Re: Just found out...

September 11, 2009

Hi Melinda,

Yes, unfortuantely that's correct. Both of my kiddos have Infantile Scoliosis. Noah's scoliosis is Progressive. I'm still hoping Mari's resolves on it's own.

Noah is still struggling a bit, but overall has done very well. We started casting at 22 months old at 36* with severe rotation. He's currently 14* without any rotation. He's at 9* in his brace. The doc needs him to be below 10* for 6 months before he'll let him go into a night-time only brace.

If our little girls do end up having the progressive form - I truely believe that they are young enough that they'll be able to be fully corrected.

Let me know if I can be of any more help.~Noah 4 years old9 months of casting in SLC; Currently on 1 1/2 years of bracingAnd Mariella 7 months old currently waiting and watching at 11*

To: infantile_scoliosis From: mindylee1@...Date: Thu, 10 Sep 2009 17:07:17 -0400Subject: Re: Just found out...

Hi ,

I hope they are both ok and resolve on their own. I actually called Shriners and explained my situation that the pediatric ortho wants to to wait six months. They want to see Marlycia this Tues 9/15. She said this is the only appt they had and suggested I take it. So, I hope I can get more ifnfo from Dr Betz as the other doctor didnt really explain much, maybe so I didnt worry. He jsut said that there is 90% chance it will resolve on its own. We can only hope. Good luck to you and Mariella. I noticed below, do you have another child that has it as well?

Just found out... Hi, My name is Melinda and I am a married mother of two little girls, ages 21 months and 7 months. I had suspected something wasn't quite right about my youngest since she was a few weeks old. She always tilted to the right. I had mentioned this to her doctors a few times but they said it was probably just the way she preferred to be positioned, she'll grow out of it. Well, as she got older I noticed one side of her back was bigger than the other and again told her doctor. At that point, he sent me to a Pediatric Orthopedic in town, PA. He said this was to 'rule out' scoliosis. I was so scared, I froze. I didnt know anything about it, I didnt want to wait to find out, I didnt know what kind of questions to ask. They expected me to wait until the end of September. I told them no way. Well, to make a long story longer, I finally got an appointment on 8/28/09 and as I suspected, she was diagnosed with Infantile Scoliosis. I was and am devasted. The doctor just said this should correct itself, come back in six months and if it's getting worse, he'll send us to Shriners in Philadelphia, PA. Please, if anyone can give me any advise, I dont know what to do. The waiting game is no fun. My daughter is 7 1/2 mnths, she doesnt hold her own bottle, she wont sit up unassisted. I just want to have hope but find it so hard when I know nothing about this. Anyone with any advice would be great?! By the way, she has a 23 degree angle at this point, thats what I was told.

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September 12, 2009

patty,

That's very refreshing. I hope it doesnt get as far as casting with my little one, but if it does then I hope that she runs and still enjoys the everday pleasures of life!

Melinda

Mother of Marlycia 8 months and Natalya 22 months

Scranton, PA

[infantile_scoliosi s] Just found out...

Hi, My name is Melinda and I am a married mother of two little girls, ages 21 months and 7 months.. I had suspected something wasn't quite right about my youngest since she was a few weeks old. She always tilted to the right. I had mentioned this to her doctors a few times but they said it was probably just the way she preferred to be positioned, she'll grow out of it. Well, as she got older I noticed one side of her back was bigger than the other and again told her doctor. At that point, he sent me to a Pediatric Orthopedic in town, PA. He said this was to 'rule out' scoliosis. I was so scared, I froze. I didnt know anything about it, I didnt want to wait to find out, I didnt know what kind of questions to ask. They expected me to wait until the end of September. I told them no way. Well, to make a long story longer, I finally got an appointment on 8/28/09 and as I suspected, she was diagnosed with Infantile Scoliosis. I was and am devasted. The doctor just said this should correct itself, come back in six months and if it's getting worse, he'll send us to Shriners in Philadelphia, PA. Please, if anyone can give me any advise, I dont know what to do. The waiting game is no fun. My daughter is 7 1/2 mnths, she doesnt hold her own bottle, she wont sit up unassisted. I just want to have hope but find it so hard when I know nothing about this. Anyone with any advice would be great?! By the way, she has a 23 degree angle at this point, thats what I was told.

September 12, 2009

Wow. From what the ortho told me, IS only affects 1% of the poplulation. Do you know if this is correct? It just seems like, well, I thought I was alone when found out, and now I know there are so many other parents and children experiencing the same thing. So Mari is at 11 degrees? They say the odds are good for her then, right? Again, I'm new to this but can I ask, what is a rotation? You mentioned his was severe?

Just found out... Hi, My name is Melinda and I am a married mother of two little girls, ages 21 months and 7 months. I had suspected something wasn't quite right about my youngest since she was a few weeks old. She always tilted to the right. I had mentioned this to her doctors a few times but they said it was probably just the way she preferred to be positioned, she'll grow out of it. Well, as she got older I noticed one side of her back was bigger than the other and again told her doctor. At that point, he sent me to a Pediatric Orthopedic in town, PA. He said this was to 'rule out' scoliosis. I was so scared, I froze. I didnt know anything about it, I didnt want to wait to find out, I didnt know what kind of questions to ask. They expected me to wait until the end of September. I told them no way. Well, to make a long story longer, I finally got an appointment on 8/28/09 and as I suspected, she was diagnosed with Infantile Scoliosis. I was and am devasted. The doctor just said this should correct itself, come back in six months and if it's getting worse, he'll send us to Shriners in Philadelphia, PA. Please, if anyone can give me any advise, I dont know what to do. The waiting game is no fun. My daughter is 7 1/2 mnths, she doesnt hold her own bottle, she wont sit up unassisted. I just want to have hope but find it so hard when I know nothing about this. Anyone with any advice would be great?! By the way, she has a 23 degree angle at this point, thats what I was told.

