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Re: Difference between CAST and ISOP

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Joan,

I have heard from other moms that their kids with scoli are thin...however Jack does not fit that profile, he is in the 95th percentile for ht. and wt. He eats really well and loves his milk. I was very prepared to go to smaller more frequent meals and snacks during the casting period, but he really did not need to. I remember reading from other parents that kids in casts seem to so well with getting a bulk of their calories from liquids (milk, smoothies), this was definitely the case for Jack. The pediatrician has recently made the recommendation to switch to 2% milk and to cut the bottle out all together, that is easier said then done...but we are working on it, now that Jack is out of the cast. But I tried to explain to her that the bottle was a lifesaver during the castng period to prevent major spills and to get the calories/protein in that he needed in a slower way....sipping in the nutrition

as opposed to a big meal, it might have been easier on his little belly. I am a big fan of avocado, olive oil, whole milk, whole yogurt and cheese for thinner kids.~KristaJack's Mom, Jack is 25 months old, in his 1st braceJack started casting at 41 degrees and is now measuring 0 in his brace!!! Receiving care from Shriners Hospital in Salt Lake City, Utah

From: Jane Bigler <janemharyahoo (DOT) com>Subject: Re: [infantile_scoliosi s] 85 degree now 94 degreesTo: infantile_scoliosis @yahoogroups. comDate: Thursday, August 13, 2009, 12:12 PM

I know I'm newer here as well. But maybe there needs to be a change to the title of this Yahoo group??

Having it be Infantile Scoliosis/C. A.S.T. is a bit deceiving. My daughter was diagnosed at birth with congenital scoliosos. Knowing NOTHING about scoliosis, I began searching for a group for support. "Infantile Scoliosis" would, in those words alone, indicate a very young child with scoliosis, for someone who knows nothing. I believe way back then I joined this group as I didn't know where else to turn, but I knew that my daughter's back couldn't be "cured" by a cast, no matter what kind it was. I remember being "raked over the coals" for not pursuing casting as an option. Sorry, but congenital scoliosis just isn't fixed that way. It can be kept from progressing, but even that is done easier with less problems and less stress for the child (in my opinion) through bracing rather than casting. I think I too expressed my frustration with all of you for the pressure you put on me

that I was doing a "bad" thing for my child. Someone was kind enough to point me to the group "congenital scoliosis" also on yahoo groups, where I have continued to receive wonderful support. But even they aren't the "perfect" fit for my situation. Most of the kids on there are at least a few years older than my child and have had much greater and intesive surgeries than my child will have. And for the most part, they haven't had to deal with casts at all. So, I sought out this group again, KNOWING what your views were, and knew that I would have to be clear in my initial greeting to the group that we had made our decision, that surgery was our only option but that since my daughter would be wearing a cast for 3-4 mo following surgery, that I was here for advice on issues around casts period.

While I am taking this bit of a stand, I would also like to mention that it is important for new parents to be told to make sure through the MRI/x-ray process of whether the scoliosis is congenital or idiopathic in nature. I've tried to express that, but then the following umpteen posts following mine don't say anything, but "get somewhere that does the Mehta method!"

If that is the "cure" you are all promoting, I would recommend changing your title as a group. That way, parents such as Sandy, I and others don't have to feel we are doing the "worst thing possible" for our children. It is hard enough to deal with these issues without feeling an overwhelming push that we are doing something wrong and will cause our child to suffer more.

I will only be a part of this group until my daughter has her surgery and is through having her cast. Then I will leave as other than support for how to deal with a cast, there is NOTHING here for me. I have cringed as I have read some of the emails. A passion is good, but not looking at the whole picture and recognizing that there are many ways to solve a puzzle, could be detrimental to some family in the future.

I'll get off my soapbox for now, I hope this helps those of you severely pushing the Mehta method to realize what it is like for us that know that is not an option and how it makes us feel.

Thanks for listening/reading.

Jane

From: Sandy Schmucker <sschmuckerneo (DOT) rr.com>To: Infantile Scoliosis <infantile_scoliosis @yahoogroups. com>Sent: Thursday, August 13, 2009 7:58:15 AMSubject: [infantile_scoliosi s] 85 degree now 94 degrees

My little guy was able to walk if you held both his hands. In the last week he can no longer do that. We saw the doctor yesterday and his curve is now 94 degrees. He will be getting the Risser Cast on August 21st.

Since this cast is different from what all of you have for your kids I will be leaving the site. I thought this was for any "infantile scoliosis" which would include anyone but I'm not getting that feeling. I want to thank all of you who were so nice and supportive but I don't want to be here if I shouldn't be.

Thanks again,

Sandy

"Life's not about waiting for the storm to pass...It's about learning to dance in the rain."~~~Vivian Greene

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Thanks for your input Krista. Hayden is a liquid kid. He would rather drink sometimes than eat.I do a lot of yogurt smoothies with fruit. Joanmom to Hayden 2 1/246 degreesTreated at ish Rite Hospital Dallas, TX

To: infantile_scoliosis Sent: Tuesday, August 18, 2009 12:17:10 AMSubject: Re: Difference between CAST and ISOP

Joan,

I have heard from other moms that their kids with scoli are thin...however Jack does not fit that profile, he is in the 95th percentile for ht. and wt. He eats really well and loves his milk. I was very prepared to go to smaller more frequent meals and snacks during the casting period, but he really did not need to. I remember reading from other parents that kids in casts seem to so well with getting a bulk of their calories from liquids (milk, smoothies), this was definitely the case for Jack. The pediatrician has recently made the recommendation to switch to 2% milk and to cut the bottle out all together, that is easier said then done...but we are working on it, now that Jack is out of the cast. But I tried to explain to her that the bottle was a lifesaver during the castng period to prevent major spills and to get the calories/protein in that he needed in a slower way....sipping in the nutrition

as opposed to a big meal, it might have been easier on his little belly. I am a big fan of avocado, olive oil, whole milk, whole yogurt and cheese for thinner kids.~KristaJack's Mom, Jack is 25 months old, in his 1st braceJack started casting at 41 degrees and is now measuring 0 in his brace!!! Receiving care from Shriners Hospital in Salt Lake City, Utah

From: Jane Bigler <janemharyahoo (DOT) com>Subject: Re: [infantile_scoliosi s] 85 degree now 94 degreesTo: infantile_scoliosis @yahoogroups. comDate: Thursday, August 13, 2009, 12:12 PM

I know I'm newer here as well. But maybe there needs to be a change to the title of this Yahoo group??

Having it be Infantile Scoliosis/C. A.S.T. is a bit deceiving. My daughter was diagnosed at birth with congenital scoliosos. Knowing NOTHING about scoliosis, I began searching for a group for support. "Infantile Scoliosis" would, in those words alone, indicate a very young child with scoliosis, for someone who knows nothing. I believe way back then I joined this group as I didn't know where else to turn, but I knew that my daughter's back couldn't be "cured" by a cast, no matter what kind it was. I remember being "raked over the coals" for not pursuing casting as an option. Sorry, but congenital scoliosis just isn't fixed that way. It can be kept from progressing, but even that is done easier with less problems and less stress for the child (in my opinion) through bracing rather than casting. I think I too expressed my frustration with all of you for the pressure you put on me

that I was doing a "bad" thing for my child. Someone was kind enough to point me to the group "congenital scoliosis" also on yahoo groups, where I have continued to receive wonderful support. But even they aren't the "perfect" fit for my situation. Most of the kids on there are at least a few years older than my child and have had much greater and intesive surgeries than my child will have. And for the most part, they haven't had to deal with casts at all. So, I sought out this group again, KNOWING what your views were, and knew that I would have to be clear in my initial greeting to the group that we had made our decision, that surgery was our only option but that since my daughter would be wearing a cast for 3-4 mo following surgery, that I was here for advice on issues around casts period.

While I am taking this bit of a stand, I would also like to mention that it is important for new parents to be told to make sure through the MRI/x-ray process of whether the scoliosis is congenital or idiopathic in nature. I've tried to express that, but then the following umpteen posts following mine don't say anything, but "get somewhere that does the Mehta method!"

If that is the "cure" you are all promoting, I would recommend changing your title as a group. That way, parents such as Sandy, I and others don't have to feel we are doing the "worst thing possible" for our children. It is hard enough to deal with these issues without feeling an overwhelming push that we are doing something wrong and will cause our child to suffer more.

I will only be a part of this group until my daughter has her surgery and is through having her cast. Then I will leave as other than support for how to deal with a cast, there is NOTHING here for me. I have cringed as I have read some of the emails. A passion is good, but not looking at the whole picture and recognizing that there are many ways to solve a puzzle, could be detrimental to some family in the future.

I'll get off my soapbox for now, I hope this helps those of you severely pushing the Mehta method to realize what it is like for us that know that is not an option and how it makes us feel.

Thanks for listening/reading.

Jane

From: Sandy Schmucker <sschmuckerneo (DOT) rr.com>To: Infantile Scoliosis <infantile_scoliosis @yahoogroups. com>Sent: Thursday, August 13, 2009 7:58:15 AMSubject: [infantile_scoliosi s] 85 degree now 94 degrees

My little guy was able to walk if you held both his hands. In the last week he can no longer do that. We saw the doctor yesterday and his curve is now 94 degrees. He will be getting the Risser Cast on August 21st.

Since this cast is different from what all of you have for your kids I will be leaving the site. I thought this was for any "infantile scoliosis" which would include anyone but I'm not getting that feeling. I want to thank all of you who were so nice and supportive but I don't want to be here if I shouldn't be.

