Re: Time to rethink how to move forward with this group.

[Guest guest]

I will start with a real life example that happened to my Dad, God rest his

soul. Many years ago he was being treated for bladder polyps. The doctor

needed to scope entering through his penis. She told him to strip down and left

the room to preserve his modesty. He called out to her, " Do I need to remove my

underware? " Her answer, " It will be easier for both of us! "

We can help those here if we have some idea what we are shooting at. That is

what I believe he is looking for. You don't have to report your weight but many

time it helps to know if you are obese or morbidly obese! (If 50 lbs of fat (in

my case) sits in my belly it might just cause more of a breathing problem,

atleast that is the opinion of my 130lb PCP!) (I don't tell people that I

weighed 322 1/2lbs and stand 5'6 " tall, I tell them I am morb. ob.!)

I do not believe he is looking for your complete medical history, he is looking

for where you are today although significant history might be appropriate if it

is applies to the subject at hand (Knowing you have had a MI or Heart

Replacement might help if talking about heart disease!)

I do not think this is a new policy on Dr. Grim's part, only an enforcement of

an existing policy.

I would hate to see you go because you bring good info to the group and we have

good discusions but I did have some problems discusing a recent issue with you

because the subject was too broad and I didn't any particular SX or HX! (You

started it, you jumped on my thread and mentioned my name!)

I may be on the complete other end of the spectrum but I really " Don't give a

Crap! "

- 65 yo morb. ob. male - 12mm X 13mm rt. a.adnoma with previous rt. flank &

testicle pain. I have decided against an adrenalectomy at this time since

Meds. are working so well. Current BP(last week ave): 122/73

Other Issues/Opportunities: OSA w Bi-Pap settings 13/19, DM2. and PTSD.

Meds: Duloxetine hcl 80 MG, Mirtazapine 7.5 MG, Metoprolol Tartrate 200 MG,

81mg asprin, Metformin 2000MG and Spironolactone 50 MG.

>

> First I can understand Dr Grim's need to keep track of whats what on this

sight. In some ways the thumbnail can be the thing to do. How ever not all want

to put there medical history out there. While I for one have no problem with

this I do know from posting so information about my weight I got what I thought

was a distressful remark for all over weight people. I Also think some that ask

questions do not like it when we ask them to provide the meds and labs as they

do not give this information.

>

> If it it now going to be Dr Grim's policy to not answer questiuns unless there

is a thumbnail then thes nees to apply to every one so if some like Val ask

questions she needs to have a thumbnail for Dr Grim to reply to it.

>

> Also if this is to be the policy it needs to be added to home page of group

site. This way all that want to join group will know they need to supply one or

if they do not want to give out part on the medical history then decide to not

join group.

>

> We need to remember this is a world wide group and not post any thing that may

be hurtful to any one. Have see some of this in past few weeks. This also needs

to be on home page with a warning as to how to deal with it.

>

[Guest guest]

But I have no idea who a person is here based on their name. And I am always available for one-on-one private consulting. In most using this mode the problem(s) have been been brought under control in ~3 months or sooner. The thumbnail is needed when one is asking "What should I do?" type questions. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

First I can understand Dr Grim's need to keep track of whats what on this sight. In some ways the thumbnail can be the thing to do. How ever not all want to put there medical history out there. While I for one have no problem with this I do know from posting so information about my weight I got what I thought was a distressful remark for all over weight people. I Also think some that ask questions do not like it when we ask them to provide the meds and labs as they do not give this information.

If it it now going to be Dr Grim's policy to not answer questiuns unless there is a thumbnail then thes nees to apply to every one so if some like Val ask questions she needs to have a thumbnail for Dr Grim to reply to it.

Also if this is to be the policy it needs to be added to home page of group site. This way all that want to join group will know they need to supply one or if they do not want to give out part on the medical history then decide to not join group.

We need to remember this is a world wide group and not post any thing that may be hurtful to any one. Have see some of this in past few weeks. This also needs to be on home page with a warning as to how to deal with it.

[Guest guest]

I did not think my question was a what should I do question. Since many in group

say they have shortness of breath when in fact it may be Hyperventilation was

trying give of example what may or may not be Hyperventilation.

I believe in the past if I did ask a what should I do question I gave you enough

information to give an answer.

I do understand have tried help get information from others so you could give

them your best answer. I have also seem some leave group because they did not

seem to believe what you were telling them.

Believe you were right and it was there loss. Kind of sad to see this happen.

Because of this for some time now I have though it was time to up date the home

page to better reflect what this group is about. I just don't know the best way

to do this.

>

> > First I can understand Dr Grim's need to keep track of whats what on this

sight. In some ways the thumbnail can be the thing to do. How ever not all want

to put there medical history out there. While I for one have no problem with

this I do know from posting so information about my weight I got what I thought

was a distressful remark for all over weight people. I Also think some that ask

questions do not like it when we ask them to provide the meds and labs as they

do not give this information.

> >

> > If it it now going to be Dr Grim's policy to not answer questiuns unless

there is a thumbnail then thes nees to apply to every one so if some like Val

ask questions she needs to have a thumbnail for Dr Grim to reply to it.

> >

> > Also if this is to be the policy it needs to be added to home page of group

site. This way all that want to join group will know they need to supply one or

if they do not want to give out part on the medical history then decide to not

join group.

> >

> > We need to remember this is a world wide group and not post any thing that

may be hurtful to any one. Have see some of this in past few weeks. This also

needs to be on home page with a warning as to how to deal with it.

> >

> >

> >

>

[Guest guest]

I don't really have any answers but I know I joined this group thinking it would

be more like a general support group/community than it really is. I can already

see how that's hard when people dip in as they need it and then disappear off

once they're cured which leaves the 'hard core' cases hanging around.

But the group is far more a lot of satellites orbitting around the sun that is

Dr.Grim than a community in the sense that I've experienced in other on-line

communities. And I think that also makes it hard to sustain because it is very

hard to create a meaningful support group if virtually all the messages are

directed at one man - and especially given that that one man then has next to no

time to give more than a couple of lines in reply to any single message. Clearly

Dr.Grim can't be expected to remember everything about every member that has

ever been on this site but I wonder whether there is an alternative to

thumbnails? Personally I have no way of creating one except by retyping it every

time which I'm not going to do - I put in what I see as relevant in my reply.

But other communities I belong to have a member profile which you can fill in

and that's where you put the personal stuff. Then it doesn't leap out at you

every time you type a message (and the rest of us don't have to wade through it

every time either) but if it's pertinent in the reply, it's only a click away to

see the relevant facts.

I have two more minor quibbles with the forum and hang around in spite (or

possibly because) of them.

Firstly, I don't believe the advice given is completely balanced. My very first

query on here related to the pros and cons of surgery vs. life-long meds as

treatment for PA and I've never really seen an answer to this query - which

seems to be one of the most commonly asked. Clearly not all the pros and cons

are known but there is a huge bias towards the Dash diet and meds for life and I

still don't believe that that is always the right answer. So I'll hang around

advocating surgery from time to time. If a forum wants to retain new members, it

can't be seen to have too much of an agenda - and certainly the impression that

on this one is that there is and that always leaves a question about why and who

benefits (even if there is no substance to that query).