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September 14, 2009

I don't know about the 1% of the poplulation statistic. Yes, Mari's odds are good. Up to 90% of all Infantile Scoliosis cases resolve on their own. However - not to be a negative Nelly...but her doc has only had 2 cases of 2 sibilings having Idiopathic Infantile Scoliosis. 1 resolved and 1 progressed. So really I feel her odds are more 50/50 than 90/10. That dosen't apply to your daughter though, so keep thinking positive! : )

I'm not an expect, but I understand rotation to be the twisting of the spine. The spine twists and rotates and can push the ribs back. This is what causes the rib hump (or deformitiy) that you see or feel in their back. The docs can measure rotation, but mostly it doesn't seem like they do. They usually just describe it in terms, like "mild" "moderate" "severe" etc. I'd ask at your appt tomorrow "how does her rotation look?" The doc should be able to tell you.

~Noah 4 years old9 months of casting in SLC; Currently on 1 1/2 years of bracingAnd Mariella 7 months old currently waiting and watching at 11*

To: infantile_scoliosis From: mindylee1@...Date: Fri, 11 Sep 2009 22:10:33 -0400Subject: Re: Just found out...

Wow. From what the ortho told me, IS only affects 1% of the poplulation. Do you know if this is correct? It just seems like, well, I thought I was alone when found out, and now I know there are so many other parents and children experiencing the same thing. So Mari is at 11 degrees? They say the odds are good for her then, right? Again, I'm new to this but can I ask, what is a rotation? You mentioned his was severe?

Just found out... Hi, My name is Melinda and I am a married mother of two little girls, ages 21 months and 7 months. I had suspected something wasn't quite right about my youngest since she was a few weeks old. She always tilted to the right. I had mentioned this to her doctors a few times but they said it was probably just the way she preferred to be positioned, she'll grow out of it. Well, as she got older I noticed one side of her back was bigger than the other and again told her doctor. At that point, he sent me to a Pediatric Orthopedic in town, PA. He said this was to 'rule out' scoliosis. I was so scared, I froze. I didnt know anything about it, I didnt want to wait to find out, I didnt know what kind of questions to ask. They expected me to wait until the end of September. I told them no way. Well, to make a long story longer, I finally got an appointment on 8/28/09 and as I suspected, she was diagnosed with Infantile Scoliosis. I was and am devasted. The doctor just said this should correct itself, come back in six months and if it's getting worse, he'll send us to Shriners in Philadelphia, PA. Please, if anyone can give me any advise, I dont know what to do. The waiting game is no fun. My daughter is 7 1/2 mnths, she doesnt hold her own bottle, she wont sit up unassisted. I just want to have hope but find it so hard when I know nothing about this. Anyone with any advice would be great?! By the way, she has a 23 degree angle at this point, thats what I was told.

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September 14, 2009

Our Dr does not give us a rotation measurment either. He just told us there is significant rotation and you can clearly see that b/c of the hump. Hopefully his first cast next week will begin to correct that. Joanmom to Hayden 2 1/262 degreesTreated at ish Rite Hospital Dallas, TX

To: infantile_scoliosis Sent: Monday, September 14, 2009 9:18:02 AMSubject: RE: Just found out...

I don't know about the 1% of the poplulation statistic. Yes, Mari's odds are good. Up to 90% of all Infantile Scoliosis cases resolve on their own. However - not to be a negative Nelly...but her doc has only had 2 cases of 2 sibilings having Idiopathic Infantile Scoliosis. 1 resolved and 1 progressed. So really I feel her odds are more 50/50 than 90/10. That dosen't apply to your daughter though, so keep thinking positive! : ) I'm not an expect, but I understand rotation to be the twisting of the spine. The spine twists and rotates and can push the ribs back. This is what causes the rib hump (or deformitiy) that you see or feel in their back.. The docs can measure rotation, but mostly it doesn't seem like they do. They usually just describe it in terms, like "mild" "moderate" "severe" etc. I'd ask at your appt tomorrow "how does her rotation look?"

The doc should be able to tell you. ~Noah 4 years old9 months of casting in SLC; Currently on 1 1/2 years of bracingAnd Mariella 7 months old currently waiting and watching at 11*

To: infantile_scoliosis @yahoogroups. comFrom: mindylee1verizon (DOT) netDate: Fri, 11 Sep 2009 22:10:33 -0400Subject: Re: [infantile_scoliosi s] Just found out....

Wow. From what the ortho told me, IS only affects 1% of the poplulation. Do you know if this is correct? It just seems like, well, I thought I was alone when found out, and now I know there are so many other parents and children experiencing the same thing. So Mari is at 11 degrees? They say the odds are good for her then, right? Again, I'm new to this but can I ask, what is a rotation? You mentioned his was severe?

