Guest guest Posted May 31, 2004 Report Share Posted May 31, 2004 Welcome, Toni! Hope and Faith.... Beautiful! We can all use some of that!! in California Mom to (4 years old, ASD, SID....also apraxic and not potty trained) > hi all. > > Im Toni. My 4 year old daughter was diagnosed with autism last week. > It's > been a pretty long week for me emotionally, and then we had the big > birthday > party this weekend. We've been working on potty training and we too > are not > having success. We take her to the potty on a schedule, but it seems > like > she just cant relax enough to do anything or she knows she's supposed > to sit > there, but anything beyond that is a blank. We have the videos, the > books, > the potty chart, the chart for staying clean and dry, and nothing is > working. Occasionally she'll go in the potty, but not often. We see a > therapist next week to get rolling on a treatment plan for her autism. > Hopefully once we start that we'll get somewhere. > > I was certainly glad to find this list. On the other autism lists I > found, > almost everyone has boys. > Toni W. - BP mom to > Hope, 4, Seizure disorder, Verbal apraxia, Migraines, Austim > and > Faith, 2, Mild CP, Hypotonia, Asthma, Sensory Integration Dysfunction > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2004 Report Share Posted June 1, 2004 Thanks. :-) Short version of the story behind thier names......... I discovered I had endometriosis, badly fluctuating hormone levels, and poly-cystic ovarian syndrome back in my early 20's. I was told then that having kids could be difficult, if not impossible. A year or so later I met the man who later became my husband. We started trying to start a family shortly before the wedding and no success. We started testing and my grandmother kept telling me I just had to have hope. Fertility doctors said a couple years later that I was unable to have children. 3 months later I was pregnant. Hope seemed to fit. Hubby picked her middle name, and then we were floored when my grandmother said that was the name she picked for a stillborn daughter she had after my mother was born. We said we would change the name and she said no. It was beautiful and it didnt bother her a bit. She passed away 2 weeks before Hope was born. After Hope was born and we started discussing possibly having a second child, hubby said he kind of liked the name Faith. Hope was 8 months old and surprise, pregnant again. Hubby then said he had been kidding when he said he liked the name Faith. I told him ok then you pick one you do like. I got very sick through the majority of the pregnancy and kept losing weight, then developed diabetes. I went into labor suddenly at 35 weeks and the doctors said at " only " 5 weeks early she'd be fine. She had to be rushed to NICU because her lungs were under-developed. She was on a ventilator and stable, but they said it would be a long haul to get her healthly enough to go home. I was discharged from the hospital and that evening the pastor from the church came to see her. Breaking the NICU rule about number of visitors, we had myself, my mom, my mother-in-law, hubby, and the pastor from the church all there and prayed for her. I stayed with her while everyone left. The nurses kicked me out at midnight to go get some rest since I had just been discharged myself. I went to the hotel and slept a little, then at 6am called the NICU to check on her before grabbing something to eat and heading over. The nurse said the doctor was coming to the phone and my heart sank. He said she had a great night, rested well, and by the way he just took her completely off the ventilator and she was doing fine. I called hubby's cell phone and told him, he said get the papers from the nurse. Her name is Faith. So we have Hope le and Faith . is her godmother's name, which made her cry when she found out the baby had her name. ;-) And we just had Hope's birthday yesterday. My mother-in-law keeps saying she isn't allowed to be 4 already. Toni W. - BP mom to Hope, 4, Seizure disorder, Verbal apraxia, Migraines, Austim and Faith, 2, Mild CP, Hypotonia, Asthma, Sensory Integration Dysfunction Re: Another new member potty training Welcome, Toni! Hope and Faith.... Beautiful! We can all use some of that!! in California Mom to (4 years old, ASD, SID....also apraxic and not potty trained) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2004 Report Share Posted June 1, 2004 Welcome Toni and Sharon I am Tracey. We have two daughters, Coral age 13 (14 in July) and Skylar age 11. Sky was diagnosed autistic at the age of 3. Potty training for us was also a battle. We finally got the Potty Time Video, book and doll and started rewarding her with Smarties and that finally seemed to work. She loved the song in the Potty Time Video and would sing it when she would finally sit on the potty in front of the tv and watch it. This is a great group of people. I am sure you will be glad you joined. Look forward to hearing more from you. Tracey Another new member potty training hi all. Im Toni. My 4 year old daughter was diagnosed with autism last week. It's been a pretty long week for me emotionally, and then we had the big birthday party this weekend. We've been working on potty training and we too are not having success. We take her to the potty on a schedule, but it seems like she just cant relax enough to do anything or she knows she's supposed to sit there, but anything beyond that is a blank. We have the videos, the books, the potty chart, the chart for staying clean and dry, and nothing is working. Occasionally she'll go in the potty, but not often. We see a therapist next week to get rolling on a treatment plan for her autism. Hopefully once we start that we'll get somewhere. I was certainly glad to find this list. On the other autism lists I found, almost everyone has boys. Toni W. - BP mom to Hope, 4, Seizure disorder, Verbal apraxia, Migraines, Austim and Faith, 2, Mild CP, Hypotonia, Asthma, Sensory Integration Dysfunction Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Welcome Tony. Grandmothers can give the best advice, can't they? I'm Debi, married mom to NT 7yrs, Allie ASD nearly 5, and Dinah Grace NT 20mos. We gave Dinah her name because it means " vindicated by Grace " after a very difficult year of Allie's dx. She was dxed officially 2 wks before her second bday. I don't know about you, but it certainly made the bday a difficult one for this old mom. But, things are much better today. On the potty training, we still aren't there, but very, very close. What got the ball rolling for us was doing the " kamakazi " method where for a couple of days we kept her continually on potty until something came out. Then she was allowed up for 15 min and an alarm set. When the alarm went off, we were back on the potty. Within a few hrs she was peeing as soon as she heard the alarm, so we had to stop using it until after she was on the pot, which seemed to help her go a little. We stopped using it by the end of the first day and began giving her 1 hr between potty breaks. That was 9 mos ago. She still has occasional pee accidents (one accident every few days) and still poops her panties about 70% of the time at home. At school she's had one pee accident in the last 6 mos and no poop accidents. I still have to urge her to go sit, but I see her going spontaneously more and more. Allie's 3 yr old teacher said it " takes FOREVER " so just stay patient, pull up your carpet and put solid flooring in, and stay focused. I can't believe how much easier it is now, but like I said, it still occasionally happens. I learned the hard way to stop flipping out, 'cause it only upsets all of us. The pooping gets me the most, but I sit with her and explain that mommy is gonna be mad when she poops the floor and plays in it and she should not expect me not to. She's catching on. Welcome, Debi Quote Link to comment Share on other sites More sharing options...
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