Re: Re: muscle spasms and headaches

[Guest guest]

I am thinking maybe my potassium is low b/c I've had my potassium drop to 2.5

and I remember all the symptoms and now feeling the same way, this started

couple days after spiro and I don't have blood work done until Monday...

Re: muscle spasms and headaches

Muscle spasms and headaches are likely from low potassium rather than low iron.

I'm pretty certain that some folks here have to continue taking potassium

supplements (prescription, not the OTC vitamin-aisle kind) while on spiro - I

only took spiro for a short time but my K dropped down to 2.5 within a couple

days of starting it and stopping the K supplements, so back on the K tabs I

went.

FWIW, since my adrenalectomy 5 weeks ago I have not had a single headache or

muscle spasm. My K has been steady at 4.5 - higher than it ever was while on the

supplements. Pre-adrenalectomy, my most intolerable symptoms were muscle spasms

and headaches!

-msmith1928

Nulliparous female, 46, 5'3 " , 115 lbs, CT showed 1cm left adrenal nodule, AVS

determined disease is unilateral, had left laparoscopic adrenalectomy on

10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose

intolerance, lactose intolerance, gluten intolerance (probable celiac).

--- In hyperaldosteronism , " adiffe

[Guest guest]

You may consider calling your dr. now & requesting that your K is tested. I

have been in the ER a number of times from low K. The last time I passed out &

threw up all over myself. It was really scary.

Lucy Sage

Sent from my Verizon Wireless Phone

" adifferentme@... " wrote:

>I am thinking maybe my potassium is low b/c I've had my potassium drop to 2.5

and I remember all the symptoms and now feeling the same way, this started

couple days after spiro and I don't have blood work done until Monday...

>

>

> Re: muscle spasms and headaches

>

>Muscle spasms and headaches are likely from low potassium rather than low iron.

>

>I'm pretty certain that some folks here have to continue taking potassium

supplements (prescription, not the OTC vitamin-aisle kind) while on spiro - I

only took spiro for a short time but my K dropped down to 2.5 within a couple

days of starting it and stopping the K supplements, so back on the K tabs I

went.

>

>FWIW, since my adrenalectomy 5 weeks ago I have not had a single headache or

muscle spasm. My K has been steady at 4.5 - higher than it ever was while on the

supplements. Pre-adrenalectomy, my most intolerable symptoms were muscle spasms

and headaches!

>

>-msmith1928

>Nulliparous female, 46, 5'3 " , 115 lbs, CT showed 1cm left adrenal nodule, AVS

determined disease is unilateral, had left laparoscopic adrenalectomy on

10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose

intolerance, lactose intolerance, gluten intolerance (probable celiac).

>

>--- In hyperaldosteronism , " adiffe

>

[Guest guest]

I have the prescription to go to lab so may go today. I was trying to wait until

Monday so that the spiro would be in my system for at least 1 week b/c a week

after Monday I go back to my primary dr. But I've been to ER several times this

year for different symptoms related to what I think is fron the aldo. Can't wait

to get this under control! Thanks.

Re: muscle spasms and headaches

>

>Muscle spasms and headaches are likely from low potassium rather than low iron.

>

>I'm pretty certain that some folks here have to continue taking potassium

supplements (prescription, not the OTC vitamin-aisle kind) while on spiro - I

only took sp

[Guest guest]

But were you on potassium before the spiro and di they stop potassium because they wrooied about rasing the potassium?

AND make sure they, or at least try to ask , that they test your potassium right. It is too easy to get a fasle high, but your doc will likely take the lab value as the bible

Subject: RE: Re: muscle spasms and headachesTo: hyperaldosteronism Date: Friday, November 18, 2011, 9:39 AM

I am thinking maybe my potassium is low b/c I've had my potassium drop to 2.5 and I remember all the symptoms and now feeling the same way, this started couple days after spiro and I don't have blood work done until Monday... Re: muscle spasms and headachesMuscle spasms and headaches are likely from low potassium rather than low iron.I'm pretty certain that some folks here have to continue taking potassium

supplements (prescription, not the OTC vitamin-aisle kind) while on spiro - I only took spiro for a short time but my K dropped down to 2.5 within a couple days of starting it and stopping the K supplements, so back on the K tabs I went.FWIW, since my adrenalectomy 5 weeks ago I have not had a single headache or muscle spasm. My K has been steady at 4.5 - higher than it ever was while on the supplements. Pre-adrenalectomy, my most intolerable symptoms were muscle spasms and headaches!-msmith1928Nulliparous female, 46, 5'3", 115 lbs, CT showed 1cm left adrenal nodule, AVS determined disease is unilateral, had left laparoscopic adrenalectomy on 10/13/2011. Low sodium, fructose- and grain-free diet due to hereditary fructose intolerance, lactose intolerance, gluten intolerance (probable celiac).--- In hyperaldosteronism , "adiffe

[Guest guest]

Yes the dr told me to stop potassium b/c spiro is potassium sparing but from

what I read is not always the case. So I was told to get my labs done a week

after starting spiro.