[infantile_scoliosi s] Just found out.... Hi, My name is Melinda and I am a married mother of two little girls, ages 21 months and 7 months. I had suspected something wasn't quite right about my youngest since she was a few weeks old. She always tilted to the right. I had mentioned this to her doctors a few times but they said it was probably just the way she preferred to be positioned, she'll grow out of it. Well, as she got older I noticed one side of her back was bigger than the other and again told her doctor. At that point, he sent me to a Pediatric Orthopedic in town, PA. He said this was to 'rule out' scoliosis. I was so scared, I froze. I didnt know anything about it, I didnt want to wait to find out, I didnt know what kind of questions to ask. They expected me to wait until the end of September. I told them no way. Well, to make a long story longer, I finally got an appointment on 8/28/09 and as I suspected, she was diagnosed with Infantile

Scoliosis. I was and am devasted. The doctor just said this should correct itself, come back in six months and if it's getting worse, he'll send us to Shriners in Philadelphia, PA. Please, if anyone can give me any advise, I dont know what to do. The waiting game is no fun. My daughter is 7 1/2 mnths, she doesnt hold her own bottle, she wont sit up unassisted. I just want to have hope but find it so hard when I know nothing about this. Anyone with any advice would be great?! By the way, she has a 23 degree angle at this point, thats what I was told.

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September 14, 2009

Joan, when do you go in next week?? Do you feel ready or are you feeling

nervous?

Dianna (mommy to Marcela, 15 mos in 2nd cast)

>

> Our Dr does not give us a rotation measurment either. He just told us there

is significant rotation and you can clearly see that b/c of the hump. Hopefully

his first cast next week will begin to correct that.

> Joan

> mom to Hayden 2 1/2

> 62 degrees

> Treated at ish Rite Hospital

> Dallas, TX

>

> ________________________________

>

> To: infantile_scoliosis

> Sent: Monday, September 14, 2009 9:18:02 AM

> Subject: RE: Just found out...

>

> I don't know about the 1% of the poplulation statistic. Yes, Mari's odds are

good. Up to 90% of all Infantile Scoliosis cases resolve on their own. However

- not to be a negative Nelly...but her doc has only had 2 cases of 2 sibilings

having Idiopathic Infantile Scoliosis. 1 resolved and 1 progressed. So really

I feel her odds are more 50/50 than 90/10. That dosen't apply to your daughter

though, so keep thinking positive! : )

>

> I'm not an expect, but I understand rotation to be the twisting of the spine.

The spine twists and rotates and can push the ribs back. This is what causes

the rib hump (or deformitiy) that you see or feel in their back. The docs can

measure rotation, but mostly it doesn't seem like they do. They usually just

describe it in terms, like " mild " " moderate " " severe " etc. I'd ask at your appt

tomorrow " how does her rotation look? " The doc should be able to tell you.

>

> ~

> Noah 4 years old

> 9 months of casting in SLC; Currently on 1 1/2 years of bracing

> And Mariella 7 months old currently waiting and watching at 11*

>

> ________________________________

> To: infantile_scoliosis @yahoogroups. com

> From: mindylee1verizon (DOT) net

> Date: Fri, 11 Sep 2009 22:10:33 -0400

> Subject: Re: [infantile_scoliosi s] Just found out...

>

> Wow. From what the ortho told me, IS only affects 1% of the poplulation. Do

you know if this is correct? It just seems like, well, I thought I was alone

when found out, and now I know there are so many other parents and

children experiencing the same thing. So Mari is at 11 degrees? They say the

odds are good for her then, right? Again, I'm new to this but can I ask, what is

a rotation? You mentioned his was severe?

>

> [infantile_scoliosi s] Just found out...

> >>>

> >>>Hi,

> >>>

> >>>My name is Melinda and I am a married mother of two little girls, ages 21

months and 7 months. I had suspected something wasn't quite right about my

youngest since she was a few weeks old. She always tilted to the right.. I had

mentioned this to her doctors a few times but they said it was probably just the

way she preferred to be positioned, she'll grow out of it. Well, as she got

older I noticed one side of her back was bigger than the other and again told

her doctor. At that point, he sent me to a Pediatric Orthopedic in town,

PA. He said this was to 'rule out' scoliosis. I was so scared, I froze. I didnt

know anything about it, I didnt want to wait to find out, I didnt know what kind

of questions to ask. They expected me to wait until the end of September. I told

them no way. Well, to make a long story longer, I finally got an appointment on

8/28/09 and as I suspected, she was diagnosed with Infantile Scoliosis. I was

and am devasted. The

> doctor just said this should correct itself, come back in six months and if

it's getting worse, he'll send us to Shriners in Philadelphia, PA. Please, if

anyone can give me any advise, I dont know what to do. The waiting game is no

fun. My daughter is 7 1/2 mnths, she doesnt hold her own bottle, she wont sit up

unassisted. I just want to have hope but find it so hard when I know nothing

about this. Anyone with any advice would be great?! By the way, she has a 23

degree angle at this point, thats what I was told.

> >>>

> >>

> >>________________________________

> Hotmail® is up to 70% faster. Now good news travels really fast. Try it now.

> >>

> >

> >________________________________

> With Windows Live, you can organize, edit, and share your photos. Click here.

> >________________________________

> Windows Live: Keep your friends up to date with what you do online. Find out

more.

