Re: Salt and heart size in PA

[Guest guest]

Some misconceptions out there. I actually had a lady say today that she knew that docs and PA's and NP's get paid for every prescription they write! Crazy. Who's paying us? I can only assume she meant the filthy pharmaceutical companies do (the same company she still wants to produce her pain pills though) The only one paying a doc is only the patient or their insurance, and only sometimes doesthe patient pay as sometimes they will "pay you later" and never see them again. But no one gets paid for writing prescriptions. I wonder how things like that start.

As to docs and other providers , Most don't think that way really, meaning they only see an organ system, I mean providers do stand to gain alot if we find the answer, if just satisfaction - but I think prividers too often look and settle for the quickest answer, sometimes to satisfy the patient who wants to know NOW and wants to leave with some present from the office. So they develop a bad habit of doing that to satisfy the patient. I

Sometimes patients - us - do ignore some things until that problem now interacted with another system/organ and that one now went awry too, So two sides, and many of us we're likely guilty of the same things we often get mad about, like not taking care of our whole system.

Now, If providers were truly holistic then think about it, a doc would likely have very little patients because they would piss everyone off preaching because not a single one of us (though we say we do) patients eats perfect, excercises like we should, keeps our minds active, gives up ALL of our bad habits, attends to our religion as we should, etc.....my point being illness IS often whole body, but we are often as patients as much the culprit at not taking care of our whole body as they are as not looking at the whole body.

BUT rudeness, ignoring the patient, belittling them, rolling their eyes, cutting us off when we have something important to say (that just might be the key to diagnosis), get's little sympathy from me. My doc(s) can't be perfect, but my beef was they just didn't listen or lumped me into some other category - which is nearly always the "stress" "depression" "malingerer" drug seeker" categories, THAT is failing to look at everything. I think ego got in the way most of the time, or time constraints, but not that they WANT to focus on one thing. Docs don't usually think like that intentionally, it becomes a habit.

Again this goes back to Vals assertion? Do I have sarc , lymes disease or PA or are they all connected? I have symptoms of all threePhyllis

Sent from my Verizon Wireless BlackBerry

Sender: hyperaldosteronism

Date: Wed, 16 Nov 2011 15:00:59 +0000

To: <hyperaldosteronism >

ReplyTo: hyperaldosteronism

Subject: Re: Salt and heart size in PA

I agree we need to limit what we talk about. I would put Sarcoidosis as being somewhat like Lymes in that it can affect many things in our body. There are 126 posting related to Sarcoidosis. Did find this in one of the early postings. Belive you have worked with Dr Weinberger. I saw Dr. Weinberger today. My goodness, I am impressed! He wants toagain test for pheo and mentioned carcinoid. He also said that every(or nearly every - can't remember) PA he has seen also has sarcoidosis> > >> >> >>

[Guest guest]

Some misconceptions out there. I actually had

a lady say today that she knew that docs and

PA's and NP's get paid for every prescription

they write! Crazy. Who's paying us? I can only

assume she meant the filthy pharmaceutical

companies do (the same company she still wants

to produce her pain pills though) The only one

paying a doc is only the patient or their

insurance, and only sometimes doesthe patient

pay as sometimes they will "pay you later" and

never see them again. But no one gets paid for

writing prescriptions. I wonder how things like

that start.

Ok they don't get paid to 'write'

prescriptions, but they are compensated indirectly with speaking

engagements, trips, gifts, etc.

This is now public info. Every drug company has to post a list of

all the doctors that have benefited from them.

http://projects.propublica.org/docdollars/

As to docs and other providers , Most don't

think that way really, meaning they only see an

organ system, I mean providers do stand to gain

alot if we find the answer, if just

satisfaction - but I think prividers too often

look and settle for the quickest answer,

sometimes to satisfy the patient who wants to

know NOW and wants to leave with some present

from the office. So they develop a bad habit of

doing that to satisfy the patient. I

WHat I meant was this. I once had respiratory

problems and I coughed for 3 years. Naturally the doc thought

something was wrong with my lungs. I had 30,000 dollars worth

of tests. Couldnt find a problem. I asked the doctor could

something else be causing me to cough. He said only the lungs and

GI system could cause coughing. Make long story short, it was my

Lisinopril. I stopped the 4 dollar pill and the breathing problems

stopped. Not their fault, It was the way they were trained. This

is why you have Cardiologiosts, Gastroenterologists,

Pulmonologists, etc. I never met an Cardiologists interested in my

uterus or my brain or GU system.

Sometimes patients - us - do ignore some

things until that problem now interacted with

another system/organ and that one now went awry

too, So two sides, and many of us we're likely

guilty of the same things we often get mad

about, like not taking care of our whole system.

Now, If providers were truly holistic

then think about it, a doc would likely have

very little patients because they would piss

everyone off preaching because not a single one

of us (though we say we do) patients eats

perfect, excercises like we should, keeps our

minds active, gives up ALL of our bad habits,

attends to our religion as we should, etc.....my

point being illness IS often whole body, but we

are often as patients as much the culprit at not

taking care of our whole body as they are as not

looking at the whole body.

I hear the same story repeated over and over

here again. Pt is on 6 bp pills with still high blood pressure.

Doctors then wants to blame you ie excess weight, lack of

exercise,

But common sense should tell anyone that if a person needs 6 bp

pills something else is wrong. But like everything else in life ,

the standards are being lowered for other professions

and this includes doctors .