[Guest guest]

My doc after learned about Spiro and prescribed it for me was scared to

death to prescribe K sup for me while he was noticing my blood 3.xx

K...finally after years of muscle spasms he gradually not only increased

Spiro but increased K sup to 180 mEq/day until my blood K was normalized.

Max 62M

|

|Yes the dr told me to stop potassium b/c spiro is potassium sparing but

from

|what I read is not always the case. So I was told to get my labs done a

week

|after starting spiro.

|

|

|-----Original Message-----

[Guest guest]

I bet potassium cures the cramps

Subject: RE: Re: muscle spasms and headachesTo: hyperaldosteronism Date: Friday, November 18, 2011, 1:46 PM

My doc after learned about Spiro and prescribed it for me was scared todeath to prescribe K sup for me while he was noticing my blood 3.xxK...finally after years of muscle spasms he gradually not only increasedSpiro but increased K sup to 180 mEq/day until my blood K was normalized.Max 62M||Yes the dr told me to stop potassium b/c spiro is potassium sparing butfrom|what I read is not always the case. So I was told to get my labs done aweek|after starting spiro.|||-----Original Message-----

[Guest guest]

Depends on how much salt you eat on how well it "spares" K. And how K depleted you were before changing meds. About 90% of K in not in the blood stream so you can be very low in body but may not show up in blood.I may take a week or 2 to get on the right track. but DASH now to speed things up and have them do urine Na and K to see how you are doing next time they see you. CE Grim MD Yes the dr told me to stop potassium b/c spiro is potassium sparing but from what I read is not always the case. So I was told to get my labs done a week after starting spiro.

[Guest guest]

Heh. We call that experience. The reason you would better see me than him but we are getting him up to speed.CE Grim Md My doc after learned about Spiro and prescribed it for me was scared to death to prescribe K sup for me while he was noticing my blood 3.xx K...finally after years of muscle spasms he gradually not only increased Spiro but increased K sup to 180 mEq/day until my blood K was normalized. Max 62M | |Yes the dr told me to stop potassium b/c spiro is potassium sparing but from |what I read is not always the case. So I was told to get my labs done a week |after starting spiro. | | |-----Original Message-----

[Guest guest]

Whenever I ended up in ER they said my potassium was always borderline low but

when I go to get my regular labs done it's alwayw normal.... don't understand

that.

Re: muscle spasms and headaches

Are you saying that blood test if done right may not still show you are low on

K? If so them this would explain why many have Sx of low K but blood show K is

normal.

>

> > Yes the dr told me to stop potassium b/c spiro is potassium sparing

> > but from what I read is not always the case. So I was told to get my

> > labs done a week after starting spiro.

> >

> > -----Original Message-----

> > Date: Friday, November 18, 2011 2:02:51 pm

[Guest guest]

I just read online that HIGH potassium can also cause muscle spasm, wonder how

true that is.

Re: muscle spasms and headaches

Are you saying that blood test if done right may not still show you are low on

K? If so them this would explain why many have Sx of low K but blood show K is

normal.

>

> > Yes the dr told me to stop potassium b/c spiro is potassium sparing

> > but from what I read is not always the case. So I was told to get my

> > labs done a week after starting spiro.

> >

> > -----Original Message-----

> > Date: Friday, November 18, 2011 2:02:51 pm

[Guest guest]

K must be drawn correctly. See our guidelines in files . May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension

Are you saying that blood test if done right may not still show you are low on K? If so them this would explain why many have Sx of low K but blood show K is normal.

> >

> >

> > Subject: RE: Re: muscle spasms and headaches

> > To: hyperaldosteronism

> > Date: Friday, November 18, 2011, 9:39 AM

> >

> >

> >

> > I am thinking maybe my potassium is low b/c I've had my potassium

> > drop to 2.5 and I remember all the symptoms and now feeling the same

> > way, this started couple days after spiro and I don't have blood

> > work done until Monday...

> >

> >

> >

> >

>

[Guest guest]

Tell us exactly how they drew both. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension

Whenever I ended up in ER they said my potassium was always borderline low but when I go to get my regular labs done it's alwayw normal.... don't understand that.

Re: muscle spasms and headaches

Are you saying that blood test if done right may not still show you are low on K? If so them this would explain why many have Sx of low K but blood show K is normal.

