Re: Moving to Kansas right after casting! help!

[Guest guest]

Don't worry , everything will all work out for the best. I am sure ish Rite won't send you home after casting until Isaiah is stable and the cast is fitting just right.

To: infantile_scoliosis Sent: Thursday, August 6, 2009 6:13:59 PMSubject: Moving to Kansas right after casting! help!

Hi all,So i just found out today that my husband is being transferred with his job from where we live now in Texas to Kansas. We are origionally from Ks so this wouldnt be so bad but for the location and the timing. We are going to Independence Ks which is in the middle of nowhere close to the OK border. Isaiah is due to get his 1st cast on Sept 28th and then we are suppossed to move Oct 1st!! He is also having his chiari surgery this month so he will be healing from that too. I did find out that ish Rite will still see us as a patient, you just have to be a Tx resident to get in, but once your in, your in. We will have a 6 hr drive every 2 months in winter weather for a cast change. Anyway, we wont be any where near a big city if something goes wrong with anything, like his cast. What should i do if something goes wrong? What do i look for if something might be wrong with his cast? Im just freaking out right now and rambling so

please some advice/support/ help!Thanks, mom to Isaiah 11 mos old 46 degree curve 1st cast Sept 28th

[Guest guest]

,WOW!.......it is all happening so fast around surgery and casting.I am happy for you that you are moving back home! Sorry to see you go from big Texas though. Things will work out just fine for casting. ANd it sounds like you are very close to another hospital for casting. TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.html--- Subject:

Moving to Kansas right after casting! help!To: infantile_scoliosis Date: Thursday, August 6, 2009, 6:13 PM

Hi all,

So i just found out today that my husband is being transferred with his job from where we live now in Texas to Kansas. We are origionally from Ks so this wouldnt be so bad but for the location and the timing. We are going to Independence Ks which is in the middle of nowhere close to the OK border. Isaiah is due to get his 1st cast on Sept 28th and then we are suppossed to move Oct 1st!! He is also having his chiari surgery this month so he will be healing from that too. I did find out that ish Rite will still see us as a patient, you just have to be a Tx resident to get in, but once your in, your in. We will have a 6 hr drive every 2 months in winter weather for a cast change.

Anyway, we wont be any where near a big city if something goes wrong with anything, like his cast. What should i do if something goes wrong? What do i look for if something might be wrong with his cast? Im just freaking out right now and rambling so please some advice/support/ help!

Thanks,

mom to Isaiah 11 mos old 46 degree curve 1st cast Sept 28th

[Guest guest]

Aww! Dianna you know i just found out today about the move , promise!! We are still going to go to ish even though we will be living in Kansas, Anita the nurse told me we could! So we could still meet some day. You know i will need a costal vacation in Houston sometime!! Sorry you dont approve, actually neither do I. But you know we got to go where our hubby goes SINCE he makes the money! Thats what we stay at home mommys do i guess. We will still keep in touch. You didnt think i would let you and Hot Pink Marci off my radar that fast did you?? Us ish girls like you ,me ,Joan and Tasha got to stick together!!

Seriously, Thanks for your prayers, the surgery on the 19th will be the hardest. THEN the casting...

XOXO,

Subject: Re: Moving to Kansas right after casting! help!To: infantile_scoliosis Date: Thursday, August 6, 2009, 7:09 PM

! How are you just moving on me like that?! I wasn't notified of any changes, and I certainly didn't pre-approve! I'm bummed. I thought for sure we'd end up meeting one day at the hospital, but oh well): Have you found a Mehta hospital near you? That would be awesome, and would take so much stress off of everything. Well anyway, don't worry about the casting in Dallas, everything is going to be fine. You end up staying about 3 days anyway and you won't leave until you're completely comfortable. You and your family are in my prayers, especially in the coming weeks(:Dianna (mommy to Marcela, 14 months in 1st cast)>> Hi all,> So i just found out

today that my husband is being transferred with his job from where we live now in Texas to Kansas. We are origionally from Ks so this wouldnt be so bad but for the location and the timing. We are going to Independence Ks which is in the middle of nowhere close to the OK border. Isaiah is due to get his 1st cast on Sept 28th and then we are suppossed to move Oct 1st!! He is also having his chiari surgery this month so he will be healing from that too. I did find out that ish Rite will still see us as a patient, you just have to be a Tx resident to get in, but once your in, your in. We will have a 6 hr drive every 2 months in winter weather for a cast change. > > Anyway, we wont be any where near a big city if something goes wrong with anything, like his cast. What should i do if something goes wrong? What do i look for if something might be wrong with his cast? Im just freaking out right now and rambling so please some advice/support/

help!> > Thanks,> mom to Isaiah 11 mos old 46 degree curve 1st cast Sept 28th>

[Guest guest]

Thanks Tasha! Dont think your off the hook yet!! We are still going to ish even after we move to KS. They said we could so we will. i will still bother you with LOTS of questions and i might still hold you to help me on that Sept casting date!!! Hopefully we will meet there someday! Texas cant get rid of us that easily!! We will be back every 2 months! And if another opening comes our way bringing us back to Texas we will take it!!