Phyllis

BUT rudeness, ignoring the patient,

belittling them, rolling their eyes, cutting us

off when we have something important to say

(that just might be the key to diagnosis), get's

little sympathy from me. My doc(s) can't be

perfect, but my beef was they just didn't listen

or lumped me into some other category - which is

nearly always the "stress" "depression"

"malingerer" drug seeker" categories, THAT is

failing to look at everything. I think ego got

in the way most of the time, or time

constraints, but not that they WANT to focus on

one thing. Docs don't usually think like that

intentionally, it becomes a habit.

From: Phyllis -

Subject: Re: Re: Salt and

heart size in PA

To: hyperaldosteronism

Date: Wednesday, November 16, 2011, 11:51 AM

this is the exact problem I am

having. Doctors try and diagnose

symptoms to organs . The body is one

organism and I think when one organ goes

awry the whole body is affected.

This is why they call it practicing

medicine I think.

Phyllis

Sent from my Verizon Wireless

BlackBerry

From: " Bingham"

Sender: hyperaldosteronism

Date: Wed, 16 Nov 2011

09:32:25 -0700

To: hyperaldosteronism <hyperaldosteronism >

ReplyTo: hyperaldosteronism

Subject: Re:

Re: Salt and

heart size in PA

You actually have symptoms of a

lot more than those three. So it in

theory could be one of them, all

three (odds the least likely by far)

or none of them. Just sayin......

Sent

from my Palm Pre on the Now

Network from Sprint

[Guest guest]

Remember heart diseAse and HTN are not normal for the human genome. Only when we feed it wrong and/not exercise enough. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension

Some misconceptions out there. I actually had a lady say today that she knew that docs and PA's and NP's get paid for every prescription they write! Crazy. Who's paying us? I can only assume she meant the filthy pharmaceutical companies do (the same company she still wants to produce her pain pills though) The only one paying a doc is only the patient or their insurance, and only sometimes doesthe patient pay as sometimes they will "pay you later" and never see them again. But no one gets paid for writing prescriptions. I wonder how things like that start.

As to docs and other providers , Most don't think that way really, meaning they only see an organ system, I mean providers do stand to gain alot if we find the answer, if just satisfaction - but I think prividers too often look and settle for the quickest answer, sometimes to satisfy the patient who wants to know NOW and wants to leave with some present from the office. So they develop a bad habit of doing that to satisfy the patient. I

Sometimes patients - us - do ignore some things until that problem now interacted with another system/organ and that one now went awry too, So two sides, and many of us we're likely guilty of the same things we often get mad about, like not taking care of our whole system.

Now, If providers were truly holistic then think about it, a doc would likely have very little patients because they would piss everyone off preaching because not a single one of us (though we say we do) patients eats perfect, excercises like we should, keeps our minds active, gives up ALL of our bad habits, attends to our religion as we should, etc.....my point being illness IS often whole body, but we are often as patients as much the culprit at not taking care of our whole body as they are as not looking at the whole body.

BUT rudeness, ignoring the patient, belittling them, rolling their eyes, cutting us off when we have something important to say (that just might be the key to diagnosis), get's little sympathy from me. My doc(s) can't be perfect, but my beef was they just didn't listen or lumped me into some other category - which is nearly always the "stress" "depression" "malingerer" drug seeker" categories, THAT is failing to look at everything. I think ego got in the way most of the time, or time constraints, but not that they WANT to focus on one thing. Docs don't usually think like that intentionally, it becomes a habit.

Again this goes back to Vals assertion? Do I have sarc , lymes disease or PA or are they all connected? I have symptoms of all threePhyllis

Sent from my Verizon Wireless BlackBerry

Sender: hyperaldosteronism

Date: Wed, 16 Nov 2011 15:00:59 +0000

To: <hyperaldosteronism >

ReplyTo: hyperaldosteronism

Subject: Re: Salt and heart size in PA

I agree we need to limit what we talk about. I would put Sarcoidosis as being somewhat like Lymes in that it can affect many things in our body. There are 126 posting related to Sarcoidosis. Did find this in one of the early postings. Belive you have worked with Dr Weinberger. I saw Dr. Weinberger today. My goodness, I am impressed! He wants toagain test for pheo and mentioned carcinoid. He also said that every(or nearly every - can't remember) PA he has seen also has sarcoidosis> > >> >> >>

[Guest guest]

I looked at the link and a lot of the actual doctors on there work FOR the company - in AZ anyway. Many teach for the drug company. If a doc wants to work for the company that's his blank blank business. This is not the same as "getting paid for writing prescriptions". Many others do research and medicines you and I take do have to be researched and not just anyone with no knowledge of medicine can do it so they hire docs - so they deserve to get paid as they do a lot of work like reports, meetings etc. Even if they do little work, good for them for winning a lottery.

If they are dishonest or hiding info then they should get what they deserve. If they are just talking up a product and getting paid for it, so freakin what?

People may not like the money they get paid...if not I say to people go back to school then and report back when you graduate and tell us if they felt they do not deserve the pay being offered and if that when were offered $200 an hour to work the ER you thought about it and told the place you work, "No, I am only worth $50 and hour." Not a single person on here would do anything like that. Not one.

It is not a whispered "Hey write 20 scripts this month for us and we'll send you to Cancun."

I know people want to believe that and do anyway, but it's not true.

