Re: Re: Dr. Grim - AVS and test results

[Guest guest]

AVS without ACTH always 99.999% shows patient has no adenoma at all...you

are clear! You have no high BP. It is mostly used by retarded physicians

immigrated to USA and placed at hospitals' slavery department! I mean AVS

without ACTH is not reliable at all...actually if AVS without ACTH indicates

adenoma then the patient must have already been exploded by extremely high

bp!

Max.

|they did not use ACTH.

|

|

[Guest guest]

Queen's money is depleted... no more new colonies for UK...all UK colonies are stolen by CIA! Soon UK doctors/dentists/radiologists will work on the streets like this: Move to US or Canada! Max. ||why the heck does this " uk leading hospital " not use ACTH then? They must|know this too, they can't be that dumb.|

[Guest guest]

Get to someone's potassium pills right away...you need K for now until

someone helps you....find a lot K

Max.

|

|Problems now.

|very high bp 184/118 today.

|20 plus pees per day

|very low energy

|don't sleep more than 2 hrs at one time

|iritable/stressed/feel down alot

|chest pain due to LVH

|flank pain

|I get shakey alot - had that since 5 yrs old crave salt leg numbness I just

feel

|weak leg and feet cramps every day - on 3600mg slowK

|

| http://docs.yahoo.com/info/terms/

[Guest guest]

Seems not enough K. I am on Spiro=100mg but still take 120 mEq K (=120 * 39

= 4680 mg) and you without bp control are in lower K dose...If you are not

on Spiro then get to higher K dose or drink a lot of K-reach

beverage/vegetables/fruits until bp is normalized by medication and K

supplements...fro now 180 syst bp is too high...you need your kidneys.

Max.

|on 3600 slow k per day

|

[Guest guest]

And your salt UNDER or AT 1500. Can't cheat and the spiro can be outsalted. Chow down on some veggies!

Subject: RE: Re: Dr. Grim - AVS and test resultsTo: hyperaldosteronism Date: Wednesday, November 2, 2011, 5:39 PM

Seems not enough K. I am on Spiro=100mg but still take 120 mEq K (=120 * 39= 4680 mg) and you without bp control are in lower K dose...If you are noton Spiro then get to higher K dose or drink a lot of K-reachbeverage/vegetables/fruits until bp is normalized by medication and Ksupplements...fro now 180 syst bp is too high...you need your kidneys.Max.|on 3600 slow k per day|

[Guest guest]

Max,Don't be so proud of US! My AVS was done in a leading teaching US hospital in August 2011. First, I was on eplerenone all the time, even on three times increased dosage previously to AVS. Second, I sent medical report to Dr. Grim and even he could not figured out from this report, if it was done with ACTH or without it. After that I asked three doctors who saw me in the hospital, including my PCP, and all of them answered they don't know if AVS was with or without ACTH. Now, no wonder, that my AVS showed that both of my adrenals produce the same amount of hormones, and they are practically normal, even if I have 2 cm adenoma on a left

side.So, new guy from England, I don't recommend to move to USA or Canada, because we have here the same responses as yours from these two countries. Natalia To: hyperaldosteronism Sent: Wednesday, November 2, 2011 5:11 PMSubject: RE: Re: Dr. Grim - AVS and test

results

Queen's money is depleted... no more new colonies for UK...all UK colonies are stolen by CIA! Soon UK doctors/dentists/radiologists will work on the streets like this: Move to US or Canada! Max. ||why the heck does this "uk leading hospital" not use ACTH then? They must|know this too, they can't be that dumb.|

[Guest guest]

Did you get back on eplerenone? Natalia Kamneva 67 Russian F with 2 cm left adrenal adenoma, recently diagnosed with PA; diabetic; on 100 mg eplerenone, 80 mg Micardis, 2000 mg metformin, 60 mg Dexilant and 2 mg Lorazepam; Dashing; still have some occasional problems with BP, K and Na; on private consultation with Dr Grim.To: hyperaldosteronism Sent: Wednesday, November

2, 2011 5:24 PMSubject: Re: Dr. Grim - AVS and test results

Problems now.

very high bp 184/118 today.