Secondly, it does have a huge US bias as can be seen in the frequent forays into

US politics and the US health system. It's not really a problem but it would be

great to be able to seperate out those discussion threads into a seperate area

of something.

Yahoo groups as a whole are difficult to navigate - the tree like structure of

discussions as opposed to linear discussion threads mean that a starting topic

can rapidly diversify. I do find that hard work - trying to work out who has

responded to whom about what. But I think that's impossible to address without

changing the entire forum and there have been lots of discussions on thread

etiquette. Unfortunately I don't think etiquette will solve it - Yahoo groups

leave a lot to be desired.

So I'm still here in spite of certain reservations because I think the group has

a huge amount to offer and the downsides are not huge in comparison to the

upsides. But I can understand why some people don't necessarily hang around for

long - although as I said at the start, I can offer no solutions.....useles, eh?

Have I diverted this thread entirely? Or just opened up the discussion beyond

thumbnails?

H

> > >

> > > > First I can understand Dr Grim's need to keep track of whats what on

this sight. In some ways the thumbnail can be the thing to do. How ever not all

want to put there medical history out there. While I for one have no problem

with this I do know from posting so information about my weight I got what I

thought was a distressful remark for all over weight people. I Also think some

that ask questions do not like it when we ask them to provide the meds and labs

as they do not give this information.

> > > >

> > > > If it it now going to be Dr Grim's policy to not answer questiuns unless

there is a thumbnail then thes nees to apply to every one so if some like Val

ask questions she needs to have a thumbnail for Dr Grim to reply to it.

> > > >

> > > > Also if this is to be the policy it needs to be added to home page of

group site. This way all that want to join group will know they need to supply

one or if they do not want to give out part on the medical history then decide

to not join group.

> > > >

> > > > We need to remember this is a world wide group and not post any thing

that may be hurtful to any one. Have see some of this in past few weeks. This

also needs to be on home page with a warning as to how to deal with it.

> > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

Hester, you bring up some great points.I'm wondering if migrating the group to another platform, such as yuku.com, would be a better option. My experience with that platform is somewhat limited, but I do know it allows for setting up profiles and organizing threads by topic. One of the pheochromacytoma groups uses it; you can see their board here. (And, note to Dr. Grim - after I'm back from my surgery I would be more than happy to set up a board for us on that platform.)I have to say that early on I was ready to drop out of the group because of the bias toward one solution only, and that solution being DASH and meds. But I felt it important that if nothing else, I hung around to share my downside-of-spiro experience with the newbies, because their doctors are not likely going to warn them that they may end up with polymenorrhea or gynecomastia or depression like I did. I'm no doctor, but I don't believe that medicine is a one-size-fits-all approach, and I consider myself living proof.At any rate, once the surgery is behind me I have no intention of leaving the site - in fact, when my life becomes something other than constant doctor appointments and weekly blood draws, I hope to be able to so something to expand the web presence of Conn's syndrome/hyperaldosteronism. I've got a few ideas in mind but plan to start simple: a website detailing tests, resources, and treatment options. -msmith1928Nulliparous female, 46, 5'3", 120 lbs, polymenorrhea, hyperinsulinemia, hereditary fructose intolerance,

lactose intolerance, probable gluten intolerance. Current meds are K 20

MEQ 4x/day, singulair 10mg, norethindrone .35mg to regulate polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine 180mg as

needed. Low sodium, fructose- and grain-free diet. Known drug allergies include PCN, sulfa, tetracycline; spiro caused gynecomastia, polymenorrhea, depression, anxiety, and dizziness.

1cm left adrenal nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when not taking supplements); AVS determined disease is unilateral, left laparoscopic adrenalectomy is scheduled for 10/13/2011.> > > > > > > > > First I can understand Dr Grim's need to keep track of whats what on this sight. In some ways the thumbnail can be the thing to do. How ever not all want to put there medical history out there. While I for one have no problem with this I do know from posting so information about my weight I got what I thought was a distressful remark for all over weight people. I Also think some that ask questions do not like it when we ask them to provide the meds and labs as they do not give this information. > > > > > > > > > > If it it now going to be Dr Grim's policy to not answer questiuns unless there is a thumbnail then thes nees to apply to every one so if some like Val ask questions she needs to have a thumbnail for Dr Grim to reply to it. > > > > > > > > > > Also if this is to be the policy it needs to be added to home page of group site. This way all that want to join group will know they need to supply one or if they do not want to give out part on the medical history then decide to not join group.> > > > > > > > > > We need to remember this is a world wide group and not post any thing that may be hurtful to any one. Have see some of this in past few weeks. This also needs to be on home page with a warning as to how to deal with it. > > > > > > > > > > > > > > >> > > >> > > > > >> >>

[Guest guest]

Just be as honest if surgery doesn't fix everything. But we'll pray it does.

Subject: Re: Time to rethink how to move forward with this group.To: hyperaldosteronism Date: Monday, October 10, 2011, 2:48 PM

Hester, you bring up some great points.I'm wondering if migrating the group to another platform, such as yuku.com, would be a better option. My experience with that platform is somewhat limited, but I do know it allows for setting up profiles and organizing threads by topic. One of the pheochromacytoma groups uses it; you can see their board here. (And, note to Dr. Grim - after I'm back from my surgery I would be more than happy to set up a board for us on that platform.)I have to say that early on I was ready to drop out of the group because of the bias toward one solution only, and that solution being DASH and meds. But I felt it important that if nothing else, I hung around to share my downside-of-spiro experience with the newbies, because their doctors are not likely going to warn

them that they may end up with polymenorrhea or gynecomastia or depression like I did. I'm no doctor, but I don't believe that medicine is a one-size-fits-all approach, and I consider myself living proof.At any rate, once the surgery is behind me I have no intention of leaving the site - in fact, when my life becomes something other than constant doctor appointments and weekly blood draws, I hope to be able to so something to expand the web presence of Conn's syndrome/hyperaldosteronism. I've got a few ideas in mind but plan to start simple: a website detailing tests, resources, and treatment options. -msmith1928Nulliparous female, 46, 5'3", 120 lbs, polymenorrhea, hyperinsulinemia, hereditary fructose intolerance, lactose intolerance, probable gluten intolerance. Current meds are K 20 MEQ 4x/day, singulair 10mg, norethindrone .35mg to regulate polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine 180mg as needed. Low sodium, fructose- and grain-free diet. Known drug allergies include PCN, sulfa, tetracycline; spiro caused gynecomastia, polymenorrhea, depression, anxiety, and dizziness. 1cm left adrenal nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when not taking supplements); AVS determined disease is unilateral, left laparoscopic adrenalectomy is scheduled for 10/13/2011.> > > > > > > > > First I can understand Dr Grim's need to keep track of whats what on this sight. In some ways the thumbnail can be the thing to do. How ever not all want to put there medical history out there. While I for one have no problem with this I do know from posting so information about my weight I got what I

thought was a distressful remark for all over weight people. I Also think some that ask questions do not like it when we ask them to provide the meds and labs as they do not give this information. > > > > > > > > > > If it it now going to be Dr Grim's policy to not answer questiuns unless there is a thumbnail then thes nees to apply to every one so if some like Val ask questions she needs to have a thumbnail for Dr Grim to reply to it. > > > > > > > > > > Also if this is to be the policy it needs to be added to home page of group site. This way all that want to join group will know they need to supply one or if they do not want to give out part on the medical history then decide to not join group.> > > > > > > > > > We need to remember this is a world wide group and not post any thing that may be hurtful to any one. Have see some of this in

past few weeks. This also needs to be on home page with a warning as to how to deal with it. > > > > > > > > > > > > > > >> > > >> > > > > >> >>

[Guest guest]

Oh absolutely! The surgeon told me she'd estimate that of all of the Conn's

adrenalectomies her team has done, only about 5% were unsuccessful. But the

reality is she has no way of knowing what my outcome will be, especially

considering that I've had it for so long.