> >

>

> ________________________________

> Hotmail: Powerful Free email with security by Microsoft. Get it now.

>

September 14, 2009

We go next Monday the 21st. I am feeling both. I am ready to start this long journey but am nervous as to what to expect. But this group has helped me prepare so much. I would be totally in the dark if I hadn't joined a few months ago. I just want Hayden to adjust to his cast quickly and easily. Joanmom to Hayden 2 1/262 degreesTreated at ish Rite Hospital Dallas, TX

To: infantile_scoliosis Sent: Monday, September 14, 2009 11:22:06 AMSubject: Re: Just found out...

Joan, when do you go in next week?? Do you feel ready or are you feeling nervous? Dianna (mommy to Marcela, 15 mos in 2nd cast)>> Our Dr does not give us a rotation measurment either. He just told us there is significant rotation and you can clearly see that b/c of the hump. Hopefully his first cast next week will begin to correct that.> Joan> mom to Hayden 2 1/2> 62 degrees> Treated at ish Rite Hospital > Dallas, TX > > > > > ____________ _________ _________ __> From: Borlik <christina_borlik@ ...>> To: infantile_scoliosis @yahoogroups. com> Sent: Monday, September 14, 2009 9:18:02 AM> Subject: RE: [infantile_scoliosi s] Just found out...> > > I don't know about the 1% of the poplulation statistic. Yes, Mari's odds are good. Up to 90% of all Infantile Scoliosis cases resolve on their own. However - not to be a negative Nelly...but her doc has only had 2 cases of 2 sibilings having Idiopathic Infantile Scoliosis. 1 resolved and 1 progressed. So really I feel her odds are more 50/50 than 90/10. That dosen't apply to your daughter though, so keep thinking positive! : ) > > I'm not an expect, but I understand rotation to be the twisting of the spine. The spine twists and rotates and can push the

ribs back. This is what causes the rib hump (or deformitiy) that you see or feel in their back. The docs can measure rotation, but mostly it doesn't seem like they do. They usually just describe it in terms, like "mild" "moderate" "severe" etc. I'd ask at your appt tomorrow "how does her rotation look?" The doc should be able to tell you.> > > ~> Noah 4 years old> 9 months of casting in SLC; Currently on 1 1/2 years of bracing> And Mariella 7 months old currently waiting and watching at 11*> > > > > > ____________ _________ _________ __> To: infantile_scoliosis @yahoogroups. com> From: mindylee1verizon (DOT) net> Date: Fri, 11 Sep 2009 22:10:33 -0400> Subject: Re: [infantile_scoliosi s] Just found out...> > > Wow. From what the ortho told me, IS only affects

1% of the poplulation. Do you know if this is correct? It just seems like, well, I thought I was alone when found out, and now I know there are so many other parents and children experiencin g the same thing. So Mari is at 11 degrees? They say the odds are good for her then, right? Again, I'm new to this but can I ask, what is a rotation? You mentioned his was severe?> > [infantile_scoliosi s] Just found out...> >>>> >>> > >>>Hi, > >>>> >>>My name is Melinda and I am a married mother of two little girls, ages 21 months and 7 months. I had suspected something wasn't quite right about my youngest since she was a few weeks old. She always tilted to the right.. I had mentioned this to her doctors a few times but they said it was probably just the way she preferred to be positioned, she'll grow out of it. Well, as she got older I noticed one side of

her back was bigger than the other and again told her doctor. At that point, he sent me to a Pediatric Orthopedic in town, PA. He said this was to 'rule out' scoliosis. I was so scared, I froze. I didnt know anything about it, I didnt want to wait to find out, I didnt know what kind of questions to ask. They expected me to wait until the end of September. I told them no way. Well, to make a long story longer, I finally got an appointment on 8/28/09 and as I suspected, she was diagnosed with Infantile Scoliosis. I was and am devasted. The> doctor just said this should correct itself, come back in six months and if it's getting worse, he'll send us to Shriners in Philadelphia, PA. Please, if anyone can give me any advise, I dont know what to do. The waiting game is no fun. My daughter is 7 1/2 mnths, she doesnt hold her own bottle, she wont sit up unassisted. I just want to have hope but find it so hard when I know nothing about this. Anyone

with any advice would be great?! By the way, she has a 23 degree angle at this point, thats what I was told. > >>>> >>>> >>>> >>>> >>>> >>> >>__________ _________ _________ ____> Hotmail® is up to 70% faster. Now good news travels really fast. Try it now. > >>> >> >___________ _________ _________ ___> With Windows Live, you can organize, edit, and share your photos. Click here.> >___________ _________ _________ ___> Windows Live: Keep your friends up to date with what you do online. Find out more. > >> > ____________ _________ _________ __> Hotmail: Powerful Free email with security by Microsoft. Get it now.>

September 14, 2009

Joan, we will be going through this journey together it looks like. Grace's casting will be sometime after 9/28. Feel free to email any time!

Jane

To: infantile_scoliosis Sent: Monday, September 14, 2009 8:38:35 AMSubject: Re: Re: Just found out...