20 plus pees per day

very low energy

don't sleep more than 2 hrs at one time

iritable/stressed/feel down alot

chest pain due to LVH

flank pain

I get shakey alot - had that since 5 yrs old

crave salt

leg numbness

I just feel weak

leg and feet cramps every day - on 3600mg slowK

>

> > I just had a one hr phone consult with endo from Radcliffe hospital in Oxford UK.

> > I am a 45 yr old male. mid 20s early HTH, 32 put on anti-hypertensions, over 20 different one's, never had normal BP, always high. 2009 started investigations for PA. Now have LVH, chest pain from that. Both parents dead. Mom died from stroke and had triple bypass at young age. Dad had HTH and kidney issues, Alzheimer's.

> >

> > I was at a local hospital they did not know what to do next.

> > I did research and found the best surgeon for PA at Radcliffe hospital got referred to this hospital late 2010.

> >

> > Some tests done at hospital A and some done at Radcliffe hospital.

> >

> > Calderdale Hospital (a)

> > - 24 hr urine test has been completed in hospital A, do not have the results just letter stating in normal range.

> > - aldo/renin completed in Halifax 1.6 renin, 905 aldo.

> > - salt loading has not been completed.

> > - CT scans at hospital A radiologist listed Left 9mm edema.

> >

> > Referred to Radcliffe hospital ( -

> > - AVS April 2011 - Ratio 1, Right Adrenal - 5.77, Left Adrenal 6.51, cortisol to venacava (sp?) 4.92.

> > - June 2011 in Oxford - 2.5 potassium, K too low to do another aldo/renin

> > - the specialist radiologist at Oxford Radcliffe Hospital says no Left 9mm edema on scan.

> >

> > I have been told today:

> > - Going to do "special" ct scan to see if 9mm edema.

> > - plus 50% chance that the next AVS (my second) will be unsuccessful at Radcliffe Hospital.

> > - Since I am on no meds but 3600k per day am getting renin/aldo and k blood tests this week.

> > - Then back on Eplerone.

> > - See if Eplerone works.

> > - Then 2nd AVS and "special" scan booked in the next couple months.

> >

> > Thank you

> >

> >

>

[Guest guest]

Go to rice diet for while immediately. No salt at all. You will feel better. Nothing from stores if you don't know how much salt does it have. Natalia Kamneva 67 Russian F with 2 cm left adrenal adenoma, recently diagnosed with PA; diabetic; on 100 mg eplerenone, 80 mg Micardis, 2000 mg metformin, 60 mg Dexilant and 2 mg Lorazepam; Dashing; still have some occasional problems with BP, K and Na; on private consultation with Dr Grim.To:

hyperaldosteronism Sent: Wednesday, November 2, 2011 5:33 PMSubject: Re: Dr. Grim - AVS and test results

on 3600 slow k per day

>

> Get to someone's potassium pills right away...you need K for now until

> someone helps you....find a lot K

>

> Max.

>

> |

> |Problems now.

> |very high bp 184/118 today.

> |20 plus pees per day

> |very low energy

> |don't sleep more than 2 hrs at one time

> |iritable/stressed/feel down alot

> |chest pain due to LVH

> |flank pain

> |I get shakey alot - had that since 5 yrs old crave salt leg numbness I just

> feel

> |weak leg and feet cramps every day - on 3600mg slowK

> |

> | http://docs.yahoo.com/info/terms/

>

[Guest guest]

Didn’t you hear a Abdol tonight on X-Factor when Simon complained about the four girls who wore 4 seasons dress for their song? Simon said he hated the 4-season dresses…and a said what can be expected from a make from London who never had more than one season in his lfe! We should bring to south of California so he can ride his bike at the beach all year round. Max. So, new guy from England, I don't recommend to move to USA or Canada, because we have here the same responses as yours from these two countries. Natalia

[Guest guest]