And thanks, , I appreciate the thoughts and prayers.

> > > > >

> > > > > > First I can understand Dr Grim's need to keep track of whats what on

this sight. In some ways the thumbnail can be the thing to do. How ever not all

want to put there medical history out there. While I for one have no problem

with this I do know from posting so information about my weight I got what I

thought was a distressful remark for all over weight people. I Also think some

that ask questions do not like it when we ask them to provide the meds and labs

as they do not give this information.

> > > > > >

> > > > > > If it it now going to be Dr Grim's policy to not answer questiuns

unless there is a thumbnail then thes nees to apply to every one so if some like

Val ask questions she needs to have a thumbnail for Dr Grim to reply to it.

> > > > > >

> > > > > > Also if this is to be the policy it needs to be added to home page

of group site. This way all that want to join group will know they need to

supply one or if they do not want to give out part on the medical history then

decide to not join group.

> > > > > >

> > > > > > We need to remember this is a world wide group and not post any

thing that may be hurtful to any one. Have see some of this in past few weeks.

This also needs to be on home page with a warning as to how to deal with it.

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

>

[Guest guest]

This is the first time I've posted but felt compelled to add my agreement to the DASH or nothing approach being a turnoff to some in this group. I, too, was looking for a more supportive environment along with the education.  I've " lurked " here for some time and have appreciated some of the insights I've picked up after being newly diagnosed with PA.  I am also not terribly interested in posting private medical information for all to see but understand that I may not ask specific questions about my personal condition if I'm not willing to do so.

 

Hester, you bring up some great points.I'm wondering if migrating the group to another platform, such as yuku.com, would be a better option. My experience with that platform is somewhat limited, but I do know it allows for setting up profiles and organizing threads by topic. One of the pheochromacytoma groups uses it; you can see their board here. (And, note to Dr. Grim - after I'm back from my surgery I would be more than happy to set up a board for us on that platform.)

I have to say that early on I was ready to drop out of the group because of the bias toward one solution only, and that solution being DASH and meds. But I felt it important that if nothing else, I hung around to share my downside-of-spiro experience with the newbies, because their doctors are not likely going to warn them that they may end up with polymenorrhea or gynecomastia or depression like I did. I'm no doctor, but I don't believe that medicine is a one-size-fits-all approach, and I consider myself living proof.

At any rate, once the surgery is behind me I have no intention of leaving the site - in fact, when my life becomes something other than constant doctor appointments  and weekly blood draws, I hope to be able to so something to expand the web presence of Conn's syndrome/hyperaldosteronism. I've got a few ideas in mind but plan to start simple: a website detailing tests, resources, and treatment options.

-msmith1928

Nulliparous female, 46, 5'3 " , 120 lbs, polymenorrhea, hyperinsulinemia, hereditary fructose intolerance,

lactose intolerance, probable gluten intolerance. Current meds are K 20

MEQ 4x/day, singulair 10mg, norethindrone .35mg to regulate polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine 180mg as

needed. Low sodium, fructose- and grain-free diet. Known drug allergies include PCN, sulfa, tetracycline; spiro caused gynecomastia, polymenorrhea, depression, anxiety, and dizziness.

1cm left adrenal nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when not taking supplements); AVS determined disease is unilateral, left laparoscopic adrenalectomy is scheduled for 10/13/2011.

>> I don't really have any answers but I know I joined this group thinking it would be more like a general support group/community than it really is. I can already see how that's hard when people dip in as they need it and then disappear off once they're cured which leaves the 'hard core' cases hanging around.

> > But the group is far more a lot of satellites orbitting around the sun that is Dr.Grim than a community in the sense that I've experienced in other on-line communities. And I think that also makes it hard to sustain because it is very hard to create a meaningful support group if virtually all the messages are directed at one man - and especially given that that one man then has next to no time to give more than a couple of lines in reply to any single message. Clearly Dr.Grim can't be expected to remember everything about every member that has ever been on this site but I wonder whether there is an alternative to thumbnails? Personally I have no way of creating one except by retyping it every time which I'm not going to do - I put in what I see as relevant in my reply. But other communities I belong to have a member profile which you can fill in and that's where you put the personal stuff. Then it doesn't leap out at you every time you type a message (and the rest of us don't have to wade through it every time either) but if it's pertinent in the reply, it's only a click away to see the relevant facts.

> > I have two more minor quibbles with the forum and hang around in spite (or possibly because) of them. > > Firstly, I don't believe the advice given is completely balanced. My very first query on here related to the pros and cons of surgery vs. life-long meds as treatment for PA and I've never really seen an answer to this query - which seems to be one of the most commonly asked. Clearly not all the pros and cons are known but there is a huge bias towards the Dash diet and meds for life and I still don't believe that that is always the right answer. So I'll hang around advocating surgery from time to time. If a forum wants to retain new members, it can't be seen to have too much of an agenda - and certainly the impression that on this one is that there is and that always leaves a question about why and who benefits (even if there is no substance to that query).

> > Secondly, it does have a huge US bias as can be seen in the frequent forays into US politics and the US health system. It's not really a problem but it would be great to be able to seperate out those discussion threads into a seperate area of something.

> > Yahoo groups as a whole are difficult to navigate - the tree like structure of discussions as opposed to linear discussion threads mean that a starting topic can rapidly diversify. I do find that hard work - trying to work out who has responded to whom about what. But I think that's impossible to address without changing the entire forum and there have been lots of discussions on thread etiquette. Unfortunately I don't think etiquette will solve it - Yahoo groups leave a lot to be desired

[Guest guest]

on any site no "poster" could ever give a balanced argument because we have not experienced everything there is to experience as an individual, in our case particularly as it relates to PA. But we could say when so many have had good experiences with DASH and spiro or epelerone then this the forum where that is going to be brought up. There are exceptions to EVERYTHING.