[Guest guest]

Well unless you are implanting a new knee or other joint. They are cracking down on that now for good reason.CE Grim MD I looked at the link and a lot of the actual doctors on there work FOR the company - in AZ anyway. Many teach for the drug company. If a doc wants to work for the company that's his blank blank business. This is not the same as "getting paid for writing prescriptions". Many others do research and medicines you and I take do have to be researched and not just anyone with no knowledge of medicine can do it so they hire docs - so they deserve to get paid as they do a lot of work like reports, meetings etc. Even if they do little work, good for them for winning a lottery. If they are dishonest or hiding info then they should get what they deserve. If they are just talking up a product and getting paid for it, so freakin what? People may not like the money they get paid...if not I say to people go back to school then and report back when you graduate and tell us if they felt they do not deserve the pay being offered and if that when were offered $200 an hour to work the ER you thought about it and told the place you work, "No, I am only worth $50 and hour." Not a single person on here would do anything like that. Not one. It is not a whispered "Hey write 20 scripts this month for us and we'll send you to Cancun." I know people want to believe that and do anyway, but it's not true.

[Guest guest]

If sarcoidosis and PA can be related, why not allow the discussion? Especially if PA is mistaken for other diseases or vice versa. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Francis Bill SUSPECTED PAI agree we need to limit what we talk about. I would put Sarcoidosis as being somewhat like Lymes in that it can affect many things in our body. There are 126 posting related to Sarcoidosis. Did find this in one of the early postings. Belive you have worked with Dr Weinberger. I saw Dr. Weinberger today. My goodness, I am impressed! He wants toagain test for pheo and mentioned carcinoid. He also said that every(or nearly every - can't remember) PA he has seen also has sarcoidosis

[Guest guest]

OK to discuss but do not need to include a complete textbook chapter in the note. Better to link to it. I am certain this person has misquoted Dr.Weinberger incorrectly.CE Grim MD If sarcoidosis and PA can be related, why not allow the discussion? Especially if PA is mistaken for other diseases or vice versa. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Francis Bill SUSPECTED PAI agree we need to limit what we talk about. I would put Sarcoidosis as being somewhat like Lymes in that it can affect many things in our body. There are 126 posting related to Sarcoidosis. Did find this in one of the early postings. Belive you have worked with Dr Weinberger. I saw Dr. Weinberger today. My goodness, I am impressed! He wants toagain test for pheo and mentioned carcinoid. He also said that every(or nearly every - can't remember) PA he has seen also has sarcoidosis

[Guest guest]

It was Val that quoted Dr.Weinberger.

>

> >

> > If sarcoidosis and PA can be related, why not allow the discussion?

> > Especially if PA is mistaken for other diseases or vice versa.

> >

> >

> >

> > Val

> >

> >

> >

> > From: hyperaldosteronism

[mailto:hyperaldosteronism

> > ] On Behalf Of Francis Bill SUSPECTED PA

> >

> >

> > I agree we need to limit what we talk about. I would put Sarcoidosis

> > as being somewhat like Lymes in that it can affect many things in

> > our body. There are 126 posting related to Sarcoidosis. Did find

> > this in one of the early postings. Belive you have worked with Dr

> > Weinberger.

> >

> > I saw Dr. Weinberger today. My goodness, I am impressed! He wants to

> > again test for pheo and mentioned carcinoid. He also said that every

> > (or nearly every - can't remember) PA he has seen also has sarcoidosis

> >

> >

> >

> >

> >

>

[Guest guest]

Whopps you may be right. This is Dr. Weinberger's son she saw in Denver as I recall. I worked with his Dad for 10 years at Indiana. But i still suspect she must have quoted him incorrectly.Maybe some one can do a pub med search for PA AND Sarcoid and see if there is any reported association.CE Grim MDOn Nov 22, 2011, at 1:51 PM, Francis Bill SUSPECTED PA wrote: It was Val that quoted Dr.Weinberger. > > > > > If sarcoidosis and PA can be related, why not allow the discussion? > > Especially if PA is mistaken for other diseases or vice versa. > > > > > > > > Val > > > > > > > > From: hyperaldosteronism [mailto:hyperaldosteronism > > ] On Behalf Of Francis Bill SUSPECTED PA > > > > > > I agree we need to limit what we talk about. I would put Sarcoidosis > > as being somewhat like Lymes in that it can affect many things in > > our body. There are 126 posting related to Sarcoidosis. Did find > > this in one of the early postings. Belive you have worked with Dr > > Weinberger. > > > > I saw Dr. Weinberger today. My goodness, I am impressed! He wants to > > again test for pheo and mentioned carcinoid. He also said that every > > (or nearly every - can't remember) PA he has seen also has sarcoidosis > > > > > > > > > > >

[Guest guest]

Whether it is in Pubmed or not is irrevalent... they said I had

sarcoid, I had all the symptoms of sarcoid except one.

I even had the swollen neck glands. I started Inspra and dash and

the symptoms went away/going away.

I rejected this diagnosis of sarcoid anyway cause I never heard of

anyone with sarcoid without having their lungs affected.

I had two CT scans of the lung which were both negative.

Phyllis

Whopps you may be right. This is Dr. Weinberger's son

she saw in Denver as I recall. I worked with his Dad for

10 years at Indiana.

But i still suspect she must have quoted him

incorrectly.

Maybe some one can do a pub med search for PA AND

Sarcoid and see if there is any reported association.

CE Grim MD

On Nov 22, 2011, at 1:51 PM, Francis Bill SUSPECTED

PA wrote:

It was Val that quoted Dr.Weinberger.

