....and she is really starting to look/act like herself, again. Ill post photos as soon as I can.Please contine to pray that we can acheive great correction with this 3rd halo, prior to round 2 of surgeries.Sorry, I cant get to all the posts. Please call me if you want, and Ill respond because my girl is on the mend. Love,HRH __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 , You sound so positive and happy that Olivia is doing well. Im so happy for the both of you! I hope she continues to do great! Lots of prayers, cards and gifts comming her way, im sure!!! Subject: Liv UpdateTo: infantile_scoliosis Date: Thursday, October 8, 2009, 10:07 AM My girl is so strong! She attended school for a couple hrs on Mon/Tues and is motoring all around the hospital with the adapted halo gravity traction walker (a must for ambulatory halo patients). She is up to 13 lbs and will go 2 lbs per day until we get to a third of her weight (54 lbs). We got bandages off, showered, etc....and she is really starting to look/act like herself, again. Ill post photos as soon as I can.Please contine to pray that we can acheive great correction with this 3rd halo, prior to round 2 of surgeries.Sorry, I cant get to all the posts. Please call me if you want, and Ill respond because my girl is on the mend. Love,HRH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2009 Report Share Posted October 12, 2009 I am so sorry to hear about the infection. You think the man upstairs would cut you a break already! Hang in there, we are all praying for you!! Patty, mom of Isabella, 2 years old, in 2nd cast (Rochester) & mom to & EvanTo: infantile_scoliosis Sent: Mon, October 12, 2009 12:41:34 AMSubject: Liv update Bad news. Liv has developed an infection in the incision over her left iliac crest. She developed a fever yesterday at 11 am and by 7 pm we knew it was not a cold. A resident came in by midnight and we had to remove bandages, squeeze all the puss/blood out, and stick a swab in the open wound to get a proper culture, with no meds except valium and tylenol. Results should be in by tomorrow. She is on IV antibiotic that will address aerobic/anerobic infection/bacteria until we know what we are dealing with. We started this horrific process at midnight and it ended at 6 am. She screamed and cried in excruciating pain the entire time. It was the worst, most frightening experience we have ever had since diagnosis at 5 months old. It was the worst night of my life (and hers too). Tomorrow and weds she will have to go back into the OR for a thorough cleaning of the wound/infection. I have slept only 2 hrs in the last 2 days and must get rest tonight, so I can care for my sweet girl for this next round. Please pray for my little girl. Please pray its not MRSA and that she can fight this infection. I know that if anyone can beat this, my child can. We will not be home the 1st week of Nov., but thats ok. We'll stay as long as needed, and I am grateful that we are here at Shriners with our doc. I cant read posts, so I hope you and all the littles are doing great. Ill have post as soon as I know what is going on. Im out....(can someone post an update on Facebook, as I just cant) Love, HRH **Thanks for sending my girl cards, etc....It really does mean a lot to receive such support during this difficult time. Please, please continue to support/fundraise for ISOP while Im out of pocket. Lets keep this little ship afloat! XOXOXO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2009 Report Share Posted October 12, 2009 I am so sad to hear this has happened to Liv after a few good days for her. Please know that we are all praying so hard for her and hope she has a better day today. I know this is the most horrible situation for you both, I wish you didn't have to endure this. Much love and prayers for you both. Please keep us updated, we will be hoping for the BEST for Liv. HUGS to you both. Joanmom to Hayden 2 1/233 degrees1st cast down from 62 degrees Treated at ish Rite Hospital Dallas, TX To: infantile_scoliosis Sent: Sun, October 11, 2009 11:41:34 PMSubject: Liv update Bad news. Liv has developed an infection in the incision over her left iliac crest. She developed a fever yesterday at 11 am and by 7 pm we knew it was not a cold. A resident came in by midnight and we had to remove bandages, squeeze all the puss/blood out, and stick a swab in the open wound to get a proper culture, with no meds except valium and tylenol. Results should be in by tomorrow. She is on IV antibiotic that will address aerobic/anerobic infection/bacteria until we know what we are dealing with. We started this horrific process at midnight and it ended at 6 am. She screamed and cried in excruciating pain the entire time. It was the worst, most frightening experience we have ever had since diagnosis at 5 months old. It was the worst night of my life (and hers too). Tomorrow and weds she will have to go back into the OR for a thorough cleaning of the wound/infection. I have slept only 2 hrs in the last 2 days and must get rest tonight, so I can care for my sweet girl for this next round. Please pray for my little girl.. Please pray its not MRSA and that she can fight this infection. I know that if anyone can beat this, my child can. We will not be home the 1st week of Nov., but thats ok. We'll stay as long as needed, and I am grateful that we are here at Shriners with our doc. I cant read posts, so I hope you and all the littles are doing great. Ill have post as soon as I know what is going on.Im out....