>

> > Yes the dr told me to stop potassium b/c spiro is potassium sparing

> > but from what I read is not always the case. So I was told to get my

> > labs done a week after starting spiro.

> >

> > -----Original Message-----

> > Date: Friday, November 18, 2011 2:02:51 pm

[Guest guest]

Much less uncommon. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension

I just read online that HIGH potassium can also cause muscle spasm, wonder how true that is.

Re: muscle spasms and headaches

Are you saying that blood test if done right may not still show you are low on K? If so them this would explain why many have Sx of low K but blood show K is normal.

>

> > Yes the dr told me to stop potassium b/c spiro is potassium sparing

> > but from what I read is not always the case. So I was told to get my

> > labs done a week after starting spiro.

> >

> > -----Original Message-----

> > Date: Friday, November 18, 2011 2:02:51 pm

[Guest guest]

Pretty much the same, either right or left mid arm.

Re: muscle spasms and headaches

>

> Are you saying that blood test if done right may not still show you are low on

K? If so them this would explain why many have Sx of low K but blood show K is

normal.

>

>

> >

> > Depends on how much salt you eat on how well it " spares " K.

> >

> > And how K depleted you were before chang

[Guest guest]

Needs to be very high usually say over 6. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension

I just read online that HIGH potassium can also cause muscle spasm, wonder how true that is.

Re: muscle spasms and headaches

Are you saying that blood test if done right may not still show you are low on K? If so them this would explain why many have Sx of low K but blood show K is normal.

>

> > Yes the dr told me to stop potassium b/c spiro is potassium sparing

> > but from what I read is not always the case. So I was told to get my

> > labs done a week after starting spiro.

> >

> > -----Original Message-----

> > Date: Friday, November 18, 2011 2:02:51 pm

[Guest guest]

Need more details when I say exactly. Did they make u squeeze hand draw the K tube first. Leave tourniquet on? For example. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension

Pretty much the same, either right or left mid arm.

Re: muscle spasms and headaches

>

> Are you saying that blood test if done right may not still show you are low on K? If so them this would explain why many have Sx of low K but blood show K is normal.

>

>

> >

> > Depends on how much salt you eat on how well it "spares" K.

> >

> > And how K depleted you were before chang

[Guest guest]

K is always normal to start. Well almost. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension

As I recall, low K is reported in ~30% of the people with PA. This is why many cases are missed because it used to be looked for as part of the DX. My math tells me that ~70% of the people with PA will have normal or high K. As one whose K runs on the high end of the scale (4.8 - 5.0) we do bi-weekly blood test when I am changing meds or dosage.

- 65 yo super ob. male - 12mm X 13mm rt. a.adnoma with previous rt. flank pain. Treating with Meds. And DASH. . Current BP(last week ave): 131/76 HR 60

Other Issues/Opportunities: OSA w Bi-Pap settings 13/19, DM2, and PTSD.

Meds: Duloxetine hcl 80 MG, Metoprolol Tartrate 200 MG, 81mg asprin, Metformin 2000MG and Spironolactone 50 MG.

> > > >

> > > > > Yes the dr told me to stop potassium b/c spiro is potassium sparing

> > > > > but from what I read is not always the case. So I was told to get my

> > > > > labs done a week after starting spiro.

> > > > >

> > > > > -----Original Message-----

> > > > > Date: Friday, November 18, 2011 2:02:51 pm

> > >

> >

>

[Guest guest]

Were u hyper ventilating in ER?May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension

Whenever I ended up in ER they said my potassium was always borderline low but when I go to get my regular labs done it's alwayw normal.... don't understand that.

Re: muscle spasms and headaches

Are you saying that blood test if done right may not still show you are low on K? If so them this would explain why many have Sx of low K but blood show K is normal.

>

> > Yes the dr told me to stop potassium b/c spiro is potassium sparing

> > but from what I read is not always the case. So I was told to get my

> > labs done a week after starting spiro.

> >

> > -----Original Message-----

> > Date: Friday, November 18, 2011 2:02:51 pm

[Guest guest]

Sorry....I can't say exactly b/c it's been so many times.

Re: Re: muscle spasms and headaches

>

> Tell us exactly how they drew both.

>

> May your pressure be low!

>

> CE Grim MS, MD

> Specializing in Difficult

> Hypertension

>

> On Nov 19, 2011, at 8:48, " adifferentme@... "

wrote:

>

> > Whenever I ended up in ER they said my potassium was always borderline low

but when I go to get my regular labs done it's

[Guest guest]

No

Re: muscle spasms and headaches

>

> Are you saying that blood test if done right may not still show you are low on

K? If so them this would explain why many have Sx of low K but blood show K is

normal.

>

>

> >

> > Depends on how much salt you eat on how well it " spares " K.