From: melissa <missikay10yahoo (DOT) com>Subject: [infantile_scoliosi s] Moving to Kansas right after casting! help!To: infantile_scoliosis @yahoogroups. comDate: Thursday, August 6, 2009, 6:13 PM

Hi all,So i just found out today that my husband is being transferred with his job from where we live now in Texas to Kansas. We are origionally from Ks so this wouldnt be so bad but for the location and the timing. We are going to Independence Ks which is in the middle of nowhere close to the OK border. Isaiah is due to get his 1st cast on Sept 28th and then we are suppossed to move Oct 1st!! He is also having his chiari surgery this month so he will be healing from that too. I did find out that ish Rite will still see us as a patient, you just have to be a Tx resident to get in, but once your in, your in. We will have a 6 hr drive every 2 months in winter weather for a cast change. Anyway, we wont be any where near a big city if something goes wrong with anything, like his cast. What should i do if something goes wrong? What do i look for if something might be wrong with his cast? Im just freaking out right now and rambling so

please some advice/support/ help!Thanks, mom to Isaiah 11 mos old 46 degree curve 1st cast Sept 28th

[Guest guest]

Sorry Tasha, my post may have been a little misleading. I certainly had the

option of staying a 3rd night but didn't. We had to get there the day before

casting to meet with the docs and get x-rayed. The next morning was casting. We

left the following afternoon (day 3), however we almost didnt because we were

having a lot of casting issues--or rather, I was. I think I was just freaking

out that Marci wasn't sitting up and was crying so much, that I had it in my

head that the cast was too tight. I brought it up to EVERYBODY that passed by

our room! Even the cleaning lady at one point started checking Marci out just to

appease me. Anyway, point being, they told me that we could stay another night

to see if we felt more comfortable waiting it out. We didn't need to though

because the muscle soreness started wearing off and we could tell she felt

better. I think the hospital was willing to work with us since we were coming

from out of town. LOVE that place. SAD that is leaving ish, but

glad you're still there(:

Dianna

-- In infantile_scoliosis , Tasha Fontenot wrote:

>

> Sorry to but in, , I'll send you another message about leaving us here

in Texas.

> Dianna, why do y'all stay for 3 days after casting?  Just curious???

>

> Tasha

> Mommy of 4 year old twin boys- and

> Fort Worth, Texas

> Series of 6 casts for 14 months and now in a night brace.

> is treated at Texas ish Rite Hospital.

> You can read 's story at....

> http://www.infantilescoliosis.org/stories.html

>

>

>

>

>

>

>

>

> Subject: Re: Moving to Kansas right after casting!

help!

> To: infantile_scoliosis

> Date: Thursday, August 6, 2009, 7:09 PM

>

>

>

>

>

>

>  

>

>

>

>

>

> ! How are you just moving on me like that?! I wasn't

notified of any changes, and I certainly didn't pre-approve! I'm bummed. I

thought for sure we'd end up meeting one day at the hospital, but oh well): Have

you found a Mehta hospital near you? That would be awesome, and would take so

much stress off of everything. Well anyway, don't worry about the casting in

Dallas, everything is going to be fine. You end up staying about 3 days anyway

and you won't leave until you're completely comfortable. You and your family are

in my prayers, especially in the coming weeks(:

>

>

>

> Dianna (mommy to Marcela, 14 months in 1st cast)

>

>

>

>

>

> >

>

> > Hi all,

>

> > So i just found out today that my husband is being transferred with his job

from where we live now in Texas to Kansas. We are origionally from Ks so this

wouldnt be so bad but for the location and the timing. We are going to

Independence Ks which is in the middle of nowhere close to the OK border.

Isaiah is due to get his 1st cast on Sept 28th and then we are suppossed to move

Oct 1st!! He is also having his chiari surgery this month so he will be healing

from that too. I did find out that ish Rite will still see us as a

patient, you just have to be a Tx resident to get in, but once your in, your in.

We will have a 6 hr drive every 2 months in winter weather for a cast change.

>

> >

>

> > Anyway, we wont be any where near a big city if something goes wrong with

anything, like his cast. What should i do if something goes wrong? What do i

look for if something might be wrong with his cast? Im just freaking out right

now and rambling so please some advice/support/ help!

>

> >

>

> > Thanks,

>

> > mom to Isaiah 11 mos old 46 degree curve 1st cast Sept 28th

>

> >

>

[Guest guest]

This is hilarious!!! Well, he is so cute, you just parade him down Main Street in his lime green cast, no shirt!!!

I love it! Your attitude is awesome. You know we emailed, I'm a Kansas girl too, born and raised 'til junior high, when we moved to New Orleans. Born in Salina, raised mostly in Hays, KS...my best childhood friend lives in Witchita, KS right now. There must be a CAST movement affront where the wheat sways and the buffalo roam...Heidi, Bexon's Mama, (2 years old, in 3rd cast from Salt Lake City Shriners, currently down from 61 degrees to 25)> > From: diannapiquet <diannapiquet@ ...>> Subject: [infantile_scoliosi s] Re: Moving to Kansas right after casting! help!> To: infantile_scoliosis @yahoogroups. com> Date: Thursday, August 6, 2009, 7:09 PM> > > > > > > > > > > > > ! How are you just moving on me like that?! I wasn't notified of any changes, and I certainly didn't pre-approve! I'm bummed. I thought for sure we'd end up meeting one day at the hospital, but oh well): Have you found a Mehta hospital near you? That would be awesome, and would take so much stress off of everything. Well anyway, don't worry about the casting in Dallas, everything is going to be fine.