Thanks again,

Sandy

"Life's not about waiting for the storm to pass...It's about learning to dance in the rain."~~~Vivian Greene

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I was worried when I was reading Dr. Mehta's paper because if I remember correctly it sounded like the stocky kids often had more rigid curves that were harder to correct. Fortunately, that was not the case with Dylan. Dylan is a picky eater, but when he finds foods that he likes he will eat quite a bit.

To: infantile_scoliosis Sent: Tuesday, August 18, 2009 1:17:10 AMSubject: Re: Difference between CAST and ISOP

Joan,

I have heard from other moms that their kids with scoli are thin...however Jack does not fit that profile, he is in the 95th percentile for ht. and wt. He eats really well and loves his milk. I was very prepared to go to smaller more frequent meals and snacks during the casting period, but he really did not need to. I remember reading from other parents that kids in casts seem to so well with getting a bulk of their calories from liquids (milk, smoothies), this was definitely the case for Jack. The pediatrician has recently made the recommendation to switch to 2% milk and to cut the bottle out all together, that is easier said then done...but we are working on it, now that Jack is out of the cast. But I tried to explain to her that the bottle was a lifesaver during the castng period to prevent major spills and to get the calories/protein in that he needed in a slower way....sipping in the nutrition

as opposed to a big meal, it might have been easier on his little belly. I am a big fan of avocado, olive oil, whole milk, whole yogurt and cheese for thinner kids.~KristaJack's Mom, Jack is 25 months old, in his 1st braceJack started casting at 41 degrees and is now measuring 0 in his brace!!! Receiving care from Shriners Hospital in Salt Lake City, Utah

From: Jane Bigler <janemharyahoo (DOT) com>Subject: Re: [infantile_scoliosi s] 85 degree now 94 degreesTo: infantile_scoliosis @yahoogroups. comDate: Thursday, August 13, 2009, 12:12 PM

I know I'm newer here as well. But maybe there needs to be a change to the title of this Yahoo group??

Having it be Infantile Scoliosis/C. A.S.T. is a bit deceiving. My daughter was diagnosed at birth with congenital scoliosos. Knowing NOTHING about scoliosis, I began searching for a group for support. "Infantile Scoliosis" would, in those words alone, indicate a very young child with scoliosis, for someone who knows nothing. I believe way back then I joined this group as I didn't know where else to turn, but I knew that my daughter's back couldn't be "cured" by a cast, no matter what kind it was. I remember being "raked over the coals" for not pursuing casting as an option. Sorry, but congenital scoliosis just isn't fixed that way. It can be kept from progressing, but even that is done easier with less problems and less stress for the child (in my opinion) through bracing rather than casting. I think I too expressed my frustration with all of you for the pressure you put on me

that I was doing a "bad" thing for my child. Someone was kind enough to point me to the group "congenital scoliosis" also on yahoo groups, where I have continued to receive wonderful support. But even they aren't the "perfect" fit for my situation. Most of the kids on there are at least a few years older than my child and have had much greater and intesive surgeries than my child will have. And for the most part, they haven't had to deal with casts at all. So, I sought out this group again, KNOWING what your views were, and knew that I would have to be clear in my initial greeting to the group that we had made our decision, that surgery was our only option but that since my daughter would be wearing a cast for 3-4 mo following surgery, that I was here for advice on issues around casts period.

While I am taking this bit of a stand, I would also like to mention that it is important for new parents to be told to make sure through the MRI/x-ray process of whether the scoliosis is congenital or idiopathic in nature. I've tried to express that, but then the following umpteen posts following mine don't say anything, but "get somewhere that does the Mehta method!"

If that is the "cure" you are all promoting, I would recommend changing your title as a group. That way, parents such as Sandy, I and others don't have to feel we are doing the "worst thing possible" for our children. It is hard enough to deal with these issues without feeling an overwhelming push that we are doing something wrong and will cause our child to suffer more.

I will only be a part of this group until my daughter has her surgery and is through having her cast. Then I will leave as other than support for how to deal with a cast, there is NOTHING here for me. I have cringed as I have read some of the emails. A passion is good, but not looking at the whole picture and recognizing that there are many ways to solve a puzzle, could be detrimental to some family in the future.

I'll get off my soapbox for now, I hope this helps those of you severely pushing the Mehta method to realize what it is like for us that know that is not an option and how it makes us feel.

Thanks for listening/reading.

Jane

From: Sandy Schmucker <sschmuckerneo (DOT) rr.com>To: Infantile Scoliosis <infantile_scoliosis @yahoogroups. com>Sent: Thursday, August 13, 2009 7:58:15 AMSubject: [infantile_scoliosi s] 85 degree now 94 degrees

My little guy was able to walk if you held both his hands. In the last week he can no longer do that. We saw the doctor yesterday and his curve is now 94 degrees. He will be getting the Risser Cast on August 21st.

Since this cast is different from what all of you have for your kids I will be leaving the site. I thought this was for any "infantile scoliosis" which would include anyone but I'm not getting that feeling. I want to thank all of you who were so nice and supportive but I don't want to be here if I shouldn't be.

Thanks again,

Sandy

"Life's not about waiting for the storm to pass...It's about learning to dance in the rain."~~~Vivian Greene

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Jane, Sorry that her tummy is so sensitive. That must be hard for you and her. The pediasure is rather pricey, but my doctor never said anything about a prescription for it. I should ask her.. Thanks for putting that idea in my head. Also, the pediasure is really gross smelling (like sweet formula) but for reason, Hayden likes it, I do NOT know why, but I am thankful. LOL Joanmom to Hayden 2 1/246 degreesTreated at ish Rite Hospital Dallas, TX

To: infantile_scoliosis Sent: Tuesday, August 18, 2009 11:46:15 AMSubject: Re: Difference between CAST and ISOP

Thanks Joan!

Even the banana's cause her problems, strangely. Apparently for her its the "simple sugars" too. When she gets going, we have to cut out all simple sugars as well, like crackers, rice, etc.

I do think I'll talk to her doctor about pediasure. I think they can write a prescription for it, so it would possibly cost less. I was pricing it the other day and it was like $8-10 for 6 bottles/cans. Also, my son went through a stage of needing something like that and he wouldn't touch it with a 10 foot pole! lol.

Jane

From: Joan Vallee <hayro1611yahoo (DOT) com>To: infantile_scoliosis @yahoogroups.. comSent: Tuesday, August 18, 2009 8:55:21 AMSubject: Re: [infantile_scoliosi s] Difference between CAST and ISOP

I use Pediasure quite a bit and Hayden really likes it. We buy the vanilla flavor. It has the protein and vitamins that he is missing from not eating a lot and it fills him up and puts a little bit of weight on him. Can you just do banana smoothies with yogurt and crushed ice? The bananas ususally don't cause diarhea... Just a thought Joanmom to Hayden 2 1/246 degreesTreated at ish Rite Hospital Dallas, TX

From: Jane Bigler <janemharyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Tuesday, August 18, 2009 10:37:01 AMSubject: Re: [infantile_scoliosi s] Difference between CAST and ISOP

Grace is tall, but slender (I think she was 34" tall and about 28 lbs at her last check). The statistics of kids with an "o" show that they continue to be "slim" throughout their life. I have yet to talk to an adult (that was born with an "O") that is considered overweight. Grace goes through periods where she eats us out of house and home. Then, like last night, pretty much eats nothing at all. I've thought about supplimenting her diet with pediasure, but don't want her to depend on that for her calories and not eat at all. I never really related her slenderness to her scoliosis, but I guess it could be. With upcoming surgery, I'd hate to see her drop much weight though.

What do you all think? Do you use Pediasure? She doesn't care for avacado's, milk isn't her favorite (she prefers juice), and she's iffy on cheese. My "O" group has also discussed adding cream to foods etc, but as I said, if she isn't eating them anyway, it isn't going to help much. Smoothies don't work for her either (although she LOVES them), the acid in the fruit gives her diarrhea and that will be a huge problem once she's casted.

Jane

Grace, 3 yrs on 9/6, moderate Omphalocele fully repaired, congenital scoliosis with hemi-v between T8 and T9, hemi excision and fusion of T8 and T9 scheduled for 9/11 followed by a cast for 3-4 months.

From: Krista Sloan <kmsloan18yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Monday, August 17, 2009 10:17:10 PMSubject: Re: [infantile_scoliosi s] Difference between CAST and ISOP

Joan,

I have heard from other moms that their kids with scoli are thin...however Jack does not fit that profile, he is in the 95th percentile for ht. and wt. He eats really well and loves his milk. I was very prepared to go to smaller more frequent meals and snacks during the casting period, but he really did not need to. I remember reading from other parents that kids in casts seem to so well with getting a bulk of their calories from liquids (milk, smoothies), this was definitely the case for Jack. The pediatrician has recently made the recommendation to switch to 2% milk and to cut the bottle out all together, that is easier said then done...but we are working on it, now that Jack is out of the cast. But I tried to explain to her that the bottle was a lifesaver during the castng period to prevent major spills and to get the calories/protein in that he needed in a slower way....sipping in the nutrition

as opposed to a big meal, it might have been easier on his little belly. I am a big fan of avocado, olive oil, whole milk, whole yogurt and cheese for thinner kids.~KristaJack's Mom, Jack is 25 months old, in his 1st braceJack started casting at 41 degrees and is now measuring 0 in his brace!!! Receiving care from Shriners Hospital in Salt Lake City, Utah

From: Jane Bigler <janemharyahoo (DOT) com>Subject: Re: [infantile_scoliosi s] 85 degree now 94 degreesTo: infantile_scoliosis @yahoogroups. comDate: Thursday, August 13, 2009, 12:12 PM

I know I'm newer here as well. But maybe there needs to be a change to the title of this Yahoo group??