>

> >

> > If sarcoidosis and PA can be related,

why not allow the discussion?

> > Especially if PA is mistaken for other

diseases or vice versa.

> >

> >

> >

> > Val

> >

> >

> >

> > From: hyperaldosteronism

[mailto:hyperaldosteronism

> > ] On Behalf Of Francis Bill SUSPECTED

PA

> >

> >

> > I agree we need to limit what we talk

about. I would put Sarcoidosis

> > as being somewhat like Lymes in that

it can affect many things in

> > our body. There are 126 posting

related to Sarcoidosis. Did find

> > this in one of the early postings.

Belive you have worked with Dr

> > Weinberger.

> >

> > I saw Dr. Weinberger today. My

goodness, I am impressed! He wants to

> > again test for pheo and mentioned

carcinoid. He also said that every

> > (or nearly every - can't remember) PA

he has seen also has sarcoidosis

> >

> >

> >

> >

> >

>

[Guest guest]

Phyllis, I'm not qualified to DX sarcoidosis and in fact was curious what it

was so I just looked it up. It appears your assumption is correct 90% of the

time but it doesn't affect the lungs ~10% of the time according to this research

group:

http://www.stopsarcoidosis.org/sarcoidosis/diseasefacts.htm

The good news is that if it is going away that may be the right treatment!

- 65 yo super ob. male - 12mm X 13mm rt. a.adnoma with previous rt. flank

pain. Treating with Meds. And DASH. . Current BP(last week ave): 131/76 HR 60

Other Issues/Opportunities: OSA w Bi-Pap settings 13/19, DM2, and PTSD.

Meds: Duloxetine hcl 80 MG, Metoprolol Tartrate 200 MG, 81mg asprin, Metformin

2000MG and Spironolactone 50 MG.

> >> >

> >> > >

> >> > > If sarcoidosis and PA can be related, why not allow the discussion?

> >> > > Especially if PA is mistaken for other diseases or vice versa.

> >> > >

> >> > >

> >> > >

> >> > > Val

> >> > >

> >> > >

> >> > >

> >> > > From: hyperaldosteronism

> >> <mailto:hyperaldosteronism%40yahoogroups.com>

> >> [mailto:hyperaldosteronism

> >> <mailto:hyperaldosteronism%40yahoogroups.com>

> >> > > ] On Behalf Of Francis Bill SUSPECTED PA

> >> > >

> >> > >

> >> > > I agree we need to limit what we talk about. I would put Sarcoidosis

> >> > > as being somewhat like Lymes in that it can affect many things in

> >> > > our body. There are 126 posting related to Sarcoidosis. Did find

> >> > > this in one of the early postings. Belive you have worked with Dr

> >> > > Weinberger.

> >> > >

> >> > > I saw Dr. Weinberger today. My goodness, I am impressed! He wants to

> >> > > again test for pheo and mentioned carcinoid. He also said that every

> >> > > (or nearly every - can't remember) PA he has seen also has

> >> sarcoidosis

> >> > >

> >> > >

> >> > >

> >> > >

> >> > >

> >> >

> >>

> >

> >

>

[Guest guest]

Hi , thanks for the info. I use to follow this particular group

on inspire.com. This Stop Sarcoidosis group is only interested in

feeling sorry for themselves.

They hate for you to think for yourself. There answer is only

prednisone and plaquenil. They wont allow you to post anything

different than 'woe is me' and what celebrity died from Sarcoidosis.

They 'brag' about how there is no cure. When I posted and told them

I felt better on Inspra and dashing they didnt want to hear it and

basically tuned

me out. At least I brought the info they can do what they want to

with it.

Phyllis

Phyllis, I'm not qualified to DX sarcoidosis and in fact

was curious what it was so I just looked it up. It appears

your assumption is correct 90% of the time but it doesn't

affect the lungs ~10% of the time according to this

research group:

http://www.stopsarcoidosis.org/sarcoidosis/diseasefacts.htm

The good news is that if it is going away that may be the

right treatment!

- 65 yo super ob. male - 12mm X 13mm rt. a.adnoma

with previous rt. flank pain. Treating with Meds. And

DASH. . Current BP(last week ave): 131/76 HR 60

Other Issues/Opportunities: OSA w Bi-Pap settings 13/19,

DM2, and PTSD.

Meds: Duloxetine hcl 80 MG, Metoprolol Tartrate 200 MG,

81mg asprin, Metformin 2000MG and Spironolactone 50 MG.

> >> >

> >> > >

> >> > > If sarcoidosis and PA can be

related, why not allow the discussion?

> >> > > Especially if PA is mistaken for

other diseases or vice versa.

> >> > >

> >> > >

> >> > >

> >> > > Val

> >> > >

> >> > >

> >> > >

> >> > > From: hyperaldosteronism

> >>

<mailto:hyperaldosteronism%40yahoogroups.com>

> >> [mailto:hyperaldosteronism

> >>

<mailto:hyperaldosteronism%40yahoogroups.com>

> >> > > ] On Behalf Of Francis Bill

SUSPECTED PA

> >> > >

> >> > >

> >> > > I agree we need to limit what we

talk about. I would put Sarcoidosis

> >> > > as being somewhat like Lymes in

that it can affect many things in

> >> > > our body. There are 126 posting

related to Sarcoidosis. Did find

> >> > > this in one of the early postings.

Belive you have worked with Dr

> >> > > Weinberger.