Really one could argue that for those on the list, are we really wrong for deeply - and we sometimes do go overboard (guilty as charged) - being very passionate about our viewpoints generally seen only from our experience? Or are we as wrong for getting offended because we are not getting the response we want from others on the forum? One asks a question they are getting an answer. Do like I told my wife about "advice" from our parents and grandparents on raising our own kids, when momma gets offended when they tell her how to do something with her own children, I told her "take in what you want; say thank you; and throw the rest out." Get what you want and deem valuable, research it yourself, and throw the rest out.

Who's right and who's wrong? No one really. It's a forum. If we only want validation only for our woes and issues and our point of view than a forum like this is never a good avenue for that person, nor if someone is particularly thin-skinned and sensitive to someone not seeing things thier way. For those who need that aspect I would just get a journal and give yourself all the validation you want as often as you want.

Subject: Re: Time to rethink how to move forward with this group.To: hyperaldosteronism Date: Monday, October 10, 2011, 2:29 PM

I don't really have any answers but I know I joined this group thinking it would be more like a general support group/community than it really is. I can already see how that's hard when people dip in as they need it and then disappear off once they're cured which leaves the 'hard core' cases hanging around.But the group is far more a lot of satellites orbitting around the sun that is Dr.Grim than a community in the sense that I've experienced in other on-line communities. And I think that also makes it hard to sustain because it is very hard to create a meaningful support group if virtually all the messages are directed at one man - and especially given that that one man then has next to no time to give more than a couple of lines in reply to any single message. Clearly Dr.Grim can't be expected to remember everything about every member that has ever been on this site but I wonder whether there is an alternative to thumbnails? Personally I

have no way of creating one except by retyping it every time which I'm not going to do - I put in what I see as relevant in my reply. But other communities I belong to have a member profile which you can fill in and that's where you put the personal stuff. Then it doesn't leap out at you every time you type a message (and the rest of us don't have to wade through it every time either) but if it's pertinent in the reply, it's only a click away to see the relevant facts.I have two more minor quibbles with the forum and hang around in spite (or possibly because) of them. Firstly, I don't believe the advice given is completely balanced. My very first query on here related to the pros and cons of surgery vs. life-long meds as treatment for PA and I've never really seen an answer to this query - which seems to be one of the most commonly asked. Clearly not all the pros and cons are known but there is a huge bias towards the Dash diet and meds

for life and I still don't believe that that is always the right answer. So I'll hang around advocating surgery from time to time. If a forum wants to retain new members, it can't be seen to have too much of an agenda - and certainly the impression that on this one is that there is and that always leaves a question about why and who benefits (even if there is no substance to that query).Secondly, it does have a huge US bias as can be seen in the frequent forays into US politics and the US health system. It's not really a problem but it would be great to be able to seperate out those discussion threads into a seperate area of something.Yahoo groups as a whole are difficult to navigate - the tree like structure of discussions as opposed to linear discussion threads mean that a starting topic can rapidly diversify. I do find that hard work - trying to work out who has responded to whom about what. But I think that's impossible to address

without changing the entire forum and there have been lots of discussions on thread etiquette. Unfortunately I don't think etiquette will solve it - Yahoo groups leave a lot to be desired.So I'm still here in spite of certain reservations because I think the group has a huge amount to offer and the downsides are not huge in comparison to the upsides. But I can understand why some people don't necessarily hang around for long - although as I said at the start, I can offer no solutions.....useles, eh?Have I diverted this thread entirely? Or just opened up the discussion beyond thumbnails?H> > > > > > > First I can understand Dr Grim's need to keep track of whats what on this sight. In some ways the thumbnail can be the thing to do. How ever not all want to put there medical history out there. While I for one have no problem with this I do know from posting so information about my weight I got what I thought was a distressful remark for all over weight people. I Also think some that ask questions do not like it when we ask them to provide the meds and labs as they do not give this information. > > > > > > > > If it it now

going to be Dr Grim's policy to not answer questiuns unless there is a thumbnail then thes nees to apply to every one so if some like Val ask questions she needs to have a thumbnail for Dr Grim to reply to it. > > > > > > > > Also if this is to be the policy it needs to be added to home page of group site. This way all that want to join group will know they need to supply one or if they do not want to give out part on the medical history then decide to not join group.> > > > > > > > We need to remember this is a world wide group and not post any thing that may be hurtful to any one. Have see some of this in past few weeks. This also needs to be on home page with a warning as to how to deal with it. > > > > > > > > > > > >> > >> > > >>

[Guest guest]

Good point. But I can pretty much guarantee you that if the resident expert MD expert was a surgeon he would be biased towards surgery, because that's what surgeons do. I say everyone should do your own due dilligence and decide if a 50% chance of a cure is good enough to warrant going through a surgical procedure or not. Not everyone has problems with spiro, it is usually well tolerated. But there's nothing biased about the DASH diet, everyone should be following it. The main problem I have with the group is that it seems to frequently get hijacked into subjects that have little or nothing to do with PA and then linger there for days. PA does not cause every little symptom we have. If I have a question

related to PA I'll leave a thumbnail, otherwise I see no need.

To: hyperaldosteronism Sent: Monday, October 10, 2011 3:48 PMSubject: Re: Time to rethink how to move forward with this group.

Hester, you bring up some great points.I'm wondering if migrating the group to another platform, such as yuku.com, would be a better option. My experience with that platform is somewhat limited, but I do know it allows for setting up profiles and organizing threads by topic. One of the pheochromacytoma groups uses it; you can see their board here. (And, note to Dr. Grim - after I'm back from my surgery I would be more than happy to set up a board for us on that platform.)I have to say that early on I was ready to drop out of the group because of the bias toward one solution only, and that solution being DASH and meds. But I felt it important that if nothing else, I hung around to share my downside-of-spiro experience with the newbies, because their doctors are not likely going to

warn them that they may end up with polymenorrhea or gynecomastia or depression like I did. I'm no doctor, but I don't believe that medicine is a one-size-fits-all approach, and I consider myself living proof.At any rate, once the surgery is behind me I have no intention of leaving the site - in fact, when my life becomes something other than constant doctor appointments and weekly blood draws, I hope to be able to so something to expand the web presence of Conn's syndrome/hyperaldosteronism. I've got a few ideas in mind but plan to start simple: a website detailing tests, resources, and treatment options. -msmith1928Nulliparous female, 46, 5'3", 120 lbs, polymenorrhea, hyperinsulinemia, hereditary fructose intolerance, lactose intolerance, probable gluten intolerance. Current meds are K 20 MEQ 4x/day, singulair 10mg, norethindrone .35mg to regulate polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine 180mg as needed. Low sodium, fructose- and grain-free diet. Known drug allergies include PCN, sulfa, tetracycline; spiro caused gynecomastia, polymenorrhea, depression, anxiety, and dizziness. 1cm left adrenal nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when not taking supplements); AVS determined disease is unilateral, left laparoscopic adrenalectomy is scheduled for 10/13/2011.> > > > > > > > > First I can understand Dr Grim's need to keep track of whats what on this sight. In some ways the thumbnail can be the thing to do. How ever not all want to put there medical history out there. While I for one have no problem with this I do

know from posting so information about my weight I got what I thought was a distressful remark for all over weight people. I Also think some that ask questions do not like it when we ask them to provide the meds and labs as they do not give this information. > > > > > > > > > > If it it now going to be Dr Grim's policy to not answer questiuns unless there is a thumbnail then thes nees to apply to every one so if some like Val ask questions she needs to have a thumbnail for Dr Grim to reply to it. > > > > > > > > > > Also if this is to be the policy it needs to be added to home page of group site. This way all that want to join group will know they need to supply one or if they do not want to give out part on the medical history then decide to not join group.> > > > > > > > > > We need to remember this is a world wide group and not post any

thing that may be hurtful to any one. Have see some of this in past few weeks. This also needs to be on home page with a warning as to how to deal with it. > > > > > > > > > > > > > > >> > > >> > > > > >> >>