Having it be Infantile Scoliosis/C. A.S.T. is a bit deceiving. My daughter was diagnosed at birth with congenital scoliosos. Knowing NOTHING about scoliosis, I began searching for a group for support. "Infantile Scoliosis" would, in those words alone, indicate a very young child with scoliosis, for someone who knows nothing. I believe way back then I joined this group as I didn't know where else to turn, but I knew that my daughter's back couldn't be "cured" by a cast, no matter what kind it was. I remember being "raked over the coals" for not pursuing casting as an option. Sorry, but congenital scoliosis just isn't fixed that way. It can be kept from progressing, but even that is done easier with less problems and less stress for the child (in my opinion) through bracing rather than casting. I think I too expressed my frustration with all of you for the pressure you put on me

that I was doing a "bad" thing for my child. Someone was kind enough to point me to the group "congenital scoliosis" also on yahoo groups, where I have continued to receive wonderful support. But even they aren't the "perfect" fit for my situation. Most of the kids on there are at least a few years older than my child and have had much greater and intesive surgeries than my child will have. And for the most part, they haven't had to deal with casts at all. So, I sought out this group again, KNOWING what your views were, and knew that I would have to be clear in my initial greeting to the group that we had made our decision, that surgery was our only option but that since my daughter would be wearing a cast for 3-4 mo following surgery, that I was here for advice on issues around casts period.

While I am taking this bit of a stand, I would also like to mention that it is important for new parents to be told to make sure through the MRI/x-ray process of whether the scoliosis is congenital or idiopathic in nature. I've tried to express that, but then the following umpteen posts following mine don't say anything, but "get somewhere that does the Mehta method!"

If that is the "cure" you are all promoting, I would recommend changing your title as a group. That way, parents such as Sandy, I and others don't have to feel we are doing the "worst thing possible" for our children. It is hard enough to deal with these issues without feeling an overwhelming push that we are doing something wrong and will cause our child to suffer more.

I will only be a part of this group until my daughter has her surgery and is through having her cast. Then I will leave as other than support for how to deal with a cast, there is NOTHING here for me. I have cringed as I have read some of the emails. A passion is good, but not looking at the whole picture and recognizing that there are many ways to solve a puzzle, could be detrimental to some family in the future.

I'll get off my soapbox for now, I hope this helps those of you severely pushing the Mehta method to realize what it is like for us that know that is not an option and how it makes us feel.

Thanks for listening/reading.

Jane

From: Sandy Schmucker <sschmuckerneo (DOT) rr.com>To: Infantile Scoliosis <infantile_scoliosis @yahoogroups. com>Sent: Thursday, August 13, 2009 7:58:15 AMSubject: [infantile_scoliosi s] 85 degree now 94 degrees

My little guy was able to walk if you held both his hands. In the last week he can no longer do that. We saw the doctor yesterday and his curve is now 94 degrees. He will be getting the Risser Cast on August 21st.

Since this cast is different from what all of you have for your kids I will be leaving the site. I thought this was for any "infantile scoliosis" which would include anyone but I'm not getting that feeling. I want to thank all of you who were so nice and supportive but I don't want to be here if I shouldn't be.

Thanks again,

Sandy

"Life's not about waiting for the storm to pass...It's about learning to dance in the rain."~~~Vivian Greene

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Grace is that way with medicine, even the worst tasting stuff (I've heard Versed is awful!), she eats it up like candy, but is picky about typical foods, go figure, lol.

Good luck getting it covered. You might have to go with a "prescription" brand in order to get it, but I know my coverage is awesome, so if it is ordered and not the OTC type, then I'd only have to pay a $1 for a month supply. It is worth the effort!

Jane

To: infantile_scoliosis Sent: Tuesday, August 18, 2009 10:30:50 AMSubject: Re: Difference between CAST and ISOP

Jane, Sorry that her tummy is so sensitive. That must be hard for you and her. The pediasure is rather pricey, but my doctor never said anything about a prescription for it. I should ask her.. Thanks for putting that idea in my head. Also, the pediasure is really gross smelling (like sweet formula) but for reason, Hayden likes it, I do NOT know why, but I am thankful. LOL Joanmom to Hayden 2 1/246 degreesTreated at ish Rite Hospital Dallas, TX

From: Jane Bigler <janemharyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Tuesday, August 18, 2009 11:46:15 AMSubject: Re: [infantile_scoliosi s] Difference between CAST and ISOP

Thanks Joan!

Even the banana's cause her problems, strangely. Apparently for her its the "simple sugars" too. When she gets going, we have to cut out all simple sugars as well, like crackers, rice, etc.

I do think I'll talk to her doctor about pediasure. I think they can write a prescription for it, so it would possibly cost less. I was pricing it the other day and it was like $8-10 for 6 bottles/cans. Also, my son went through a stage of needing something like that and he wouldn't touch it with a 10 foot pole! lol.

Jane

From: Joan Vallee <hayro1611yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. . comSent: Tuesday, August 18, 2009 8:55:21 AMSubject: Re: [infantile_scoliosi s] Difference between CAST and ISOP

I use Pediasure quite a bit and Hayden really likes it. We buy the vanilla flavor. It has the protein and vitamins that he is missing from not eating a lot and it fills him up and puts a little bit of weight on him. Can you just do banana smoothies with yogurt and crushed ice? The bananas ususally don't cause diarhea... Just a thought Joanmom to Hayden 2 1/246 degreesTreated at ish Rite Hospital Dallas, TX

From: Jane Bigler <janemharyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Tuesday, August 18, 2009 10:37:01 AMSubject: Re: [infantile_scoliosi s] Difference between CAST and ISOP

Grace is tall, but slender (I think she was 34" tall and about 28 lbs at her last check). The statistics of kids with an "o" show that they continue to be "slim" throughout their life. I have yet to talk to an adult (that was born with an "O") that is considered overweight. Grace goes through periods where she eats us out of house and home. Then, like last night, pretty much eats nothing at all. I've thought about supplimenting her diet with pediasure, but don't want her to depend on that for her calories and not eat at all. I never really related her slenderness to her scoliosis, but I guess it could be. With upcoming surgery, I'd hate to see her drop much weight though.

What do you all think? Do you use Pediasure? She doesn't care for avacado's, milk isn't her favorite (she prefers juice), and she's iffy on cheese. My "O" group has also discussed adding cream to foods etc, but as I said, if she isn't eating them anyway, it isn't going to help much. Smoothies don't work for her either (although she LOVES them), the acid in the fruit gives her diarrhea and that will be a huge problem once she's casted.

Jane

Grace, 3 yrs on 9/6, moderate Omphalocele fully repaired, congenital scoliosis with hemi-v between T8 and T9, hemi excision and fusion of T8 and T9 scheduled for 9/11 followed by a cast for 3-4 months.

From: Krista Sloan <kmsloan18yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Monday, August 17, 2009 10:17:10 PMSubject: Re: [infantile_scoliosi s] Difference between CAST and ISOP

Joan,

I have heard from other moms that their kids with scoli are thin...however Jack does not fit that profile, he is in the 95th percentile for ht. and wt. He eats really well and loves his milk. I was very prepared to go to smaller more frequent meals and snacks during the casting period, but he really did not need to. I remember reading from other parents that kids in casts seem to so well with getting a bulk of their calories from liquids (milk, smoothies), this was definitely the case for Jack. The pediatrician has recently made the recommendation to switch to 2% milk and to cut the bottle out all together, that is easier said then done...but we are working on it, now that Jack is out of the cast. But I tried to explain to her that the bottle was a lifesaver during the castng period to prevent major spills and to get the calories/protein in that he needed in a slower way....sipping in the nutrition

as opposed to a big meal, it might have been easier on his little belly. I am a big fan of avocado, olive oil, whole milk, whole yogurt and cheese for thinner kids.~KristaJack's Mom, Jack is 25 months old, in his 1st braceJack started casting at 41 degrees and is now measuring 0 in his brace!!! Receiving care from Shriners Hospital in Salt Lake City, Utah

From: Jane Bigler <janemharyahoo (DOT) com>Subject: Re: [infantile_scoliosi s] 85 degree now 94 degreesTo: infantile_scoliosis @yahoogroups. comDate: Thursday, August 13, 2009, 12:12 PM

I know I'm newer here as well. But maybe there needs to be a change to the title of this Yahoo group??

Having it be Infantile Scoliosis/C. A.S.T. is a bit deceiving. My daughter was diagnosed at birth with congenital scoliosos. Knowing NOTHING about scoliosis, I began searching for a group for support. "Infantile Scoliosis" would, in those words alone, indicate a very young child with scoliosis, for someone who knows nothing. I believe way back then I joined this group as I didn't know where else to turn, but I knew that my daughter's back couldn't be "cured" by a cast, no matter what kind it was. I remember being "raked over the coals" for not pursuing casting as an option. Sorry, but congenital scoliosis just isn't fixed that way. It can be kept from progressing, but even that is done easier with less problems and less stress for the child (in my opinion) through bracing rather than casting. I think I too expressed my frustration with all of you for the pressure you put on me

that I was doing a "bad" thing for my child. Someone was kind enough to point me to the group "congenital scoliosis" also on yahoo groups, where I have continued to receive wonderful support. But even they aren't the "perfect" fit for my situation. Most of the kids on there are at least a few years older than my child and have had much greater and intesive surgeries than my child will have. And for the most part, they haven't had to deal with casts at all. So, I sought out this group again, KNOWING what your views were, and knew that I would have to be clear in my initial greeting to the group that we had made our decision, that surgery was our only option but that since my daughter would be wearing a cast for 3-4 mo following surgery, that I was here for advice on issues around casts period.