> >> > >

> >> > > I saw Dr. Weinberger today. My

goodness, I am impressed! He wants to

> >> > > again test for pheo and mentioned

carcinoid. He also said that every

> >> > > (or nearly every - can't remember)

PA he has seen also has

> >> sarcoidosis

> >> > >

> >> > >

> >> > >

> >> > >

> >> > >

> >> >

> >>

> >

> >

>

[Guest guest]

It is a tricky diagnosis without lung shawdows. In the old days we did the Kevim skin test but think it has fallen out of favor. Best way is to look at one of the lesions under the microscope as I recall. So how exactly did they make the diagnosis?Symptoms do not a diagnosis make! Espeicaly for a disease like Sarcoid which can affect almost every organ.In some areas it is used as a wastebasket Dx to explain Sx when nothing else fits.CE Grim MD Whether it is in Pubmed or not is irrevalent... they said I had sarcoid, I had all the symptoms of sarcoid except one. I even had the swollen neck glands. I started Inspra and dash and the symptoms went away/going away. I rejected this diagnosis of sarcoid anyway cause I never heard of anyone with sarcoid without having their lungs affected. I had two CT scans of the lung which were both negative. Phyllis Whopps you may be right. This is Dr. Weinberger's son she saw in Denver as I recall. I worked with his Dad for 10 years at Indiana. But i still suspect she must have quoted him incorrectly. Maybe some one can do a pub med search for PA AND Sarcoid and see if there is any reported association. CE Grim MD On Nov 22, 2011, at 1:51 PM, Francis Bill SUSPECTED PA wrote: It was Val that quoted Dr.Weinberger. > > > > > If sarcoidosis and PA can be related, why not allow the discussion? > > Especially if PA is mistaken for other diseases or vice versa. > > > > > > > > Val > > > > > > > > From: hyperaldosteronism [mailto:hyperaldosteronism > > ] On Behalf Of Francis Bill SUSPECTED PA > > > > > > I agree we need to limit what we talk about. I would put Sarcoidosis > > as being somewhat like Lymes in that it can affect many things in > > our body. There are 126 posting related to Sarcoidosis. Did find > > this in one of the early postings. Belive you have worked with Dr > > Weinberger. > > > > I saw Dr. Weinberger today. My goodness, I am impressed! He wants to > > again test for pheo and mentioned carcinoid. He also said that every > > (or nearly every - can't remember) PA he has seen also has sarcoidosis > > > > > > > > > > >

[Guest guest]

There may be no cure but most cases get better on there own even without

treatment. Guess when this happnes it can be called a cure. Some like my brother

do have it return every few years.

> > > >> >

> > > >> > >

> > > >> > > If sarcoidosis and PA can be related, why not allow the

> > discussion?

> > > >> > > Especially if PA is mistaken for other diseases or vice versa.

> > > >> > >

> > > >> > >

> > > >> > >

> > > >> > > Val

> > > >> > >

> > > >> > >

> > > >> > >

> > > >> > > From: hyperaldosteronism

> > <mailto:hyperaldosteronism%40yahoogroups.com>

> > > >> <mailto:hyperaldosteronism%40yahoogroups.com>

> > > >> [mailto:hyperaldosteronism

> > <mailto:hyperaldosteronism%40yahoogroups.com>

> > > >> <mailto:hyperaldosteronism%40yahoogroups.com>

> > > >> > > ] On Behalf Of Francis Bill SUSPECTED PA

> > > >> > >

> > > >> > >

> > > >> > > I agree we need to limit what we talk about. I would put

> > Sarcoidosis

> > > >> > > as being somewhat like Lymes in that it can affect many things in

> > > >> > > our body. There are 126 posting related to Sarcoidosis. Did find

> > > >> > > this in one of the early postings. Belive you have worked with Dr

> > > >> > > Weinberger.

> > > >> > >

> > > >> > > I saw Dr. Weinberger today. My goodness, I am impressed! He

> > wants to

> > > >> > > again test for pheo and mentioned carcinoid. He also said

> > that every

> > > >> > > (or nearly every - can't remember) PA he has seen also has

> > > >> sarcoidosis

> > > >> > >

> > > >> > >

> > > >> > >

> > > >> > >

> > > >> > >

> > > >> >

> > > >>

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

remember a few years age when the state of VT had six workers that worked

Bennington all had been DX with sarcoidosis?

> > >> >

> > >> > >

> > >> > > If sarcoidosis and PA can be related, why not allow the discussion?

> > >> > > Especially if PA is mistaken for other diseases or vice versa.

> > >> > >

> > >> > >

> > >> > >

> > >> > > Val

> > >> > >

> > >> > >

> > >> > >

> > >> > > From: hyperaldosteronism

> > >> <mailto:hyperaldosteronism%40yahoogroups.com>

> > >> [mailto:hyperaldosteronism

> > >> <mailto:hyperaldosteronism%40yahoogroups.com>

> > >> > > ] On Behalf Of Francis Bill SUSPECTED PA

> > >> > >

> > >> > >

> > >> > > I agree we need to limit what we talk about. I would put Sarcoidosis

> > >> > > as being somewhat like Lymes in that it can affect many things in

> > >> > > our body. There are 126 posting related to Sarcoidosis. Did find

> > >> > > this in one of the early postings. Belive you have worked with Dr

> > >> > > Weinberger.