(can someone post an update on Facebook, as I just cant)Love,HRH**Thanks for sending my girl cards, etc.....It really does mean a lot to receive such support during this difficult time. Please, please continue to support/fundraise for ISOP while Im out of pocket. Lets keep this little ship afloat! XOXOXO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2009 Report Share Posted October 12, 2009 I am praying . My heart is hurting for her and you. I posted on FB as well. Love you both! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.htmlFrom: "heather@..." To: infantile_scoliosis Sent: Sun, October 11, 2009 11:41:34 PMSubject: Liv update Bad news. Liv has developed an infection in the incision over her left iliac crest. She developed a fever yesterday at 11 am and by 7 pm we knew it was not a cold. A resident came in by midnight and we had to remove bandages, squeeze all the puss/blood out, and stick a swab in the open wound to get a proper culture, with no meds except valium and tylenol. Results should be in by tomorrow. She is on IV antibiotic that will address aerobic/anerobic infection/bacteria until we know what we are dealing with. We started this horrific process at midnight and it ended at 6 am. She screamed and cried in excruciating pain the entire time. It was the worst, most frightening experience we have ever had since diagnosis at 5 months old. It was the worst night of my life (and hers too). Tomorrow and weds she will have to go back into the OR for a thorough cleaning of the wound/infection. I have slept only 2 hrs in the last 2 days and must get rest tonight, so I can care for my sweet girl for this next round. Please pray for my little girl. Please pray its not MRSA and that she can fight this infection. I know that if anyone can beat this, my child can. We will not be home the 1st week of Nov., but thats ok. We'll stay as long as needed, and I am grateful that we are here at Shriners with our doc. I cant read posts, so I hope you and all the littles are doing great. Ill have post as soon as I know what is going on. Im out....(can someone post an update on Facebook, as I just cant) Love, HRH **Thanks for sending my girl cards, etc....It really does mean a lot to receive such support during this difficult time. Please, please continue to support/fundraise for ISOP while Im out of pocket. Lets keep this little ship afloat! XOXOXO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2009 Report Share Posted October 12, 2009 , That is just awful! Praying for you both. What a hard, night to go through. Get some sleep. Praying it isn't MRSA and that they get it clean! Love to you both! shellie Subject: Liv updateTo: infantile_scoliosis Date: Sunday, October 11, 2009, 11:41 PM Bad news. Liv has developed an infection in the incision over her left iliac crest. She developed a fever yesterday at 11 am and by 7 pm we knew it was not a cold. A resident came in by midnight and we had to remove bandages, squeeze all the puss/blood out, and stick a swab in the open wound to get a proper culture, with no meds except valium and tylenol. Results should be in by tomorrow. She is on IV antibiotic that will address aerobic/anerobic infection/bacteria until we know what we are dealing with. We started this horrific process at midnight and it ended at 6 am. She screamed and cried in excruciating pain the entire time. It was the worst, most frightening experience we have ever had since diagnosis at 5 months old. It was the worst night of my life (and hers too). Tomorrow and weds she will have to go back into the OR for a thorough cleaning of the wound/infection. I have slept only 2 hrs in the last 2 days and must get rest tonight, so I can care for my sweet girl for this next round. Please pray for my little girl. Please pray its not MRSA and that she can fight this infection. I know that if anyone can beat this, my child can. We will not be home the 1st week of Nov., but thats ok. We'll stay as long as needed, and I am grateful that we are here at Shriners with our doc. I cant read posts, so I hope you and all the littles are doing great. Ill have post as soon as I know what is going on.Im out....