While I am taking this bit of a stand, I would also like to mention that it is important for new parents to be told to make sure through the MRI/x-ray process of whether the scoliosis is congenital or idiopathic in nature. I've tried to express that, but then the following umpteen posts following mine don't say anything, but "get somewhere that does the Mehta method!"

If that is the "cure" you are all promoting, I would recommend changing your title as a group. That way, parents such as Sandy, I and others don't have to feel we are doing the "worst thing possible" for our children. It is hard enough to deal with these issues without feeling an overwhelming push that we are doing something wrong and will cause our child to suffer more.

I will only be a part of this group until my daughter has her surgery and is through having her cast. Then I will leave as other than support for how to deal with a cast, there is NOTHING here for me. I have cringed as I have read some of the emails. A passion is good, but not looking at the whole picture and recognizing that there are many ways to solve a puzzle, could be detrimental to some family in the future.

I'll get off my soapbox for now, I hope this helps those of you severely pushing the Mehta method to realize what it is like for us that know that is not an option and how it makes us feel.

Thanks for listening/reading.

Jane

From: Sandy Schmucker <sschmuckerneo (DOT) rr.com>To: Infantile Scoliosis <infantile_scoliosis @yahoogroups. com>Sent: Thursday, August 13, 2009 7:58:15 AMSubject: [infantile_scoliosi s] 85 degree now 94 degrees

My little guy was able to walk if you held both his hands. In the last week he can no longer do that. We saw the doctor yesterday and his curve is now 94 degrees. He will be getting the Risser Cast on August 21st.

Since this cast is different from what all of you have for your kids I will be leaving the site. I thought this was for any "infantile scoliosis" which would include anyone but I'm not getting that feeling. I want to thank all of you who were so nice and supportive but I don't want to be here if I shouldn't be.

Thanks again,

Sandy

"Life's not about waiting for the storm to pass...It's about learning to dance in the rain."~~~Vivian Greene

__________________________________________________

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Thanks Jane, I will check it out... Joanmom to Hayden 2 1/246 degreesTreated at ish Rite Hospital Dallas, TX

To: infantile_scoliosis Sent: Tuesday, August 18, 2009 12:39:52 PMSubject: Re: Difference between CAST and ISOP

Grace is that way with medicine, even the worst tasting stuff (I've heard Versed is awful!), she eats it up like candy, but is picky about typical foods, go figure, lol.

Good luck getting it covered. You might have to go with a "prescription" brand in order to get it, but I know my coverage is awesome, so if it is ordered and not the OTC type, then I'd only have to pay a $1 for a month supply. It is worth the effort!

Jane

From: Joan Vallee <hayro1611yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Tuesday, August 18, 2009 10:30:50 AMSubject: Re: [infantile_scoliosi s] Difference between CAST and ISOP

Jane, Sorry that her tummy is so sensitive. That must be hard for you and her. The pediasure is rather pricey, but my doctor never said anything about a prescription for it. I should ask her.. Thanks for putting that idea in my head. Also, the pediasure is really gross smelling (like sweet formula) but for reason, Hayden likes it, I do NOT know why, but I am thankful. LOL Joanmom to Hayden 2 1/246 degreesTreated at ish Rite Hospital Dallas, TX

From: Jane Bigler <janemharyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Tuesday, August 18, 2009 11:46:15 AMSubject: Re: [infantile_scoliosi s] Difference between CAST and ISOP

Thanks Joan!

Even the banana's cause her problems, strangely. Apparently for her its the "simple sugars" too. When she gets going, we have to cut out all simple sugars as well, like crackers, rice, etc.

I do think I'll talk to her doctor about pediasure. I think they can write a prescription for it, so it would possibly cost less. I was pricing it the other day and it was like $8-10 for 6 bottles/cans. Also, my son went through a stage of needing something like that and he wouldn't touch it with a 10 foot pole! lol.

Jane

From: Joan Vallee <hayro1611yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. . comSent: Tuesday, August 18, 2009 8:55:21 AMSubject: Re: [infantile_scoliosi s] Difference between CAST and ISOP

I use Pediasure quite a bit and Hayden really likes it. We buy the vanilla flavor. It has the protein and vitamins that he is missing from not eating a lot and it fills him up and puts a little bit of weight on him. Can you just do banana smoothies with yogurt and crushed ice? The bananas ususally don't cause diarhea... Just a thought Joanmom to Hayden 2 1/246 degreesTreated at ish Rite Hospital Dallas, TX

From: Jane Bigler <janemharyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Tuesday, August 18, 2009 10:37:01 AMSubject: Re: [infantile_scoliosi s] Difference between CAST and ISOP

Grace is tall, but slender (I think she was 34" tall and about 28 lbs at her last check). The statistics of kids with an "o" show that they continue to be "slim" throughout their life. I have yet to talk to an adult (that was born with an "O") that is considered overweight. Grace goes through periods where she eats us out of house and home. Then, like last night, pretty much eats nothing at all. I've thought about supplimenting her diet with pediasure, but don't want her to depend on that for her calories and not eat at all. I never really related her slenderness to her scoliosis, but I guess it could be. With upcoming surgery, I'd hate to see her drop much weight though.

What do you all think? Do you use Pediasure? She doesn't care for avacado's, milk isn't her favorite (she prefers juice), and she's iffy on cheese. My "O" group has also discussed adding cream to foods etc, but as I said, if she isn't eating them anyway, it isn't going to help much. Smoothies don't work for her either (although she LOVES them), the acid in the fruit gives her diarrhea and that will be a huge problem once she's casted.

Jane

Grace, 3 yrs on 9/6, moderate Omphalocele fully repaired, congenital scoliosis with hemi-v between T8 and T9, hemi excision and fusion of T8 and T9 scheduled for 9/11 followed by a cast for 3-4 months.

From: Krista Sloan <kmsloan18yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Monday, August 17, 2009 10:17:10 PMSubject: Re: [infantile_scoliosi s] Difference between CAST and ISOP

Joan,

I have heard from other moms that their kids with scoli are thin....however Jack does not fit that profile, he is in the 95th percentile for ht. and wt. He eats really well and loves his milk. I was very prepared to go to smaller more frequent meals and snacks during the casting period, but he really did not need to. I remember reading from other parents that kids in casts seem to so well with getting a bulk of their calories from liquids (milk, smoothies), this was definitely the case for Jack. The pediatrician has recently made the recommendation to switch to 2% milk and to cut the bottle out all together, that is easier said then done...but we are working on it, now that Jack is out of the cast. But I tried to explain to her that the bottle was a lifesaver during the castng period to prevent major spills and to get the calories/protein in that he needed in a slower way....sipping in the nutrition

as opposed to a big meal, it might have been easier on his little belly. I am a big fan of avocado, olive oil, whole milk, whole yogurt and cheese for thinner kids.~KristaJack's Mom, Jack is 25 months old, in his 1st braceJack started casting at 41 degrees and is now measuring 0 in his brace!!! Receiving care from Shriners Hospital in Salt Lake City, Utah

From: Jane Bigler <janemharyahoo (DOT) com>Subject: Re: [infantile_scoliosi s] 85 degree now 94 degreesTo: infantile_scoliosis @yahoogroups. comDate: Thursday, August 13, 2009, 12:12 PM

I know I'm newer here as well. But maybe there needs to be a change to the title of this Yahoo group??

Having it be Infantile Scoliosis/C. A.S.T. is a bit deceiving. My daughter was diagnosed at birth with congenital scoliosos. Knowing NOTHING about scoliosis, I began searching for a group for support. "Infantile Scoliosis" would, in those words alone, indicate a very young child with scoliosis, for someone who knows nothing. I believe way back then I joined this group as I didn't know where else to turn, but I knew that my daughter's back couldn't be "cured" by a cast, no matter what kind it was. I remember being "raked over the coals" for not pursuing casting as an option. Sorry, but congenital scoliosis just isn't fixed that way. It can be kept from progressing, but even that is done easier with less problems and less stress for the child (in my opinion) through bracing rather than casting. I think I too expressed my frustration with all of you for the pressure you put on me

that I was doing a "bad" thing for my child. Someone was kind enough to point me to the group "congenital scoliosis" also on yahoo groups, where I have continued to receive wonderful support. But even they aren't the "perfect" fit for my situation. Most of the kids on there are at least a few years older than my child and have had much greater and intesive surgeries than my child will have. And for the most part, they haven't had to deal with casts at all. So, I sought out this group again, KNOWING what your views were, and knew that I would have to be clear in my initial greeting to the group that we had made our decision, that surgery was our only option but that since my daughter would be wearing a cast for 3-4 mo following surgery, that I was here for advice on issues around casts period.

While I am taking this bit of a stand, I would also like to mention that it is important for new parents to be told to make sure through the MRI/x-ray process of whether the scoliosis is congenital or idiopathic in nature. I've tried to express that, but then the following umpteen posts following mine don't say anything, but "get somewhere that does the Mehta method!"

If that is the "cure" you are all promoting, I would recommend changing your title as a group. That way, parents such as Sandy, I and others don't have to feel we are doing the "worst thing possible" for our children. It is hard enough to deal with these issues without feeling an overwhelming push that we are doing something wrong and will cause our child to suffer more.

I will only be a part of this group until my daughter has her surgery and is through having her cast. Then I will leave as other than support for how to deal with a cast, there is NOTHING here for me. I have cringed as I have read some of the emails. A passion is good, but not looking at the whole picture and recognizing that there are many ways to solve a puzzle, could be detrimental to some family in the future.

