Re:

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I had an incredible increased sense of smell. Never a lossSent from my Palm Pre on the Now Network from Sprint

No never put on ACEs....had angioedema from ARBs Once inflammation controlled sense of smell returned and nose and sinuses clear. Plus this occured AFTER my adrenalectomy when I did not need any BP medication at all. Dr Grim asked if ever on ACEs because they could have been cause of loss of smell

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, I have an incredibly increased sense of smell and taste, and a heightened negative response to noise and lights.  With treatment, I can tolerate more noise and light, but smell and taste are still difficult.  At least I can taste spoiled food days before my husband. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of BinghamI had an incredible increased sense of smell. Never a loss

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My T is chronically low, but my providers are not gonna prescribe it like that anyway and I already know insurance wouldn't pay for it as even generic diflican is not on fornulary and is about $12. Sent from my Palm Pre on the Now Network from Sprint

, I take 200 mg Diflucan every five days. One of my Lyme docs has tested my testosterone and Free testosterone a couple of times. Both are fine. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Bingham While they all feel similar (friable) and very lipoma-like only one has been there for years, the others - two at the moment - have come and gone and have at times varying tenderness to them. The stable one, will increase the heart rate and is tender when pressed deeply, but nothing severe, to me anyway. It is close to the upper liver border. The others lower in RLQ. All are on the rt side. I have also had lately, coming and going, multiple nodules in the groin that are marble size, tender, and at first thought I was getting a folliculitis until they went away and then others showed up, but they do not ever get a head or ooze or weep. I should say to, and I told you I have this strange myriad of complaints for some time so I aplogize, I am eaten up with candidiasis and fight it ALL the time. All toes have it, like most men I know, feet do, but also flares behind my knees, and very much so in my groin. The worst, because of where it is, is my mouth and I am always fighting thrush, and currently I have horrible cases of chelitis, and glossitis. If I take one dose of cipro or bactrim it flares so wildly. I am sure this doesn't help the mouth fungus issue but I have had this wicked problem with my teeth since I was a little boy wherein I hardly have any enamel and nearly all my back teeth are gone, or broken, and the front have all been repaired or replaced. Back then we had good dental and I heard every theory from reflux to my fault - as one can imagine I brush and floss very well and like I am supposed to because I HATED and HATE the dentist so I do try. But there is no enamel and we don't really know why. My mother lost all of her teeth by the time she was 16 and she said she took care of her teeth as well as her parents and sister and they all had theirs. Mom died at 38 (of trauma - hit by car) but she also had hyperthyroidism which two of my (5) sisters and me seemed to have inherited - of the 8 kids about 4 of us have the bad teeth and the other 4 do not. I am the eldest but the brother 3.5 yrs younger has Paget's Dz and had a very close - ICU type - case of hepatitis B when he was 17 that was pretty scary and just recently is having some high renal tests and significant hearing loss. Never located the vector, but he was not sexually active nor a drug user, They assumed fast food.worker somewhere and tried to trace it but never could find it. I am the only one with the myriad of issues. My Dad is 62 and healthy. Works as a respiratory therapist. My grandfather and ALL of my dads - 4 i think - uncles died of massive strokes after years of HTN. Grandma is alive at 85 and swears none ever had low K that we know. When I was in my mid teens doc in Long Beach, Ca called it "colitis" as I was having pretty severe belly pains frequently and doubled over alot. Was on what today is the gluten diet most of my teen years, but if it resolved it did so on it's own by the time my 20's came around. Today I have ALOT of constipation and then occasionaly diarrhea and do not take anything like pain pills to complicate it. I thought it was just from the years of chronic low K as it was better after treating the PA, but still not good. I am 44 now but of all 8 children I was the only athlete and I was a HS QB, an allstar left fielder and have batting champ and MVP trophies on the wall (I even have a plaque for a HS baserunning contest once - which surprised the poop out of me cause I didn't feel that fast!)., and I can brag a bit that I was # 1 singles player for the tennis team (but not quite as successful) one year and always always the point guard from JH to HS. I also played/play the drumset, never smoked ever, don't drink, and never had any indescretions with the females....okay I may have lied on the last one, but hey we were all young once. I am still 164 lbs at almost 5'11" So it just doesnt add up to me now. But I get back around sick people and I am feeling so sick and run down again that something is kicking my ass systemically. I am so physically and mentally fighting it every day again to get moving. And I am not suddenly more stressed or depressed. K was good at last test, but she didn't do it right and I felt low. But have been taking it everyday. There seems to almost be some immune disorder that's hitting multiple systems. I do have a low WBC count in addition to the anemia - which is a normocytic anemia for now. Have low T for years as I mentioned....what else.....bunch of new skin tags this year under my armpits for some reason that get scratched often. And I said in the ealrier post about the rashes on my anterior legs that come and go and the hair loss on my shins. My hair on my head is fine. ...thank goodness...as I have blonde surfer hair and don't look good with it shaved and I am sure not bald either