Malpractice! They put your life at risk and didn't even do the test correctly. Don't let the same people do it again. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of sthey did not use ACTH.Did they use ACTH?> > Val> > From: hyperaldosteronism > [mailto:hyperaldosteronism ] On Behalf Of s> > > I just had a one hr phone consult with endo from Radcliffe hospital in> Oxford UK. > I am a 45 yr old male. mid 20s early HTH, 32 put on anti-hypertensions, over> 20 different one's, never had normal BP, always high. 2009 started> investigations for PA. Now have LVH, chest pain from that. Both parents> dead. Mom died from stroke and had triple bypass at young age. Dad had HTH> and kidney issues, Alzheimer's.> > I was at a local hospital they did not know what to do next.> I did research and found the best surgeon for PA at Radcliffe hospital> got referred to this hospital late 2010. > > Some tests done at hospital A and some done at Radcliffe hospital.> > Calderdale Hospital (a) > - 24 hr urine test has been completed in hospital A, do not have the results> just letter stating in normal range.> - aldo/renin completed in Halifax 1.6 renin, 905 aldo.> - salt loading has not been completed.> - CT scans at hospital A radiologist listed Left 9mm edema.> > Referred to Radcliffe hospital ( - > - AVS April 2011 - Ratio 1, Right Adrenal - 5.77, Left Adrenal 6.51,> cortisol to venacava (sp?) 4.92.> - June 2011 in Oxford - 2.5 potassium, K too low to do another aldo/renin> - the specialist radiologist at Oxford Radcliffe Hospital says no Left> 9mm edema on scan.> > I have been told today:> - Going to do " special " ct scan to see if 9mm edema.> - plus 50% chance that the next AVS (my second) will be unsuccessful at > Radcliffe Hospital. > - Since I am on no meds but 3600k per day am getting renin/aldo and k blood> tests this week.> - Then back on Eplerone.> - See if Eplerone works.> - Then 2nd AVS and " special " scan booked in the next couple months. > > Thank you.

[Guest guest]

Note that there is not much of an A/Cor ratio difference between the R and L and IVC which suggests to me they were not in either adrenal vein. Cortisol should tell the story if you can get those numbers. CE Grim MD> - AVS April 2011 - Ratio 1, Right Adrenal - 5.77, Left Adrenal 6.51,> cortisol to venacava (sp?) 4.92.

[Guest guest]

Hmm suspect this was sent to us by mistake or it is in some kind of code.CE Grim MD Didn’t you hear a Abdol tonight on X-Factor when Simon complained about the four girls who wore 4 seasons dress for their song? Simon said he hated the 4-season dresses…and a said what can be expected from a make from London who never had more than one season in his lfe! We should bring to south of California so he can ride his bike at the beach all year round. Max. So, new guy from England, I don't recommend to move to USA or Canada, because we have here the same responses as yours from these two countries. Natalia

[Guest guest]

I have not seen UK guidelines for Dx and Rx of PA but they may exist.CE Grim MD Is this possibly a difference between US and UK practice? - 65 yo super ob. male - 12mm X 13mm rt. a.adnoma with previous rt. flank pain. Treating with Meds. And DASH. . Current BP(last week ave): 131/76 HR 60 Other Issues/Opportunities: OSA w Bi-Pap settings 13/19, DM2, and PTSD. Meds: Duloxetine hcl 80 MG, Metoprolol Tartrate 200 MG, 81mg asprin, Metformin 2000MG and Spironolactone 50 MG. > > > AVS without ACTH always 99.999% shows patient has no adenoma at > > all...you > > are clear! You have no high BP. It is mostly used by retarded > > physicians > > immigrated to USA and placed at hospitals' slavery department! I > > mean AVS > > without ACTH is not reliable at all...actually if AVS without ACTH > > indicates > > adenoma then the patient must have already been exploded by > > extremely high > > bp! > > > > Max. > > > > |they did not use ACTH. > > | > > | > > > > >

[Guest guest]

Send him an outbreak too to cure his nostalgia :-)NataliaTo: hyperaldosteronism Sent: Thursday, November 3, 2011 6:23 AMSubject: Re: Dr. Grim - AVS and test results

I can send you some New Hampshire snow. While the part of NH I live didn't get very much southen NH and Mass. got 2 Feet + on Oct 30. Many still do not have power.