[Guest guest]

I have no problem asking those who ask questions to be 'members' of the group and asking the 'member' to post answers to basic questions concerning themselves. Perhaps in a questionnaire format so the questions can be thought through by those members who are active or want to comment on the questions. For instance, age could be a range rather than a specific number. Weight perhaps the same. We would need, of course, the diagnoses if any and the medications and dosage. I don't see any way a meaningful answer (which is what we are all about, right?) could be posted without this info.

It also comes to mind that whomever answers might want a brief signature tag mentioning their own history, even professional credentials if any.For instance I am:

over 70malediagnoses, bi-lateral adrenal hyperplasia, 1992

Spirinolactone, 75mg/day until Jan 2011currently Eplerenone, 100mg/day

plus a handful of other stuff from the cardiologist after open heart bypass surgery in 2008.A Medical Technologist since '62 and married to a Medical Technologist (which just makes me more of a pain to my docs!)

What else? Is it important that I live in San , Texas? That I retired in 2002? that I weigh over 200? that I exercise regularly at a Gold's Gym pool under the guidance of a trainer? What else?

Krebs (GranPaSmurf)

[Guest guest]

Well, everyone except for those of us with gluten- and fructose-intolerances, as

the DASH diet is very high in wheat (and other grains) and fruits. When I first

started posting here it felt pretty hopeless, constantly being told to eat a

diet that, if I did, would cause other (and potentially even more serious)

health problems.

But I get what you are saying, a - it's up to the patient to educate

themselves (and their medical team) and this site has been a great resource for

that.

>

But there's nothing biased about the DASH diet, everyone should be following

it. 

[Guest guest]

Let me address how I handle the thumbnail. I created a document and stored it

in a file which I keep reduced. I simply open it and hit ctrl/C (copy), the

thumbnail is already highlighted, and reduce. This takes me back to my post

where the thumbnail needs to be and hit ctrl/V (paste), waalla, all done. Mac

users, TS, I don't speak your language! BTW, I don't believe many really read

it, otherwise somebody would have wished me a happy b'day last week!

- 65 yo morb. ob. male - 12mm X 13mm rt. a.adnoma with previous rt. flank

pain. Treating with Meds. And DASH. . Current BP(last week ave): 125/73

Other Issues/Opportunities: OSA w Bi-Pap settings 13/19, DM2, and PTSD.

Meds: Duloxetine hcl 80 MG, Mirtazapine 7.5 MG, Metoprolol Tartrate 200 MG,

81mg asprin, Metformin 2000MG and Spironolactone 50 MG.

> > > > >

> > > > > > First I can understand Dr Grim's need to keep track of whats what on

this sight. In some ways the thumbnail can be the thing to do. How ever not all

want to put there medical history out there. While I for one have no problem

with this I do know from posting so information about my weight I got what I

thought was a distressful remark for all over weight people. I Also think some

that ask questions do not like it when we ask them to provide the meds and labs

as they do not give this information.

> > > > > >

> > > > > > If it it now going to be Dr Grim's policy to not answer questiuns

unless there is a thumbnail then thes nees to apply to every one so if some like

Val ask questions she needs to have a thumbnail for Dr Grim to reply to it.

> > > > > >

> > > > > > Also if this is to be the policy it needs to be added to home page

of group site. This way all that want to join group will know they need to

supply one or if they do not want to give out part on the medical history then

decide to not join group.

> > > > > >

> > > > > > We need to remember this is a world wide group and not post any

thing that may be hurtful to any one. Have see some of this in past few weeks.

This also needs to be on home page with a warning as to how to deal with it.

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

>

[Guest guest]

Yuku might be just an example and since I had never heard of it, I tried it.

IMPO it is not professional strength! Every address I tried first produced an

error (http500). When I hit refresh they usually came up, once I had to refresh

twice. This a sign of system overload which often happens when something

becomes too popular and owners can't or won't keep up.

- 65 yo morb. ob. male - 12mm X 13mm rt. a.adnoma with previous rt. flank

pain. Treating with Meds. And DASH. . Current BP(last week ave): 125/73

Other Issues/Opportunities: OSA w Bi-Pap settings 13/19, DM2, and PTSD.

Meds: Duloxetine hcl 80 MG, Mirtazapine 7.5 MG, Metoprolol Tartrate 200 MG,

81mg asprin, Metformin 2000MG and Spironolactone 50 MG.

> > > > >

> > > > > > First I can understand Dr Grim's need to keep track of whats

> what on this sight. In some ways the thumbnail can be the thing to do.

> How ever not all want to put there medical history out there. While I

> for one have no problem with this I do know from posting so information

> about my weight I got what I thought was a distressful remark for all

> over weight people. I Also think some that ask questions do not like it

> when we ask them to provide the meds and labs as they do not give this

> information.

> > > > > >

> > > > > > If it it now going to be Dr Grim's policy to not answer

> questiuns unless there is a thumbnail then thes nees to apply to every

> one so if some like Val ask questions she needs to have a thumbnail for

> Dr Grim to reply to it.

> > > > > >

> > > > > > Also if this is to be the policy it needs to be added to home

> page of group site. This way all that want to join group will know they

> need to supply one or if they do not want to give out part on the

> medical history then decide to not join group.

> > > > > >

> > > > > > We need to remember this is a world wide group and not post

> any thing that may be hurtful to any one. Have see some of this in past

> few weeks. This also needs to be on home page with a warning as to how

> to deal with it.