We go next Monday the 21st. I am feeling both. I am ready to start this long journey but am nervous as to what to expect. But this group has helped me prepare so much. I would be totally in the dark if I hadn't joined a few months ago. I just want Hayden to adjust to his cast quickly and easily. Joanmom to Hayden 2 1/262 degreesTreated at ish Rite Hospital Dallas, TX

From: diannapiquet <diannapiquet@ yahoo.com>To: infantile_scoliosis @yahoogroups. comSent: Monday, September 14, 2009 11:22:06 AMSubject: [infantile_scoliosi s] Re: Just found out...

Joan, when do you go in next week?? Do you feel ready or are you feeling nervous? Dianna (mommy to Marcela, 15 mos in 2nd cast)>> Our Dr does not give us a rotation measurment either. He just told us there is significant rotation and you can clearly see that b/c of the hump. Hopefully his first cast next week will begin to correct that.> Joan> mom to Hayden 2 1/2> 62 degrees> Treated at ish Rite Hospital > Dallas, TX > > > > > ____________ _________ _________ __> From: Borlik <christina_borlik@ ...>> To: infantile_scoliosis @yahoogroups. com> Sent: Monday, September 14, 2009 9:18:02 AM> Subject: RE: [infantile_scoliosi s] Just found out...> > > I don't know about the 1% of the poplulation statistic. Yes, Mari's odds are good. Up to 90% of all Infantile Scoliosis cases resolve on their own. However - not to be a negative Nelly...but her doc has only had 2 cases of 2 sibilings having Idiopathic Infantile Scoliosis. 1 resolved and 1 progressed. So really I feel her odds are more 50/50 than 90/10. That dosen't apply to your daughter though, so keep thinking positive! : ) > > I'm not an expect, but I understand rotation to be the twisting of the spine. The spine twists and rotates and can push the

ribs back. This is what causes the rib hump (or deformitiy) that you see or feel in their back. The docs can measure rotation, but mostly it doesn't seem like they do. They usually just describe it in terms, like "mild" "moderate" "severe" etc. I'd ask at your appt tomorrow "how does her rotation look?" The doc should be able to tell you.> > > ~> Noah 4 years old> 9 months of casting in SLC; Currently on 1 1/2 years of bracing> And Mariella 7 months old currently waiting and watching at 11*> > > > > > ____________ _________ _________ __> To: infantile_scoliosis @yahoogroups. com> From: mindylee1verizon (DOT) net> Date: Fri, 11 Sep 2009 22:10:33 -0400> Subject: Re: [infantile_scoliosi s] Just found out...> > > Wow. From what the ortho told me, IS only affects

1% of the poplulation. Do you know if this is correct? It just seems like, well, I thought I was alone when found out, and now I know there are so many other parents and children experiencin g the same thing. So Mari is at 11 degrees? They say the odds are good for her then, right? Again, I'm new to this but can I ask, what is a rotation? You mentioned his was severe?> > [infantile_scoliosi s] Just found out...> >>>> >>> > >>>Hi, > >>>> >>>My name is Melinda and I am a married mother of two little girls, ages 21 months and 7 months. I had suspected something wasn't quite right about my youngest since she was a few weeks old. She always tilted to the right.. I had mentioned this to her doctors a few times but they said it was probably just the way she preferred to be positioned, she'll grow out of it. Well, as she got older I noticed one side of

her back was bigger than the other and again told her doctor. At that point, he sent me to a Pediatric Orthopedic in town, PA. He said this was to 'rule out' scoliosis. I was so scared, I froze. I didnt know anything about it, I didnt want to wait to find out, I didnt know what kind of questions to ask. They expected me to wait until the end of September. I told them no way. Well, to make a long story longer, I finally got an appointment on 8/28/09 and as I suspected, she was diagnosed with Infantile Scoliosis. I was and am devasted. The> doctor just said this should correct itself, come back in six months and if it's getting worse, he'll send us to Shriners in Philadelphia, PA. Please, if anyone can give me any advise, I dont know what to do. The waiting game is no fun. My daughter is 7 1/2 mnths, she doesnt hold her own bottle, she wont sit up unassisted. I just want to have hope but find it so hard when I know nothing about this. Anyone

with any advice would be great?! By the way, she has a 23 degree angle at this point, thats what I was told. > >>>> >>>> >>>> >>>> >>>> >>> >>__________ _________ _________ ____> Hotmail® is up to 70% faster. Now good news travels really fast. Try it now. > >>> >> >___________ _________ _________ ___> With Windows Live, you can organize, edit, and share your photos. Click here.> >___________ _________ _________ ___> Windows Live: Keep your friends up to date with what you do online. Find out more. > >> > ____________ _________ _________ __> Hotmail: Powerful Free email with security by Microsoft. Get it now.>

September 14, 2009

Jane,

There must be a thing about September casting...My son is getting his 9-29 right after Joan at the same hospital (scottish rite) do you got there as well?

Subject: Re: Re: Just found out...To: infantile_scoliosis Date: Monday, September 14, 2009, 3:02 PM

Joan, we will be going through this journey together it looks like. Grace's casting will be sometime after 9/28. Feel free to email any time!

Jane

From: Joan Vallee <hayro1611yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Monday, September 14, 2009 8:38:35 AMSubject: Re: [infantile_scoliosi s] Re: Just found out...