> >

> > >

> > > Didn't you hear a Abdol tonight on X-Factor when Simon

> > > complained about the four girls who wore 4 seasons dress for their

> > > song? Simon said he hated the 4-season dresses…and a said what

> > > can be expected from a make from London who never had more than one

> > > season in his lfe! We should bring to south of California so

> > > he can ride his bike at the beach all year round.

> > >

> > >

> > >

> > > Max.

> > >

> > >

> > >

> > >

> > >

> > > So, new guy from England, I don't recommend to move to USA or

> > > Canada, because we have here the same responses as yours from these

> > > two countries.

> > >

> > >

> > >

> > > Natalia

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> >

>

[Guest guest]

Natalia, get your hospital report.  That will tell you whether you had ACTH.  U of Michigan does AVS while on spironolactone, but I don't know of any other center that does that. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Natalia KamnevaAfter that I asked three doctors who saw me in the hospital, including my PCP, and all of them answered they don't know if AVS was with or without ACTH. Now, no wonder, that my AVS showed that both of my adrenals produce the same amount of hormones, and they are practically normal, even if I have 2 cm adenoma on a left side. |

[Guest guest]

Val,I got this report and even forwarded it to Dr. Grim. He could not figure it out :-)U of Pittsburgh does the same thing obviously. NataliaTo: hyperaldosteronism Sent: Thursday, November 3, 2011 6:39 PMSubject: RE:

Re: Dr. Grim - AVS and test results

Natalia, get your hospital report. That will tell you whether you had ACTH. U of Michigan does AVS while on spironolactone, but I don't know of any other center that does that. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Natalia KamnevaAfter that I asked three doctors who saw me in the hospital, including my PCP, and all of them answered they don't know if AVS was with or without ACTH. Now, no wonder, that my AVS showed that both of my adrenals produce the same amount of hormones, and they are practically normal, even if I have 2 cm adenoma on a left side. |

[Guest guest]

There is not hopefully Obama care will correct this. I can make inquires at Wash U as know HTN SPECIALIST THERE. Will let u know tomorrow. On the other hand the MAyo machine is prob best in the world. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension

Let me know how you get a hold of the success rates. I have a choice between Washington University here in STL or the Mayo clinic. I have no idea how to check success rates. Is there some type of data base?

> > > >

> > > > > AVS without ACTH always 99.999% shows patient has no adenoma at

> > > > > all...you

> > > > > are clear! You have no high BP. It is mostly used by retarded

> > > > > physicians

> > > > > immigrated to USA and placed at hospitals' slavery department! I

> > > > > mean AVS

> > > > > without ACTH is not reliable at all...actually if AVS without ACTH

> > > > > indicates

> > > > > adenoma then the patient must have already been exploded by

> > > > > extremely high

> > > > > bp!

> > > > >

> > > > > Max.

> > > > >

> > > > > |they did not use ACTH.

> > > > > |

> > > > > |

> > > > >

> > > > >

> > > >

> > >

> > >

> >

>

[Guest guest]

I believe that Dr. Stanson, who is the IR at Mayo, has done 400 AVS's & has

gotten the right adrenal vein in 96% of the procedures. My endo had only used

local IRs. When I called the hospital she suggested, I was told that 5

different doctors did the procedure, so figured none had done that many. Thus,

I researched hospitals in nearby metro areas. The first IR I consulted said he

had done 25 AVS's & only got the right adrenal vein 60% of the time. I chose to

have my AVS done by Dr. Georgiades at Hopkins, who had done about 100 AVS's

with 96% success at getting the right adrenal vein.

I don't think you can do better than Mayo if you can get there. If not, I would

research IR depts. in nearby metro areas & set up consults with the most

promising. Based on the feedback from this group, in addition to asking

questions about how the procedure worked, I asked the doctors that I consulted:

1. How many AVS's they had done?

2. How many times they got the right adrenal vein?

3. Did they use ACTH?

In retrospect, I wish I had known to ask if they check K levels before they

release a patient. Half way home, I ended up in the ER for 12 hours with a K

crash. Another woman in this group had a similar experience. So, I highly

recommend getting K checked aftee an AVS.