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

>

[Guest guest]

Good observation - I've only used Yuku with a small group (6 people) and it worked fine for that.I think the professional strength gold standard is vBulletin. Only problem? Not free > > > > > >> > > > > > > First I can understand Dr Grim's need to keep track of whats> > what on this sight. In some ways the thumbnail can be the thing to do.> > How ever not all want to put there medical history out there. While I> > for one have no problem with this I do know from posting so information> > about my weight I got what I thought was a distressful remark for all> > over weight people. I Also think some that ask questions do not like it> > when we ask them to provide the meds and labs as they do not give this> > information.> > > > > > >> > > > > > > If it it now going to be Dr Grim's policy to not answer> > questiuns unless there is a thumbnail then thes nees to apply to every> > one so if some like Val ask questions she needs to have a thumbnail for> > Dr Grim to reply to it.> > > > > > >> > > > > > > Also if this is to be the policy it needs to be added to home> > page of group site. This way all that want to join group will know they> > need to supply one or if they do not want to give out part on the> > medical history then decide to not join group.> > > > > > >> > > > > > > We need to remember this is a world wide group and not post> > any thing that may be hurtful to any one. Have see some of this in past> > few weeks. This also needs to be on home page with a warning as to how> > to deal with it.> > > > > > >> > > > > > >> > > > > > >> > > > > >> > > > >> > > > >> > > >> > >> >>

[Guest guest]

I don't think it is about being thin skinned or taking offence - nobody has ever

offended me on this site and I see very few passionate debates that are liable

to offend anybody (which in itself is a pity). But a genuine forum has people

offering a diversity of opinions and welcomes all those. So while no single

poster can offer all of those, a forum should aim for it. It's not about right

or wrong but it is about seeing two sides to an argument...it's easy enough to

ignore the advice you don't want (wherever it comes from) if you know there is

an alternative. But somebody has to tell you about that alternative. And that's

what I don't observe here - and that's also why I'm hanging around so that there

are some who advocate surgery.

H

> > > >

> > > > > First I can understand Dr Grim's need to keep track of whats what on

this sight. In some ways the thumbnail can be the thing to do. How ever not all

want to put there medical history out there. While I for one have no problem

with this I do know from posting so information about my weight I got what I

thought was a distressful remark for all over weight people. I Also think some

that ask questions do not like it when we ask them to provide the meds and labs

as they do not give this information.

> > > > >

> > > > > If it it now going to be Dr Grim's policy to not answer questiuns

unless there is a thumbnail then thes nees to apply to every one so if some like

Val ask questions she needs to have a thumbnail for Dr Grim to reply to it.

> > > > >

> > > > > Also if this is to be the policy it needs to be added to home page of

group site. This way all that want to join group will know they need to supply

one or if they do not want to give out part on the medical history then decide

to not join group.

> > > > >

> > > > > We need to remember this is a world wide group and not post any thing

that may be hurtful to any one. Have see some of this in past few weeks. This

also needs to be on home page with a warning as to how to deal with it.

> > > > >

> > > > >

> > > > >

> > > >

> > >

> > >

> >

>

[Guest guest]

I have previously brought up starting a non-profit organization, and think this

would be a very good option for sharing information and awareness of PA (Dr.

Grim has mentioned in previous posts that PA is much more prevalent than once

thought - imagine the amount of people who need help). It would be wonderful to

have a board of directors, and have consultants. In fact several of you

responded that you would like to contribute. Unfortunately, I have not been

able to go forward as I have not been feeling well (which many of you can

understand). If there is someone else who would like to take the mantel and run

with it . . .I am okay with that.

As for previous comments:

- In my opinion DASH does not seem to be a " one size fit all " solution.

Rather, it is the first step solution. Like climbing a pyramid, you start with

the first step and then climb higher. DASH first, then if that doesn't work,

the next step is meds, then if that doesn't work, go to surgery. Of course the

most non-invasive the better - thus the first step.

- Additionally, DASH does not seem to be a " one size solution " in that it can

be flexible with the basic premise being 1500 mg sodium and 4800 potassium

daily. DASH has helped me tremendously, has stabilized my blood pressure

(previously was swinging all over the place with my worst swing being 220/120 to

88/44 in 10 minutes) - now I am much more stable. I am adaptively DASHing as I

am allergic to wheat, corn, potatoes, dairy.

- As for not seeing people on this board for some time and seeing others pop in

and pop out . . . what you don't see is those that follow along, but may not

post frequently. I am one of those people, just wanting to follow along to

gleen information. If it is something that does not apply, I delete. If it

does apply, I pull the message into a folder.

I would love to see us pull together our knowledge and offer hope and help to

others. I even thought that maybe this could start with our very first

conference. It would be wonderful to have training, information and a meeting

of our collective minds.

Just some thoughts . . .

51 yo/wf, labile bp, suspected early PA, elevated bili, low platelets, elevated

hhv-6 antibodies, suspicious lyme test, toxic mold exposure

> > > > >

> > > > > > First I can understand Dr Grim's need to keep track of whats what on

this sight. In some ways the thumbnail can be the thing to do. How ever not all

want to put there medical history out there. While I for one have no problem

with this I do know from posting so information about my weight I got what I

thought was a distressful remark for all over weight people. I Also think some

that ask questions do not like it when we ask them to provide the meds and labs

as they do not give this information.

> > > > > >

> > > > > > If it it now going to be Dr Grim's policy to not answer questiuns

unless there is a thumbnail then thes nees to apply to every one so if some like

Val ask questions she needs to have a thumbnail for Dr Grim to reply to it.

> > > > > >

> > > > > > Also if this is to be the policy it needs to be added to home page

of group site. This way all that want to join group will know they need to

supply one or if they do not want to give out part on the medical history then

decide to not join group.

> > > > > >

> > > > > > We need to remember this is a world wide group and not post any

thing that may be hurtful to any one. Have see some of this in past few weeks.

This also needs to be on home page with a warning as to how to deal with it.

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

>

[Guest guest]

I am going to step out on a limb and you can start sawing! (Maybe you are used

to me talking about something I know nothing about!)

I responded to Dr. Grim the other day about " teaching BP in kindergarten " . In

it I suggested something about a " Blog " . I know almost nothing about it other

than my son, a local H.S. Principal, is teaching a course and using it as the

platform for his school to develop and deliver new courses. He suggested I go

to: www.blogspot.com to get an understanding. Here is the first panel from the

introduction: (bottom left)

What's a blog?

A blog is a personal diary. A daily pulpit. A collaborative space. A political

soapbox. A breaking-news outlet. A collection of links. Your own private

thoughts. Memos to the world.

Your blog is whatever you want it to be. There are millions of them, in all

shapes and sizes, and there are no real rules.

In simple terms, a blog is a web site, where you write stuff on an ongoing

basis. New stuff shows up at the top, so your visitors can read what's new. Then

they comment on it or link to it or email you. Or not.

Since Blogger was launched in 1999, blogs have reshaped the web, impacted

politics, shaken up journalism, and enabled millions of people to have a voice

and connect with others.

And we're pretty sure the whole deal is just getting started.

This only one example and there are many questions that need to be answered if

we are going to proceed.

- 65 yo morb. ob. male - 12mm X 13mm rt. a.adnoma with previous rt. flank

pain. Treating with Meds. And DASH. . Current BP(last week ave): 125/73

Other Issues/Opportunities: OSA w Bi-Pap settings 13/19, DM2, and PTSD.

Meds: Duloxetine hcl 80 MG, Mirtazapine 7.5 MG, Metoprolol Tartrate 200 MG,

81mg asprin, Metformin 2000MG and Spironolactone 50 MG.

> > > > > > >

> > > > > > > > First I can understand Dr Grim's need to keep track of

> whats

> > > what on this sight. In some ways the thumbnail can be the thing to

> do.

> > > How ever not all want to put there medical history out there. While

> I

> > > for one have no problem with this I do know from posting so

> information

> > > about my weight I got what I thought was a distressful remark for

> all

> > > over weight people. I Also think some that ask questions do not like

> it

> > > when we ask them to provide the meds and labs as they do not give

> this

> > > information.