We go next Monday the 21st. I am feeling both. I am ready to start this long journey but am nervous as to what to expect. But this group has helped me prepare so much. I would be totally in the dark if I hadn't joined a few months ago. I just want Hayden to adjust to his cast quickly and easily. Joanmom to Hayden 2 1/262 degreesTreated at ish Rite Hospital Dallas, TX

From: diannapiquet <diannapiquet@ yahoo.com>To: infantile_scoliosis @yahoogroups. comSent: Monday, September 14, 2009 11:22:06 AMSubject: [infantile_scoliosi s] Re: Just found out...

Joan, when do you go in next week?? Do you feel ready or are you feeling nervous? Dianna (mommy to Marcela, 15 mos in 2nd cast)>> Our Dr does not give us a rotation measurment either. He just told us there is significant rotation and you can clearly see that b/c of the hump. Hopefully his first cast next week will begin to correct that.> Joan> mom to Hayden 2 1/2> 62 degrees> Treated at ish Rite Hospital > Dallas, TX > > > > > ____________ _________ _________ __> From: Borlik <christina_borlik@ ...>> To: infantile_scoliosis @yahoogroups. com> Sent: Monday, September 14, 2009 9:18:02 AM> Subject: RE: [infantile_scoliosi s] Just found out...> > > I don't know about the 1% of the poplulation statistic. Yes, Mari's odds are good. Up to 90% of all Infantile Scoliosis cases resolve on their own. However - not to be a negative Nelly...but her doc has only had 2 cases of 2 sibilings having Idiopathic Infantile Scoliosis. 1 resolved and 1 progressed. So really I feel her odds are more 50/50 than 90/10. That dosen't apply to your daughter though, so keep thinking positive! : ) > > I'm not an expect, but I understand rotation to be the twisting of the spine. The spine

twists and rotates and can push the ribs back. This is what causes the rib hump (or deformitiy) that you see or feel in their back. The docs can measure rotation, but mostly it doesn't seem like they do. They usually just describe it in terms, like "mild" "moderate" "severe" etc. I'd ask at your appt tomorrow "how does her rotation look?" The doc should be able to tell you.> > > ~> Noah 4 years old> 9 months of casting in SLC; Currently on 1 1/2 years of bracing> And Mariella 7 months old currently waiting and watching at 11*> > > > > > ____________ _________ _________ __> To: infantile_scoliosis @yahoogroups. com> From: mindylee1verizon (DOT) net> Date: Fri, 11 Sep 2009 22:10:33 -0400> Subject: Re: [infantile_scoliosi s] Just found out...> > > Wow. From what

the ortho told me, IS only affects 1% of the poplulation. Do you know if this is correct? It just seems like, well, I thought I was alone when found out, and now I know there are so many other parents and children experiencin g the same thing. So Mari is at 11 degrees? They say the odds are good for her then, right? Again, I'm new to this but can I ask, what is a rotation? You mentioned his was severe?> > [infantile_scoliosi s] Just found out...> >>>> >>> > >>>Hi, > >>>> >>>My name is Melinda and I am a married mother of two little girls, ages 21 months and 7 months. I had suspected something wasn't quite right about my youngest since she was a few weeks old. She always tilted to the right.. I had mentioned this to her doctors a few times but they said it was probably just the way she preferred to be positioned, she'll grow out of it. Well,

as she got older I noticed one side of her back was bigger than the other and again told her doctor. At that point, he sent me to a Pediatric Orthopedic in town, PA. He said this was to 'rule out' scoliosis. I was so scared, I froze. I didnt know anything about it, I didnt want to wait to find out, I didnt know what kind of questions to ask. They expected me to wait until the end of September. I told them no way. Well, to make a long story longer, I finally got an appointment on 8/28/09 and as I suspected, she was diagnosed with Infantile Scoliosis. I was and am devasted. The> doctor just said this should correct itself, come back in six months and if it's getting worse, he'll send us to Shriners in Philadelphia, PA. Please, if anyone can give me any advise, I dont know what to do. The waiting game is no fun. My daughter is 7 1/2 mnths, she doesnt hold her own bottle, she wont sit up unassisted. I just want to have hope but find it so hard

when I know nothing about this. Anyone with any advice would be great?! By the way, she has a 23 degree angle at this point, thats what I was told. > >>>> >>>> >>>> >>>> >>>> >>> >>__________ _________ _________ ____> Hotmail® is up to 70% faster. Now good news travels really fast. Try it now. > >>> >> >___________ _________ _________ ___> With Windows Live, you can organize, edit, and share your photos. Click here.> >___________ _________ _________ ___> Windows Live: Keep your friends up to date with what you do online. Find out more. > >> > ____________ _________ _________ __> Hotmail: Powerful Free email with security by Microsoft. Get it

now.>

September 14, 2009

I am sure we will be needing eachother to lean on. I need all the support I can get. Thanks. Joanmom to Hayden 2 1/262 degreesTreated at ish Rite Hospital Dallas, TX

To: infantile_scoliosis Sent: Monday, September 14, 2009 3:02:07 PMSubject: Re: Re: Just found out...

Joan, we will be going through this journey together it looks like. Grace's casting will be sometime after 9/28. Feel free to email any time!

Jane

From: Joan Vallee <hayro1611yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Monday, September 14, 2009 8:38:35 AMSubject: Re: [infantile_scoliosi s] Re: Just found out....