You end up staying about 3 days anyway and you won't leave until you're completely comfortable. You and your family are in my prayers, especially in the coming weeks(:> > > > Dianna (mommy to Marcela, 14 months in 1st cast)> > > > > > >> > > Hi all,> > > So i just found out today that my husband is being transferred with his job from where we live now in Texas to Kansas. We are origionally from Ks so this wouldnt be so bad but for the location and the timing. We are going to Independence Ks which is in the middle of nowhere close to the OK border. Isaiah is due to get his 1st cast on Sept 28th and then we are suppossed to move Oct 1st!! He is also having his chiari surgery this month so he will be healing from that too. I did find out that ish Rite will still

see us as a patient, you just have to be a Tx resident to get in, but once your in, your in. We will have a 6 hr drive every 2 months in winter weather for a cast change. > > > > > > Anyway, we wont be any where near a big city if something goes wrong with anything, like his cast. What should i do if something goes wrong? What do i look for if something might be wrong with his cast? Im just freaking out right now and rambling so please some advice/support/ help!> > > > > > Thanks,> > > mom to Isaiah 11 mos old 46 degree curve 1st cast Sept 28th> > >>

[Guest guest]

,

Just thinking that it may be because people travelling can have unexpected glitches and miss the appointment? That may have thrown off the schedule in the past, so the hospital made it a rule?Heidi, Bexon's Mama, (2 years old, in 3rd cast from Salt Lake City Shriners, currently down from 61 degrees to 25)> > From: diannapiquet <diannapiquet@ ...>> Subject: [infantile_scoliosi s] Re: Moving to Kansas right after casting! help!> To: infantile_scoliosis @yahoogroups. com> Date: Thursday, August 6, 2009, 7:09 PM> > > > > > > > > > > > > ! How are you just moving on me like that?! I wasn't notified of any changes, and I certainly didn't pre-approve! I'm bummed. I thought for sure we'd end up meeting one day at the hospital, but oh well): Have you found a Mehta hospital near you? That would be awesome, and would take so much stress off of everything. Well anyway, don't worry about the casting in Dallas, everything is going to be fine.

You end up staying about 3 days anyway and you won't leave until you're completely comfortable. You and your family are in my prayers, especially in the coming weeks(:> > > > Dianna (mommy to Marcela, 14 months in 1st cast)> > > > > > >> > > Hi all,> > > So i just found out today that my husband is being transferred with his job from where we live now in Texas to Kansas. We are origionally from Ks so this wouldnt be so bad but for the location and the timing. We are going to Independence Ks which is in the middle of nowhere close to the OK border. Isaiah is due to get his 1st cast on Sept 28th and then we are suppossed to move Oct 1st!! He is also having his chiari surgery this month so he will be healing from that too. I did find out that ish Rite will still

see us as a patient, you just have to be a Tx resident to get in, but once your in, your in. We will have a 6 hr drive every 2 months in winter weather for a cast change. > > > > > > Anyway, we wont be any where near a big city if something goes wrong with anything, like his cast. What should i do if something goes wrong? What do i look for if something might be wrong with his cast? Im just freaking out right now and rambling so please some advice/support/ help!> > > > > > Thanks,> > > mom to Isaiah 11 mos old 46 degree curve 1st cast Sept 28th> >

>>

[Guest guest]

Im a proud mama! I will parade him down every street with ISOP flyers in the wind as i go by!!

And Heidi did you know Hays is 20,000 people now so im going to half the size of Hays!!

Wont we be a sight to see!! As long as their not mean to my baby we'll be ok. But if they are they are going to learn what the wrath of is, and it aint pretty....LOL!

> > From: diannapiquet <diannapiquet@ ...>> Subject: [infantile_scoliosi s] Re: Moving to Kansas right after casting! help!> To: infantile_scoliosis @yahoogroups. com> Date: Thursday, August 6, 2009, 7:09 PM> > > > > > > > > > > > > ! How are you just moving on me like that?! I wasn't notified of any changes, and I certainly didn't pre-approve! I'm bummed. I thought for sure we'd end up meeting one day at the hospital, but oh well): Have you found a Mehta hospital near you? That would be awesome, and would take so much stress off of everything. Well anyway, don't worry about the casting in Dallas, everything is going to be fine.

You end up staying about 3 days anyway and you won't leave until you're completely comfortable. You and your family are in my prayers, especially in the coming weeks(:> > > > Dianna (mommy to Marcela, 14 months in 1st cast)> > > > > > >> > > Hi all,> > > So i just found out today that my husband is being transferred with his job from where we live now in Texas to Kansas. We are origionally from Ks so this wouldnt be so bad but for the location and the timing. We are going to Independence Ks which is in the middle of nowhere close to the OK border. Isaiah is due to get his 1st cast on Sept 28th and then we are suppossed to move Oct 1st!! He is also having his chiari surgery this month so he will be healing from that too. I did find out that ish Rite will still

see us as a patient, you just have to be a Tx resident to get in, but once your in, your in. We will have a 6 hr drive every 2 months in winter weather for a cast change. > > > > > > Anyway, we wont be any where near a big city if something goes wrong with anything, like his cast. What should i do if something goes wrong? What do i look for if something might be wrong with his cast? Im just freaking out right now and rambling so please some advice/support/ help!> > > > > > Thanks,> > > mom to Isaiah 11 mos old 46 degree curve 1st cast Sept 28th> >

>>

[Guest guest]

Hays was around 19 or 20 thou people 20 years ago, so not a lot of people move there and not a lot of people leave. A lot of good people in KS., though, but I don't know your new town! I lived in a "one stoplight town", a village, technically, after we moved 45 minutes outside of New Orleans, LA, to the country (Folsom, LA.), when I was 13-18 years old.

You SHOULD be a proud mama!! And if someone is mean to your baby, they are not worth knowning, or even given a MOMENT of your energy.Heidi, Bexon's Mama, (2 years old, in 3rd cast from Salt Lake City Shriners, currently down from 61 degrees to 25)> > From: diannapiquet <diannapiquet@ ...>> Subject: [infantile_scoliosi s] Re: Moving to Kansas right after casting! help!> To: infantile_scoliosis @yahoogroups. com> Date: Thursday, August 6, 2009, 7:09 PM> > > > > > > > > > > > > ! How are you just moving on me like that?! I wasn't notified of any changes, and I certainly didn't pre-approve! I'm bummed. I thought for sure we'd end up meeting one day at the hospital, but oh well): Have you found a Mehta hospital near you? That would be awesome, and would take so much stress off of everything. Well anyway, don't worry about the casting in Dallas, everything is going to be fine.