> > >> > >

> > >> > > I saw Dr. Weinberger today. My goodness, I am impressed! He wants to

> > >> > > again test for pheo and mentioned carcinoid. He also said that every

> > >> > > (or nearly every - can't remember) PA he has seen also has

> > >> sarcoidosis

> > >> > >

> > >> > >

> > >> > >

> > >> > >

> > >> > >

> > >> >

> > >>

> > >

> > >

> >

>

[Guest guest]

It's a new thing for me, but they are considering sarcoidosis in me too. The doc I work with suggested it first when I was talking about my history and the rash and lumps.

They are debating who to send me to (which specialist), and get it approved, because I have had these lumps develop in my abdomen (that NO mention is made in ANY CT scans I have had that they are even there ) that they want to biopsy. I also have had a raised rash come and go on my anterior lower legs that's there now (that's bumpy, but more subtle - not like a big erythema nodosum which is more sarcoid like, but is there nonetheless) and I have lost the hair there,

Plus.....I have very very chronic sinus issues (I though they were due to clonidine, but I am not taking it anymore) and I mentioned to them how I had developed kind of a trigeminal neuralgia on my rt side face, since about a year and half that doesn't "hurt" but feels like such a severe tingle from my nose to my rt eye, that I can't drive when it hits and have to pull over. Seems cold or heat suddenly brings it on. And last, I think, the chronic red eyes - even with BP controlled and the endocrinologist said something about sarcoidosis is known to affect the thyroid and he is wondering if it may have been the cause of my unexplainable hyperthyroidism.

I don't hold my breath on much anymore, but it'd be good to know. It's certainly not a death sentence. I will keep us posted as we go - I am seeing a GI first for the lumps....oh and I was severely anemic last blood test, but that too we don't know why. I have no idea why as my diet is strong in iron and green leafy veggies these days.

Oh yeah....one more thing....my last chest CT - done in the ER when I had gone in for severe HTN and hypokalemia said I had "induration of unknown cause in the mediastinum" .....that was from early 2009 and I just got my records a few months back. It said that it was highly recommended it be followed up on ASAP.

I showed it to the doc and he thinks it was possible lymph nodes swelling.

Of course....the ER never mentioned this in any way nor had me follow up..........

Subject: Re: Salt and heart size in PATo: hyperaldosteronism Date: Wednesday, November 23, 2011, 5:33 PM

remember a few years age when the state of VT had six workers that worked Bennington all had been DX with sarcoidosis?>> Phyllis, I'm not qualified to DX sarcoidosis and in fact was curious what it was so I just looked it up. It appears your assumption is correct 90% of the time but it doesn't affect the lungs ~10% of the time according to this research group:>

[Guest guest]

No, but sarcoidosis wasn't on my radar. If it was long enough ago I might even

have been on the road.

- 65 yo super ob. male - 12mm X 13mm rt. a.adnoma with previous rt. flank

pain. Treating with Meds. And DASH. . Current BP(last week ave): 131/76 HR 60

Other Issues/Opportunities: OSA w Bi-Pap settings 13/19, DM2, and PTSD.

Meds: Duloxetine hcl 80 MG, Metoprolol Tartrate 200 MG, 81mg asprin, Metformin

2000MG and Spironolactone 50 MG.

> > > >> >

> > > >> > >

> > > >> > > If sarcoidosis and PA can be related, why not allow the discussion?

> > > >> > > Especially if PA is mistaken for other diseases or vice versa.

> > > >> > >

> > > >> > >

> > > >> > >

> > > >> > > Val

> > > >> > >

> > > >> > >

> > > >> > >

> > > >> > > From: hyperaldosteronism

> > > >> <mailto:hyperaldosteronism%40yahoogroups.com>

> > > >> [mailto:hyperaldosteronism

> > > >> <mailto:hyperaldosteronism%40yahoogroups.com>

> > > >> > > ] On Behalf Of Francis Bill SUSPECTED PA

> > > >> > >

> > > >> > >

> > > >> > > I agree we need to limit what we talk about. I would put

Sarcoidosis

> > > >> > > as being somewhat like Lymes in that it can affect many things in

> > > >> > > our body. There are 126 posting related to Sarcoidosis. Did find

> > > >> > > this in one of the early postings. Belive you have worked with Dr

> > > >> > > Weinberger.

> > > >> > >

> > > >> > > I saw Dr. Weinberger today. My goodness, I am impressed! He wants

to

> > > >> > > again test for pheo and mentioned carcinoid. He also said that

every

> > > >> > > (or nearly every - can't remember) PA he has seen also has

> > > >> sarcoidosis

> > > >> > >

> > > >> > >

> > > >> > >

> > > >> > >

> > > >> > >

> > > >> >

> > > >>

> > > >

> > > >

> > >

> >

>

[Guest guest]

Most likely a case of statistical gerrymandering. What has been the flow up. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension

No, but sarcoidosis wasn't on my radar. If it was long enough ago I might even have been on the road.

- 65 yo super ob. male - 12mm X 13mm rt. a.adnoma with previous rt. flank pain. Treating with Meds. And DASH. . Current BP(last week ave): 131/76 HR 60

Other Issues/Opportunities: OSA w Bi-Pap settings 13/19, DM2, and PTSD.

Meds: Duloxetine hcl 80 MG, Metoprolol Tartrate 200 MG, 81mg asprin, Metformin 2000MG and Spironolactone 50 MG.

> > > >> >

> > > >> > >

> > > >> > > If sarcoidosis and PA can be related, why not allow the discussion?

> > > >> > > Especially if PA is mistaken for other diseases or vice versa.