I'll get off my soapbox for now, I hope this helps those of you severely pushing the Mehta method to realize what it is like for us that know that is not an option and how it makes us feel.

Thanks for listening/reading.

Jane

From: Sandy Schmucker <sschmuckerneo (DOT) rr.com>To: Infantile Scoliosis <infantile_scoliosis @yahoogroups. com>Sent: Thursday, August 13, 2009 7:58:15 AMSubject: [infantile_scoliosi s] 85 degree now 94 degrees

My little guy was able to walk if you held both his hands. In the last week he can no longer do that. We saw the doctor yesterday and his curve is now 94 degrees. He will be getting the Risser Cast on August 21st.

Since this cast is different from what all of you have for your kids I will be leaving the site. I thought this was for any "infantile scoliosis" which would include anyone but I'm not getting that feeling. I want to thank all of you who were so nice and supportive but I don't want to be here if I shouldn't be.

Thanks again,

Sandy

"Life's not about waiting for the storm to pass...It's about learning to dance in the rain."~~~Vivian Greene

____________ _________ _________ _________ _________ __

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Just thought I would chime in to say, 's pediatrician wanted to gain some weight(that funny...LOL) at one time. She told me to give him Carnation Instant Breakfast. HATES milk. Never has liked, but will drink it with the Carnation Instant Breakfast. They have vanilla, chocolate and STRAWBERRY! That did the trick. Now I don't even worry about his weight. No he is not drinking those anymore, but I am just sick of worrying about his weight. He is healthy, growing and eats ALL DAY LONG!TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.html--- On Tue,

8/18/09, Jane Bigler wrote:Subject: Re: Difference between CAST and ISOPTo: infantile_scoliosis Date: Tuesday, August 18, 2009, 11:46 AM

Thanks Joan!

Even the banana's cause her problems, strangely. Apparently for her its the "simple sugars" too. When she gets going, we have to cut out all simple sugars as well, like crackers, rice, etc.

I do think I'll talk to her doctor about pediasure. I think they can write a prescription for it, so it would possibly cost less. I was pricing it the other day and it was like $8-10 for 6 bottles/cans. Also, my son went through a stage of needing something like that and he wouldn't touch it with a 10 foot pole! lol.

Jane

From: Joan Vallee <hayro1611yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Tuesday, August 18, 2009 8:55:21 AMSubject: Re: [infantile_scoliosi s] Difference between CAST and ISOP

I use Pediasure quite a bit and Hayden really likes it. We buy the vanilla flavor. It has the protein and vitamins that he is missing from not eating a lot and it fills him up and puts a little bit of weight on him. Can you just do banana smoothies with yogurt and crushed ice? The bananas ususally don't cause diarhea... Just a thought Joanmom to Hayden 2 1/246 degreesTreated at ish Rite Hospital Dallas, TX

From: Jane Bigler <janemharyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Tuesday, August 18, 2009 10:37:01 AMSubject: Re: [infantile_scoliosi s] Difference between CAST and ISOP

Grace is tall, but slender (I think she was 34" tall and about 28 lbs at her last check). The statistics of kids with an "o" show that they continue to be "slim" throughout their life. I have yet to talk to an adult (that was born with an "O") that is considered overweight. Grace goes through periods where she eats us out of house and home. Then, like last night, pretty much eats nothing at all. I've thought about supplimenting her diet with pediasure, but don't want her to depend on that for her calories and not eat at all. I never really related her slenderness to her scoliosis, but I guess it could be. With upcoming surgery, I'd hate to see her drop much weight though.

What do you all think? Do you use Pediasure? She doesn't care for avacado's, milk isn't her favorite (she prefers juice), and she's iffy on cheese. My "O" group has also discussed adding cream to foods etc, but as I said, if she isn't eating them anyway, it isn't going to help much. Smoothies don't work for her either (although she LOVES them), the acid in the fruit gives her diarrhea and that will be a huge problem once she's casted.

Jane

Grace, 3 yrs on 9/6, moderate Omphalocele fully repaired, congenital scoliosis with hemi-v between T8 and T9, hemi excision and fusion of T8 and T9 scheduled for 9/11 followed by a cast for 3-4 months.

From: Krista Sloan <kmsloan18yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Monday, August 17, 2009 10:17:10 PMSubject: Re: [infantile_scoliosi s] Difference between CAST and ISOP

Joan,

I have heard from other moms that their kids with scoli are thin...however Jack does not fit that profile, he is in the 95th percentile for ht. and wt. He eats really well and loves his milk. I was very prepared to go to smaller more frequent meals and snacks during the casting period, but he really did not need to. I remember reading from other parents that kids in casts seem to so well with getting a bulk of their calories from liquids (milk, smoothies), this was definitely the case for Jack. The pediatrician has recently made the recommendation to switch to 2% milk and to cut the bottle out all together, that is easier said then done...but we are working on it, now that Jack is out of the cast. But I tried to explain to her that the bottle was a lifesaver during the castng period to prevent major spills and to get the calories/protein in that he needed in a slower way....sipping in the nutrition

as opposed to a big meal, it might have been easier on his little belly. I am a big fan of avocado, olive oil, whole milk, whole yogurt and cheese for thinner kids.~KristaJack's Mom, Jack is 25 months old, in his 1st braceJack started casting at 41 degrees and is now measuring 0 in his brace!!! Receiving care from Shriners Hospital in Salt Lake City, Utah

From: Jane Bigler <janemharyahoo (DOT) com>Subject: Re: [infantile_scoliosi s] 85 degree now 94 degreesTo: infantile_scoliosis @yahoogroups. comDate: Thursday, August 13, 2009, 12:12 PM

I know I'm newer here as well. But maybe there needs to be a change to the title of this Yahoo group??

Having it be Infantile Scoliosis/C. A.S.T. is a bit deceiving. My daughter was diagnosed at birth with congenital scoliosos. Knowing NOTHING about scoliosis, I began searching for a group for support. "Infantile Scoliosis" would, in those words alone, indicate a very young child with scoliosis, for someone who knows nothing. I believe way back then I joined this group as I didn't know where else to turn, but I knew that my daughter's back couldn't be "cured" by a cast, no matter what kind it was. I remember being "raked over the coals" for not pursuing casting as an option. Sorry, but congenital scoliosis just isn't fixed that way. It can be kept from progressing, but even that is done easier with less problems and less stress for the child (in my opinion) through bracing rather than casting. I think I too expressed my frustration with all of you for the pressure you put on me

that I was doing a "bad" thing for my child. Someone was kind enough to point me to the group "congenital scoliosis" also on yahoo groups, where I have continued to receive wonderful support. But even they aren't the "perfect" fit for my situation. Most of the kids on there are at least a few years older than my child and have had much greater and intesive surgeries than my child will have. And for the most part, they haven't had to deal with casts at all. So, I sought out this group again, KNOWING what your views were, and knew that I would have to be clear in my initial greeting to the group that we had made our decision, that surgery was our only option but that since my daughter would be wearing a cast for 3-4 mo following surgery, that I was here for advice on issues around casts period.

While I am taking this bit of a stand, I would also like to mention that it is important for new parents to be told to make sure through the MRI/x-ray process of whether the scoliosis is congenital or idiopathic in nature. I've tried to express that, but then the following umpteen posts following mine don't say anything, but "get somewhere that does the Mehta method!"

If that is the "cure" you are all promoting, I would recommend changing your title as a group. That way, parents such as Sandy, I and others don't have to feel we are doing the "worst thing possible" for our children. It is hard enough to deal with these issues without feeling an overwhelming push that we are doing something wrong and will cause our child to suffer more.

I will only be a part of this group until my daughter has her surgery and is through having her cast. Then I will leave as other than support for how to deal with a cast, there is NOTHING here for me. I have cringed as I have read some of the emails. A passion is good, but not looking at the whole picture and recognizing that there are many ways to solve a puzzle, could be detrimental to some family in the future.

I'll get off my soapbox for now, I hope this helps those of you severely pushing the Mehta method to realize what it is like for us that know that is not an option and how it makes us feel.

Thanks for listening/reading.

Jane

From: Sandy Schmucker <sschmuckerneo (DOT) rr.com>To: Infantile Scoliosis <infantile_scoliosis @yahoogroups. com>Sent: Thursday, August 13, 2009 7:58:15 AMSubject: [infantile_scoliosi s] 85 degree now 94 degrees

My little guy was able to walk if you held both his hands. In the last week he can no longer do that. We saw the doctor yesterday and his curve is now 94 degrees. He will be getting the Risser Cast on August 21st.

Since this cast is different from what all of you have for your kids I will be leaving the site. I thought this was for any "infantile scoliosis" which would include anyone but I'm not getting that feeling. I want to thank all of you who were so nice and supportive but I don't want to be here if I shouldn't be.

Thanks again,

Sandy

"Life's not about waiting for the storm to pass...It's about learning to dance in the rain."~~~Vivian Greene

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Krista,

How do you get the avocado and olive oil in? Bex won't eat avocado- do you put them in fruit smoothies?Heidi, Bexon's Mama, (2 years old, in 3rd cast from Salt Lake City Shriners, currently down from 61 degrees to 25)

From: Jane Bigler <janemharyahoo (DOT) com>Subject: Re: [infantile_scoliosi s] 85 degree now 94 degreesTo: infantile_scoliosis @yahoogroups. comDate: Thursday, August 13, 2009, 12:12 PM

I know I'm newer here as well. But maybe there needs to be a change to the title of this Yahoo group??