You end up staying about 3 days anyway and you won't leave until you're completely comfortable. You and your family are in my prayers, especially in the coming weeks(:> > > > Dianna (mommy to Marcela, 14 months in 1st cast)> > > > > > >> > > Hi all,> > > So i just found out today that my husband is being transferred with his job from where we live now in Texas to Kansas. We are origionally from Ks so this wouldnt be so bad but for the location and the timing. We are going to Independence Ks which is in the middle of nowhere close to the OK border. Isaiah is due to get his 1st cast on Sept 28th and then we are suppossed to move Oct 1st!! He is also having his chiari surgery this month so he will be healing from that too. I did find out that ish Rite will still

see us as a patient, you just have to be a Tx resident to get in, but once your in, your in. We will have a 6 hr drive every 2 months in winter weather for a cast change. > > > > > > Anyway, we wont be any where near a big city if something goes wrong with anything, like his cast. What should i do if something goes wrong? What do i look for if something might be wrong with his cast? Im just freaking out right now and rambling so please some advice/support/ help!> > > > > > Thanks,> > > mom to Isaiah 11 mos old 46 degree curve 1st cast Sept 28th> >

>>

[Guest guest]

I guess hays never changes. Sometimes thats a good thing. i dont know my town where we are moving to either but as cute as isaiah is if thay dont love him and his cast its their loss not ours!! we will still go on with our lives wether they like ot or not!! So there!!

> > From: diannapiquet <diannapiquet@ ...>> Subject: [infantile_scoliosi s] Re: Moving to Kansas right after casting! help!> To: infantile_scoliosis @yahoogroups. com> Date: Thursday, August 6, 2009, 7:09 PM> > > > > > > > > > > > > ! How are you just moving on me like that?! I wasn't notified of any changes, and I certainly didn't pre-approve! I'm bummed. I thought for sure we'd end up meeting one day at the hospital, but oh well): Have you found a Mehta hospital near you? That would be awesome, and would take so much stress off of everything. Well anyway, don't worry about the casting in Dallas, everything is going to be fine.

You end up staying about 3 days anyway and you won't leave until you're completely comfortable. You and your family are in my prayers, especially in the coming weeks(:> > > > Dianna (mommy to Marcela, 14 months in 1st cast)> > > > > > >> > > Hi all,> > > So i just found out today that my husband is being transferred with his job from where we live now in Texas to Kansas. We are origionally from Ks so this wouldnt be so bad but for the location and the timing. We are going to Independence Ks which is in the middle of nowhere close to the OK border. Isaiah is due to get his 1st cast on Sept 28th and then we are suppossed to move Oct 1st!! He is also having his chiari surgery this month so he will be healing from that too. I did find out that ish Rite will still

see us as a patient, you just have to be a Tx resident to get in, but once your in, your in. We will have a 6 hr drive every 2 months in winter weather for a cast change. > > > > > > Anyway, we wont be any where near a big city if something goes wrong with anything, like his cast. What should i do if something goes wrong? What do i look for if something might be wrong with his cast? Im just freaking out right now and rambling so please some advice/support/ help!> > > > > > Thanks,> > > mom to Isaiah 11 mos old 46 degree curve 1st cast Sept 28th> >

>>

[Guest guest]

You GO, GIRL!!!Heidi, Bexon's Mama, (2 years old, in 3rd cast from Salt Lake City Shriners, currently down from 61 degrees to 25)> > From: diannapiquet <diannapiquet@ ...>> Subject: [infantile_scoliosi s] Re: Moving to Kansas right after casting! help!> To: infantile_scoliosis @yahoogroups. com> Date: Thursday, August 6, 2009, 7:09 PM> > > > > > > > > > > > > ! How are you just moving on me like that?! I wasn't notified of any changes, and I certainly didn't pre-approve! I'm bummed. I thought for sure we'd end up meeting one day at the hospital, but oh well): Have you found a Mehta hospital near you? That would be awesome, and would take so much stress off of everything. Well anyway, don't worry about the casting in Dallas, everything is going to be fine.

You end up staying about 3 days anyway and you won't leave until you're completely comfortable. You and your family are in my prayers, especially in the coming weeks(:> > > > Dianna (mommy to Marcela, 14 months in 1st cast)> > > > > > >> > > Hi all,> > > So i just found out today that my husband is being transferred with his job from where we live now in Texas to Kansas. We are origionally from Ks so this wouldnt be so bad but for the location and the timing. We are going to Independence Ks which is in the middle of nowhere close to the OK border. Isaiah is due to get his 1st cast on Sept 28th and then we are suppossed to move Oct 1st!! He is also having his chiari surgery this month so he will be healing from that too. I did find out that ish Rite will still

see us as a patient, you just have to be a Tx resident to get in, but once your in, your in. We will have a 6 hr drive every 2 months in winter weather for a cast change. > > > > > > Anyway, we wont be any where near a big city if something goes wrong with anything, like his cast. What should i do if something goes wrong? What do i look for if something might be wrong with his cast? Im just freaking out right now and rambling so please some advice/support/ help!> > > > > > Thanks,> > > mom to Isaiah 11 mos old 46 degree curve 1st cast Sept 28th> >

>>

[Guest guest]