(can someone post an update on Facebook, as I just cant)Love,HRH**Thanks for sending my girl cards, etc....It really does mean a lot to receive such support during this difficult time. Please, please continue to support/fundraise for ISOP while Im out of pocket. Lets keep this little ship afloat! XOXOXO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2009 Report Share Posted October 12, 2009 , MRSA is a type of Staph Infection that is very very difficult to contain. Once you have it in your body, you really never can be rid of it. Joanmom to Hayden 2 1/233 degrees1st cast down from 62 degrees Treated at ish Rite Hospital Dallas, TX To: infantile_scoliosis Sent: Mon, October 12, 2009 6:58:21 AMSubject: Re: Liv update I cannot even fathom what Olivia and you are going through right now. It had to have killed you to watch her be in pain like that. It is times like that when you wish you could endure it for her. Please send her love from us and know that you are never far from my mind. BTW, what is MRSA? Go get some sleep if you can. (((HUGS))) Noelle (12-2-01) Ian (8-15-04) From: "heather@infantiles coliosis. org" <heather@infantilesc oliosis.org>To: infantile_scoliosis @yahoogroups. comSent: Mon, October 12, 2009 12:41:34 AMSubject: [infantile_scoliosi s] Liv update Bad news. Liv has developed an infection in the incision over her left iliac crest. She developed a fever yesterday at 11 am and by 7 pm we knew it was not a cold. A resident came in by midnight and we had to remove bandages, squeeze all the puss/blood out, and stick a swab in the open wound to get a proper culture, with no meds except valium and tylenol. Results should be in by tomorrow. She is on IV antibiotic that will address aerobic/anerobic infection/bacteria until we know what we are dealing with. We started this horrific process at midnight and it ended at 6 am. She screamed and cried in excruciating pain the entire time. It was the worst, most frightening experience we have ever had since diagnosis at 5 months old. It was the worst night of my life (and hers too). Tomorrow and weds she will have to go back into the OR for a thorough cleaning of the wound/infection. I have slept only 2 hrs in the last 2 days and must get rest tonight, so I can care for my sweet girl for this next round. Please pray for my little girl.. Please pray its not MRSA and that she can fight this infection. I know that if anyone can beat this, my child can. We will not be home the 1st week of Nov., but thats ok. We'll stay as long as needed, and I am grateful that we are here at Shriners with our doc. I cant read posts, so I hope you and all the littles are doing great. Ill have post as soon as I know what is going on.Im out....(can someone post an update on Facebook, as I just cant)Love,HRH**Thanks for sending my girl cards, etc.....It really does mean a lot to receive such support during this difficult time. Please, please continue to support/fundraise for ISOP while Im out of pocket. Lets keep this little ship afloat! XOXOXO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2009 Report Share Posted October 12, 2009 heather and Olivia, Im so terribly sorry to hear what you both are going thru. Words cannot express my sorrow for what you are experiencing right now. Watching you baby in pain and feeling helpless to fix it is the worst hurt imaginable. My prayers are with you both. Subject: Liv updateTo: infantile_scoliosis Date: Sunday, October 11, 2009, 11:41 PM Bad news. Liv has developed an infection in the incision over her left iliac crest. She developed a fever yesterday at 11 am and by 7 pm we knew it was not a cold. A resident came in by midnight and we had to remove bandages, squeeze all the puss/blood out, and stick a swab in the open wound to get a proper culture, with no meds except valium and tylenol. Results should be in by tomorrow. She is on IV antibiotic that will address aerobic/anerobic infection/bacteria until we know what we are dealing with. We started this horrific process at midnight and it ended at 6 am. She screamed and cried in excruciating pain the entire time. It was the worst, most frightening experience we have ever had since diagnosis at 5 months old. It was the worst night of my life (and hers too). Tomorrow and weds she will have to go back into the OR for a thorough cleaning of the wound/infection. I have slept only 2 hrs in the last 2 days and must get rest tonight, so I can care for my sweet girl for this next round. Please pray for my little girl. Please pray its not MRSA and that she can fight this infection. I know that if anyone can beat this, my child can. We will not be home the 1st week of Nov., but thats ok. We'll stay as long as needed, and I am grateful that we are here at Shriners with our doc. I cant read posts, so I hope you and all the littles are doing great. Ill have post as soon as I know what is going on.Im out....