Guest guest Posted July 16, 2009 Report Share Posted July 16, 2009 Hey everyone...I'm Kim...mom to 2 1/2 year old Destiny. She was diagnosed with infantile scoliosis shortly after her first birthday. They put her in a brace for a while to slow down the curving, but it didn't help much. Her last regular appointment she measured at 72 degrees. They were going to do the growing rod surgery on her but because she had problems with bumps on her eyes, they cancelled in. During the time waiting for her eyes to be fixed, she has not been in a brace as they did not prescribe a new one since she was scheduled for surgery, but it ended up taking several months to get anything done. Then one day I ran into her doctor(I work at the hospital) and he said he had sent her films to a doctor's conference a friend of his was attending and they all recommended casting. So we were referred to Children's Hospital in New Orleans(we live in Pensacola, FL). The doctor there believes her to be a great candidate for casting, but says the casting table they have is to big for her, but he wants to attempt it anyway and just make adustments. So that's where we are now. Tomorrow she is scheduled for her first cast and I'm scared to death. I keep doubting that we made the right choice, but reading some of the stuff I've found online the past few days has been encouraging that maybe it is the right choice. I guess I've come here looking for some support, because this is all really stressing me out. Can't wait to get to know some of you and hear some of your experiences. Kim Find me online! www.myspace.com/kim221998 www.twitter.com/kim221998 Quote Link to comment Share on other sites More sharing options...
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