Hi Joan,

Moriah has two malformed vertebrae. T8 and T10 if I remember correctly. That skewed her growth from the start. Plus, I have always thought that having her sternum cracked at 2 weeks old added to that growth pattern. I was also told that congenital heart defects are often paired with another defect-her's being her spine.

shellie

From: melissa <missikay10yahoo (DOT) com>Subject: [infantile_scoliosi s] Moving to Kansas right after casting! help!To: infantile_scoliosis @yahoogroups. comDate: Thursday, August 6, 2009, 6:13 PM

Hi all,So i just found out today that my husband is being transferred with his job from where we live now in Texas to Kansas. We are origionally from Ks so this wouldnt be so bad but for the location and the timing. We are going to Independence Ks which is in the middle of nowhere close to the OK border. Isaiah is due to get his 1st cast on Sept 28th and then we are suppossed to move Oct 1st!! He is also having his chiari surgery this month so he will be healing from that too. I did find out that ish Rite will still see us as a patient, you just have to be a Tx resident to get in, but once your in, your in. We will have a 6 hr drive every 2 months in winter weather for a cast change. Anyway, we wont be any where near a big city if something goes wrong with anything, like his cast. What should i do if something goes wrong? What do i look for if something might be wrong with his cast? Im just freaking out right now and rambling so

please some advice/support/ help!Thanks, mom to Isaiah 11 mos old 46 degree curve 1st cast Sept 28th

[Guest guest]

Heidi!

Somehow I missed that! So which is better? Kansas or California? :0)

shellie

From: melissa <missikay10yahoo (DOT) com>Subject: [infantile_scoliosi s] Moving to Kansas right after casting! help!To: infantile_scoliosis @yahoogroups. comDate: Thursday, August 6, 2009, 6:13 PM

Hi all,So i just found out today that my husband is being transferred with his job from where we live now in Texas to Kansas. We are origionally from Ks so this wouldnt be so bad but for the location and the timing. We are going to Independence Ks which is in the middle of nowhere close to the OK border. Isaiah is due to get his 1st cast on Sept 28th and then we are suppossed to move Oct 1st!! He is also having his chiari surgery this month so he will be healing from that too. I did find out that ish Rite will still see us as a patient, you just have to be a Tx resident to get in, but once your in, your in. We will have a 6 hr drive every 2 months in winter weather for a cast change. Anyway, we wont be any where near a big city if something goes wrong with anything, like his cast. What should i do if something goes wrong? What do i look for if something might be wrong with his cast? Im just freaking out right now and rambling so

please some advice/support/ help!Thanks, mom to Isaiah 11 mos old 46 degree curve 1st cast Sept 28th

[Guest guest]

Just wanted to say that no one has ever been mean to Moriah. She wore TLSO's when she was little and has always had a prominent rib hump. I think her smile dazzled them too much and they looked past the other stuff. I have seen boys around her age lately looking at her back at the pool and talking. Not mean, just discussing. She didn't notice them doing it. A swim suit can't hide all she's been through and I wouldn't want to hide it anyway. It is a part of who she is. We've taught her to just politely and quickly explain in simple words to anyone who asks. We'll see how middle school goes.

Once when she was 5 she was wearing her TLSO under a flowered sweatshirt. A boy at the doctors office asked her what was that on her back (meaning her rib hump). She looked at him sweetly and said "flowers??" like she wasn't sure what his problem was. Funny thing was he had a cast on his arm. I took him aside and explained to him and his Mom who saw the whole thing.

shellie grant> > From: diannapiquet <diannapiquet@ ...>> Subject: [infantile_scoliosi s] Re: Moving to Kansas right after casting! help!> To: infantile_scoliosis @yahoogroups. com> Date: Thursday, August 6, 2009, 7:09 PM> > > > > > > > > > > > > ! How are you just moving on me like that?! I wasn't notified of any changes, and I certainly didn't pre-approve! I'm bummed. I thought for sure we'd end up meeting one day at the hospital, but oh well): Have you found a Mehta hospital near you? That would be awesome, and would take so much stress off of everything. Well anyway, don't worry about the casting in Dallas, everything is going to be fine.

You end up staying about 3 days anyway and you won't leave until you're completely comfortable. You and your family are in my prayers, especially in the coming weeks(:> > > > Dianna (mommy to Marcela, 14 months in 1st cast)> > > > > > >> > > Hi all,> > > So i just found out today that my husband is being transferred with his job from where we live now in Texas to Kansas. We are origionally from Ks so this wouldnt be so bad but for the location and the timing. We are going to Independence Ks which is in the middle of nowhere close to the OK border. Isaiah is due to get his 1st cast on Sept 28th and then we are suppossed to move Oct 1st!! He is also having his chiari surgery this month so he will be healing from that too. I did find out that ish Rite will still

see us as a patient, you just have to be a Tx resident to get in, but once your in, your in. We will have a 6 hr drive every 2 months in winter weather for a cast change. > > > > > > Anyway, we wont be any where near a big city if something goes wrong with anything, like his cast. What should i do if something goes wrong? What do i look for if something might be wrong with his cast? Im just freaking out right now and rambling so please some advice/support/ help!> > > > > > Thanks,> > > mom to Isaiah 11 mos old 46 degree curve 1st cast Sept 28th> >

>>

[Guest guest]

Thank you for that info Shellie. My son has a congenital heart defect as well, it is stable. But our Ortho at ish still thinks his Scoli is Idiopathic. I need to add this to my question list when we go in two weeks. What kind of Heart Defect does Moriah have? Hayden has Mitral Valve Stenosis. They wanted to repair it at 1 month but then the pressure gradient started to decrease and has been at low numbers ever since. But they still say surgery may be in his future. Thanks for listening

Joan

To: infantile_scoliosis Sent: Friday, August 7, 2009 7:41:00 AMSubject: Re: Moving to Kansas right after casting! help!