(can someone post an update on Facebook, as I just cant)Love,HRH**Thanks for sending my girl cards, etc....It really does mean a lot to receive such support during this difficult time. Please, please continue to support/fundraise for ISOP while Im out of pocket. Lets keep this little ship afloat! XOXOXO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2009 Report Share Posted October 12, 2009 Hugs kisses and Prayers on there way for you both. My mum says she sends her love as well. Call me if you need anything sent from home and I will take care of it. Wish we could be there with you guys. Hopefully it's just a little infection and you caught it early. Wish I could give you both a huge hug. Love you guys, Rochelle > > Bad news. Liv has developed an infection in the incision over her left iliac crest. She developed a fever yesterday at 11 am and by 7 pm we knew it was not a cold. A resident came in by midnight and we had to remove bandages, squeeze all the puss/blood out, and stick a swab in the open wound to get a proper culture, with no meds except valium and tylenol. Results should be in by tomorrow. She is on IV antibiotic that will address aerobic/anerobic infection/bacteria until we know what we are dealing with. We started this horrific process at midnight and it ended at 6 am. She screamed and cried in excruciating pain the entire time. It was the worst, most frightening experience we have ever had since diagnosis at 5 months old. It was the worst night of my life (and hers too). Tomorrow and weds she will have to go back into the OR for a thorough cleaning of the wound/infection. I have slept only 2 hrs in the last 2 days and must get rest tonight, so I can care for my sweet girl for this next round. Please pray for my little girl. Please pray its not MRSA and that she can fight this infection. I know that if anyone can beat this, my child can. We will not be home the 1st week of Nov., but thats ok. We'll stay as long as needed, and I am grateful that we are here at Shriners with our doc. > I cant read posts, so I hope you and all the littles are doing great. Ill have post as soon as I know what is going on. > Im out....(can someone post an update on Facebook, as I just cant) > Love, > HRH > **Thanks for sending my girl cards, etc....It really does mean a lot to receive such support during this difficult time. Please, please continue to support/fundraise for ISOP while Im out of pocket. Lets keep this little ship afloat! XOXOXO > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2009 Report Share Posted October 12, 2009 ,What a GREAT idea!!! Oh I hope someone might have a connection.Maybe send a private message too so she doesn't have to try to go through all the post here.Or if you are friends with her on FB send her a message there. TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.htmlFrom: juliegrace777 To: infantile_scoliosis Sent: Mon, October 12, 2009 12:16:40 PMSubject: Re: Liv update Oh , this is insane. There are bad unjust unfair things on this earth, and there is absolutely no purpose nor reason for Liv to be in that type of pain. None. I wish I could be there to just give you a hug. We're doing all we can here to send the most positive thoughts and prayers your way. She will make it through this a happy girl because of your love, dedication and commitment to her. Much love, , ino & (and my sister, ) P.S. Does she still like Keys? I've actually 'tweeted' for the first time to asking if there is anyway she could visit SLC shriner's (I didn't want to mention your name on twitter). To the group: Does anyone have any connections/ contacts that could contact Keys? - let me know if this is at all inapppropriate for you right now, but I thought a distraction like Keys would be so helpful to Liv! > > Bad news. Liv has developed an infection in the incision over her left iliac crest. She developed a fever yesterday at 11 am and by 7 pm we knew it was not a cold. A resident came in by midnight and we had to remove bandages, squeeze all the puss/blood out, and stick a swab in the open wound to get a proper culture, with no meds except valium and tylenol. Results should be in by tomorrow. She is on IV antibiotic that will address aerobic/anerobic infection/bacteria until we know what we are dealing with. We started this horrific process at midnight and it ended at 6 am. She screamed and cried in excruciating pain the entire time. It was the worst, most frightening experience we have ever had since diagnosis at 5 months old. It was the worst night of my life (and hers too). Tomorrow and weds she will have to go back into the OR for a thorough cleaning of the wound/infection. I have slept only 2 hrs in the last 2 days and must get rest tonight, so I can care for my sweet girl for this next round. Please pray for my little girl. Please pray its not MRSA and that she can fight this infection. I know that if anyone can beat this, my child can. We will not be home the 1st week of Nov., but thats ok. We'll stay as long as needed, and I am grateful that we are here at Shriners with our doc. > I cant read posts, so I hope you and all the littles are doing great. Ill have post as soon as I know what is going on. > Im out....