Having it be Infantile Scoliosis/C. A.S.T. is a bit deceiving. My daughter was diagnosed at birth with congenital scoliosos. Knowing NOTHING about scoliosis, I began searching for a group for support. "Infantile Scoliosis" would, in those words alone, indicate a very young child with scoliosis, for someone who knows nothing. I believe way back then I joined this group as I didn't know where else to turn, but I knew that my daughter's back couldn't be "cured" by a cast, no matter what kind it was. I remember being "raked over the coals" for not pursuing casting as an option. Sorry, but congenital scoliosis just isn't fixed that way. It can be kept from progressing, but even that is done easier with less problems and less stress for the child (in my opinion) through bracing rather than casting. I think I too expressed my frustration with all of you for the pressure you put on me

that I was doing a "bad" thing for my child. Someone was kind enough to point me to the group "congenital scoliosis" also on yahoo groups, where I have continued to receive wonderful support. But even they aren't the "perfect" fit for my situation. Most of the kids on there are at least a few years older than my child and have had much greater and intesive surgeries than my child will have. And for the most part, they haven't had to deal with casts at all. So, I sought out this group again, KNOWING what your views were, and knew that I would have to be clear in my initial greeting to the group that we had made our decision, that surgery was our only option but that since my daughter would be wearing a cast for 3-4 mo following surgery, that I was here for advice on issues around casts period.

While I am taking this bit of a stand, I would also like to mention that it is important for new parents to be told to make sure through the MRI/x-ray process of whether the scoliosis is congenital or idiopathic in nature. I've tried to express that, but then the following umpteen posts following mine don't say anything, but "get somewhere that does the Mehta method!"

If that is the "cure" you are all promoting, I would recommend changing your title as a group. That way, parents such as Sandy, I and others don't have to feel we are doing the "worst thing possible" for our children. It is hard enough to deal with these issues without feeling an overwhelming push that we are doing something wrong and will cause our child to suffer more.

I will only be a part of this group until my daughter has her surgery and is through having her cast. Then I will leave as other than support for how to deal with a cast, there is NOTHING here for me. I have cringed as I have read some of the emails. A passion is good, but not looking at the whole picture and recognizing that there are many ways to solve a puzzle, could be detrimental to some family in the future.

I'll get off my soapbox for now, I hope this helps those of you severely pushing the Mehta method to realize what it is like for us that know that is not an option and how it makes us feel.

Thanks for listening/reading.

Jane

From: Sandy Schmucker <sschmuckerneo (DOT) rr.com>To: Infantile Scoliosis <infantile_scoliosis @yahoogroups. com>Sent: Thursday, August 13, 2009 7:58:15 AMSubject: [infantile_scoliosi s] 85 degree now 94 degrees

My little guy was able to walk if you held both his hands. In the last week he can no longer do that. We saw the doctor yesterday and his curve is now 94 degrees. He will be getting the Risser Cast on August 21st.

Since this cast is different from what all of you have for your kids I will be leaving the site. I thought this was for any "infantile scoliosis" which would include anyone but I'm not getting that feeling. I want to thank all of you who were so nice and supportive but I don't want to be here if I shouldn't be.

Thanks again,

Sandy

"Life's not about waiting for the storm to pass...It's about learning to dance in the rain."~~~Vivian Greene

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Noelle is in the same boat..... She is very tall and of average weight, but only due to the liquids that she takes in..... If I relied on simply solid foods she would be much, much smaller.... We also do lots of milk, cheese, yogurt and yogurt drinks.... - Noelle's mommy, 2 1/2 years old and in 7th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

From: Jane Bigler <janemharyahoo (DOT) com>Subject: Re: [infantile_scoliosi s] 85 degree now 94 degreesTo: infantile_scoliosis @yahoogroups. comDate: Thursday, August 13, 2009, 12:12 PM

I know I'm newer here as well. But maybe there needs to be a change to the title of this Yahoo group??

Having it be Infantile Scoliosis/C. A.S.T. is a bit deceiving. My daughter was diagnosed at birth with congenital scoliosos. Knowing NOTHING about scoliosis, I began searching for a group for support. "Infantile Scoliosis" would, in those words alone, indicate a very young child with scoliosis, for someone who knows nothing. I believe way back then I joined this group as I didn't know where else to turn, but I knew that my daughter's back couldn't be "cured" by a cast, no matter what kind it was. I remember being "raked over the coals" for not pursuing casting as an option. Sorry, but congenital scoliosis just isn't fixed that way. It can be kept from progressing, but even that is done easier with less problems and less stress for the child (in my opinion) through bracing rather than casting. I think I too expressed my frustration with all of you for the pressure you put on me

that I was doing a "bad" thing for my child. Someone was kind enough to point me to the group "congenital scoliosis" also on yahoo groups, where I have continued to receive wonderful support. But even they aren't the "perfect" fit for my situation. Most of the kids on there are at least a few years older than my child and have had much greater and intesive surgeries than my child will have. And for the most part, they haven't had to deal with casts at all. So, I sought out this group again, KNOWING what your views were, and knew that I would have to be clear in my initial greeting to the group that we had made our decision, that surgery was our only option but that since my daughter would be wearing a cast for 3-4 mo following surgery, that I was here for advice on issues around casts period.

While I am taking this bit of a stand, I would also like to mention that it is important for new parents to be told to make sure through the MRI/x-ray process of whether the scoliosis is congenital or idiopathic in nature. I've tried to express that, but then the following umpteen posts following mine don't say anything, but "get somewhere that does the Mehta method!"

If that is the "cure" you are all promoting, I would recommend changing your title as a group. That way, parents such as Sandy, I and others don't have to feel we are doing the "worst thing possible" for our children. It is hard enough to deal with these issues without feeling an overwhelming push that we are doing something wrong and will cause our child to suffer more.

I will only be a part of this group until my daughter has her surgery and is through having her cast. Then I will leave as other than support for how to deal with a cast, there is NOTHING here for me.. I have cringed as I have read some of the emails. A passion is good, but not looking at the whole picture and recognizing that there are many ways to solve a puzzle, could be detrimental to some family in the future.

I'll get off my soapbox for now, I hope this helps those of you severely pushing the Mehta method to realize what it is like for us that know that is not an option and how it makes us feel.

Thanks for listening/reading.

Jane

From: Sandy Schmucker <sschmuckerneo (DOT) rr..com>To: Infantile Scoliosis <infantile_scoliosis @yahoogroups. com>Sent: Thursday, August 13, 2009 7:58:15 AMSubject: [infantile_scoliosi s] 85 degree now 94 degrees

My little guy was able to walk if you held both his hands. In the last week he can no longer do that. We saw the doctor yesterday and his curve is now 94 degrees. He will be getting the Risser Cast on August 21st.

Since this cast is different from what all of you have for your kids I will be leaving the site. I thought this was for any "infantile scoliosis" which would include anyone but I'm not getting that feeling. I want to thank all of you who were so nice and supportive but I don't want to be here if I shouldn't be.

Thanks again,

Sandy

"Life's not about waiting for the storm to pass...It's about learning to dance in the rain."~~~Vivian Greene

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Heidi,

Jack loves just sliced avocado...but I found that you can hide it in food very easily. My little nephews are very thin and the MD wants then to gain wt. I'll make a tortilla and cheese and put it under the tortilla, or grilled cheese. You can mash it up into pureed green beans (one of Jack's favs). As for the olive oil...Jack loves pasta with olive oil and Parmesan cheese, or sliced polenta cooked in olive oil and topped with cheddar cheese. I also use butter when I make scrambled eggs....you can try topping them with melted cheese. I also got my nephews to eat hummus by calling it a "dip" for their nuggets!! My all time favorite for smoothies is ....cottage cheese for a base. Now hear me out on this on. When it is blended it give the creamiest texture. It is lower in sugar than yogurt more kcals and more protein as

well. Give it a try. ~KristaJack's Mom, Jack is 25 months old, in his 1st braceJack started casting at 41 degrees and is now measuring 0 in his brace!!! Receiving care from Shriners Hospital in Salt Lake City, Utah

From: Jane Bigler <janemharyahoo (DOT) com>Subject: Re: [infantile_scoliosi s] 85 degree now 94 degreesTo: infantile_scoliosis @yahoogroups. comDate: Thursday, August 13, 2009, 12:12 PM

I know I'm newer here as well. But maybe there needs to be a change to the title of this Yahoo group??

Having it be Infantile Scoliosis/C. A.S.T. is a bit deceiving. My daughter was diagnosed at birth with congenital scoliosos. Knowing NOTHING about scoliosis, I began searching for a group for support. "Infantile Scoliosis" would, in those words alone, indicate a very young child with scoliosis, for someone who knows nothing. I believe way back then I joined this group as I didn't know where else to turn, but I knew that my daughter's back couldn't be "cured" by a cast, no matter what kind it was. I remember being "raked over the coals" for not pursuing casting as an option. Sorry, but congenital scoliosis just isn't fixed that way. It can be kept from progressing, but even that is done easier with less problems and less stress for the child (in my opinion) through bracing rather than casting. I think I too expressed my frustration with all of you for the pressure you put on me

that I was doing a "bad" thing for my child. Someone was kind enough to point me to the group "congenital scoliosis" also on yahoo groups, where I have continued to receive wonderful support. But even they aren't the "perfect" fit for my situation. Most of the kids on there are at least a few years older than my child and have had much greater and intesive surgeries than my child will have. And for the most part, they haven't had to deal with casts at all. So, I sought out this group again, KNOWING what your views were, and knew that I would have to be clear in my initial greeting to the group that we had made our decision, that surgery was our only option but that since my daughter would be wearing a cast for 3-4 mo following surgery, that I was here for advice on issues around casts period.