Good luck.

~Lucy

Sent from my Verizon Wireless Phone

crzylnebkr wrote:

>Let me know how you get a hold of the success rates. I have a choice between

Washington University here in STL or the Mayo clinic. I have no idea how to

check success rates. Is there some type of data base?

>

>

>

>

>> > > >

>> > > > > AVS without ACTH always 99.999% shows patient has no adenoma at

>> > > > > all...you

>> > > > > are clear! You have no high BP. It is mostly used by retarded

>> > > > > physicians

>> > > > > immigrated to USA and placed at hospitals' slavery department! I

>> > > > > mean AVS

>> > > > > without ACTH is not reliable at all...actually if AVS without ACTH

>> > > > > indicates

>> > > > > adenoma then the patient must have already been exploded by

>> > > > > extremely high

>> > > > > bp!

>> > > > >

>> > > > > Max.

>> > > > >

>> > > > > |they did not use ACTH.

>> > > > > |

>> > > > > |

>> > > > >

>> > > > >

>> > > >

>> > >

>> > >

>> >

>>

>

>

[Guest guest]

And getting it corrected before AVS. If u read her AVS story on the way home after the procedure you can see why I suggested she was lucky to have survived it. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertension

I believe that Dr. Stanson, who is the IR at Mayo, has done 400 AVS's & has gotten the right adrenal vein in 96% of the procedures. My endo had only used local IRs. When I called the hospital she suggested, I was told that 5 different doctors did the procedure, so figured none had done that many. Thus, I researched hospitals in nearby metro areas. The first IR I consulted said he had done 25 AVS's & only got the right adrenal vein 60% of the time. I chose to have my AVS done by Dr. Georgiades at Hopkins, who had done about 100 AVS's with 96% success at getting the right adrenal vein.

I don't think you can do better than Mayo if you can get there. If not, I would research IR depts. in nearby metro areas & set up consults with the most promising. Based on the feedback from this group, in addition to asking questions about how the procedure worked, I asked the doctors that I consulted:

1. How many AVS's they had done?

2. How many times they got the right adrenal vein?

3. Did they use ACTH?

In retrospect, I wish I had known to ask if they check K levels before they release a patient. Half way home, I ended up in the ER for 12 hours with a K crash. Another woman in this group had a similar experience. So, I highly recommend getting K checked aftee an AVS.

Good luck.

~Lucy

Sent from my Verizon Wireless Phone

crzylnebkr wrote:

>Let me know how you get a hold of the success rates. I have a choice between Washington University here in STL or the Mayo clinic. I have no idea how to check success rates. Is there some type of data base?

>

>

>

>

>> > > >

>> > > > > AVS without ACTH always 99.999% shows patient has no adenoma at

>> > > > > all...you

>> > > > > are clear! You have no high BP. It is mostly used by retarded

>> > > > > physicians

>> > > > > immigrated to USA and placed at hospitals' slavery department! I

>> > > > > mean AVS

>> > > > > without ACTH is not reliable at all...actually if AVS without ACTH

>> > > > > indicates

>> > > > > adenoma then the patient must have already been exploded by

>> > > > > extremely high

>> > > > > bp!

>> > > > >

>> > > > > Max.

>> > > > >

>> > > > > |they did not use ACTH.

>> > > > > |

>> > > > > |

>> > > > >

>> > > > >

>> > > >

>> > >

>> > >

>> >

>>

>

>

[Guest guest]

Natalia, somewhere, if you were given ACTH, there would be a record of it.  I've had three surgeries this year and each time, everything they gave me is recorded.  Maybe talk to the intervention radiologist who did the actual AVS? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Natalia Kamneva Val, I got this report and even forwarded it to Dr. Grim. He could not figure it out :-)U of Pittsburgh does the same thing obviously. Natalia Natalia, get your hospital report. That will tell you whether you had ACTH. U of Michigan does AVS while on spironolactone, but I don't know of any other center that does that. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Natalia KamnevaAfter that I asked three doctors who saw me in the hospital, including my PCP, and all of them answered they don't know if AVS was with or without ACTH. Now, no wonder, that my AVS showed that both of my adrenals produce the same amount of hormones, and they are practically normal, even if I have 2 cm adenoma on a left side. |