(can someone post an update on Facebook, as I just cant) > Love, > HRH > **Thanks for sending my girl cards, etc....It really does mean a lot to receive such support during this difficult time. Please, please continue to support/fundraise for ISOP while Im out of pocket. Lets keep this little ship afloat! XOXOXO > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2009 Report Share Posted October 13, 2009 That is awesome news ! Will continue to pray that God gives strength to you and Liv and wisdom and skill to the doctors. Love ya. shellie Subject: Liv updateTo: infantile_scoliosis Date: Monday, October 12, 2009, 7:52 PM Quick update:She is still in recovery, but her doc just came to give me the good news!!!!!!!! ! The wound looked great and there wasnt even any puss or drainage. They cleaned it thoroughly, did another culture and decided that it did not warrant a PIC line or wound vac!!! YAY!!!!!!! We still dont know if its MRSA, but I think NOT! My family and I are crying tears of joy....Im not sure when we will get culture results and obviously its some sort of staph, but it didnt go deep and I believe we have a fighting chance because we got most of it out the other night and started antibiotics immediately/ aggressively. Im on cloud nine for the moment and wanted to let you all know that things are looking up. She is going to be so happy about not having the PIC/wound vac. We are so lucky to be here at Shriners. I know that if we were not here, I may be fighting with ins. companies to actually get the wound vac (the gold standard for fighting major wound infections)! I wish I had time to read posts, but you know how that goes.....Must love on my girl tonight and thank God/universe for watching over us again.The prayers are working and I am so grateful to everyone in our little CAST family. Ill post again as soon as results are in....Please keep praying.LOVE,Heath Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2009 Report Share Posted October 13, 2009 , Thank you for taking time to post this. Thank God for giving the skill and wisdom to the doctors and nurses to take care of Liv the way she needs to be taken care of. Please give her my love!! Now, go get some rest!!Love you, Gail "The Earth is the insane asylum for the rest of universe" “Normal is just a setting on the washing machine.†-BumperSnickerz. ********************************************************************Mom to , 11/28/98 - ADHD/ODD/SIDand , 02/02/02 - Congenital Scoliosis, VATER Association (vertebral and renal anomalies), Torticollis, Klippel Feil Syndrome, Fused Ribs, First VEPTR Recipient at Cincinnati Children's Hospital 3/21/05, VEPTR Expansions: 11/05, 04/20/06, 6/12/08 and 8/14/09; Mole (Spitz Nevus) removal: 11/26/07 & 2/11/08 Subject: Liv updateTo: infantile_scoliosis Date: Monday, October 12, 2009, 7:52 PM Quick update:She is still in recovery, but her doc just came to give me the good news!!!!!!!! ! The wound looked great and there wasnt even any puss or drainage. They cleaned it thoroughly, did another culture and decided that it did not warrant a PIC line or wound vac!!! YAY!!!!!!! We still dont know if its MRSA, but I think NOT! My family and I are crying tears of joy....Im not sure when we will get culture results and obviously its some sort of staph, but it didnt go deep and I believe we have a fighting chance because we got most of it out the other night and started antibiotics immediately/ aggressively. Im on cloud nine for the moment and wanted to let you all know that things are looking up. She is going to be so happy about not having the PIC/wound vac. We are so lucky to be here at Shriners. I know that if we were not here, I may be fighting with ins. companies to actually get the wound vac (the gold standard for fighting major wound infections)! I wish I had time to read posts, but you know how that goes.....Must love on my girl tonight and thank God/universe for watching over us again.The prayers are working and I am so grateful to everyone in our little CAST family. Ill post again as soon as results are in....Please keep praying.LOVE,Heath Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2009 Report Share Posted October 13, 2009 Very happy to hear this, great news!!! Still praying for you, her, and your family. Melinda Mommy of Marlycia 9 mnths, Natalya 23 mnths Scranton, PA Liv updateTo: infantile_scoliosis Date: Tuesday, October 13, 2009, 12:52 AM Quick update:She is still in recovery, but her doc just came to give me the good news!!!!!!!! ! The wound looked great and there wasnt even any puss or drainage. They cleaned it thoroughly, did another culture and decided that