While I am taking this bit of a stand, I would also like to mention that it is important for new parents to be told to make sure through the MRI/x-ray process of whether the scoliosis is congenital or idiopathic in nature. I've tried to express that, but then the following umpteen posts following mine don't say anything, but "get somewhere that does the Mehta method!"

If that is the "cure" you are all promoting, I would recommend changing your title as a group. That way, parents such as Sandy, I and others don't have to feel we are doing the "worst thing possible" for our children. It is hard enough to deal with these issues without feeling an overwhelming push that we are doing something wrong and will cause our child to suffer more.

I will only be a part of this group until my daughter has her surgery and is through having her cast. Then I will leave as other than support for how to deal with a cast, there is NOTHING here for me. I have cringed as I have read some of the emails. A passion is good, but not looking at the whole picture and recognizing that there are many ways to solve a puzzle, could be detrimental to some family in the future.

I'll get off my soapbox for now, I hope this helps those of you severely pushing the Mehta method to realize what it is like for us that know that is not an option and how it makes us feel.

Thanks for listening/reading.

Jane

From: Sandy Schmucker <sschmuckerneo (DOT) rr.com>To: Infantile Scoliosis <infantile_scoliosis @yahoogroups. com>Sent: Thursday, August 13, 2009 7:58:15 AMSubject: [infantile_scoliosi s] 85 degree now 94 degrees

My little guy was able to walk if you held both his hands. In the last week he can no longer do that. We saw the doctor yesterday and his curve is now 94 degrees. He will be getting the Risser Cast on August 21st.

Since this cast is different from what all of you have for your kids I will be leaving the site. I thought this was for any "infantile scoliosis" which would include anyone but I'm not getting that feeling. I want to thank all of you who were so nice and supportive but I don't want to be here if I shouldn't be.

Thanks again,

Sandy

"Life's not about waiting for the storm to pass...It's about learning to dance in the rain."~~~Vivian Greene

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Hey Krista,

Bex used to eat eggs and now won't touch them. He used to eat ones with cooked organic spinach, cheese and olive oil...sigh. He did eat a slice of plain tomato pizza the last 2 days! Only bad side is that mom and dad ate the rest of the 2 pizzas. My sister said cottage cheese is "better than you remember". My mom used to blend it into pancakes, yummy. Bex is so skinny in his cast, strangers comment on it at the park. For that reason, we have not switched to low-fat milk, we still do whole.

He will eat Kashi granola bars and organic blueberry applesauce from Whole Foods, and almost anything crunchy. He's over 2 and still likes his milk and baby food fruit! At least it has a lot of vit. C...he's picky. I'm going to try some of these ideas. Polenta is a good one! I also like hiding the avo...pasta is a no go so far, maybe I'll put extra olive oil on mini pizzas. Thanks!Heidi, Bexon's Mama, (2 years old, in 3rd cast from Salt Lake City Shriners, currently down from 61 degrees to 25)

From: Jane Bigler <janemharyahoo (DOT) com>Subject: Re: [infantile_scoliosi s] 85 degree now 94 degreesTo: infantile_scoliosis @yahoogroups. comDate: Thursday, August 13, 2009, 12:12 PM

I know I'm newer here as well. But maybe there needs to be a change to the title of this Yahoo group??

Having it be Infantile Scoliosis/C. A.S.T. is a bit deceiving. My daughter was diagnosed at birth with congenital scoliosos. Knowing NOTHING about scoliosis, I began searching for a group for support. "Infantile Scoliosis" would, in those words alone, indicate a very young child with scoliosis, for someone who knows nothing. I believe way back then I joined this group as I didn't know where else to turn, but I knew that my daughter's back couldn't be "cured" by a cast, no matter what kind it was. I remember being "raked over the coals" for not pursuing casting as an option. Sorry, but congenital scoliosis just isn't fixed that way. It can be kept from progressing, but even that is done easier with less problems and less stress for the child (in my opinion) through bracing rather than casting. I think I too expressed my frustration with all of you for the pressure you put on me

that I was doing a "bad" thing for my child. Someone was kind enough to point me to the group "congenital scoliosis" also on yahoo groups, where I have continued to receive wonderful support. But even they aren't the "perfect" fit for my situation. Most of the kids on there are at least a few years older than my child and have had much greater and intesive surgeries than my child will have. And for the most part, they haven't had to deal with casts at all. So, I sought out this group again, KNOWING what your views were, and knew that I would have to be clear in my initial greeting to the group that we had made our decision, that surgery was our only option but that since my daughter would be wearing a cast for 3-4 mo following surgery, that I was here for advice on issues around casts period.

While I am taking this bit of a stand, I would also like to mention that it is important for new parents to be told to make sure through the MRI/x-ray process of whether the scoliosis is congenital or idiopathic in nature. I've tried to express that, but then the following umpteen posts following mine don't say anything, but "get somewhere that does the Mehta method!"

If that is the "cure" you are all promoting, I would recommend changing your title as a group. That way, parents such as Sandy, I and others don't have to feel we are doing the "worst thing possible" for our children. It is hard enough to deal with these issues without feeling an overwhelming push that we are doing something wrong and will cause our child to suffer more.

I will only be a part of this group until my daughter has her surgery and is through having her cast. Then I will leave as other than support for how to deal with a cast, there is NOTHING here for me. I have cringed as I have read some of the emails. A passion is good, but not looking at the whole picture and recognizing that there are many ways to solve a puzzle, could be detrimental to some family in the future.

I'll get off my soapbox for now, I hope this helps those of you severely pushing the Mehta method to realize what it is like for us that know that is not an option and how it makes us feel.

Thanks for listening/reading.

Jane

From: Sandy Schmucker <sschmuckerneo (DOT) rr.com>To: Infantile Scoliosis <infantile_scoliosis @yahoogroups. com>Sent: Thursday, August 13, 2009 7:58:15 AMSubject: [infantile_scoliosi s] 85 degree now 94 degrees

My little guy was able to walk if you held both his hands. In the last week he can no longer do that. We saw the doctor yesterday and his curve is now 94 degrees. He will be getting the Risser Cast on August 21st.

Since this cast is different from what all of you have for your kids I will be leaving the site. I thought this was for any "infantile scoliosis" which would include anyone but I'm not getting that feeling. I want to thank all of you who were so nice and supportive but I don't want to be here if I shouldn't be.

Thanks again,

Sandy

"Life's not about waiting for the storm to pass...It's about learning to dance in the rain."~~~Vivian Greene

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Heidi-

Jack still loves baby food meat and veggies! He will eat the regular textured food as well. When it comes to eating and trying new food...Jack can hate things and then the next time..love it!

P.S. good luck with whatever you decide on the 'baby front"...you will choose what is right for you and your family! ~KristaJack's Mom, Jack is 25 months old, in his 1st braceJack started casting at 41 degrees and is now measuring 0 in his brace!!! Receiving care from Shriners Hospital in Salt Lake City, Utah

From: Jane Bigler <janemharyahoo (DOT) com>Subject: Re: [infantile_scoliosi s] 85 degree now 94 degreesTo: infantile_scoliosis @yahoogroups. comDate: Thursday, August 13, 2009, 12:12 PM

I know I'm newer here as well. But maybe there needs to be a change to the title of this Yahoo group??

Having it be Infantile Scoliosis/C. A.S.T. is a bit deceiving. My daughter was diagnosed at birth with congenital scoliosos. Knowing NOTHING about scoliosis, I began searching for a group for support. "Infantile Scoliosis" would, in those words alone, indicate a very young child with scoliosis, for someone who knows nothing. I believe way back then I joined this group as I didn't know where else to turn, but I knew that my daughter's back couldn't be "cured" by a cast, no matter what kind it was. I remember being "raked over the coals" for not pursuing casting as an option. Sorry, but congenital scoliosis just isn't fixed that way. It can be kept from progressing, but even that is done easier with less problems and less stress for the child (in my opinion) through bracing rather than casting. I think I too expressed my frustration with all of you for the pressure you put on me

that I was doing a "bad" thing for my child. Someone was kind enough to point me to the group "congenital scoliosis" also on yahoo groups, where I have continued to receive wonderful support. But even they aren't the "perfect" fit for my situation. Most of the kids on there are at least a few years older than my child and have had much greater and intesive surgeries than my child will have. And for the most part, they haven't had to deal with casts at all. So, I sought out this group again, KNOWING what your views were, and knew that I would have to be clear in my initial greeting to the group that we had made our decision, that surgery was our only option but that since my daughter would be wearing a cast for 3-4 mo following surgery, that I was here for advice on issues around casts period.

While I am taking this bit of a stand, I would also like to mention that it is important for new parents to be told to make sure through the MRI/x-ray process of whether the scoliosis is congenital or idiopathic in nature. I've tried to express that, but then the following umpteen posts following mine don't say anything, but "get somewhere that does the Mehta method!"

If that is the "cure" you are all promoting, I would recommend changing your title as a group. That way, parents such as Sandy, I and others don't have to feel we are doing the "worst thing possible" for our children. It is hard enough to deal with these issues without feeling an overwhelming push that we are doing something wrong and will cause our child to suffer more.

I will only be a part of this group until my daughter has her surgery and is through having her cast. Then I will leave as other than support for how to deal with a cast, there is NOTHING here for me. I have cringed as I have read some of the emails. A passion is good, but not looking at the whole picture and recognizing that there are many ways to solve a puzzle, could be detrimental to some family in the future.