We go next Monday the 21st. I am feeling both. I am ready to start this long journey but am nervous as to what to expect. But this group has helped me prepare so much. I would be totally in the dark if I hadn't joined a few months ago. I just want Hayden to adjust to his cast quickly and easily. Joanmom to Hayden 2 1/262 degreesTreated at ish Rite Hospital Dallas, TX

From: diannapiquet <diannapiquet@ yahoo.com>To: infantile_scoliosis @yahoogroups. comSent: Monday, September 14, 2009 11:22:06 AMSubject: [infantile_scoliosi s] Re: Just found out...

Joan, when do you go in next week?? Do you feel ready or are you feeling nervous? Dianna (mommy to Marcela, 15 mos in 2nd cast)>> Our Dr does not give us a rotation measurment either. He just told us there is significant rotation and you can clearly see that b/c of the hump. Hopefully his first cast next week will begin to correct that.> Joan> mom to Hayden 2 1/2> 62 degrees> Treated at ish Rite Hospital > Dallas, TX > > > > > ____________ _________ _________ __> From: Borlik <christina_borlik@ ...>> To: infantile_scoliosis @yahoogroups. com> Sent: Monday, September 14, 2009 9:18:02 AM> Subject: RE: [infantile_scoliosi s] Just found out...> > > I don't know about the 1% of the poplulation statistic. Yes, Mari's odds are good. Up to 90% of all Infantile Scoliosis cases resolve on their own. However - not to be a negative Nelly...but her doc has only had 2 cases of 2 sibilings having Idiopathic Infantile Scoliosis. 1 resolved and 1 progressed. So really I feel her odds are more 50/50 than 90/10. That dosen't apply to your daughter though, so keep thinking positive! : ) > > I'm not an expect, but I understand rotation to be the twisting of the spine. The spine twists and rotates and can push the

ribs back. This is what causes the rib hump (or deformitiy) that you see or feel in their back. The docs can measure rotation, but mostly it doesn't seem like they do. They usually just describe it in terms, like "mild" "moderate" "severe" etc. I'd ask at your appt tomorrow "how does her rotation look?" The doc should be able to tell you.> > > ~> Noah 4 years old> 9 months of casting in SLC; Currently on 1 1/2 years of bracing> And Mariella 7 months old currently waiting and watching at 11*> > > > > > ____________ _________ _________ __> To: infantile_scoliosis @yahoogroups. com> From: mindylee1verizon (DOT) net> Date: Fri, 11 Sep 2009 22:10:33 -0400> Subject: Re: [infantile_scoliosi s] Just found out...> > > Wow. From what the ortho told me, IS only affects

1% of the poplulation. Do you know if this is correct? It just seems like, well, I thought I was alone when found out, and now I know there are so many other parents and children experiencin g the same thing. So Mari is at 11 degrees? They say the odds are good for her then, right? Again, I'm new to this but can I ask, what is a rotation? You mentioned his was severe?> > [infantile_scoliosi s] Just found out...> >>>> >>> > >>>Hi, > >>>> >>>My name is Melinda and I am a married mother of two little girls, ages 21 months and 7 months. I had suspected something wasn't quite right about my youngest since she was a few weeks old. She always tilted to the right.. I had mentioned this to her doctors a few times but they said it was probably just the way she preferred to be positioned, she'll grow out of it. Well, as she got older I noticed one side of

her back was bigger than the other and again told her doctor. At that point, he sent me to a Pediatric Orthopedic in town, PA. He said this was to 'rule out' scoliosis. I was so scared, I froze. I didnt know anything about it, I didnt want to wait to find out, I didnt know what kind of questions to ask. They expected me to wait until the end of September. I told them no way. Well, to make a long story longer, I finally got an appointment on 8/28/09 and as I suspected, she was diagnosed with Infantile Scoliosis. I was and am devasted. The> doctor just said this should correct itself, come back in six months and if it's getting worse, he'll send us to Shriners in Philadelphia, PA. Please, if anyone can give me any advise, I dont know what to do. The waiting game is no fun. My daughter is 7 1/2 mnths, she doesnt hold her own bottle, she wont sit up unassisted. I just want to have hope but find it so hard when I know nothing about this. Anyone

with any advice would be great?! By the way, she has a 23 degree angle at this point, thats what I was told. > >>>> >>>> >>>> >>>> >>>> >>> >>__________ _________ _________ ____> Hotmail® is up to 70% faster. Now good news travels really fast. Try it now. > >>> >> >___________ _________ _________ ___> With Windows Live, you can organize, edit, and share your photos. Click here.> >___________ _________ _________ ___> Windows Live: Keep your friends up to date with what you do online. Find out more. > >> > ____________ _________ _________ __> Hotmail: Powerful Free email with security by Microsoft. Get it now.>

September 14, 2009

Something in the "internet" air. LOL. Hopefully all goes well for ALL our first casting experiences. Hope Isaiah is on the mend after his bad cold... Joanmom to Hayden 2 1/262 degreesTreated at ish Rite Hospital Dallas, TX

To: infantile_scoliosis Sent: Monday, September 14, 2009 3:20:47 PMSubject: Re: Re: Just found out...

Jane,

There must be a thing about September casting...My son is getting his 9-29 right after Joan at the same hospital (scottish rite) do you got there as well?

From: Jane Bigler <janemharyahoo (DOT) com>Subject: Re: [infantile_scoliosi s] Re: Just found out...To: infantile_scoliosis @yahoogroups. comDate: Monday, September 14, 2009, 3:02 PM

Joan, we will be going through this journey together it looks like. Grace's casting will be sometime after 9/28. Feel free to email any time!