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I am 58 year old male 200lb 5'-10" BP 165/90 HR (resting) 45, part of my BP management regimen is a Nitro Patch, when I have the patch on BP is down to 135/75 but I feel like there is a fire hose in my head. I have been diagnosed with Conn's, Aldosetrone levels were 16 - 20 times normal, I have had a CT scan and it was inconclusive, so I am now waiting for the Bi-Lateral Adrenal Vein sampling, that is scheduled for early February. Fortunately I have a very good endocrinologist and I live in Canada so all is carried out under the health care.I more or less live to the DASH diet lots of fruit veg nuts very low salt, are there foods I should specifically avoid or conversely seek out RegardsH

I do hope you realize I was kidding. I knew you were too young and not stupid enough to think something strong enough to defoliate trees wouldn't hurt people and their food supply! The sad part is I never realized they were poisioning me until years later hence just now getting the registery exam! I was on a base and now find it is still 30 times above standards as of a couple years ago! Thinking about it, DaNang was the northern most major air base so they probably flew most of the northern missions out of there. My bunk mate worked the line in POL (Petroleum Oil & Lubricants) so he probably loaded the planes and hung his shirt on the end of the bunks when he got done!

I do have one question Dr. Grim. What were they doing with "100's of Sheep" on an Army Base? (Hope hazing wasn't involved!)

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[Guest guest]

This is a letter I got from a PA list member who is also a doctor.  She lives in the Northeast.  I don't know if she's still on the list but she gave me permission to share it with y'all.  Her doc thinks Lyme caused her PA.  I think Lyme caused my PA and destroyed my thyroid and knee cartilage._______________________ Hi Val!! I have been meaning to write to you I went to a Naturopath and found out not only do I have Lyme (your tests are gloriously positive - the dna urine test ) but babesiosis and bartonella.  Also have polycystic ovary disease, chronic kidney disease (no kidding!), hashimotos thyroiditis, and a bunch of food allergies... especially gluten and milk and pork - the last 2 I already knew about.... have been on Amoxicillin 3g and Biaxin 1g per day for 1 month and lost 15 lbs and couldn't eat so he switched me back to doxy and now rifampin.... the meds are killing my gut but eating right helps.... feeling better finally after 8 weeks of ABX anyway, BP is down to - even in the most stressful of situations it's only 122/80 - pulse still races at times have started walking again glad the brain fog is improving!  can't believe how I functioned these past 3 years.....scary to think I am taking care of others (or was.....) anyway, THANK YOU AGAIN!! I keep telling everyone - a girl named Val diagnosed me over the internet!  wow...what a shame.... How are you doing? Do you have kidney as well as adrenal disease? My GFR is about 60 - went down to 48 during the severe diarrhea days.... okay have a great night! Regards!XXXXXXXXXXXXXXXXX Val

[Guest guest]

She does or doesn't treat her PA? Is she ONLY on abx or also bp meds?Sent from my Palm Pre on the Now Network from Sprint

This is a letter I got from a PA list member who is also a doctor. She lives in the Northeast. I don't know if she's still on the list but she gave me permission to share it with y'all. Her doc thinks Lyme caused her PA. I think Lyme caused my PA and destroyed my thyroid and knee cartilage._______________________ Hi Val!! I have been meaning to write to you I went to a Naturopath and found out not only do I have Lyme (your tests are gloriously positive - the dna urine test ) but babesiosis and bartonella. Also have polycystic ovary disease, chronic kidney disease (no kidding!), hashimotos thyroiditis, and a bunch of food allergies... especially gluten and milk and pork - the last 2 I already knew about.... have been on Amoxicillin 3g and Biaxin 1g per day for 1 month and lost 15 lbs and couldn't eat so he switched me back to doxy and now rifampin.... the meds are killing my gut but eating right helps.... feeling better finally after 8 weeks of ABX anyway, BP is down to - even in the most stressful of situations it's only 122/80 - pulse still races at times have started walking again glad the brain fog is improving! can't believe how I functioned these past 3 years.....scary to think I am taking care of others (or was.....) anyway, THANK YOU AGAIN!! I keep telling everyone - a girl named Val diagnosed me over the internet! wow...what a shame.... How are you doing? Do you have kidney as well as adrenal disease? My GFR is about 60 - went down to 48 during the severe diarrhea days.... okay have a great night! Regards!XXXXXXXXXXXXXXXXX Val