Hi Joan,

Moriah has two malformed vertebrae. T8 and T10 if I remember correctly. That skewed her growth from the start. Plus, I have always thought that having her sternum cracked at 2 weeks old added to that growth pattern. I was also told that congenital heart defects are often paired with another defect-her's being her spine.

shellie

From: melissa <missikay10yahoo (DOT) com>Subject: [infantile_scoliosi s] Moving to Kansas right after casting! help!To: infantile_scoliosis @yahoogroups. comDate: Thursday, August 6, 2009, 6:13 PM

Hi all,So i just found out today that my husband is being transferred with his job from where we live now in Texas to Kansas. We are origionally from Ks so this wouldnt be so bad but for the location and the timing. We are going to Independence Ks which is in the middle of nowhere close to the OK border. Isaiah is due to get his 1st cast on Sept 28th and then we are suppossed to move Oct 1st!! He is also having his chiari surgery this month so he will be healing from that too. I did find out that ish Rite will still see us as a patient, you just have to be a Tx resident to get in, but once your in, your in. We will have a 6 hr drive every 2 months in winter weather for a cast change. Anyway, we wont be any where near a big city if something goes wrong with anything, like his cast. What should i do if something goes wrong? What do i look for if something might be wrong with his cast? Im just freaking out right now and rambling so

please some advice/support/ help!Thanks, mom to Isaiah 11 mos old 46 degree curve 1st cast Sept 28th

[Guest guest]

Good for you Shellie. You are a great mother and your daughter sounds like a happy confident young girl. I hope I can handle questions and stares and stuff. I am such a mother lion when it comes to my kids, as I am sure all you ladies are as well.

Joan

To: infantile_scoliosis Sent: Friday, August 7, 2009 7:49:17 AMSubject: Re: Re: Moving to Kansas right after casting! help!

Just wanted to say that no one has ever been mean to Moriah. She wore TLSO's when she was little and has always had a prominent rib hump. I think her smile dazzled them too much and they looked past the other stuff. I have seen boys around her age lately looking at her back at the pool and talking. Not mean, just discussing. She didn't notice them doing it. A swim suit can't hide all she's been through and I wouldn't want to hide it anyway. It is a part of who she is. We've taught her to just politely and quickly explain in simple words to anyone who asks. We'll see how middle school goes.

Once when she was 5 she was wearing her TLSO under a flowered sweatshirt. A boy at the doctors office asked her what was that on her back (meaning her rib hump). She looked at him sweetly and said "flowers??" like she wasn't sure what his problem was. Funny thing was he had a cast on his arm. I took him aside and explained to him and his Mom who saw the whole thing.

shellie grant> > From: diannapiquet <diannapiquet@ ...>> Subject: [infantile_scoliosi s] Re: Moving to Kansas right after casting! help!> To: infantile_scoliosis @yahoogroups. com> Date: Thursday, August 6, 2009, 7:09 PM> > > > > > > > > > > > > ! How are you just moving on me like that?! I wasn't notified of any changes, and I certainly didn't pre-approve! I'm bummed. I thought for sure we'd end up meeting one day at the hospital, but oh well): Have you found a Mehta hospital near you? That would be awesome, and would take so much stress off of everything. Well anyway, don't worry about the casting in Dallas, everything is going to be fine.

You end up staying about 3 days anyway and you won't leave until you're completely comfortable. You and your family are in my prayers, especially in the coming weeks(:> > > > Dianna (mommy to Marcela, 14 months in 1st cast)> > > > > > >> > > Hi all,> > > So i just found out today that my husband is being transferred with his job from where we live now in Texas to Kansas. We are origionally from Ks so this wouldnt be so bad but for the location and the timing. We are going to Independence Ks which is in the middle of nowhere close to the OK border. Isaiah is due to get his 1st cast on Sept 28th and then we are suppossed to move Oct 1st!! He is also having his chiari surgery this month so he will be healing from that too. I did find out that ish Rite will still

see us as a patient, you just have to be a Tx resident to get in, but once your in, your in. We will have a 6 hr drive every 2 months in winter weather for a cast change. > > > > > > Anyway, we wont be any where near a big city if something goes wrong with anything, like his cast. What should i do if something goes wrong? What do i look for if something might be wrong with his cast? Im just freaking out right now and rambling so please some advice/support/ help!> > > > > > Thanks,> > > mom to Isaiah 11 mos old 46 degree curve 1st cast Sept 28th> >

>>

[Guest guest]

Moriah has repaired Tetrology of Fallot. Basically 4 things wrong. She had a shunt at 2 weeks. Patch and repair at 17 mos. and valve replacement at age 5. I would ask those questions and see what they say.

shellie

From: melissa <missikay10yahoo (DOT) com>Subject: [infantile_scoliosi s] Moving to Kansas right after casting! help!To: infantile_scoliosis @yahoogroups. comDate: Thursday, August 6, 2009, 6:13 PM

Hi all,So i just found out today that my husband is being transferred with his job from where we live now in Texas to Kansas. We are origionally from Ks so this wouldnt be so bad but for the location and the timing. We are going to Independence Ks which is in the middle of nowhere close to the OK border. Isaiah is due to get his 1st cast on Sept 28th and then we are suppossed to move Oct 1st!! He is also having his chiari surgery this month so he will be healing from that too. I did find out that ish Rite will still see us as a patient, you just have to be a Tx resident to get in, but once your in, your in. We will have a 6 hr drive every 2 months in winter weather for a cast change. Anyway, we wont be any where near a big city if something goes wrong with anything, like his cast. What should i do if something goes wrong? What do i look for if something might be wrong with his cast? Im just freaking out right now and rambling so

please some advice/support/ help!Thanks, mom to Isaiah 11 mos old 46 degree curve 1st cast Sept 28th

[Guest guest]

I'm going to jump in too. 's scoliosis was determined to be congenital due to her hemivertabrae and the cervical compression in her neck. A person is diagnosed with Congenital Scoliosis, as opposed to Idiopathic (no known cause), when there are malformations with the actual bones involved.