Jane

From: Joan Vallee <hayro1611yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Monday, September 14, 2009 8:38:35 AMSubject: Re: [infantile_scoliosi s] Re: Just found out...

We go next Monday the 21st. I am feeling both. I am ready to start this long journey but am nervous as to what to expect. But this group has helped me prepare so much. I would be totally in the dark if I hadn't joined a few months ago. I just want Hayden to adjust to his cast quickly and easily. Joanmom to Hayden 2 1/262 degreesTreated at ish Rite Hospital Dallas, TX

From: diannapiquet <diannapiquet@ yahoo.com>To: infantile_scoliosis @yahoogroups. comSent: Monday, September 14, 2009 11:22:06 AMSubject: [infantile_scoliosi s] Re: Just found out...

Joan, when do you go in next week?? Do you feel ready or are you feeling nervous? Dianna (mommy to Marcela, 15 mos in 2nd cast)>> Our Dr does not give us a rotation measurment either. He just told us there is significant rotation and you can clearly see that b/c of the hump.. Hopefully his first cast next week will begin to correct that.> Joan> mom to Hayden 2 1/2> 62 degrees> Treated at ish Rite Hospital > Dallas, TX > > > > > ____________ _________ _________ __> From: Borlik <christina_borlik@ ...>> To: infantile_scoliosis @yahoogroups. com> Sent: Monday, September 14, 2009 9:18:02 AM> Subject: RE: [infantile_scoliosi s] Just found out...> > > I don't know about the 1% of the poplulation statistic. Yes, Mari's odds are good. Up to 90% of all Infantile Scoliosis cases resolve on their own. However - not to be a negative Nelly...but her doc has only had 2 cases of 2 sibilings having Idiopathic Infantile Scoliosis. 1 resolved and 1 progressed. So really I feel her odds are more 50/50 than 90/10. That dosen't apply to your daughter though, so keep thinking positive! : ) > > I'm not an expect, but I understand rotation to be the twisting of the spine. The spine twists and rotates and can push the ribs back.

This is what causes the rib hump (or deformitiy) that you see or feel in their back. The docs can measure rotation, but mostly it doesn't seem like they do. They usually just describe it in terms, like "mild" "moderate" "severe" etc. I'd ask at your appt tomorrow "how does her rotation look?" The doc should be able to tell you.> > > ~> Noah 4 years old> 9 months of casting in SLC; Currently on 1 1/2 years of bracing> And Mariella 7 months old currently waiting and watching at 11*> > > > > > ____________ _________ _________ __> To: infantile_scoliosis @yahoogroups. com> From: mindylee1verizon (DOT) net> Date: Fri, 11 Sep 2009 22:10:33 -0400> Subject: Re: [infantile_scoliosi s] Just found out...> > > Wow. From what the ortho told me, IS only affects 1% of the

poplulation. Do you know if this is correct? It just seems like, well, I thought I was alone when found out, and now I know there are so many other parents and children experiencin g the same thing. So Mari is at 11 degrees? They say the odds are good for her then, right? Again, I'm new to this but can I ask, what is a rotation? You mentioned his was severe?> > [infantile_scoliosi s] Just found out...> >>>> >>> > >>>Hi, > >>>> >>>My name is Melinda and I am a married mother of two little girls, ages 21 months and 7 months. I had suspected something wasn't quite right about my youngest since she was a few weeks old. She always tilted to the right.. I had mentioned this to her doctors a few times but they said it was probably just the way she preferred to be positioned, she'll grow out of it. Well, as she got older I noticed one side of

her back was bigger than the other and again told her doctor. At that point, he sent me to a Pediatric Orthopedic in town, PA. He said this was to 'rule out' scoliosis. I was so scared, I froze. I didnt know anything about it, I didnt want to wait to find out, I didnt know what kind of questions to ask. They expected me to wait until the end of September. I told them no way. Well, to make a long story longer, I finally got an appointment on 8/28/09 and as I suspected, she was diagnosed with Infantile Scoliosis. I was and am devasted. The> doctor just said this should correct itself, come back in six months and if it's getting worse, he'll send us to Shriners in Philadelphia, PA. Please, if anyone can give me any advise, I dont know what to do. The waiting game is no fun. My daughter is 7 1/2 mnths, she doesnt hold her own bottle, she wont sit up unassisted. I just want to have hope but find it so hard when I know nothing about this. Anyone

with any advice would be great?! By the way, she has a 23 degree angle at this point, thats what I was told. > >>>> >>>> >>>> >>>> >>>> >>> >>__________ _________ _________ ____> Hotmail® is up to 70% faster. Now good news travels really fast. Try it now. > >>> >> >___________ _________ _________ ___> With Windows Live, you can organize, edit, and share your photos. Click here.> >___________ _________ _________ ___> Windows Live: Keep your friends up to date with what you do online. Find out more. > >> > ____________ _________ _________ __> Hotmail: Powerful Free email with security by Microsoft. Get it

now.>

September 14, 2009

Joan,

You are so silly! LOL Its funny how you, Jane and i all hoped the surgeries our kids had would help with the curve but still need casts anyway. Guess we ARE all in this together!! Thank God for this group and all these nice, generous, helpful people!!