[Guest guest]

Has Na snuck in over the holidays?CE Grim MD I don't know if she's on spiro or not. I need to correspond with her some more. I know my BP dropped considerably after I got on abx. I was on 150 mg to start and am now on 75 mg Inspra. Tried to go to 50 mg Inspra but BP started rising. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of BinghamShe does or doesn't treat her PA? Is she ONLY on abx or also bp meds? This is a letter I got from a PA list member who is also a doctor. She lives in the Northeast. I don't know if she's still on the list but she gave me permission to share it with y'all. Her doc thinks Lyme caused her PA. I think Lyme caused my PA and destroyed my thyroid and knee cartilage._______________________ Hi Val!! I have been meaning to write to you I went to a Naturopath and found out not only do I have Lyme (your tests are gloriously p ositive - the dna urine test ) but babesiosis and bartonella. Also have polycystic ovary disease, chronic kidney disease (no kidding!), hashimotos thyroiditis, and a bunch of food allergies... especially gluten and milk and pork - the last 2 I already knew about.... have been on Amoxicillin 3g and Biaxin 1g per day for 1 month and lost 15 lbs and couldn't eat so he switched me back to doxy and now rifampin.... the meds are killing my gut but eating right helps.... feeling better finally after 8 weeks of ABX anyway, BP is down to - even in the most stressful of situations it's only 122/80 - pulse still races at times have started walking again glad the brain fog is improving! can't believe how I functioned these past 3 years.....scary to think I am taking care of others (or was.....) anyway, THANK YOU AGAIN!! I keep telling everyone - a girl named Val diagnosed me over the internet! wow...what a shame.... How are you doing? Do you have kidney as well as adrenal disease? My GFR is about 60 - went down to 48 during the severe diarrhea days.... okay have a great night! Regards!XXXXXXXXXXXXXXXXX

[Guest guest]

thanks for the great info. When is your article coming out? I want to make it available to my patients.

Thanksnicole

To: nfpprofessionals Sent: Wednesday, March 7, 2012 5:58 PMSubject: Re:

,Thank you so much for taking the time to write such a thorough email -- no apology needed for its length. I am going to print it, as well as open the links you provided. We import oil and export breast cancer...Also, I consider Dr. Brind a "breast cancer rock-star", so thank you for forwarding my email to him.Peggy

Dear Peggy - keep up the good work -- i have also forwarded your email to Dr. Brind who is an expert on statisitical tools that supposedly "good" researchers use in helping the large studies NOT show that OCPs cause an increase in breast cancer. He has found major problems with the "big" studies which supposedly show that OCPs and breast cancer are NOT linked. He points to tricks like "person years" and biased inclusion and exclusion criteria for making any correlations minimal. I refer you to www.bcpi.org for more information.

In our recent article, we researched over 75 articles available through the FSU Maguire Medical library. There are several studies which show an increased risk of breast cancer from OCPS, of course the most notable is Dr Kahlenborn's Mayo Clinical Proceedings (www.polycarp.org). But also making the news recently was the so called "triple negative" breast cancer study at the Fred Hutchinson Cancer Research Center. They found that longterm oral contraceptive use among young women or use beginning near menarche may be associated with an increased breast cancer risk, possibly due to susceptibilty to genetic damage in breast epithelial cells at ages of high breast cell proliferative activity (see below for simpler explanation). When you get my article (or when it is available online -

any day i am told) -- go to the reference section and you can look at the actual studies yourself. You will see several studies that do show an increased risk of breast cancer, especially in women who are young, if they use OCPS for 4 or more years, BEFORE their first full term pregnancy. In the older studies from the 1980s, the women that used birth control in those studies had already had their babies, and were using oral contraceptives after their babies. This protected their breast tissue from the harmful effects of OCPs. But, in the newer studies, the women are using the OCPs from early adolescence onward, and now we are seeing younger women with earlier breast cancer. I believe, as others do, that the reason is oral contraceptives. The hormones in older women will still eventually cause breast cancer, but the "lag time" to show the correlation is then greater - making this effect harder to capture in cohort studies.