it did not warrant a PIC line or wound vac!!! YAY!!!!!!! We still dont know if its MRSA, but I think NOT! My family and I are crying tears of joy....Im not sure when we will get culture results and obviously its some sort of staph, but it didnt go deep and I believe we have a fighting chance because we got most of it out the other night and started antibiotics immediately/ aggressively. Im on cloud nine for the moment and wanted to let you all know that things are looking up. She is going to be so happy about not having the PIC/wound vac. We are so lucky to be here at Shriners. I know that if we were not here, I may be fighting with ins. companies to actually get the wound vac (the gold standard for fighting major wound infections)! I wish I had time to read posts, but you know how that goes.....Must love on my girl tonight and thank God/universe for watching over us again.The prayers are working and I am so grateful to everyone in our little CAST family. Ill post again as soon as results are in....Please keep praying.LOVE,Heath Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2009 Report Share Posted October 13, 2009 YAY!~Noah 4 years old9 months of casting in SLC; Currently on 1 1/2 years of bracingAnd Mariella 8 months old currently waiting and watching at 11* To: infantile_scoliosis From: heather@...Date: Tue, 13 Oct 2009 00:52:19 +0000Subject: Liv update Quick update:She is still in recovery, but her doc just came to give me the good news!!!!!!!!! The wound looked great and there wasnt even any puss or drainage. They cleaned it thoroughly, did another culture and decided that it did not warrant a PIC line or wound vac!!! YAY!!!!!!! We still dont know if its MRSA, but I think NOT! My family and I are crying tears of joy....Im not sure when we will get culture results and obviously its some sort of staph, but it didnt go deep and I believe we have a fighting chance because we got most of it out the other night and started antibiotics immediately/aggressively. Im on cloud nine for the moment and wanted to let you all know that things are looking up. She is going to be so happy about not having the PIC/wound vac. We are so lucky to be here at Shriners. I know that if we were not here, I may be fighting with ins. companies to actually get the wound vac (the gold standard for fighting major wound infections)! I wish I had time to read posts, but you know how that goes.....Must love on my girl tonight and thank God/universe for watching over us again.The prayers are working and I am so grateful to everyone in our little CAST family. Ill post again as soon as results are in....Please keep praying.LOVE,Heath Hotmail: Trusted email with powerful SPAM protection. Sign up now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2009 Report Share Posted October 14, 2009 , DITTO!!!!!!!!!!!!!!! Patty, mom of Isabella, 2 years old, in 2nd cast (Rochester) & mom to & EvanTo: infantile_scoliosis Sent: Mon, October 12, 2009 9:45:18 PMSubject: Re: Liv update I am tearing up for joy for you tonight. Thank God and your Dr's of course for this good news. WE are still praying for her and you. Please get some rest and let us know the results of the culture. Much love, Joanmom to Hayden 2 1/233 degrees1st cast down from 62 degrees Treated at ish Rite Hospital Dallas, TX From: "heather@infantiles coliosis. org" <heather@infantilesc oliosis.org>To: infantile_scoliosis @yahoogroups. comSent: Monday, October 12, 2009 7:52:19 PMSubject: [infantile_scoliosi s] Liv update Quick update:She is still in recovery, but her doc just came to give me the good news!!!!!!!! ! The wound looked great and there wasnt even any puss or drainage. They cleaned it thoroughly, did another culture and decided that it did not warrant a PIC line or wound vac!!! YAY!!!!!!! We still dont know if its MRSA, but I think NOT! My family and I are crying tears of joy....Im not sure when we will get culture results and obviously its some sort of staph, but it didnt go deep and I believe we have a fighting chance because we got most of it out the other night and started antibiotics immediately/ aggressively. Im on cloud nine for the moment and wanted to let you all know that things are looking up. She is going to be so happy about not having the PIC/wound vac. We are so lucky to be here at Shriners. I know that if we were not here, I may be fighting with ins. companies to actually get the wound vac (the gold standard for fighting major wound infections)! I wish I had time to read posts, but you know how that goes.....Must love on my girl tonight and thank God/universe for watching over us again.The prayers are working and I am so grateful to everyone in our little CAST family. Ill post again as soon as results are in....Please keep praying.LOVE,Heath Quote Link to comment Share on other sites More sharing options...
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