[Guest guest]

may be depending on where one is.CE Grim MD Is this possibly a difference between US and UK practice? - 65 yo super ob. male - 12mm X 13mm rt. a.adnoma with previous rt. flank pain. Treating with Meds. And DASH. . Current BP(last week ave): 131/76 HR 60 Other Issues/Opportunities: OSA w Bi-Pap settings 13/19, DM2, and PTSD. Meds: Duloxetine hcl 80 MG, Metoprolol Tartrate 200 MG, 81mg asprin, Metformin 2000MG and Spironolactone 50 MG. > > > AVS without ACTH always 99.999% shows patient has no adenoma at > > all...you > > are clear! You have no high BP. It is mostly used by retarded > > physicians > > immigrated to USA and placed at hospitals' slavery department! I > > mean AVS > > without ACTH is not reliable at all...actually if AVS without ACTH > > indicates > > adenoma then the patient must have already been exploded by > > extremely high > > bp! > > > > Max. > > > > |they did not use ACTH. > > | > > | > > > > >

[Guest guest]

Read my Evolution Article to learn a bit about Familial PA. Treatment is the same but surgery is not done.CE Grim MD I am doing an renin/aldo blood ratio test in morning before I go back on Inspra. I will get these copies in a couple days. I will get copies of first renin/aldo and copy of 24 hr results from hospital in a few days. My mother may have had low potassium. I am now checking. does familiar PA require diff treatment? > > > I just had a one hr phone consult with endo from Radcliffe hospital in Oxford UK. > > I am a 45 yr old male. mid 20s early HTH, 32 put on anti-hypertensions, over 20 different one's, never had normal BP, always high. 2009 started investigations for PA. Now have LVH, chest pain from that. Both parents dead. Mom died from stroke and had triple bypass at young age. Dad had HTH and kidney issues, Alzheimer's. > > > > I was at a local hospital they did not know what to do next. > > I did research and found the best surgeon for PA at Radcliffe hospital got referred to this hospital late 2010. > > > > Some tests done at hospital A and some done at Radcliffe hospital. > > > > Calderdale Hospital (a) > > - 24 hr urine test has been completed in hospital A, do not have the results just letter stating in normal range. > > - aldo/renin completed in Halifax 1.6 renin, 905 aldo. > > - salt loading has not been completed. > > - CT scans at hospital A radiologist listed Left 9mm edema. > > > > Referred to Radcliffe hospital ( - > > - AVS April 2011 - Ratio 1, Right Adrenal - 5.77, Left Adrenal 6.51, cortisol to venacava (sp?) 4.92. > > - June 2011 in Oxford - 2.5 potassium, K too low to do another aldo/renin > > - the specialist radiologist at Oxford Radcliffe Hospital says no Left 9mm edema on scan. > > > > I have been told today: > > - Going to do "special" ct scan to see if 9mm edema. > > - plus 50% chance that the next AVS (my second) will be unsuccessful at Radcliffe Hospital. > > - Since I am on no meds but 3600k per day am getting renin/aldo and k blood tests this week. > > - Then back on Eplerone. > > - See if Eplerone works. > > - Then 2nd AVS and "special" scan booked in the next couple months. > > > > Thank you > > > > >

[Guest guest]