> > > > > > > >

> > > > > > > > If it it now going to be Dr Grim's policy to not answer

> > > questiuns unless there is a thumbnail then thes nees to apply to

> every

> > > one so if some like Val ask questions she needs to have a thumbnail

> for

> > > Dr Grim to reply to it.

> > > > > > > >

> > > > > > > > Also if this is to be the policy it needs to be added to

> home

> > > page of group site. This way all that want to join group will know

> they

> > > need to supply one or if they do not want to give out part on the

> > > medical history then decide to not join group.

> > > > > > > >

> > > > > > > > We need to remember this is a world wide group and not

> post

> > > any thing that may be hurtful to any one. Have see some of this in

> past

> > > few weeks. This also needs to be on home page with a warning as to

> how

> > > to deal with it.

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Hi Don, I was thinking about Wordpress since I'm already familiar with it for

blogging, but I've never used the non-hosted version. Any idea if there's a

plug-in that lets you add a forum or chat room?

Yuku does look like it's having some issues today - I'm getting a blank screen

every time I click a link.

> > > > > >

> > > > > > > First I can understand Dr Grim's need to keep track of whats what

> > on this sight. In some ways the thumbnail can be the thing to do. How ever

> > not all want to put there medical history out there. While I for one have no

> > problem with this I do know from posting so information about my weight I

> > got what I thought was a distressful remark for all over weight people. I

> > Also think some that ask questions do not like it when we ask them to

> > provide the meds and labs as they do not give this information.

> > > > > > >

> > > > > > > If it it now going to be Dr Grim's policy to not answer questiuns

> > unless there is a thumbnail then thes nees to apply to every one so if some

> > like Val ask questions she needs to have a thumbnail for Dr Grim to reply to

> > it.

> > > > > > >

> > > > > > > Also if this is to be the policy it needs to be added to home

> > page of group site. This way all that want to join group will know they need

> > to supply one or if they do not want to give out part on the medical history

> > then decide to not join group.

> > > > > > >

> > > > > > > We need to remember this is a world wide group and not post any

> > thing that may be hurtful to any one. Have see some of this in past few

> > weeks. This also needs to be on home page with a warning as to how to deal

> > with it.

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > > >

> > > >

> > >

> >

> >

> >

>

[Guest guest]

Maybe it is about how to find the discussions because searching thtough old

discussions is nigh-on impossible by thread title. But I never had any response

to my 'pros and cons' question beyond being told DASH and meds was the way to go

- despite pressing and pressing for the equivalent analysis on surgery. And in

the year since then I've seen very little support for surgery. Now in my case

(under 40, clear adenoma, BP controlled my minimal meds, PA short term) it was a

no-brainer according to all the other research I could lay my hands on.

When I got no response on here to surgery questions, I did trawl through Pub Med

and every other piece of research I could find - but it would have been lovely

to have been able to speed that up by getting some facts on here to begin with.

And I'm guessing that's what many others do - they come on here as a first port

of call but then move on to doing their own fundamental research or go with

their medical teams advice and never come back.

It's great, fantastic, that so many of you are fervent supporters of DASH and

meds. Really - I absolutely mean that. But that doesn't mean there isn't ever a

case for surgery. Now I'll do my best to be equally fervent in support of

surgery when I think somebody has a case for it - that's why I'm still here.

Because that's how it's all going to work, imho. But I'm not a medic and I won't

be up to date with the latest research so I'll never carry as much weight as

many of you. So hopefully there will be others around giving an alternative

view-point too. And if that isn't welcome then there should be something in the

intro about this being a forum for supporting Conn's sufferers through diet and

meds rather than it being a general PA support site.

H

> > > > >

> > > > > > First I can understand Dr Grim's need to keep track of whats what on

this sight. In some ways the thumbnail can be the thing to do. How ever not all

want to put there medical history out there. While I for one have no problem

with this I do know from posting so information about my weight I got what I

thought was a distressful remark for all over weight people. I Also think some

that ask questions do not like it when we ask them to provide the meds and labs

as they do not give this information.

> > > > > >

> > > > > > If it it now going to be Dr Grim's policy to not answer questiuns

unless there is a thumbnail then thes nees to apply to every one so if some like

Val ask questions she needs to have a thumbnail for Dr Grim to reply to it.

> > > > > >

> > > > > > Also if this is to be the policy it needs to be added to home page

of group site. This way all that want to join group will know they need to

supply one or if they do not want to give out part on the medical history then

decide to not join group.

> > > > > >

> > > > > > We need to remember this is a world wide group and not post any

thing that may be hurtful to any one. Have see some of this in past few weeks.

This also needs to be on home page with a warning as to how to deal with it.

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

>

[Guest guest]

I've been blogging for years - used Blogger in its earliest days as a way to

learn HTML.

What I don't have are the skills to make a blog into something interactive,

where many people can join and contribute. Blogs generally work by having one

(or a select few) author, and then readers can post comments. We would need a

way to automatically make every member an author.

> > > > > > > >

> > > > > > > > > First I can understand Dr Grim's need to keep track of

> > whats

> > > > what on this sight. In some ways the thumbnail can be the thing to

> > do.

> > > > How ever not all want to put there medical history out there. While

> > I

> > > > for one have no problem with this I do know from posting so

> > information

> > > > about my weight I got what I thought was a distressful remark for

> > all

> > > > over weight people. I Also think some that ask questions do not like

> > it

> > > > when we ask them to provide the meds and labs as they do not give

> > this

> > > > information.

> > > > > > > > >

> > > > > > > > > If it it now going to be Dr Grim's policy to not answer

> > > > questiuns unless there is a thumbnail then thes nees to apply to

> > every

> > > > one so if some like Val ask questions she needs to have a thumbnail

> > for

> > > > Dr Grim to reply to it.

> > > > > > > > >

> > > > > > > > > Also if this is to be the policy it needs to be added to

> > home

> > > > page of group site. This way all that want to join group will know

> > they

> > > > need to supply one or if they do not want to give out part on the

> > > > medical history then decide to not join group.

> > > > > > > > >

> > > > > > > > > We need to remember this is a world wide group and not

> > post

> > > > any thing that may be hurtful to any one. Have see some of this in

> > past

> > > > few weeks. This also needs to be on home page with a warning as to

> > how

> > > > to deal with it.

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Regardless of the outcome of my upcoming surgery, there will be two of us

fervently supporting it as an option, Hester.

One thing I wanted to point out is a problem inherent to most forums: generally

the only people who take the time to hang out and post are the ones who are not

doing well. For every person on here who is posting about spiro and DASH, there

may well be another person who came here, signed up, had their surgery, and is

doing fine; the trouble is they don't stick around to follow up.

> > > > > >

> > > > > > > First I can understand Dr Grim's need to keep track of whats what

on this sight. In some ways the thumbnail can be the thing to do. How ever not

all want to put there medical history out there. While I for one have no problem

with this I do know from posting so information about my weight I got what I

thought was a distressful remark for all over weight people. I Also think some

that ask questions do not like it when we ask them to provide the meds and labs

as they do not give this information.