Dr. Winter of the Minnesota Spine Center, Minneapolis, and a Founder and past President of the Scoliosis Research Society gave this information:

http://www.scoliosis.org/resources/medicalupdates/congenital.php now, reading through the whole article, it is horribly out of date with regards to the different types of surgery that can and are being performed on children with Congenital Scoliosis. Looks like I need to write a letter!!

Gail

"The Earth is the insane asylum for the rest of universe"

“Normal is just a setting on the washing machine.†-BumperSnickerz. ********************************************************************Mom to , 11/28/98 - ADHD/ODD/SIDand , 02/02/02 - Congenital Scoliosis, VATER Association (vertebral and renal anomalies), Torticollis, Klippel Feil Syndrome, Fused Ribs, First VEPTR Recipient at Cincinnati Children's Hospital 3/21/05, VEPTR Expansions: 11/05, 04/20/06, 6/12/08 and scheduled for July 10, 2009; Mole (Spitz Nevus) removal: 11/26/07 & 2/11/08

From: melissa <missikay10yahoo (DOT) com>Subject: [infantile_scoliosi s] Moving to Kansas right after casting! help!To: infantile_scoliosis @yahoogroups. comDate: Thursday, August 6, 2009, 6:13 PM

Hi all,So i just found out today that my husband is being transferred with his job from where we live now in Texas to Kansas. We are origionally from Ks so this wouldnt be so bad but for the location and the timing. We are going to Independence Ks which is in the middle of nowhere close to the OK border. Isaiah is due to get his 1st cast on Sept 28th and then we are suppossed to move Oct 1st!! He is also having his chiari surgery this month so he will be healing from that too. I did find out that ish Rite will still see us as a patient, you just have to be a Tx resident to get in, but once your in, your in. We will have a 6 hr drive every 2 months in winter weather for a cast change. Anyway, we wont be any where near a big city if something goes wrong with anything, like his cast. What should i do if something goes wrong? What do i look for if something might be wrong with his cast? Im just freaking out right now and rambling so

please some advice/support/ help!Thanks, mom to Isaiah 11 mos old 46 degree curve 1st cast Sept 28th

[Guest guest]

What hospital do you go to? is getting his first cast off that same day at SLC. That would be great if we would be able to meet with yet another family that is going through the same thing as we are.Beth Rettinger

Mother Of Rettinger

In first cast from SLCSubject: Moving to Kansas right after casting! help!To: infantile_scoliosis Date: Thursday, August 6, 2009, 7:13 PM

Hi all,

So i just found out today that my husband is being transferred with his job from where we live now in Texas to Kansas. We are origionally from Ks so this wouldnt be so bad but for the location and the timing. We are going to Independence Ks which is in the middle of nowhere close to the OK border. Isaiah is due to get his 1st cast on Sept 28th and then we are suppossed to move Oct 1st!! He is also having his chiari surgery this month so he will be healing from that too. I did find out that ish Rite will still see us as a patient, you just have to be a Tx resident to get in, but once your in, your in. We will have a 6 hr drive every 2 months in winter weather for a cast change.

Anyway, we wont be any where near a big city if something goes wrong with anything, like his cast. What should i do if something goes wrong? What do i look for if something might be wrong with his cast? Im just freaking out right now and rambling so please some advice/support/ help!

Thanks,

mom to Isaiah 11 mos old 46 degree curve 1st cast Sept 28th

[Guest guest]

That would be great but we go to ish Rite Hospital for Children in Dallas, Tx. Good luck on the casting day! Its our 1st cast so we will be nervous!!!

From: melissa <missikay10yahoo (DOT) com>Subject: [infantile_scoliosi s] Moving to Kansas right after casting! help!To: infantile_scoliosis @yahoogroups. comDate: Thursday, August 6, 2009, 7:13 PM

Hi all,So i just found out today that my husband is being transferred with his job from where we live now in Texas to Kansas. We are origionally from Ks so this wouldnt be so bad but for the location and the timing. We are going to Independence Ks which is in the middle of nowhere close to the OK border. Isaiah is due to get his 1st cast on Sept 28th and then we are suppossed to move Oct 1st!! He is also having his chiari surgery this month so he will be healing from that too. I did find out that ish Rite will still see us as a patient, you just have to be a Tx resident to get in, but once your in, your in. We will have a 6 hr drive every 2 months in winter weather for a cast change. Anyway, we wont be any where near a big city if something goes wrong with anything, like his cast. What should i do if something goes wrong? What do i look for if something might be wrong with his cast? Im just freaking out right now and rambling so

please some advice/support/ help!Thanks, mom to Isaiah 11 mos old 46 degree curve 1st cast Sept 28th

[Guest guest]

My Kansas experience was really ideallic, it was a time when no one in town locked their doors- no crime to speak of. My Dad was the local college Drama professor and we got to play the kid's roles in his plays, which put us in the local newspaper. We had a lot of pot luck picnics and explored in a park nicknamed Buffalo Park, it had real Buffalo in it.