Yes sorry. CE Grim MD do you mean the cortisol and aldo numbers from avs? > > > I just had a one hr phone consult with endo from Radcliffe hospital in Oxford UK. > > I am a 45 yr old male. mid 20s early HTH, 32 put on anti-hypertensions, over 20 different one's, never had normal BP, always high. 2009 started investigations for PA. Now have LVH, chest pain from that. Both parents dead. Mom died from stroke and had triple bypass at young age. Dad had HTH and kidney issues, Alzheimer's. > > > > I was at a local hospital they did not know what to do next. > > I did research and found the best surgeon for PA at Radcliffe hospital got referred to this hospital late 2010. > > > > Some tests done at hospital A and some done at Radcliffe hospital. > > > > Calderdale Hospital (a) > > - 24 hr urine test has been completed in hospital A, do not have the results just letter stating in normal range. > > - aldo/renin completed in Halifax 1.6 renin, 905 aldo. > > - salt loading has not been completed. > > - CT scans at hospital A radiologist listed Left 9mm edema. > > > > Referred to Radcliffe hospital ( - > > - AVS April 2011 - Ratio 1, Right Adrenal - 5.77, Left Adrenal 6.51, cortisol to venacava (sp?) 4.92. > > - June 2011 in Oxford - 2.5 potassium, K too low to do another aldo/renin > > - the specialist radiologist at Oxford Radcliffe Hospital says no Left 9mm edema on scan. > > > > I have been told today: > > - Going to do "special" ct scan to see if 9mm edema. > > - plus 50% chance that the next AVS (my second) will be unsuccessful at Radcliffe Hospital. > > - Since I am on no meds but 3600k per day am getting renin/aldo and k blood tests this week. > > - Then back on Eplerone. > > - See if Eplerone works. > > - Then 2nd AVS and "special" scan booked in the next couple months. > > > > Thank you > > > > >

[Guest guest]

What meds are you on?DASH NOW!!!CE Grim MD Problems now. very high bp 184/118 today. 20 plus pees per day very low energy don't sleep more than 2 hrs at one time iritable/stressed/feel down alot chest pain due to LVH flank pain I get shakey alot - had that since 5 yrs old crave salt leg numbness I just feel weak leg and feet cramps every day - on 3600mg slowK > > > I just had a one hr phone consult with endo from Radcliffe hospital in Oxford UK. > > I am a 45 yr old male. mid 20s early HTH, 32 put on anti-hypertensions, over 20 different one's, never had normal BP, always high. 2009 started investigations for PA. Now have LVH, chest pain from that. Both parents dead. Mom died from stroke and had triple bypass at young age. Dad had HTH and kidney issues, Alzheimer's. > > > > I was at a local hospital they did not know what to do next. > > I did research and found the best surgeon for PA at Radcliffe hospital got referred to this hospital late 2010. > > > > Some tests done at hospital A and some done at Radcliffe hospital. > > > > Calderdale Hospital (a) > > - 24 hr urine test has been completed in hospital A, do not have the results just letter stating in normal range. > > - aldo/renin completed in Halifax 1.6 renin, 905 aldo. > > - salt loading has not been completed. > > - CT scans at hospital A radiologist listed Left 9mm edema. > > > > Referred to Radcliffe hospital ( - > > - AVS April 2011 - Ratio 1, Right Adrenal - 5.77, Left Adrenal 6.51, cortisol to venacava (sp?) 4.92. > > - June 2011 in Oxford - 2.5 potassium, K too low to do another aldo/renin > > - the specialist radiologist at Oxford Radcliffe Hospital says no Left 9mm edema on scan. > > > > I have been told today: > > - Going to do "special" ct scan to see if 9mm edema. > > - plus 50% chance that the next AVS (my second) will be unsuccessful at Radcliffe Hospital. > > - Since I am on no meds but 3600k per day am getting renin/aldo and k blood tests this week. > > - Then back on Eplerone. > > - See if Eplerone works. > > - Then 2nd AVS and "special" scan booked in the next couple months. > > > > Thank you > > > > >

[Guest guest]

That much may irritate your stomach. DASH now. This lowers K going out in your urine by lowering Na intake, DASH is high K and will help replace K. Get low Na V-8 and do 1-2 glasses a day. When was K last checked? and what was it?What is average BP?CE Grim MD Get to someone's potassium pills right away...you need K for now until someone helps you....find a lot K Max. | |Problems now. |very high bp 184/118 today. |20 plus pees per day |very low energy |don't sleep more than 2 hrs at one time |iritable/stressed/feel down alot |chest pain due to LVH |flank pain |I get shakey alot - had that since 5 yrs old crave salt leg numbness I just feel |weak leg and feet cramps every day - on 3600mg slowK | | http://docs.yahoo.com/info/terms/