> > > > > > >

> > > > > > > If it it now going to be Dr Grim's policy to not answer questiuns

unless there is a thumbnail then thes nees to apply to every one so if some like

Val ask questions she needs to have a thumbnail for Dr Grim to reply to it.

> > > > > > >

> > > > > > > Also if this is to be the policy it needs to be added to home page

of group site. This way all that want to join group will know they need to

supply one or if they do not want to give out part on the medical history then

decide to not join group.

> > > > > > >

> > > > > > > We need to remember this is a world wide group and not post any

thing that may be hurtful to any one. Have see some of this in past few weeks.

This also needs to be on home page with a warning as to how to deal with it.

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

,The term 'blog' came from early Internet users, scientists usually, posting a log of their experiment logs to share with other investigators. Since it was on the Web, it was a 'Web log' which morphed into 'blog.'

I mentioned the site I am webmaster for, it is made in WordPress which is a blog platform. There are others, but WordPress is high on the list.If we jump to another platform altogether, a Blog is the way to go.GPS

 

I am going to step out on a limb and you can start sawing! (Maybe you are used to me talking about something I know nothing about!)

I responded to Dr. Grim the other day about " teaching BP in kindergarten " . In it I suggested something about a " Blog " . I know almost nothing about it other than my son, a local H.S. Principal, is teaching a course and using it as the platform for his school to develop and deliver new courses. He suggested I go to: www.blogspot.com to get an understanding. Here is the first panel from the introduction: (bottom left)

What's a blog?

A blog is a personal diary. A daily pulpit. A collaborative space. A political soapbox. A breaking-news outlet. A collection of links. Your own private thoughts. Memos to the world.

Your blog is whatever you want it to be. There are millions of them, in all shapes and sizes, and there are no real rules.

In simple terms, a blog is a web site, where you write stuff on an ongoing basis. New stuff shows up at the top, so your visitors can read what's new. Then they comment on it or link to it or email you. Or not.

Since Blogger was launched in 1999, blogs have reshaped the web, impacted politics, shaken up journalism, and enabled millions of people to have a voice and connect with others.

And we're pretty sure the whole deal is just getting started.

This only one example and there are many questions that need to be answered if we are going to proceed.

- 65 yo morb. ob. male - 12mm X 13mm rt. a.adnoma with previous rt. flank pain. Treating with Meds. And DASH. . Current BP(last week ave): 125/73

Other Issues/Opportunities: OSA w Bi-Pap settings 13/19, DM2, and PTSD.

Meds: Duloxetine hcl 80 MG, Mirtazapine 7.5 MG, Metoprolol Tartrate 200 MG, 81mg asprin, Metformin 2000MG and Spironolactone 50 MG.

> > > > > > >

> > > > > > > > First I can understand Dr Grim's need to keep track of

> whats

> > > what on this sight. In some ways the thumbnail can be the thing to

> do.

> > > How ever not all want to put there medical history out there. While

> I

> > > for one have no problem with this I do know from posting so

> information

> > > about my weight I got what I thought was a distressful remark for

> all

> > > over weight people. I Also think some that ask questions do not like

> it

> > > when we ask them to provide the meds and labs as they do not give

> this

> > > information.

> > > > > > > >

> > > > > > > > If it it now going to be Dr Grim's policy to not answer

> > > questiuns unless there is a thumbnail then thes nees to apply to

> every

> > > one so if some like Val ask questions she needs to have a thumbnail

> for

> > > Dr Grim to reply to it.

> > > > > > > >

> > > > > > > > Also if this is to be the policy it needs to be added to

> home

> > > page of group site. This way all that want to join group will know

> they

> > > need to supply one or if they do not want to give out part on the

> > > medical history then decide to not join group.

> > > > > > > >

> > > > > > > > We need to remember this is a world wide group and not

> post

> > > any thing that may be hurtful to any one. Have see some of this in

> past

> > > few weeks. This also needs to be on home page with a warning as to

> how

> > > to deal with it.

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

doable. But let's not take up this space with speculation and brainstorming.GPS

 

I've been blogging for years - used Blogger in its earliest days as a way to learn HTML.

What I don't have are the skills to make a blog into something interactive, where many people can join and contribute. Blogs generally work by having one (or a select few) author, and then readers can post comments. We would need a way to automatically make every member an author.

> > > > > > > >

> > > > > > > > > First I can understand Dr Grim's need to keep track of

> > whats

> > > > what on this sight. In some ways the thumbnail can be the thing to

> > do.

> > > > How ever not all want to put there medical history out there. While

> > I

> > > > for one have no problem with this I do know from posting so

> > information

> > > > about my weight I got what I thought was a distressful remark for

> > all

> > > > over weight people. I Also think some that ask questions do not like

> > it

> > > > when we ask them to provide the meds and labs as they do not give

> > this

> > > > information.

> > > > > > > > >

> > > > > > > > > If it it now going to be Dr Grim's policy to not answer

> > > > questiuns unless there is a thumbnail then thes nees to apply to

> > every

> > > > one so if some like Val ask questions she needs to have a thumbnail

> > for

> > > > Dr Grim to reply to it.

> > > > > > > > >

> > > > > > > > > Also if this is to be the policy it needs to be added to

> > home

> > > > page of group site. This way all that want to join group will know

> > they

> > > > need to supply one or if they do not want to give out part on the

> > > > medical history then decide to not join group.

> > > > > > > > >

> > > > > > > > > We need to remember this is a world wide group and not

> > post

> > > > any thing that may be hurtful to any one. Have see some of this in

> > past

> > > > few weeks. This also needs to be on home page with a warning as to

> > how

> > > > to deal with it.

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

This could be a Web problem as I tried to to go to USA jobs Get massage can't

connect.

> > > > > > >

> > > > > > > > First I can understand Dr Grim's need to keep track of whats

what

> > > on this sight. In some ways the thumbnail can be the thing to do. How ever

> > > not all want to put there medical history out there. While I for one have

no

> > > problem with this I do know from posting so information about my weight I

> > > got what I thought was a distressful remark for all over weight people. I

> > > Also think some that ask questions do not like it when we ask them to

> > > provide the meds and labs as they do not give this information.

> > > > > > > >

> > > > > > > > If it it now going to be Dr Grim's policy to not answer

questiuns

> > > unless there is a thumbnail then thes nees to apply to every one so if

some

> > > like Val ask questions she needs to have a thumbnail for Dr Grim to reply

to

> > > it.

> > > > > > > >

> > > > > > > > Also if this is to be the policy it needs to be added to home

> > > page of group site. This way all that want to join group will know they

need

> > > to supply one or if they do not want to give out part on the medical

history

> > > then decide to not join group.

> > > > > > > >

> > > > > > > > We need to remember this is a world wide group and not post any

> > > thing that may be hurtful to any one. Have see some of this in past few

> > > weeks. This also needs to be on home page with a warning as to how to deal

> > > with it.

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > >

> > >

> > >

> >

>