> >

> > And how K depleted you were before changing med

[Guest guest]

Does anyone know if they factored in false high Ks and did many with normal K report symptoms of low k yet labs said no. DR G I have said how my BP was critically high every day for years and many others on here also were dangerous high all the time (lets say diastolic over 110 or 120 ) I also had K as low as as 2.0 . Is the BP higher on average in the low K group with PA in studies?Sent from my Palm Pre on the Now Network from Sprint

K is always normal to start. Well almost. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension

As I recall, low K is reported in ~30% of the people with PA. This is why many cases are missed because it used to be looked for as part of the DX. My math tells me that ~70% of the people with PA will have normal or high K. As one whose K runs on the high end of the scale (4.8 - 5.0) we do bi-weekly blood test when I am changing meds or dosage.

- 65 yo super ob. male - 12mm X 13mm rt. a.adnoma with previous rt. flank pain. Treating with Meds. And DASH. . Current BP(last week ave): 131/76 HR 60

Other Issues/Opportunities: OSA w Bi-Pap settings 13/19, DM2, and PTSD.

Meds: Duloxetine hcl 80 MG, Metoprolol Tartrate 200 MG, 81mg asprin, Metformin 2000MG and Spironolactone 50 MG.

> > > >

> > > > > Yes the dr told me to stop potassium b/c spiro is potassium sparing

> > > > > but from what I read is not always the case. So I was told to get my

> > > > > labs done a week after starting spiro.

> > > > >

> > > > > -----Original Message-----

> > > > > Date: Friday, November 18, 2011 2:02:51 pm

> > >

> >

>

[Guest guest]

Not sure we have good data. But the more the Aldo and salt the higher the BO AND LOWER KMay your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension

Does anyone know if they factored in false high Ks and did many with normal K report symptoms of low k yet labs said no. DR G I have said how my BP was critically high every day for years and many others on here also were dangerous high all the time (lets say diastolic over 110 or 120 ) I also had K as low as as 2.0 . Is the BP higher on average in the low K group with PA in studies?Sent from my Palm Pre on the Now Network from Sprint

K is always normal to start. Well almost. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension

As I recall, low K is reported in ~30% of the people with PA. This is why many cases are missed because it used to be looked for as part of the DX. My math tells me that ~70% of the people with PA will have normal or high K. As one whose K runs on the high end of the scale (4.8 - 5.0) we do bi-weekly blood test when I am changing meds or dosage.

- 65 yo super ob. male - 12mm X 13mm rt. a.adnoma with previous rt. flank pain. Treating with Meds. And DASH. . Current BP(last week ave): 131/76 HR 60

Other Issues/Opportunities: OSA w Bi-Pap settings 13/19, DM2, and PTSD.

Meds: Duloxetine hcl 80 MG, Metoprolol Tartrate 200 MG, 81mg asprin, Metformin 2000MG and Spironolactone 50 MG.

> > > >

> > > > > Yes the dr told me to stop potassium b/c spiro is potassium sparing

> > > > > but from what I read is not always the case. So I was told to get my

> > > > > labs done a week after starting spiro.

> > > > >

> > > > > -----Original Message-----

> > > > > Date: Friday, November 18, 2011 2:02:51 pm

> > >

> >

>

[Guest guest]

Unfortunately, it's likely. I was hospitalized with K= 6.6 and with absolutely the same symptoms as for low K. It would be nice if we could figure out the difference in symptoms between low and high K. Natalia To: hyperaldosteronism Sent: Saturday, November 19, 2011 11:18 AM

Subject: Re: muscle spasms and headaches

If you have PA not likey to have high K.

> > >

> > > > Yes the dr told me to stop potassium b/c spiro is potassium sparing

> > > > but from what I read is not always the case. So I was told to get my

> > > > labs done a week after starting spiro.

> > > >

> > > > -----Original Message-----

> > > > Date: Friday, November 18, 2011 2:02:51 pm

> >

>

[Guest guest]

Only way I know is to draw a K properly. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension

Unfortunately, it's likely. I was hospitalized with K= 6.6 and with absolutely the same symptoms as for low K. It would be nice if we could figure out the difference in symptoms between low and high K. Natalia To: hyperaldosteronism Sent: Saturday, November 19, 2011 11:18 AM

Subject: Re: muscle spasms and headaches

If you have PA not likey to have high K.

> > >

> > > > Yes the dr told me to stop potassium b/c spiro is potassium sparing

> > > > but from what I read is not always the case. So I was told to get my

> > > > labs done a week after starting spiro.

> > > >

> > > > -----Original Message-----

> > > > Date: Friday, November 18, 2011 2:02:51 pm

> >

>