Most cohort studies end after 5 or 10 years. They really need to be carried out for much longer periods of time. Who funds these studies? Government and pharmaceutical companies. They tend, most of the time, to be on the opposite side of us on this issue. Bias does enter into how studies are performed. Unfortunate, but true.

As you astutely note, there was a temporary decrease in breast cancer after the Women's Health Iniative decreased postmenopausal HRT use in older women. I think it is just commonsense to believe that decreasing the use of oral contraceptives in young women would produce a similar decrease in breast cancer. By the way, this decrease was temporary -- breast cancer rates, even for older women have continued to increase. Why? Perhaps it is because now the use of OCPs in older women is beginning to cause breast cancer also.

Now for that commonsense explanation on how OCPs may cause breast cancer. Dr. Lafranchi believes that the birth control pills cause hyperproliferation of the breast cells, leaving many more spots for breast cancer to develop (similar to feeding a tree with lots of fertilizer to get lots of little branches to grow). Then, carcinogens have more places to create damage and it is the damaged codes in DNA which can cause cancer. Don't your patients, when going on hormones or birth control pills note an increase in size or pain in their breasts? That is because of this proliferative activity.

Another area that fascinates me, is why the national cancer databases break breast cancer down into breast cancer in situ and breast cancer invasive -- both areas are increasing by the way, and have been increasing since the pill was introduced (www.seer.cancer.gov) Is this to make it look like breast cancer rates are not growing as fast as they are (by breaking them into 2 smaller groups instead of one large group)?

Finally, and i am sorry for these long emails - i am sure i will settle down soon - we need to look at the developing world and note that as they have been embracing more and more oral contraceptives guess what is happening to them??? Their breast cancer rates are going up correspondingly. We are EXPORTING breast cancer!! (Who says America doesnt export anymore?)

(see Lancet. 2011 Oct 22;378(9801):1461-84. Epub 2011 Sep 14)

And, don't forget - the other side doesnt even bother arguing about CERVICAL cancer -- they give that one to us automatically - because the studies all show that effect. Cervical cancer is the #1 women's cancer in some parts of the developing world, and depending on other countries, between the 2nd to the 4th most common cancer.

Should ANY drug that causes ANY cancer be touted as "preventative care" and given to our young people??

Blessings, dr rebecca

To: nfpprofessionals Sent: Wednesday, March 7, 2012 12:15 PMSubject:

I think we have to be aggressive in educating in every possible way the dangers of OC use and breast cancer. The secularists do a good job in fighting for funding in breast cancer research. Too bad their ideology corrupts the science in looking for its cause.I have been a participant in the Marin Women's Breast Cancer Study for several years. One interesting result is that their data showed a decline in the rate of postmenopausal breast cancer due to a decrease in combined estrogen-progesterone use. During Marin Cancer Institute's Annual Breast Breast Cancer Forum, I commented on this to the Principle Investigater and then asked if there "might also be a decrease in the incidence of premenopausal breast cancer if the use of OC's was decreased?" She very smoothly said they would be looking at that in future studies but with "a link to alcohol use--i.e., a combination of OC/alcohol use and their

effect on breast cancer". When I brought up some of the studies linking OC use and abortion to breast cancer to a cancer surgeon, she blew me off saying that "all those studies are done by 'anti-choice' researchers". It is hard to penetrate their beliefs but we have to keep up the drumbeat. Below is my email today to the head of the Community Epidemiology Program at the County of Marin Department of Health and Human Services, who is also the PI of the Marin Women's Breast Cancer Study.Peggy Bartley Rochelle,I continue to research the link between oral contraceptive use and breast cancer. In the October 2006 issue of Mayo Clinic Proceedings there is an article that reports, using data from 39 case-controlled studies conducted after 1980, a definite link between oral contraceptive use and premenopausal breast cancer.http://www.mayoclinicproceedings.org/article/S0025-6196%2811%2960925-7/fulltextBecause breast cancer

is such a horrific disease, and because the incidence of breast cancer in Marin is one of the highest in all California counties, I would like to see this link studied in future Marin Women's Breast Cancer Studies research.Peggy Bartley, RN

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Grow your own business right from your

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Time to change your passwords.http://www.passwordmeter.com/On Sun, Mar 18, 2012 at 8:17 AM, lau gra wrote:

 

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