> > > >> > >

> > > >> > >

> > > >> > >

> > > >> > > Val

> > > >> > >

> > > >> > >

> > > >> > >

> > > >> > > From: hyperaldosteronism

> > > >> <mailto:hyperaldosteronism%40yahoogroups.com>

> > > >> [mailto:hyperaldosteronism

> > > >> <mailto:hyperaldosteronism%40yahoogroups.com>

> > > >> > > ] On Behalf Of Francis Bill SUSPECTED PA

> > > >> > >

> > > >> > >

> > > >> > > I agree we need to limit what we talk about. I would put Sarcoidosis

> > > >> > > as being somewhat like Lymes in that it can affect many things in

> > > >> > > our body. There are 126 posting related to Sarcoidosis. Did find

> > > >> > > this in one of the early postings. Belive you have worked with Dr

> > > >> > > Weinberger.

> > > >> > >

> > > >> > > I saw Dr. Weinberger today. My goodness, I am impressed! He wants to

> > > >> > > again test for pheo and mentioned carcinoid. He also said that every

> > > >> > > (or nearly every - can't remember) PA he has seen also has

> > > >> sarcoidosis

> > > >> > >

> > > >> > >

> > > >> > >

> > > >> > >

> > > >> > >

> > > >> >

> > > >>

> > > >

> > > >

> > >

> >

>

[Guest guest]

As sarcoidosis is a diagnosis by exclusion unless one has a lesion to biopsy this means that one has to rule out by testing all other causes of the symptom complex. This will keep your Dr busy for several years at least. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension

No, but sarcoidosis wasn't on my radar. If it was long enough ago I might even have been on the road.

- 65 yo super ob. male - 12mm X 13mm rt. a.adnoma with previous rt. flank pain. Treating with Meds. And DASH. . Current BP(last week ave): 131/76 HR 60

Other Issues/Opportunities: OSA w Bi-Pap settings 13/19, DM2, and PTSD.

Meds: Duloxetine hcl 80 MG, Metoprolol Tartrate 200 MG, 81mg asprin, Metformin 2000MG and Spironolactone 50 MG.

> > > >> >

> > > >> > >

> > > >> > > If sarcoidosis and PA can be related, why not allow the discussion?

> > > >> > > Especially if PA is mistaken for other diseases or vice versa.

> > > >> > >

> > > >> > >

> > > >> > >

> > > >> > > Val

> > > >> > >

> > > >> > >

> > > >> > >

> > > >> > > From: hyperaldosteronism

> > > >> <mailto:hyperaldosteronism%40yahoogroups.com>

> > > >> [mailto:hyperaldosteronism

> > > >> <mailto:hyperaldosteronism%40yahoogroups.com>

> > > >> > > ] On Behalf Of Francis Bill SUSPECTED PA

> > > >> > >

> > > >> > >

> > > >> > > I agree we need to limit what we talk about. I would put Sarcoidosis

> > > >> > > as being somewhat like Lymes in that it can affect many things in

> > > >> > > our body. There are 126 posting related to Sarcoidosis. Did find

> > > >> > > this in one of the early postings. Belive you have worked with Dr

> > > >> > > Weinberger.

> > > >> > >

> > > >> > > I saw Dr. Weinberger today. My goodness, I am impressed! He wants to

> > > >> > > again test for pheo and mentioned carcinoid. He also said that every

> > > >> > > (or nearly every - can't remember) PA he has seen also has

> > > >> sarcoidosis

> > > >> > >

> > > >> > >

> > > >> > >

> > > >> > >

> > > >> > >

> > > >> >

> > > >>

> > > >

> > > >

> > >

> >

>

[Guest guest]

This link will give more information.

http://www.healthvermont.gov/local/Bennington_building.aspx#updates

This is a what they found.

http://www.healthvermont.gov/local/documents/120607EvaluationRpt_BSOB.pdf

One thing the state has done.

BENNINGTON SARCOIDOSIS CLAIMS -- RULES

Rule 1 PURPOSE AND CONSTRUCTION; INTERPRETATION AND APPLICATION

(a) The purpose of these rules is to implement the provisions of Act 53 (2007)

which created

a trust fund to provide benefits in lieu of workers' compensation to state

employees working in the

Bennington state office building who are diagnosed with sarcoidosis. Act 53 is

remedial

legislation intended to provide specific benefits to past and present state

workers' diagnosed with

sarcoidosis who might not be able to prove that the disease was compensable

under the workers'

compensation statutes (i.e. that it arose out of and in the course of their work

in the Bennington

state office building). Act 53 shall be liberally construed to effectuate this

purpose.

See Act 53, Sec.1(.

> > > > > >> >

> > > > > >> > >

> > > > > >> > > If sarcoidosis and PA can be related, why not allow the

discussion?

> > > > > >> > > Especially if PA is mistaken for other diseases or vice versa.

> > > > > >> > >

> > > > > >> > >

> > > > > >> > >

> > > > > >> > > Val

> > > > > >> > >

> > > > > >> > >

> > > > > >> > >

> > > > > >> > > From: hyperaldosteronism

> > > > > >> <mailto:hyperaldosteronism%40yahoogroups.com>

> > > > > >> [mailto:hyperaldosteronism

> > > > > >> <mailto:hyperaldosteronism%40yahoogroups.com>

> > > > > >> > > ] On Behalf Of Francis Bill SUSPECTED PA

> > > > > >> > >

> > > > > >> > >

> > > > > >> > > I agree we need to limit what we talk about. I would put

Sarcoidosis

> > > > > >> > > as being somewhat like Lymes in that it can affect many things

in

> > > > > >> > > our body. There are 126 posting related to Sarcoidosis. Did

find

> > > > > >> > > this in one of the early postings. Belive you have worked with

Dr

> > > > > >> > > Weinberger.