It was before my parent's divorce and the usual ripping apart of the family in tears, so I remember it as a golden, innocent time, mostly. Every time I got straight A's in elementary school (every year, until I discovered boys), I got to go to a fast food restaurant (my pick was Long Silvers ; )

I loved New Orleans for different reasons, but it never felt like I belonged there. When I moved to CA, it felt like it was where I was meant to be. Geographically correct! ; ) Thanks for asking.Heidi, Bexon's Mama, (2 years old, in 3rd cast from Salt Lake City Shriners, currently down from 61 degrees to 25)

From: melissa <missikay10yahoo (DOT) com>Subject: [infantile_scoliosi s] Moving to Kansas right after casting! help!To: infantile_scoliosis @yahoogroups. comDate: Thursday, August 6, 2009, 6:13 PM

Hi all,So i just found out today that my husband is being transferred with his job from where we live now in Texas to Kansas. We are origionally from Ks so this wouldnt be so bad but for the location and the timing. We are going to Independence Ks which is in the middle of nowhere close to the OK border. Isaiah is due to get his 1st cast on Sept 28th and then we are suppossed to move Oct 1st!! He is also having his chiari surgery this month so he will be healing from that too. I did find out that ish Rite will still see us as a patient, you just have to be a Tx resident to get in, but once your in, your in. We will have a 6 hr drive every 2 months in winter weather for a cast change. Anyway, we wont be any where near a big city if something goes wrong with anything, like his cast. What should i do if something goes wrong? What do i look for if something might be wrong with his cast? Im just freaking out right now and rambling so

please some advice/support/ help!Thanks, mom to Isaiah 11 mos old 46 degree curve 1st cast Sept 28th

[Guest guest]

,

I just bought a portable DVD player thinking it would help for the 3 hr drive to Dallas. I had no idea at the time i would need it for a much bigger trip! Glad i got it and its a great idea! Thanks!! That glass of wine sounds great....

From: melissa <missikay10yahoo (DOT) com>Subject: [infantile_scoliosi s] Moving to Kansas right after casting! help!To: infantile_scoliosis @yahoogroups. comDate: Thursday, August 6, 2009, 11:13 PM

Hi all,So i just found out today that my husband is being transferred with his job from where we live now in Texas to Kansas. We are origionally from Ks so this wouldnt be so bad but for the location and the timing. We are going to Independence Ks which is in the middle of nowhere close to the OK border. Isaiah is due to get his 1st cast on Sept 28th and then we are suppossed to move Oct 1st!! He is also having his chiari surgery this month so he will be healing from that too. I did find out that ish Rite will still see us as a patient, you just have to be a Tx resident to get in, but once your in, your in. We will have a 6 hr drive every 2 months in winter weather for a cast change. Anyway, we wont be any where near a big city if something goes wrong with anything, like his cast. What should i do if something goes wrong? What do i look for if something might be wrong with his cast? Im just freaking out right now and rambling so

please some advice/support/ help!Thanks, mom to Isaiah 11 mos old 46 degree curve 1st cast Sept 28th

[Guest guest]

That's very cool. We've thought about moving there if my husband decides to go to seminary there. Won't know for another year or so. I would love the beach and palm trees.

shellie

From: melissa <missikay10yahoo (DOT) com>Subject: [infantile_scoliosi s] Moving to Kansas right after casting! help!To: infantile_scoliosis @yahoogroups. comDate: Thursday, August 6, 2009, 6:13 PM

Hi all,So i just found out today that my husband is being transferred with his job from where we live now in Texas to Kansas. We are origionally from Ks so this wouldnt be so bad but for the location and the timing. We are going to Independence Ks which is in the middle of nowhere close to the OK border. Isaiah is due to get his 1st cast on Sept 28th and then we are suppossed to move Oct 1st!! He is also having his chiari surgery this month so he will be healing from that too. I did find out that ish Rite will still see us as a patient, you just have to be a Tx resident to get in, but once your in, your in. We will have a 6 hr drive every 2 months in winter weather for a cast change. Anyway, we wont be any where near a big city if something goes wrong with anything, like his cast. What should i do if something goes wrong? What do i look for if something might be wrong with his cast? Im just freaking out right now and rambling so

please some advice/support/ help!Thanks, mom to Isaiah 11 mos old 46 degree curve 1st cast Sept 28th

[Guest guest]

We're very spoiled by the weather in CA! Sunshine almost every day of the year, a little rain (rarely), and you can go to the beach anytime. We don't go much because of casts/water/sand, but we do occasionally eat at a beachside cafe and look out at the ocean. I love it.Heidi, Bexon's Mama, (2 years old, in 3rd cast from Salt Lake City Shriners, currently down from 61 degrees to 25)

From: melissa <missikay10yahoo (DOT) com>Subject: [infantile_scoliosi s] Moving to Kansas right after casting! help!To: infantile_scoliosis @yahoogroups. comDate: Thursday, August 6, 2009, 6:13 PM

Hi all,So i just found out today that my husband is being transferred with his job from where we live now in Texas to Kansas. We are origionally from Ks so this wouldnt be so bad but for the location and the timing. We are going to Independence Ks which is in the middle of nowhere close to the OK border. Isaiah is due to get his 1st cast on Sept 28th and then we are suppossed to move Oct 1st!! He is also having his chiari surgery this month so he will be healing from that too. I did find out that ish Rite will still see us as a patient, you just have to be a Tx resident to get in, but once your in, your in. We will have a 6 hr drive every 2 months in winter weather for a cast change. Anyway, we wont be any where near a big city if something goes wrong with anything, like his cast. What should i do if something goes wrong? What do i look for if something might be wrong with his cast? Im just freaking out right now and rambling so

please some advice/support/ help!Thanks, mom to Isaiah 11 mos old 46 degree curve 1st cast Sept 28th