I'll get off my soapbox for now, I hope this helps those of you severely pushing the Mehta method to realize what it is like for us that know that is not an option and how it makes us feel.

Thanks for listening/reading.

Jane

From: Sandy Schmucker <sschmuckerneo (DOT) rr.com>To: Infantile Scoliosis <infantile_scoliosis @yahoogroups. com>Sent: Thursday, August 13, 2009 7:58:15 AMSubject: [infantile_scoliosi s] 85 degree now 94 degrees

My little guy was able to walk if you held both his hands. In the last week he can no longer do that. We saw the doctor yesterday and his curve is now 94 degrees. He will be getting the Risser Cast on August 21st.

Since this cast is different from what all of you have for your kids I will be leaving the site. I thought this was for any "infantile scoliosis" which would include anyone but I'm not getting that feeling. I want to thank all of you who were so nice and supportive but I don't want to be here if I shouldn't be.

Thanks again,

Sandy

"Life's not about waiting for the storm to pass...It's about learning to dance in the rain."~~~Vivian Greene

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I am going to try your cottage cheese smoothie "trick". thanks for the tip Joanmom to Hayden 2 1/246 degreesTreated at ish Rite Hospital Dallas, TX

To: infantile_scoliosis Sent: Tuesday, August 18, 2009 9:35:57 PMSubject: Re: Difference between CAST and ISOP

Heidi,

Jack loves just sliced avocado....but I found that you can hide it in food very easily. My little nephews are very thin and the MD wants then to gain wt. I'll make a tortilla and cheese and put it under the tortilla, or grilled cheese. You can mash it up into pureed green beans (one of Jack's favs). As for the olive oil...Jack loves pasta with olive oil and Parmesan cheese, or sliced polenta cooked in olive oil and topped with cheddar cheese. I also use butter when I make scrambled eggs....you can try topping them with melted cheese. I also got my nephews to eat hummus by calling it a "dip" for their nuggets!! My all time favorite for smoothies is ....cottage cheese for a base. Now hear me out on this on. When it is blended it give the creamiest texture. It is lower in sugar than yogurt more kcals and more protein as

well. Give it a try. ~KristaJack's Mom, Jack is 25 months old, in his 1st braceJack started casting at 41 degrees and is now measuring 0 in his brace!!! Receiving care from Shriners Hospital in Salt Lake City, Utah

From: Jane Bigler <janemharyahoo (DOT) com>Subject: Re: [infantile_scoliosi s] 85 degree now 94 degreesTo: infantile_scoliosis @yahoogroups. comDate: Thursday, August 13, 2009, 12:12 PM

I know I'm newer here as well. But maybe there needs to be a change to the title of this Yahoo group??

Having it be Infantile Scoliosis/C. A.S.T. is a bit deceiving. My daughter was diagnosed at birth with congenital scoliosos. Knowing NOTHING about scoliosis, I began searching for a group for support. "Infantile Scoliosis" would, in those words alone, indicate a very young child with scoliosis, for someone who knows nothing. I believe way back then I joined this group as I didn't know where else to turn, but I knew that my daughter's back couldn't be "cured" by a cast, no matter what kind it was. I remember being "raked over the coals" for not pursuing casting as an option. Sorry, but congenital scoliosis just isn't fixed that way. It can be kept from progressing, but even that is done easier with less problems and less stress for the child (in my opinion) through bracing rather than casting. I think I too expressed my frustration with all of you for the pressure you put on me

that I was doing a "bad" thing for my child. Someone was kind enough to point me to the group "congenital scoliosis" also on yahoo groups, where I have continued to receive wonderful support. But even they aren't the "perfect" fit for my situation. Most of the kids on there are at least a few years older than my child and have had much greater and intesive surgeries than my child will have. And for the most part, they haven't had to deal with casts at all. So, I sought out this group again, KNOWING what your views were, and knew that I would have to be clear in my initial greeting to the group that we had made our decision, that surgery was our only option but that since my daughter would be wearing a cast for 3-4 mo following surgery, that I was here for advice on issues around casts period.

While I am taking this bit of a stand, I would also like to mention that it is important for new parents to be told to make sure through the MRI/x-ray process of whether the scoliosis is congenital or idiopathic in nature. I've tried to express that, but then the following umpteen posts following mine don't say anything, but "get somewhere that does the Mehta method!"

If that is the "cure" you are all promoting, I would recommend changing your title as a group. That way, parents such as Sandy, I and others don't have to feel we are doing the "worst thing possible" for our children. It is hard enough to deal with these issues without feeling an overwhelming push that we are doing something wrong and will cause our child to suffer more.

I will only be a part of this group until my daughter has her surgery and is through having her cast. Then I will leave as other than support for how to deal with a cast, there is NOTHING here for me. I have cringed as I have read some of the emails. A passion is good, but not looking at the whole picture and recognizing that there are many ways to solve a puzzle, could be detrimental to some family in the future.

I'll get off my soapbox for now, I hope this helps those of you severely pushing the Mehta method to realize what it is like for us that know that is not an option and how it makes us feel.

Thanks for listening/reading.

Jane

From: Sandy Schmucker <sschmuckerneo (DOT) rr.com>To: Infantile Scoliosis <infantile_scoliosis @yahoogroups. com>Sent: Thursday, August 13, 2009 7:58:15 AMSubject: [infantile_scoliosi s] 85 degree now 94 degrees

My little guy was able to walk if you held both his hands. In the last week he can no longer do that. We saw the doctor yesterday and his curve is now 94 degrees. He will be getting the Risser Cast on August 21st.

Since this cast is different from what all of you have for your kids I will be leaving the site. I thought this was for any "infantile scoliosis" which would include anyone but I'm not getting that feeling. I want to thank all of you who were so nice and supportive but I don't want to be here if I shouldn't be.

Thanks again,

Sandy

"Life's not about waiting for the storm to pass...It's about learning to dance in the rain."~~~Vivian Greene

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Good deal...let me now how it goes!!~KristaJack's Mom, Jack is 25 months old, in his 1st braceJack started casting at 41 degrees and is now measuring 0 in his brace!!! Receiving care from Shriners Hospital in Salt Lake City, Utah

From: Jane Bigler <janemharyahoo (DOT) com>Subject: Re: [infantile_scoliosi s] 85 degree now 94 degreesTo: infantile_scoliosis @yahoogroups. comDate: Thursday, August 13, 2009, 12:12 PM

I know I'm newer here as well. But maybe there needs to be a change to the title of this Yahoo group??

Having it be Infantile Scoliosis/C. A.S.T. is a bit deceiving. My daughter was diagnosed at birth with congenital scoliosos. Knowing NOTHING about scoliosis, I began searching for a group for support. "Infantile Scoliosis" would, in those words alone, indicate a very young child with scoliosis, for someone who knows nothing. I believe way back then I joined this group as I didn't know where else to turn, but I knew that my daughter's back couldn't be "cured" by a cast, no matter what kind it was. I remember being "raked over the coals" for not pursuing casting as an option. Sorry, but congenital scoliosis just isn't fixed that way. It can be kept from progressing, but even that is done easier with less problems and less stress for the child (in my opinion) through bracing rather than casting. I think I too expressed my frustration with all of you for the pressure you put on me

that I was doing a "bad" thing for my child. Someone was kind enough to point me to the group "congenital scoliosis" also on yahoo groups, where I have continued to receive wonderful support. But even they aren't the "perfect" fit for my situation. Most of the kids on there are at least a few years older than my child and have had much greater and intesive surgeries than my child will have. And for the most part, they haven't had to deal with casts at all. So, I sought out this group again, KNOWING what your views were, and knew that I would have to be clear in my initial greeting to the group that we had made our decision, that surgery was our only option but that since my daughter would be wearing a cast for 3-4 mo following surgery, that I was here for advice on issues around casts period.

While I am taking this bit of a stand, I would also like to mention that it is important for new parents to be told to make sure through the MRI/x-ray process of whether the scoliosis is congenital or idiopathic in nature. I've tried to express that, but then the following umpteen posts following mine don't say anything, but "get somewhere that does the Mehta method!"

If that is the "cure" you are all promoting, I would recommend changing your title as a group. That way, parents such as Sandy, I and others don't have to feel we are doing the "worst thing possible" for our children. It is hard enough to deal with these issues without feeling an overwhelming push that we are doing something wrong and will cause our child to suffer more.

I will only be a part of this group until my daughter has her surgery and is through having her cast. Then I will leave as other than support for how to deal with a cast, there is NOTHING here for me. I have cringed as I have read some of the emails. A passion is good, but not looking at the whole picture and recognizing that there are many ways to solve a puzzle, could be detrimental to some family in the future.

I'll get off my soapbox for now, I hope this helps those of you severely pushing the Mehta method to realize what it is like for us that know that is not an option and how it makes us feel.

Thanks for listening/reading.

Jane

From: Sandy Schmucker <sschmuckerneo (DOT) rr.com>To: Infantile Scoliosis <infantile_scoliosis @yahoogroups. com>Sent: Thursday, August 13, 2009 7:58:15 AMSubject: [infantile_scoliosi s] 85 degree now 94 degrees

My little guy was able to walk if you held both his hands. In the last week he can no longer do that. We saw the doctor yesterday and his curve is now 94 degrees. He will be getting the Risser Cast on August 21st.

Since this cast is different from what all of you have for your kids I will be leaving the site. I thought this was for any "infantile scoliosis" which would include anyone but I'm not getting that feeling. I want to thank all of you who were so nice and supportive but I don't want to be here if I shouldn't be.

Thanks again,

Sandy

"Life's not about waiting for the storm to pass...It's about learning to dance in the rain."~~~Vivian Greene

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