> > > > > >> > >

> > > > > >> > > I saw Dr. Weinberger today. My goodness, I am impressed! He

wants to

> > > > > >> > > again test for pheo and mentioned carcinoid. He also said that

every

> > > > > >> > > (or nearly every - can't remember) PA he has seen also has

> > > > > >> sarcoidosis

> > > > > >> > >

> > > > > >> > >

> > > > > >> > >

> > > > > >> > >

> > > > > >> > >

> > > > > >> >

> > > > > >>

> > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

> >

>

[Guest guest]

Would like to know how the folks are doing a number of years later.Wonder if CDC was involved at all? Would think they would.Interesting how the company got a state law passed to help with the health care so they would not have to do it????CE Grim MDOn Nov 26, 2011, at 12:10 PM, Francis Bill SUSPECTED PA wrote: This link will give more information. http://www.healthvermont.gov/local/Bennington_building.aspx#updates This is a what they found. http://www.healthvermont.gov/local/documents/120607EvaluationRpt_BSOB.pdf One thing the state has done. BENNINGTON SARCOIDOSIS CLAIMS -- RULES Rule 1 PURPOSE AND CONSTRUCTION; INTERPRETATION AND APPLICATION (a) The purpose of these rules is to implement the provisions of Act 53 (2007) which created a trust fund to provide benefits in lieu of workers' compensation to state employees working in the Bennington state office building who are diagnosed with sarcoidosis. Act 53 is remedial legislation intended to provide specific benefits to past and present state workers' diagnosed with sarcoidosis who might not be able to prove that the disease was compensable under the workers' compensation statutes (i.e. that it arose out of and in the course of their work in the Bennington state office building). Act 53 shall be liberally construed to effectuate this purpose. See Act 53, Sec.1(. > > > > > >> > > > > > > >> > > > > > > > >> > > If sarcoidosis and PA can be related, why not allow the discussion? > > > > > >> > > Especially if PA is mistaken for other diseases or vice versa. > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > > >> > > Val > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > > >> > > From: hyperaldosteronism > > > > > >> <mailto:hyperaldosteronism%40yahoogroups.com> > > > > > >> [mailto:hyperaldosteronism > > > > > >> <mailto:hyperaldosteronism%40yahoogroups.com> > > > > > >> > > ] On Behalf Of Francis Bill SUSPECTED PA > > > > > >> > > > > > > > >> > > > > > > > >> > > I agree we need to limit what we talk about. I would put Sarcoidosis > > > > > >> > > as being somewhat like Lymes in that it can affect many things in > > > > > >> > > our body. There are 126 posting related to Sarcoidosis. Did find > > > > > >> > > this in one of the early postings. Belive you have worked with Dr > > > > > >> > > Weinberger. > > > > > >> > > > > > > > >> > > I saw Dr. Weinberger today. My goodness, I am impressed! He wants to > > > > > >> > > again test for pheo and mentioned carcinoid. He also said that every > > > > > >> > > (or nearly every - can't remember) PA he has seen also has > > > > > >> sarcoidosis > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > >

[Guest guest]

Note this was a state of Vermont office building. Some not doing very good as

the states

http://www.vpr.net/news_detail/76213/

> > > > > > > >> >

> > > > > > > >> > >

> > > > > > > >> > > If sarcoidosis and PA can be related, why not allow

> > the discussion?

> > > > > > > >> > > Especially if PA is mistaken for other diseases or

> > vice versa.

> > > > > > > >> > >

> > > > > > > >> > >

> > > > > > > >> > >

> > > > > > > >> > > Val

> > > > > > > >> > >

> > > > > > > >> > >

> > > > > > > >> > >

> > > > > > > >> > > From: hyperaldosteronism

> > > > > > > >> <mailto:hyperaldosteronism%40yahoogroups.com>

> > > > > > > >> [mailto:hyperaldosteronism

> > > > > > > >> <mailto:hyperaldosteronism%40yahoogroups.com>

> > > > > > > >> > > ] On Behalf Of Francis Bill SUSPECTED PA

> > > > > > > >> > >

> > > > > > > >> > >

> > > > > > > >> > > I agree we need to limit what we talk about. I

> > would put Sarcoidosis

> > > > > > > >> > > as being somewhat like Lymes in that it can affect

> > many things in

> > > > > > > >> > > our body. There are 126 posting related to

> > Sarcoidosis. Did find

> > > > > > > >> > > this in one of the early postings. Belive you have

> > worked with Dr

> > > > > > > >> > > Weinberger.

> > > > > > > >> > >

> > > > > > > >> > > I saw Dr. Weinberger today. My goodness, I am

> > impressed! He wants to

> > > > > > > >> > > again test for pheo and mentioned carcinoid. He

> > also said that every

> > > > > > > >> > > (or nearly every - can't remember) PA he has seen

> > also has

> > > > > > > >> sarcoidosis

> > > > > > > >> > >

> > > > > > > >> > >

> > > > > > > >> > >

> > > > > > > >> > >

> > > > > > > >> > >

> > > > > > > >> >

> > > > > > > >>

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

> >

>